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Posted by: BTypeAUS, Wednesday, April 27, 2011, 10:18pm
I don't know if this is the right section but anyway...a friend of mine has this issue and was very defensive when I told her it's a low grade viral infection ..she was adamant she developed fibre after having a hysterectomy ...is this possible and does anyone have more info on this disease or has been through it as she is being given the usual run around by mainstream doctors and all sorts of drugs as usual and will not accept any other advice!!
Posted by: AKArtlover, Wednesday, April 27, 2011, 10:33pm; Reply: 1
Surgery depletes B12. B12 is essential for the nervous system and muscles. I saw Dr. Richard Becker on "Your Health" talk with a woman with a multitude of issues and fibro was one of them. Vitamin D issues also came into play as well as magnesium. Many drugs also deplete vitamins. It was very interesting, as she was asking, he asked her if her feet ever got tingly. Yep. Interesting. B12 tests can be false negative-- by that I mean he said that readings could be good but there still can be an issue. I wrote some things down as far as tests to ask for and interpretation, but don't have them with me right now. His diagnosis-- and the whole show was centered around B12-- was that she had long term nutrient deficiencies and then a series of events compounded things. Carpal tunnel which she had surgeries on and then became dependent on pain meds.

Many people have messed up gut flora-- 80% of the immune system work takes place in the intestine. When you start stacking issues together, things start to make sense. Really interesting show and he hasn't even touched on the individuality in the depth that Dr. D does.
Posted by: nowishow, Wednesday, April 27, 2011, 10:38pm; Reply: 2
I have Lyme Disease and there are some studies being done showing a link between many conditions and Lyme Disease, Fibromyalgia being one of them. I don't go to mainstream medical doctors for my condition as they really don't know what to do with me. I'm seeing a doctor that is outside the insurance industry, this gives them more freedom with their diagnosis and treatment, but of course costs the paitent more. But I think I have a much better chance of getting well this way.
Posted by: Symbi, Wednesday, April 27, 2011, 11:15pm; Reply: 3
Many things can be involved with Fibro - it may be a disease with many causes and subtypes.  FM can be a gateway to other autoimmune disease - can be early signs.

One interesting thing I read about it recently is that high levels of antibodies against serotonin receptors were found in FM patients and some studies said they didn't think it was significant!  Can't believe that.  Low levels of a neurotransmitter surely would be.  Some say FM is physical signs of depression.

Can be linked with lack of deep delta wave sleep.  Then the body doesn't get to repair itself (lack of human growth hormone).

Lots of B6 is helping me (couldn't remember my dreams before that).  Also making sure I get enough GLA (I think I was deficient), some other people may need more fish oil instead.
Posted by: TJ, Wednesday, April 27, 2011, 11:35pm; Reply: 4
Another trigger could be too much inflammation/immune system activity.  The chemicals your body uses to kill infections also damage your own tissues.  If your immune system is constantly on the attack, it could easily feel like fibromyalgia.  That seems to be the cause for mine.
Posted by: Chloe, Thursday, April 28, 2011, 1:38am; Reply: 5
I've had chronic Lyme....actually I walked around for 20 years after I had a tick bite and before there was a disease even called Lyme, without knowing what was wrong with me. So I consider
my first case of Lyme in 1970. I had a second case of Lyme in 1990 and got a diagnosis of having had past Lyme, but at least the second time, I saw and pulled the tiny tick out of my shoulder after I developed a fever of 104.  I was put on 4 rounds of abx to no avail... The tests are so difficult to pinpoint various co-infections...Much of original bacteria morphs into viruses....stealth viruses that aren't even noticed by the immune system... Have had severe fibromyalgia on and off for at least 30 years.  Not sure there is a consensus of opinion on what fibromyalgia is exactly.  It seems to affect so many mind/body systems.  I've had neurological issues as well as symptoms that felt like muscle spasms and utter pain and stiffness, plus depression/anxiety and strange bands of tightness around my head.
And insomnia.  Right now, I'm sleeping well....have very few body aches...but am dealing with
anxiety/depression these past few weeks which seems to hit me the same time every year.
It's possible this is just the upheaval of a seasonal change and a need to detox my liver.

