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Celiac disease  This thread currently has 3,326 views. Print Print Thread
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khoipri
Saturday, August 7, 2010, 3:09am Report to Moderator Report to Moderator

Hunter
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I have just read about Celiac disease on wikipedia:
http://en.wikipedia.org/wiki/Coeliac_disease#Signs_and_symptoms

It made me sad alot. Before i followed BTD and GTD, i had been eating alot of wheat, bread for years, because they are delicious, tastety. There was a time, just 2 or 3 months ago, i just thought wheat is better than rice, so i ate bread instead of my traditional rice dishes, it was really really bad. I began to have white lines on my fingerprints since i was 13, sometimes they bled and hurt me alot. I used alot of drugs, but didnt make any sense.

Now i know, all the bowel, heath problems i got and still suffering from them recently come from such a troublesome substance called Gluten. That also explains why i went to doctors to examine my bowel occasionally but they couldnt help my bowel healed.

All the problems im having right now are so many: weight loss, muscular pain ( especially my shoulders), burping and irritable bowel, insomnia sometimes, boiling intestine ('cause of bubbles inside), easily exhausted and tired. All those made me hard to focus on the last semester, and i passed with a dissatisfied grade . I had done BTD for more than 1 month before i turned into GTD, 3 weeks right now, I feel better but problems still remains as above.

I know there is only a way to heal my gut, it is to keep follow GTD. But i dont know how long it takes for me to recover and are there some typical foods that can help me recover more quickly?

I am afraid that maybe i fall into this kind:

"Refractory disease

A tiny minority of patients suffer from refractory disease, which means they do not improve on a gluten-free diet. This may be because the disease has been present for so long that the intestines are no longer able to heal on diet alone, or because the patient is not adhering to the diet, or because the patient is consuming foods that are inadvertently contaminated with gluten. If alternative causes have been eliminated, steroids or immunosuppressants (such as azathioprine) may be considered in this scenario."



Khoi



Thank life that every morning i wake up, i have one more day to love!
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deblynn3
Saturday, August 7, 2010, 3:18am Report to Moderator Report to Moderator

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Think positive, Time is your friend. If you have Celiac disease you will always need to stay away for the gluten.  Healing takes time. I don't think we're talking weeks but months here. Be diligent and read your labels. Get the gluten out of your diet. You will heal it just might take some time. Enjoy your rice.


Swami, 100% me..
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Possum
Saturday, August 7, 2010, 3:22am Report to Moderator Report to Moderator

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Yeah - you are young still... I am sure you will heal
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ABJoe
Saturday, August 7, 2010, 3:41am Report to Moderator Report to Moderator

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One of my sisters didn't find out she was celiac until she was 30 years old.  We had eaten wheat bread from the time we could start chewing.  She has been gluten free for several years and doesn't follow Dr. D's diets, and she is pain free...

I am sure your gut can heal as long as you can keep gluten free.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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khoipri
Saturday, August 7, 2010, 3:57am Report to Moderator Report to Moderator

Hunter
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Thank you, your words keep me up a lot!

Im on my own right now, this forum is my only place i can confide in. Even my mother doesnt support me now, she just ironically smile when i tell her anything about blood type, diet, harmful things,...etc. I know she always wants the best for me, but what she wants right now is that i eat like anyone else here, alot of pork and many things that have already hurt my gut. She simply lets me free of what i want to eat because i am always mad at her when she talks about my eating. Sometimes, that makes me sad but i have some friends who are really friends that support me, i think that is all i need right now!



Thank life that every morning i wake up, i have one more day to love!
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christaalyssaA+
Saturday, August 7, 2010, 7:48am Report to Moderator Report to Moderator

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Khoipri - *hugs* I can totally relate to you sadness and frustration about not knowing for so long. I too do terribly with gluten. YAY for us though for figuring it out! Imagine if we still didn't know?

Pork is deadly and with your culture there are so many pork dishes.

Hang in there!


O positive baby boy.
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Jerome
Sunday, August 8, 2010, 3:09am Report to Moderator Report to Moderator

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khoipri, you could also try taking Deflect O (http://www.4yourtype.com/prodinfo.asp?number=BT004O), to help heal the past damage from wheat and other offending lectins for O's. That's what I'm doing right now, as I was also having a lot of problems with wheat before I found Dr. D'Adamo's work a few months ago.

