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Mom has dementia  This thread currently has 3,511 views. Print Print Thread
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Amazone I.
Tuesday, December 11, 2012, 8:21am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
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Location: CH-Benglen Kanton Z�rich
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I once wrote about the experiment done with nuns in Germany... they observed their behaviuours and attitudes for a longer time (all were in her upper 80ties... ) und they gave the committment to get dissected after her deaths and the oldest (about 103 years old) was one of the fittest all time long in her attitudes... never showed any signs of any dementia but after her death she showed up the most of plaques in her brain and the reseachers didn't expected such a result ... you see... it's also here a question of mental attitude   ....and yup a healthy lifestyle and foodintake is in my oppinion the response to a lot of diseases......


MIfHI K-174
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PCUK-Positive
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Kyosha Nim
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Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Jane
Tuesday, December 11, 2012, 5:08pm Report to Moderator Report to Moderator

Kyosha Nim
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My mother had some TIAs in the early 90s.  What percipated full blown dementia was a double surgery (both neuro and ortho) on her back in the late 90s.  She was out for about 6 hours and was never the same after that.  She was diagnosed at a rehab where she went for 6 weeks after her back surgery. She was put on Aricept and she stayed the same for a lot of years.  She did have some incidents of wandering.  Once she walked out of their room at the Assisted Living and right out the emergency exit in her nightgown.  My father had to put a lock up high that she couldn't reach.  After he died, I had to put her in an Alzheimers' unit.  She was there until her death last year.  It's so sad to watch someone who was so bright and so vibrant decline like that.

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Kyosha Nim
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Very sad.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Amazone I.
Wednesday, December 12, 2012, 8:43am Report to Moderator Report to Moderator

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Kyosha Nim
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amazing amazing PC...your article about AZ is some lines long but the *comparisons articles about *females today* nearly kilometers .....


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jeanb
Wednesday, December 12, 2012, 1:11pm Report to Moderator Report to Moderator

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Kyosha Nim
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Perhaps the study should read, is an Extrovert feeling lonely, even though they have friends, a first sign of Alzheimer's? My mother had lots of friends, never felt lonely, was always involved in her community.  

When she showed the first signs of AD, she started to become increasingly suspicious of her friends and she slowly became more introverted, refusing contact with others.  She would then say she is lonely and I would point out that she wasn't making or keeping friends.  This started about 7-8 years ago.
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jeanb
Wednesday, December 12, 2012, 1:22pm Report to Moderator Report to Moderator

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Kyosha Nim
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I am constantly being bombarded with, if you give your mother xxx, she will improve.  I know/don't think there is a magic bullet to cure/control her AD and I am becoming increasingly frustrated with this type of theory.  

It also drives me crazy to hear stories like, xxx found the cure to AD and governments and drug companies suppress the information.  My mother's gerontologist has her on fish oil, all different sorts of B's, different mixtures of cal, mag, D etc.  They have tried all types of things, until we decided only pain meds and thyroid.  I can tell you, the provincial government is pouring about $7000 per month into my mother's care, if there was a cure, they would be using it right now.  

The issue is the brain, once damaged does not recover, the damage to my mother's brain started when she was born with the APOEe4 gene, was expressed when she lighted that first cigarette over 70 years ago and accelerated when she couldn't walk because of a congenital hip dislocation, and was finalized when her sister died from AD.  
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Goldie
Wednesday, December 12, 2012, 1:30pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
Action plan:  
Eat per SWAMI.  
Supplement to assist digestive / eliminative function, if NEEDED!  
Take Trehalose Complex to stimulate autophagy (for adults).
Obviously, treat any other conditions as they develop, but don't sweat (worry about) the rest - as there isn't any assurance that we won't get any specific condition.  We do the best we know and pray for the best!


Yes to the above.. thanks.. good for all of us..  

Quoted Text
My mother and I both have the APOE e4 gene which is a 50% indicator of Alzheimer's that is onset in ones' 80's.  


How much is this test and how to get it? how is it done?

Trehalose I am certain is great stuff.. I am taking it .. again after a break.. I take it with lemon juice during the night.. I think it does wonders for me... my tongue again is much clearer..and has healed.. over time after damage from teeth for 10 years..!!

I have a wondering mind about this BRAIN stuff.. I am finding that sometimes I can not think of words I darn well know.. I can not recollect what I was just talking about.. and I am much less able to recall what I darn well know or knew..

I do not have dementia yet.. I darn well do not want to have it, I wish to die much sooner than the day when I have to admit that something is wrong.. This feeling of not having recall of things I used to have stored in some place in my head is darn scary.. I feel already as if I have much less to contribute during conversations.. I feel more inadequate than ever.. Its like typing and momentarily not knowing how to find a certain key.. or find a word I know!  

