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Advice on Supplements for Crohn's Disease  This thread currently has 803 views. Print Print Thread
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My02Cents
Monday, March 3, 2014, 4:23am Report to Moderator Report to Moderator

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My daughter, 10 yrs old, was diagnosed with Crohn's in her stomach, small intestine and large intestine two months ago. After doing some research online we removed all grains and dairy from her diet almost immediately. She is currently taking an immunosuppressant but we'd like to be able to take her off of it. I'm looking for advice on which supplements to purchase to keep the gut inflammation down and begin the healing process. She is type O+. Thanks in advance for your help!
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Lola
Monday, March 3, 2014, 6:13am Report to Moderator Report to Moderator

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Sa Bon Nim
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have her follow the guidelines

find out her secretor status to finetune and target

http://www.dadamo.com/B2blogs/blogs/index.php/2004/03/19/type-o-with-crohn-s-disease?blog=27


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
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Amazone I.
Monday, March 3, 2014, 7:21am Report to Moderator Report to Moderator

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Kyosha Nim
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I also use the *healing mushrooms* for my clients...and enzyme therapy to cut down inflammation, even some MSM might work wonders ...


MIfHI K-174
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Henriette Bsec
Monday, March 3, 2014, 8:53am Report to Moderator Report to Moderator

swamied nomad chameleon receptor worldview
Kyosha Nim
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Poylflora no doubt and maybe also a omega3 fish oil.


ENFP -naturalist, visual/spatial and musical/verbal/chatty Dane- Mother to DD Emma age 19,
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Dr. D
Monday, March 3, 2014, 11:34am Report to Moderator Report to Moderator

Peter D'Adamo
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My02Cents
Monday, March 3, 2014, 4:51pm Report to Moderator Report to Moderator

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Thanks for your advice. Placing an order today for supplements, secretor test kit plus SWAMI software. I know the software is for children 13+ but am hoping to use it on myself and be able to translate applicability to her. Will check out the links today, thank you Dr D'Adamo!
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Lola
Monday, March 3, 2014, 4:55pm Report to Moderator Report to Moderator

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''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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The harder you are on yourself, the easier life will be on you!
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My02Cents
Monday, March 3, 2014, 5:22pm Report to Moderator Report to Moderator

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Thank you Lola, we listened to these audio clips last night. We found them very helpful and I can't wait to try the fingerprint test on my daughter.
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Lola
Monday, March 3, 2014, 8:39pm Report to Moderator Report to Moderator

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Sa Bon Nim
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''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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My02Cents
Sunday, March 9, 2014, 4:45am Report to Moderator Report to Moderator

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My daughter (10 yrs w/Crohns) is complaining of stomach pains after taking the following supplements for 3 days. She takes one of each with breakfast and dinner.

Polyflora O
Scienca
Deflect

Anyone have any thoughts on which might be the issue?
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ABJoe
Sunday, March 9, 2014, 5:04am Report to Moderator Report to Moderator

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Quoted from My02Cents
My daughter (10 yrs w/Crohns) is complaining of stomach pains after taking the following supplements for 3 days. She takes one of each with breakfast and dinner.

Polyflora O
Scienca
Deflect

Anyone have any thoughts on which might be the issue?

My guess is that the Deflect is stripping lectins from the surface of the stomach / intestinal linings, which is aggravating the nerves while the healing is taking place.  It is possible that if she only took one set a day for a while it would reduce the pain.  Taking less supplement will probably slow the healing process, but she needs to be able to function, not necessarily without pain, but without disabling pain...

Hoping she heals quickly!


