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Waiting, waiting, waiting: Lyme disease? ASD/PFO?  This thread currently has 4,071 views. Print Print Thread
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TJ
Wednesday, December 5, 2012, 11:49pm Report to Moderator Report to Moderator

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Kyosha Nim
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With the exception of my 23andme results that I received yesterday, I've been anxiously playing the waiting game lately. Monday of last week, I saw my old physician, the nurse practitioner, about Lyme disease, and he agreed to do the Lyme disease testing through iGeneX. They received the samples last Thursday, and said it takes 2-3 weeks for results. I just hope and hope that if I really have Lyme disease that it will be confirmed by these tests so I can start taking some antibiotics in addition to the herbs and other supplements I'm using currently.

I had my eyes opened to a very different possibility a few weeks ago by a coworker. When I was offered some chocolate cookies sticks, I commented, "Migraine on a stick!" She mentioned that her husband used to get migraines but that they completely stopped after he had surgery to fix the hole in his heart. Another coworker there suggested that maybe I had one in mine. I did some research (including talking to a friend who had surgery early this year for the same thing), and recognized that this was a very realistic possibility, given my history of migraines and my family history of both migraines and heart palpitations. So now, I'm not only waiting for Lyme disease test results, I'm also waiting for a December 18th cardiologist appointment, at which I will probably receive some results.

I think the best Christmas present I could get this year is to finally know what is wrong with me.
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PCUK-Positive
Thursday, December 6, 2012, 12:21am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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I was reading the other day about checking blood pressure in both arms, if there is a big difference there may me a heart issue. but I think you are already on the right track.

but try not to get too caught up in all the theories. and concentrate on being as calm as you can under the circumstances. you certainly don't need more stress at this time.

Try clasping your little finger with your other hand and just holding it very gently for while 3 mins is fine while thinking about your breathing gently rest your arms and hand while doing this. switch to your other hand and do the same.

do this away from eating and at least an hour before meals

don't be surprised if you fall asleep.

be calm...


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Amazone I.
Thursday, December 6, 2012, 4:35pm Report to Moderator Report to Moderator

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Kyosha Nim
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TJ half of mine (isn't that beautiful I can name the A's & B's half of mine     )
0's only 1/4 with my little 2-part ....

dearest TJ may I allow myselve to remember you for several very important facts.....

1. you are a B..... often they are versy sensitive ......and have tendencies to even have all kinds of sensations while weather will change.... so far....
2.you're a nonnie...... the mentioned facts above are accelerated....
3.if I remember it well you once mentioned being an intj..... and thus the most prone to inner tension which might lead to headaches and heart issues and even back achings but merely coz of your thoughts...you are that quick and intense...amazing amazing  
4.intj's are the 5/6 in the enneagram and no6 has a higher score to comment with not only one judge as no 1 in your head... but with a whole gremium...meant here is...another further point for tension increase.....
5.your risk for selfdenying might lead to victimize yourself and so you need to take notice that you are a beautiful man with all healthy capacities and you musn't belief all what others try to make you understand as someone who is guilty or whatever... no dearle you are ok as you are !!!

ooops sorry for the pidginings....  


MIfHI K-174
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JJR
Thursday, December 6, 2012, 10:06pm Report to Moderator Report to Moderator

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Kyosha Nim
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I am ok and everyone else is OK, no matter what.  I repeat that sometimes.

Maybe you do have a hole in your heart.  But TJ, getting a headache from chocolate is a rather "general" symptom.  As a Nonnie, you probably don't process toxins out super fast.  Sugar, caffeine, whatever it is.  I think we already know that.

I feel weird if I eat too much of certain things, including sugar.  I know a lot of people with lymes disease become sensitive to certain food groups.  The ones I seem to be sensitive to are common.  Dairy, sugar, and wheat.  I can eat butter, and I can eat a little bit of rye toast here and there.  But if I overdue sugar, even natural sugars, it will ramp me up, make my voice weak, give me fatigue and yes, get headaches.  Dairy stops me up and wheat, makes my voice weak and I'll feel sluggish.  Put dairy and sugar together and you have a super toxic combo for me.  Same with wheat and sugar.