I do not have Alzheimer's.. AS FAR AS I KNOW.. but I am near certain I need to be tested for the possibility.. I AM diabetic and therefore 50% more prone to this illness.. a prospect I cam across about a year or two ago, and mentioned it here..  

I am however not certain that anything I do or do not do will make a darn difference.. I will get this NO matter my efforts to eat right.. I COME BACK to saying that I eat WAY better even on a bad day than, others on standard diets-- and have done so for several decades!.. I am healthy and feel great when 'compliant'.. a word I could not spell yesterday for the life if me.. and all here who know me, know that I know that word..

Typing I also think just slows down, like more choppy, not flowing.. I do not have this damm thing, I am not worried, I am just saying IF I do have it.. darn well it has started already.. I am 69 and have no idea how to stop this.. I have even less of on idea how to live with it and finally be released from it IF I have it.. how does one get out of this world without becoming a burden, and losing all dignity?   there was a play: STOP THE WORLD I want to get off... and this is not my fault for anything!!!!!!!!!!!!! I have never done anything wrong other than Tylenol for pain for about 15 years.. Oh well.. my kidneys will give out first.. I WONDER if they have already started.. (I void much less powerful for the last few years.. since my hip replacement)  

I am not worried YET, but how to deal with fining out? and then what?  I mean it.. there is help needed here.. we need another serious thread about it.. but this one is more than good ! thanks all .... I needed this ...

I am going to make on appointment in the Amen clinic at a few thousand $  for a brain scan if they do that work.. I will find out more and report here.. They are doing interesting work with brain scans..

Sandra.. I am not taking over this thread.. it is not about me here.. I love the way you allowed your brother to stop the meds.. I think along the same lines.. IT is such a dread illness, I love you for posting here.. All the best.. all and more than that ..     


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

Revision History (1 edits)
Goldie  -  Wednesday, December 12, 2012, 1:42pm
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jeanb
Wednesday, December 12, 2012, 1:47pm Report to Moderator Report to Moderator

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Kyosha Nim
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The APOE e4 gene (and other variations) can be tested through 23 and me.  The company has a sale on right now for $99.00.  There is another thread on this.  

This is a great price for the testing.

Goldie, I don't think it is a burden taking care of my mother, I know my sister and brother think the same way, in a way it is a privilege to be her advocate when she gave so much to us.

I think this disease has made my siblings and I better adults.  For many years my brother and I were estranged from my sister.  My sister has become far less hostile because of my mother and her disease and my brother and I have found "a new, competent" sister through this all.  

My cousins were torn apart by their mother's disease, they have not talked in the 3 years since she passed away.  The total burden for my aunt's care went to my female cousin and I think there is a lot of resentment between them because of the stress of the disease.  

Revision History (1 edits)
jeanb  -  Wednesday, December 12, 2012, 1:57pm
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jeanb
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Kyosha Nim
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Here is a link to a good article on APOE e4 gene and the pathways of AD.

http://www.memory-key.com/research/topic/genes
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PCUK-Positive
Wednesday, December 12, 2012, 2:09pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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I read that many people are having both breasts removed following testing by this type of company, which seems ridiculous to me (although I am a man).

Why wouldn't they try something else or look into it properly. good it may only effect some of them, albeit you don't know who but they could get knocked down by a bus!

If they all ate correctly (for their type)and didn't smoke etc.

I think there is some sort of connection with all this extreme reaction and current toxicity or something. loads of suicides over what appears to be silly things etc.. (don't mean to down play depression of course) but you know what I mean. madness!


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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ruthiegirl
Wednesday, December 12, 2012, 2:19pm Report to Moderator Report to Moderator

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Kyosha Nim
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Information is a double-edged sword. What you DO with the information is important. If you think there's nothing to be done, that you're doomed to a painful death, then the suicides make more sense. If you see this information as a wake-up call, think "Wow, I'm prone to this horrible  disease so I really can't afford to ignore my health" and then get a SWAMI, follow it 100%, exercise properly, etc, then the information is being used for good.

I happen to agree with you on the ridiculousness of prophylactic mastectomies. Yet the women who have that surgery feel like they're taking charge of their health and using the information pro-actively to prevent cancer.

When my aunt was diagnosed with breast cancer a few years ago, both she and my mother (her sister) got tested for the breast cancer gene. Fortunately, both tested negative, so I and my cousin don't need to test for it. Had mom's been positive, I would have had the testing too, for her peace of mind if nothing else. But I'm not sure what I would have done had it been positive, and I'm glad I don't have to make that decision.

