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BTD Forums  /  Supp Right For Your Type  /  Raynaud's Disease
Posted by: VictoriousLiving, Monday, January 18, 2010, 5:00pm
As my username suggest, I frequently wear gloves- yes in Florida, yes in the summertime, and yes, indoors. I have Raynaud's diseaseor phenomenon which causes the blood vessels in my hands to constrict. The research on my condition suggests a high risk factor for stroke and other forms of arterial disease in my future.
Since no one in my family has heart disease, I did not check the box for that in SWAMI.
I know I am usually deficient in vitamin B-12, and also have borderline hypothyroidism. Is it possible that I have been misdiagnosed? What kind of supplements should I take so that my condition doesn't worsen?
Posted by: Tom Martens, Monday, January 18, 2010, 5:18pm; Reply: 1
When you say your Blood vessels constrict in your hands do you mean that the blood leaves your fingers and they get white, numb and painful as if it were very cold outside and you left your hands exposed?
Posted by: SoulfulLori, Monday, January 18, 2010, 5:26pm; Reply: 2
Hey WellGloved!  Yes, I do believe that you could be misdiagnosed in terms of the hypothyroidism.  I too have Raynauds and enjoy lovely blue and painful finger tips and tooties.  I find stressful situations also makes it happen as well.  

I remember at your age not knowing it was an issue and thinking I was just "cold".  I suffered with so many other issues until some doctor place a "lupus" label on me.  I had some things that fit that and a history of it in my family but for the most part I did not fit the bill.  One thing that I remember clearly was that my thyroid tests came back with my TSH at 4 and sometimes 4.25.  Nobody blinked an eye at this.

My thyroid is being treated now and my Raynauds seems a little better but certainly is very much there.  Being an A, we tend to have these type issues anyway so I would think following the diet would improve things greatly interms of any worry of heart disease or stroke.  I look at the Raynauds as a warning signal that stressors are taking place.  In some ways it is helpful to keep me doing things that are more even (no extreme temperatures or outside stressors).  Though as I type this my fingers are blue and hurt.  LOL

As far as the hypothyroidism, I'm sure others will come along with suggestions for supps for this.

Your photo is lovely btw.  Just had to mention.
Posted by: VictoriousLiving, Monday, January 18, 2010, 9:27pm; Reply: 3
I don't know if Raynaud's is  a misdiagnosis b/c- I don't experience pain. I do have numbness ( also in my legs)- which I have had all my life ( I can remember being in kindergarden and everytime we had to sit down I would get 'pins and needles').
What I think is going on is a lack of B-12 ( despite supplementation) due to a lack of intrinsic factor.
My bloodwork is always wacky - indicating amenia and even suggesting that I may be on the road to leukemia.
I have never had normal bloodwork in my life - even when feeling great.
Guess it must be an 'explorer' thing. :)
Posted by: Tom Martens, Tuesday, January 19, 2010, 12:04am; Reply: 4
If I let my core temperature or my thighs get too cold, my first two fingers on both hands will lose blood, become numb and painful.  As longs as I wear extra layers when it's cold, I usually don't have a problem.

If you haven't tried the B12 shots yet, it might fix a lot of your symptoms.
Posted by: Possum, Tuesday, January 19, 2010, 12:16am; Reply: 5
Quoted from VictoriousLiving
As my username suggest, I frequently wear gloves- yes in Florida, yes in the summertime, and yes, indoors. I have Raynaud's diseaseor phenomenon which causes the blood vessels in my hands to constrict. The research on my condition suggests a high risk factor for stroke and other forms of arterial disease in my future.
Since no one in my family has heart disease, I did not check the box for that in SWAMI.
I know I am usually deficient in vitamin B-12, and also have borderline hypothyroidism. Is it possible that I have been misdiagnosed? What kind of supplements should I take so that my condition doesn't worsen?
I have no idea sorry, but I remember researching PERNICIOUS ANAEMIA due to being low in iron... Could that be a concern?

Posted by: VictoriousLiving, Tuesday, January 19, 2010, 4:09am; Reply: 6
Yes, Possum - my blood work confirms that I am low in iron. More than 1/2 a dozen times I have been unable to give blood on account of my low iron and low protein levels.
Posted by: Lola, Tuesday, January 19, 2010, 6:38am; Reply: 7
http://www.dadamo.com/resultbase/resultbase.cgi
Posted by: misspudding, Thursday, September 9, 2010, 6:51pm; Reply: 8
Hey, Skeptic, did you ever get some relief?  I'm trying to figure out some similar problems.

