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BTD Forums    Diet and Nutrition    Testimonials  ›  Thanks 4 risk analysis saved me! Breast Cancer
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Thanks 4 risk analysis saved me! Breast Cancer
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Symbi
Wednesday, December 5, 2012, 3:58am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Hi Dr D and All,

Haven't been on for a while because I'm fighting breast cancer.   I found it early thanks to Dr D. Thanks <3

Being only 38 I'm not eligible for the mammography screening.  Have had cysts for a while I'd already had the other one ultrasounded  ( if that's a word!)  Then there was a lump I had all year which I was worried about in the left breast growing very slowly, felt a bit lumpy with smooth parts - nothing like the cysts but I wasn't sure.  In June the ultrasound said:

Quoted Text
"?degenerating cyst.  A fine needle biopsy (FNAC) may be undertaken for peace of mind".


Well that just sounded just routine so I put further testing off for a few months while I moved house.  
(Yes!  We finally got out of that mouldy house by the main road into much peace and tranquility now (and better health!) for the whole family. )

I nearly didn't order the FNAC because finances are tight and it wasn't going to be fully covered on Medicare.  Then a voice of reason in my head said, "you're an enlightened type A and you know from Dr D that you are at high risk for breast cancer.  He recommends extra cancer vigilance for us Type As.  Best to pay the money even if you have to use the credit card for your peace of mind."  So I ordered the test.   Thanks Dr D - you probably saved my life! and the voice of reason too!

The result came back Malignant and nothing that made any sense at the time.  Didn't believe it until after the next pathology test.  By the end of August I had a lumpectomy and they took out 11 lymph nodes.  Can't fault the public system here! It was grade 3 Invasive Ductal Carcinoma with some DCIS and lymphovascular invasion, 1.8cm, Oestrogen +, Progesterone +, HER + (so could be aggressive - so glad I found it early) and had minor spread to one lymph node (aka to be known as Nigel - nicer than the C word).  They cut Nigel all out and maybe too much but at least they got it all.  

Recovery went really well with my good diet and supplements helping out. Got full range of motion of my arm and am exercising still.  

Now I'm halfway through TCH chemotherapy to stop Nigel coming back.  They want radiation after that and then hormone therapy.  I'm thinking I'll skip Tamoxifen (cos it's linked with thickening uterine tissue and already have adenomyosis) will probably use monthly GnRH agonist like Goserelin (Zoladex) to induce menopause instead.  Chemo has bought that on temporarily and I'm quite happy to be free of monthly visits from Aunty Flo!  Having fatigue, mouth sores, lost hair, IBS, bone pains for a week from the Neulasta injections they give me to bring up white cells (they were wiped out after first chemo and I got a sinus infection needed IV antibiotics).  Having another sinus infection now that's making my eye twitch. Just as well I don't have to shoot or anything.  Overall I feel not so bad.  Taking it easy.  Missed you guys!

P.S. I'll be very interested to see if my high ANA (antinuclear antibodies) abate after this.  They were suspecting lupus but it may have been my immune system trying to fight the cancer.  Some say lupus is treated by chemo, but it makes you wonder.  I hope to feel better after treatment !  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Victoria
Wednesday, December 5, 2012, 4:09am Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
Moderator
Posts: 15,614
Gender: Female
Location: Oregon
It sure is good to hear from you, Symbi!     Well, that's a tough road to walk - I've been there & done that!     I worked closely with Dr. D's anti-cancer foods and supplements during treatment and also got an acupuncture treatment every week or two.  Yeah, it was a set-back in a lot of ways, and even that is now in the past.  Before long, it will be a part of your past and you will be getting on with other things.  Much love to you.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Possum
Wednesday, December 5, 2012, 4:49am Report to Moderator Report to Moderator

Rh- Explorer/Gatherer
Ee Dan
Posts: 5,458
Gender: Female
Location: Wellington, New Zealand
Age: 54
So nice to see you on  here again & to hear the latest re Nigel... Have "enjoyed"(doesn't sound the right word somehow??!!) hearing your progress through this so far... {{{hugs}}} as always...
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Amazone I.
Wednesday, December 5, 2012, 8:16am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,787
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 57
hello half of mine Symbi...yikes what an awful diagnosis... but you seem to take it well and may I allow myselve to ask you to get informed about Salvestroles and even about a certain medication called Ukrain..... I'm going to send you the infos
by pm from Isa


MIfHI K-174
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PCUK-Positive
Wednesday, December 5, 2012, 12:54pm Report to Moderator Report to Moderator

Kyosha Nim
Posts: 5,212
Gender: Male
Age: 54
Be strong and use the Diet and Cancer book to the full oxo


FIfHI

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ruthiegirl
Wednesday, December 5, 2012, 1:27pm Report to Moderator Report to Moderator

SWAMI O+ Gatherer, Healing from Fibromyalgia
Kyosha Nim
Columnists and Bloggers
Posts: 12,773
Gender: Female
Location: New York
Age: 43
Wow! how scary! I'm glad you're on the mend now.


Ruth, Single Mother to 20 yo  O- Leah , 19 yo O- Hannah, and  13 yo B+ Jack


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Chloe
Wednesday, December 5, 2012, 2:39pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 10,412
Gender: Female
Location: Northeast USA
Age: 72
Sending you healing wishes, Symbi....{{{{{hugs}}}}}}


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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AKArtlover
Wednesday, December 5, 2012, 3:00pm Report to Moderator Report to Moderator

centered leaning INTP Explorer, Supertaster, SWAMI
Kyosha Nim
Posts: 2,121
Gender: Female
Location: Midwest, US of A
Age: 39


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
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Jane
Wednesday, December 5, 2012, 3:37pm Report to Moderator Report to Moderator

Kyosha Nim
Posts: 4,003
Gender: Female
Location: Metrowest Boston, MA
Age: 71
Symbi,
I wondered where you were.  Glad to hear that you are doing better and that they caught it when they did.  You are in my thoughts and prayers  ((((HUGS))))
Jane
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deblynn3
Wednesday, December 5, 2012, 4:31pm Report to Moderator Report to Moderator

GT2 Gatherer rh+;Prop-Taster
Ee Dan
Posts: 2,887
Gender: Female
Location: Arkansas
Age: 58
Symbi,  I've also wondered where you've been.  Soooo happy you caught it when you did, and that you listened to your inner voice, and Doc.'s advice I've missed all your research, all that cool stuff that I really didn't understand, but you helped me to.


Swami, 100% me..
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KimonoKat
Wednesday, December 5, 2012, 9:04pm Report to Moderator Report to Moderator

New Explorer!
Kyosha Nim
Posts: 4,739
Gender: Female
Location: Sherman Oaks, California
Prayers that your healing speeds along at a good pace Symbi. <3


Knowledge is power.  SWAMI gives you the diet that will unlock the key to better health, and it's all based on your unique individuality.
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Symbi
Wednesday, December 5, 2012, 11:52pm Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Thanks so much for the replies! <3
It cheers me.  Having the bad part of chemo cycle now day 9 - 10 (nadir with low blood cells) feel flat as a pancake for a few days but then I spring right back like a pineapple and carrot cake.  

Victoria - sorry you went through it but   you got through it.  Maybe it makes us stronger for it.  These things offer growth opportunities. <3

to sweet Isa - thanks I'll check that info out!

PC - good advice as always - hope your daughter is well and yourself?  I'm right into the dark berries vitamin C and fish oil atm.  Had dry skin bumps under the top of my arms for ages, was taking Vitamin A and Evening primrose oil but now I know fish oil was the other magic ingredient I needed more of!  Learn more in a crises sometimes!    I think my diet high in antioxidants etc kept Nigel in check, being HER2+ it could have grown like wildfire, in the three months between scans it hardly changed at all.  

Hi AKArtlover!  Not sure if I should do soy because of my thyroid antibodies and previous hypothryoid, and nonnieness? it's an avoid in my SWAMI Xpress.  Now I'm menopausal that might change.  I must re-run my SWAMI good idea!  But other phytoestrogens 4 sure.    

Love to you Possum - don't want to get all mushy but love how I met you on here good friend. C U on Facebook.

