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Posted by: italybound, Saturday, June 4, 2005, 4:18am
Does anyone know how much fucus I should take to equal .088 mg. of Levoxyl? Thanks
Posted by: Wulf, Saturday, June 4, 2005, 5:26am; Reply: 1
Is your Levoxyl prescribed by your Doctor ?
Have you discussed with your Doctor that you intend to stop taking it ?

I don't think you can just substitute one for the other.

Paul - Admin hat off.
Posted by: italybound, Saturday, June 4, 2005, 12:52pm; Reply: 2
Yes, it is prescribed and no I havent discussed it w/ him. I was unaware you could not substitute.
Posted by: 312 (Guest), Saturday, June 4, 2005, 8:32pm; Reply: 3
That's the same amount of thyroid I am on.  I had radioactive treatment for a nodule back before I knew about the btd.  But I am on synthroid.  The levoxyl
doesn't work for me, I end up with fatigue, depression and hair loss when I was
on levoxyl.  I think the synthroid stays in my system longer.  I hate having to
take it everyday, and wish there was a way to get off of it.  But I think that RAI
shrunk my gland down to a very small remnant.  Would love to hear other's
stories on this, also.
Posted by: Cheryl_O_Blogger, Saturday, June 4, 2005, 8:48pm; Reply: 4
Fucus provides iodine, but has other useful properties in managing avoid lectins.  If your thyroid is really gone, fucus isn't going to bring it back.  If you have poor function because of insufficient iodine, it may help.  Ask your doctor if it's OK to try fucus along with your medication.  It might be possible to reduce your dose at least, but you need to be under a doctor's supervision and monitor thryoid function.  I had borderline high TSH, but not requiring synthroid yet.  Bladderwrack and/or kelp supplements brought my TSH farther down into the normal range.

I tend to forget about this, but Fucus would still be useful in managing lectins, probably more important than being an iodine source, but my initial concern was the thyroid, so keep forgetting about all the other benefits.  With an irradiated or otherwise nonfunctional thyroid would there be any risk from taking the iodine in the form of fucus.  Iodine is normally preferentially concentrated in the thryoid.  Is it unhealthy if distributed to the rest of the body in the absence of functioning thyroid?  I doubt it since Deflect O is not contraindicated.  Fucus is one component of Deflect O.
Posted by: NewHampshireGirl, Sunday, June 5, 2005, 12:53am; Reply: 5
Paulam, I had my thyroid removed last year because of papillary cancer.  This was followed up in a few months by RAI.  I am now taking 0.150 mcg of Synthroid.  I simply don't know about taking fucus so cannot answer your question about it.  I have decided I am not going to chance anything which might interfere with the action of the Synthroid so if I'm not sure about something then I don't take it.  Initially, I was taking 0.125 mcg of Synthroid but was feeling fatigued.  Now, I feel great.   8)

Did you have a body scan after the RAI treatment?  I did and I shall have a followup one this coming August, a year later. :P 8)
Posted by: italybound, Sunday, June 5, 2005, 2:57am; Reply: 6
Quoted from cherylhcmba
Fucus provides iodine, but has other useful properties in managing avoid lectins.  If your thyroid is really gone, fucus isn't going to bring it back.  If you have poor function because of insufficient iodine, it may help.  

Cheryl, good info on the fucus. I am wondering, however, how one would know if the thyroid is really gone or if you just have poor function? Does the TSH  test answer this question?
Posted by: NewHampshireGirl, Sunday, June 5, 2005, 1:02pm; Reply: 7
Sorry, made a mistake in my message above.  I'm taking 125 mcg of Synthroid (not 0.125 mcg).  :B 8)
Posted by: 312 (Guest), Sunday, June 5, 2005, 5:32pm; Reply: 8
Well, I usually see the endo md in the beginning of each year.  Last Feb. she did
an ultrasound and sort of showed it to me right there in the examination room.
She said my thryoid was "tiny".  I honestly don't know whether it's shrunk for good.
(Reminds me of Honey I Shrunk the Kids), anyway, I know that off the meds, I have
hypo symptoms that are pretty disturbing.  I really feel for anyone having thyroid
problems, as they can make you seem like you are having "mental" problems.  I
think it's hard for someone who has a normal functioning thyroid to relate to.  
I would think that the btd is a good preventitive for those with thyroid problems in
the family.  Wish I knew about it way back when.
Posted by: NewHampshireGirl, Sunday, June 5, 2005, 8:27pm; Reply: 9
Paulam, did you have a biopsy of that nodule?  I'm just curious as to why you had RAI treatment.  I hope you don't mind my asking. ??) 8)
Posted by: Jane, Monday, June 6, 2005, 3:20pm; Reply: 10
I had my thyroid out in 1996.  I had a very very small papillary microcarcinoma, follicular variant.  They took the whole thyroid because I had a history of having radiation for tonsilitis when I was a baby.  I also had a parathyroid adenoma.  
I didn't have RAI after the surgery because the tumor was so tiny and encapsulated.

I was on suppressive doses of synthroid for years.  I changed Endos about a year and a half ago because my "world famous" Dr. wouldn't even discuss some of my questions with me.  I wanted to try a mix of T4 and T3 and he just said no.
I'm currently taking a compounded T3 and levothroid.  I switched from synthroid because there are fillers in synthroid (dyes, lactose, etc.) that I thought might be bothering me.  The 50 mcg dose of levothroid is dye I take 3 some days, 2 others.  I thought I was doing pretty well, only complaints had to do with some sleep problems, being tired, etc.  A few weeks ago I discovered a lump.  I had an ultrasound which shows that there is something there and now I'm seeing a thyroid cancer specialist at Mass General as soon as I can get in for a biopsy.  As of now, that's not until the 23rd.  
Posted by: Jane, Monday, June 6, 2005, 3:33pm; Reply: 11
I meant to add that I have been taking Deflect for several years.  I ususally take a couple in the morning and sometimes another one at night.  I hope it's not affecting my tests!
Posted by: 312 (Guest), Monday, June 6, 2005, 7:24pm; Reply: 12
No, I don't mind talking about it, I had it needle biopsied very early on, it was
found after the birth of my last child, which was in '90.  I guess early on I was
on a small amount of thyroid meds to try and suppress the nodule.  But then my
md thought I was going hyper.  She sent me to the endo, who did a rai scan, saw
nodule(s) and wanted to treat me with radioactive iodine.  I guess we could have
opted surgery, but for a hot nodule, not cancerous, I didn't want surgery.  I really
don't remember what year they finally did the RAI, but it was several years after
finding the nodule and trying to suppress it.   For some reason with what I had read,
I thought that this treatment would not necessarily make me hypo, but I think it
probably did.  I didn't take my meds for almost 2 weeks recently (long story why)
and I felt awful, couldn't think straight, no energy, depressed.  So I guess that's
it.  I do believe that wheat probably was part of why I had problems, also adrenal
stress of having 5 kids in 7 years.   Also, my liver is not 100%, so that could also
be part of the picture.  But again the btd addresses all these organs if I would
just follow it.  I am doing pretty well now, have stopped the coffee, most wheat,
and now I need to up the exercise.  But it's been a long, slow road of trying to
become stronger again..... ;)
Posted by: NewHampshireGirl, Monday, June 6, 2005, 11:57pm; Reply: 13
Jane, let us know the diagnosis after your trip to Mass General.  I had my surgery and RAI at Dartmouth-Hitchcock in Lebanon, NH, last year and am very pleased with the doctors there.  Synthroid is the only med I take and am making sure I take enough so I don't feel fatigued.  I had a long talk with my physician here at home base and said I wanted good quality of life.  I asked about Armour and since it is unstable compared with Synthroid I shall stick to Synthroid.  I'm keeping him posted as to how I feel and whether or not I'm happy with my dosage.  We're on good terms that way and I feel I can say what I really feel and he will give me the straight scoop.