Seems like a lot of Rh- explorers on this thread.
Posted by: Ribbit, Thursday, September 9, 2010, 9:32pm; Reply: 9
I think Symbi (here on the forums) has it as well.
Posted by: GillianR, Friday, September 10, 2010, 6:51am; Reply: 10
Hi HecticSkeptic,
  I was diagnosed with Raynaud's Syndrome (aka arteritis where the arteries close off) many years ago. I very rarely have symptoms now that I have cut out wheat (and followed the BTD, then the GTD, then SWAMI).

The Doctor who diagnosed me  ((1978??) said that vibrations will cause the problem. Sure enough I had been using a power drill just before that. I, also, noticed it when I drove my old Datsun 510. It was a stick shift and the vibrations caused my right hand to go numb and white.

I can remember having my whole arm go icy cold after I had used a mouse for a while about 2006 (on this very forum for too long! :)). I got a thumb-controlled mouse , which helped but didn't eliminate the problem. I never get the problem anymore.

Raynauds is classified as an arthritis and Peter mentions it in the Arthritis book he has written. When I run my SWAMI I check arthritis and autoimmune ( I ,also, have psoriatic arthritis) and the Raynaud's is a thing of the past for me.

Good luck on solving this. I am sure diet will make a huge difference for you  as it did for me.
Posted by: GillianR, Friday, September 10, 2010, 6:53am; Reply: 11
PS. I don't take supplements.
Posted by: Goldie, Friday, September 10, 2010, 7:52am; Reply: 12
Quoted Text
What I think is going on is a lack of B-12 ( despite supplementation) due to a lack of intrinsic factor.
My bloodwork is always wacky - indicating anemia and even suggesting that I may be on the road to leukemia.
I have never had normal bloodwork in my life - even when feeling great.
Guess it must be an 'explorer' thing.


The B I2 issues originate in the gut on the left side near the down bend not being able to absorb that vitamin.  if you are deficient one way to get the B12 into the body is to use nose drops of B12 as then it enters the system directly.

The answer is eating right to fix the intestines.. time will do this.  The ER4YT Encyclopedia might have  a number of different protocols to follow.   (and even since then DrD has added some new sups so ask about that also.. but more is not always better)  

indicating anemia and even suggesting that I may be on the road to leukemia.  I would not believe that is a connection?  

Anemia ( Iron deficiency) might be a different thing and again I would look to the encyclopedia for answers.. The right sups for a while might make a big difference, where jumping all over the field of sups will just add to the body confusion.
Posted by: de_nogent, Sunday, September 12, 2010, 7:57pm; Reply: 13
I've suffered from cold hands and feet accompanied by excessive (dripping) sweat since junior high, but they don't turn blue or cause pain. I think it's mostly caused by stress or anxiety in my condition. I've never been able to find a cure. It can be quite debilitating, inhibiting me from social events. I've had blood work done over the past few years and the results are always good - very low cholesterol. That wasn't why I was getting blood work, but rather for the medication (Vyvanse) I was on for ADD which I no longer take.
Posted by: PCUK-Positive, Thursday, November 29, 2012, 6:32pm; Reply: 14
The sweating would make me thin of liver and gallbladder issues, has anyone suggested that before?

also what is raynaud listed under in the Eat right encyclopedia?
Posted by: ABJoe, Thursday, November 29, 2012, 6:47pm; Reply: 15
Quoted from GillianR
Raynauds is classified as an arthritis and Peter mentions it in the Arthritis book he has written. When I run my SWAMI I check arthritis and autoimmune ( I ,also, have psoriatic arthritis) and the Raynaud's is a thing of the past for me.

PC, here is a quote from a post above...
Posted by: PCUK-Positive, Thursday, November 29, 2012, 9:14pm; Reply: 16
cool I have that book as well so I'll re-read it thanks
Posted by: PCUK-Positive, Friday, November 30, 2012, 12:56am; Reply: 17
Raynauds not listed in index of the arthritis book. Can anyone be more specific where it is mentioned.

