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Thanks 4 risk analysis saved me! Breast Cancer  This thread currently has 3,634 views. Print Print Thread
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Symbi
Wednesday, December 5, 2012, 3:58am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,252
Gender: Female
Location: Brisbane, Australia
Age: 40
Hi Dr D and All,

Haven't been on for a while because I'm fighting breast cancer.   I found it early thanks to Dr D. Thanks <3

Being only 38 I'm not eligible for the mammography screening.  Have had cysts for a while I'd already had the other one ultrasounded  ( if that's a word!)  Then there was a lump I had all year which I was worried about in the left breast growing very slowly, felt a bit lumpy with smooth parts - nothing like the cysts but I wasn't sure.  In June the ultrasound said:

Quoted Text
"?degenerating cyst.  A fine needle biopsy (FNAC) may be undertaken for peace of mind".


Well that just sounded just routine so I put further testing off for a few months while I moved house.  
(Yes!  We finally got out of that mouldy house by the main road into much peace and tranquility now (and better health!) for the whole family. )

I nearly didn't order the FNAC because finances are tight and it wasn't going to be fully covered on Medicare.  Then a voice of reason in my head said, "you're an enlightened type A and you know from Dr D that you are at high risk for breast cancer.  He recommends extra cancer vigilance for us Type As.  Best to pay the money even if you have to use the credit card for your peace of mind."  So I ordered the test.   Thanks Dr D - you probably saved my life! and the voice of reason too!

The result came back Malignant and nothing that made any sense at the time.  Didn't believe it until after the next pathology test.  By the end of August I had a lumpectomy and they took out 11 lymph nodes.  Can't fault the public system here! It was grade 3 Invasive Ductal Carcinoma with some DCIS and lymphovascular invasion, 1.8cm, Oestrogen +, Progesterone +, HER + (so could be aggressive - so glad I found it early) and had minor spread to one lymph node (aka to be known as Nigel - nicer than the C word).  They cut Nigel all out and maybe too much but at least they got it all.  

Recovery went really well with my good diet and supplements helping out. Got full range of motion of my arm and am exercising still.  

Now I'm halfway through TCH chemotherapy to stop Nigel coming back.  They want radiation after that and then hormone therapy.  I'm thinking I'll skip Tamoxifen (cos it's linked with thickening uterine tissue and already have adenomyosis) will probably use monthly GnRH agonist like Goserelin (Zoladex) to induce menopause instead.  Chemo has bought that on temporarily and I'm quite happy to be free of monthly visits from Aunty Flo!  Having fatigue, mouth sores, lost hair, IBS, bone pains for a week from the Neulasta injections they give me to bring up white cells (they were wiped out after first chemo and I got a sinus infection needed IV antibiotics).  Having another sinus infection now that's making my eye twitch. Just as well I don't have to shoot or anything.  Overall I feel not so bad.  Taking it easy.  Missed you guys!

P.S. I'll be very interested to see if my high ANA (antinuclear antibodies) abate after this.  They were suspecting lupus but it may have been my immune system trying to fight the cancer.  Some say lupus is treated by chemo, but it makes you wonder.  I hope to feel better after treatment !  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Victoria
Wednesday, December 5, 2012, 4:09am Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
Moderator
Posts: 15,373
Gender: Female
Location: Oregon
It sure is good to hear from you, Symbi!     Well, that's a tough road to walk - I've been there & done that!     I worked closely with Dr. D's anti-cancer foods and supplements during treatment and also got an acupuncture treatment every week or two.  Yeah, it was a set-back in a lot of ways, and even that is now in the past.  Before long, it will be a part of your past and you will be getting on with other things.  Much love to you.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Possum
Wednesday, December 5, 2012, 4:49am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
Posts: 5,396
Gender: Female
Location: Wellington, New Zealand
Age: 53
So nice to see you on  here again & to hear the latest re Nigel... Have "enjoyed"(doesn't sound the right word somehow??!!) hearing your progress through this so far... {{{hugs}}} as always...
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Amazone I.
Wednesday, December 5, 2012, 8:16am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
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Location: CH-Benglen Kanton Z�rich
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hello half of mine Symbi...yikes what an awful diagnosis... but you seem to take it well and may I allow myselve to ask you to get informed about Salvestroles and even about a certain medication called Ukrain..... I'm going to send you the infos
by pm from Isa


MIfHI K-174
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PCUK-Positive
Wednesday, December 5, 2012, 12:54pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,875
Gender: Male
Location: UK
Age: 53
Be strong and use the Diet and Cancer book to the full oxo


