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BTD Forums  /  The Encyclopedia/ D'Adamo Library  /  B type and severe stomach pains- celiac ?????
Posted by: Henriette Bsec, Thursday, September 7, 2006, 1:06pm
Hi
the last month or so I have really not felt brilliant.
All summer I have felt fine- had no bread and pasta and just a bit of rice, and oats.

First I went on a field trip with college - and I did not follow BTD very well- I tried to kick most of the bads things out - had no chicken and only a tiny bit of tomato sauce - but I did have ryebread,pasta and wheat bread.
Well normally when I am in balance I would be able to handle some wheat bread... but ??? not this time.
I felt terribely gassy and had a constipation all the time.

Then it was birthsday( 3 birthdays) week with plenty of cakes - but in general pretty good food for this B
Then school started and I was a bit stressed so my low/no grain  B diet that I normally follow from Monday- friday- disappeared and we had way to much bread and pasta. Most of the bread was 100 % spelt- but the pasta was wheat- and I did have oatmeal 3- 4 x a week as well and I satrted to feel bad but I thought well it is stress.

And now for the last 2 weeks my stomach has messed up even more.
After eating anything with flour in -I get severe stomach cramps , some loose stools, feel sweaty/ almost feverish and I am sooo tired. First I just thought it was a virus, but....???
The last few days I have looked craefull at my food and reactions.
And bread and flour kills me- but rice seems ok, as well as yoghurt, cooked veggies, fruit and eggs.

I have arranged to see my doctor monday morning since I am getting really woried !
One minute I feel almost healthy. almost no pain- no fever- just tired - next minute I feel really sick.

BUT
ANY TIPS ?
What should I ask for ?

If it is some kind of celiac reaction( or just IBS or anything worse) I suppose I need a bloodsample
- BUT It says on the danish pages that I should NOT AVOID glutenrich food the days prior to the test - but I am not sure that I want to have the pain= be eating flour etc .


Please any advice would be great.

PS the only time I ever felt just a bit like this was prior to BTD when I was a vegetarian - I alwys thought it was all the lentills, chick peas etc that made me feel like this ?! ??)
Posted by: Debra+, Thursday, September 7, 2006, 1:23pm; Reply: 1
Henriette Bsec-So sorry that you are feeling this way.  I hope it is not serious and just the fact that your body is trying to rid itself of the avoids that you have eaten.  To me...it seems you have eaten quite abit of the grains that your body is not used to.  When I used to eat the bad grains my body would not react right away, but would take a couple of days.  Of course,  I would eat more thinking I CAN eat this again.  NOT!!!  And...by then...I would've eaten more.  By the time it hit and I was on the grain roll...things would get worse.  Depending on how much I had eaten it could take a week to two weeks to feel better again.   Some days better than others.  The best that I can tell you is to try to stay as compliant (beneficially),  drink your fluids and get out for your walk to help heal your body.  Hope you are feeling better soon :)

Debra :)

P.S.  If I am not mistaken-I think you need to have had gluten in your body for the tests to show if you are celiac or not.  Hopefully, someone will come along to add more. ;)
Posted by: Henriette Bsec, Thursday, September 7, 2006, 1:32pm; Reply: 2
Quoted from debra

P.S.  If I am not mistaken-I think you need to have had gluten in your body for the tests to show if you are celiac or not.  Hopefully, someone will come along to add more. ;)


Yes- and that is what worries me - beacuse I do not want to eat theese foods and feel the pain.

BTW I only had the avoids a month a go- the last weeks it was just 1 serving of pasta- which I normally wouldnŽt count as avoid- beacuse wheat is neutral for B sec.

Thanks
Posted by: Debra+, Thursday, September 7, 2006, 3:16pm; Reply: 3
Not sure what to say Henriette Bsec.  I just know that it takes a while for me to get the avoids out.  Our bodies can store alot and when it decides to shift and move it it may cause problems. ;)

Debra :)

P.S.  Guess we may just have to wait and see what the doctor comes up with. :)
Posted by: NewHampshireGirl, Thursday, September 7, 2006, 9:10pm; Reply: 4
Perhaps you have a "bug" in the intestines.  Sounds like a good idea to have the doctor run some tests.  In ordinary times do you always take the probiotics for Bs?

