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BTD Forums  /  Testimonials  /  Thanks 4 risk analysis saved me! Breast Cancer
Posted by: Symbi, Wednesday, December 5, 2012, 3:58am
Hi Dr D and All,

Haven't been on for a while because I'm fighting breast cancer.   :) I found it early thanks to Dr D. Thanks <3

Being only 38 I'm not eligible for the mammography screening.  Have had cysts for a while I'd already had the other one ultrasounded  (??) if that's a word!)  Then there was a lump I had all year which I was worried about in the left breast growing very slowly, felt a bit lumpy with smooth parts - nothing like the cysts but I wasn't sure.  In June the ultrasound said:

Quoted Text
"?degenerating cyst.  A fine needle biopsy (FNAC) may be undertaken for peace of mind".


Well that just sounded just routine so I put further testing off for a few months while I moved house.   :X
(Yes!  We finally got out of that mouldy house by the main road into much peace and tranquility now (and better health!) for the whole family. :))

I nearly didn't order the FNAC because finances are tight and it wasn't going to be fully covered on Medicare.  Then a voice of reason in my head said, "you're an enlightened type A and you know from Dr D that you are at high risk for breast cancer.  He recommends extra cancer vigilance for us Type As.  Best to pay the money even if you have to use the credit card for your peace of mind."  So I ordered the test.   Thanks Dr D - you probably saved my life! and the voice of reason too!

The result came back Malignant and nothing that made any sense at the time.  Didn't believe it until after the next pathology test.  By the end of August I had a lumpectomy and they took out 11 lymph nodes.  Can't fault the public system here! It was grade 3 Invasive Ductal Carcinoma with some DCIS and lymphovascular invasion, 1.8cm, Oestrogen +, Progesterone +, HER + (so could be aggressive - so glad I found it early) and had minor spread to one lymph node (aka to be known as Nigel - nicer than the C word).  They cut Nigel all out and maybe too much but at least they got it all.  

Recovery went really well with my good diet and supplements helping out. Got full range of motion of my arm and am exercising still.  

Now I'm halfway through TCH chemotherapy to stop Nigel coming back.  They want radiation after that and then hormone therapy.  I'm thinking I'll skip Tamoxifen (cos it's linked with thickening uterine tissue and already have adenomyosis) will probably use monthly GnRH agonist like Goserelin (Zoladex) to induce menopause instead.  Chemo has bought that on temporarily and I'm quite happy to be free of monthly visits from Aunty Flo!  Having fatigue, mouth sores, lost hair, IBS, bone pains for a week from the Neulasta injections they give me to bring up white cells (they were wiped out after first chemo and I got a sinus infection needed IV antibiotics).  Having another sinus infection now that's making my eye twitch. Just as well I don't have to shoot or anything.  Overall I feel not so bad.  Taking it easy.  Missed you guys!

P.S. I'll be very interested to see if my high ANA (antinuclear antibodies) abate after this.  They were suspecting lupus but it may have been my immune system trying to fight the cancer.  Some say lupus is treated by chemo, but it makes you wonder.  I hope to feel better after treatment !  
Posted by: Victoria, Wednesday, December 5, 2012, 4:09am; Reply: 1
It sure is good to hear from you, Symbi!   :K)  Well, that's a tough road to walk - I've been there & done that!   ;)  I worked closely with Dr. D's anti-cancer foods and supplements during treatment and also got an acupuncture treatment every week or two.  Yeah, it was a set-back in a lot of ways, and even that is now in the past.  Before long, it will be a part of your past and you will be getting on with other things.  Much love to you.   :)
Posted by: Possum, Wednesday, December 5, 2012, 4:49am; Reply: 2
So nice to see you on  here again & to hear the latest re Nigel... ;) Have "enjoyed"(doesn't sound the right word somehow??!!) hearing your progress through this so far... {{{hugs}}} as always... ;)
Posted by: Amazone I., Wednesday, December 5, 2012, 8:16am; Reply: 3
hello half of mine Symbi...yikes what an awful diagnosis... :o :-/ but you seem to take it well and may I allow myselve to ask you to get informed about Salvestroles and even about a certain medication called Ukrain..... I'm going to send you the infos
by pm :K) :K) :K) from Isa
Posted by: PCUK-Positive, Wednesday, December 5, 2012, 12:54pm; Reply: 4
Be strong and use the Diet and Cancer book to the full oxo
Posted by: ruthiegirl, Wednesday, December 5, 2012, 1:27pm; Reply: 5
Wow! how scary! I'm glad you're on the mend now.
Posted by: Chloe, Wednesday, December 5, 2012, 2:39pm; Reply: 6
Sending you healing wishes, Symbi....{{{{{hugs}}}}}}
Posted by: AKArtlover, Wednesday, December 5, 2012, 3:00pm; Reply: 7
http://www.haelan951.com/
Posted by: Jane, Wednesday, December 5, 2012, 3:37pm; Reply: 8
Symbi,
I wondered where you were.  Glad to hear that you are doing better and that they caught it when they did.  You are in my thoughts and prayers  ((((HUGS))))
Jane
Posted by: deblynn3, Wednesday, December 5, 2012, 4:31pm; Reply: 9
Symbi,  I've also wondered where you've been.  Soooo happy you caught it when you did, and that you listened to your inner voice, and Doc.'s advice I've missed all your research, all that cool stuff that I really didn't understand, but you helped me to.
Posted by: KimonoKat, Wednesday, December 5, 2012, 9:04pm; Reply: 10
Prayers that your healing speeds along at a good pace Symbi. <3
Posted by: Symbi, Wednesday, December 5, 2012, 11:52pm; Reply: 11
Thanks so much for the replies! <3 (clap)(dance)(sunny)(woot)
It cheers me.  Having the bad part of chemo cycle now day 9 - 10 (nadir with low blood cells) feel flat as a pancake for a few days but then I spring right back like a pineapple and carrot cake.  :)