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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ruthiegirl
Wednesday, December 5, 2012, 1:27pm Report to Moderator Report to Moderator

SWAMI O+ Gatherer, Healing from Fibromyalgia
Kyosha Nim
Columnists and Bloggers
Posts: 12,119
Gender: Female
Location: New York
Age: 42
Wow! how scary! I'm glad you're on the mend now.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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Chloe
Wednesday, December 5, 2012, 2:39pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,063
Gender: Female
Location: Northeast USA
Age: 71
Sending you healing wishes, Symbi....{{{{{hugs}}}}}}


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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AKArtlover
Wednesday, December 5, 2012, 3:00pm Report to Moderator Report to Moderator

centered leaning INTP Explorer, Supertaster, SWAMI
Kyosha Nim
Posts: 2,121
Gender: Female
Location: Midwest, US of A
Age: 38


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
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Jane
Wednesday, December 5, 2012, 3:37pm Report to Moderator Report to Moderator

Kyosha Nim
Posts: 3,578
Gender: Female
Location: Metrowest Boston, MA
Age: 70
Symbi,
I wondered where you were.  Glad to hear that you are doing better and that they caught it when they did.  You are in my thoughts and prayers  ((((HUGS))))
Jane
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deblynn3
Wednesday, December 5, 2012, 4:31pm Report to Moderator Report to Moderator

GT2 Gatherer rh+;Prop-Taster
Ee Dan
Posts: 2,475
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Location: Arkansas
Age: 57
Symbi,  I've also wondered where you've been.  Soooo happy you caught it when you did, and that you listened to your inner voice, and Doc.'s advice I've missed all your research, all that cool stuff that I really didn't understand, but you helped me to.


Swami, 100% me..
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KimonoKat
Wednesday, December 5, 2012, 9:04pm Report to Moderator Report to Moderator

38% HUNTER
Kyosha Nim
Posts: 4,646
Gender: Female
Location: Sherman Oaks, California
Prayers that your healing speeds along at a good pace Symbi. <3


Knowledge is power.  SWAMI gives you the diet that will unlock the key to better health, and it's all based on your unique individuality.
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Symbi
Wednesday, December 5, 2012, 11:52pm Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,252
Gender: Female
Location: Brisbane, Australia
Age: 40
Thanks so much for the replies! <3
It cheers me.  Having the bad part of chemo cycle now day 9 - 10 (nadir with low blood cells) feel flat as a pancake for a few days but then I spring right back like a pineapple and carrot cake.  

Victoria - sorry you went through it but   you got through it.  Maybe it makes us stronger for it.  These things offer growth opportunities. <3

to sweet Isa - thanks I'll check that info out!

PC - good advice as always - hope your daughter is well and yourself?  I'm right into the dark berries vitamin C and fish oil atm.  Had dry skin bumps under the top of my arms for ages, was taking Vitamin A and Evening primrose oil but now I know fish oil was the other magic ingredient I needed more of!  Learn more in a crises sometimes!    I think my diet high in antioxidants etc kept Nigel in check, being HER2+ it could have grown like wildfire, in the three months between scans it hardly changed at all.  

Hi AKArtlover!  Not sure if I should do soy because of my thyroid antibodies and previous hypothryoid, and nonnieness? it's an avoid in my SWAMI Xpress.  Now I'm menopausal that might change.  I must re-run my SWAMI good idea!  But other phytoestrogens 4 sure.    

Love to you Possum - don't want to get all mushy but love how I met you on here good friend. C U on Facebook.

One thing that worried me after diagnosis was I read somewhere the licorice root can be tumorgenic (as well as oestrogenic).  Now I google it I saw it can be anti-cancer as well?  I had a cup of tea a day for a long time for my adrenal fatigue.
Not pointing fingers at one cause tho.  I have some risk factors: living on a main road, having had miscarriages before, smoked for many years, stress, I bumped my breast in exactly the same spot a few years b4, did night work for some years, too much oestrogen (getting an ovarian cyst looked at too this week), cysts in breasts.  Who knows?

You guys! You Guys! are the best (said in the style of Robert De Niro in Analyse this)


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Symbi
Wednesday, December 5, 2012, 11:55pm Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,252
Gender: Female
Location: Brisbane, Australia
Age: 40
Quoted from deblynn3
Symbi,  I've also wondered where you've been.  Soooo happy you caught it when you did, and that you listened to your inner voice, and Doc.'s advice I've missed all your research, all that cool stuff that I really didn't understand, but you helped me to.