SWAMI has cut my fibro flares down to practically a hum.  But if I sway even slightly off course,
I am set back by at least a week and feel the need to detox from the assault of what toxins
did to my gut.  I've also had celiac which began after my 4th run of abx....so either gluten damaged my gut when I already had a leaky gut or......or I just don't know.  I just don't eat
gluten....haven't eaten any for 5 years or more.   The smallest amount of gluten gives me
celiac symptoms and skin problems.

I don't know what to say about fibromyalgia as a condition all by itself...unrelated to Lyme or
unrelated to some kind of huge emotional stress or trauma. (which I've had as well).

I too see doctors outside of the insurance industry...I tried acupuncture for fibromyalgia pain
and didn't find it helpful. I did find acupuncture helpful for emotional issues... SWAMI was a better solution for the pain of fibro than anything else I've tried.
Posted by: BTypeAUS, Thursday, April 28, 2011, 4:49am; Reply: 6
Thank u all so much for this feedback, now it's a matter of getting her to be more open minded about treatments, she is an O and eats way too much wheat and carbs and is very overweight too..some people are really ignorant of their own health it's ridiculous  :-/
Posted by: Victoria, Thursday, April 28, 2011, 5:22am; Reply: 7
Under even the best of circumstances, wheat is not going to do a type O any good.  :(
Posted by: AKArtlover, Thursday, April 28, 2011, 1:01pm; Reply: 8
Quoted Text
One interesting thing I read about it recently is that high levels of antibodies against serotonin receptors were found in FM patients and some studies said they didn't think it was significant!  Can't believe that.  Low levels of a neurotransmitter surely would be.

Going back to the cause surely worthy of investigation.
Posted by: ruthiegirl, Thursday, April 28, 2011, 3:02pm; Reply: 9
Nobody knows what causes Fibromyalgia, although several theories exist. Personally, I suspect that it may have more than one cause. It may be caused by a virus in some cases, but not all.

Fibromyalgia is diagnosed by a process of elimination: if you have enough "tender points" and blood tests rule out other illnesses such as Lupus, you get the FMS diagnosis. It took my rheumatologist over a year of repeated blood tests before he finally said "I'm pretty sure you don't have Lupus," although I'd gotten the FMS diagnosis from a different rheumatologist prior to that. It was just his practice to double-check that his FMS patients didn't also have other chronic illnesses.

There really wasn't much the rheumatologist could offer me that helped. I was on pain meds for a while, but it only took the edge off, and the side effects of the drugs increased the brain fog. In my brain-fogged state, I was less able to function with the pain. Being off meds, I was more sore the first few days but then I settled into a routine where overall I felt about the same as I had with the meds. But, if your friend is doing well on pain meds- don't judge her. People have very different responses to pain and to pain meds, and if she's finding relief- just be happy for her.

In my own case, I think it's a matter of being "wiped out" and simply not having the strength to keep going, as my body is overwhelmed with environmental and/or food toxins and not having the resources (including some nutrients) to deal with them. As I'm losing weight, I have to process toxins that were stored in fat. Stress leads to fibro-flares.

What's helped me most is two-fold. Number one has been respecting my limits. By saying no to some requests, scheduling plenty of "down time" and, most importantly, not feeling bad about myself for not "accomplishing more" than really I was capable of, I stopped feeling sorry for myself. I was able to focus on what I COULD still do, and I learned to enjoy life again. I couldn't run around with my kids, but I could snuggle with them. I had time to sit and talk to my friends and family members, even if I couldn't "go do stuff" with them.

Number two was figuring out my physical triggers and learning to avoid them. Getting enough rest is paramount. Avoiding environmental and food triggers is another one. I no longer use any chemical cleaners or fragrances in my home, and I do my best to limit my time in places where they are used, although I can't avoid them completely. Exercise is another, and finding that delicate balance between being active and healthy, or over-doing things and setting off another flare. When I'm stronger, I can exercise more, and exercise is paramount to good health (physical and mental) for an O.  Certain nutrients (mainly B vitamins) are also helpful. The goal is to figure out what my body personally needs, and do that.