One thing that worried me after diagnosis was I read somewhere the licorice root can be tumorgenic (as well as oestrogenic).  Now I google it I saw it can be anti-cancer as well?  I had a cup of tea a day for a long time for my adrenal fatigue.
Not pointing fingers at one cause tho.  I have some risk factors: living on a main road, having had miscarriages before, smoked for many years, stress, I bumped my breast in exactly the same spot a few years b4, did night work for some years, too much oestrogen (getting an ovarian cyst looked at too this week), cysts in breasts.  Who knows?

You guys! You Guys! are the best (said in the style of Robert De Niro in Analyse this)


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Symbi
Wednesday, December 5, 2012, 11:55pm Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Quoted from deblynn3
Symbi,  I've also wondered where you've been.  Soooo happy you caught it when you did, and that you listened to your inner voice, and Doc.'s advice I've missed all your research, all that cool stuff that I really didn't understand, but you helped me to.


Cheers DebLynn!  Some of it I don't fully understand and put it on here in the hope someone will translate it for me.  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Symbi
Thursday, December 6, 2012, 12:01am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Oh yeah forgot to say I've kinda been feeling better than I had before.  Less sore throats all the time (maybe cos I stopped drinking cold drinks and only drink room temp now).  Less achy overall (except after Neulasta) and weirdly less fatigue, less headaches but maybe that was hormonal - I know it sounds strange.

I've suspected Lyme disease since in 2001 I was bitten by a tick in Ontario Canada.  But over here they don't have testing available.  I have taken courses of antibiotics for frequent sinus infections and a few other things and usually feel better after those for a while.  Apparently chemo will wipe Lyme out.   (not that I recommend it for anyone with just Lyme!)  So hopes are that some of the other effects of chemo will actually be helpful!  I do miss my hair but being spanish gypsy hair it will come back with vengeance.


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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honeybee
Friday, December 7, 2012, 9:09am Report to Moderator Report to Moderator

INTJ
Ee Dan
Posts: 1,043
Gender: Female
Location: au
Oh Symbi, hugs!!
Glad you are up to checking in here, and happy to hear things are going well as can do, pm me if you would like me to post you my copy of Dr D's fighting cancer book, happy to loan this one out if needed <3
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Goldie
Friday, December 7, 2012, 1:39pm Report to Moderator Report to Moderator

All Gatherer -72 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 6,174
Gender: Female
Location: East Coast
Good day Symbi.. so good to read your posts.. so happy you moved and so astounded at how well you are undertaking all this..

I had a momentary scare, turned out to nothing... but all the time waiting and whatever, I was so REASSURED by being HERE, that no matter what I would have found, I knew I would be ok as long as I had the COURAGEOUS people here to keep me company.  I am soooo glad you came and said hallo.

The technicals are so much to absorb, but one does and then let go of it.  

Glad you opted for the test.. when you are done and are stronger.. how about taking the above (1st) POST you made and send it to all in your country who need to read such success stories that could have been a big tragedy...  We here could sign our name to it and give it weight in the mind of others.. at least to the local paper, or some such..  

I can only admire your courage, your good attitude and conviction that you will make all the difference by doing the cancer section foods.. and might I recommend that you buy Trehalose.. a new sugar that does not trigger sugar reactions, but is sweet.  IT also cleans up the body of all sort of trash hanging around.. I don't know if you can afford the one from DrD.. Trehalose Complex, but they make Trehalose plain from mushrooms, and since mushrooms are good for big C to begin with, buying 2 pounds for about 25.- might be worth the investment.

Where you here ??? when we first took it and had a big thread about its good value.. if not I will find it and post later.. here is the intro:  scroll all the way down to EAT ME..
http://n-equals-one.com/blogs/  

All the verrrrry best..    


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Symbi
Saturday, December 8, 2012, 9:27am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Thanks for filling me on some that I missed out on Goldie.  Lovely to hear from you  
Found that link thanks
http://n-equals-one.com/blogs/?s=Trehalose

Did you mean this thread: "Yes, Trehalose Complex is definitely Wow!"
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1328006355/
Very interesting.  I've upped my mushroom intake since cancer diagnosis.  Yummylicious!

Yes lots of testicles, I mean technicals to absorb, but as I was told every cancer is different.  Makes sense since everyone is different  

Honeybee - that's really sweet thanks!  <<Hug back>> I will buy the book soon and have put cancer as a factor in my SWAMI Xpress.


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Lola
Saturday, December 8, 2012, 9:14pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
Posts: 52,144
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 58
fantastic!!
keep up the good job!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ESTJ
The harder you are on yourself, the easier life will be on you!
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Captain_Janeway
Sunday, December 9, 2012, 12:41am Report to Moderator Report to Moderator

47% Explorer/Super Taster
Kyosha Nim
Posts: 1,435
Gender: Female
Location: USA
Age: 44
Great to see you posting again.


Rh Neg, Le(a+b-), NN, Fy(a-b+)

INTP/INTJ at work
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purlgirl
Sunday, December 9, 2012, 4:06am Report to Moderator Report to Moderator

GT3 Teacher, non-taster
Ee Dan
Posts: 1,035
Gender: Female
Location: Northern CA, USA
Age: 70
Symbi - big hugs
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Possum
Sunday, December 9, 2012, 9:26am Report to Moderator Report to Moderator

Rh- Explorer/Gatherer
Ee Dan
Posts: 5,458
Gender: Female
Location: Wellington, New Zealand
Age: 54
Symbi that was lovely what you posted in response to me!!! Love & {{{hugs}}} right back at you too hun - one day we will meet in person ok!!! Just warning you lol
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honeybee
Monday, December 10, 2012, 3:00am Report to Moderator Report to Moderator

INTJ
Ee Dan
Posts: 1,043
Gender: Female
Location: au
It is great that you have SWAMI, I think the cancer fighting book is very helpful too but SWAMI probably takes all that into account for you as well.
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Symbi
Saturday, June 15, 2013, 12:49am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Hi everyone!  
Long time no type (one reason is that when I type DH hates the sound! and I got an iphone haven't been on computer much  ).  Been busy fighting the good fight.  Hope everyone is well and happy?

I'm going well considering all the treatment.  A few weeks ago finished radiation, used a magic skin cream after treatments called Moo Goo (with milk protein) and I barely have any redness left    It was scary and mentally draining especially 3 hours travel on bus/train/bus or car five days a week for six weeks.  When they couldn't get me in early enough so I could be back to pickup DD from school, sometimes we went at night all as a family and had dinner on the way home (yep hard to be compliant but we do the best we can  ).  

During radiation I took Siberian ginseng to help fight fatigue and as an antioxidant (Onco said he reckoned the vit c, vit a, selenium and other antioxidants I have weren't high enough doses to help shield the cancer from the radiation).  Didn't get too many side effects.    Drank lots of red grape juice (the non-fermented type) for reservatrol? (so had to take lysine too to prevent cold sores).  Daily blueberries and whey protein powder too which I continue to do.  After I got a flu I took elderberry juice (Sambucol available in chemists), the continued a low dose as a preventative, hard not catch the cold/flu especially getting coughed on the train.     Actually craved antioxidants after treatment so I carried around dark chocolate and ate berries as much as I could.  Ginger tea for slight nausea.

Dunno if I could have got through it without the knowledge from Dr D and help from you guys over the years.  

Still having Herceptin treatment every three weeks (monoclonal antibodies to HER2 made in rats yuk - tmi sometimes doesn't help    ).  Am just starting Tamoxifen and that's a whole other story, not too bad so far.  Still have peripheral neuropathy damage from the chemo and am in menopause it seems.  I can handle the dryness, hot flushes, moods and pains much better than the adenomyosis that used to plague me, well that's what I try to tell myself most of the time.   Hot flushes seem to come with stress so it makes you more aware to try and handle your stress better.  Sometimes I'm a crying wreck but you get that, I've had a hard life and some issues have come to the front.  

Surprisingly I have less fatigue than before and less lupus type symptoms.   Chemo may have killed the lyme disease and that may have been lurking (tests aren't available for Lyme here in Aus).  It's been known to help lupus and if it's caused by viruses or bacteria in the system might explain why - knock'em down dead!  (As usual medical science has treatments that work and they guess why but never really know what they do completely.  Maybe the chemo could eradicate lurgees and then the immune system has less to fight after that?  Chucking a theory out there.)  Not recommending chemo for everyone, only if your specialist says you need it. Chemo was a nightmare I still have PTSD flashbacks.  