Victoria - sorry you went through it but  :) you got through it.  Maybe it makes us stronger for it.  These things offer growth opportunities. <3

:K) to sweet Isa - thanks I'll check that info out!

PC - good advice as always - hope your daughter is well and yourself?  I'm right into the dark berries vitamin C and fish oil atm.  Had dry skin bumps under the top of my arms for ages, was taking Vitamin A and Evening primrose oil but now I know fish oil was the other magic ingredient I needed more of!  Learn more in a crises sometimes!  :)  I think my diet high in antioxidants etc kept Nigel in check, being HER2+ it could have grown like wildfire, in the three months between scans it hardly changed at all.  :)

Hi AKArtlover!  Not sure if I should do soy because of my thyroid antibodies and previous hypothryoid, and nonnieness? it's an avoid in my SWAMI Xpress.  Now I'm menopausal that might change.  I must re-run my SWAMI good idea!  But other phytoestrogens 4 sure.    

Love to you Possum - don't want to get all mushy but love how I met you on here good friend. C U on Facebook.

One thing that worried me after diagnosis was I read somewhere the licorice root can be tumorgenic (as well as oestrogenic).  Now I google it I saw it can be anti-cancer as well?  I had a cup of tea a day for a long time for my adrenal fatigue.
Not pointing fingers at one cause tho.  I have some risk factors: living on a main road, having had miscarriages before, smoked for many years, stress, I bumped my breast in exactly the same spot a few years b4, did night work for some years, too much oestrogen (getting an ovarian cyst looked at too this week), cysts in breasts.  Who knows?

You guys! You Guys! are the best (said in the style of Robert De Niro in Analyse this)
Posted by: Symbi, Wednesday, December 5, 2012, 11:55pm; Reply: 12
Quoted from deblynn3
Symbi,  I've also wondered where you've been.  Soooo happy you caught it when you did, and that you listened to your inner voice, and Doc.'s advice I've missed all your research, all that cool stuff that I really didn't understand, but you helped me to.


Cheers DebLynn!  Some of it I don't fully understand and put it on here in the hope someone will translate it for me.  :)
Posted by: Symbi, Thursday, December 6, 2012, 12:01am; Reply: 13
Oh yeah forgot to say I've kinda been feeling better than I had before.  Less sore throats all the time (maybe cos I stopped drinking cold drinks and only drink room temp now).  Less achy overall (except after Neulasta) and weirdly less fatigue, less headaches but maybe that was hormonal - I know it sounds strange.

I've suspected Lyme disease since in 2001 I was bitten by a tick in Ontario Canada.  But over here they don't have testing available.  I have taken courses of antibiotics for frequent sinus infections and a few other things and usually feel better after those for a while.  Apparently chemo will wipe Lyme out.  (dance)(pray) (not that I recommend it for anyone with just Lyme!)  So hopes are that some of the other effects of chemo will actually be helpful!  I do miss my hair but being spanish gypsy hair it will come back with vengeance.
Posted by: honeybee, Friday, December 7, 2012, 9:09am; Reply: 14
Oh Symbi, hugs!!
Glad you are up to checking in here, and happy to hear things are going well as can do, pm me if you would like me to post you my copy of Dr D's fighting cancer book, happy to loan this one out if needed <3
Posted by: Goldie, Friday, December 7, 2012, 1:39pm; Reply: 15
Good day Symbi.. so good to read your posts.. so happy you moved and so astounded at how well you are undertaking all this..

I had a momentary scare, turned out to nothing... but all the time waiting and whatever, I was so REASSURED by being HERE, that no matter what I would have found, I knew I would be ok as long as I had the COURAGEOUS people here to keep me company.  I am soooo glad you came and said hallo.

The technicals are so much to absorb, but one does and then let go of it.  

Glad you opted for the test.. when you are done and are stronger.. how about taking the above (1st) POST you made and send it to all in your country who need to read such success stories that could have been a big tragedy...  We here could sign our name to it and give it weight in the mind of others.. at least to the local paper, or some such..  

I can only admire your courage, your good attitude and conviction that you will make all the difference by doing the cancer section foods.. and might I recommend that you buy Trehalose.. a new sugar that does not trigger sugar reactions, but is sweet.  IT also cleans up the body of all sort of trash hanging around.. I don't know if you can afford the one from DrD.. Trehalose Complex, but they make Trehalose plain from mushrooms, and since mushrooms are good for big C to begin with, buying 2 pounds for about 25.- might be worth the investment.