Also, there is something that is referred to as "the celiac iceberg," which refers to the continuum that exists with a diagnosis of celiac disease (the tip of the iceberg) and the majority of those that have problems with wheat but don't receive the diagnosis (the submerged iceberg), for several reasons, including the wheat lectin itself, the gliadin in gluten, and other factors. It's comparable to the situation with Type 2 diabetes, prediabetes, metabolic syndrome X, etc. There is a pathway to the end stage disease state of a diagnosis of "diabetes" that includes many more people with problems with blood sugar and insulin than are diagnosed. What I'm trying to say is that you could be anywhere on the "celiac continuum," and following the diet and maybe doing some anti-adhesive therapy with Deflect are two great ideas in my opinion. As far as typical foods to help you recover quickly, I don't know, maybe someone else does?

Good luck with your healing
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Vicki
Sunday, August 8, 2010, 3:51am Report to Moderator Report to Moderator

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Your body will thank you for the changes!  It may take time to heal but you'll see progress along the way.  

Do you have ghee available to purchase?  If not, it is easy to make at home with butter.

Check out some threads on ghee and the benefits of ghee:

http://www.dadamo.com/B2blogs/blogs/index.php/2009/01/15/butyrate-and-ghee?blog=27

http://www.dadamo.com/typebase4/depictor5.pl?52

http://www.dadamo.com/cgi-bin/Blah/Blah.pl?b-GC/m-1272518976/s-50/
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Lola
Sunday, August 8, 2010, 5:31am Report to Moderator Report to Moderator

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Quoted Text
Vicki
PIctures of the process using stovetop method:

http://tinyurl.com/9e7zsc


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Maria Giovanna
Sunday, August 8, 2010, 7:19am Report to Moderator Report to Moderator

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Pineapple and bromelin help a lot, Khoipri, to digest and broke the harmful gluten and gliadins and to catch them with mannose. I hope you can find it often !


INTJ Italy celiac��
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Melissa_J
Sunday, August 8, 2010, 9:15am Report to Moderator Report to Moderator

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Intrinsa is a supplement that made a big difference for me.  It does take a long time to heal and the first few months are always bumpy...it sometimes does get a bit worse before it gets better, but it will get better especially with the GTD working for you.  So, it is normal to go through this, and in most people, it does pass.  I think BTD/GTD would heal all the cases of refractory celiac disease...celiacs are extremely lectin sensitive, so it only makes sense.

I reacted to so many foods my first 4 months of gluten free, and I'd already been very low gluten on BTD for five years before that.  

Ironically, Intrinsa made me quite sick when I first started taking it (diarrhea), I had to start at a very low dose and work up to a full dose over about a year.  It proved to be worthwhile though, and my immune system and digestive system are more predictable and less reactive now than they have been in a long time.

Even your family will become supportive, in time.  It was very hard for me at first, and even harder to try to control my children's diet when they began to show symptoms... wheat is a huge part of my culture.  But now half of my siblings, 5 of their children, and both my parents are also gluten free and feeling better than they have in a long time.  I can't quite push anybody into BTD or GTD-land, but at least the wheat is gone.

For the muscle pain, that may be a vitamin deficiency.  If the doctors can test you for the fat soluble vitamins, that may shed some light on it.  I know D deficiency can cause low calcium, nerve problems and muscle weakness (I had those) I don't know for sure about muscle pain, but wouldn't be surprised.  


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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RedLilac
Sunday, August 8, 2010, 3:09pm Report to Moderator Report to Moderator

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When your friends and family see the improvements in your health, then they’ll support you.  In the meantime we’re here to listen.


I am B- NON-Sec Explorer; my son is B+ SEC Nomad; my Mother was O+; and my Father was AB-
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AKArtlover
Sunday, August 8, 2010, 4:21pm Report to Moderator Report to Moderator

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Probiotics right for your type in the store should be helpful too. Chin up. With what you are discovering, regardless of if you actually have celiac or not, you have the opportunity for awesome health. Keep coming here for support-- awesome group of people!