Figuring out my food triggers was another biggie. On my own I figured out wheat and dairy were triggers, but I knew there had to be more. I was going to try cutting out corn next, but instead I decided to try the BTD, and knock out corn along with a whole bunch of other things all at once. SWAMI has much further refined my food lists, and I feel pretty confident that my entire list of "food  triggers" is on my "avoid" list in SWAMI, along with such things as overdoing the sugar, or in some other way ignoring SWAMI's portion size recomendations.

I'm confident that if I fully follow SWAMI, I will heal, although I'm prepared for unpleasant detox symptoms as part of that process.
Posted by: Symbi, Friday, April 29, 2011, 1:16am; Reply: 10
Great post Ruthiegirl - glad that you are beating the fight against FM and your info is inspiring and helpful.  Interesting what you say about pain meds, because I read that the more pain you experience you can get used to and then make a negative feedback loop so that you feel less pain overall.  Dentist confirmed that, having FM I must be used to pain, and thought I may not need an injection, yesterday he drilled me (only cracks in teeth) and I meditated.  Interestingly, going off pain meds can cause withdrawal headaches and pain as the body gets used to them, even acetominophen or aspirin.

Also the feelings and emotions play a part, if you panic and worry about the pain or tighten the area, as is the natural instinct, that can make the pain worse.  Better to let yourself feel the pain, stretch it, put heat on it, tone it, or deal with it in some way.  Once you let yourself feel it then it becomes smaller and you can accept it.

I get IBS and more pain some days than others and it is usually after overdoing it, like you say.  Or from too much histamine - allergy reactions or inflammation much like TJ says.  I have lupus-like connective tissue disease flares too and am going to get that checked out.  (went to a rheumy once but we had bad communication breakdown and said it was all in my head - your friend must be prepared to hear that).  Must pace myself and accept what I can do and be grateful for the things I have or can do, rather than the things I don't have or can't do.  The old glass half full trick.  :)
Posted by: AKArtlover, Friday, April 29, 2011, 2:42am; Reply: 11
Quoted from ruthiegirl
Nobody knows what causes Fibromyalgia, although several theories exist. Personally, I suspect that it may have more than one cause.


We are complex beings and things are interrelated. Ignoring the information symbi pointed out seems like someone would be missing out. I would think it would lead to more creative questioning.

So glad you both are finding relief on your journey. I know several people...
Posted by: Goldie, Friday, April 29, 2011, 3:32pm; Reply: 12
Quoted Text
I don't know if this is the right section but anyway...a friend of mine has this issue and was very defensive when I told her it's a low grade viral infection ..she was adamant she developed fibre after having a hysterectomy ...is this possible and does anyone have more info on this disease or has been through it as she is being given the usual run around by mainstream doctors and all sorts of drugs as usual and will not accept any other advice!!


Yes on all that you typed.. I believe its possible to develop it any time under trauma or stress..

Doctors have no solutions or non that cure it.. food will but as long as she is not hearing you.. forget about it.. it adds trauma that she does not need.. when all else fails she will come  back.. or refere her to here and let he learn from all who have gone through that, ..

look at PM above..
Posted by: 11080 (Guest), Friday, April 29, 2011, 5:11pm; Reply: 13
Quoted from nowishow
I have Lyme Disease and there are some studies being done showing a link between many conditions and Lyme Disease, Fibromyalgia being one of them. I don't go to mainstream medical doctors for my condition as they really don't know what to do with me. I'm seeing a doctor that is outside the insurance industry, this gives them more freedom with their diagnosis and treatment, but of course costs the paitent more. But I think I have a much better chance of getting well this way.


Yes--There is an increasingly stronger connection between Lyme Disease and Fibromyalgia.  Lyme Disease has been classified as an inflammatory disease.  If Lyme Disease is caught within a week or so of the tick bite, a treatment of 4-6 weeks of antibiotics can cure it.  The initial reaction from Lyme Disease is flu-like symptoms for a week to 10 days, then it clears up, so people think they are better.  The problem is, the Lyme is just hiding.  Lyme Disease is a bacteria (in the form of a spyrochite) that spreads throughout the body and settles silently into organs, muscles, joints, and the gut.  There is significant research that auto-immune diseases actually were caused by undiagnosed Lyme Disease.  This is what happened to me.

