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Posted by: Alyona, Sunday, July 9, 2006, 4:53pm
I'd love to render support to my friend, so am looking for some non-conventional way for treating sarcoidosis.
You see, corticosteroids the usual doctors have prescribed him are of little/no  help.

For now he is also  taking pain-killers since the illness is in aggravation stage. Docs are sending him for myriads for analyses, shaking then their heads, referring him to their fellow docs, and, and  those in their turn forward him to others, and so on...;thus the quest goes on without any success.

Still I believe even such a rare disease can be cured and so am open to the recommendations of knowledgeable and experienced ppl.
Posted by: resting, Sunday, July 9, 2006, 6:24pm; Reply: 1
Hi Alyona,

Russia is a huge place so my initial advice may seem strange.  It is not too important that YOU think there is a cure ... there may/may not be!  What is most important though is that your friend thinks that there is a different path that can yield positive results ... and it doesn't even need to be a full cure.  

In finding help, the services of a university medical professor is a definite plus.  These people often are aware of different approaches worldwide.  And unlike many conventional doctors will be willing to try novel (but medically sound) approaches.

The kinds of things that MAY help can also be very costly - so that has to be part of the approach.  To start though, it may prove helpful to enlist the aid of someone like our Isa in Switzerland who uses a Vega-tester (from Germany) and perhaps someone familiar with magnetic therapy; or perhaps, a very good practitioner of TCM (Traditional Chinese Medicine).  Most of these people do not categorize an illness in the Western medical framework and are free to explore other avenues that an individual may express.

good luck!

Posted by: Lola, Sunday, July 9, 2006, 9:17pm; Reply: 2
Posted by: Alyona, Monday, July 10, 2006, 5:36pm; Reply: 3
Quoted from John_McDonell_O+

It is not too important that YOU think there is a cure ... there may/may not be!  What is most important though is that your friend thinks that there is a different path that can yield positive results

Hello, John,
From what he tells me/others, he does think there ARE  those roads not taken which can bring about convalescence.
BUT:  to declare is by far not the same as to believe.
And actually from I really see  he's gradually losing faith in effectiveness of  those paths. So I'm willing to help him regain both faith and health.

Quoted from John_McDonell_O+
like our Isa in Switzerland who uses a Vega-tester

What is Vega-tester? Its functions? Availability? Any cases, success stories?

Quoted from John_McDonell_O+
or perhaps, a very good practitioner of TCM (Traditional Chinese Medicine).  

Exactly who I'm seeking now. Unfortunately it's hard in my part of the world to find "a very good practitioner of TCM";, and what's more difficult is to define he's really that good as been advertised.

Lola, thank You for the link. Pity recommendations are tailored to A-type, but I believe in this case he could just follow Immune Booster Protocol for his own blood type, O that is.

Interested in melatonin prescriptions. Do You have any other trustworthy sources I can study to learn more of its effects, doses?

Posted by: resting, Monday, July 10, 2006, 6:30pm; Reply: 4
Hi Alyona,

when you said Russia as where you live, I hoped it would be Western Russia where most of your population is living.  It borders on Germany where the Vega-tester and most of the advanced practitioners of magnetic therapy reside.  If you wish to know more about the Vega-tester click on Tomatilla I.'s name ... her name is Isa Manuella ... then pm her ... she could easily lead you to the firm that makes them ... and they could tell you of a practitioner near you.

I suppose what you should know, is that this machine can help find the supplements that are the best ones for him as an individual, and it does not matter what name any disease has.  [There are other devices like the e-Libra at that can make a homeopathic remedy, suited to the individual patient not the name of his disease.  He does not even have to travel ... only send a hair sample ... cost was $185.00 but I do not know what it is now.]

These may help with progress because improvement are much quicker than guessing all the time.  Please see if Boswellia is also good for 0's.  This appears to be a key herb ... note the people who tested Boswellia were not blood-typed.  So it may be a big help to your friend also.

Posted by: Alyona, Tuesday, July 11, 2006, 11:08am; Reply: 5
Thx for the roadmap, John;) I'm heading to Germany:)

Agree, I'll also suggest him  taking Boswelia: found out that apart from anti-inflammotary effects, this herb in itself is quite a wealth of healing properties (reduces  body weight even;D). Thus it won't harm anyway.

John, do You know anything in particular about melatonin, its long-term effects, anecdotal evidences?  
As far as I'm a bit apprehesnive about any type of hormones. Have learnt that "In individuals with auto-immune disorders, there is concern that melatonin supplementation may exacerbate symptoms due to stimulation of the immune system".  So, You see, it might backfire :-/
Posted by: resting, Tuesday, July 11, 2006, 11:44am; Reply: 6
Hi Alyona,

melatonin is the hormone released by the pineal gland to induce sleep.  One of its primary targets is the thymus gland (of the immune system) to release the hormone thymosin.  [This is why healing is best-at-night.]  However, there is definitely a debate about whether oral supplements will over time reduce pineal-melatonin.  Although folks do get more sleep, thymosin production does not seem to happen with oral-melatonin.

There are two things that should help here .... a magnetic mattress to induce the pineal to produce more melatonin at ; and, (2) the supplement ProBoost from to increase the effectiveness of T-cells.

Posted by: Alyona, Tuesday, July 11, 2006, 2:09pm; Reply: 7
Still speaking of oral supplements what is the daily advisable dose for this particular case?
I've read at the link Lola suggested the patients with sarcodosis were treated with 20 mg melatonin, later reduced to 10 mg. Does this mean that 20 mg is an average start-up dose, which won't cause adverse effects?
Posted by: resting, Tuesday, July 11, 2006, 3:35pm; Reply: 8
Hi Alyona,

there is no 'standard' dose for melatonin ... but 3.0 - 5.0mg seems to be the usual range.  Some people only use 0.5mg [I needed 10.0mg to have any effect] ... but it is likely one of the safest hormones and I have not heard of any side-effects from its use.

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