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Gluten Free Issues  This thread currently has 4,188 views. Print Print Thread
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Mayflowers
Monday, October 8, 2012, 1:17pm Report to Moderator Report to Moderator
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I thought I'd start a thread for those of us dealing with celiac and gluten intolerance issues.
I'm off gluten about 2 weeks now. I think I can do it this time.  What affect does it have on you?
with me I get acid reflux, and indigestion and stomach pain.. I don't get D from it but it affects me also mentally by causing irritability, anxiety and also I get rashes from it.  All of the symptoms stop when I stop it.  
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D.L.
Monday, October 8, 2012, 4:19pm Report to Moderator Report to Moderator

Explorer Swami 44%, INTJ, Haplo Kla2a
Ee Dan
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If I eat anything containing gluten, my heart beats faster, my pulse goes way up, I get sinus headaches, I have to start clearing my throat because of phlegm, my nose runs, my stomach bloats like a water balloon and usually hurts. I crave bread. I love bread. I don't have celiac but do have either gluten allergy or intolerance. Gluten showed up on skin allergy tests and also showed up on both IgG blood tests, taken a year apart, as an avoid that is causing inflammation in my body. Gluten is hidden in so many things.  
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prunella
Monday, October 8, 2012, 5:02pm Report to Moderator Report to Moderator

swami Explorer
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Rumbly, very bloated belly.  Inflamed, achy joints, heavy limbs. Low energy. Dry eyes.

I can handle a small amount of wheat every couple of weeks, but I don't mix it with corn or potatoes, which cause similar digestive effects.

When I get the low energy and inflammation, I call it a "food hangover."




The sun, with all those planets around it and dependent on it, can still ripen a bunch of grapes as if it had nothing else in the universe to do.

Galileo
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Mayflowers
Tuesday, October 9, 2012, 1:55pm Report to Moderator Report to Moderator
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Quoted from D.L.
IfI have to start clearing my throat because of phlegm, my nose runs, my stomach bloats like a water balloon and usually hurts.  


I get those symptoms from dairy, which I need to give up next. Every time I eat cheese, I get a stuffed up nose for 2 hours. I can barely tolerate yogurt.    I also sleep better when I'm eating wheat..because of the drug affect. Now that I'm off it, I'm not sleeping well. But my general engery is better off it.
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Maria Giovanna
Tuesday, October 9, 2012, 3:03pm Report to Moderator Report to Moderator

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Kyosha Nim
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I am tired low energy too , eye allergy and after a while on gluten free diet, every slip out  dermatits seborrhoica, because of  gut imbalance very hard to heal also six months  for tiny mistakes.
Gluten plus dairy is the complete shut odff of my defences a cold become a sinusitis and otitis or like that. I had otitis bulosa hemorrhagica 10 years ago, nearly new to gluten free and BTD


INTJ Italy celiac��
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D.L.
Tuesday, October 9, 2012, 5:48pm Report to Moderator Report to Moderator

Explorer Swami 44%, INTJ, Haplo Kla2a
Ee Dan
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Mayflowers - I also get those same symptoms from dairy and eggs and soy.
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cajun
Tuesday, October 9, 2012, 11:48pm Report to Moderator Report to Moderator

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If I eat my favorite pre-BTD (organic wheat, sea salt, water) artisan bread maybe once a month, as in a piece of toast with ghee and peanut butter, I don't have a bad reaction.
As mentioned above, the problem lies in wanting it more often, causing phlegm, mucous, stomach aches and a general drain of my energy.
My IgE test showed I was intolerant to wheat, yeast, cow and goat dairy.
I can eat Greek yogurt, sheep(manchego) and parmesan cheese without problems but no other dairy or I will cough and be stuffed up from the mucous.
So, obviously when I did the 3 month wash out of all these avoids I was in great shape... very hungry   but no other problems. (just chronic nasal polyps)


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Mayflowers
Wednesday, October 10, 2012, 12:50pm Report to Moderator Report to Moderator
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Quoted from cajun
If I eat my favorite pre-BTD (organic wheat, sea salt, water) artisan bread maybe once a month, as in a piece of toast with ghee and peanut butter, I don't have a bad reaction.


I'm the same way, even though I'm a Warrior   I can have a few servings of wheat without reacting.
I can probably do one or 2 servings a week without digestive trouble.  Wheat is one of my beneificial foods. I see the love/hate relationship with my body because when I don't eat wheat, I don't sleep as well. I sleep much better when eating it. My stomach doesn't like it though. I was tested for the IgE and it was negative for intolerance. I did test positive to a grass allergy and wheat is a grass  .  I noticed that I can tolerate wheat a lot more in the winter than spring/summer.