I was bitten by a tick in August 2001 and had terrible flu-like symptoms for a week (the worst flu I ever had and it wasn't flu season!).  I went to the Dr, he did some blood work and put me on antibiotics for a week.  The one Lyme test he did came back inconclusive (and actually, you need to run about 5 Lyme blood tests to even start to get the diagnosis).  Because the flu went away, he did not treat me any further.

But over the years, I developed Irritable Bowel Syndrome, Ulcerative Colitis, Acid Reflux, Fibromyalgia, heart palpitations, numbness in my arms and legs, rheumatoid arthritis, dental problems, "brain fog," H.pylori and Candida, tinnitus, and positive auto-immune blood tests.  The symptoms got much worse after my hysterectomy in 2007 but that was because the Lyme Disease was able to ravage my body while my body was weak and recovering from major surgery.

So there may be a connection between your friends' symptoms after her hysterectomy but not because of the specific surgery.  Rather, it's because of another viral or bacterial problem (possibly Lyme Disease) that has a chance to flourish when the body is recovering from surgery.  Recall that Dr. D says in his ER4YT book that recovering from major surgery takes about 2 years to get back to where you were pre-surgery and only if you eat right for your blood type.

Many of the issues that I read about on this discussion board are probably related to undiagnosed Lyme Disease.  I'm not trying to add another label to our illnesses, but really, what we talk about so much (myself included) are the symptoms and our diagnoses of Ulcerative Colitis, Fibromyalgia, Auto-Immune Disease, Rheumatoid Arthritis, etc.  But none of these diseases has a source--we don't know how we ended up here.  I'm convinced that the source of most of them is probably Lyme Disease which is terribly underdiagnosed, horribly non-treated, and much easier to get than most people realize.  Lyme Disease originated in Lyme, Connecticut, a wealthy community where the parents realized that a huge number of their children were being diagnosed with childhood arthritis.  They finally traced all of those kids back to a tick-borne bacteria that they named Lyme Disease!

A discussion of Lyme Disease should probably be a separate thread (I know Ribbit tried to start one a while ago but it did not get anywhere!)  There actually IS a possible cure even for chronic Lyme Disease so if more of us were on the right track instead of just dealing with the symptoms with different levels of success, we might be able to achieve a total restoration of our health!  That's my path and I'll be happy to share my sucess with anyone who is interested.  I have my first appointment with a Lyme specialist next month and I am so eager to actually find a cure for my ailments rather than just reduce the symptoms and live with being less than who I was and less than my potential self.



Posted by: Chloe, Friday, April 29, 2011, 7:42pm; Reply: 14
spinnakertech, if you would like to pick up the Lyme thread again at some point after seeing your Lyme specialist, I'm quite sure many of us would be interested.  Thanks  :)
Posted by: nowishow, Friday, April 29, 2011, 9:41pm; Reply: 15
I would love to participate in a Lyme discussion thread as well.
Posted by: 11080 (Guest), Friday, April 29, 2011, 9:43pm; Reply: 16
Quoted from Chloe
spinnakertech, if you would like to pick up the Lyme thread again at some point after seeing your Lyme specialist, I'm quite sure many of us would be interested.  Thanks  :)


Hi Chloe, I'll do that.  Thanks and I hope to have you join the discussion and share what you've learned about Lyme Disease.  Take care.   :)
Posted by: Symbi, Sunday, May 1, 2011, 2:08am; Reply: 17
Thanks AKArtlover - cheers to you.  Am always questioning and am reading some books on the topic, I hope someone could figure out fibro properly and suspect it may be a jack of all trades type (like Dr D who puts many ideas together) and not a specialist, like the guy who theorised that the continents must have all been joined together and continental drift separated them. He was laughed down and later proved to be right.  He was an amateur geologist willing to think outside the box of theories at the time, Alfred Wegener.

Let me add about depression IMHO it's mostly physical with causes such as vitamin, essential fatty acid, immune system problems and can be solved with diet, exercises and supplements in most cases.  There may be many types of fibro from many causes with different cures.  Didn't mean to sound like I'm thinking it's totally psychological, we are chemical (and spiritual) beings.
Posted by: 16634 (Guest), Saturday, October 22, 2011, 12:09pm; Reply: 18
Hi there !!!