Jeanb- I can only imagine what it must be like to deal with your mom's illness plus the unwanted advice from all these well-wishers. I think the best thing you can do is support her in whatever way SHE wants to be supported, plus take charge of your own health to minimize your chances of getting dementia when you're older.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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jeanb
Wednesday, December 12, 2012, 3:19pm Report to Moderator Report to Moderator

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Kyosha Nim
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Hi Ruthie;

Thanks for the support.  

My mom is now to the point when she looks at me, she thinks either I am her or I am her mother.  She honestly doesn't know who she is anymore.  She loves chocolate and can eat it because it melts in her mouth. She doesn't have very many wants anymore, but she needs someone to tell her what she needs.  

I have never smoked (not even a puff!!), I get vigorous exercise everyday, I try to eat the Gatherer diet, I use my mind every day whether it is in accounting or solving IT issues or reading, and I have lots of connections with my family and community. But I have worked in chemical, welding and other types of "dirty" mfg businesses which may or may not contribute to the expression of genes.

I hope to continue this regimen as long as I possibly can to stave off the disease. My goal is to be able to ski the Rockies even into my 80's, but I am fully aware my family history contains AD and I might not be able to keep it at bay.  The scarier one in my family is my husband who has sustained many blacking out concussions from sports and whose father died of dementia.  My husband's childhood memories have been wiped out as a result of the hits.  We joke about who is going to get dementia/AD and when....  
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PCUK-Positive
Wednesday, December 12, 2012, 5:35pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,881
Gender: Male
Location: UK
Age: 53


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Lin
Wednesday, December 12, 2012, 10:07pm Report to Moderator Report to Moderator

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Ee Dan
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Heard about something Doctors mistake for Alzheimers could be worth checking out. It is called NPH
normal pressure hydrocelphalus.  If you google, there is information on the web about it.
Lin


Gluten/Casein and Yeast sensitivity.
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PCUK-Positive
Wednesday, December 12, 2012, 10:18pm Report to Moderator Report to Moderator

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Kyosha Nim
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Age: 53
normal pressure hydrocephalus


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Goldie
Wednesday, December 12, 2012, 10:43pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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Location: East Coast
Quoted Text
Here is a link to a good article on APOE e4 gene and the pathways of AD.

http://www.memory-key.com/research/topic/genes

THANKS>>

The burden I speak of is as much MY burden to carry on with my health.. I took care of mom for 10 years and love the memories of it.. even the hard days..

Burdens is what we experience, some are real other' s transitory and stem form being tired.. fear is a burden I wish to put down.. lay my head on my pillow and sleep..

If I developed infirmities that I have no say over, I would want to have someone come here and tell you all .. most likely I would just fade away..

I would want someone to continue my treatments for neropathy, no matter what my care givers would think about..

I would want to have 6 pillow's on all sides of me when in bed.. and STAY ON BTD for O's ....

I would want to get only sups from Nap or Standard Process..

So much to ask for and yet so little..

I need to make a list... eventually...  


I am still wanting to look at the scan stuff to see if it will tell me more about me in general..

and all the wile Swami is the key.. that I know!

Maybe I should input mental issues to my Swami??  and see what come up.


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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aussielady582
Thursday, December 13, 2012, 4:19am Report to Moderator Report to Moderator

Be kind to everyone; be persistent with health!
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this is interesting topic, must re-read another time. I suspect we all need lots of antioxidant-high foods, green tea, ginger tea, tumeric, berries.  and exercise to keep toxic wastes out of cells and nutrition in cells.
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PCUK-Positive
Thursday, December 13, 2012, 5:57pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53
I was researching something a while back which I just went over again for you - It related to seizures but there may be a link this related to a young child so dose will be different.

The remedy was 1/4 teaspoon of citric acid and 1/4 teaspoon of baking soda, and some magnesium citrate supplements, about 100-150 mg.

An epileptic seizures at least on my observations were at least a couple things (but more) as the cause that can be considered in a home remedy: A heavy metal toxicity and hence magnesium reduces this problem.

An alkalization increases oxygen and the brain can heal itself. (of small problems at least.

A lecithin supplements for a child, for example might be 1/2 tablespoon a day. The lecithin promotes myelin sheath.

Both the myelin sheaths if insufficient the brain short circuits as there is no insulation to protect electrical neural travelling. The lecithin promotes myelin sheaths. Heavy metals are electrically conductive and causes the brain to short circuit.


Oh yes, and one more thing, vitamin C sodium ascorbate vitamin C is important as the brain has large stores of them necessary to protect against oxidants.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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BHealthy
Friday, December 14, 2012, 7:36pm Report to Moderator Report to Moderator

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Quoted from jeanb
I am constantly being bombarded with, if you give your mother xxx, she will improve.  I know/don't think there is a magic bullet to cure/control her AD and I am becoming increasingly frustrated with this type of theory.