I'm sorry you're having this problem.  Must feel awful!  :'(
Posted by: Victoria, Friday, September 8, 2006, 1:23am; Reply: 5
Henriette,
Melissa might be a good person to talk to about this.  She could at least address the gluten issues because she is unfortunately very experienced.  :-)

And I can't eat any gluten grains either, including oats.  My celiac blood tests came back negative, but that doesn't mean I'm not gluten intolerant.  So I just don't eat those grains, at all, even the ones that are neutral for my blood type.  It's a small price to pay to be pain free.
Posted by: Henriette Bsec, Friday, September 8, 2006, 6:15am; Reply: 6
Thanks NHG
IŽll wait and see what doctor says.
I just wonder that IF it was a bug I thought I would be sick all the time - and for that long ???
Yes Victoria I know that sometimes glutenintolerance canŽt be seen in the bloodwork.
Yesterday I stayed awy from all grains except some very cooked rice in vealstock and I felt almost ok untill I had some chocolate at a meeting at school -30 minutes later I felt awfull. I looked at the package and it turned out it contained wheat gluten- I always (normally) eat only pure high quality chocolate -so I never concidered that chocolate could contain wheat ?!

Well I keep another day grainfree/gluten - and then saturday/sunday try out whole spelt and oats again.
I would absolutely hate to be Gluten intolent- but as long as it is not dairy I can survive.

Posted by: NewHampshireGirl, Friday, September 8, 2006, 2:09pm; Reply: 7
Oh, yes, Henriette!  We have to have our dairy!!  Yum!

I'm sorry you are going through this trial.  It is quite mind consuming, isn't it? I know when something is wrong with me I think about it day and night and am constantly trying to figure it out.  Getting a headache from all that thinking is worth it if you can come up with a solution to the problem.  I guess we're all problem solvers here on the forum.  We're just that type of people, wouldn't you say.  This forum is a great help, really.
8)
Posted by: Henriette Bsec, Friday, September 8, 2006, 6:11pm; Reply: 8
Quoted from New_Hampshire_Girl
 I guess we're all problem solvers here on the forum.  We're just that type of people, wouldn't you say.  This forum is a great help, really.
8)


You are so right there

Thanks NHG  :K)
Posted by: NewHampshireGirl, Friday, September 8, 2006, 6:47pm; Reply: 9
You're welcome, Henriette.  I truly am sorry you're having this problem.  If it is celiac, I would be surprised.  I just didn't think Bs have that problem and that it is rare.  I could be soooo wrong!  :)
Posted by: Victoria, Friday, September 8, 2006, 7:59pm; Reply: 10
Quoted from New_Hampshire_Girl
You're welcome, Henriette.  I truly am sorry you're having this problem.  If it is celiac, I would be surprised.  I just didn't think Bs have that problem and that it is rare.  I could be soooo wrong!  :)


I think that people can be intolerant of gluten and still not be celiac.  And, for example, some people can eat spelt and just not wheat.  Or others can eat oats but not spelt and wheat.  Some can eat the gluten grains but only sprouted.  

It's that detective work again, finding out about what our own bodies feel the best with.
Posted by: Kristin, Friday, September 8, 2006, 10:11pm; Reply: 11
So sorry you are having health difficulties, Henriette.  :(

I have no words of advice nor helpful hints to offer except that I know when I get off balance, sometimes it can take several weeks to regain that balance back again... especially if the imbalance occurs in my physical well being. I wonder if the week or 2 of grain avoids threw your system into a tizzy and it is taking awhile to work that through. I have had this happen to me with dairy and I had to avoid all dairy (except yogurt) for awhile to give my system a rest. Once things were back in balalnce again, dairy no longer bothered me like it had just a few weeks prior.

Hope you feel back to your normal self soon!!!  :K) :K) :K)
Posted by: Henriette Bsec, Saturday, September 9, 2006, 8:34am; Reply: 12
Thanks everybody for your concerns.

Kristin it is intersting to read about dairy  and your reaction to it.

All theese week I have felt that dairy was OK -except milk.......
I was abit freaked out - Oh no not the dairy - untill my mum told me that is was very common that people who normally had no problem with the lactose in milk could react to it when their bowels was out of balance.
Would explain why my glass of milk gave me severe problems -while cream on stewed apples , cheese and yoghurt felt fine.
All are much lower in lactose
Like 1 large glass of milk would give me more than 12 grams of lactose-
1 large serving of full fat cheese: 0,025 grams
1 small serving of yoghurt ( 100 gram) 2,42 grams
or 100 grams cream ( a lot ) would give me 2,9 gram.