And, Paulam, don't be afraid to take your thyroid meds.  There are some things in life that are really necessary.  And, I'm one who questions everything!! ??) ;D  Thanks for telling us about your experiences.
Posted by: Jane, Tuesday, June 7, 2005, 6:06pm; Reply: 14
Thanks, NH Girl.  I will let you know what happens.  According to Mary Shoman's thyroid site, Armour isn't less stable, that's a falacy.  I'm sure this Endo will feel the same say though.  I had been taking synthroid since 1974, and took cytomel (T3) for about 12 years before that.  I've had just about every color they make synthroid in over the years.  The amount of Armour that I take is very very small, just enought to give me a little added T3 and T2, etc.  If you've never seen Ken Blanchard's book, "What Your Doctor May Not Tell You about Hypothyroidism:  A Simple Plan for Extraordinary Results,"  you might want to take a look at it.
If you are feeling good though, you must be doing something right.  
All my docs are telling me not to be too concerned but there's clearly something there.  Whatever it is, I'll have to deal with it.  
Posted by: NewHampshireGirl, Tuesday, June 7, 2005, 7:45pm; Reply: 15
My interpretation of what my MD said about Armour is that you get more of a good thing some days than on other days but in the long run it's probably okay.  It is the overall score anybody keeps tabs on anyway.  

I have not the experience you have with hypothyroidism and have taken Synthroid only since one year ago when the thyroid was removed because of papillary cancer.  I shall have a followup body scan, as I said, in August and this time they inject a little RAI to see if thyroid cells have indeed been killed.  The RAI treatment last September was the swallowing of 3 radioactive iodine pills and I was in a restricted room at the hospital for 3 days.  After that, I could come home but still had to sleep in a separate bedroom and stay away from family members for two more days as the amount of radiation lessened each day.  One week later I had what they called a body scan to see if the thyroid cells had been killed off.  The one this August will be a followup.  It was quite an experience last year, but painless as cancer goes.  I am hoping the scan in August proves to be benign.

Altogether, I find this discussion quite enlightening and I'm glad the subject was brought up.  :K) :) 8)
Posted by: Cheryl_O_Blogger, Tuesday, June 7, 2005, 7:56pm; Reply: 16
Quoted from pkarmeier

Cheryl, good info on the fucus. I am wondering, however, how one would know if the thyroid is really gone or if you just have poor function? Does the TSH  test answer this question?

If you've had drug treatment or radiation to kill an overactive thyroid you could be pretty sure that fucus wouldn't help bring that back.  However an abnormal TSH could mean your thyroid just isn't functioning properly.  I've had TSH normalize just using fucus. Sometimes abnormal TSH does mean the thryoid is lost through an autoimmunity problem, aging, etc.  I was lucky to catch mine at a borderline problem.  I wasn't on synthroid yet, so could give the fucus a try.  I think you'd have to work with your doctor if you're already taking thyroid replacement, synthetic or otherwise.

Sea salt and dietary seaweed are other sources of iodine, if fucus supplements are contraindicated.
Posted by: italybound, Tuesday, June 7, 2005, 10:19pm; Reply: 17
Thanks Cheryl, I am going to see my dr on the 23rd and am going to talk to him about this. Will stay on Levoxyl in the meantime. I have had no radiation or drug therapy for an overactive thyroid, mine is underactive.  I have, however, been on med for it for many years. Will see what the dr has to say.  :'(   I always think all dr's are going to poo-poo anything natural and most do. This dr is one of my favs, so maybe he'll do me good.  ;D
Posted by: Cheryl_O_Blogger, Tuesday, June 7, 2005, 10:56pm; Reply: 18
I concluded that I was simply deficient in iodine.  I'd avoided table salt for many years even though I have no blood pressure problems, if anything it's low.  Iodized salt is probably the main iodine source in the American diet.  I thought it would really have been a shame if I'd gone on hormones when I just had a nutritional deficiency.

My TSH went from about 5 to 1.9 after a few months on kelp, then bladderwrack tablets.  I switched to Deflect with a lower amount of fucus and my TSH was 3.1 last month, so mine really seems to respond to the dose of bladderwrack or fucus.  I've also been pretty irregular in taking the Deflect.  I'm sure at some point my thyroid will poop out, but I don't want to start on hormones until it's really necessary.
Posted by: italybound, Wednesday, June 8, 2005, 1:47am; Reply: 19
Quoted from cherylhcmba
I don't want to start on hormones until it's really necessary.

If I'd only known way back then what I know now...........

Posted by: kruise (Guest), Wednesday, June 8, 2005, 6:03am; Reply: 20
Hi everyone,
I have read with great interest all your information and different experiences with regard to your thyroid to what you have faced and are facing.  I think you are all totally awesome!
Tomorrow I am off to see a specialist for a sore throat/lump that I've had there for what seems like months.  When I first realised my sore throat was hanging around too long, I went to the docs who told me it was probably a virus because everything was find.  So I went away thinking it was just me being a bit run-down and I needed to take care.  Then I went back again, doc took blood tests and were all normal - apart from my Gilberts Syndrome.  So I went back after getting earaches and got them to a do a throat swab incase it was something they couldn't see!  Still normal.  So now I'm off to see the specialist.  I've been reading up on the internet and have a LOT of symptons of underactive thyroid - hypo.  Including waking up at night with pins & needles in my hand/numb hand etc.  Also thinking I was going insane because I'd forget whether I'd actually done something or not and just couldn't remember.  However, you do start naturally worrying that because nothing was picked up in my blood test that it could be a tumour.  What symptons etc did you guys have before you were diagnosed?  And for a novice like me starting out what do you suggest I ask them to check, check, double-check!   I've been doing the BTD for about a month - took a couple of weeks to get into it though.  Have been adding kelp seasoning to my food.  Also taking supplementals to help - one called Nutritonic with Bladderwrack, Carrogeen and kelp and the other called Thyronurse with deep ocean kelp, irish moss and bay laurel.  
Any help appreciated from you all.  
Posted by: italybound, Wednesday, June 8, 2005, 11:36am; Reply: 21
Quoted from kruise
I've been doing the BTD for about a month - took a couple of weeks to get into it though.  Have been adding kelp seasoning to my food.  Also taking supplementals to help - one called Nutritonic with Bladderwrack, Carrogeen and kelp and the other called Thyronurse with deep ocean kelp, irish moss and bay laurel.  
Any help appreciated from you all.  

kruise, is this "ingredient"  carrogeen or carrageenan? If it's the latter, it is an avoid for all food groups.
Being tired and run down is definitely a symptom of an underactive thyroid. Good for you for not stopping at the initial doctor's   "you're okay"  line.  With them, if it doesnt show up in blood work, xray, MRI or CT Scan,  you're okay or it's just your imagination. They either don't know it could be connected to what you're eating or they don't want YOU to know it. Either way, it's a lose/lose situation.
I have a sister-in-law who has had a sinus infection for 2-1/2 yrs. I'm trying to get her on the BTD. I think eventually she'll try it. At least the seed has been planted. She has been to every dr under the sun. Her husband keeps threatening to take her to Mayo Clinic. As she doesnt eat a lot of dairy, I suspect her problem may be from wheat, as she does eat alot of that. THAT seed has also been planted. :-)  She doesnt know her BT, so it's a bit hard to help her.