Where you here ??? when we first took it and had a big thread about its good value.. if not I will find it and post later.. here is the intro:  scroll all the way down to EAT ME..
http://n-equals-one.com/blogs/  

All the verrrrry best..    
Posted by: Symbi, Saturday, December 8, 2012, 9:27am; Reply: 16
Thanks for filling me on some that I missed out on Goldie.  Lovely to hear from you  :)
Found that link thanks
http://n-equals-one.com/blogs/?s=Trehalose

Did you mean this thread: "Yes, Trehalose Complex is definitely Wow!"
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1328006355/
Very interesting.  I've upped my mushroom intake since cancer diagnosis.  Yummylicious!

Yes lots of testicles, I mean technicals to absorb, but as I was told every cancer is different.  Makes sense since everyone is different  :)

Honeybee - that's really sweet thanks!  <<Hug back>> I will buy the book soon and have put cancer as a factor in my SWAMI Xpress.
Posted by: Lola, Saturday, December 8, 2012, 9:14pm; Reply: 17
fantastic!!
keep up the good job!! :K)
Posted by: Captain_Janeway, Sunday, December 9, 2012, 12:41am; Reply: 18
Great to see you posting again.
Posted by: purlgirl, Sunday, December 9, 2012, 4:06am; Reply: 19
Symbi - big hugs
Posted by: Possum, Sunday, December 9, 2012, 9:26am; Reply: 20
Symbi that was lovely what you posted in response to me!!! Love & {{{hugs}}} right back at you too hun - one day we will meet in person ok!!! Just warning you lol
Posted by: honeybee, Monday, December 10, 2012, 3:00am; Reply: 21
It is great that you have SWAMI, I think the cancer fighting book is very helpful too but SWAMI probably takes all that into account for you as well.
Posted by: Symbi, Saturday, June 15, 2013, 12:49am; Reply: 22
Hi everyone!  
Long time no type (one reason is that when I type DH hates the sound! and I got an iphone haven't been on computer much  :)).  Been busy fighting the good fight.  Hope everyone is well and happy? :)

I'm going well considering all the treatment.  A few weeks ago finished radiation, used a magic skin cream after treatments called Moo Goo (with milk protein) and I barely have any redness left  :)  It was scary and mentally draining especially 3 hours travel on bus/train/bus or car five days a week for six weeks.  When they couldn't get me in early enough so I could be back to pickup DD from school, sometimes we went at night all as a family and had dinner on the way home (yep hard to be compliant but we do the best we can  :P).  

During radiation I took Siberian ginseng to help fight fatigue and as an antioxidant (Onco said he reckoned the vit c, vit a, selenium and other antioxidants I have weren't high enough doses to help shield the cancer from the radiation).  Didn't get too many side effects.  :)  Drank lots of red grape juice (the non-fermented type) for reservatrol? (so had to take lysine too to prevent cold sores).  Daily blueberries and whey protein powder too which I continue to do.  After I got a flu I took elderberry juice (Sambucol available in chemists), the continued a low dose as a preventative, hard not catch the cold/flu especially getting coughed on the train.   >:(  Actually craved antioxidants after treatment so I carried around dark chocolate and ate berries as much as I could.  Ginger tea for slight nausea.

Dunno if I could have got through it without the knowledge from Dr D and help from you guys over the years.  :)

Still having Herceptin treatment every three weeks (monoclonal antibodies to HER2 made in rats yuk - tmi sometimes doesn't help  :X  :-/).  Am just starting Tamoxifen and that's a whole other story, not too bad so far.  Still have peripheral neuropathy damage from the chemo and am in menopause it seems.  I can handle the dryness, hot flushes, moods and pains much better than the adenomyosis that used to plague me, well that's what I try to tell myself most of the time.   :B Hot flushes seem to come with stress so it makes you more aware to try and handle your stress better.  Sometimes I'm a crying wreck but you get that, I've had a hard life and some issues have come to the front.  

Surprisingly I have less fatigue than before and less lupus type symptoms.   :) Chemo may have killed the lyme disease and ??) that may have been lurking (tests aren't available for Lyme here in Aus).  It's been known to help lupus and if it's caused by viruses or bacteria in the system might explain why - knock'em down dead!  (As usual medical science has treatments that work and they guess why but never really know what they do completely.  Maybe the chemo could eradicate lurgees and then the immune system has less to fight after that?  Chucking a theory out there.)  Not recommending chemo for everyone, only if your specialist says you need it. Chemo was a nightmare I still have PTSD flashbacks.  

To get through chemo nausea etc. I ate and ate, which may have helped my body process those drugs.  Hello fat!  :o Now I'm 12 kg above my recommended weight range (heaviest I've ever been).  I know some if muscle from the walking I've been doing.  My legs are stronger than ever.  Theorising again, I may have craved and ate so much might to increase my fat to make oestrogen.  Now I'm more used to low oestrogen and don't feel hungry all the time and am eating closer to my SWAMI and feeling good.  I know I can lose it again.  I lost as much weight before slowly on BTD over a few years.

Four months post chemo, low white cells are still a problem and may take a while to come back again to normal levels.  Platelets and red cells are okay again.  I hope that my liver and kidneys weren't too damaged by the chemo I'm sure my whole system took a hit.

You did ask how I was?  he he sorry if I went on too long.

Happy days!   :)
Enjoy yourself as much as you can and love to you!