Well IŽll try to eat some gluten from oats and spelt theese days.
AND hope the doctor finds nothing serious on monday - just unbalance / stress.....
I am a bit curious to see if he will test my blood or just try to calm me down
- I have never seen him- he is new and ( I see a doctor every 2 years or less )
- and doctors in Denmark are not good when it comes to issues about digestion etc
- if they can ask people just to take medication they are happy !
But I want to be 100 % sure that I havnŽt got cancer or anything serious
If they can rule things like that out -I can start my detective work to find out what woorks for me
and get back on track again.
Posted by: Victoria, Saturday, September 9, 2006, 5:58pm; Reply: 13
It's possible to develop food sensitivities as we get older, and they keep us on our toes.

I used to eat very large amounts of dairy, especially a LOT of dairy fat.  I gradually became intolerant of regular milk, and don't drink it anymore.  It gives me pain in my gut.  However, I still eat plenty of full-fat yogurt, which not only causes me no problems, but helps my digestion.

Now that I think about it, I had to stop drinking milk at the same time I was forced by my gut to eliminate all gluten containing grains.  Interesting connection.  Actually it was my doctor who pointed out to me that those two food intolerences often appear together, and he encouraged me to avoid them for a month to see how I felt.  He said that cultured dairy is partially digested already.

Normally, I would never think of discussing this with an MD, because they usually aren't much help in that department, but I was fortunate in finding this doctor.  He's a keeper!

ummm......did I mention that cow's milk doesn't work for me anymore?  It has to be sheep or goat dairy.  yogurt, feta, chevrie.....
Posted by: NewHampshireGirl, Saturday, September 9, 2006, 6:29pm; Reply: 14
That's very interesting about cultured milk.  Actually, I prefer yogurt to a glass of milk so I'm going to keep this in mind.  I love buttermilk, too, but usually stay away from it because I'm afraid I'll rack up too many calories guzzling it down.  :o ;D
Posted by: Victoria, Saturday, September 9, 2006, 7:12pm; Reply: 15
Ah, buttermilk!  I drank a ton of it, growing up in the country, and next door to my grandmother's beloved jersey cow.  We had the blessing of Grandmom's hand churned butter, fresh buttermilk, and not to forget, fresh milk and cream.  Milk never bothered me in those days, but years later when the cow died and my mother bought store milk for the first time, I thought I'd been poisoned!  

It all went downhill from there, with the addition of all kinds of packaged foods that were considered great blessings for those women of my mother's generation who had lived through the depression.
Posted by: Henriette Bsec, Saturday, September 9, 2006, 7:35pm; Reply: 16
Buttermilk is lovely :-D
I prefer it in the summer
however BTD wise buttermilk is only neutral -

I can get real buttermilk- not cultured skimmed milk here and I just love it  when I bake.

Victoria
We used to get milk from the local farmer fat yellow jersey milk-
if I lived a bit closer to him I would concider that again- how wonderfull the cream tasted
- but I am lucky that I live in a B friendly land with several good organic dairies who has not sold out on the principles like a lot of american dairies seem to do.
Posted by: RedLilac, Sunday, September 10, 2006, 2:42pm; Reply: 17
I have been on the road lots this summer, in August I visited 10 sites in IL, IN, OH, MI, WI & MN.  Next moth I add ND to the list.  In Indiana I stopped to eat at an Amish Restaurant and was sick to my stomach the whole drive to Columbus, OH with many potty stops along the way because of loose stools.  In their store they sold the same brand Amish noodles I buy at home.  I usually buy the Spelt when I can find it, but in-between I use the white noodles.  My son read the package and informed me that it was made with well water, so maybe I got sick from the water with my meal.  I am a big fan of UNI bars since I’m on the road so much.  I didn’t order them today with my order because now they give me cramps and my stomach is upset for hours after eating one.

So Henriette, I think what I’m trying to say is that when you eat something that your body doesn’t like, you might have to be more strict with your diet until your system cleans it out.  I still have œ box of blueberry and cherry UNI bars, I’m hoping to be able to give them a try again in the future.
Posted by: Henriette Bsec, Sunday, September 10, 2006, 3:59pm; Reply: 18
Quoted from Arlene


So Henriette, I think what I’m trying to say is that when you eat something that your body doesn’t like, you might have to be more strict with your diet until your system cleans it out. .


