My son (O negative, likely nonnie, homozygous MTHFR so probably has some tendencies of Explorer) was diagnosed with Crohns last week.
Prior to the diagnosis we began working with an ND who diagnosed SIBO. We started rifaximin as colonoscopy prep (was actually prescribed by ND for SIBO, but our pediatric GI also prescribed).
Son is on prednisolone (steroid) since leaving hospital. We're tapering off steroids, done with antibiotics, but he's developed yeast (which can be side effect of antibiotics and exacerbated by steroids). We're pretty much paleo here this month (turkey and grass fed beef and ripe bananas).
My question is that I'd like to try the Larch for the Crohns and the SIBO, but he has a history of fructose malabsorption and constipation. Our ND mentioned a theory that a fructose malabsorption is just SIBO and that once it's under control, probably not as sensitive. Since the steroids and finishing the antibiotics, he's definitely not constipated anymore. Still has a distended colon from encopresis.
Any thoughts? Anyone else have similar history with fructose malabsorption that was able to use Larch?
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I know ARA Plus has larch fiber in it. If you're concerned about malabsorption you may want to try a gut-healing supplement in addition, such as Deflect or Polyflora O, especially since your son is coming off antibiotics.
Healing your sons gut through the proper diet and supplements will over time decrease the amount of procedures/tests he will have to endure. If he is anything like my special needs daughter, you will be doing him a HUGE favor by being proactive in his daily health and ensuring he minimizes most or all avoid foods and increasing beneficial foods.
Do you buy/use ghee in your home? That is excellent for healing the gut as well and can be used in many different recipes/foods.
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I think best to be patient and rely mainly on lifestyle and nutrition to heal, and strengthen the digestive system. Many foods weaken the glands and cells slowly over many years: fructose, grains incl the gluten free grains and g-f goods in the supermarket/store, sugar, most sweeteners, dairy foods (apart from ghee), processed/refined products esp candies/icecreams, baked goods containing poly oils and sweeteners, foods from the tropics, legumes. I have had to decrease and cut out many to help my own system, after chronic problems since very young, incl pain in different parts of body, and very sluggish activity in lower digestive part/organs. Best to consume foods, home cooked and in season, organic if one can afford, include ghee as mentioned above. Duck fat good too, make a omelette in morning with low carb veggies like spinach, mushrooms, tomatoe - a little red chilli to stimulate metabolism, and some ginger for the zinc. Chicken thighs/cutlets with the bone in, makes nice stew - very healing with nice yang/strong energy, add vegetables (the hardest veggies best - swede(rutabaga), turnip, carrot, kale, collards/silverbeat, spinach, green beans, shallots/spring onions, ginger, green herbs, broccoli. Fish/seafood I find helping a lot. Nuts/seeds in small amounts for now, due to the high amounts of omega-6 fats which some believe contributes to inflammation. Eat at regular times/schedule.
Absolutely no wheat and very low gluten (he was still doing non-GF oats until a couple of months ago). He was still doing butter until recently, but no cheeses at all. Absolutely no milk, yogurt, etc., from very young age.
Would you still do ghee if dairy intolerant?
He was also low FODMAP for about two years. Recent round of antibiotics (rifaximin) seems to have cleared the SIBO issue, and breath testing indicated he no longer tests "positive" for SIBO.
Since breath testing indicates that fructose malabsorption doesn't appear to be issue, I'm less scared of trying larch. We are definitely trying to heal his gut, but wow is it hard. He's still getting nosebleeds everyday, which is kind of my big indicator that he's not healed yet (vitamin K seems to be produced in the gut).
I'd like to do SWAMI for him, but wondering if it's really useful since he's only 9. There are big differences between Explorer and Hunter foods, and he's likely right on the fence with the two because he's MTHFR homozygous and Rh negative.
Thanks for the tip! He hates soup, but I might be able to get him to take it if I put it into a capsule. I know bone broth is fantastic for healing the gut, which is absolutely what he needs right now.
I agree, but you have no idea how strong this kid's hatred for anything but meat is. He is such a classic O, it's not even funny. He knows meat is the only thing that's never actually hurt his stomach. I wish I could just get it into his head that you take meat on the bone, add water, and simmer to get broth. He's stubborn!
It depends on whether he is allergic to the dairy fat or protein/sugars...
Properly made ghee is pure fat, and while it is possible to be allergic to this, most people are allergic to either the proteins, sugars or the combination, not the fat... It would probably take trying a little with him and see if there is any noticeable negative effect...
On the other hand, you may want to try making some probiotics for him. Using compliant vegetables suited for him:
1) Cut the vegetables into small pieces and put them into a container 2) Soak these vegetables with water and some salt. 3) About an hour or so, transfer them into a glass container, leave about 1-1/2 inch air gap below the rim of the container. 3) The vegetables and water will expand over time. 4) Keep this in your kitchen (preferably dry table top) for 3-5 days. 5) After that, open the container and taste it, if it is to your son liking, you can start giving him this probiotics on a daily basis.
This probiotics has a sour sweet kind of taste. It's refreshing!!
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I do not add extra water.... chop veggies fine to release their juices......add salt on every layer
''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98 DNA mt/Haplo H; Y-chrom/J2(M172);ESTJ The harder you are on yourself, the easier life will be on you!