Posted by: debs, Wednesday, June 8, 2005, 3:23pm; Reply: 22
dont forget the spit test as those are symptoms of candida too. :K)
Posted by: italybound, Wednesday, June 8, 2005, 4:23pm; Reply: 23
debs, do you mean sinus infection is a sign of candida? I will mention it to her either way. Thanks
Posted by: 312 (Guest), Wednesday, June 8, 2005, 8:06pm; Reply: 24
My first symptoms of thyroid probs were found at a 6 week check up after my last
child was born,  that was 14 years ago.  Anyway, I was tired as usual, but the
doctor felt a small lump on one side of my neck, said it was probably my thyroid,
told me to go see my gp.  It took them a while to decide what was going on.  First
they put me on small amount of thyroid to try to suppress the lump, I had a biopsy,
which was negative for cancer.  The rest of my story is up above.  I forgot to mention that in the years since then, I did visit a naturopathic md who did a hair
analysis on me.  He found I had high mercury levels.  I had some old fillings removed, did a year of chelation.  My levels were still a bit high last time I was checked, but I didn't continue the chelation, it was long and expensive.  But the reason I mention this is that sometimes dental mercury is said to affect our thyroids,  but it could also be the great wheat consumption I indulged in pre btd.
Who really knows definitively what's going on?   Interesting to ponder though..... ;)
Posted by: jsgrierson (Guest), Wednesday, June 8, 2005, 9:35pm; Reply: 25
So grateful to have the above thread to refer to.
I've been on minimal thyroxine for about 3 years, always hoping that the BTD would'cure'me. However, suddenly, my TSH has elevated to where it was when I was first diagnosed with hypo, and the pins and needles are recurring. Apart from that I feel wonderful. But the worry is a worry!
Off to my first ever Endo specialist dr. shortly, and hope that he can educate me a bit. :Looks like it may be auto-immunity (after heavy stress five years ago)
From your stories above, it looks as though you can have extended treatment without destroying oneself!
Posted by: kruise (Guest), Thursday, June 9, 2005, 2:26am; Reply: 26
Quoted from pkarmeier

kruise, is this "ingredient"  carrogeen or carrageenan? If it's the latter, it is an avoid for all food groups.

It is actually spelt Carrageen on the bottle.  My understanding was this was a type of Irish seaweed.  Am I wrong?  

Excuse my ignorance also but what exactly is "chelation"?  I have never heard of it.  I do have a lot of old fillings that I should get replaced.  I have thought about it.  I have an appointment with a natropath on Friday as well - just to see what he thinks.  
I am starting to think that I do have more than just one thing specifically going on in my body.  I did the spit test for Candida and half floated and half glugged at the bottom.  So what does this mean?  I have it but it's not rampant?? lol.  What is the best course for trying to eliminate unwanted Candida naturally?  
On the other positive side from all this - I've been starting to get back into meditation after doing a course about 5 years ago and reading some really good books to help deal with the mental issues going on that might have caused this as well.
Haven't been to the specialist off there in a couple of hours ....
I've definiately eliminated all wheat and dairy from my diet currently, and do feel that is helping, but of course it's not an overnight fix.  Cheers,
Posted by: Lola, Thursday, June 9, 2005, 2:37am; Reply: 27
this is intresting on chelation kruise! )
Posted by: italybound, Thursday, June 9, 2005, 3:21pm; Reply: 28
kruise, I looked up carrageen at, results below:
Here is link for carrageenan:

It seems  they are the  same, which would be an avoid for O's.  As I don't see carrageen listed in the TYPEbas4, I don't know. It may be a neutral for now, but then again, it may be the same as carrageenan, an avoid. Maybe someone else will know the answer.  Sorry.
Posted by: kruise (Guest), Thursday, June 9, 2005, 11:11pm; Reply: 29
Yes it does seem that they are the same.  So this product I'm taking with the Carrageen isn't the best, I'll just finish the bottle and then stop using it.  

I have been referred to have a "Barium Swallow" done at the clinic from my specialist.  Has anyone had this procedure?  I guess it's painless but not sure about having to swallow that horrible Barium drink?!?!?  Any tips on coping with that.  Just when I feel like I've been doing so well looking after myself foodwise and now having to go and drink that toxic concoction.   ::)
Posted by: italybound, Thursday, June 9, 2005, 11:31pm; Reply: 30
kruise, carrageenan is in a lot of things, so if you're trying to be really compliant, be on the watch.  :)
The barium isn't all that bad. Could be a whole lot worse. Most places give you plenty of time to get it down. Just don't think about it too much ahead of time.  ;D      And yeah, WHO KNOWS what's in that stuff!!  :'(
Posted by: debs, Friday, June 10, 2005, 6:07am; Reply: 31
i had a barium done a few years ago.they give you teensy little pills to swallow with the barest minimum amount of water but not too bad though.then you were given  this barium meal drink.think of it like a thick milk shake.the whole procedur was ok but watch out when you get home for the multi directional splatterbottoms :o :P ;D
Posted by: italybound, Friday, June 10, 2005, 11:09am; Reply: 32
Quoted from debs
watch out when you get home for the multi directional splatterbottoms :o :P ;D

Splatterbottoms - Funny debs!!   ;D ;D

Posted by: Jane, Friday, June 24, 2005, 6:44pm; Reply: 33
Update on my lump:
I was at Mass General yesterday to see Gil Daniels.  He did several biopsies and doesn't feel looking at the fluid surrounding the lump that it's cancerous.  The results won't be in for a week but I'm feeling a little better about things.  It will still have to come out if for no other reason than they just can't seem to identify what it is.  It could be nothing more than a subaceous cyst or a cyst in a lymph node but it's best that it is removed.  It's definitely NOT scar tissue.
Mary Shoman's newsletter today had a piece about new tests for people that have had thyroid cancer.  Rather than having to go off thyroid meds for a while, you can have an injection of thyrogen and then a simple blood test detect the presence of thyroid cancer cells at a very early stage.  Daniels asked me if I'd had a test of thyroglobulin (which I hadn't).  I wish I'd seen the article first.  I would have specifically asked for it.

I'll know something more by the end of next week I hope.  Whatever surgery I will have to have won't be nearly as complicated as the parathyroid adenoma and total thyroidectomy I had in 1996.

I'm relieved even though I know I'll have to have some kind of procedure.

Posted by: Peppermint Twist, Friday, June 24, 2005, 7:31pm; Reply: 34
Quoted from Jane
Update on my lump:
...He did several biopsies and doesn't feel looking at the fluid surrounding the lump that it's cancerous.  Jane

Thank God.  We are due for some good news around here!  I don't want to jump the gun or anything but that is very encouraging indeed.  I mean, the man should know his fluids, right?  If he says it looks good, then let's take that and run with it!


Posted by: Jane, Friday, June 24, 2005, 8:52pm; Reply: 35
I resonded on T's board but I'll say thanks again here too.  I do feel much calmer (I was a nervous wreck yesterday and I don't even want to get into what I have been thinking about in the middle of the night).

Kids taking me out for my b'day tomorrow.  It's going to be in the mid to high 90s!!
I think it's time to open up a nice bottle of red wine!