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My02Cents
Sunday, March 9, 2014, 1:52pm Report to Moderator Report to Moderator

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Thank you   We'll reduce that one a little and see if it helps with the discomfort.
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My02Cents
Sunday, March 9, 2014, 2:03pm Report to Moderator Report to Moderator

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One more comment taken from the Paleo Mom's website: "...anti-gliadin antibodies (antibodies that recognize the protein fraction of gluten) did cross-react with all dairy including whole milk and isolated dairy proteins, oats, brewer/baker’s yeast, instant coffee (but not fresh coffee), milk chocolate (attributable to the dairy proteins in chocolate), sorghum, millet, corn, rice and potato." http://www.thepaleomom.com/201.....er-giving-it-up.html

I know there is yeast in the Polyflora O...could that be an issue? She definitely has leaky gut.
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My02Cents
Sunday, March 9, 2014, 2:28pm Report to Moderator Report to Moderator

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Sorry, doing more research and finding that at the same time she started taking the Type O supplements she stopped taking the Prilosec she'd been on since last November. We tapered her off but I'm wondering if that is the culprit behind the stomach pains. Would the Gastro-D complex help with that?
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ABJoe
Sunday, March 9, 2014, 6:57pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Any changes may be working in combination to provide the symptoms...  My suggestion was to only take one dose of each of the recently added supplements to see if the pain reduced to a tolerable level.  If the pain is still intolerable, she may need to add a small Prilosec dose...

If there is more acid, due to less Prilosec, it can irritate sensitive areas more...  Is the pain less than before she took Prilosec?




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My02Cents
Tuesday, March 11, 2014, 6:45pm Report to Moderator Report to Moderator

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Tapering off the prilosec too quickly seems to be the issue. I gave her a half dose and she was fine again...no stomach pains.
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Jane
Tuesday, March 11, 2014, 7:38pm Report to Moderator Report to Moderator

Kyosha Nim
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Try a little ginger for the acid - and/or some room temperature sparkling water.
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misspudding
Tuesday, May 6, 2014, 4:49pm Report to Moderator Report to Moderator

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My02Cents, we're in the same boat. My 9 year old (O-negative) son was diagnosed last week after two years battling chronic constipation.

He's currently on a steroid taper. He was already doing a low-FODMAP diet, though we weren't super strict, and no dairy except butter. We're hoping an SCD/paleo autoimmune approach will work wonders.

I suspect that Miralax, which he was on for chronic constipation, actually caused his first flare. I'm an environmental geologist and researched stuff in my own field to figure this out. They figured out from wastewater treatment (sewage) plants, that PEG doesn't break down very well, unless you have a bunch of methane-producing bacteria. So, if you have an overabundance of methane-producing bacteria in your gut (which you do if you have any kind of SIBO with constipation), they'll happily break down polyethylene glycol (Miralax) into sugar alcohols and then more methane. Soooo....once he was off the Miralax, he got quite a bit better, but obviously he has a chronic condition at this point that he'll be managing for the rest of his life.  

Hope you find some good answers and healing for your little one, My02Cents!




misspudding

---
Me: Celiac type gut problems; seizure disorder; MTHFR
DH: O positive
DS: O negative; "atypical" IBD - SWAMI 44% Explorer

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misspudding
Tuesday, May 13, 2014, 1:44am Report to Moderator Report to Moderator

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Hey, can anyone tell me if they can get those audio clips to work? Not having luck on my end and would love to hear. Thanks!




misspudding

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Me: Celiac type gut problems; seizure disorder; MTHFR
DH: O positive
DS: O negative; "atypical" IBD - SWAMI 44% Explorer

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ABJoe
Tuesday, May 13, 2014, 3:31am Report to Moderator Report to Moderator

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Quoted from misspudding
Hey, can anyone tell me if they can get those audio clips to work?

I assume you are talking about the two linked in by Lola...

I know they worked when published, but they seem to have been unlinked...  Sorry!


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Amazone I.
Tuesday, May 13, 2014, 8:43pm Report to Moderator Report to Moderator

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Kyosha Nim
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Butyrate if I remember P.D's advices well ...

this is one of the options.. must have time to think about and come along later ...


MIfHI K-174
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