The issue is the brain, once damaged does not recover, the damage to my mother's brain started when she was born with the APOEe4 gene....  
When my mother was first diagnosed, if there had been a way to arrest the progression of the disease, I would have done anything and everything to help her.  I wish I had known about BTD 7 years ago.  Now that most of Mom's memories are gone, I hope she dies peacefully in her sleep before she gets to the point where she has to go to a home.



"Excellence is the result of caring more than others think is wise, risking more than others think is safe, dreaming more than others think is practical, and expecting more than others think is possible."
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BHealthy
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Quoted from jeanb
Here is a link to a good article on APOE e4 gene and the pathways of AD.

http://www.memory-key.com/research/topic/genes
What a GREAT resource!  Thank you for posting this.  It will take some time to read and digest all of it but I will do it.



"Excellence is the result of caring more than others think is wise, risking more than others think is safe, dreaming more than others think is practical, and expecting more than others think is possible."
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Debra+
Wednesday, December 19, 2012, 2:20pm Report to Moderator Report to Moderator

Eat BTD...Healthy Body... Happier Soul 'Gatherer'
Kyosha Nim
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Age: 57
Thank you Sandra for this thread and my heart goes out to all of you who are dealing with and who have dealt with loved ones with dementia/alzheimers etc.   You are all amazing.   As caregivers, I have something that will help you to help yourself when dealing with these dis-eases.    It is called 'cortices' from BodyTalk.   This quick technique helps the brain to connect the left and right hemisphere's of the brain.   We live such stressed lives that we tend to live in the left brain (logic, masculine, analytical) and the right brain (creative, intuitive, feminine) gets left behind and not connected.  What this technique does is to reconnect the two hemisphere's so that the brain can heal the body and leave it feeling less stressed.   I have one client who has Parkinson's that I have been working with and he is finding some improvements.   Sleeping better, not as agitated and his eating habits have improved.  

Sandra... I am not sure if there are any BodyTalkers in your area, but there are some of us who can  do it distantly.  jeanb...Calgary has many BodyTalkers in your area...that is where it mostly got started in Canada.   Please have a look into this and see what you think.   To find one in your area...just go to the top of the page and click on practitioners and go from there.  

http://www.bodytalksystem.com/learn/access/cortices.cfm

Have a wonderful day.  (((((Big hugs)))))

Debra   


"Everything that irritates us about others can lead us to an understanding of ourselves." C.G. Jung"

O+nonT

CBP (Certified BodyTalk Practitioner)
Mindscape (remote/distant healing)
Traditional Chinese Medicine
Accunect Practitioner...in training to teach Self-Care
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Goldie
Wednesday, December 19, 2012, 3:11pm Report to Moderator Report to Moderator

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Sam Dan
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PC.. I loved your post.. I will send to someone afflicted..

Quoted Text


Thanks for that .. looks interesting.. I have seen it done in places but never asked about..

do you have the book?  I may look to buy it..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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BHealthy
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Quoted from Debra+
Thanks, Debra!  I just tried it and it's really easy but...he doesn't say how many times to tap for each position.  I did 5 taps in each location for each hand position.  Is that enough?  Too much?



"Excellence is the result of caring more than others think is wise, risking more than others think is safe, dreaming more than others think is practical, and expecting more than others think is possible."
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Debra+
Wednesday, December 19, 2012, 4:07pm Report to Moderator Report to Moderator

Eat BTD...Healthy Body... Happier Soul 'Gatherer'
Kyosha Nim
Posts: 5,812
Gender: Female
Location: Kirkland Lake, Northern Ontario, Canada
Age: 57
Goldie...there is no such book perse unless you take the courses.  ACCESS course is the everyday maintenance course that I do everyday and it is awesome.   Not sure if there are any courses in your area, but you can look at the top of the page and look under seminars for your area.  This course is basically all you need for basic personal health care.   Even a fast aid technique that is awesome.

BHealthy...you did good.  That is about how many times I tap on head and heart.  You can tap as many times as you feel comfortable.  It is the hand position that is on the head that needs to be focused on.  Two breaths in and out for each hand placement.  

I love this stuff and BTD.  I am BT squared...Blood Type Diet and BodyTalk.   So blessed to have found both of these.

Have a wonderful day.

(((((Big hugs)))))

Debra


"Everything that irritates us about others can lead us to an understanding of ourselves." C.G. Jung"

O+nonT

CBP (Certified BodyTalk Practitioner)
Mindscape (remote/distant healing)
Traditional Chinese Medicine
Accunect Practitioner...in training to teach Self-Care
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