I'm new on this message board. Please excuse my English, as I'm French and haven't practicised for a long long time ....  :B

I've heard about BTD 6-7 yrs ago. But I'm really paying attention to it since the start of this year.

I've read some posts about FMS and CFS here, and what I read made me register as a member.

I'm dealing with similar symptoms for 10 years. It has increased over years. I'm seeing MDs since 2005.

First I was told I had spasmophilia .
Okay, I didn't agree with that.

Then I was officially diagnosed with neuropathic pain, on my left leg, due to an extreme clubfoot diformity I was born with, and which led me to several surgeries to get it "repaired" when I was a child.
Okay.
So I take medication for that since 2005 (lyrica, codein, cymbalta and oxcarbazepine).

Let's add my mother had Lymes when she was pregnant with me, 4 months of pregancy. She wasn't cured, bacause at this time, doctors didn't know what Lymes was.

Now she has Lupus. Okay.

You get the picture.

So I'm seeing a specialist since last May, who's specialized about FMS they say. When he saw me, he said my no-gluten no-dairy diet was a fancy  :X , although I've lost more than 60 lbs.
Although I've got more than 13 trigger points / this Lymes contact I've had as a foetus/my mother's disease, he told me all that was in my head, because I had a clubfoot and didn't want to accept it  :o
Okayyy ...

But he sent me to a MD colleague, a neurologist, who specialized in sleep problems.
So I told this neurologist I get up 2 to 3 times a night, because of pain, because I can't lay on my hips any longer, and that I was tired for 10 years and couldn't get rested, event when I slept.

Well this guy told me I was lazy, and that was the answer to my problems. He told me to kick my expletive deleted and get a job. Okayyyy ...

I felt so insulted.

I'm a type A, you saw that, can it be possible I have FMS ??? I believe so, because of the symptoms and all the stuff around.

The doctors here in France seem so retarded, they don't know what they're talking about. And I feel so alone.

I want a diagnosis, to be able to tell people "that's what I'm suffering of". Because I can't stand anymore to be seen as a lazy girl who doesn't want to work.
My suffering is real.

What can I do ???
Posted by: Vista, Saturday, October 22, 2011, 12:45pm; Reply: 19
Fibromyalgia can be a form of metabolic myopathy. I am diagnosed with Fibromyalgia and also a customer of 23andMe and I have found out from my rawdata that I have a mutation that in some cases causes AMPD1 deficiency and the symptoms is very similar to them of Fibromyalgia. Homozygotes rs17602729(A;A) individuals can experience muscle cramps, muscle myalgia and have lower energy.


http://www.snpedia.com/index.php/Rs17602729

http://www.ncbi.nlm.nih.gov/pubmed/12117480

http://en.wikipedia.org/wiki/Myoadenylate_deaminase_deficiency

http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/metabolicmyopathies.asp

http://emedicine.medscape.com/article/1173338-overview



I experience muscle pain, muscle cramps after certain activities and also have very low energy. I believe that this mutation or other mutations can also be the explanation to some cases of Chronic Fatigue Syndrome.

Chronic fatigue syndrome and mitochondrial dysfunction
Sarah Myhill,1 Norman E. Booth,2 and John McLaren-Howard3

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2680051/
Posted by: deblynn3, Saturday, October 22, 2011, 1:22pm; Reply: 20
A friend of mine has Fibromyalgia, she got the opportunity to see a doc who is a specialist, from Colorado (some kind of study group) The two things which she told me was, get off the gluten, most with fibromyalgia are celiac and keep moving. Those that where in wheelchairs where told to crawl everyday.
Posted by: Goldie, Saturday, October 22, 2011, 1:24pm; Reply: 21
The only real solution to body-neuropathy I experienced was with 'energy' distributed through ONDAMED.  A type of biofeedback, chemical free, non invasive and effortless, dramatically improves life within 10 days.. hard to come by  geographically, as there are only some who practice it, but it works.  http://ondamedworld.com/  
Posted by: ABJoe, Saturday, October 22, 2011, 4:29pm; Reply: 22
Quoted from 16634
I want a diagnosis, to be able to tell people "that's what I'm suffering of". Because I can't stand anymore to be seen as a lazy girl who doesn't want to work.  My suffering is real.