P.S. so nice to see your posts and love to read some on here again

  
Posted by: yaeli, Saturday, June 15, 2013, 1:17am; Reply: 23
Hi Symbi,

Do you follow Dr. D's Liver Support Protocol & Chemotherapy Adjunct Support Protocol?  8)
Posted by: Amazone I., Sunday, June 16, 2013, 1:08pm; Reply: 24
and some lekker mushies also available in your country.. or some beautiful salvestroles ??) ;) ;D :K) wish you all the best truly yours amiga Isa
Posted by: Victoria, Sunday, June 16, 2013, 4:59pm; Reply: 25
Great to hear from you Symbi!   :K)
I'm glad Yaeli thought of Dr. D's protocol for Chemo support.  It's good even after chemo is past, to help you recover.  Dr. D's health series book on cancer was my bible when I went through treatment 12 years ago and it was a real support.  Do you have a copy?  I also like Isa's mention of the mushrooms - many of them are so powerful.  I still use Reishi, Cordyceps and Maitaki every day.

Astragalus, as recommended in this protocol, is a help to rebuild the white blood cells!  :D

CHEMOTHERAPY ADJUNCT PROTOCOLS
  Use this protocol for 3 weeks. Discontinue for 1 week, then restart.

BLOOD GROUP A

    Quercetin Plus: 1 capsule, 2 times daily on an empty stomach
    Polyflora A (ABO-specific Probiotic): 2 capsules, twice daily
    Tranquility Base (GABA & L-Theanine Formula): 1-2 capsules, twice daily
    Astragalus (Astragalus membranaceus): 500 mg, 1-2 capsules, twice daily
    Coriolus versicolor mushroom: 300 mg, 1-2 capsules daily

NON SECRETORS

    Vitamin A 10,000 IU: 1 capsule, daily

GENERAL RECOMMENDATIONS USABLE BY ALL GROUPS

    Mr. Itaru's Green Tea: 1-3 cups daily
    ARA6 (Larch arabinogalactan): 1 tablespoon, 1-2 times daily in juice or water
Posted by: Chloe, Sunday, June 16, 2013, 5:12pm; Reply: 26
Best of health to you, Symbi...:)

Stay strong and determined!!! {{{{hugs}}}}}
Posted by: Goldie, Sunday, June 16, 2013, 8:26pm; Reply: 27
wow what time has past since you wrote a long time ago.. SO glad you can type.. so glad you are doing well... all the best..

and the move was timely!  things should start to look up..


Posted by: Possum, Sunday, June 16, 2013, 10:28pm; Reply: 28
Hi ya hun!! Good to catch up on the latest & glad things are looking up & you have lots of support here & on facebook!!! :K)
Posted by: Symbi, Tuesday, June 18, 2013, 2:06am; Reply: 29
Hi Goldie, Possum, Victoria, Isa, Chloe, Isa, Yaeli!  Thanks for posting <<Big hug>> to all of you.  

I'm eating more mushrooms than ever thanks, mushroom pie, mushroom soup, mushroom omelette, mushroom surprise  :)  I hear they are natural oestrogen inhibitors that should help alot.  Green tea is my fave.  

What is Astragalus?
Posted by: Possum, Tuesday, June 18, 2013, 2:12am; Reply: 30
Pretty sure it's a herb/root..
Posted by: Victoria, Tuesday, June 18, 2013, 3:05am; Reply: 31
Quoted from Symbi

What is Astragalus?


Astragalus membranaceous, Huang Qi - the roots are used, either in capsules or dried for making tea.  It is used extensively in Traditional Chinese Medicine as an immune enhancer, particularly helpful in recovering from chemotherapy.  

You can do a Google search on the herb and educate yourself about what is said about it.
Posted by: 47254 (Guest), Friday, June 21, 2013, 10:09pm; Reply: 32
This message is to Symbi.  I noticed your comment about Siberian Ginseng.  I have recently found this herb Gynostemma at http://vimergy.com/gynostemma-extract-powder-50g.html  I don't know if it would interest you or not, but it might be helpful.

Best wishes!
Posted by: Symbi, Saturday, June 22, 2013, 2:33am; Reply: 33
Thanks Victoria and twobabies70 (cute name!) I could google and knowing the alternative name, Huang Qi, will help lots  :)

Goldie - haven't changed my situation just less time to type now than before.  Things have been improving the last few years since we moved to a nicer house and finances improved and that can change your outlook.  :)  I am getting peripheral neuropathy from the chemo which could go on for a year.  Isa told me to have more Vit B and amino acids, which I'm doing  :K).  Sometimes the pain in the hands and feet is bad and limits what I can do, typing included.  :(

Big hug to Possum  :K) She's been the best friend to me on Facebook and cares and cheers up so many people.  Meet some wonderful people on here.  Have a great day everyone!
Posted by: Mickey, Saturday, June 22, 2013, 2:49am; Reply: 34
Symbi,

I'm sorry to hear of what you've been going through, but am glad that things are looking up for you.  Keep up with the high spirits and positive attitude it will take you far.  ;)
Posted by: Munchkin76, Saturday, June 22, 2013, 9:16am; Reply: 35
Hey Symbi, my wonderful Bris Vegas sister in crime!

I'm sorry to hear about your trials and tribulations in recent months, and so pleased to hear you're on the mend and have escaped that toxic house! I've not been about here much (my own challenges), so your post completely passed me by, so I'm sorry for not sending you these masses of cyber <<<hugs>>> sooner.