To get through chemo nausea etc. I ate and ate, which may have helped my body process those drugs.  Hello fat!   Now I'm 12 kg above my recommended weight range (heaviest I've ever been).  I know some if muscle from the walking I've been doing.  My legs are stronger than ever.  Theorising again, I may have craved and ate so much might to increase my fat to make oestrogen.  Now I'm more used to low oestrogen and don't feel hungry all the time and am eating closer to my SWAMI and feeling good.  I know I can lose it again.  I lost as much weight before slowly on BTD over a few years.

Four months post chemo, low white cells are still a problem and may take a while to come back again to normal levels.  Platelets and red cells are okay again.  I hope that my liver and kidneys weren't too damaged by the chemo I'm sure my whole system took a hit.

You did ask how I was?  he he sorry if I went on too long.

Happy days!  
Enjoy yourself as much as you can and love to you!

P.S. so nice to see your posts and love to read some on here again

  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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yaeli
Saturday, June 15, 2013, 1:17am Report to Moderator Report to Moderator

SWAMI Gatherer / Taster / ISFJ
Ee Dan
Posts: 2,553
Gender: Female
Location: Zichron Yaakov, Israel
Age: 67
Hi Symbi,

Do you follow Dr. D's Liver Support Protocol & Chemotherapy Adjunct Support Protocol?  


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Amazone I.
Sunday, June 16, 2013, 1:08pm Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,787
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 57
and some lekker mushies also available in your country.. or some beautiful salvestroles wish you all the best truly yours amiga Isa


MIfHI K-174
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Victoria
Sunday, June 16, 2013, 4:59pm Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
Moderator
Posts: 15,614
Gender: Female
Location: Oregon
Great to hear from you Symbi!  
I'm glad Yaeli thought of Dr. D's protocol for Chemo support.  It's good even after chemo is past, to help you recover.  Dr. D's health series book on cancer was my bible when I went through treatment 12 years ago and it was a real support.  Do you have a copy?  I also like Isa's mention of the mushrooms - many of them are so powerful.  I still use Reishi, Cordyceps and Maitaki every day.

Astragalus, as recommended in this protocol, is a help to rebuild the white blood cells!  

CHEMOTHERAPY ADJUNCT PROTOCOLS
  Use this protocol for 3 weeks. Discontinue for 1 week, then restart.

BLOOD GROUP A

    Quercetin Plus: 1 capsule, 2 times daily on an empty stomach
    Polyflora A (ABO-specific Probiotic): 2 capsules, twice daily
    Tranquility Base (GABA & L-Theanine Formula): 1-2 capsules, twice daily
    Astragalus (Astragalus membranaceus): 500 mg, 1-2 capsules, twice daily
    Coriolus versicolor mushroom: 300 mg, 1-2 capsules daily

NON SECRETORS

    Vitamin A 10,000 IU: 1 capsule, daily

GENERAL RECOMMENDATIONS USABLE BY ALL GROUPS

    Mr. Itaru's Green Tea: 1-3 cups daily
    ARA6 (Larch arabinogalactan): 1 tablespoon, 1-2 times daily in juice or water



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Chloe
Sunday, June 16, 2013, 5:12pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 10,412
Gender: Female
Location: Northeast USA
Age: 72
Best of health to you, Symbi...

Stay strong and determined!!! {{{{hugs}}}}}


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Goldie
Sunday, June 16, 2013, 8:26pm Report to Moderator Report to Moderator

All Gatherer -72 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 6,174
Gender: Female
Location: East Coast
wow what time has past since you wrote a long time ago.. SO glad you can type.. so glad you are doing well... all the best..

and the move was timely!  things should start to look up..




Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Possum
Sunday, June 16, 2013, 10:28pm Report to Moderator Report to Moderator

Rh- Explorer/Gatherer
Ee Dan
Posts: 5,458
Gender: Female
Location: Wellington, New Zealand
Age: 54
Hi ya hun!! Good to catch up on the latest & glad things are looking up & you have lots of support here & on facebook!!!
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Symbi
Tuesday, June 18, 2013, 2:06am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
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Hi Goldie, Possum, Victoria, Isa, Chloe, Isa, Yaeli!  Thanks for posting <<Big hug>> to all of you.  

I'm eating more mushrooms than ever thanks, mushroom pie, mushroom soup, mushroom omelette, mushroom surprise    I hear they are natural oestrogen inhibitors that should help alot.  Green tea is my fave.  

What is Astragalus?


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Possum
Tuesday, June 18, 2013, 2:12am Report to Moderator Report to Moderator

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Ee Dan
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Pretty sure it's a herb/root..

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Possum  -  Tuesday, June 18, 2013, 3:09am
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Victoria
Tuesday, June 18, 2013, 3:05am Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from Symbi

What is Astragalus?


Astragalus membranaceous, Huang Qi - the roots are used, either in capsules or dried for making tea.  It is used extensively in Traditional Chinese Medicine as an immune enhancer, particularly helpful in recovering from chemotherapy.  

You can do a Google search on the herb and educate yourself about what is said about it.



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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twobabies70
Friday, June 21, 2013, 10:09pm Report to Moderator Report to Moderator
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This message is to Symbi.  I noticed your comment about Siberian Ginseng.  I have recently found this herb Gynostemma at http://vimergy.com/gynostemma-extract-powder-50g.html  I don't know if it would interest you or not, but it might be helpful.

Best wishes!
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Symbi
Saturday, June 22, 2013, 2:33am Report to Moderator Report to Moderator

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Ee Dan
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Thanks Victoria and twobabies70 (cute name!) I could google and knowing the alternative name, Huang Qi, will help lots  

Goldie - haven't changed my situation just less time to type now than before.  Things have been improving the last few years since we moved to a nicer house and finances improved and that can change your outlook.    I am getting peripheral neuropathy from the chemo which could go on for a year.  Isa told me to have more Vit B and amino acids, which I'm doing  .  Sometimes the pain in the hands and feet is bad and limits what I can do, typing included.  

Big hug to Possum   She's been the best friend to me on Facebook and cares and cheers up so many people.  Meet some wonderful people on here.  Have a great day everyone!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Mickey
Saturday, June 22, 2013, 2:49am Report to Moderator Report to Moderator

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Symbi,

I'm sorry to hear of what you've been going through, but am glad that things are looking up for you.  Keep up with the high spirits and positive attitude it will take you far.  


"Let food be thy medicine"

Dr. D has said many times that it's not about what you don't eat but what you do eat that makes the difference.  "Quoted by Jane"
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Munchkin76
Saturday, June 22, 2013, 9:16am Report to Moderator Report to Moderator

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Ee Dan
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Hey Symbi, my wonderful Bris Vegas sister in crime!

I'm sorry to hear about your trials and tribulations in recent months, and so pleased to hear you're on the mend and have escaped that toxic house! I've not been about here much (my own challenges), so your post completely passed me by, so I'm sorry for not sending you these masses of cyber <<<hugs>>> sooner.

Nice one Victoria, I was going to suggest Astragalus too - it's wonderful and I take it daily.

Symbi, you're the epitomy of strength, commitment and healthful living and an inspiration to me personally (as I'm sure you are to many others here). If you need anything at all you need only ask me.

More cyber <<<hugs>>> and healing energy heading your way.

Andy x


Listen to all, plucking a feather from every passing goose, but follow no one absolutely. CHINESE PROVERB

Andy Pandy��


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Jane
Thursday, June 27, 2013, 7:51pm Report to Moderator Report to Moderator

Kyosha Nim
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Symbi,
So glad to see you posting again.  So sorry you've been through so much but glad to here how strong you've been and that you are doing well.

I don't have anything to add in terms of suggestions but just glad to see you back here and on the way back to good health.
((((HUGS))))
Jane
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Ladyhawk58
Saturday, June 29, 2013, 10:36pm Report to Moderator Report to Moderator

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So sorry to hear of what you have been going through Symbi. I am celebrating ten years post breast cancer this October, and continue to enjoy good health, thanks to eating right these days - although I did think I was always pretty good with my eating habits really, and was shocked and disappointed to find I had the dreaded Big C.

One thing I took plenty of during radiation treatment was kelp, and seaweed in general. It is reputed to be good for protection against harmful effects of radiation. I think I read somewhere that the astronauts eat eggs and kelp on a regular basis to offset radiation effects, so I ate both daily for the duration of my treatment. I got pretty tired towards the end, but was working throughout the five week course and got through it really well, considering.