When I eat cow yogurt, I get a slight stuffiness but nothing like when I eat cheese. Good thing I'm not a Teacher or I'd be upset.  My only cheeses are paneer, feta and farmer. I can't even find quark cheese in the stores. Ricotta is a neutral thank goodness.
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Mayflowers
Wednesday, October 10, 2012, 12:53pm Report to Moderator Report to Moderator
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Quoted from Maria Giovanna
and otitis or like that. I had otitis bulosa hemorrhagica 10 years ago, nearly new to gluten free and BTD


Can you have peanut butter? Peanut butter is healing for the ear. It gives great hearing. I read this in a whole foods for health book, and I agree because, I love peanut butter and have eaten it regularly all my life and I have hearing that's too good actually. I never had any infections, only ear wax. Since I've been on the BTD, I went from having to clean my wax out from every 1-1 1/2 years to 9 years.  
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Lin
Wednesday, October 10, 2012, 5:02pm Report to Moderator Report to Moderator

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I have tested sensitive to a variety of food including gluten, dairy, eggs and yeast.  Never figured out what caused what symptoms but stopped getting hayfever (grass/trees) once I was off gluten/dairy, sugar and it came back when I ate it.
Symptoms that I remember, still get a few but haven't figured out what causes them:
Brain fog,irritable/mild depression, pulse goes up, stuffy nose, sinus pain more so in cheeks, phlegm in throat, migraine, runny nose, stomach bloats.  Believe dermatits rash I had in my early 20's was probably caused by it, around mouth would come and go.  Low blood pressure that went to normal after change in diet.

I also started getting dry eye few years ago but don't know if that is just menopause related.

I crave bread too...fortunately mostly satisfied with GF waffles and Rice tortillas.
Lin


Gluten/Casein and Yeast sensitivity.
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cajun
Thursday, October 11, 2012, 12:53am Report to Moderator Report to Moderator

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Ee Dan
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Lin,
What is your genotype? Just curious. Mayflowers, you and I all crave bread. I know many people do but being A's and technically having the stomachs for it..we actually don't ..or should not eat bread.


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Drea
Thursday, October 11, 2012, 1:43am Report to Moderator Report to Moderator

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Sun Beh Nim
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I can (and have) eaten a whole loaf of sourdough bread in one sitting. That's my love/hate relationship...

I don't think I have gluten issues, per se, but I do have issues with processed grains...I seem to do fine on whole kernals of wheat, kamut, spelt, rice, but flours...not so much.


It is not my responsibility to convince anyone of anything.
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Lin
Thursday, October 11, 2012, 6:22pm Report to Moderator Report to Moderator

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Ee Dan
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Cajun,
Depending on how I tick off the boxes I'm Teacher most of the time, sometimes Explorer.
What did you mean with  
"Mayflowers, you and I all crave bread. I know many people do but being A's and technically having the stomachs for it..we actually don't ..or should not eat bread"?

Are you saying as A's  we supposed to eat bread ?

Lin


Gluten/Casein and Yeast sensitivity.
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Drea
Thursday, October 11, 2012, 6:30pm Report to Moderator Report to Moderator

SWAMI Warrior ~ Taster, NN, ENFJ
Sun Beh Nim
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I know for myself, it's hard for me to eat just one or two slices of bread, so I often don't eat it at all.

I think cajun is referring to the fact that A's can tolerate grains better than the rest of the blood types. That's not to say we should be eating a lot of them, however.


It is not my responsibility to convince anyone of anything.
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Lin
Thursday, October 11, 2012, 6:35pm Report to Moderator Report to Moderator

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Ee Dan
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Drea,
Thanks - that was what I thought about A's and grains, probably is what Cajun meant.
I suspect when our good bacteria is not in balance bread with it's yeast is probably not helpful, or at least that is what I suspect for myself. Probiotics help a lot.
Lin


Gluten/Casein and Yeast sensitivity.
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Drea
Thursday, October 11, 2012, 6:37pm Report to Moderator Report to Moderator

SWAMI Warrior ~ Taster, NN, ENFJ
Sun Beh Nim
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I don't do well on processed grains, so that leaves out bread and crackers...whole grains in their whole form works better for this A. And yes, Polyflora is my close friend.


It is not my responsibility to convince anyone of anything.
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Chloe
Thursday, October 11, 2012, 8:36pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,176
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Location: Northeast USA
Age: 71
For bread cravers, I suggest making flax bread.  Sometimes it's the memory of bread that we want...
Flax bread is yummy toasted with ghee on top....or with peanut butter...any nut butter and works
well if you want to make a sandwich.  I make a few batches and freeze in portions.  Easy to heat up
or toast one slice.  I sometimes do eat a sandwich made with gluten free bread but most of it isn't
very appealing.  I find eating more beans and starchy vegetables like butternut squash, carrots,
beets and other root veggies has stopped me from wanting grains.  Even a plate of peas can distract
me from grains.

