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BTD Forums    Diet and Nutrition    Testimonials  ›  Thanks 4 risk analysis saved me! Breast Cancer
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Thanks 4 risk analysis saved me! Breast Cancer  This thread currently has 3,666 views. Print Print Thread
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Amazone I.
Monday, August 12, 2013, 7:59am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
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Age: 56
btw those mushies aren't herbs but mushies and betaglucans are also obtainable without any other ingredienz and those are only balancing your immunsystem... up or down without creating any sideeffects... I also do have lupus clients taking them expressis verbis to overcome their sickness....

wish you a fine day greetings from Switzerland


MIfHI K-174
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Symbi
Monday, August 12, 2013, 12:22pm Report to Moderator Report to Moderator

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Ee Dan
Posts: 1,252
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Location: Brisbane, Australia
Age: 40
Thanks Isa, Possum and Yaeli!  That is a beautiful idea Isa!  All support is helpful and if no one minds this can be a thread for it, thanks for keeping space on the internet for it if you don't mind Dr D.

I love to come on here when I can.  Feeling pretty good lately.  I will check out the you tube videos next time I get some internet time.  Sorry I don't get as much as I used to so have to be a member 'at large' (literally!) ha ha.  I haven't been following the diet as well as I used to, though mushrooms are a fave atm.    Been kicking the butt of some viruses lately so pretty sure that white cells are winning .

Cheers!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Amazone I.
Monday, August 12, 2013, 4:14pm Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,273
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 56
brava..brava cherida mia  


MIfHI K-174
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Symbi
Wednesday, August 21, 2013, 4:17am Report to Moderator Report to Moderator

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Ee Dan
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Location: Brisbane, Australia
Age: 40
Thanks again for healing thoughts and for the message wonderful Isa.  
She suggested I put a bio on here, sorry if I go on too long.  Here's a go at it:

I'm glad that I adapted in the womb (to smoking and fake hormones as Mum took the pill just before she got pregnant with me) to be flexible to life.  Though it can go too far, becoming so sensitive and flexible adapting to what others need around you, it's can be hard to know who you are sometimes.  Early years were very stressful: only child, moved around four cities around Australia,  changing schools 12 times, living in around 15 houses.  Parents had nasty break up at 8yo.  Lived with 5 different partners of my Mums after that, some alcoholic and emotionally abusive, etc. etc. Lots of drama, one had three kids which was fun for five years and I was the eldest.
We moved away from my Dad after the breakup so Mum could have a better job.  She did the best job she could bringing me up especially since he never paid maintenance, just some trips for me to see him.  Mum and I are still close (not physically she lives 4 hours plane flight away but she visits often).  Became estranged from my Dad after my teens.  Later he died of a heart attack while we weren't talking at 56 yo in 2008 (he looked 70, ? Warrior/Explorer, smoked and had a very stressful life).
Became self conscious and avoidant from 8yo and was bullied.  Had sexual and emotional abuse leading to drug addiction and was a high school dropout in teenage years.   Early adulthood also horrible, changing jobs many times, abusive boyfriends (one needed a restraining order after nearly strangling me when I confronted him for the thousands he ripped me off, another abusive alcoholic) and many residences.  

Things are settling as I get older, though.  Studied IT programming Certificates in early 2000 until bad health (depression) after bad boyfriend choices interfered.  Then I had an office job for five years (marred by connective tissue disease and restructuring tho) until I had my daughter.  Finally met a good man, we've been together 12 years and our daughter is 8.  Having her was not easy so unfortunately she'll be an only child too.  We both nearly died of severe pre-eclampsia (HELLP Syndrome).  She was born six weeks early and low birthweight (4lb) because of impaired foetal growth. She suffers from high anxiety, (some OCD and ADHD I think) as part of her Asperger's Syndrome (I also recognise some traits in myself and DH).  She is very emotional and panics/tantrums multiple times a day with many phobias and fears, has some learning problems, but we're very lucky to have her and love her to bits.  She's also creative and likes dancing and singing   and my little pony is the obsession atm.  

We moved towns six years ago to be in nicer weather rather than the tropics and be close to his family who I get along with, though no one babysits for us!   He works part-time and a small business I do most of everything else myself, keep the 3 bedroom house and yard we rent, organise and keep his business paperwork (there's been more to do lately hence on forum less sorry), school pick ups, cooking, cleaning, manually washing up etc.  Lately I've been more busy with treatments, seeing doctors etc. than ever.  That's where I'm at at the moment.  I like to fix computers/technology, movies, read novels, write, research health and try and feel better.  Sorry I don't get much time to go on the forum anymore so I don't pop on here as often as I used to.