I wish you all the very best and I am sure you will be posting something similar in ten years time. Hugs to you from the Sunny Coast.
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Symbi
Saturday, July 6, 2013, 7:52am Report to Moderator Report to Moderator

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Ee Dan
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Andy - great to hear from you! Thanks for your kind words, though I'm not feeling a pillar of strength today sick with the flu, though did weed our garden and have a playdate for my daughter.   I have lots of weight to lose since the treatment so thanks for reminding me how I used to be and I will be again.  

Everyone's support is wonderful! <3

Oh, thanks Jane <hug back>

Ladyhawk - Cheers to 10 years, you've done so well, have a great celebration!  Doesn't a diagnosis like that make you take stock, yep it was a shock to me too though I'm glad I'd read BTD books and knew it could be a possibility for us As.  We have many good strengths tho too right


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Amazone I.
Saturday, July 6, 2013, 9:14am Report to Moderator Report to Moderator

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Kyosha Nim
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the so called *healing mushrooms* are extracts from different types but dried.... to reach therapeutic effects ; sended you once the link of the australian providers  
with all the beautiful infos.... wish you quickest recovery hugs y besos from Isa


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Symbi
Friday, July 12, 2013, 3:28am Report to Moderator Report to Moderator

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Ee Dan
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Thanks Isa!  
I should add connective tissue disease (getting investigated for lupus) to my already long list of ailments   That is one reason I can't take immune stimulating herbs, unfortunately.  At the moment I still have low white cells even though chemo finished over four months ago!  Now I'm going to cut down on some drugs they have put me on (Tamoxifen) me as that could be causing it?  (as well as flaring up my adenomyosis again and causing anxiety too) My platelets and red cells were low after chemo but have come back.  Or they could be dying from autoimmune destruction?  Not sure, going to see rheumatologist soon and will update.    

In good news: my iron is fine lately without supplementation (probably because I've been menopausal since October - pros and cons) and my thyroid is fine.  I requested those extra tests. Being so complicated I've learned so many things I should be a dr by now!  

Been eating well (no wheat etc) and have lost a kg after only a week!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Lola
Friday, July 12, 2013, 5:28am Report to Moderator Report to Moderator

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yaeli
Friday, July 12, 2013, 5:35am Report to Moderator Report to Moderator

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Hi Symbi,

Following the chemo adjunct protocol if of utmost importance, something one cannot emphasize enough!!! Coriolus versicolor is one of the most potent medicinal mushrooms. This is why I'd like to urge you, please get a second and third opinion re the immune stimulating herbs in context with your connective tissue disease.

Recovery from chemo is a matter of years. It calls for long term thinking and constant daily care. It requires very long breathing - like whales' breathing maybe?    I relate to it as a vital part of my everyday life. In my case almost 4 years passed after chemo before my white cells count crossed for the first time the lower thershold. Following my doctor's order I take Astragalus twice daily, as well as the medicinal mushroom Chaga, plus Agaricus and/or Reishi and/or Maitake.

Good luck! Looking forward   


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Amazone I.
Monday, July 15, 2013, 9:06am Report to Moderator Report to Moderator

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Kyosha Nim
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Symbi I am really wondering why not implementing stuffs to enhance your immunesystem... here in Switzerland a lot of interactions here are allowed, even welcomed but yup patients need to know by themselves what to go for or not... coz none of the oncologues do know...

and as Yaeli mentioned... very good advices ....
if I remember it well P.D. once mentioned Tamoxifen as a positive sideeffect to augment NK-cells... but remember you're an explorer and we do very poorely onto chemicals medications...so far...perhaps do we need more time here to recover ... Can't tell you yet but I'm sure you can do and sustain your immunesystem with good stuffs of natural origins .... (astragalus is one of the yummies here too   )

as said- wish you quickest recovery


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Symbi
Wednesday, August 7, 2013, 3:07am Report to Moderator Report to Moderator

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Thanks for the replies sorry for long afk.  Been busy with health checks, my daughter and family visits.  Sometimes feel shy too.
Yaeli - love the whale breathing tip, we can learn alot from our big, calm mammal friends.   Thanks so much for the well-timed comforting message, confirming there's a light at the end of the tunnel eventually.   you got over your chemo.  You must be very strong to have pulled through.  Glad, knowledge of natural treatments, like ginger, prebiotics, probiotics and foods I can digest well helped.  I craved cream for my raw guts though and went with it - have some weight to lose but probably better than those tablets they give you!

Cheers Isa!  Greetings to you in Switzerland.      those other effects of Tamoxifen - knowledge in and around these boards is amazing.  I do know tamox gave me really bad anxiety, even though I tapered up to the full dose (maybe half could have been better but I also didn't like the gynaecological effects); so I stopped it altogether.  Onco was quite understanding about it.   They are going to confirm menopause and try an aromastase inhibitor next.  Meanwhile I'm eating lots of mushrooms, broccoli, grape juice, avoiding soy, trying to keep oestrogen low.  

This poor bod and the treatment that it has gone through for a small lump, it isn't fair?  Still have pain in the breast and underarm quite bad.
I wonder if the radiation and/or tamoxifen affected my white cells?  Since I got over rads more I'm not catching everything and feeling almost normal.  (Could have also been catching public transport into the city and hanging around a hospital every day!)  Blood test soon should confirm white cells.

Rheumatologist was no help at all.  Mucked up in every way and I've lost faith in them.  Wants me to try Plaquenil again, like that's the only answer, bad reaction before no thanks!  Didn't get time to ask about immune enhancing, nor time to finish medical history over the past year.  Didn't even run the correct blood tests.  Bah humbug!

When I was sick with low WCC and flu last month I tried three days of daily anti-allergy tea with echinacea, ended up with a ?flare of connective tissue disease for a few days, at least short lived.  I could have low white cells because I'm autoimmune to them is another possibility.  Anyway, Gingko biloba I started recently really helping the raynauds and blood flow in the cool weather here.  Other than migraine today - we had a lot of drama in our lives lately, pretty good lately.  Only three three-weekly herceptin treatments to go.  Hoorah!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Possum
Wednesday, August 7, 2013, 5:52am Report to Moderator Report to Moderator

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Glad the are only 3-weekly treatments to go?! Wishing you all the best!!  
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yaeli
Wednesday, August 7, 2013, 5:59am Report to Moderator Report to Moderator

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Quoted from Symbi
This poor body and the treatment that it has gone through for a small lump, it isn't fair?  Still have pain in the breast and underarm quite bad.
Hi Symbi,

Thank God it was that small lump. A cancerous process is truly most severe and it is only fair that it is treated in the most serious manner and using all the knowledge available. If we talk of fairness, yes, the ignorance and shortage of info how one would better go about managing one's own life seems too unfair. But first of all, now you have found and reached and come to practice Dr. D's DPN, which in my understanding is the gate, tool, and way to retrieve and rebuild health.

Secondly, I'd like you to watch Prof. Burke lecture in youtube (7 short videos),
where he explains about cancer and about salvestrols. Watching it was the first time I ever got the picture of how cancer actually happens and develops within the 5 trillion cells which are our body.
http://www.4yourtype.com/fucus.asp

All the best!  




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Amazone I.
Wednesday, August 7, 2013, 7:08am Report to Moderator Report to Moderator

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Kyosha Nim
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dearest half of mine Symbi... I think all about Tamoxifen might be ok for teachers and even perhaps warriors but not for us the explorers, while being chemical sensitive.... ... but I thought it was ok to repeat Peters suggestions about being an A-woman and that perhaps this might function ...
but must be honest I'm muchmore convinced about the healing mushrooms (but in therapeutical dosages)and also of course  the salvestrol intake described beautifully from Prof.Dr. Dan Burke- co-founder of this beautiful and true aid....



And then something different...would you like to have some helpers to sustain your healing process I'd like to create a groupe of co-healers of this board, going into deeper meditation all at the same time dor your support. If so please let us know and I'm going to ask our beautiful and helpful members  


MIfHI K-174
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yaeli
Wednesday, August 7, 2013, 7:43am Report to Moderator Report to Moderator

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What a kind gorgeous suggestion

Here's to your healing, Symbi!  


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Amazone I.
Wednesday, August 7, 2013, 11:00am Report to Moderator Report to Moderator

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Kyosha Nim
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nope.. we should come together for Symbi's reconfort .. this isn't at all my Ego who was plappering above ...sorry....