I've been off gluten going on 8 years this month and honestly, the thought of bread isn't on my radar
screen anymore.. Some days I don't even eat grains at all.  I honestly think it's a yeast overgrowth problem that bread cravers are experiencing.  It's probably also sugar and everything carb-y that feeds yeast.  The symptoms of sinus issues, aches, pains and bloat is generally an issue with candida.  Any time I wanted something overly carb-y, I know it was unbalanced gut flora.

I know I didn't start off this way....I used to be able to eat gluten grains until I was treated for Lyme
disease in the early 90s and had many rounds of abx. After that I had a chronically inflamed gut..
symptoms of celiac...I think once I had so much gut irritation, the gluten just eroded my intestinal
tract even further.  Same thing happened to my oldest son after he too was treated with a long abx
protocol because of Lyme.

The result of gluten damage made me incredibly intolerant to dairy.  Casein intolerance and gluten
intolerance co-exist in many gluten intolerant individuals.

I've been taking an enzyme formula called Gluten Ease.  I take it when I eat a compliant cheese...
because it helps to digest casein from dairy as well as gluten from grains.....

http://www.enzymedica.com/products/GlutenEase

This one product has changed my life.....has allowed me to tolerate the one and only cheese that is
beneficial....manchego....And the only reason I've tried to force my body to tolerate any cheese is
because a low overgrowth cheese in a Teacher's diet helps to heal the gut.   I'm finding this to be true.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Lin
Thursday, October 11, 2012, 9:00pm Report to Moderator Report to Moderator

A+ Secretor, INFP
Ee Dan
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Age: 60
Chloe,
I agree with you on the high probability of it being due to yeast overgrowth problem that some of us crave bread. And that sadly, the sugar/carb food feeds yeast.  
I will try to remind myself when I get the carb craving that it is the yeast issue.

I have the casein intolerance too and for a long time I've avoided all cow's dairy.  But I've been wanting to try some dairy because like you I keep re-reading that sentence that says a low overgrowth cheese in a Teacher's diet helps to heal the gut.
I also recently thought of trying the Gluten Ease with cheese but only today tried it with greek yogurt (do you find you can eat yogurt? I took a gluten Ease along with it hoping it will help.  I could feel a very slight stuffy feeling in the nose but I'm crossing my fingers on this experiment .
I'm glad to hear you are finding the cheese is helping heal your gut.
Lin


Gluten/Casein and Yeast sensitivity.
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Chloe
Thursday, October 11, 2012, 9:32pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,176
Gender: Female
Location: Northeast USA
Age: 71
Quoted from Lin
Chloe,
I agree with you on the high probability of it being due to yeast overgrowth problem that some of us crave bread. And that sadly, the sugar/carb food feeds yeast.  
I will try to remind myself when I get the carb craving that it is the yeast issue.

I have the casein intolerance too and for a long time I've avoided all cow's dairy.  But I've been wanting to try some dairy because like you I keep re-reading that sentence that says a low overgrowth cheese in a Teacher's diet helps to heal the gut.
I also recently thought of trying the Gluten Ease with cheese but only today tried it with greek yogurt (do you find you can eat yogurt? I took a gluten Ease along with it hoping it will help.  I could feel a very slight stuffy feeling in the nose but I'm crossing my fingers on this experiment .
I'm glad to hear you are finding the cheese is helping heal your gut.
Lin


I seem to do better on manchego because it's a raw sheep's milk cheese.  I only have 3 beneficial
dairy food choices. Ghee, yogurt and manchego.  Given yogurt is from cow's milk, I haven't quite
gotten past the stuffy nose although it does help to take Gluten Ease along with it...Manchego
doesn't cause any negative symptoms (but still I take Gluten Ease with it too).  I just can't
tolerate any dairy unless I take that particular enzyme along with it. I've tried and it's impossible.

So the issue I think is compounded for many of us....I think dairy intolerance is from a lack of the proper enzyme, a digestive system that was probably first damaged by antibiotics,  long term
dysbiosis, some form of candida whether it's overtly obvious or not....not following our diet 100%
and never healing the gut fully.  For Teachers, a double edged sword...eating dairy but not digesting
dairy possibly because our guts are too damaged to create the right enzymes or we're simply not
digesting anything very well and gluten/dairy just adds more inflammation.  A leaky gut means that
undigested proteins are circulating in our bloodstream, causing inflammation systemically.

As much as this appears that it's the fault of gluten....I remember eating gluten for ages and never
had a problem until something obviously did damage to my gut....and caused me to wind up with
so much inflammation that I keep blaming it on gluten intolerance. I'm too afraid to ever eat gluten
again but everything I've read on enzymes tells me that this isn't the solution....Swami gives me
a few gluten grains. I would like to be able to eat rye bread...100% rye and spelt and grains that
aren't hybrid wheat or GMO grains.