Posted by: debs, Saturday, June 25, 2005, 5:42am; Reply: 36
i'm still waiting to get my results back.this is the hospital for you.I went in April for mammogram & was expecting to be seen again after mammogram as was told the results go back to the clinic.i waited for my appointment & nothing happened.i phoned the consultants secretary2 weeks ago she sais she'd look into it.never heard from her a week ago i phoned the clinic they said i'd been discharged.i said what do you mean discharged i've not even had my results back let alone a follow up appointment.they said i'd have to speak to the consultants secretary.i rang the secretary the following day who couldnt even find me for a while.she explained i wasnt down for an appt.they would have seen the results & basically dismissed me.she said i should go to my gp for results.i explained i was tols specifically that i would get a follow up appt & i had in fact already called my gp for results which they hadnt got.she said she ould get the results out & post them to my gp.
so far i'm still waiting
would seem to be the hospital think its benign.i remember the consultant before i had the mammogram seemed dismissive of it.i didnt particularly like his manner & found him to be dismissive,offhand,rude & a bit smug in a cocky sort of way(definitely not your INFJ  :)) "we see these sort of lum,ps all the time in women of your age.take evening primrose oil"
i wanted to go into the whys & wherefores of not taking EPO but couldnt remember suffice to say its avoid for type O.I think it would have been lost on him anyway.
so there it is...
Posted by: Lola, Saturday, June 25, 2005, 6:56pm; Reply: 37
how did you spend your birthday?? !
hope you had a grand time with your kids.)
Posted by: Jane, Monday, June 27, 2005, 5:47pm; Reply: 38
Thanks.  My son and his fiancee and my other son and my parents took me out to dinner.  It was kind of a fiasco.  My dad always finds something wrong and then he got into an argument with the waiter because he thought the waiter pocketed a $20 bill.  They were fresh from the ATM and my guess is that they just stuck together.  The waiter just stood there and got into an argument with my 86 year old father who always has to be in control.  I just wanted to hide under the table.  Actually I just walked out.  I thought they both handled it very poorly.  
My meal was very good though.  I had a very thick piece of swordfish with fresh veggies and saffron rice.  The salad was mesclun plus strawberries, almonds and feta with a little raspberry vinaigrette (figured a little vinegar wouldn't kill me on my b'day).  The boys had tried to find a flourless chocolate cake at Whole Foods but they were out so they got some tiramissou.  I just tasted the custard on top.  I did have some red wine.  
I'm anxious to get the results of the the biopsies and then just get this thing out!
Thanks for the birthday wishes!
Posted by: Lola, Monday, June 27, 2005, 10:03pm; Reply: 39
there s never a dull moment, is there?
Posted by: Kathy (Guest), Wednesday, June 29, 2005, 11:49pm; Reply: 40
Does anyone know if fucus spp. is as affective for Type "O" as Fucus vesiculosus?

Posted by: thevixxxen (Guest), Thursday, July 14, 2005, 11:22pm; Reply: 41
I just also had thyroid surgery in March. I am now on Synthroid (137 mg) daily.
I found a lump on my thyroid last year and when they went to remove it they found it was a cyst that could not be separated from the thyroid lobe- so they removed half of the thyroid with the cyst. I went rhough MANY strange feelings and symptoms cuz I started out hyper before the lump and went to hypo..
I was a freak! but am now finally getting stabilized. I started the BTD diet on a recommendation from a co-worker and have been on for 2 weeks today. I feel pretty darn good, I have to say- I need to drop the 20 lbs I gained from the hypo swing.
I am also taking a thyroid metabolizer supplement (all natural herbs, etc)
to help with the process. i would love to get off the synthroid and have my left side thyroid start funtioning enough to take over the task. I know it is possible so that is the goal.

Interesting info about the dental mercury...
Posted by: Lola, Thursday, July 14, 2005, 11:30pm; Reply: 42
excellent job vix!!! )
keep up that spirit!
Posted by: thevixxxen (Guest), Friday, July 15, 2005, 4:16am; Reply: 43
I sure appreciate the support- and the amount of expertise and information this site offers...very comforting to have the back up while I am in the process of awakening my health.
Posted by: lynn9965 (Guest), Wednesday, August 3, 2005, 7:34pm; Reply: 44
Hi everyone,
This is my first time writing to the message board. I have been told by my md that I have hyperparathyroid disease and that I may need to have an operation. I was wondering if anyone on the message board has/had this disease and if so did you try the BTD before undergoing the operation. I have calcium in my blood. My blood type is B+. Any advice would be helpful. I don't want to undergo this operation if I don't have to, if changing my diet would help. Thanks
Posted by: Lola, Wednesday, August 3, 2005, 8:06pm; Reply: 45
congratulations on your very first post and welcome!!
If you go to the top of the page and click on member centre and get yourself a nice avatar then we can all see what blood type you are and you won't have to type it each time you post.

changing your diet will work wonders!!

avoiding the wheat is a must, as well as all other avoids!
try the type A diet for at least 60 days,
paying especially close attention to the beneficial foods. It may not
influence deposits already in the soft tissues, but may very well cut down on
further deposits.
and with time will all be regulated.
Posted by: lynn9965 (Guest), Thursday, August 4, 2005, 9:32pm; Reply: 46
Thanks Lola for replying to my message! I am not sure if I am a secretor or a non-secretor, but I do have Dr. D'Adamo's books “Live Right For4 Your Type” and “Eat Right For4 Your Type”. I am using the Tier Two/secretor diet because the book said if you are suffering from a chronic disease to use the Tier Two diet system. I started the diet on Monday after finding out that I have calcium in my blood due to a high PTH level. The doctor told me the only alternative I have is to have the Parathyroid removed. I will give this diet a chance first.
Posted by: Don, Thursday, August 4, 2005, 10:15pm; Reply: 47
Lynn,  What about your magnesium level?  Since calcium and magnesium are related in the human body and type Bs do better with magnesium, I wonder if you are needing magnesium.
Posted by: lynn9965 (Guest), Thursday, August 4, 2005, 10:28pm; Reply: 48
Thanks for replying so quickly. I was taking calcium and magnesium suppliments. My doctor told me to stop taking the calcium suppliment, but I can continue to take the magnesium. I have been taking the magnesium for about a month now. My doctor did not say anything about my magnesium level, so I guess it's okay. I forgot to state earlier that I am eating the only the beneficial foods for the secretor/Tier Two diet plan.
Posted by: Don, Thursday, August 4, 2005, 10:44pm; Reply: 49
Do you understand how the Tier system works?

The Tier system is explained at:

An easy way for secretors only to think about it is:

From Best to Worst
1 = Tier 1 Beneficial
2 = Tier 2 Beneficial
3 = Neutral
4 = Tier 2 Avoid
5 = Tier 1 Avoid

If you are in good health and want a slightly less strict diet then
consider all Tier 2 avoid and beneficial items as neutral.

If you are more concerned about your health then consider Tier 2 avoid items
as avoids and off limits.  You should also be primarily eating Tier 1
beneficial items, but when you want something else then try to eat a Tier 2
beneficial versus a neutral.

Non-secretors just use the avoid, neutral, and beneficial item values as indicated and ignore the Tier 1 and 2 groupings.
Posted by: Lola, Friday, August 5, 2005, 12:33am; Reply: 50
use secretor tier I beneficials, also! )
Posted by: lynn9965 (Guest), Saturday, August 6, 2005, 3:51pm; Reply: 51
Thanks for the infomation, I guess I didn't fully understand the Tier plans. I overlooked the word add. Knowing this information will give me more foods to chose. :)
Posted by: Jane, Monday, August 8, 2005, 1:17pm; Reply: 52
Hyperparathyroidism is usually caused by a benign tumor of the parathyroid.  I had one in 1996 and had it removed.  I'm certainly not an expert but the danger is that when you have too much calcium in your blood it's because the tumor is causing it to leach out of the bones.  The surgery when I had it 9 1/2 years ago involved an overnight hospitalization. Removing one (people generally have 4 sometimes more parathyroids) is what is generally done.  One of the symptoms is extreme fatigue.  Afterwards, you have to take calcium with vitamin D and you can have symptoms associated with too little calcium (it's almost like you are electric - hard to explain).  My surgery was complicated by the fact that my thyroid was removed at the same time.  
Afterwards when the symptoms are regulated you should feel a whole lot more energized!
Good luck and if your surgeon tells you that you really need to have it out, you probably should.  Never hurts to get a second opinion though!
Posted by: lynn9965 (Guest), Tuesday, August 9, 2005, 11:29pm; Reply: 53
I will have a sonogram of my parathyroid/thyroid tomorrow; then on Tuesday of next week I will go to my doctor's office for a follow-up visit. More blood work will be done since I have been off the calcium supplements for a week; a surgeon suppose to come to talk with me on Tuesday also. I was aware of the tumor; I read a lot of information on the Internet. I will get a second opinion if I have to have the surgery
Posted by: Jane, Thursday, August 11, 2005, 3:13pm; Reply: 54
Good luck!  Let us know how things turn out.   You may find afterwards that it takes a while to stabilize the calcium.  It did for me.  The first few days, weeks (it's been a while so I don't remember everything) I literally had to chew TUMS nonstop.  I had to go for bloodtests frequently to check the calcium levels.  Even 9 1/2 years later, I'm extremely careful to take calcium with D everyday.  I take Cal-Mag- Zinc about 1500mg/day now.