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Amazone I.
Monday, August 12, 2013, 7:59am Report to Moderator Report to Moderator

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Kyosha Nim
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btw those mushies aren't herbs but mushies and betaglucans are also obtainable without any other ingredienz and those are only balancing your immunsystem... up or down without creating any sideeffects... I also do have lupus clients taking them expressis verbis to overcome their sickness....

wish you a fine day greetings from Switzerland


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Symbi
Monday, August 12, 2013, 12:22pm Report to Moderator Report to Moderator

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Ee Dan
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Thanks Isa, Possum and Yaeli!  That is a beautiful idea Isa!  All support is helpful and if no one minds this can be a thread for it, thanks for keeping space on the internet for it if you don't mind Dr D.

I love to come on here when I can.  Feeling pretty good lately.  I will check out the you tube videos next time I get some internet time.  Sorry I don't get as much as I used to so have to be a member 'at large' (literally!) ha ha.  I haven't been following the diet as well as I used to, though mushrooms are a fave atm.    Been kicking the butt of some viruses lately so pretty sure that white cells are winning .

Cheers!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Amazone I.
Monday, August 12, 2013, 4:14pm Report to Moderator Report to Moderator

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Kyosha Nim
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brava..brava cherida mia  


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Symbi
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Ee Dan
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Thanks again for healing thoughts and for the message wonderful Isa.  
She suggested I put a bio on here, sorry if I go on too long.  Here's a go at it:

I'm glad that I adapted in the womb (to smoking and fake hormones as Mum took the pill just before she got pregnant with me) to be flexible to life.  Though it can go too far, becoming so sensitive and flexible adapting to what others need around you, it's can be hard to know who you are sometimes.  Early years were very stressful: only child, moved around four cities around Australia,  changing schools 12 times, living in around 15 houses.  Parents had nasty break up at 8yo.  Lived with 5 different partners of my Mums after that, some alcoholic and emotionally abusive, etc. etc. Lots of drama, one had three kids which was fun for five years and I was the eldest.
We moved away from my Dad after the breakup so Mum could have a better job.  She did the best job she could bringing me up especially since he never paid maintenance, just some trips for me to see him.  Mum and I are still close (not physically she lives 4 hours plane flight away but she visits often).  Became estranged from my Dad after my teens.  Later he died of a heart attack while we weren't talking at 56 yo in 2008 (he looked 70, ? Warrior/Explorer, smoked and had a very stressful life).
Became self conscious and avoidant from 8yo and was bullied.  Had sexual and emotional abuse leading to drug addiction and was a high school dropout in teenage years.   Early adulthood also horrible, changing jobs many times, abusive boyfriends (one needed a restraining order after nearly strangling me when I confronted him for the thousands he ripped me off, another abusive alcoholic) and many residences.  

Things are settling as I get older, though.  Studied IT programming Certificates in early 2000 until bad health (depression) after bad boyfriend choices interfered.  Then I had an office job for five years (marred by connective tissue disease and restructuring tho) until I had my daughter.  Finally met a good man, we've been together 12 years and our daughter is 8.  Having her was not easy so unfortunately she'll be an only child too.  We both nearly died of severe pre-eclampsia (HELLP Syndrome).  She was born six weeks early and low birthweight (4lb) because of impaired foetal growth. She suffers from high anxiety, (some OCD and ADHD I think) as part of her Asperger's Syndrome (I also recognise some traits in myself and DH).  She is very emotional and panics/tantrums multiple times a day with many phobias and fears, has some learning problems, but we're very lucky to have her and love her to bits.  She's also creative and likes dancing and singing   and my little pony is the obsession atm.  

We moved towns six years ago to be in nicer weather rather than the tropics and be close to his family who I get along with, though no one babysits for us!   He works part-time and a small business I do most of everything else myself, keep the 3 bedroom house and yard we rent, organise and keep his business paperwork (there's been more to do lately hence on forum less sorry), school pick ups, cooking, cleaning, manually washing up etc.  Lately I've been more busy with treatments, seeing doctors etc. than ever.  That's where I'm at at the moment.  I like to fix computers/technology, movies, read novels, write, research health and try and feel better.  Sorry I don't get much time to go on the forum anymore so I don't pop on here as often as I used to.

Healthwise I run the gamut as well:  
  • Born with hernia needed operation at 3yo (Marfans runs in our family and I wonder if I have it or Ehler's Danlos symdrome - have velvet like skin for one thing and Stahl's ear (pointed folded ears a bit like Spock!)).  
  • Had german measles high temperature with possible brain damage, IBS started after that at 8yo,
  • Broke ulna and radial left wrist at 7yo (not a good year) changed wrist forever, got tendonitis in later years on left forearm and both forearms.  
  • 15 yo had a knee operation because of ridges in cartilege, from then on the left leg was functionally shorter.  Only found out in 30s when I already had scoliosis (though could have been born with it - am very assymetrical) and osteoarthritis and hump back in the spine, left hip and still knee problems years later.  Now wear heel pad in left helps alot.  Still get lots of pain inbetween shoulder area especially when white cell count is low.  Am seeing osteopath. Arthitis in shoulder joints too.
  • Had really bad lady business problems causing me to have multiple days off work every month.  Chemo took care of it because I'm menopausal!  Hot flushes and all I'd trade that for.  Bonus.
  • Have autoimmune problems, really started in 2001 with oral lichen planus (chronic inflammation in my mouth), mild connective tissue disease recently diagnosed.  Raynauds (hands and feet are cold and change colour), antibodies to my thyroid.  I have had consistently low neutrophils last few years (even worse with chemo and radiation) and high ANA titres.  Many weird symptoms, chronic fatigue (oh yeah had bad mono as a teen).  They keep checking for lupus.  
  • Probably related to my lady business problems too much oestrogen, I had cystic breasts and one was about 2cm invasive ductal carcinoma which I found last year.  Had lumpectomy in August 2012, chemo, radiation and am still having chemo light (Herceptin) and anti-hormone treatment (just started Arimidex - Tamoxifen and this explorer now.
  • Have chronic ear pain and hyperacusis (everything louder than should be and high pitches distort) in right ear.  Found out yesterday from ENT it's patulous eustacian tube (stays open).  Also suffer sinusisits, TMJ and migraines.  Get eczema dry skin.  Have had symptoms of fibromyalgia since teen.
  • Have periodontal pockets in teeth and get those cleaned frequently.


Now I'm suspecting Acute Intermittent Porphyria which has similar symptoms to lupus.  Anxiety, IBS, peripheral neuropathy, low blood pressure, low iron, dark urine sometimes.  I react to many drugs and suffer hypoglycemia.  A fasting blood test will always show low sodium and I get very stressed from those.  Lately I keep eating more and it's helping!   (Also electrolyte drink when I'm on the go.)  Though I'm overweight.  I was after my daughter was born and lost 10 kg on the BTD.   Chemo and possibly early menopause made me the biggest weight I've ever been now 14 kg overweight   but I got through it.  Losing weight will have to be slow now.  Tingling and burning hands and feet are still happening since the chemo gradually going away.  On the whole things are improving.

I try to follow my SWAMI diet but have to admit it's difficult.  When I got my diagnosis I just ate whatever I craved felt I deserved it.  Now I deserve thunder thighs apparently    Though DH still loves me  

Keep positive no matter what.  You can be sure nothing stays the same, things can always get better  




INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Symbi
Wednesday, August 21, 2013, 4:19am Report to Moderator Report to Moderator

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Ee Dan
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Now for the good news.......
..............................
drum roll.......



Yesterday found out 1 year mammogram and ultrasound of breasts is all clear! !!!
Just a cyst and some lymph glands in the breast   which is normal.

Also only two treatments of Herceptin to go


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
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Lola
Wednesday, August 21, 2013, 5:17am Report to Moderator Report to Moderator

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excellent news!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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The harder you are on yourself, the easier life will be on you!
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Victoria
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Quoted from Symbi
Now for the good news.......
..............................
drum roll.......



Yesterday found out 1 year mammogram and ultrasound of breasts is all clear! !!!
Just a cyst and some lymph glands in the breast   which is normal.

Also only two treatments of Herceptin to go


Wonderful news, Symbi!



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Lola
Wednesday, August 21, 2013, 5:33am Report to Moderator Report to Moderator

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Sa Bon Nim
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thank you for sharing! Definitely will help others looking for answers.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ESTJ
The harder you are on yourself, the easier life will be on you!
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yaeli
Wednesday, August 21, 2013, 5:44am Report to Moderator Report to Moderator

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Symbi, with the tremendous amounts of love within you and pouring all around you, how can anybody not love you to pieces???  