What can I do ???


First, I understand the desire to be able to tell people that you have "X", but I believe that the real desire you have is to find out how to deal with the pain, etc. so you can become a productive member of society.  Lyme, Chronic Fatigue, and Fibromyalgia are all names that are attached to symptoms that are very difficult to diagnose and treat medically.

My recommendation is to get a SWAMIXpress and find out what Dr. D. recommends for your individualized diet through the software.  Some supplements may speed up any gut repair you need.  Deflect, Intrinsa and Polyflora are a wonderful combination.  

This would be a great start.  Further assistance can be provided as you progress.
Posted by: KimonoKat, Saturday, October 22, 2011, 4:33pm; Reply: 23
Quoted from 16634
Hi there !!!

I'm new on this message board. Please excuse my English, as I'm French and haven't practicised for a long long time ....  :B

I've heard about BTD 6-7 yrs ago. But I'm really paying attention to it since the start of this year.

I've read some posts about FMS and CFS here, and what I read made me register as a member.

I'm dealing with similar symptoms for 10 years. It has increased over years. I'm seeing MDs since 2005.

First I was told I had spasmophilia .
Okay, I didn't agree with that.

Then I was officially diagnosed with neuropathic pain, on my left leg, due to an extreme clubfoot diformity I was born with, and which led me to several surgeries to get it "repaired" when I was a child.
Okay.
So I take medication for that since 2005 (lyrica, codein, cymbalta and oxcarbazepine).

Let's add my mother had Lymes when she was pregnant with me, 4 months of pregancy. She wasn't cured, bacause at this time, doctors didn't know what Lymes was.

Now she has Lupus. Okay.

You get the picture.

So I'm seeing a specialist since last May, who's specialized about FMS they say. When he saw me, he said my no-gluten no-dairy diet was a fancy  :X , although I've lost more than 60 lbs.
Although I've got more than 13 trigger points / this Lymes contact I've had as a foetus/my mother's disease, he told me all that was in my head, because I had a clubfoot and didn't want to accept it  :o
Okayyy ...

But he sent me to a MD colleague, a neurologist, who specialized in sleep problems.
So I told this neurologist I get up 2 to 3 times a night, because of pain, because I can't lay on my hips any longer, and that I was tired for 10 years and couldn't get rested, event when I slept.

Well this guy told me I was lazy, and that was the answer to my problems. He told me to kick my expletive deleted and get a job. Okayyyy ...

I felt so insulted.

I'm a type A, you saw that, can it be possible I have FMS ??? I believe so, because of the symptoms and all the stuff around.

The doctors here in France seem so retarded, they don't know what they're talking about. And I feel so alone.

I want a diagnosis, to be able to tell people "that's what I'm suffering of". Because I can't stand anymore to be seen as a lazy girl who doesn't want to work.
My suffering is real.

What can I do ???


  Little Marmotte!

This is the place to get help and answers to your questions!

What level of the BTD are you following?  Which book do you have?  As a Type A, your food choices can changed dramatically just knowing your secretor status.  

If your budget permits, consider getting SWAMI express.

Again, welcome, and I hope someone comes along soon who can answer your questions.
Posted by: Chloe, Saturday, October 22, 2011, 5:22pm; Reply: 24
Quoted from deblynn3
A friend of mine has Fibromyalgia, she got the opportunity to see a doc who is a specialist, from Colorado (some kind of study group) The two things which she told me was, get off the gluten, most with fibromyalgia are celiac and keep moving. Those that where in wheelchairs where told to crawl everyday.



You've made two great points.   Five years ago I got off gluten and I recently discovered that
casein (the protein in dairy which is on my SWAM as a toxin) is just as bad for me.  The problem
was that SWAMI gave me many cheeses as beneficial and some diamonds and yet, called casein a toxin.  I didn't "get it".....why eat a food that contains a toxin at all???  so I  eliminated all dairy.
My whole body was aching on dairy...