Are you having this done at a major medical center by a surgeon that has done 100s of these?   Don't have it done by someone that does 1 or 2 a year!
Posted by: NewHampshireGirl, Thursday, August 11, 2005, 8:12pm; Reply: 55
Good advice, Jane, because I understand parathyroids are not always easy to find and you would definitely want a skilled surgeon.
Posted by: Jane, Thursday, August 11, 2005, 8:24pm; Reply: 56
That's my understanding too.  People usually have 4 but sometimes there are a lot more and still hard to find.  When I had my surgery, the HMO wanted me to have it at a community hospital but I stood my ground and had it at a major medical center by a woman surgeon who did them all the time.  

I finally have received what they are still calling preliminary results on my surgery last month.  I had a granuloma attached to some scar tissue from the original surgery which was attached to my windpipe.  So far (3+ weeks) the cultures on the granuloma are still negative (yay!).  I'm glad that I had it done at Mass General.  It was relatively painless and the recovery was very easy since I had it done with a local.
Posted by: NewHampshireGirl, Thursday, August 11, 2005, 9:09pm; Reply: 57
As an aside, I'm remembering that last year after my thyroid was removed and I had returned for a followup visit with my surgeon he happened to say that two of my parathyroids are gone, now, because he couldn't separate them out from my thyroid.  I gasped and said, Oh my gosh, do I have enough of them because that means I have only two left!!   He laughed and told me not to worry because one was actually enough.  Well, that made me laugh, too, because I had been so dramatic about it.  

So, that's my bit of humor for today  ;D ;D

Posted by: lynn9965 (Guest), Friday, August 12, 2005, 12:40am; Reply: 58
Thanks for the information/advise. I will talk to a surgeon on Tuesday, whoever does my surgery will have to be an expert (a surgeon who does 100's of this type of surgeries). I was reading on the internet about Minimal Parathyroid Surgery (The Minimally Invasive Technique Utilizing Intraoperative Nuclear Mapping is the way to go instead of the general surgery).
Posted by: Jane, Friday, August 12, 2005, 2:05pm; Reply: 59
I remember seeing something on that somewhere as well.  The issue usually is that the parathyroids are sometimes difficult to locate and are behind the thyroid.  Good luck and keep up updated!  

Where are you located?
Posted by: lynn9965 (Guest), Friday, August 12, 2005, 11:10pm; Reply: 60
I live in Maryland
Posted by: Jane, Monday, August 22, 2005, 7:49pm; Reply: 61
How are you?  I've been thinking about you!
Is your surgery scheduled?  
Posted by: lynn9965 (Guest), Saturday, August 27, 2005, 5:14pm; Reply: 62
I'm doing okay. I feel tired a lot/backaches/headaches/nauseous, but today I am feeling better than I have felt in weeks (I drank some chamomile tea last night, I've been taking cayenne pepper and kelp for about a week). I had a Sestamibi scan done on Wednesday to locate which parathyroid is hyperactive. My doctor should receive the results next week.

I am planning on having the surgery at UVA in Charlottesville, VA. I'm scheduled to have a consultation with the surgeon on 7 September. My doctor recommended a doctor at Washington Hospital Center in DC. I called her office, but she will not be available to see me until October 6 for a consultation. My calcium level is 13.5. So I don't think I should wait too long. :)
Posted by: Jane, Wednesday, August 31, 2005, 5:20pm; Reply: 63
I know you'll be glad to have the whole thing over and done with.  Charlottesville, I hear that is a beautiful place and I know that UVA has a good reputation.  I wish you the best.
I'm doing fine.  The surgeon cut over the previous scar but it really doesn't look that bad.  The first time around I had what looked like a pouch for a few months.  I wore a lot of scarves.  This time around I didn't need to do anything.
I'm very interested in hearing how things go.  If you ever want to talk, PM me and I'll get my number to you.
Posted by: lisajones2275 (Guest), Wednesday, August 31, 2005, 10:12pm; Reply: 64
Quoted from pkarmeier

Cheryl, good info on the fucus. I am wondering, however, how one would know if the thyroid is really gone or if you just have poor function? Does the TSH  test answer this question?

I don't feel like lab test are very accurate.  My mom had the papilary cancer and her labs had always been normal.  
My test were normal as well but i had my thyroid out in June.  I followed my thyroid by getting regular sonos and an uptake+scan.  It really helped me to follow it more closely with visuals and measurments.  I also don't think that every synthetic thing is bad.  some meds are good and people should think that there are also natural things that are bad too.  some times i think that some people go over the edge with the whole "natual" thing.  Some of both is good. :D
Posted by: NewHampshireGirl, Saturday, September 10, 2005, 8:29pm; Reply: 65
Lynn9965 how was your consultation?  Have you decided to have this done in Charlottesville or D.C.?

Thinking about you!  :K) :)
Posted by: lynn9965 (Guest), Monday, September 12, 2005, 6:13pm; Reply: 66
I had the consultation last Wednesday at UVA. The doctor confirmed what I saw on my Sestamibi scan; that I have a tumor on one of my right parathyroid glands. I am still planning on seeing the surgeon at Washington Hospital Center for a second opinion in October. I am scheduled for surgery at UVA on 16 November, he is so booked up for surgeries. When I talked to the surgeon at UVA he told me that he knows both doctors at WHC and in Florida. He told me both are highly skilled surgeons and they are an expert in their field. If the doctor at WHC can do my surgery before 16 November I will probably let her do the surgery. but I haven't made up my mind, my parents want me to have the surgery at UVA.

I have faith in God that He will either remove the tumor or He will help me to decide which of the two surgeons (UVA or WHC) I should allow to do the surgery.

Thank you for your concern and I hope that you are doing well!
Posted by: Jane, Monday, September 12, 2005, 7:32pm; Reply: 67
Thanks for keeping us in the loop.  I wish you the very best.
Posted by: NewHampshireGirl, Friday, September 16, 2005, 10:46pm; Reply: 68
Lynn 9965, thank you for keeping us up to date.   We shall pray for excellent results.  
New Hampshire Girl  :K)
Posted by: tishtish (Guest), Friday, September 30, 2005, 12:59pm; Reply: 69
I had my thyroid removed 33 years ago. Unfortunately the doctor who removed it did so without justification.  I know this because I made copies of my medical records due to all of my medical problems.  I took those records to another doctor years later, and his first question was, why did they remove your thyroid?  He advised me that it could have been taken care of just through meds, and probably been corrected.  If at all possible, I would not advise anyone to have theirs removed.  I was not put on syntheroid until a few years later, so now after reading the comments here, I'm wondering if maybe it wasn't all taken, because I hate the thought of having to take meds forever.  Once you've lost it, it's what you have to live with. I've tried taking fucus, but am not able to continue.  It make me feel too hyped(jumpy).  I've been in and out of the BTD for a few years now, and when I can stick to it, I can tell the difference in a major way. Bad habits are so hard to break...Test shows my TSH is normal, but would like a more natural way to address this.      
Posted by: Lola, Friday, September 30, 2005, 4:51pm; Reply: 70
sorry you had to go through this.......
but so glad you found BTD! )
Posted by: trish44, Monday, October 3, 2005, 11:54am; Reply: 71
I see these posts are getting old, but just now had time to browse.  I had a partial thyroidectomy in 1987, and spent over 15 years on Synthroid and a few more years on Armour.  Then in 2003 was diagnosed with Hodgkins, spent six months on chemo.  Early this year had my thyroid levels checked, and was told they were normal.  How can this be?  Could it have been the ten months on prednisone after the chemo?  I am greatly fatigued, sometimes depressed, and generally do not feel good.  I feel as though I need the supp.  Does anyone have a suggestion?  I would appreciate any thoughts.  Trish
Posted by: trish44, Monday, October 3, 2005, 12:01pm; Reply: 72
Forgot to mention that was off Armour from Nov. 03 all thru chemo and prednisone......
Posted by: NewHampshireGirl, Monday, October 3, 2005, 12:38pm; Reply: 73
Trish44 you have some important questions left unanswered.  My advice would be to make an appt. with your regular M.D. for an in-depth talk session.  Write down every big and little thing that concerns you and hash it out with your doctor.  Be firm with him about how you feel and ask him to help you maintain a better quality of life than the one you're having now.  Impress upon him how important this is to you because it is your life, no one else's.