  I just don't eat those things any more because they make me feel awful.  Like a chocolate covered pretzel.  Maybe I'll partake of something over Christmas, but I guarantee it will be small and it will be few, if at all.  I get away with just dark chocolate in small amounts.  No problems there.  But small amounts.  

I used to eat all of these foods, including caffeine with gusto with nary a problem.  But not any more.

Anyways.......  there is some wisdom in allowing the situations of others to teach us things.  But many symptoms are indicated by many problems.  A headache could also mean your brain is swelling.  It could mean you have a busted blood vessel, it could mean a LOT of things. But I doubt that's what it means for YOU.

I'm only preaching to the choir because I really struggle with certain issues like this.  When people have heart attacks that I know, or heart problems, and they talk to me about it, my anxiety goes through the roof.  I'm getting better, but it's an issue for me as well.  So.....  I say it in love.  My Mom says, "Let's not borrow trouble".  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ruthiegirl
Thursday, December 6, 2012, 10:24pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from TJ
I think the best Christmas present I could get this year is to finally know what is wrong with me.

You and me both! At least you have the funds for the testing and are on the way to finding some answers. I'm still stumbling around in the dark.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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TJ
Friday, December 7, 2012, 3:25am Report to Moderator Report to Moderator

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Kyosha Nim
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If only migraines from chocolate was my only symptom... No, God (or the Universe, if you will) has gone well out of the way to bring this possibility to light for me recently, and it is a sensible explanation for many things. The great thing here is that it shouldn't be difficult to detect when the correct tests are performed, and it can be corrected with a minimally-invasive surgery. If I don't have it, well then, I don't have it, and I'll be moving on. But bear in mind, there are some things that diet alone can't fix. This isn't about sugar or my personality, although some aspects of my personality maybe actually be about a hole in my heart. Insufficient blood/oxygen to the brain can do funny things.
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TJ
Friday, December 7, 2012, 3:27am Report to Moderator Report to Moderator

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Kyosha Nim
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Ruthie, it's only because of a recent, very generous and unexpected gift from a friend that I'm able to do these things now. I wish you could have such fortune soon.
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Dianne
Friday, December 7, 2012, 11:03pm Report to Moderator Report to Moderator

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Quoted from JJR
I am ok and everyone else is OK, no matter what.  I repeat that sometimes.

So.....  I say it in love.  My Mom says, "Let's not borrow trouble".  


JJR - what a lovely message of hope for TJ and I love your Mom's saying. I'm definitely adopting this one.  Our thoughts are way more powerful than we know, my friend who is diabetic did a test and entertained some stressful thoughts and then would check her insulin levels...just one negative thought spiked her insulin and then right away she relaxed, and it went down.  This has made her very mindful indeed and me as well!

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TJ
Saturday, December 8, 2012, 6:46pm Report to Moderator Report to Moderator

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Kyosha Nim
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I really don't want to borrow trouble )I've done enough of that, and the interest rate is pretty high). But if I already have trouble, it's best that I know about it.
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JJR
Monday, December 10, 2012, 1:04am Report to Moderator Report to Moderator

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Kyosha Nim
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I agree that our thoughts can affect us.  I figured that out.  It's not always the only answer, but usually plays some part, whether tiny or large.  I guess it just depends on us, and the situation.

TJ, I didn't mean to sound condescending or anything like that.  I know what it's like to feel lousy and not know why.  If you feel led to find out, I'm totally with you.  I was just hoping to calm your nerves.  I get all worked up sometimes and it helps to have people to talk to and I always found comfort in people telling me that everything will be alright.  I know it doesn't always feel like it, but it will.  You'll be alright.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Monday, December 10, 2012, 6:43am Report to Moderator Report to Moderator

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Kyosha Nim
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Thanks JJ, no offense taken.