Cheers DebLynn!  Some of it I don't fully understand and put it on here in the hope someone will translate it for me.  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Symbi
Thursday, December 6, 2012, 12:01am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,252
Gender: Female
Location: Brisbane, Australia
Age: 40
Oh yeah forgot to say I've kinda been feeling better than I had before.  Less sore throats all the time (maybe cos I stopped drinking cold drinks and only drink room temp now).  Less achy overall (except after Neulasta) and weirdly less fatigue, less headaches but maybe that was hormonal - I know it sounds strange.

I've suspected Lyme disease since in 2001 I was bitten by a tick in Ontario Canada.  But over here they don't have testing available.  I have taken courses of antibiotics for frequent sinus infections and a few other things and usually feel better after those for a while.  Apparently chemo will wipe Lyme out.   (not that I recommend it for anyone with just Lyme!)  So hopes are that some of the other effects of chemo will actually be helpful!  I do miss my hair but being spanish gypsy hair it will come back with vengeance.


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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honeybee
Friday, December 7, 2012, 9:09am Report to Moderator Report to Moderator

INTJ
Ee Dan
Posts: 1,039
Gender: Female
Location: au
Oh Symbi, hugs!!
Glad you are up to checking in here, and happy to hear things are going well as can do, pm me if you would like me to post you my copy of Dr D's fighting cancer book, happy to loan this one out if needed <3
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Goldie
Friday, December 7, 2012, 1:39pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,859
Gender: Female
Location: East Coast
Good day Symbi.. so good to read your posts.. so happy you moved and so astounded at how well you are undertaking all this..

I had a momentary scare, turned out to nothing... but all the time waiting and whatever, I was so REASSURED by being HERE, that no matter what I would have found, I knew I would be ok as long as I had the COURAGEOUS people here to keep me company.  I am soooo glad you came and said hallo.

The technicals are so much to absorb, but one does and then let go of it.  

Glad you opted for the test.. when you are done and are stronger.. how about taking the above (1st) POST you made and send it to all in your country who need to read such success stories that could have been a big tragedy...  We here could sign our name to it and give it weight in the mind of others.. at least to the local paper, or some such..  

I can only admire your courage, your good attitude and conviction that you will make all the difference by doing the cancer section foods.. and might I recommend that you buy Trehalose.. a new sugar that does not trigger sugar reactions, but is sweet.  IT also cleans up the body of all sort of trash hanging around.. I don't know if you can afford the one from DrD.. Trehalose Complex, but they make Trehalose plain from mushrooms, and since mushrooms are good for big C to begin with, buying 2 pounds for about 25.- might be worth the investment.

Where you here ??? when we first took it and had a big thread about its good value.. if not I will find it and post later.. here is the intro:  scroll all the way down to EAT ME..
http://n-equals-one.com/blogs/  

All the verrrrry best..    


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Symbi
Saturday, December 8, 2012, 9:27am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,252
Gender: Female
Location: Brisbane, Australia
Age: 40
Thanks for filling me on some that I missed out on Goldie.  Lovely to hear from you  
Found that link thanks
http://n-equals-one.com/blogs/?s=Trehalose

Did you mean this thread: "Yes, Trehalose Complex is definitely Wow!"
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1328006355/
Very interesting.  I've upped my mushroom intake since cancer diagnosis.  Yummylicious!

Yes lots of testicles, I mean technicals to absorb, but as I was told every cancer is different.  Makes sense since everyone is different  

Honeybee - that's really sweet thanks!  <<Hug back>> I will buy the book soon and have put cancer as a factor in my SWAMI Xpress.


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Lola
Saturday, December 8, 2012, 9:14pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
Posts: 51,065
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Location: ''eternal spring'' Cuernavaca - Mex.
Age: 57
fantastic!!
keep up the good job!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Captain_Janeway
Sunday, December 9, 2012, 12:41am Report to Moderator Report to Moderator

47% Explorer/Super Taster
Kyosha Nim
Posts: 1,402
Gender: Female
Location: USA
Age: 43
Great to see you posting again.