It's simply not right that you should go day by day feeling not up to par and maybe depressed, just waiting for the night when you can sleep again, just to begin the cycle all over the next day.

Let us know what your plan of action is for the future.  We're concerned about you.  :K)
Posted by: italybound, Monday, October 3, 2005, 1:07pm; Reply: 74
tishtish and Jenny, you really need the T3 and T4 tests done on the thyroid. The TSH is not a TRUE indicator of how your thryoid is functioning.
Also, all of the questions you have, go to google and just type it in. It will bring up lots of things at which to look .  This is how I got alot of the info to help my mom. It just helped me to know where to look and for what to look. Along w/ all of you great people here and my naturopath and chiro. But google can be a wealth of information. I just googled yesterday on info for ataxia. Found a bunch of good stuff. :-)
Posted by: Jane, Monday, October 3, 2005, 1:31pm; Reply: 75
Try googling Mary Shoman and thyroid to find her site.  It has a wealth of information about all kinds of thyroid problems, including lists of questions to ask your doctor, a variety of theories with reference to treatment options.
Everyone is different and getting the right levels is important.  Also "normal" has been redefined within the past year or so and just getting what was a normal TSH may not be optimal for you.  Find an endocrinologist that is willing to at least listen to what you say.  You are a lot more than just a lab report!
I've tried all kinds of combinations.  Also things can change seasonally.  You may need more T4/T3 in the winter than you do in the summer.
Good luck and stay  in touch.
Posted by: italybound, Monday, October 3, 2005, 2:16pm; Reply: 76
Quoted from Jane
 Find an endocrinologist that is willing to at least listen to what you say.  You are a lot more than just a lab report!

Finding a doctor that will not only look at lab tests, but more importantly, listen to how you FEEL, is very important. I have read more and more about this aspect of getting thyroid levels under control. I used to have a website on which you could search for those dr's in your area. I'll look and see if I can find it. If I can, I'll post it.
I'm not sure why most Dr's only run TSH, maybe it's because of the ins. co., but it is not the right test/s to be running, from all I've read and been told.   I actually have some websites w/ that info too, if I can find them. :-)
Posted by: Jane, Monday, October 3, 2005, 2:54pm; Reply: 77
The list of docs is on Mary Shoman's site.
Posted by: trish44, Thursday, October 6, 2005, 9:41pm; Reply: 78
Thank you, I have made an appointment with a naturopath.  I am to take my temperature for a few days, to see if it is low.  I am anxious to talk with him about all of these issues.  I will post after seeing him next week, and I do so appreciate all of the support on this site!  Will be back soon!  Trish
Posted by: Lola, Thursday, October 6, 2005, 11:42pm; Reply: 79
good luck!! )
Posted by: slyparrot, Thursday, December 22, 2005, 9:18am; Reply: 80
Quoted Text
[/quote]tishtish and Jenny, you really need the T3 and T4 tests done on the thyroid. The TSH is not a TRUE indicator of how your thryoid is functioning. [quote]

So True!  My T3 and T4 levels are on the low normal side but so is my TSH!  My TSH was always on the high side until now, it's like my pituitary gland decided to take a vacation!  

Has anyone experienced their skin taking a longer time to heal on thyroid meds?  My skin used to be dryer and thicker and is better now but takes longer to heal from simple cuts and scratches.  

Has anyone tried WestThroid?  
Posted by: NewHampshireGirl, Thursday, December 22, 2005, 8:12pm; Reply: 81
Slyparrot, it's funny you should ask about Westhroid at this time.  Recently, after discussing Synthroid vs. Westhroid or Armour with my endocrinologist and complaining again about not being able to lose weight and telling her I am learning that many people lose weight on Westhroid I asked her to please switch me from Synthroid to Westhroid.  First, she wanted me to have a T3 drawn, which I did, and it came back normal but on the low side.  At that point she was very willing to switch me over to Westhroid.  

So, I have not had experience with Westhroid yet, but am eager to see how it works with me.  I had had a few symptoms I didn't appreciate on Synthroid, one was weight gain and another one that stands out is fuzzy thinking of words.  The blogger, Jean Bundschuh wrote blogs about Westhroid and that's what pushed me to research the area of porcine thyroid replacement.  I believe I'm going to be glad I did!
New Hampshire Girl  8)
Posted by: Jane, Thursday, December 22, 2005, 8:54pm; Reply: 82
Very interesting NH Girl!  If you find that the word recall improves, let us know.  That's one thing that I thought was just from getting older......the ability to pull up a word.  It comes eventually.
As I think I've said before, I took Synthroid for years, switched last year to Levothroid + a compounded T3 capsule.  I'll have to ask my endo about Westhroid and get his opinion.  My next appointment isn't for several months but maybe I'll give me a call after the holidays.

I'll be in NH a good part of next week skiing hopefully.
Posted by: NewHampshireGirl, Thursday, December 22, 2005, 10:53pm; Reply: 83
Yes, I do remember, Jane, that you were taking a compounded T3.  I'll see how the Westhroid works with me but it may take awhile to understand the results.

Have fun skiing in NH.  If you are going to be anywhere near Peterborough, please PM me and I'll give you my address.  What fun it would be to have tea together in this Christmas season.
New Hampshire Girl   :K) 8)
Posted by: Jane, Friday, December 23, 2005, 4:56pm; Reply: 84
Not near Peterborough.  I have a house at Loon.  I'd love to do it sometime though.  
Happy holidays!
Posted by: NewHampshireGirl, Friday, December 23, 2005, 7:14pm; Reply: 85
Loon!  A lovely place.   Okay, don't forget to let me know!
New Hampshire Girl  8) 8)
Posted by: italybound, Friday, December 23, 2005, 9:45pm; Reply: 86
I googled Westhroid and found some info on reading the book "Living Well w/ Hypothyroidism" by Mary J. Shomon, which I have, but have not read. I looked    throught just a few of the pages and I would highly recommend this book as a read for anyone w/ hypoglycemia. There is a definite connection between hypoglycemia and the adrenal glands, which I pretty much already knew, but was glad to have it brought to my attn again. Thanks to a gal I went to see re: interior decorating, I have found a doctor who, from what Ginger says, seems to be really "with it" in regards many things. She believes in the BTD. Enough said!! :-)
Posted by: slyparrot, Saturday, December 24, 2005, 1:06pm; Reply: 87
I started with just Levoxyl.  Then Levoxyl with Cytomel.  Then WestThroid.

The nasty side effects are gone but my energy level and concentration are a little lower with WestThroid when compared on the same diet.  