Hopefully I will have results from the Lyme testing that I can report some time this week.
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Amazone I.
Monday, December 10, 2012, 10:37am Report to Moderator Report to Moderator

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Kyosha Nim
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I don't know to spell this is english (a friend of mine calls me always in denglish;-) ).... ok it's named Karde and it seems to be one of the most powerful natural products to fight *tick attacs* ....of all kinds... I've got also positively tested but I don't remember ever having been in those countries in my life... so what    ... perhaps was this a gift of the travfvelings grandmo's side (effects of genetic heritage )....

p.s very powerful is also  always olif leaves......!!!!


and p.p.s.s:

justamente found an article of Prof.Dr. G.Steidl's: succesfull treatments of borreliose.... he mentiones that the oxigen poor milieu is the best for anaerobe microorganismes....   to implement more active oxigen into the organisme might do the trick (I guess Mehrschritt-therapy v. Ardennen )....
and then he mentiones: one of the most efficient methods also is to use the *frequence-bioresonance methods* what did I always mentioned...
and he also mentiones to use so called Rizole (www.rizol.info.de )


MIfHI K-174

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Amazone I.  -  Monday, December 10, 2012, 2:07pm
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TJ
Monday, December 10, 2012, 6:18pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Amazone I.
... he mentiones that the oxigen poor milieu is the best for anaerobe microorganismes....   to implement more active oxigen into the organisme might do the trick
If I have an ASD/PFO, I'm not getting enough oxygen to my brain...
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JJR
Monday, December 10, 2012, 9:30pm Report to Moderator Report to Moderator

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Kyosha Nim
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Amazone, a friend I know with Lymes bought a "rife" machine and said that's working.  And a long time ago when I first started having health problems, my chiro had a lady that ran one of them bio-resonance machines, I don't remember what the name of it was, but I ALWAYS felt better after I'd be hooked up to it for a while. But it didn't "heal" completely, it just supported and made me feel a bit better.  That was early on and I had a lot of things to work on.  It would probably be even better now that I've worked through some of this.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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geminisue
Monday, December 10, 2012, 11:44pm Report to Moderator Report to Moderator

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When I find something I think is important, or I want to share I write it in a notebook.  Well today I will share what I found, and since you have been tested and will getting the results soon.  This is what I found:

Teasel Root Extract to see if you have lyme disease-take 10-15 drops and if you get sick you have lyme disease and to heal it take 1-3 drops a day.


That is all I know, I didn't write where I found it, but now that I shared wondered if you would think about trying it before you get your test back to see if both answers are the same.  If I remember right the sickness is flu like sympthoms.

Just a thought!  Linda
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TJ
Tuesday, December 11, 2012, 5:56am Report to Moderator Report to Moderator

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Kyosha Nim
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I got a statement from iGenex today. That's a good sign that I should have results soon, right?

Gemini, thank you for sharing. Teasel root is one of the commonly recommended herbs. I'm following the protocol outlined in "Healing Lyme" by Stephen Harrod Buhner. Of teasel root he says that's it's good for arthritis, and that while it is also useful for killing the spirochetes, many practitioners he spoke with on the east coast (where I'm from) didn't find it as useful, perhaps because of different strains found there. I haven't included it in my personal regimen so far. It didn't "feel" like one of the herbs that would do me a lot of good as I was studying the options he recommends, but these things change over time as treatment progresses.

In other news... only one more week before I see the cardiologist!
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Amazone I.
Tuesday, December 11, 2012, 8:27am Report to Moderator Report to Moderator

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Kyosha Nim
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JJR so far so well you have got a so called *biofeedback-therapy* and this works amazingly for all kind of sickness


MIfHI K-174
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JJR
Tuesday, December 11, 2012, 7:19pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yeah Amazone, that's what they called it.  It had these bands you put around your head, wrists and ankles.  I ALWAYS felt better after a session.  But at the time I felt like I needed to be on it every day in order for it to keep.  I'm sure it helped though.  

I've also read that oxygen helps too.  Into the cells.  