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
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ruthiegirl
Sunday, August 8, 2010, 7:34pm Report to Moderator Report to Moderator

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Are you living with your parents and siblings, or do you have your own apartment with your own kitchen? It can be hard to prepare 100% gluten-free foods in a kitchen where somebody is still using wheat flour- a bit of flour from her baking might accidentally fall into your rice dish, or she might season the rice for the whole family and accidentally use a seasoning with  gluten (or another avoid) in it.

OTOH, if you're living alone but having meals with your parents a few times a week, it's easier to control your diet.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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Melissa_J
Sunday, August 8, 2010, 8:24pm Report to Moderator Report to Moderator

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Yes, if you are sharing a kitchen, cook your food before they get started on theirs.  The flour can hang in the air for at least 15 minutes.  Don't share a toaster, get your own, because a toaster can't be cleaned between uses.  Likewise, porous cooking tools can't be cleaned adequately (cast iron, wooden spoons).  Sponges can harbor gluten indefinitely, wash your things with cloth instead.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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khoipri
Monday, August 9, 2010, 8:05am Report to Moderator Report to Moderator

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Quoted from ruthiegirl
Are you living with your parents and siblings, or do you have your own apartment with your own kitchen? It can be hard to prepare 100% gluten-free foods in a kitchen where somebody is still using wheat flour- a bit of flour from her baking might accidentally fall into your rice dish, or she might season the rice for the whole family and accidentally use a seasoning with  gluten (or another avoid) in it.

OTOH, if you're living alone but having meals with your parents a few times a week, it's easier to control your diet.


Actually, im home with my family because it is summer now. But i do the shoppping and cooking all by myself, it is easy for me to control everything. I will be back to city 7 days later, and there i live and study by my own , so i can go on easily with GTD. Pineapples here cheap and easy to find, but i dont have it occasionally since i havent had a fruit juicer, i have planned to buy one when i am back to city.

Im wondering when is the best time to drink pineapple juice? after meal immediately or 15 or 30 minutes later

My pain could come from vitamins and canxi deficiency.Maybe my gut hurts a lot
and cant absorb them very well, i hope i will be better soon.

Khoi



Thank life that every morning i wake up, i have one more day to love!
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Maria Giovanna
Monday, August 9, 2010, 10:39am Report to Moderator Report to Moderator

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Kyosha Nim
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Pineapple is perfect also sliced ! as a dessert after your meal, at least for me ! A slice or two fasting before breakfast could have also a good effect !


INTJ Italy celiac��
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WomanAboutTown
Tuesday, August 10, 2010, 1:00am Report to Moderator Report to Moderator
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I just registered for this site about 15 minutes ago.  I was diagnosed in May 2010 with Celiac Disease via a blood test and an endoscopy.  Went to my doc with stomach/chest pains and stinky gas (sorry folks!).  I really had none of the usual symptoms which are diarrhea and/or vomiting.  I'm Type 1 diabetic too (insulin shots) and I understand they are prone to celiac.

Anyway, I've been working pretty hard to get gluten out of my diet, and read labels to be sure there's no hidden gluten (and there's a lot of it...even in cosmetics!).  The process is slow and I must be diligent...difficult for me because I like to give up easily out of sheer exhaustion or brain overload (one of the many symptoms of celiac).  Even though I'm off gluten (as far as I know) I'm now experiencing symptoms that haven't really been there before.  So that makes me wonder about other food allergies and if they can mimic the fatigue, anxiety, sadness, acid stomach and inside of mouth burning, blah blah blah.

I went to a dietition and she said to check out the BTD.  Interesting I had the book about 8 years ago, even found out if I was a secretor or nor...but I don't remember my blood type nor whether I'm a secretor or non-secretor...damn!  Looks like I have to start all over again.

So, until I get tested again, I just guessed I was Type O...the most common, just for starters (I remember being disappointed because I wasn't "special") but then thinking maybe I'm a Type A.  The BIG difference for me is that one of them  (is it Type O?) suggests I should be drawn to high impact exercising...NOT!!!!  I'm more of a yogi than anything...tho I'm too tired to do that now.

So, I guess what I'm trying to share or ask is:  If I'm off gluten...been very careful...do some of these other symptoms resemble other food allergies that the BTD might help?????

Thanks!