Nice one Victoria, I was going to suggest Astragalus too - it's wonderful and I take it daily.

Symbi, you're the epitomy of strength, commitment and healthful living and an inspiration to me personally (as I'm sure you are to many others here). If you need anything at all you need only ask me.

More cyber <<<hugs>>> and healing energy heading your way.

Andy x
Posted by: Jane, Thursday, June 27, 2013, 7:51pm; Reply: 36
Symbi,
So glad to see you posting again.  So sorry you've been through so much but glad to here how strong you've been and that you are doing well.

I don't have anything to add in terms of suggestions but just glad to see you back here and on the way back to good health.
((((HUGS))))
Jane
Posted by: Ladyhawk58, Saturday, June 29, 2013, 10:36pm; Reply: 37
So sorry to hear of what you have been going through Symbi. I am celebrating ten years post breast cancer this October, and continue to enjoy good health, thanks to eating right these days - although I did think I was always pretty good with my eating habits really, and was shocked and disappointed to find I had the dreaded Big C.

One thing I took plenty of during radiation treatment was kelp, and seaweed in general. It is reputed to be good for protection against harmful effects of radiation. I think I read somewhere that the astronauts eat eggs and kelp on a regular basis to offset radiation effects, so I ate both daily for the duration of my treatment. I got pretty tired towards the end, but was working throughout the five week course and got through it really well, considering.

I wish you all the very best and I am sure you will be posting something similar in ten years time. Hugs to you from the Sunny Coast.
Posted by: Symbi, Saturday, July 6, 2013, 7:52am; Reply: 38
Andy - great to hear from you! Thanks for your kind words, though I'm not feeling a pillar of strength today sick with the flu, though did weed our garden and have a playdate for my daughter.  :-) I have lots of weight to lose since the treatment so thanks for reminding me how I used to be and I will be again.  

Everyone's support is wonderful! <3

Oh, thanks Jane <hug back>

Ladyhawk - Cheers to 10 years, you've done so well, have a great celebration!  Doesn't a diagnosis like that make you take stock, yep it was a shock to me too though I'm glad I'd read BTD books and knew it could be a possibility for us As.  We have many good strengths tho too right ;-)
Posted by: Amazone I., Saturday, July 6, 2013, 9:14am; Reply: 39
the so called *healing mushrooms* are extracts from different types but dried.... to reach therapeutic effects ; sended you once the link of the australian providers  :D
with all the beautiful infos.... ;) wish you quickest recovery hugs y besos from Isa :K)
Posted by: Symbi, Friday, July 12, 2013, 3:28am; Reply: 40
Thanks Isa!  :K)
I should add connective tissue disease (getting investigated for lupus) to my already long list of ailments :-(  That is one reason I can't take immune stimulating herbs, unfortunately.  At the moment I still have low white cells even though chemo finished over four months ago!  Now I'm going to cut down on some drugs they have put me on (Tamoxifen) me as that could be causing it?  (as well as flaring up my adenomyosis again and causing anxiety too) My platelets and red cells were low after chemo but have come back.  Or they could be dying from autoimmune destruction?  Not sure, going to see rheumatologist soon and will update.  :-(  

In good news: my iron is fine lately without supplementation (probably because I've been menopausal since October - pros and cons) and my thyroid is fine.  I requested those extra tests. :-) Being so complicated I've learned so many things I should be a dr by now!  

Been eating well (no wheat etc) and have lost a kg after only a week!
Posted by: Lola, Friday, July 12, 2013, 5:28am; Reply: 41
here s a search you might find adequate

http://www.bing.com/search?cp=1252&FORM=FREESS&q=Gynostemma&q1=site%3Adadamo.com
Posted by: yaeli, Friday, July 12, 2013, 5:35am; Reply: 42
Hi Symbi,

Following the chemo adjunct protocol if of utmost importance, something one cannot emphasize enough!!! Coriolus versicolor is one of the most potent medicinal mushrooms. This is why I'd like to urge you, please get a second and third opinion re the immune stimulating herbs in context with your connective tissue disease.

Recovery from chemo is a matter of years. It calls for long term thinking and constant daily care. It requires very long breathing - like whales' breathing maybe?  ;)  I relate to it as a vital part of my everyday life. In my case almost 4 years passed after chemo before my white cells count crossed for the first time the lower thershold. Following my doctor's order I take Astragalus twice daily, as well as the medicinal mushroom Chaga, plus Agaricus and/or Reishi and/or Maitake.