Love and wisdom shine throughout your story

Thank you so much for putting it together to share it with us

{{{{{{hugs}}}}}}




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Wonderul wonderful news  


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Symbi
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Ohhr tears are in my eyes,   wonderful friends.     Lovely to feel accepted, supported and not judged, wonderful boards here.  

There's more good news I forgot to say, neutrophils are 1600.  It's still under normal 2000 (dependent on which lab values you go by) but over 1000 's good.  

Liver function, red cells, haemoglobin and all stable again  

Having a flare up of autoimmunity today bought on by herceptin (it's an antibody treatment).  Thanks for your happy responses cheering me immensely!  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Amazone I.
Wednesday, August 21, 2013, 9:23am Report to Moderator Report to Moderator

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oops it wasn't meant officially dearest Symbi...   hope you didn't felt forced or similar    again...justamente for our upcomeing sustaining meditations' groupe... but ok thanx for your kind trust to have informed all of us .... btw... we are all one ....
biig family and weew great for your beautiful news....


MIfHI K-174

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Jane
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Kyosha Nim
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Symbi,
I admire your immense strength....all of what you've had to go through especially the abuse and of course the DCIS and chemo.  Keep on fighting.
Wishing only the best for you.
((((HUGS))))
Jane
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Symbi
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Ee Dan
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Thanks Jane, Yaeli, Isa, Possum and all!  Sorry I have been so busy it's incredible and have had autoimmune attacks with swollen forearms inhibiting typing (after I went back on arimadex at the oncologist incistance - terrible drug causing pain and inflammation and would worsen my already weak bones.  A few weeks off of it and I'm on the mend again   (Dr said it would only increase my chances by 5% but I have secret weapons like you guys and PD to help me so I'd rather have quality of life than be on the (also expensive) anti-hormone medication ).  

Unfortunately it was IDC not just DCIS, but it's all good now.  I finished a year of treatment including chemo, radiation and 1 year of Herceptin (antibody treatment against HER2 antibody)!!!  Phew! It's such a relief to be free from needles being pushed into my chest and so many appointments; though they told me that I would still need to go to hospital to flush the portacath every 6 weeks and that it would take 6 months to get the portacath removed. But that changed and they are getting me in next month for removal!

So happy - no more hollow point needles!!! ( I was afraid of them, sometimes they missed and had to have a second stab, either way I ended up bruised for over a week - I think that's one reason I put weight on to hide from them  ).

Weight loss is happening slowly, lots of exercise these days walking 30 minutes a day up and down hills to pick up my daughter (and hot flush sweating sorry tmi    ).

Why I've been so busy is: I've been planning a trip to the other side of Australia to catch up with more than 10 relatives over a span of a week, travelling over 1000km by road after I fly 5 hours to get there, staying in 5 different places.  Also had school holidays and doing husbands business tax/rearranging, cleaning house, repairs and more.  

When I return from holidays, after portacath removal will be able to fine tune my health and diet more and you'll see more of me on here.  Will appreciate support have >10kg to lose.  

Still loving mushrooms and red grape juice.   Taking some siberian ginseng to help me with the trip and some daily prophylactic (ha ha I wish though oestrogen cream is helping in that department  ) elderberry.  Armed with my usual vitamins for the week, medications if I need them and all different clothes I should be packing now for extrememes of temperature (going to southern climates and desert!)  I must get back to packing now.  Love yous

(Why I'm going to WA is to put my Dad at rest properly (I couldn't come to his funeral) and finally there's a gravestone dedication thanks to his friends.  It will be good for me mentally, spiritually (and surely physically) to put him to rest properly.  )


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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G'day, Hola, Hi, everyone!

Just had my annual checkup and I remain in remission!  
Also lost all but 1kg left of the 10kg I gained on the eat ' whatever I feel like through chemo diet'.  
Pesky 1kg will go soon,     and four more would be good, then I won't be overweight.  

Some of that weight must be muscle. I've been walking up and down hills a lot to pick up my daughter (nearly 10 now!) from school.  Not so good for my SI joint and hip pain tho, so now I use a walking stick.   We moved from smelly traffic to trees, hills (and birds )   three years ago, and I'm afraid a move will need to happen again with no stairs or hills.   Have a cyst in my hip socket and SI joints and S is degenerated, as well as L5/S1 inflammation.  Challenges, challenges, challenges.

I can lose weight if I get on the exercise bicycle more and don't check the scales too much.  I lose weight so long as I don't realise I'm dieting.  One reason the BTD was great for me to be told what to eat instead of not what to eat.  

No wheat in 2015!  Gone Gluten free.  Mostly BTD/GTD compliant except occasional corn.

Sorry haven't been on so much.  For one thing, get migraines (less now in chemo-induced menopause - thanks chemo!) Am still sensitive to light.  

Anyone know, Is there a way to change the background on this site so it's less contrast (maybe make it grey instead of white)?
The font and redesign looks great.  I'll try it on the tablet next and hope to read and catchup more what's been going on with y'all.  

BTW I see in the media individualised diets are catching on - took em long enough!.


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Amazone I.
Friday, May 15, 2015, 8:36am Report to Moderator Report to Moderator

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hello and great Symbi that you're back and it seems in good shapement and health from Isa  


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Goldie
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Hy there, welcome back with good enough news!!!!

Reading your story is wonderful, with a few items for mention...

1) Husbands are not allowed to silence a wife and cancer survivor.  As for crying, it is good to cleanse out old demons.  (I just discovered that I get angry when I am disappointed.. my anger now makes sense. Before that discovery I never understood why I would get angry as it always felt like I was holding the frustration 'bag'.  Now I can free me of the feeling of 'wasting' my time - I just acknowledge the disappointment and then it is about that - no longer about 'me' flailing in all directions).  

2) Communicating is vital.. buy your self a soundless keyboard, they are cheap and create peace.

3) Too bad you had not seen my then being the 70thiest who received radiation directly into the opened excised cancer site after they had removed the cancer and the cyst next to it, today that is the way they do it, so anyone else, remember that.  

4. Please anyone with a cyst like feeling: it is way to close to be near a cancer site to be ignored.  Follow up with a good diagnostician and avoid the spread of cancer into other areas.

5) We need to be proactive to catch cancers early, waiting is sinful.  Teach doctors not to take our symptoms for granted. we know best when our body changes, and changes will be addressed if we follow through.  Even on BTD it is too easy to drop our vigilance thinking we are doing enough, we do need to insist on taking 'us' serious and follow up with the specialist we need.

6 Seems you did many things right, for the duration, yet dropping weight after meno pause is much more difficult.  I would have followed the suggestions by Suzanne Somers (find her online-) for taking hormones all my life, as i liked the feeling of cleansing during my period.  It was to late for me but it might be worth your looking in to it, as you are way younger than I was. (read her cleansing after mold story.)

7 I wish you all the best and look forward to hearing of your triumphs and the new living place.  We have visitors from AUS just now, I am looking forward to hearing about their way of life.  



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

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Symbi,
SO good to hear from you and glad to hear that the cancer remains in remission!!!!  Wondered where you were and how you were doing.

Jane
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Hi Symbi!
I remember you from way back when I started posting.
Thanks for sharing your story. I am so sorry for your struggles.  
((hugs)) You are an amazing person and I pray for all the best for you!
I love your optimism and courage; know you have inspired people!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Congrats on your remission! Thank you for sharing and wishing you continued healing and good health.  


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Victoria
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Awww . . Symbi!  SO darn good to hear from you!     

Whew, I went through my own version of what you went through - mine was 13 years ago.  No fun!  And glad it's behind.  Much love to you.  Don't be a stranger!



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
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~Mary Jean Irion
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Thanks so much for the replies! Averno, Isa, Jane, Victoria, Wholefoodie, Cajun, and Goldie!  

Victoria - glad it never came back to bite you on the b..  Glad it's behind me too but I have a rather large behind behind me left over now. lol
Have plateaued on the weight loss but at least am not putting more on.  Focusing on eating well and feeling good, the rest will take care of itself.  Slowly, slowly.  You're right Goldie, seems more difficult to lose weight after menopause.