However, when I eat quinoa with dulse, the energy level and concentration sky rockets.  It's probably the dulse.  This is a new discovery for me.  I wonder if the iodine in dulse is affecting my thyroid!?!
Posted by: italybound, Saturday, December 24, 2005, 1:56pm; Reply: 88
Quoted from slyparrot
I wonder if the iodine in dulse is affecting my thyroid!?!

That is a good possibility. My naturopath puts his patients on liquid iodine for
thyroid. I tried it for  awhile, but couldn't remember to take it enough so went back to the pills. Easier to take w/ me.
Posted by: slyparrot, Friday, January 6, 2006, 7:41am; Reply: 89
My doc told me I have some thyroiditis going on too.  I thought it was just me, feeling hypo and hyper, but it's really there!  Now I have Synthroid to take with WestThroid because my T4 was low, when I'm hypo.  If I'm feeling hyper I skip it or take half but it doesn't happen often.  It's like little 3-4 day episodes that speeds me up and then disappears.  My anti-body was high so it's the most logical explanation.  Go figure, a thyroid roller-coaster!!!
Posted by: Lola, Saturday, January 7, 2006, 12:16am; Reply: 90
at least you know what s going on now, which is a good thing! )
Posted by: lynn9965 (Guest), Friday, January 13, 2006, 3:29am; Reply: 91
Hi everyone. I had my parathyroid surgery on 28 October at WHC instead of UVA. I am happy that I had the surgery at WHC because the doctors there are up on the new technologies. My surgery was almost two hours. My thyroid was okay, so I didn't have to have it removed or any nodes removed. I had very little pain after the surgery; the incision was about one inch wide and the stitches were in the inside. My doctor only put me on calcium with vitamin D. I'm almost back to normal; the only problems I have still is dealing with the osteoporosis, but I was told in about a year I should be okay as long as I exercise and take my calcium. I was off from work for two weeks.

I am trying my best to stick to my blood type diet so I can avoid something like this in the future
Posted by: Lola, Friday, January 13, 2006, 3:39am; Reply: 92
is it D3
)or 'cholecalciferol'?
Posted by: NewHampshireGirl, Friday, January 13, 2006, 4:28pm; Reply: 93
Lynn9965, so glad to have an update on you.  I'm very happy your surgery was so successful and nice to know your thyroid did not have to be removed in the process.   :K) 8)
Posted by: italybound, Monday, January 23, 2006, 5:35pm; Reply: 94
I just ran across this thyroid info today:
"Heme iron (iron from meat myoglobin) is 10 times more easily absorbed than elemental iron, or iron from non-meat sources. Iron absorption is decreased by the presence of phosphate, bicarbonate or bile acids. Thyroid medication and iron supplements should be taken at different times of the day."
It is at this site if you care to read more, altho this site is more about iron.
Posted by: Jane, Monday, January 23, 2006, 6:22pm; Reply: 95
I'm glad to hear that you are doing so well.  How much calcium did he put you on and are you taking presciption D or just a calcium supplement with D in it?   Just curious.  I was so "electric" after my surgery that I had to take TUMS all day long for a while and presciption D.
It's good that the thyroid was OK.  At least you won't have to deal with that.
Posted by: lynn9965 (Guest), Wednesday, January 25, 2006, 4:11pm; Reply: 96

I was told by my doctor to take a 1000 mg of calcium supplement with vitamin D in it. I started to increase the calcium a little because my back and legs still ache due to the osteoporosis. Monday night I started getting a tingling sensation in my toes, fingers and around my mouth; so I went to my PCP; she ordered blood work. I'm thinking my calcium level may be too low now. I will let you know what the results are. I probably need to take more calcium.
Posted by: Victoria, Wednesday, January 25, 2006, 5:22pm; Reply: 97
Please make sure that it is a form of calcium that is easily assimilated.   There are so many kinds out there.  Calcium Citrate has a good reputation among the kinds in the natural foods stores.  And I'm sure there are others.  
Posted by: Jane, Wednesday, January 25, 2006, 8:18pm; Reply: 98
I think (it's been 10 years) that the tingling might be a sure sign of not enough calcium.  There's even this thing where they check your reactions by tapping on your cheek.  I can't remember the name of it.  I just know that it was positive in me and that I needed more calcium.  The quickest way to get it into your bloodstream is to chew some TUMS.  They also put me on the prescription D.  If it gets really low you feel really strange.  I can't explain it.  I really did feel electric.  It was putting your fingers in a light socket.  One week after my surgery I got it into my head that I wanted to go back to work.  My body chemistry was still so messed up that just driving made me feel like I was having a panic attack.  Luckily it went away within a few weeks.  I'm a real nut case about making sure that I take my calcium though.
Hope that things continue to improve for you.
Posted by: Lola, Thursday, January 26, 2006, 1:37am; Reply: 99
plssssssssssssss don t take TUMS for calcium uptake!!!! )

hope this was before BTD!!!!! right?
Posted by: Jane, Thursday, January 26, 2006, 6:09pm; Reply: 100
Yes it was before BTD and it was IN THE HOSPITAL.  It was so low they just wanted me to get it into my system quickly.  I had to chew them constantly.  I was REALLY hypocalcemic.
Posted by: slyparrot, Sunday, January 29, 2006, 11:07am; Reply: 101

Ever since I've been on synthroid (almost a month), my face has been round.  I want my oval face back!  Hmmm.....I might stop taking it to see if synthroid is making me puffy!  Although I have to admit I feel more mentally balanced with it added to westthroid.  It probably has corn in it!
Posted by: slyparrot, Sunday, January 29, 2006, 11:37am; Reply: 102
I was right!  Look!

Synthroid Tablets Inactive Ingredients: Acacia, confectioner's sugar (contains cornstarch), lactose, magnesium stearate, povidone, and talc. The following are the color additives by tablet strength: 25 mcg: FD&C yellow No. 6; 50 mcg: None; 75 mcg: FD&C red No. 40, FD&C blue No. 2; 88 mcg: FD&C blue No. 1, FD&C yellow No. 6, D&C yellow No. 10; 100 mcg: D&C yellow No.10, FD&C yellow No. 6; 112 mcg: D&C red No. 27 & 30; 125 mcg: FD&C yellow No. 6, FD&C red No. 40, FD&C blue No. 1; 150 mcg: FD&C blue No. 2; 175 mcg: FD&C blue No. 1, D&C red No. 27 & 30; 200 mcg: FD&C red No. 40; 300 mcg: D&C yellow No. 10, FD&C yellow No. 6, FD&C blue No. 1.
Posted by: slyparrot, Sunday, January 29, 2006, 12:26pm; Reply: 103
These are the inactive ingredients to levothroid----no corn!  If my puffyness is coming from synthroid, I will ask about this one (Levothroid).  Any experiences?

Microcrystalline cellulose, calcium phosphate dibasic, povidone and magnesium stearate.

I thought this would help some people out!'s list of forbidden substances mentions checking on the ingredients in prescription medicines. Turns out one of the ingredients in Unithroid is ultimately wheat-based--which is why I started deteriorating after switching from Levothroid to Unithroid. Synthroid is gluten-free. Also, I will likely have to adjust my dose with time as my recovering system is better able to absorb the medicine. Thought you might be able to help others with this information.

To each his own.......everyone is different!
Posted by: Victoria, Sunday, January 29, 2006, 6:00pm; Reply: 104
My goodness!!

What a shame people have to suffer through such a long list of chemicals just to get a simple ingredient to help them.  That's a shame!!!

Why would you need dye in a pill?  What's the matter with them??!!!!!!!!!!!!!
Posted by: italybound, Sunday, January 29, 2006, 6:09pm; Reply: 105
Quoted from Victoria
Why would you need dye in a pill?  What's the matter with them??!!!!!!!!!!!!!