Good luck! Looking forward :K)  
Posted by: Amazone I., Monday, July 15, 2013, 9:06am; Reply: 43
Symbi I am really wondering why not implementing stuffs to enhance your immunesystem... here in Switzerland a lot of interactions here are allowed, even welcomed but yup patients need to know by themselves what to go for or not... coz none of the oncologues do know... ;)

and as Yaeli mentioned... very good advices (clap)(ok)(dance)....
if I remember it well P.D. once mentioned Tamoxifen as a positive sideeffect to augment NK-cells... but remember you're an explorer and we do very poorely onto chemicals medications...so far...perhaps do we need more time here to recover ??)... Can't tell you yet but I'm sure you can do and sustain your immunesystem with good stuffs of natural origins .... :D (astragalus is one of the yummies here too ;)  )

as said- wish you quickest recovery :K)
Posted by: Symbi, Wednesday, August 7, 2013, 3:07am; Reply: 44
Thanks for the replies sorry for long afk.  Been busy with health checks, my daughter and family visits.  Sometimes feel shy too.
Yaeli - love the whale breathing tip, we can learn alot from our big, calm mammal friends. :-)  Thanks so much for the well-timed comforting message, confirming there's a light at the end of the tunnel eventually.   :) you got over your chemo.  You must be very strong to have pulled through.  Glad, knowledge of natural treatments, like ginger, prebiotics, probiotics and foods I can digest well helped.  I craved cream for my raw guts though and went with it - have some weight to lose but probably better than those tablets they give you!

Cheers Isa!  Greetings to you in Switzerland.   :K)  :o those other effects of Tamoxifen - knowledge in and around these boards is amazing.  I do know tamox gave me really bad anxiety, even though I tapered up to the full dose (maybe half could have been better but I also didn't like the gynaecological effects); so I stopped it altogether.  Onco was quite understanding about it.  :) They are going to confirm menopause and try an aromastase inhibitor next.  Meanwhile I'm eating lots of mushrooms, broccoli, grape juice, avoiding soy, trying to keep oestrogen low.  

This poor bod and the treatment that it has gone through for a small lump, it isn't fair?  Still have pain in the breast and underarm quite bad.
I wonder if the radiation and/or tamoxifen affected my white cells?  Since I got over rads more I'm not catching everything and feeling almost normal.  (Could have also been catching public transport into the city and hanging around a hospital every day!)  Blood test soon should confirm white cells.

Rheumatologist was no help at all.  Mucked up in every way and I've lost faith in them.  Wants me to try Plaquenil again, like that's the only answer, bad reaction before no thanks!  Didn't get time to ask about immune enhancing, nor time to finish medical history over the past year.  Didn't even run the correct blood tests.  Bah humbug!

When I was sick with low WCC and flu last month I tried three days of daily anti-allergy tea with echinacea, ended up with a ?flare of connective tissue disease for a few days, at least short lived.  I could have low white cells because I'm autoimmune to them is another possibility.  Anyway, Gingko biloba I started recently really helping the raynauds and blood flow in the cool weather here.  Other than migraine today - we had a lot of drama in our lives lately, pretty good lately.  Only three three-weekly herceptin treatments to go.  Hoorah!
Posted by: Possum, Wednesday, August 7, 2013, 5:52am; Reply: 45
Glad the are only 3-weekly treatments to go?! Wishing you all the best!!  :K)
Posted by: yaeli, Wednesday, August 7, 2013, 5:59am; Reply: 46
Quoted from Symbi
This poor body and the treatment that it has gone through for a small lump, it isn't fair?  Still have pain in the breast and underarm quite bad.
Hi Symbi,

Thank God it was that small lump. A cancerous process is truly most severe and it is only fair that it is treated in the most serious manner and using all the knowledge available. If we talk of fairness, yes, the ignorance and shortage of info how one would better go about managing one's own life seems too unfair. But first of all, now you have found and reached and come to practice Dr. D's DPN, which in my understanding is the gate, tool, and way to retrieve and rebuild health.

Secondly, I'd like you to watch Prof. Burke lecture in youtube (7 short videos),
where he explains about cancer and about salvestrols. Watching it was the first time I ever got the picture of how cancer actually happens and develops within the 5 trillion cells which are our body.
http://www.4yourtype.com/fucus.asp

All the best!  :)


Posted by: Amazone I., Wednesday, August 7, 2013, 7:08am; Reply: 47
dearest half of mine Symbi... I think all about Tamoxifen might be ok for teachers and even perhaps warriors but not for us the explorers, while being chemical sensitive.... :-/ :o :P... but I thought it was ok to repeat Peters suggestions about being an A-woman and that perhaps this might function ;)...(goofy)(think)(shrug)
but must be honest I'm muchmore convinced about the healing mushrooms (but in therapeutical dosages)and also of course  the salvestrol intake described beautifully from Prof.Dr. Dan Burke- co-founder of this beautiful and true aid....



And then something different...would you like to have some helpers to sustain your healing process??) I'd like to create a groupe of co-healers of this board, going into deeper meditation all at the same time dor your support. :D If so please let us know and I'm going to ask our beautiful and helpful members  :K)(smile)(smarty)
Posted by: yaeli, Wednesday, August 7, 2013, 7:43am; Reply: 48
What a kind gorgeous suggestion (sunny)

Here's to your healing, Symbi!  :D
Posted by: Amazone I., Wednesday, August 7, 2013, 11:00am; Reply: 49
:B :B nope.. we should come together for Symbi's reconfort ;).. this isn't at all my Ego who was plappering above ;) ;D :D...sorry.... :B ;D ;D
Posted by: Amazone I., Monday, August 12, 2013, 7:59am; Reply: 50
btw those mushies aren't herbs but mushies ;) and betaglucans are also obtainable without any other ingredienz and those are only balancing your immunsystem... up or down without creating any sideeffects... I also do have lupus clients taking them expressis verbis to overcome their sickness.... :D

wish you a fine day greetings from Switzerland (sunny)
Posted by: Symbi, Monday, August 12, 2013, 12:22pm; Reply: 51
Thanks Isa, Possum and Yaeli!  That is a beautiful idea Isa!  All support is helpful and if no one minds this can be a thread for it, thanks for keeping space on the internet for it if you don't mind Dr D.

