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BTD Forums  /  Nonnie Clubhouse  /  Meniere's Disease
Posted by: JoAnn, Wednesday, November 6, 2013, 12:52pm
My husband who is an A non-secretor has been diagnosed with Meniere's disease.  Has anyone had any success in treating this disease by closely following a Swami (we both visited the Center and had our swami done but my husband does not follow it 100%) and/or taking supplements?  We are scheduled to be at the Center on 12/2 and look forward to that visit but until then I was wondering if anyone had any feedback on this subject.  Thanks for any comments that may be forthcoming. :)
Posted by: Andrea AWsec, Wednesday, November 6, 2013, 12:56pm; Reply: 1
Did the Center of Excellence treat the Meniere's disease?
Posted by: JoAnn, Wednesday, November 6, 2013, 1:47pm; Reply: 2
Andrea, he just found out Monday that he has Meniere's Disease after having extensive testing done by his ENT for bouts of dizziness.  When we go back to the Center on 12/2 we'll let them know that is what he has and see how they want to treat it.  I was just wondering in the meantime if any other members have suffered with it and if they have had any success in treating it.  Thanks for responding.
Posted by: Amazone I., Wednesday, November 6, 2013, 6:38pm; Reply: 3
Menière disease... is also related to too much stress and psychosomatics... my dad was once diagnosed  years agao and was overloaded with meds... I only can say...go for fatty acids,B-complex in orthomolecular amounts...load up with Mg (magnesium)Vit.C
and distressing matters like autogenic training,brisk walkings etc... this is all recognized by so called inner ear conditions and the uprising of the lymphatic system but indeed I'd merely say today..especially for O's... go for an intense system cleanse and detox of the tissues!
Remember about the nonnie-status ;) ;D...(whistle)
Posted by: JoAnn, Wednesday, November 6, 2013, 8:27pm; Reply: 4
Thank you Amazone for your advice.  Sounds good.  After we have our appointment on 12/2 I'll let you know if they have made any further suggestions/supplements.
Posted by: Andrea AWsec, Wednesday, November 6, 2013, 9:04pm; Reply: 5
Wont surprise me if they use some constitutional hydrotherapy-- ;)
Posted by: JoAnn, Thursday, November 7, 2013, 4:08pm; Reply: 6
I'll let you know if that's the way they go Andrea.  That is what they suggested for me for my adrenals.  I googled the process and had my husband administer the towels - we may have to reverse the roles. ;)
Posted by: Peppermint Twist, Thursday, November 7, 2013, 6:05pm; Reply: 7
I strenuously DISAGREE with Isa (Amazone) that Meniere's is caused by "psychosomatics".  I won't even say any more on that, other than to register my extreme and utter disagreement with that statement.  (edited to add:  I also do not like her dismissive statement re "so-called inner ear conditions".  Inner ear conditions are very real and are not psychosomatic in genesis.)

Moving along, I'm glad your husband went to a good ENT, and further glad that you are going to see Dr. D regarding complementary therapies.  If your ENT can refer you to a center for balance, where they specialize in treating vertigo from various causes, it would be ideal, but it sounds to me like, short of that (and those centers don't exist everywhere in the country--I am extremely blessed to live about 45 minutes from one...I have vertigo, but I'm lucky, as mine is the benign paroxsymal positional vertigo--BPPV--and not Meniere's.  Meniere's is very challenging and my empathy really goes out to your husband and you, dealing with it.  However, the combo of working with a good ENT and doing everythig you can regarding optimizing your diet, supplements and lifestyle is the best path for him.  Best of luck to him and I really empathize.  My own vertigo came back just this past Tuesday, after being successfully treated in 2011.  I knew there was a statistical likelihood that I'd need a retreatment at some point, but of course it happened at, like, the WORST, most inconvenient moment possible.  That said, I am trying to stay grateful re that this isn't life threatening, it is just challenging, and if it doesn't clear back up on its own, I will simply have to make time to go back and get re-treated  Meniere's is trickier...all you can do is what you are doing:  research it as much as possible on your own, go see Dr. D. for a highly customized nutritional approach, and go to an excellent ENT and, ideally, a balance center, as they specialize in these things.  (((HUG)))
Posted by: Peppermint Twist, Thursday, November 7, 2013, 6:10pm; Reply: 8
P.S.  This place (see link) is excellent--I cannot say enough superlatives about their care, it was the best health care I ever received for anything in my entire life (other than Dr. D's via his books and this community, seriously).  Even though my vertigo has returned as of yesterday, I always said, if it did, I'm blessed to know where to go and to have it so close to home.  If it gets to the point at which your husband feels he wants to find one of these balance centers, they would be able to refer you to the closest one to you...hopefully there is one somewhere near you, but they would know, either way.  I mean, even if it isn't one of their affiliates, they might still know of a good place near you:

http://dizzy.com/ (The American Institute of Balance:  main/home page)

http://dizzy.com/dizzines_and_equilibrium.htm#tests (this page of their site talks about Meniere's a bit, if you scroll down)
Posted by: JoAnn, Thursday, November 7, 2013, 7:57pm; Reply: 9
Thank you for your comments Peppermint Twist.  When you previously spoke of the balance centers I looked into it and found two in Massachusetts (we live in RI), and they are both less than 1 hour away, so that will definitely be an option.  I printed your comments last time and have held on to them.  I hope you're able to once again conquer your vertigo.  Although I never had vertigo I did have an inner ear infection a few years ago that kept me flat on my back because I was so dizzy so I truly empathize with you.  Thanks again for the support.  Feel better soon. :K)
Posted by: Peppermint Twist, Thursday, November 7, 2013, 8:03pm; Reply: 10
^ (((HUG)))
Posted by: cajun, Saturday, November 9, 2013, 3:53am; Reply: 11
I have a cousin who was diagnosed with Menieres when he was younger and had to be hospitalized and have surgery. He is better but not 100%.  Another male relative on that side of my family has severe tinnitus. Years ago my Aunt, again, same side of family, complained of ongoing tinnitus symptoms.
I have experienced vertigo and ear ringing in the past , due to sinus issues. Extremely uncomfortable and scary! My sympathies to all those who suffer! :-/
Posted by: DoS, Saturday, November 9, 2013, 9:30pm; Reply: 12
I've had lots of ear infectins, tinnitus, less sense of balance, stuff, and yes I've had improvement.

I think he'll be doing great shortly after a visit. Probably a little cardio help (ginko, folate, b12, pantothenic acid) and liver (dandelion) along with eating the right foods will have it cleared up shortly.
Posted by: JoAnn, Sunday, November 10, 2013, 12:26am; Reply: 13
Thank you doS for the encouragement.  I'll let you know how he makes out :)
Posted by: Lola, Sunday, November 10, 2013, 7:29am; Reply: 14
a light liver detox may work like a charm, periodically
Posted by: Amazone I., Sunday, November 10, 2013, 11:00am; Reply: 15
sorry Peppy but its' known and agreed also in literature..and I also treat patients under such circumstances with great success! :D and also my own father was attaint by this sickness years before..... :o :-/ :P

the more I'm in oposite to a thema: the more I'll need to embrace it ;) :D...coz it's
always the point hitting... ;) ;D :X
Posted by: meh206, Monday, November 11, 2013, 8:38am; Reply: 16
I have a sister in law and also a nephew with Meniere's Disease (they are not in the same family).
They were both told to watch the amount of salt they use. Using hardly any salt has help them.
Posted by: JoAnn, Monday, November 11, 2013, 9:44am; Reply: 17
meh206 my husband was told the same thing by his ENT and he is doing that, so hopefully that helps him as well.
Posted by: Peppermint Twist, Monday, November 11, 2013, 7:06pm; Reply: 18
Quoted from Amazone I.
sorry Peppy but its' known and agreed also in literature

I don't know what the "its" is that you are referring to, but if it is that vertigo is "psychosomatic", you are incorrect.  You are also incorrect that inner ear conditions are "so-called", presumably as opposed to actual.

You indicate in many of your posts over the years that you feel most illness is psychosomatic and/or the result of stress.  Some certainly are, can be, or have one or both of those things as a component.  But BPPV and also Meniere's Disease are not diseases that are psychosomatic in genesis.  No matter how many times you keep stating that they are, it doesn't make it true.  I find it interesting that you really seem to need to tell people that whatever they have is psychosomatic, and if anyone informs you that, actually, in the case of whatever it is, that it is not, you always say again that it is.  Why do you have a need to tell people that what is going on with them is all in their heads?

P.S.  I assure you that the reason I am "I'm in oposite to your thema" is not because "I need to embrace it", but because you are incorrect, I know it, and I find it infuriating that you so often tell people that what is going on with them is purely psychosomatic, even in situations when it is definitely not.  You seem to enjoy when people take issue with you about it, just as you used to do with me all the time regarding back problems.  One day, Amazone, you will get something that is NOT psychosomatic, and someone will come along and insist to you that it is, possibly with a bunch of smilie faces to show you how cute and delightful they think they are being.  Then you will know just how utterly infuriating that behavior is.
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