Rh Neg, Le(a+b-), NN, Fy(a-b+)

INTP/INTJ at work
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purlgirl
Sunday, December 9, 2012, 4:06am Report to Moderator Report to Moderator

GT3 Teacher, non-taster
Ee Dan
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Location: Northern CA, USA
Age: 69
Symbi - big hugs
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Possum
Sunday, December 9, 2012, 9:26am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
Posts: 5,396
Gender: Female
Location: Wellington, New Zealand
Age: 53
Symbi that was lovely what you posted in response to me!!! Love & {{{hugs}}} right back at you too hun - one day we will meet in person ok!!! Just warning you lol
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honeybee
Monday, December 10, 2012, 3:00am Report to Moderator Report to Moderator

INTJ
Ee Dan
Posts: 1,039
Gender: Female
Location: au
It is great that you have SWAMI, I think the cancer fighting book is very helpful too but SWAMI probably takes all that into account for you as well.
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Symbi
Saturday, June 15, 2013, 12:49am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,252
Gender: Female
Location: Brisbane, Australia
Age: 40
Hi everyone!  
Long time no type (one reason is that when I type DH hates the sound! and I got an iphone haven't been on computer much  ).  Been busy fighting the good fight.  Hope everyone is well and happy?

I'm going well considering all the treatment.  A few weeks ago finished radiation, used a magic skin cream after treatments called Moo Goo (with milk protein) and I barely have any redness left    It was scary and mentally draining especially 3 hours travel on bus/train/bus or car five days a week for six weeks.  When they couldn't get me in early enough so I could be back to pickup DD from school, sometimes we went at night all as a family and had dinner on the way home (yep hard to be compliant but we do the best we can  ).  

During radiation I took Siberian ginseng to help fight fatigue and as an antioxidant (Onco said he reckoned the vit c, vit a, selenium and other antioxidants I have weren't high enough doses to help shield the cancer from the radiation).  Didn't get too many side effects.    Drank lots of red grape juice (the non-fermented type) for reservatrol? (so had to take lysine too to prevent cold sores).  Daily blueberries and whey protein powder too which I continue to do.  After I got a flu I took elderberry juice (Sambucol available in chemists), the continued a low dose as a preventative, hard not catch the cold/flu especially getting coughed on the train.     Actually craved antioxidants after treatment so I carried around dark chocolate and ate berries as much as I could.  Ginger tea for slight nausea.

Dunno if I could have got through it without the knowledge from Dr D and help from you guys over the years.  

Still having Herceptin treatment every three weeks (monoclonal antibodies to HER2 made in rats yuk - tmi sometimes doesn't help    ).  Am just starting Tamoxifen and that's a whole other story, not too bad so far.  Still have peripheral neuropathy damage from the chemo and am in menopause it seems.  I can handle the dryness, hot flushes, moods and pains much better than the adenomyosis that used to plague me, well that's what I try to tell myself most of the time.   Hot flushes seem to come with stress so it makes you more aware to try and handle your stress better.  Sometimes I'm a crying wreck but you get that, I've had a hard life and some issues have come to the front.  

Surprisingly I have less fatigue than before and less lupus type symptoms.   Chemo may have killed the lyme disease and that may have been lurking (tests aren't available for Lyme here in Aus).  It's been known to help lupus and if it's caused by viruses or bacteria in the system might explain why - knock'em down dead!  (As usual medical science has treatments that work and they guess why but never really know what they do completely.  Maybe the chemo could eradicate lurgees and then the immune system has less to fight after that?  Chucking a theory out there.)  Not recommending chemo for everyone, only if your specialist says you need it. Chemo was a nightmare I still have PTSD flashbacks.  

To get through chemo nausea etc. I ate and ate, which may have helped my body process those drugs.  Hello fat!   Now I'm 12 kg above my recommended weight range (heaviest I've ever been).  I know some if muscle from the walking I've been doing.  My legs are stronger than ever.  Theorising again, I may have craved and ate so much might to increase my fat to make oestrogen.  Now I'm more used to low oestrogen and don't feel hungry all the time and am eating closer to my SWAMI and feeling good.  I know I can lose it again.  I lost as much weight before slowly on BTD over a few years.

Four months post chemo, low white cells are still a problem and may take a while to come back again to normal levels.  Platelets and red cells are okay again.  I hope that my liver and kidneys weren't too damaged by the chemo I'm sure my whole system took a hit.

You did ask how I was?  he he sorry if I went on too long.

Happy days!  
Enjoy yourself as much as you can and love to you!

P.S. so nice to see your posts and love to read some on here again

  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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yaeli
Saturday, June 15, 2013, 1:17am Report to Moderator Report to Moderator

SWAMI Gatherer / Taster / ISFJ
Ee Dan
Posts: 2,547
Gender: Female
Location: Yerushalayim, Israel
Age: 66
Hi Symbi,

Do you follow Dr. D's Liver Support Protocol & Chemotherapy Adjunct Support Protocol?  


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Amazone I.
Sunday, June 16, 2013, 1:08pm Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,269
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 56
and some lekker mushies also available in your country.. or some beautiful salvestroles wish you all the best truly yours amiga Isa


MIfHI K-174
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