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BTD Forums  /  Nonnie Clubhouse  /  Can a secretor status change in your life?
Posted by: Arlene, Friday, April 18, 2008, 7:17pm
Hi Everyone,

I am not new to the BTD community, but I only recently found out I was a non secretor. I really loved the new Genotype book and ordered the fingerprint kit and at the last minute decided to order the secretor test kit since I already was paying for the shipping. I was shocked to find out I was a non secretor. Looking back I should not have been shocked since I found the Blood Type Diet when I was looking for something to help me with my Chronic Fatigue and Fibromyalgia in 2001.

Many years ago someone on the old Blood Type board posted about Wilsons Thyroid Syndrome. Since I had a very low body temperature, I was fascinated and visited the site www.wilsonssyndrome.com and for many years tried to find a Doctor who would prescribe the T-3 therapy for me. I finally found a Doctor in Sarasota, Florida who read the information and is treating me with the T-3. I informed him that I had just found out I was a non secretor and he then informed me that people with low body temperature have multiple enzyme dysfunction and that I may one day be a secretor. I was again in shock! Could that be true?

In the meantime my sister who also feels she has the Wilsons Thyroid Syndrome went to a Dr in Lakeland, Florida who is starting to treat her with T-3. He also informed her that many of his patients became secretors once their body temps stabilize. My sister said he said it so matter of factly that she too has the hope she will be a secretor one day.

I have searched the Nonnie board as far back as possible and I tried to see if anyone has posted about this. I would love to have feedback on what everyone thinks about this.

Arlene
Posted by: mikeo, Friday, April 18, 2008, 7:27pm; Reply: 1
no
Posted by: ABJoe, Friday, April 18, 2008, 7:30pm; Reply: 2
I'm definitely not qualified to offer an opinion, but it is an interesting thought...  :o
I wonder if it is real or if lab techs. don't know how to do the test properly! ::)
Posted by: Arlene, Friday, April 18, 2008, 7:35pm; Reply: 3
Hi ABJoe,

The Doctor told me that my T-3 protocol will probably last a year. Once my temps are steady in the 98 degrees, I was going to send away for another secretor test kit and resubmit a saliva sample. It will be interesting to see if there would be a change or not.

Arlene
Posted by: 2330 (Guest), Friday, April 18, 2008, 7:48pm; Reply: 4
Quoted from ABJoe
I'm definitely not qualified to offer an opinion, but it is an interesting thought...  :o
I wonder if it is real or if lab techs. don't know how to do the test properly! ::)


I definitely think the ones Dr. D. uses know what they are doing. Yes, it is real all right.
Posted by: Lola, Saturday, April 19, 2008, 12:25am; Reply: 5
your doc isn t talking about the lewis test results and that type of secretor versus non secretor issue....
but you certainly can teach him!
http://www.dadamo.com/wiki/wiki.pl/Lewis_Blood_Group
Posted by: Ribbit, Saturday, April 19, 2008, 1:04pm; Reply: 6
I don't know about this.....but what if nonnieness is one of those mutations that could be "fixed" or reversed if you follow the GTD long enough.
Posted by: Whimsical, Saturday, April 19, 2008, 1:45pm; Reply: 7
No, secretor status is determined by genetic coding, which never changes.  Non-secretors lack the genetic sequence necessary to produce an enzyme that allows free blood type antigen to be present in body secretions.  

The only thing that can change via GTD is the expression/silencing of genes.  In this case, though, non-secretors do not have this gene sequence, so it cannot be brought out via GTD.
Posted by: JJR, Saturday, April 19, 2008, 2:25pm; Reply: 8
Off topic, but my temperature is usually in the 97.5-97.7 range in the morning and night.  It will usually get into the 98.4 range in the day.  I don't know if that's low grade fevers or what.  I have a feeling my thyroid is not working completely great too.  Hopefully someone can square that away for you.  I have nothing to add about the changing of secretor status except that is interesting.
Posted by: RedLilac, Saturday, April 19, 2008, 3:47pm; Reply: 9
Hi Arlene and welcome to the board from another non-secreting, low temperature, Arlene.

You were born a nonnie and will die a nonnie.

Arlene aka RedLilac
Posted by: Arlene, Sunday, April 20, 2008, 11:02pm; Reply: 10
Hi Arlene,

You also mentioned you had a low body temperture. I am 96.8-97.2 upon awakening and the highest I hit during the day was 97.8. I have been on the T-3 for 2 months now and during the day I am hitting temps of 98.0 and 98.2. When I am at 98.2 I feel very warm since I am not used to it. Also I find my fibromyalgia starts to disapear when I am at 98.2. I have to take my temps 4 times a day as well as my pulse. I can tell when my temperture is nearing 98.2 since I start to feel better and I feel like I can accomplish much more. I am in the early stages of therapy so I cannot hold the temperture consistantly. If I feel better at 98.2, I can only imagine that 98.6 will bring me greater improvements.

I wonder how many other non secretors have low body temps.
Posted by: jayneeo, Sunday, April 20, 2008, 11:13pm; Reply: 11
but could this group of symptoms cause the shortage of the enzyme that allows the body to secrete? thereby allowing the possibility of secretor status changing?
Posted by: 2330 (Guest), Monday, April 21, 2008, 12:34am; Reply: 12
Quoted from Arlene
Hi Arlene,

You also mentioned you had a low body temperture. I am 96.8-97.2 upon awakening and the highest I hit during the day was 97.8. I have been on the T-3 for 2 months now and during the day I am hitting temps of 98.0 and 98.2. When I am at 98.2 I feel very warm since I am not used to it. Also I find my fibromyalgia starts to disapear when I am at 98.2. I have to take my temps 4 times a day as well as my pulse. I can tell when my temperture is nearing 98.2 since I start to feel better and I feel like I can accomplish much more. I am in the early stages of therapy so I cannot hold the temperture consistantly. If I feel better at 98.2, I can only imagine that 98.6 will bring me greater improvements.

I wonder how many other non secretors have low body temps.


I do and always have. Just found out I'm a Nonnie last week (after all these years of thinking I was a Secretor for a number of reasons) so now I'm into another learning curve about that! So far, it has been very enlightening!
Posted by: Arlene, Monday, April 21, 2008, 2:03pm; Reply: 13
Quoted Text
but could this group of symptoms cause the shortage of the enzyme that allows the body to secrete? thereby allowing the possibility of secretor status changing?


Hi Jayneeo,

What you said in your post is exactly what my Dr feels has happened to me, that my low body temp has caused multiple enzyme dysfunction. If you read the Wilson's Thyroid site you will see that there are very many body functions are affected when your temps are low. Here is a quote from the site:

Quoted Text
Virtually all of the chemical reactions that take place in our bodies are catalyzed by enzymes. Enzymes are proteins that are dependent upon their shape, or conformation, for their activity. When enzymes are too hot they are too loose, when they are too cold they are too tight, and in either extreme the enzymes are not the right shape and cannot function optimally. When the body temperature is too low, nearly all of the enzymes in the body function less effectively. This can cause a very wide variety of complaints.


Since I have many symptoms and issues the Doctor feels that I will need the T-3 therapy for at least a year. Its been 2 months and I already am having some improvement and I am feeling hopeful. I even noticed that the mosquitos know I am getting better since they are starting to bite me. I guess when my temps were lower they didnt notice I was outside. Now I am getting bit just like everyone else.  :)
Posted by: Lola, Monday, April 21, 2008, 2:55pm; Reply: 14
no matter how strong or how week the enzymes, those won t change your antigens!
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