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Jane
Monday, October 3, 2005, 1:31pm Report to Moderator Report to Moderator

Kyosha Nim
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Try googling Mary Shoman and thyroid to find her about.com site.  It has a wealth of information about all kinds of thyroid problems, including lists of questions to ask your doctor, a variety of theories with reference to treatment options.
Everyone is different and getting the right levels is important.  Also "normal" has been redefined within the past year or so and just getting what was a normal TSH may not be optimal for you.  Find an endocrinologist that is willing to at least listen to what you say.  You are a lot more than just a lab report!
I've tried all kinds of combinations.  Also things can change seasonally.  You may need more T4/T3 in the winter than you do in the summer.
Good luck and stay  in touch.
Jane
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italybound
Monday, October 3, 2005, 2:16pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Jane
 Find an endocrinologist that is willing to at least listen to what you say.  You are a lot more than just a lab report!


Finding a doctor that will not only look at lab tests, but more importantly, listen to how you FEEL, is very important. I have read more and more about this aspect of getting thyroid levels under control. I used to have a website on which you could search for those dr's in your area. I'll look and see if I can find it. If I can, I'll post it.
I'm not sure why most Dr's only run TSH, maybe it's because of the ins. co., but it is not the right test/s to be running, from all I've read and been told.   I actually have some websites w/ that info too, if I can find them.



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Jane
Monday, October 3, 2005, 2:54pm Report to Moderator Report to Moderator

Kyosha Nim
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The list of docs is on Mary Shoman's site.
Jane
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trish44
Thursday, October 6, 2005, 9:41pm Report to Moderator Report to Moderator

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Thank you, I have made an appointment with a naturopath.  I am to take my temperature for a few days, to see if it is low.  I am anxious to talk with him about all of these issues.  I will post after seeing him next week, and I do so appreciate all of the support on this site!  Will be back soon!  Trish


Trish44 (type O)
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Lola
Thursday, October 6, 2005, 11:42pm Report to Moderator Report to Moderator

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Sa Bon Nim
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good luck!! )


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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The harder you are on yourself, the easier life will be on you!
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slyparrot
Thursday, December 22, 2005, 9:18am Report to Moderator Report to Moderator

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Quoted Text
[/quote]tishtish and Jenny, you really need the T3 and T4 tests done on the thyroid. The TSH is not a TRUE indicator of how your thryoid is functioning. [quote]



So True!  My T3 and T4 levels are on the low normal side but so is my TSH!  My TSH was always on the high side until now, it's like my pituitary gland decided to take a vacation!  

Has anyone experienced their skin taking a longer time to heal on thyroid meds?  My skin used to be dryer and thicker and is better now but takes longer to heal from simple cuts and scratches.  

Has anyone tried WestThroid?  


Type O+, Non-Secretor, Haplo U5a1a, Explorer, Super-Taster, Virgo, and ESTP/INTP
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NewHampshireGirl
Thursday, December 22, 2005, 8:12pm Report to Moderator Report to Moderator

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Kyosha Nim
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Slyparrot, it's funny you should ask about Westhroid at this time.  Recently, after discussing Synthroid vs. Westhroid or Armour with my endocrinologist and complaining again about not being able to lose weight and telling her I am learning that many people lose weight on Westhroid I asked her to please switch me from Synthroid to Westhroid.  First, she wanted me to have a T3 drawn, which I did, and it came back normal but on the low side.  At that point she was very willing to switch me over to Westhroid.  

So, I have not had experience with Westhroid yet, but am eager to see how it works with me.  I had had a few symptoms I didn't appreciate on Synthroid, one was weight gain and another one that stands out is fuzzy thinking of words.  The blogger, Jean Bundschuh wrote blogs about Westhroid and that's what pushed me to research the area of porcine thyroid replacement.  I believe I'm going to be glad I did!
New Hampshire Girl  
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Jane
Thursday, December 22, 2005, 8:54pm Report to Moderator Report to Moderator

Kyosha Nim
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Very interesting NH Girl!  If you find that the word recall improves, let us know.  That's one thing that I thought was just from getting older......the ability to pull up a word.  It comes eventually.
As I think I've said before, I took Synthroid for years, switched last year to Levothroid + a compounded T3 capsule.  I'll have to ask my endo about Westhroid and get his opinion.  My next appointment isn't for several months but maybe I'll give me a call after the holidays.