I also joined a senior citizen exercise program called Silver Sneakers (it's all over the USA at
various locations)....so I'm getting an hour of exercise 3x or 4x a week which has really helped me in a profound way.  People who are achy don't like to move...it hurts...but the way I'm exercising is helping keep me limber....stretching out my tight tendons and muscles....I'm elevating my heart rate which has increased my stamina and improved my overall mental well
being...I sleep more soundly because I exercise...My muscles aren't forming those typical "fibro" knots anymore.
Posted by: deblynn3, Saturday, October 22, 2011, 5:37pm; Reply: 25
I'm reading and hearing more how one health issue is connected to another.  This same friend (O type) was asking about restless leg syndrome. I found some information, which said being anemic could cause it.   Later she called and said she was in fact anemic and they were looking into it.   I remember that O's have a problem with ulcers.  Well sure enough she ended up in the ER with ulcers. Total time frame was about 2 1/2 yrs. wish we could have connected the dots sooner.
Posted by: Symbi, Sunday, October 23, 2011, 3:14am; Reply: 26
Yep Deb some day doctors will catch up to top down grouping of types of peple and their health issues and linked health issues (sorry sure there's probably better wording for that?)  A better word is BTD/GTD!

Magnesium deficiency is linked with fibromyalgia (studies showed low levels in blood of FM patients) and restless legs syndrome too.  Magnesium has helped my vascular / migraine headaches and helped me sleep better reduced pain overall.  It's difficult to absorb though from supplements.

Malic acid found in lemon juice / apple juice also helps clear lactic acid.  One theory is that anaerobic exercise (not getting enough oxygen to muscles) causes lactic acid buidup and FM pain.  Malic acid helps clear that.  Helping me lately also trying to avoid that type of exercise like sprinting up hills = bad  :P.
Posted by: TJ, Sunday, October 23, 2011, 6:10pm; Reply: 27
Quoted from 16634
Well this guy told me I was lazy, and that was the answer to my problems. He told me to kick my expletive deleted and get a job. Okayyyy ...

I felt so insulted....

The doctors here in France seem so retarded, they don't know what they're talking about. And I feel so alone.

I want a diagnosis, to be able to tell people "that's what I'm suffering of". Because I can't stand anymore to be seen as a lazy girl who doesn't want to work.
My suffering is real.
LittleMarmotte,

It's not just doctors in France!

It is not possible to prove to other people that there is anything wrong with you.  They can either choose to believe, or choose not to.  And you can tell them that, too! ;)  Whether or not they believe you says more about them than it does about you.  Trials like this show you who your true friends are.  Hold on to the people who trust and support you, and avoid (as much as possible) the people who don't.
Posted by: ruthiegirl, Sunday, October 23, 2011, 6:22pm; Reply: 28
My health is a huge puzzle. I keep finding more pieces, but there's never been a huge "aha!" moment where everything just fit together and suddenly I was healthy, strong, and energetic again. There were a few big discoveries (such as giving up wheat) that gave dramatic effects, but nothing is 100%. It's a process, and I'm still learning and growing and healing and trying to fit more puzzle pieces together.

I'm trying to figure out all my fibro triggers so I can avoid them. With SWAMI, I think I've identified all my food triggers,  but that's not everything. I can get into a fibro-flare from too much stress, or from over-exercising. Yes, exercise is important, but I need to be very careful. Doing too much, too soon can cause me real damage. I'm definitely  benefiting greatly from dietary changes, as I'm no longer taking any pain meds on a regular basis. I still have "bad days" but overall I'm doing much better than I was.

I also take some supplements to help (vitamin D, vitamin B complex,magnesium, and 5-HTP) but those may not be the exact supplements that you need.

I completely understand about "nobody understanding." I was very, very lucky that I found a rheumatologist who diagnosed me right away. I figured out from online conversations that I might have FMS; I was talking to an online buddy with FMS (fibromyalgia syndrome) and asked her about her symptoms. When I realized I had the same symptoms, I told my dr I suspected I had FMS, she refered me to a rheumatologist, and he diagnosed me on my very first visit. I've had people "not beleive I was sick" but I've never been treated rudely by a doctor.
Posted by: Chloe, Sunday, October 23, 2011, 7:02pm; Reply: 29
Quoted from Symbi
Yep Deb some day doctors will catch up to top down grouping of types of peple and their health issues and linked health issues (sorry sure there's probably better wording for that?)  A better word is BTD/GTD!