My thoughts exactly and w/ so many people being allergic to dyes.............
Guess it's just one more way to keep us sick and on one med or another >:(     IF we fall for it. Glad we all know better. Just takes a little digging sometimes, which I am off to do, as I take Levoxyl and it is blue.
Posted by: NewHampshireGirl, Sunday, January 29, 2006, 8:25pm; Reply: 106
Well, I have to admit I never went so far as to look up all the ingredients as slyparrot did, and others.  My endocrinologist did change me over from Synthroid to Westhroid at my fervent request when a blood test found me low in T3.  I have been taking Westhroid only 10 days and already my face is losing that puffiness I could always detect when I was on Synthroid.  And, finally, I am just a little bit beginning to drop some weight.   I'm still holding my breath, so to speak, but I have to say that my hopes are finally beginning to rise.  It has been a struggle to figure out why the puffiness in the face and the inability to lose weight but from the help on this forum along with research on the internet I am indeed thankful.

Too many doctors have been brainwashed into believing Synthroid is the best thyroid replacement product and everything else is inferior.  I'm all for education going both ways, i.e., doctor to patient and patient to doctor.
Posted by: NewHampshireGirl, Sunday, January 29, 2006, 11:27pm; Reply: 107
Soooo,  I just found out that Westhroid uses corn starch as a binder.  Since there are some who are allergic to an ingredient such as that, the lab which makes Westhroid also makes Nature-throid which does not have the cornstarch.
Posted by: Victoria, Monday, January 30, 2006, 3:43am; Reply: 108
Well, that's good to know, N.H. Girl.
Do you know if that lab used artificial dyes?
Posted by: slyparrot, Monday, January 30, 2006, 6:46am; Reply: 109
Westhroid 60mg does not make me puffy.  If it's not the corn, what is doing it?  Confectioner's sugar or one of those other ingredients??  I take 50mcg synthroid, it is white and has no added colors.  There are many complaints with weight gain on synthroid all over the net.

We need a prescriptions right 4 your type!
Posted by: NewHampshireGirl, Monday, January 30, 2006, 2:19pm; Reply: 110
Here it is 11 days, now, since I began Westhroid, dropping Synthroid completely, and I have lost 3 pounds not having changed my eating or exercising routine at all.   Also, there is noticeably less puffiness about my face.

My endocrinologist is going to be puzzled by this, I know.   She has been taught (and aren't they all) that the natural product is inferior to the synthetic.  I simply held a steady course about wanting to change to Westhroid and when my free T3 and T3 came back low-normal at that point she agreed to change my prescription.

We're not all alike, of course, and what may work for me isn't going to do the same for someone else.  But, I too, saw a lot of subjective evidence with my research on the internet about weight loss only when changing to Armour or Westhroid from Synthroid.  There came a point when I was more than willing to be the guinea pig, let the chips fall where they may and go for it.............the Westhroid that is.  :)
Posted by: Jane, Monday, January 30, 2006, 4:09pm; Reply: 111
I switched from Synthroid to Levothroid about a year ago because of the dyes.  I didn't realize there was constarch in there.  I wish I could say I've been losing weight, but I haven't.  It's probably more the carb monster though and the call of dark chocolate.  Could also be the late menopause.  I"m 61 but didn't stop my periods until 58.  
I actually did pretty well on synthroid over the years but I was on a real suppressive dose.  My new endo thought that some of the sinus complaints I had might be from the dyes, etc. Levothroid in the 50mcg dose is white with no dyes.  I just take 3 on some days and 2 on others to get the right dose.  I also take a compounded T3 every day.
Posted by: wire_247 (Guest), Sunday, March 5, 2006, 3:17am; Reply: 112
I am new to the blood type diet, but I had a thyroid pappilary 2 years ago, very minor,I had a thyroidectomy and eblation. In the beginning I could not tolerate my thyroid meds. synthroid, levoxyl, or armour almost like allergies to these. I have many food allergies some even that I should be able to eat according to type A menus. My homeopathic Dr. did a few clearings for the meds and was able to tolerate the meds. It is 2 years later and I still do not feel that great. I still have reactions to most supplements and homeopathics and vitamins so I cannot take them, even though I need them. Has anybody else run into these problems and also have people with thyroid problems had good results from the diet. My user name is wire 247 but I do not feel that way anymore. Looks like I am about the only guy on this thread. thanks
Posted by: KimonoKat, Sunday, March 5, 2006, 3:58am; Reply: 113
Quoted from wire_247
I am new to the blood type diet, but I had a thyroid pappilary 2 years ago, very minor,I had a thyroidectomy and eblation. In the beginning I could not tolerate my thyroid meds. synthroid, levoxyl, or armour almost like allergies to these. I have many food allergies some even that I should be able to eat according to type A menus. My homeopathic Dr. did a few clearings for the meds and was able to tolerate the meds. It is 2 years later and I still do not feel that great. I still have reactions to most supplements and homeopathics and vitamins so I cannot take them, even though I need them. Has anybody else run into these problems and also have people with thyroid problems had good results from the diet. My user name is wire 247 but I do not feel that way anymore. Looks like I am about the only guy on this thread. thanks

Welcome to the forums wire!  If you go to the top right of the page and check into your member center, you can pick an apropriate avatar.  That way, other members can easily see your blood type.  This will help others to help you better.

Although I don't have this particular problem, there are other more knowledgable members here who can help direct you towards threads and/or the knowledge bases.

Again, welcome to the BTD forums!
Posted by: Lola, Sunday, March 5, 2006, 4:30am; Reply: 114
check out the resultbase here on line.......
write thyroid and make sure to click on all three options given.....
there are quite a few cases, improving considerably on BTD.

here s another testimonial:

and this
Posted by: 903 (Guest), Sunday, March 5, 2006, 6:06pm; Reply: 115
FYI, if the fillers, binders and dyes used in conventional prescriptions bother you, as they do me, find a compounding pharmacy in your area to make them up for you without the noxious ingredients. They have to use something though, so I usually get Lactobacillus acidophilus added as the filler. Your doc simply has to write "for compounding" on the Rx. If you don't have a local compounding pharmacy, just about anything can be ordered through the mail, although a little less convenient.
Posted by: Victoria, Sunday, March 5, 2006, 6:40pm; Reply: 116
That's a good point, Judi.  It baffles my mind why pharmaceutical companies feel a need to add the things they put in the meds.  Why would anyone need to do this?  I have gotten pills that used talc as a filler......ground rock??  And the DYES?  why?
Posted by: mikendomsmum, Friday, March 10, 2006, 7:55pm; Reply: 117
Was reading a post about weight gain and synthroid.  I've been taking levoxyl for several years and just the last couple of years had a terrible weight gain (20 pounds in a month!).  My nurse practitioner started me on cytomel as well as staying on the levoxyl and the weight gain was stopped in it's tracks.  This was about 8 months ago and just these past couple of months my Levoxyl has had to be reduced twice with still no additional weight gain.  Now, I've been on BTD for about a month and I'm hoping my weight will gradually decrease back to normal.  I hate these 20 extra pounds, although I do have a little more booty these days.[b][/b] ;)
Posted by: slyparrot, Saturday, March 25, 2006, 12:51pm; Reply: 118
Okay.....This is very weird!  My puffiness stopped when I started taking the westhroid and synthroid separately!  Yep!  Synthroid behaves very bad with westhroid!  My best results are seen when I take synthroid first, wait an hour then take the westhroid.  Unless I want breakfast, then I will eat an hour after synthroid, wait at least 2 hours then take the westhroid.  It's annoying but it works.  

Getting a custom thyroid medication thru a compounding pharmacy sounds interesting!
Posted by: Jane, Monday, March 27, 2006, 7:30pm; Reply: 119
Wow, what an interesting point, Sly Parrot.  I wonder if separating the compounded T3 and the Levothroid would have the same effect.  Maybe I'll start taking the T3 later in the day.
I've been so bloated lately and craving the carbs.
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