I hope you are right- i would hate to give up speltflour ( and oats)
Posted by: Victoria, Sunday, September 10, 2006, 5:02pm; Reply: 19
There are SO many kinds of viruses in our world, and sometimes we just get attacked by one of them for a while.  Sometimes we don't get sick enough to really know that we have a virus, but instead, we blame certain foods for the problem.  Just maybe, the foods are not the original problem (well, WHEAT, mabe!!  :-) ) but are just aggrevating a sensitive digestive tract caused by a "bug".
Posted by: Henriette Bsec, Monday, September 18, 2006, 10:46am; Reply: 20
Good news (dance)
I am only:-)temporary  intolerent to lactose and gluten.
Tests at the doctor showed that I had got some kind of infection in my guts- therefore I reacted VERY mild to 1 of the tests for gluten- but not to the other tests. He thought that because I was SO HEALTHY - that I might not have realised that I was sick- So you were right Victoria :-D

Good thing was that I was tested from A to Z and he was so impressed with my health :-D Liver, kidney, colestrerol, iron, hormones -you name it was good-
and then he said an interesting thing: You must be eathing very pure food- because you show no reaction to any allergies:

Well thanks to 7 years of B diet :-D

NOW the Q?

How do I rebuild my guts ?

My thoughts :
Mainly beneficials ( except the glutenrich and lactoserich ones)
Still no gluten from bread  and no lactose from drinking milk- I couldnŽt deal with being permanent lactoseintolerent!  so IŽll stick to my small ammounts of yoghurt and cream untill I feel really good.
I suppose Ghee ?
No coffee- just a little bit of green tea again- since I miss it !
Probiotics !- how much ?

What else ?
Is it safe to get my clorella again ?- start slow - or should I wait untill my gut is in balance ?

What about my vitamins - any thoughts ?

Only unexpected thing was a dry patch on my arm- ringworm >:(( a blody fungus) so now I have to check my old cat - my young one is fine ! [color=purple][/color]
Posted by: peeches, Monday, September 18, 2006, 11:27am; Reply: 21


Henriette,

I had the opportunity to hear Cynthia Rudert, M.D speak on celiac.  If you continue to have stomach issues you need probiotic every day.  She recommends Culturelle, but I use Polyflora B.  If still problems she recommends pancreatic enzymes, as celiac can affect pancreas.

Linda J.
Posted by: 312 (Guest), Monday, September 18, 2006, 1:44pm; Reply: 22
Can B's use some glutamine, it is supposed to be very healing for the lining of the intestine, it's in whey, an avoid
for o's but maybe not b's......hope you feel better soon. ;)
Posted by: Don, Monday, September 18, 2006, 2:00pm; Reply: 23
How about using Deflect B to help with both the bacteria and healing.

http://www.dadamo.com/bloggers/nap/archives/00000010.htm
Posted by: Kristin, Monday, September 18, 2006, 2:02pm; Reply: 24
Yea!!! Great news Henriette!!!


And a nice confirmation on how well the BTD is working for you!!


:K)


I do well on liguid acidophilus to help rebuild flora... but double check with ingredients on the label. Of course as a B you have the benefit of cultured dairy to aid you there. Can you get Polyflora B there? Also excellent...
Posted by: Henriette Bsec, Monday, September 18, 2006, 2:06pm; Reply: 25
Thanks for your advice
I canŽt afford the deflect and polyflora at the moment- next to months are VERY tough economically- and I choose good beneficial food over pills.
but I can get acidophillus in tablets- they look ok to me so IŽll get some of theese.
Posted by: Victoria, Monday, September 18, 2006, 4:12pm; Reply: 26
Henriette,
Ghee will help you instead of hurt you.  The Butyrate acid in it helps to heal intestinal lining, and you can make your own ghee!  

I say yes on the green tea, if you don't steep it too long (releasing too much tannins, which can irritate sensitive guts).  It is a great antioxidant, as well as a mild mood booster.

Yogurt seems good also.  I would stay away from the straight milk, for now.
Posted by: Henriette Bsec, Monday, September 18, 2006, 4:24pm; Reply: 27
Quoted from Victoria
Henriette,
Ghee will help you instead of hurt you.  The Butyrate acid in it helps to heal intestinal lining, and you can make your own ghee!  

I say yes on the green tea, if you don't steep it too long (releasing too much tannins, which can irritate sensitive guts).  It is a great antioxidant, as well as a mild mood booster.

Yogurt seems good also.  I would stay away from the straight milk, for now.