Wholefoodie - best of health back to you

Cajun - you bring me to tears.    I love the thought that I may have helped people.   Too often it's easy for good intentions to be confused.  I tried to do some volunteer work lately and got into political intrigue as I proposed improvements, and others were afraid of change and loss of their power.  Then found out others were there to actually help themselves, too complicated!  Helping others is a great thing to do but you must take care of yourself   to be able to do that.    I had to quit that.


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Symbi
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Ee Dan
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Great post Goldie!

Quoted from Goldie
Hy there, welcome back with good enough news!!!!

Reading your story is wonderful, with a few items for mention...

1) Husbands are not allowed to silence a wife and cancer survivor.  As for crying, it is good to cleanse out old demons.  (I just discovered that I get angry when I am disappointed.. my anger now makes sense. Before that discovery I never understood why I would get angry as it always felt like I was holding the frustration 'bag'.  Now I can free me of the feeling of 'wasting' my time - I just acknowledge the disappointment and then it is about that - no longer about 'me' flailing in all directions).  

2) Communicating is vital.. buy your self a soundless keyboard, they are cheap and create peace.

3) Too bad you had not seen my then being the 70thiest who received radiation directly into the opened excised cancer site after they had removed the cancer and the cyst next to it, today that is the way they do it, so anyone else, remember that.  

4. Please anyone with a cyst like feeling: it is way to close to be near a cancer site to be ignored.  Follow up with a good diagnostician and avoid the spread of cancer into other areas.

5) We need to be proactive to catch cancers early, waiting is sinful.  Teach doctors not to take our symptoms for granted. we know best when our body changes, and changes will be addressed if we follow through.  Even on BTD it is too easy to drop our vigilance thinking we are doing enough, we do need to insist on taking 'us' serious and follow up with the specialist we need.

6 Seems you did many things right, for the duration, yet dropping weight after meno pause is much more difficult.  I would have followed the suggestions by Suzanne Somers (find her online-) for taking hormones all my life, as i liked the feeling of cleansing during my period.  It was to late for me but it might be worth your looking in to it, as you are way younger than I was. (read her cleansing after mold story.)

7 I wish you all the best and look forward to hearing of your triumphs and the new living place.  We have visitors from AUS just now, I am looking forward to hearing about their way of life.  



1) Husbands can't silence wives at all anytime lol.  

2) I also have tendonitis in the forearms that I have to be careful of (worse on LHS because ex-broken ulna and radial - kiss chasy slide falling accident at 7yo),  Just found out lately that sore forearms can be a symptom of fibromyalgia!
  
Glad you're figuring your feelings out more.     I love how with age things we know ourselves more and things make more sense.  I figured out recently that times in my life where I achieved a lot or when I failed, were linked with times when I could or couldn't relax properly.  The need to relax is crucial.  That probably fits in the with the A type getting exhausted.  I get stuck in details sometimes (OCD) and perfection, and have to stop myself from overdoing it.  Make lists of things to do later and prioritise depending on energy levels.  

3)  Radiation after surgery makes sense but would it impair healing?  Was it recently?  Glad you must have found it and had it treated before it grew large.

4 & 5) True, vigilance is important and I love the way your phrased that.  We sure need to stand up for ourselves with doctors to take symptoms seriously (I've been labelled a hypochrondriac many times now and it stops me from seeking help with doctors now unfortunately grr).  Don't worry I'm still going for serious problems just less than I used to   
We know our bodies best.  A type O friend had DCIS (non-invasive ductal breast cancer).  She knew something was wrong as she suddenly craved greens and vegetables because normally, she's a carnivore.  She listened to her body and got it checked and treated, successfully before it spread.  

Good to see lots of awareness of breast cancer nowadays.   Kinda silly how people think if it's genetically determined and that's it.  Not much about prevention through diet and lifestyle though!  I'm sure with the BTD and things I've learnt from it, my fast-growing and dangerous cancer under more control than it would have been otherwise.

Guys may want to skip this part:
Thanks Goldie, I'll check out Suzanne Somers online, though I can't take many female hormones as my tumour was 95% tumour receptive!  (was yours hormone receptive?) Also, with the adenomyosis, I'm quite glad to be rid of periods.   Chemo BONUS for me!
If I took HRT (or even Tamoxifen which they tried to put me on, and Arimadex, both made me bleed) it would increase my chances of uterine cancer considerably since I already have thickened walls etc. there.  
A Gynae tried to convince me to have hysterectomy after the breast cancer, in case I have the BRCA genes (can't afford the test).  Don't want to have possibly unnecessary surgery, that could change my body in irrevocable ways (not that you or Suzanne would recommend hysterectomy in my situation now eh Goldie?)  Before when I had very painful and 3 weeks apart periods that put me in bed for days so I considered hysterectomy, but even then didn't want to risk it.  I'm kinda lucky that chemo took that worry away.  Though it left me with damaged nerves in my hands and feet, less energy (probably for one thing the lack of testosterone that my ovaries would normally still make even after menopause but I think they are FUBAR), hot flushes, mood problems etc.  At least I don't have painful periods and didn't have to have a hysterectomy or Mirena or something!  

There's always at least two ways of looking at anything!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism

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Symbi  -  Sunday, June 7, 2015, 4:07am
formatting, shormatting
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Amazone I.
Sunday, June 7, 2015, 5:56am Report to Moderator Report to Moderator

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Kyosha Nim
Columnists and Bloggers
Posts: 16,787
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 57
medicinal mushrooms and salvestroles  and other orthomolecular stuffs make sense to me.....   as lr4yt does....


MIfHI K-174
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Symbi
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Ee Dan
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Cheers Isa !  
Just looking up Salvestrols now - I'd never heard of them!  Interesting how they may be in vegetable peels and more in organic veggies (peels that people throw away!).   Do get some salvestroles in my diet already (rosehip tea, red apples with skin on, herbs and will more now, thanks for the heads up!  

Having steamed veggies tonight (did peel them but they weren't organic , except pumpkin (squash) which I scrubbed with vinegar and salt wash)  along with roast chicken, potatoes, carrots, pumpkin and homemade gravy, stupendous!

Now you reminded me about mushrooms I'll steam some of those too or maybe add them to gravy, why not!  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Sam Dan
Posts: 6,174
Gender: Female
Location: East Coast
I am learning to eat mushrooms in onion and meat juices.. it's all Amazon's fault=hahaha

I also eat more asparagus for cancer prevention and drink dark blue grape juice. per Dr D.!!! I also  eat more orange colored fruit, and peel my apples only because of the stuff they mess with.. apples no longer go bad, they can be cut and left on the counter and last forever, not turning brown any more.. most likely radiated.. tasteless..

I for me would operate taking out all that you do not feel perfect about, but the day it is right for you and others is the right day.. it becomes a question of life experience.  

BUT going to doctors only 'as late as possible' is not right.  IF you think you have Fibromyalgia, then I am the queen of it to to give advise:  I had it for many years.. It is  a label when doctors have no better answers.  Some prescribe painkillers, or some take them over the counter.. I would treat it differently today.. I would start (again) with Pantothenic Acid, its cheap and available in stores. take 500 for one bottle then 300 for one bottle then 100 mg for the rest of your life.. IT protects the cell membrane all throughout the body.  

Take a B complex unless A's do not need it.  

Start with recognizing stress:  when you THINK of stress you ARE stressed.  stress is now much more up front in me.  ANY movement that is in the slightest with discomfort is stress, but some stress needs to be worked out, while other stressors need to be put aside.  Muscles need to be worked with love, and easy repetitions with some weight bearing.  

1 pound weight is enough.  if money is a concern then look at ways to look at videos and learn about body movements for free.    

stop buying all sort of things that do not help you- like endless sups I bought of which most do very little.

IF you have access to Ligaplex 2 via chiro's from Standard Process, try taking two and see if you feel better within the hour, then take 2 as many times as you need to take when pain starts again, and 2 at night before bedtime.. It works to eliminate all painkillers and helps with sleep...  Best help for Fibro I ever had. had to take it for many years.. but at the very least I could function without pain and pills.   let me know how you do.


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kumar
Friday, June 19, 2015, 11:51am Report to Moderator Report to Moderator

A1, Rh-ve, Teacher, ISTP
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Posts: 326
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Age: 59
Warm regards Symbi! I wondered where you might be when I was in Australia for a month during last Nov. Do take care! By the way, do you have six or more whorl finger prints on your hands?