I'll be in NH a good part of next week skiing hopefully.
Jane
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NewHampshireGirl
Thursday, December 22, 2005, 10:53pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yes, I do remember, Jane, that you were taking a compounded T3.  I'll see how the Westhroid works with me but it may take awhile to understand the results.

Have fun skiing in NH.  If you are going to be anywhere near Peterborough, please PM me and I'll give you my address.  What fun it would be to have tea together in this Christmas season.
New Hampshire Girl  
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Jane
Friday, December 23, 2005, 4:56pm Report to Moderator Report to Moderator

Kyosha Nim
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Not near Peterborough.  I have a house at Loon.  I'd love to do it sometime though.  
Happy holidays!
Jane
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NewHampshireGirl
Friday, December 23, 2005, 7:14pm Report to Moderator Report to Moderator

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Kyosha Nim
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Loon!  A lovely place.   Okay, don't forget to let me know!
New Hampshire Girl  
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italybound
Friday, December 23, 2005, 9:45pm Report to Moderator Report to Moderator

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Kyosha Nim
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I googled Westhroid and found some info on reading the book "Living Well w/ Hypothyroidism" by Mary J. Shomon, which I have, but have not read. I looked    throught just a few of the pages and I would highly recommend this book as a read for anyone w/ hypoglycemia. There is a definite connection between hypoglycemia and the adrenal glands, which I pretty much already knew, but was glad to have it brought to my attn again. Thanks to a gal I went to see re: interior decorating, I have found a doctor who, from what Ginger says, seems to be really "with it" in regards many things. She believes in the BTD. Enough said!!



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slyparrot
Saturday, December 24, 2005, 1:06pm Report to Moderator Report to Moderator

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I started with just Levoxyl.  Then Levoxyl with Cytomel.  Then WestThroid.

The nasty side effects are gone but my energy level and concentration are a little lower with WestThroid when compared on the same diet.  

However, when I eat quinoa with dulse, the energy level and concentration sky rockets.  It's probably the dulse.  This is a new discovery for me.  I wonder if the iodine in dulse is affecting my thyroid!?!


Type O+, Non-Secretor, Haplo U5a1a, Explorer, Super-Taster, Virgo, and ESTP/INTP
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italybound
Saturday, December 24, 2005, 1:56pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from slyparrot
I wonder if the iodine in dulse is affecting my thyroid!?!


That is a good possibility. My naturopath puts his patients on liquid iodine for
thyroid. I tried it for  awhile, but couldn't remember to take it enough so went back to the pills. Easier to take w/ me.



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slyparrot
Friday, January 6, 2006, 7:41am Report to Moderator Report to Moderator

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My doc told me I have some thyroiditis going on too.  I thought it was just me, feeling hypo and hyper, but it's really there!  Now I have Synthroid to take with WestThroid because my T4 was low, when I'm hypo.  If I'm feeling hyper I skip it or take half but it doesn't happen often.  It's like little 3-4 day episodes that speeds me up and then disappears.  My anti-body was high so it's the most logical explanation.  Go figure, a thyroid roller-coaster!!!


Type O+, Non-Secretor, Haplo U5a1a, Explorer, Super-Taster, Virgo, and ESTP/INTP
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Lola
Saturday, January 7, 2006, 12:16am Report to Moderator Report to Moderator

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at least you know what s going on now, which is a good thing! )


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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lynn9965
Friday, January 13, 2006, 3:29am Report to Moderator Report to Moderator
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Hi everyone. I had my parathyroid surgery on 28 October at WHC instead of UVA. I am happy that I had the surgery at WHC because the doctors there are up on the new technologies. My surgery was almost two hours. My thyroid was okay, so I didn't have to have it removed or any nodes removed. I had very little pain after the surgery; the incision was about one inch wide and the stitches were in the inside. My doctor only put me on calcium with vitamin D. I'm almost back to normal; the only problems I have still is dealing with the osteoporosis, but I was told in about a year I should be okay as long as I exercise and take my calcium. I was off from work for two weeks.