My thinking as well :-D
Actually I made some rice/ veal stock soup one evening when my tummy hurted like hell- and somehow I felt like adding a lot of ghee to it - and it healed so good :-D
Posted by: Luana, Thursday, September 21, 2006, 8:55pm; Reply: 28
I just read the previous posts and realize that to know secretor status is very important which I don't know mine.  

However, being on the diet for almost a year now, I can say that it has helped to heal my body in many different ways.   I lost weight which was a good thing.  My sinuses improved.  My gut is still healing however.  But when I go off the Ghee and the probiotics, I do notice a difference.

It's great to read about others of the same blood type and see what works.  Goat milk works for me as opposed to cow's as well as goat feta.  I found that quite interesting since I grew up on whole wheat and cow's milk.

Luana
Posted by: italybound, Friday, September 22, 2006, 7:13am; Reply: 29
Henriette, have you thought of doing a parasite cleanse? I did one when I first started BTD and I felt it did alot of good. Might want to wait until things get a little straightened out if interested in doing that. As I'm sure you know parasites can cause major problems.  Is time for me to do another actually.
Interesting what your tests for celiac show. Since you only ate oats and spelt, I'm  curious if you'd eaten wheat, if there would've been a different outcome. Wondering because wheat is so genetically modified and also wondering if the gluten is much more predominent in wheat than say oats or spelt. Or if gluten is gluten no matter. Just wondering outloud here.
I do know you have to consume gluten to get an accurate reading. I believe I read it has to be consumed every day but for how long I don't know. Or if that is even true. A small amount is enough. I must get the other celiac tests done, as the dr's office nor the lab could find a code for AMA and something else, I think they were.  ::)
Posted by: Henriette Bsec, Friday, September 22, 2006, 8:05am; Reply: 30
Hi Luana and welcome
Yes secretor matters :-D

IB
What is a parasite cleanse ?

About the gluten: Gluten ammount in spelt is actually higher than in wheat ! - but wheat can as all of us know do a lot of damage for differnt reasons. It is not the same gluten in oats as in wheat- but most oats are polluted by the wheatgluten- that is why most gI need to saty away from oats as well. Here the doctors recommend that grown ups with GI under control - that they try a special clean oats from Sweeden - the mojority can handle that with no problems and some finds that they can handle ordinary oats as well- as long as they only use small amounts and their diet is othervice clean. It takes a minimum of 1 month to be clean - and in most cases you can first see a result after 2 months gf diet. They check to see if the numbers go down - if you follow the diet well.
Doc that beacuse I had only been gf in 4-5 days and then got 2 days with lots of gluten just prior to the test the result was safe enough! however as he stated some people canŽt handle glutenrich food anyhow - they need to do a test from the gut.
Well my abilty to handle gluten is coming back :-D
- last 2 days I have had small amounts of spelt flour and I feel fine- no pains after 1/2 a bisquit or the courgette- cake I ate yesterday or the cake I had to day on my midmorning snack to celebrate that I feel fine, I am off school, the sun is shining and it is hot 72 F ( more than usual)- and it is Friday ;-D
Next week IŽll try a glass of milk- I am getting tired of only yoghurt, cream, ghee and ricemilk....


Posted by: italybound, Friday, September 22, 2006, 8:17am; Reply: 31
HB, glad you are feeling so much better!!!  
A parasite cleanse is a cleanse to rid your body of parasites. Your bowels should be moving well to do this however. A lot of people think they could only have parasites if they've been to a third world country! Well, it's almost that bad.  ;)  That is unfortunately far from the truth. Parasites hitch a ride on many many things. From what I've read, we all have some kind of parasites. Parasites get in our joints causing many problems. They feed off our nutrients leaving us deficient. Nasty nasty bugars. If interested, let me know. I'll tell you what I used. One word of caution - anyone who has arthritis probs, one of the ingred in most parasite cleanses (I think it's wormwood), may have a prob. My SIL did this cleanse and had a severe flareup of arthritis. She however has ataxia and did not tell the HFS gal about that and her other health probs, as I 'instructed' her to.  :'(          Anyway, IMHO, a parasite cleanse is a good thing for everyone to do now and again, as long as you can tolerate the ingreds.  :)
Posted by: Henriette Bsec, Friday, September 22, 2006, 8:42am; Reply: 32
Thanks I think IŽll look at it later - but please tell me the one you used
- I might not be able to get exactly the same- so I am interested in the ingredients.
I just want to make sure that my guts are 100 % in balance before I do any thing like it :-D
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