P.S.  If anyone needs to talk about Celiac, you're welcome to private message me.  Since I just joined site, i'm not sure when this can be done...or even when this post will show up in the forums.
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Jerome
Tuesday, August 10, 2010, 2:02am Report to Moderator Report to Moderator

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Welcome! I just recently joined as well. I can shed a little light on a few things. First, all blood types can develop celiac disease, but perhaps through different mechanisms, so it would definitely be a good idea to find out your blood type. Second, I think the BTD could be of great help to the other symptoms you are experiencing, as it removes problematic foods, depending on your type, that you may not even have considered. Being celiac, you are probably more sensitive to many of the lectins in the diet than others without that much damage to their small intestine, so removing these can help your gut heal and reduce the inflammation and other disturbances caused by those lectins. But yes, I think the diet will help, take heart!
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Lola
Tuesday, August 10, 2010, 5:02am Report to Moderator Report to Moderator

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Sa Bon Nim
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You can help the other members of the forum help you by choosing a blood type shield to display beneath your name.

how to
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1219018887/s-/s-new/#num1

Welcome!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
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khoipri
Tuesday, August 10, 2010, 6:57am Report to Moderator Report to Moderator

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I have tried to eat raw onions and raw garlics mixed with rice and some other benificials, ground toasted sesame for 3 days, it is really good though it made me cry at the very first time and i feel better with my irritable bowel, and can sleep. I have just gained another 5 lbs in about 2 weeks, so happy . is that true that onions and garlics helped me out?



Thank life that every morning i wake up, i have one more day to love!
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AKArtlover
Tuesday, August 10, 2010, 12:11pm Report to Moderator Report to Moderator

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khoipri-- great for you!
Welcome WomanAboutTown and Jerome, sounds like you are on the right track.

Stink about needing to redo your tests, but they are really different ways of eating so it's best to know for sure. For blood type, you may just donate blood if you are able to or this website offers a test for under $10. Getting your secretor status is an important piece of the puzzle as you know but not as critical. Most of the people that don't have success initially are usually nonsecretors and it is a huge relief when they find out and adjust. With celiac, though, nonnies are more prone (so it makes me think you are more likely to be nonnie than the general population), so you might want to do that ASAP.

Other allergies are common in celiac, from my understanding, especially casein. And I agree with Jerome-- from my understanding, when your gut is shot, those lectins can be especially bad.

Dr. Fassano, head of the University of Maryland Center for Celiac Disease Research, http://celiaccenter.org/ told me in an interview that the cosmetics aren't really an issue and there is a lot of misinformation on the internet. However, I'm wary of any chemicals on my body, especially cosmetics which can have known carcinogens without legally having to be labeled.

Hope this is helpful. Again, welcome, there is a great group of people on here that can give you some ideas for things to consider.







"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
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Chloe
Tuesday, August 10, 2010, 12:33pm Report to Moderator Report to Moderator

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http://www.aka.fi/en-gb/A/Acad.....-gluten-intolerance/

.......the hypothesis that gluten intolerance could have been triggered by a virus.  I had mono in college... grew up with no signs of gluten intolerance but after mono, my digestive problems began....and got progressively worse....until I had full blown signs of celiac by the time I was in
my 30s.  Went for upper and lower GI series and was told I had "gastritis"...I honestly feel this
was the beginning...and probably when it became close to impossible to absorb B12 from
my diet...or even be able to absorb nutrients from anything I was eating.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Easy E
Tuesday, August 10, 2010, 1:22pm Report to Moderator Report to Moderator

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Its good that you find out sooner when you are young rather than later after damage has been done for a long time.  There are many people that were not fortunate enough to have the information this book provides.  Hunters are said to be very resilient and recover well when they begin to eat right and exercise right.

The results will speak for themselves!
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ABJoe
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Quoted from khoipri
Even though I'm off gluten (as far as I know) I'm now experiencing symptoms that haven't really been there before.  So that makes me wonder about other food allergies and if they can mimic the fatigue, anxiety, sadness, acid stomach and inside of mouth burning, blah blah blah.

If I'm off gluten...been very careful...do some of these other symptoms resemble other food allergies that the BTD might help?????

These other symptoms may have been here all along, but masked due to the celiac symptoms.

I think BTD or GTD diets will help everyone.  Even if they don't notice immediate benefits, their body will have less wear and tear as they haven't needed to battle constant inflammation and filter the lectins and other problems throughout their life.  Eating per BTD will reduce inflammation which will help all aspects of health, including any allergy response.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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