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md
Saturday, June 20, 2015, 1:21am Report to Moderator Report to Moderator

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Welcome back, Kumar.  We were concerned about you with the earthquake in Nepal.  I hope all is good for you.


ISFP
Sirach 37:27
For not every food is good for everyone, nor is everything suited to every taste.



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Kumar
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A1, Rh-ve, Teacher, ISTP
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Thanks MD. I and my family are fine despite the earthquake, which has not yet fully stopped!



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Jane
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Kyosha Nim
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We have all been concerned.  Glad you and your family are OK!
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Symbi
Thursday, July 16, 2015, 2:29am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Hi Kumar,  

Glad you're ok.  Hope you enjoyed down under.  I'm on the more populated east coast, but originally from the west (also lived in the middle (north and south!) before making my way over here).  It's a huge, beautiful place with many different extremes,  Cheers for thinking of me.  

Great question about whorl finger prints (you've been reading your Genotype info as they're correlated with Breast Cancer risk).  
I don't have any whorls, but In page 149 of Genotype Diet book:

Quoted Text

"Explorer Health Risks: Breast Cancer (especially if female, type A blood, and left-handed).

I'm not left-handed but am pretty ambidextrous.  Right on Dr D!

Now you've got me checking my measurements and reading the book again, I'll put some of my info on here for anyone interested.
About my fingers and SWAMI am a bit of a mixture, but definitely an Explorer .  I've got asymmetry galore (my right ring finger is longer than my left, scoliosis, face asymmetry).  

- Torso longer
- Upper leg longer
- Ring finger longer on left and right hands (but also highly asymmetric as my right ring finger is about 0.5mm longer than my left  , also different fingerprints on second fingers indicative of an Explorer)  
- 3 arch fingerprints (like a Warrior also have slow bowel traits, had haemorroids since 18yo!, problems with fat digestion.  My arm spam is longer than my height so I wonder if I was meant to be taller)
- 7 Ulna loops (luckily not 8 hope I skip Alzheimers)

Other things I associate with on the Explorer Features page are:
  • liver detox problems (I had HELLP syndrome in pregnancy may have been bought on my anti-hypertensives they gave me for preeclampsia),
  • problem-solver (I love troubleshooting computers, fixing things, doing puzzles, logic games, programming),
  • aging well (I get mistaken as a teenager but I'm over 40 now!),
  • environmental and chemical sensitivities,
  • accident-prone (once I did turn left instead of right when I was being yelled at to do (I was daydreaming with stuck in a traffic jam travelling slowly)  and did hit another car ,
  • autism (I think I have Asperger's).  I have some OCD, anxiety, oversensitivity of all senses especially sound (I get migraines)
  • yeast infections tick,
  • I have blood irregulatirites such as always low iron and in the past few years chronic neutropenia.  
  • Definitely hard to diagnose, Doctors hate me.


I associate with so many explorer traits that is what led me to having my secretor test done.  It was a surprise but not unexpected that I would be a nonnie as predicted by my genotyping.
(Being a nonnie and prone to autoimmunity, I suffer from Autoimmune disease, oral lichen planus, hashimoto's and suspected mild lupus btw.)

Some History and extra info
--------------------------------------------------
My Mum smoked when I was in the womb btw which may have helped bring on my Explorerness (low oxygen environment).  Also she had just finished (forgotten) to take the Oral Contraceptive Pill.  They were very high dose in the 70s and may have caused some deformity.  I have Stahl's ear (pointy deformed ears, my left is worse)   Spock wasn't a bad nickname   
I was born with a umbilical hernia that got noticed and fixed when I was 3.  Also I have velvety skin, early oesteoarthritis in spine and hip diagnoised in my 30s, chronic dislocating patella, tendonitis etc..   In the past few years I now have developed Mitral valve prolapse and also other valves leaking slightly (probably from infection after dental clean I also suffer TMJ (clicky jaw), recently diagnosed with subchromal cyst in my hip acetabelum, S5/L1 apophyseal joint inflammation (causing sciatica), hip bursitis. Lumbar scoliosis and korphosis, lordosis has led to spinal degeneration already.
Thanks to Dr Google, I suspect I may have Ehlers–Danlos Syndrome (ear deformity and velvet-like, translucent skin and overly-stretchy connective tissue, hernia are traits).  (Marfan's Syndrome runs in my family and I could have some of that too).

In my right ear I have chronic pain fullness feeling.  It's from a peforated ear drum years ago that's left me with patulous eustacian tube (that's always open) So I get incorrect pressure in my inner ear, my own voice and everything loud echoing in my ear, sounds vibrate both sides of my ear drum.  I have hyperacusis in the ear as well so get physical pain (pulsing and distortion) from loud sounds.  Then I have oral lichen planus, chronic inflammation in my palate and in a duct to my submandible salivary gland.  When I have flu like now, they all flare up so I have swollen lymph nodes around my head and neck as well as the chronic pain in ear and mouth.  Arggg!  Headache and lumps in my shoulders too.  

I suffer chronic pain and so I only take painkillers when I want a break for a while or I'd be on them all the time.  I try to keep my brain busy and think positive, or I wouldn't be here still. As you know I try to improve my health as much as possible.

Maybe TMI but supports genotyping!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism

Revision History (1 edits)
Symbi  -  Thursday, July 16, 2015, 3:15am
added more history
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Private Message Private message Reply: 80 - 81
Symbi
Thursday, July 16, 2015, 3:30am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
Posts: 1,260
Gender: Female
Location: Brisbane, Australia
Age: 41
Quoted from Goldie
I am learning to eat mushrooms in onion and meat juices.. it's all Amazon's fault=hahaha
.

Are you saying thanks to Amazone there?  She's great eh!

So glad you're cancer free for so many years.  You have a good attitude and are obviously doing the right preventatives.
Yum!  I love mushrooms in an omelette, in bolognaise, or even as a sauce by themselves sauted in butter.  Ooh la la!  

You're right going to doctors as late as possible is no good.  But I'd already been diagnosed with multiple cysts throughout my breasts (they'd imaged the other breast only!) and thought that was it.  I'd also been to the doctor and had so many tests for many other things that she couldn't keep up with my huge records, she told me, "no more exploratory pathology tests!"  She was saying barring some osteoarthritis, ibs, adenomyosis etc. basically they thought I was a hypochondriac who manifests illnesses after reading them on the internet.  Nice eh!  I still get anxious going to doctors as it seems they look at you as looking healthy on the outside, there can't be anything wrong with you.     When you have multiple strange hidden things they don't understand I guess that's what you get.
When I did finally see her about the lump she felt it and scheduled the test straight away.  

I'm right into B vitamins. I take a balanced one as well as extra B5 and B6.  B5 helps my adrenals cope.  If I don't take them I get pain around the kidneys as if the adrenals are under strain.  Before I took enough B6 I could never remember my dreams.

I try and avoid stress as you say it's important.  
Ligaplex 2 sounds very interesting.  Budget is an issue for me so I'd love to know what the ingredients are if I could find a cheap source of whatever it is.  I may take what's in the supplement already too.  I take: Glucosamine and chondroitin, magnesium, fish oil, selenium, zinc, iron, b vitamins, vitamin C, D, A.  Also added lately Gingko Biloba cos the cold hands and feet are horrible in winter (also helps the tinnitus and general brain activity I think).

RE; Fibromyalgia I reckon it's a real thing, actually may be many different things under that umbrella and hope they figure it out one day.  I see a rheumatologist (who last year taunted me that I'm taking a placebo Plaquenil when I said it's thinned my blood and I get less migraines and given me more energy, he didn't believe me.  It's something they prescribe!  If they don't know what it does what use are they?!  Anyway I've seen some better rheumatologists too and they have diagnosed me with Fibro but not put it in my file I think.  They seem to think it's early symptoms of connective tissue disease.  They diagnosed me with mild connective tissue disease based on my high antinuclear antibodies.  
I know that apple juice, or lemon juice seems to help me clear lactic acid build up and reduce the fibro pain.  The second day after missed sleep is when I get it the worse. My vitamins all help.  The Plaquenil helps (I only take 1/2 tablet but it seems to reduce my autoimmunity and muscle/bone pain overall).

I love how you say
Quoted from Goldie
Muscles need to be worked with love

So true for Type As like me.  I do stretching and walking.  Even Wii Fit and some dancing if I feel up to it sometimes

Cheers to your good health, Goldie!







INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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