Magnesium deficiency is linked with fibromyalgia (studies showed low levels in blood of FM patients) and restless legs syndrome too.  Magnesium has helped my vascular / migraine headaches and helped me sleep better reduced pain overall.  It's difficult to absorb though from supplements.

Malic acid found in lemon juice / apple juice also helps clear lactic acid.  One theory is that anaerobic exercise (not getting enough oxygen to muscles) causes lactic acid buidup and FM pain.  Malic acid helps clear that.  Helping me lately also trying to avoid that type of exercise like sprinting up hills = bad  :P.


good point, Symbi....that lactic acid issue....It might be why aerobic exercise has helped me
so much....It does get oxygen to the muscles...In addition, I eat an apple every day...high in malic acid too....
Here are other foods high in malic acid.

http://www.livestrong.com/article/203551-natural-sources-of-malic-acid/

Posted by: Symbi, Monday, October 24, 2011, 1:29am; Reply: 30
Cheers Chloe - In the bad old days I used to get sore and crave salt and vinegar chips and swore they helped me (except the excess stomach acid anyway lots of malic in them.  Didn't know about the other fruits in your link there eat lots of em, pineapple (the least often cos it sometimes hurts my mouth great on spelt pizza tho  :)), apricot (near daily) and raspberries.  No wonder I'm feeling good lately  :)

Yeah! To no pain meds Ruthie!  A smart one like you'll figure out the puzzle one day.

Love your post TC!  A doctor told me the same thing the other day that all I need is a job, used to get angry but now just accept it.  Everyone has opinions just like #@$# holes but doesn't mean I have to listen or care what they say.  Hate when they poo poo your pain which they probably couldn't stand themselves.  Just don't want to admit they don't know the answer and can't help.  (I believe wisdom starts sometimes with "I don't know".)  Natural medicine though can help so many times.
Posted by: TJ, Monday, October 24, 2011, 2:17am; Reply: 31
Quoted from ruthiegirl
My health is a huge puzzle. I keep finding more pieces, but there's never been a huge "aha!" moment where everything just fit together and suddenly I was healthy, strong, and energetic again. There were a few big discoveries (such as giving up wheat) that gave dramatic effects, but nothing is 100%. It's a process, and I'm still learning and growing and healing and trying to fit more puzzle pieces together.
I couldn't have said it better about myself.
Posted by: Bekki Shining Bearheart, Tuesday, January 17, 2012, 4:34am; Reply: 32
Several type Bs I know saw improvement when they stopped eating wheat/gluten.
Posted by: AKArtlover, Tuesday, January 17, 2012, 7:58pm; Reply: 33
A few massage therapists in a class told me about 85% of their female fibro clients had sexual trauma in the past. A few mental health people brought up a similar thing in a conference yesterday. I'm just adding this in the mix because it seems there is a big emotional component.

Feeling very blessed to have learned about Splankna....

http://splankna.com/
God is amazing and the best healer!
Posted by: Rev144, Wednesday, January 18, 2012, 2:36am; Reply: 34
I heard a while back on a radio talk show, When they put you under while having surgery, that the anesthesia has fluoride in it. The fluoride does some evil things to your body.  One of the side effects is FM.  I do not know this for a fact, just what the doctor said .  It might be worth investigating.  

I just read a book about a lady who had FM so bad that she had to move back in with parents, was bed ridden and it took her 3 months on a organic juice diet to start feeling better.  She only drank juice from a juicer, giving her body the energy it needed to heal.
Posted by: ruthiegirl, Wednesday, January 18, 2012, 5:27pm; Reply: 35
I wonder what blood type she was. I can't imagine subsisting on only juices for 3 months, even organic, freshly squeezed vegetable juices. I need meat for energy!
Posted by: AKArtlover, Thursday, January 19, 2012, 1:59am; Reply: 36
take care if fasting more than a day.
protein deficiency is something to look out for/muscle wasting.
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