I love to come on here when I can.  Feeling pretty good lately.  I will check out the you tube videos next time I get some internet time.  Sorry I don't get as much as I used to so have to be a member 'at large' (literally!) ha ha.  I haven't been following the diet as well as I used to, though mushrooms are a fave atm.  :-)  Been kicking the butt of some viruses lately so pretty sure that white cells are winning :-).

Cheers!
Posted by: Amazone I., Monday, August 12, 2013, 4:14pm; Reply: 52
:o ;D brava..brava cherida mia  :D(clap)(ok)(dance)(smarty)(hehe) :K)
Posted by: Symbi, Wednesday, August 21, 2013, 4:17am; Reply: 53
Thanks again for healing thoughts and for the message wonderful Isa.  
She suggested I put a bio on here, sorry if I go on too long.  Here's a go at it:

I'm glad that I adapted in the womb (to smoking and fake hormones as Mum took the pill just before she got pregnant with me) to be flexible to life.  Though it can go too far, becoming so sensitive and flexible adapting to what others need around you, it's can be hard to know who you are sometimes.  Early years were very stressful: only child, moved around four cities around Australia,  changing schools 12 times, living in around 15 houses.  Parents had nasty break up at 8yo.  Lived with 5 different partners of my Mums after that, some alcoholic and emotionally abusive, etc. etc. Lots of drama, one had three kids which was fun for five years and I was the eldest.
We moved away from my Dad after the breakup so Mum could have a better job.  She did the best job she could bringing me up especially since he never paid maintenance, just some trips for me to see him.  Mum and I are still close (not physically she lives 4 hours plane flight away but she visits often).  Became estranged from my Dad after my teens.  Later he died of a heart attack while we weren't talking at 56 yo in 2008 (he looked 70, ? Warrior/Explorer, smoked and had a very stressful life).
Became self conscious and avoidant from 8yo and was bullied.  Had sexual and emotional abuse leading to drug addiction and was a high school dropout in teenage years.   Early adulthood also horrible, changing jobs many times, abusive boyfriends (one needed a restraining order after nearly strangling me when I confronted him for the thousands he ripped me off, another abusive alcoholic) and many residences.  

Things are settling as I get older, though.  Studied IT programming Certificates in early 2000 until bad health (depression) after bad boyfriend choices interfered.  Then I had an office job for five years (marred by connective tissue disease and restructuring tho) until I had my daughter.  Finally met a good man, we've been together 12 years and our daughter is 8.  Having her was not easy so unfortunately she'll be an only child too.  We both nearly died of severe pre-eclampsia (HELLP Syndrome).  She was born six weeks early and low birthweight (4lb) because of impaired foetal growth. She suffers from high anxiety, (some OCD and ADHD I think) as part of her Asperger's Syndrome (I also recognise some traits in myself and DH).  She is very emotional and panics/tantrums multiple times a day with many phobias and fears, has some learning problems, but we're very lucky to have her and love her to bits.  She's also creative and likes dancing and singing  :) and my little pony is the obsession atm.  :X ::)

We moved towns six years ago to be in nicer weather rather than the tropics and be close to his family who I get along with, though no one babysits for us!   ??) ;) He works part-time and a small business I do most of everything else myself, keep the 3 bedroom house and yard we rent, organise and keep his business paperwork (there's been more to do lately hence on forum less sorry), school pick ups, cooking, cleaning, manually washing up etc.  Lately I've been more busy with treatments, seeing doctors etc. than ever.  That's where I'm at at the moment.  I like to fix computers/technology, movies, read novels, write, research health and try and feel better.  Sorry I don't get much time to go on the forum anymore so I don't pop on here as often as I used to.

Healthwise I run the gamut as well:  


Now I'm suspecting Acute Intermittent Porphyria which has similar symptoms to lupus.  Anxiety, IBS, peripheral neuropathy, low blood pressure, low iron, dark urine sometimes.  I react to many drugs and suffer hypoglycemia.  A fasting blood test will always show low sodium and I get very stressed from those.  Lately I keep eating more and it's helping!   :B (Also electrolyte drink when I'm on the go.)  Though I'm overweight.  I was after my daughter was born and lost 10 kg on the BTD.   :) Chemo and possibly early menopause made me the biggest weight I've ever been now 14 kg overweight  :( but I got through it.  Losing weight will have to be slow now.  Tingling and burning hands and feet are still happening since the chemo gradually going away.  On the whole things are improving.

I try to follow my SWAMI diet but have to admit it's difficult.  When I got my diagnosis I just ate whatever I craved felt I deserved it.  Now I deserve thunder thighs apparently  ;)  Though DH still loves me  :)

Keep positive no matter what.  You can be sure nothing stays the same, things can always get better  :)


Posted by: Symbi, Wednesday, August 21, 2013, 4:19am; Reply: 54
Now for the good news.......
..............................
drum roll.......

:o

Yesterday found out 1 year mammogram and ultrasound of breasts is all clear! !!!
Just a cyst and some lymph glands in the breast  ??) which is normal.