I'm still working on this. I just think too many people are calling themselves gluten intolerant for
reasons that are different from a genetic component of gluten intolerance.  We eliminate gluten...
we start to heal...we say to ourselves "yes, I'm gluten intolerant...."  but I don't believe this is true
for me...I think I became gluten intolerant and somehow I'm determined to be able to eat it again
when I feel brave enough to try a non GMO gluten grain....a little at a time, taking the Gluten Ease
enzyme along with it. Not quite ready...but I WILL do it...



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Maria Giovanna
Thursday, October 11, 2012, 9:46pm Report to Moderator Report to Moderator

Teacher
Kyosha Nim
Language Expert
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Location: Italy
Age: 53
hi Diana, if  I do not mix gluten and milk I am safe and I can peanut butter of course, though often I use sesam butter  thickened with almond flour on  muy crackers or rice cakes


INTJ Italy celiac��
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Lin
Thursday, October 11, 2012, 11:09pm Report to Moderator Report to Moderator

A+ Secretor, INFP
Ee Dan
Posts: 827
Gender: Female
Location: Maryland US
Age: 60
Chloe,
Most of what you've written applies to me.  
I have done a gluten, dairy and yeast test with Enterolab and that convinced me to keep gluten out of my diet.
I suffered with Hayfever from age 3 (trees and grass pollent). But when I stopped eating gluten and dairy the hayfever stopped. But I didn't connect it the first year until I was helping out at my children's school and ate regular bread and all they hayfever symptoms kicked in.  Then the next day when I went back to GF/DF the symptoms went away.
I also used to get awful mucus with colds, and started getting bronchities in my late 30's.  I don't have those issues anymore.  So definite food connection.
I think you are right on the yeast/candida- leaky gut connection also.
I have bought manchego cheese and perhaps tomorrow will try that with the Gluten Ease.
am going to try that with the gluten ease.
Lin


Gluten/Casein and Yeast sensitivity.
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cajun
Friday, October 12, 2012, 11:55pm Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,455
Gender: Female
Location: Southern California
Age: 62
Hi Drea and Lin!
Yes, thanks, that is exactly what I meant. As A's we have the stomachs for grains that most of the other blood types don't.
But, there are many of us that are at least gluten sensitive, or like Drea, do not do well with processing.
BTW, Drea, sourdough...the real stuff...is the one bread I am able to eat within reason that doesn't bother me! The trouble is the "within reason" as I, too, can easily eat a whole loaf of that heavenly food!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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cajun
Friday, October 12, 2012, 11:59pm Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
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Chloe,
You and I have the exact same 3 dairy bennes on swami. Yea for manchego!
Drea,
I take polyflora daily.


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Mayflowers
Saturday, October 13, 2012, 3:37pm Report to Moderator Report to Moderator
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Quoted from cajun

Mayflowers, you and I all crave bread. I know many people do but being A's and technically having the stomachs for it..we actually don't ..or should not eat bread.


This is maddening! We are the ones who should eat bread and we can't!! AHHH! I was going to try to make a sour dough spelt bread, after reading that the sour partiay digests the gluten and makes it edible. I read that in pioneer days, that's how wives made bread, using wild starter and they never had stomach issues from eating wheat. Now, people use the ready made yeast to raise the bread and it does not do the same thing...not as healthy.  

I get benefits from wheat. I have sprouted wheat bread as a diamond, and I also have emmer, spelt and kamut as beneficials. I see the benefits when I eat it. I sleep better, I feel calmer. The only issues I have with it are indigestion and rashes. (I have 'lady' issues that only flare up when I eat GMO wheat) I think my problem is more of a wheat allergy (to Frankenwheat?). I was tested for gluten intolerance with a blood test and it was negative...   Dr. D told me to stick with spelt and the ancient forms of wheat becuase they can be digested easier. I tend to cheat...
Plus the fact that it's a lot more difficult to lose weight eating regular GMO wheat.
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Mayflowers
Saturday, October 13, 2012, 3:43pm Report to Moderator Report to Moderator
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Quoted from Chloe
For bread cravers, I suggest making flax bread..


I tried making flax bread out of flax seeds. It triggered anxiety attacks every time I ate it.
Must be the 'estrogen' like component of it because I had more anxiety when I had higher estrogen levels then now.

Quoted from Chloe
I honestly think it's a yeast overgrowth problem that bread cravers are experiencing.


Not with me. I LOVE the taste of wheat bread. I can live on it. Like Drea, I can eat a whole loaf in one sitting. I almost did that with Challah bread once. So with me it's the taste.. I just love the taste of wheat.

Sounds like you and your son were more antibiotic damaged in your intestines, not gluten damaged..the antibiotics destroyed all of your good bacteria and you couldn't digest gluten anymore. Or the Rx triggered a gluten intolerance gene to kick in.
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