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Marfan Syndrome  This thread currently has 397 views. Print Print Thread
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Hassanna
Sunday, December 29, 2013, 8:36pm Report to Moderator Report to Moderator

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I have a friend whose daughter has Marfan Syndrome.  This gene mutation affects the bones, ligaments, eyes, heart, and blood vessels.  Treatment usually includes medications to keep your blood pressure low to reduce the strain on weakened blood vessels.  Her daughter's case is not to the severity of needing to be on the medications....yet.  She has asked me if I knew of any supplements her daughter could be taking.

I know that there are several supplements available that strengthen connective tissue, bones, vision, and the cardiovascular system.  The ones I thought would be helpful are Connectivar and Nitricycle.  

Does anyone have any other suggestions?
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Lola
Monday, December 30, 2013, 3:35am Report to Moderator Report to Moderator

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Hassanna
Monday, December 30, 2013, 4:48am Report to Moderator Report to Moderator

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Thanks Lola, that link you provided seemed to basically say Dr. D's cardiovascular book can be helpful so I will pass that along.  

I guess I'm wondering if supplements would be helpful in this case?  Has anyone ever worked with or had experience with an individual with Marfan Syndrome?
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ginnyTN
Tuesday, December 31, 2013, 2:51am Report to Moderator Report to Moderator

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Quoted from Hassanna
Thanks Lola, that link you provided seemed to basically say Dr. D's cardiovascular book can be helpful so I will pass that along.  

I guess I'm wondering if supplements would be helpful in this case?  Has anyone ever worked with or had experience with an individual with Marfan Syndrome?


I know one woman who has it.  She says one or more of her brothers has it also.  However, you cannot tell this particular woman anything!  (You don't have to have Marfan Syndrom to be like that........... )


6 years on ER BTD, went from sick and dying to healthier And 30 pounds slimmer.  

Dec 2013: Started Swami Xpress - I'm 48% Explorer with hybridized Explorer/BTD list. A new adventure for this old lady!  -- LOST 5 more pounds on SWAMI! 
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DoS
Tuesday, December 31, 2013, 3:01am Report to Moderator Report to Moderator

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What blood type? That's more important than supplements most the time.
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Hassanna
Tuesday, December 31, 2013, 6:25am Report to Moderator Report to Moderator

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She's an O+, and is starting to take a a large interest in her health, nutrition wise (she's 16).  I suggested to definitely start be conscious in regard to the O diet so her mom is helping her out with that.  I'm sure it will be beneficial.  

I don't know very much about gene mutations, they seem fairly complex.  And considering this one negatively affects the connective tissue, ligaments, bones, heart and blood vessels, I thought supplements could somewhat be helpful.  
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Lola
Tuesday, December 31, 2013, 8:06am Report to Moderator Report to Moderator

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this anti inflammatory lifestyle is tops


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DoS
Tuesday, December 31, 2013, 8:22am Report to Moderator Report to Moderator

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It the condition is just starting to express then the cellular mix would be great.

Maybe I can think more later. No wheat!
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ruthiegirl
Tuesday, December 31, 2013, 7:37pm Report to Moderator Report to Moderator

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Magnesium is often useful with keeping blood pressure in normal levels.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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Christopher1
Tuesday, December 31, 2013, 9:37pm Report to Moderator Report to Moderator

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She will need surgery eventually. I know someone who has it.
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Hassanna
Wednesday, January 1, 2014, 4:13am Report to Moderator Report to Moderator

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Christopher, I'm forever the hopeful optimist and I hope surgery is not the inevitable.  Being that she is so young, I was really hoping if she sticks to the diet and takes some good supplements, perhaps it can prolong her to not have to take the blood pressure medication and as you say have surgery.  

Thanks for the magnesium suggestion Ruthiegirl.
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Christopher1
Thursday, January 2, 2014, 3:31pm Report to Moderator Report to Moderator

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Quoted from Hassanna
Christopher, I'm forever the hopeful optimist and I hope surgery is not the inevitable.  Being that she is so young, I was really hoping if she sticks to the diet and takes some good supplements, perhaps it can prolong her to not have to take the blood pressure medication and as you say have surgery.  

Thanks for the magnesium suggestion Ruthiegirl.


Right. Well - her aorta can expand to dangerous levels. Taking cardioprotective herbs would probably be a good idea. No weight lifting.

Surgery is not all that bad. The person I know who has it had surgery and is fine.
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