Also only two treatments of Herceptin to go (dance)(clap)
Posted by: Lola, Wednesday, August 21, 2013, 5:17am; Reply: 55
excellent news!(dance)(clap)
Posted by: Victoria, Wednesday, August 21, 2013, 5:20am; Reply: 56
Quoted from Symbi
Now for the good news.......
..............................
drum roll.......

:o

Yesterday found out 1 year mammogram and ultrasound of breasts is all clear! !!!
Just a cyst and some lymph glands in the breast  ??) which is normal.

Also only two treatments of Herceptin to go (dance)(clap)


(hehe) Wonderful news, Symbi! (sunny)
Posted by: Lola, Wednesday, August 21, 2013, 5:33am; Reply: 57
thank you for sharing! Definitely will help others looking for answers. :K)
Posted by: yaeli, Wednesday, August 21, 2013, 5:44am; Reply: 58
Symbi, with the tremendous amounts of love within you and pouring all around you, how can anybody not love you to pieces???  :D

Love and wisdom shine throughout your story :)

Thank you so much for putting it together to share it with us

{{{{{{hugs}}}}}}


:K) :K) :K) 8)
Posted by: yaeli, Wednesday, August 21, 2013, 5:48am; Reply: 59
Wonderul wonderful news  :D (clap)(clap)(clap)
Posted by: Symbi, Wednesday, August 21, 2013, 8:47am; Reply: 60
Ohhr tears are in my eyes,  :) wonderful friends.   :K)  Lovely to feel accepted, supported and not judged, wonderful boards here.  :)

There's more good news I forgot to say, neutrophils are 1600.  It's still under normal 2000 (dependent on which lab values you go by) but over 1000 's good.   :)

Liver function, red cells, haemoglobin and all stable again  ;D

Having a flare up of autoimmunity today bought on by herceptin (it's an antibody treatment).  Thanks for your happy responses cheering me immensely!  :D
Posted by: Amazone I., Wednesday, August 21, 2013, 9:23am; Reply: 61
oops it wasn't meant officially dearest Symbi...  :B :B :B hope you didn't felt forced or similar ::)  :B :B again...justamente for our upcomeing sustaining meditations' groupe... but ok thanx for your kind trust to have informed all of us ;) :D :K).... :K) :K)(sunny)(clap)(ok)(smarty) btw... we are all one .... ;)(smile)
biig family and weew great for your beautiful news....(clap)(ok)(dance)(smarty) :K)
Posted by: Jane, Wednesday, August 21, 2013, 6:58pm; Reply: 62
Symbi,
I admire your immense strength....all of what you've had to go through especially the abuse and of course the DCIS and chemo.  Keep on fighting.
Wishing only the best for you.
((((HUGS))))
Jane
Posted by: Symbi, Monday, October 21, 2013, 1:51am; Reply: 63
Thanks Jane, Yaeli, Isa, Possum and all!  Sorry I have been so busy it's incredible and have had autoimmune attacks with swollen forearms inhibiting typing (after I went back on arimadex at the oncologist incistance ::) - terrible drug causing pain and inflammation and would worsen my already weak bones.  A few weeks off of it and I'm on the mend again  :) (Dr said it would only increase my chances by 5% but I have secret weapons like you guys and PD to help me so I'd rather have quality of life than be on the (also expensive) anti-hormone medication :K)).  

Unfortunately it was IDC not just DCIS, but it's all good now.  I finished a year of treatment including chemo, radiation and 1 year of Herceptin (antibody treatment against HER2 antibody)!!!  Phew! It's such a relief to be free from needles being pushed into my chest and so many appointments; though they told me that I would still need to go to hospital to flush the portacath every 6 weeks and that it would take 6 months to get the portacath removed.(mad) :-/ But that changed and they are getting me in next month for removal! (dance)(clap)

So happy - no more hollow point needles!!! ( :B I was afraid of them, sometimes they missed and had to have a second stab, either way I ended up bruised for over a week - I think that's one reason I put weight on to hide from them  ??)).

Weight loss is happening slowly, lots of exercise these days walking 30 minutes a day up and down hills to pick up my daughter (and hot flush sweating sorry tmi  :X  ;)).

Why I've been so busy is: I've been planning a trip to the other side of Australia to catch up with more than 10 relatives over a span of a week, travelling over 1000km by road after I fly 5 hours to get there, staying in 5 different places.  Also had school holidays and doing husbands business tax/rearranging, cleaning house, repairs and more.  

When I return from holidays, after portacath removal will be able to fine tune my health and diet more and you'll see more of me on here.  Will appreciate support have >10kg to lose.  

Still loving mushrooms and red grape juice. :D  Taking some siberian ginseng to help me with the trip and some daily prophylactic (ha ha I wish though oestrogen cream is helping in that department  ;)) elderberry.  Armed with my usual vitamins for the week, medications if I need them and all different clothes I should be packing now for extrememes of temperature (going to southern climates and desert!)  I must get back to packing now.  Love yous (sunny)(funny)

(Why I'm going to WA is to put my Dad at rest properly (I couldn't come to his funeral) and finally there's a gravestone dedication thanks to his friends.  It will be good for me mentally, spiritually (and surely physically) to put him to rest properly.  :))
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