I have a bottle of teesel I haven't tried yet.  Maybe soon.  I'll be going back on the homeopathic after the New Year.  But Leanne (ribbit) has had TREMENDOUS success with the Cowden protocol.  And a couple of other things her ND is giving her.  So, I might look into that and I'm sure you've heard of that TJ.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Wednesday, December 12, 2012, 8:52pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yep, that's right.  I haven't been back on the forums here, and the Lyme thread specifically, to talk about it much.  I'm doing VERY WELL!  If I never got any better than what I am now, I would be happy.  I'm better than I've been in 10 years in some ways.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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TJ
Wednesday, December 12, 2012, 11:08pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Ribbit
Yep, that's right.  I haven't been back on the forums here, and the Lyme thread specifically, to talk about it much.  I'm doing VERY WELL!  If I never got any better than what I am now, I would be happy.  I'm better than I've been in 10 years in some ways.
LIKE

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Melissa_J
Thursday, December 13, 2012, 2:30am Report to Moderator Report to Moderator

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TJ

I went to a cardiologist a few years ago to check for the same thing.  I had migraines and palpitations.   I didn't have it or any problem, everything checked out fine, but it was easy to do and I don't regret it.  I figure it's good for my heart to not be worried about my heart

You should come down to Orem and see my NMT practitioner and hypnotherapist.  She has helped me a ton.  I had chronic mono, among other things, and she helped to clear it up.  She has helped with my bipolar SAD as well.  Not to mention all she has done and diagnosed for my son.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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TJ
Tuesday, December 18, 2012, 9:20pm Report to Moderator Report to Moderator

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Kyosha Nim
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I just got back from the cardiologist. They did a bubble echocardiogram and transcranial doppler imaging. It was an interesting experience to watch my own heart beating. The tech showed me what was what on the image.

After taking the regular echocardiogram images, I got three shots of bubbly saline solution injected into my vein. On the first, I was relaxed. On the second, she had me clench my gut hard to put a little strain on my heart. On the third, she had me blow as hard as I could into a tube with a knot in it to also put a little strain on my heart. On the first shot, I could clearly see that the bubbles were staying where they were supposed to stay (right side of the heart), but when I strained, I thought I was seeing them flood over to the left side (like it should with a PFO). Yet the doctor said I was fine. He said there were just a few bubbles on the left side, and he suspected they came around from the lungs.

So the official word is that my heart is fine, but I'm still a bit confused. After all, I don't have any training in interpreting those images.

I still haven't gotten Lyme test results.
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Ribbit
Wednesday, December 19, 2012, 12:14am Report to Moderator Report to Moderator

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Kyosha Nim
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TJ, it took me four months to get my Lyme tests.  They only take a few weeks, supposedly, but it took me a long, long time to convince the LLMD to mail me the results.  They just wanted me to come back up (4 hour drive!) for an appointment to discuss results and talk about treatment options and see how I was doing since [they assumed] I'd been on a couple of months of abx at that time.  It was like pulling teeth to get them to mail me, a lowly patient, the paperwork.  And when they did finally mail it, it was only about half of it.  Grr.

You realize, don't you, that Dr. Cowden was a cardiologist before he quit his practice to study Lyme.  Because so many young, "healthy" folks came into his office with heart issues....and when he started just randomly testing for things like Lyme, so many patients tested positive, he knew he was treating symptoms by supposing their heart problems were at the root.  I can't tell you how many articles I've read about cardiac patients dying...and then when they did an autopsy, their bodies were riddled with Lyme bacteria.  Never imagined...never diagnosed...never treated.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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TJ
Wednesday, December 19, 2012, 5:30pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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So, another thought: I'm still in my pre-existing condition waiting period until February....
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Goldie
Wednesday, December 19, 2012, 10:00pm Report to Moderator Report to Moderator

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Sam Dan
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I just had a post by Ribbit.. worth a look.. on

http://www.youtube.com/watch?NR=1&v=TB8_YRJQhGA&feature=endscreen





Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

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