I have read elsewhere and it seems to be a circulation issue.
Posted by: PCUK-Positive, Friday, November 30, 2012, 1:41am; Reply: 18
connectivar seems ideal for this?
Posted by: Vkoslin, Friday, November 30, 2012, 2:37pm; Reply: 19
I have it. I believe it's Reynoud's Syndrome. That's what I have. Fingertips and toes always blue, regardless of temperature outside or layers. I don't take anything for it but it has since because a huge problem when snow skiing. Intense pain.
Posted by: SquarePeg, Friday, November 30, 2012, 7:35pm; Reply: 20
I've always had cold hands and feet.  I find that vitamin E and iodine (from seaweed) both help to improve circulation and warm my extremities.
Posted by: Lin, Saturday, December 1, 2012, 12:01am; Reply: 21
VictoriousLiving,
Your describing several things I've dealt with over the years.  
Low iron and B12 is common in people with celiac/gluten intolerance.  You might want to check out Celiac.com site.
Lin
Posted by: RedLilac, Saturday, December 1, 2012, 5:35pm; Reply: 22
Quoted from SquarePeg
I've always had cold hands and feet.  I find that vitamin E and iodine (from seaweed) both help to improve circulation and warm my extremities.


I ran out of my Lavor Nori seaweed and my WF didn’t have it in stock for 2 months.  During exercise I noticed the problem with my hands and feet.  I didn’t correlate the two until now.  It is rich in B6, B12 & iodine.
Posted by: Patty H, Monday, December 3, 2012, 2:20pm; Reply: 23
I have it as well.  Vkoslin, it is called either Reynaud's Syndrome or Reynaud's Phenomenon, depending on whether there are other issues along with it.  See the link below:

http://www.nhlbi.nih.gov/health/health-topics/topics/raynaud/

One thing it is definitely an indicator of is potential hypothyroidism.  In fact, I am beginning to wonder if my thyroid is off.  I am currently experiencing constant tingling in my hands and feet.  Yesterday I had and episode of Reynaud's in both hands, all four fingers, that lasted a while.  Hypothyroidism runs in my family.  My mother had a goiter as a child and has been on synthroid for years.  My sister was diagnosed with hypothyroidism within the last six months.  My 23andme testing indicates that I have the genetic predisposition for hypothyroidism.  

Regarding diet, neither the BTD nor the GTD helped my Reynaud's, unfortunately.  I am interested in the B12 idea and I may look into the injections.  

The link below shows the possible risk factors, one of which is hypothyroidism - another of which is rheumatoid arthritis.

http://www.medicalnewstoday.com/articles/176713.php
Posted by: PCUK-Positive, Monday, December 3, 2012, 2:22pm; Reply: 24
I would try the methyl 12 before injections i think.
Posted by: Symbi, Saturday, December 8, 2012, 8:28am; Reply: 25
Great memory Ribbit  ;) - yep I've got Raynaud's too.  They check me out for lupus too but like Lori (G'day!) I don't fully fit the bill.  Phew!  Have some other autoimmune issues and definitely Fibromyalgia which is associated with it.  From what I've read, Raynauds can be an early sign of autoimmune disease, or then again may not!  :)  Hopefully with this WOL you would prevent further autoimmune disease.

Have been slightly hypothyroid before and have antibodies towards my thyroid.  Wonder if I have subclinical hypothyroidism (have been putting on weight lately  :() will get thyroid results soon.  Also take B12 and I've felt less guilty (saw House mention that if you think you are guilty all the time could be b12 deficiency!).  

Things that helped me are Gingko Biloba for a while it was brilliant to increase the peripheral circulation.  Magnesium also helps and lessens migraines.  Hope you are on that Vic(torious) - love the name !  You sound like a typical Explorer, not sure if the anemia is linked to Raynauds but Explorerhood yes.  I have low iron and low white cells too.  Have to watch if I take too much iron it binds me up tho.

Antioxidants are very important too.  Read that an episode from going cold, white to blue and then warming and going red, creates lots of free radicals which over time can damage the tissues.  The demand for antioxidants increases.  Vitamin E (mixed tocopherols), C, Essential fatty acids may all help.

Sometimes I think of moving back to the tropics just because of it.  

Patty H - thanks for the second article.  Didn't know cancer was linked with it.  Also Ehlers-Danlos Syndrome which I suspect I have a mild form of.
I'm not a medical professional btw!
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