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Healing the Gut - bloggy thread  This thread currently has 1,701 views. Print Print Thread
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misspudding
Monday, August 11, 2014, 9:00pm Report to Moderator Report to Moderator

Rh-, MTHFR, GT4 Explorer
Ee Dan
Posts: 546
Gender: Female
Location: Seattle
Age: 37
Post 20


We had our follow up with the GI doc. He's happy with his progress. Up two pounds since last check up in mid-July. Grown 1/2 inch since June. Woo!

But he's been having constipation issues that have given him gas and bloating and make him not want to eat. The consistency of his stool is a-okay (type 4 and type 5 on bristol stool scale) but his colon is still so big, we think, that it's just not coming out fast enough. He's taking that motility enhancer with the 5-htp again and it's helping a lot. Keeping him down to 3-4 poops a day, which to me is perfect.

The biggest thing we're facing this week is allergies. It's been so much warmer than usual in Seattle (10-15 degrees above average for most of the summer), that even I'm having seasonal allergies (which is very rare for me). Ugh. Both DS and I have had red, itchy eyes and today he woke up with nasty congestion and just doesn't feel well. The high is supposed to be 93 today. When you don't have A/C (we usually don't need it), that stinks! I cannot wait for our usual rain and gloom to come back. Our bodies are so well adjusted to it that this summer feels not so great. Oh well...I'll be whining about the rain come January, I'm sure.

Hoping the rain returns soon (even if just for a day) and we all feel better!




misspudding

---
Me: Celiac type gut problems; seizure disorder; MTHFR
DH: O positive
DS: O negative; "atypical" IBD - SWAMI 44% Explorer

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misspudding
Saturday, September 6, 2014, 1:08am Report to Moderator Report to Moderator

Rh-, MTHFR, GT4 Explorer
Ee Dan
Posts: 546
Gender: Female
Location: Seattle
Age: 37
Post 21

Overall, things are good. I am very nervous to weigh the boy, but he looks better overall, is eating a lot, and still doing pretty good (had one minor nosebleed a few weekend ago that I think was from picking his nose...who knows?!). Hubby checked his height earlier this week and said he looks about the same from a few weeks ago.

He entered fourth grade this week. I was seriously nervous that he wouldn't make it, or that he'd need to be picked up halfway through the day. He loves it. But it seems like stress (even good stress) is affecting him. Today, around lunch, he said he had a tummy ache. He hasn't had a daytime stomach ache in a long time. I really hate this disease...so many things can influence it.

Still having constipation and gas, but thankfully, the 5-htp mainly seems to be working on both. We just have to keep his system moving so bad bacteria don't overgrow in his system again. So hard to do...his ND said the 5-htp wouldn't be forever, something like 6 months to get things back to normal.

Unfortunately the amount of 5-htp he's on makes him have some urgency before bed, and even gives him a little pain. But it makes him poop. We've been toying with probiotic sources, too, which has also added to the fun. Can't do Polyflora, since it has chicory. We tried a SCD-specific probiotic from Klare, but it was way too overwhelming for his system. Now we're trying a fermented carrot/ginger/sea salt (just carrots, ginger and sea salt with water at room temp to get some bugs in there, and that's it...no real fermentation process...just a simple, raw product). He's not doing the carrots, just a smidgen of brine. The jury is still out on whether it's helping or hurting. Wish Dr. D. would give us a solid statement on whether cultured vegetables are okay as long as they're beneficial veggies. It would help for those of us who don't tolerate yogurt, sauerkraut, or probiotics in pill form. Oh well.

I'm hoping the next update will be able how he's grown ten inches. I don't think that will happen anytime soon. Ha!




misspudding

---
Me: Celiac type gut problems; seizure disorder; MTHFR
DH: O positive
DS: O negative; "atypical" IBD - SWAMI 44% Explorer

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misspudding
Monday, September 8, 2014, 4:23am Report to Moderator Report to Moderator

Rh-, MTHFR, GT4 Explorer
Ee Dan
Posts: 546
Gender: Female
Location: Seattle
Age: 37
Post 22

Wow, weighed the boy tonight. He's 56 pounds! Up from 50 at the end of May! Yeehaw!!!




misspudding

---
Me: Celiac type gut problems; seizure disorder; MTHFR
DH: O positive
DS: O negative; "atypical" IBD - SWAMI 44% Explorer

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misspudding
Friday, September 12, 2014, 5:00pm Report to Moderator Report to Moderator

Rh-, MTHFR, GT4 Explorer
Ee Dan
Posts: 546
Gender: Female
Location: Seattle
Age: 37
Post 23

Okay, so we're slowly slipping back to symptoms like we were in the spring. Such a bummer! Doesn't really seem like it's the 5-htp, as we increased it, then decreased...seems bigger picture.

Naturopath said SIBO can be a real pain to overcome. She said it usually takes 2-4 treatments (antibiotics or natural antibiotics) to get over the hump, if you will, and finally get to mostly normal. I don't think he's having accidents at the moment, but he has pain at night/in the morning. So we're going back in for breath testing in the next few days.

It's really frustrating. I think a lot of it is stress. I've heard from a lot of people in the IBD community that stress is the biggest single factor in their health. So many have achieved really great success on diet (to the point of remission in many cases) and their jobs or personal lives give them so much stress they have a flare. I know school is good for him and he enjoys it, but I do think it's provided enough stress to have a negative impact on his Crohns. *sigh*

Well, at least I'm hopeful. He's achieved so much (remission, basically) in the last few months. We just need to keep his gut moving so that the bad guys (or even the good guys) don't overgrow again. Staying positive!




misspudding

---
Me: Celiac type gut problems; seizure disorder; MTHFR
DH: O positive
DS: O negative; "atypical" IBD - SWAMI 44% Explorer

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misspudding
Wednesday, September 17, 2014, 7:50pm Report to Moderator Report to Moderator

Rh-, MTHFR, GT4 Explorer
Ee Dan
Posts: 546
Gender: Female
Location: Seattle
Age: 37
Post 24

Breath testing today. Couldn't make it past the baseline breath test, his gut bacteria are producing so much gas. Big bummer, but thankfully, that's the answer and not something more serious.

Oh well...at least we know now that we need to keep his motility going after whatever treatment we do for the SIBO this time around. And keep doing that until his colon finally shrinks enough that he doesn't have all of that stuff in him causing the SIBO, causing the motility issues. And then we can finally start him on the methylfolate, which will totally get his body producing neurotransmitters so he doesn't have motility problems anymore! Hard to believe that probably won't be for almost another year. Sheesh.

Guess it takes years to get in such bad health, it's not surprising it takes a long time to reverse it. Oh well.

Here's to hoping he feels better soon!




misspudding

---
Me: Celiac type gut problems; seizure disorder; MTHFR
DH: O positive
DS: O negative; "atypical" IBD - SWAMI 44% Explorer

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