I am trying my best to stick to my blood type diet so I can avoid something like this in the future

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lynn9965  -  Friday, January 13, 2006, 3:31am
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Lola
Friday, January 13, 2006, 3:39am Report to Moderator Report to Moderator

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Sa Bon Nim
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is it D3
)or 'cholecalciferol'?


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!

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lynn9965  -  Friday, January 13, 2006, 3:41am
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NewHampshireGirl
Friday, January 13, 2006, 4:28pm Report to Moderator Report to Moderator

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Kyosha Nim
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Lynn9965, so glad to have an update on you.  I'm very happy your surgery was so successful and nice to know your thyroid did not have to be removed in the process.  
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italybound
Monday, January 23, 2006, 5:35pm Report to Moderator Report to Moderator

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Kyosha Nim
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I just ran across this thyroid info today:
"Heme iron (iron from meat myoglobin) is 10 times more easily absorbed than elemental iron, or iron from non-meat sources. Iron absorption is decreased by the presence of phosphate, bicarbonate or bile acids. Thyroid medication and iron supplements should be taken at different times of the day."
It is at this site if you care to read more, altho this site is more about iron.
http://www.diagnose-me.com/cond/C1667.html



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Jane
Monday, January 23, 2006, 6:22pm Report to Moderator Report to Moderator

Kyosha Nim
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Lynn,
I'm glad to hear that you are doing so well.  How much calcium did he put you on and are you taking presciption D or just a calcium supplement with D in it?   Just curious.  I was so "electric" after my surgery that I had to take TUMS all day long for a while and presciption D.
It's good that the thyroid was OK.  At least you won't have to deal with that.
Jane
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lynn9965
Wednesday, January 25, 2006, 4:11pm Report to Moderator Report to Moderator
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Jane,

I was told by my doctor to take a 1000 mg of calcium supplement with vitamin D in it. I started to increase the calcium a little because my back and legs still ache due to the osteoporosis. Monday night I started getting a tingling sensation in my toes, fingers and around my mouth; so I went to my PCP; she ordered blood work. I'm thinking my calcium level may be too low now. I will let you know what the results are. I probably need to take more calcium.
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Victoria
Wednesday, January 25, 2006, 5:22pm Report to Moderator Report to Moderator

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Lynn,
Please make sure that it is a form of calcium that is easily assimilated.   There are so many kinds out there.  Calcium Citrate has a good reputation among the kinds in the natural foods stores.  And I'm sure there are others.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Jane
Wednesday, January 25, 2006, 8:18pm Report to Moderator Report to Moderator

Kyosha Nim
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Lynn,
I think (it's been 10 years) that the tingling might be a sure sign of not enough calcium.  There's even this thing where they check your reactions by tapping on your cheek.  I can't remember the name of it.  I just know that it was positive in me and that I needed more calcium.  The quickest way to get it into your bloodstream is to chew some TUMS.  They also put me on the prescription D.  If it gets really low you feel really strange.  I can't explain it.  I really did feel electric.  It was putting your fingers in a light socket.  One week after my surgery I got it into my head that I wanted to go back to work.  My body chemistry was still so messed up that just driving made me feel like I was having a panic attack.  Luckily it went away within a few weeks.  I'm a real nut case about making sure that I take my calcium though.
Hope that things continue to improve for you.
Jane
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Lola
Thursday, January 26, 2006, 1:37am Report to Moderator Report to Moderator

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Sa Bon Nim
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plssssssssssssss don t take TUMS for calcium uptake!!!! )

hope this was before BTD!!!!! right?


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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