Healthwise I run the gamut as well:  
  • Born with hernia needed operation at 3yo (Marfans runs in our family and I wonder if I have it or Ehler's Danlos symdrome - have velvet like skin for one thing and Stahl's ear (pointed folded ears a bit like Spock!)).  
  • Had german measles high temperature with possible brain damage, IBS started after that at 8yo,
  • Broke ulna and radial left wrist at 7yo (not a good year) changed wrist forever, got tendonitis in later years on left forearm and both forearms.  
  • 15 yo had a knee operation because of ridges in cartilege, from then on the left leg was functionally shorter.  Only found out in 30s when I already had scoliosis (though could have been born with it - am very assymetrical) and osteoarthritis and hump back in the spine, left hip and still knee problems years later.  Now wear heel pad in left helps alot.  Still get lots of pain inbetween shoulder area especially when white cell count is low.  Am seeing osteopath. Arthitis in shoulder joints too.
  • Had really bad lady business problems causing me to have multiple days off work every month.  Chemo took care of it because I'm menopausal!  Hot flushes and all I'd trade that for.  Bonus.
  • Have autoimmune problems, really started in 2001 with oral lichen planus (chronic inflammation in my mouth), mild connective tissue disease recently diagnosed.  Raynauds (hands and feet are cold and change colour), antibodies to my thyroid.  I have had consistently low neutrophils last few years (even worse with chemo and radiation) and high ANA titres.  Many weird symptoms, chronic fatigue (oh yeah had bad mono as a teen).  They keep checking for lupus.  
  • Probably related to my lady business problems too much oestrogen, I had cystic breasts and one was about 2cm invasive ductal carcinoma which I found last year.  Had lumpectomy in August 2012, chemo, radiation and am still having chemo light (Herceptin) and anti-hormone treatment (just started Arimidex - Tamoxifen and this explorer now.
  • Have chronic ear pain and hyperacusis (everything louder than should be and high pitches distort) in right ear.  Found out yesterday from ENT it's patulous eustacian tube (stays open).  Also suffer sinusisits, TMJ and migraines.  Get eczema dry skin.  Have had symptoms of fibromyalgia since teen.
  • Have periodontal pockets in teeth and get those cleaned frequently.


Now I'm suspecting Acute Intermittent Porphyria which has similar symptoms to lupus.  Anxiety, IBS, peripheral neuropathy, low blood pressure, low iron, dark urine sometimes.  I react to many drugs and suffer hypoglycemia.  A fasting blood test will always show low sodium and I get very stressed from those.  Lately I keep eating more and it's helping!   (Also electrolyte drink when I'm on the go.)  Though I'm overweight.  I was after my daughter was born and lost 10 kg on the BTD.   Chemo and possibly early menopause made me the biggest weight I've ever been now 14 kg overweight   but I got through it.  Losing weight will have to be slow now.  Tingling and burning hands and feet are still happening since the chemo gradually going away.  On the whole things are improving.

I try to follow my SWAMI diet but have to admit it's difficult.  When I got my diagnosis I just ate whatever I craved felt I deserved it.  Now I deserve thunder thighs apparently    Though DH still loves me  

Keep positive no matter what.  You can be sure nothing stays the same, things can always get better  




INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Symbi
Wednesday, August 21, 2013, 4:19am Report to Moderator Report to Moderator

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Ee Dan
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Location: Brisbane, Australia
Age: 40
Now for the good news.......
..............................
drum roll.......



Yesterday found out 1 year mammogram and ultrasound of breasts is all clear! !!!
Just a cyst and some lymph glands in the breast   which is normal.

Also only two treatments of Herceptin to go


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Lola
Wednesday, August 21, 2013, 5:17am Report to Moderator Report to Moderator

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Sa Bon Nim
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Age: 57
excellent news!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Victoria
Wednesday, August 21, 2013, 5:20am Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from Symbi
Now for the good news.......
..............................
drum roll.......



Yesterday found out 1 year mammogram and ultrasound of breasts is all clear! !!!
Just a cyst and some lymph glands in the breast   which is normal.

Also only two treatments of Herceptin to go


Wonderful news, Symbi!



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Lola
Wednesday, August 21, 2013, 5:33am Report to Moderator Report to Moderator

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Sa Bon Nim
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Posts: 51,080
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Location: ''eternal spring'' Cuernavaca - Mex.
Age: 57
thank you for sharing! Definitely will help others looking for answers.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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yaeli
Wednesday, August 21, 2013, 5:44am Report to Moderator Report to Moderator

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Ee Dan
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Location: Yerushalayim, Israel
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Symbi, with the tremendous amounts of love within you and pouring all around you, how can anybody not love you to pieces???  

Love and wisdom shine throughout your story

Thank you so much for putting it together to share it with us

{{{{{{hugs}}}}}}




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yaeli
Wednesday, August 21, 2013, 5:48am Report to Moderator Report to Moderator

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Ee Dan
Posts: 2,547
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Location: Yerushalayim, Israel
Age: 66
Wonderul wonderful news  


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Symbi
Wednesday, August 21, 2013, 8:47am Report to Moderator Report to Moderator

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Ee Dan
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Ohhr tears are in my eyes,   wonderful friends.     Lovely to feel accepted, supported and not judged, wonderful boards here.  

There's more good news I forgot to say, neutrophils are 1600.  It's still under normal 2000 (dependent on which lab values you go by) but over 1000 's good.  

Liver function, red cells, haemoglobin and all stable again  

Having a flare up of autoimmunity today bought on by herceptin (it's an antibody treatment).  Thanks for your happy responses cheering me immensely!  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Amazone I.
Wednesday, August 21, 2013, 9:23am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,273
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 56
oops it wasn't meant officially dearest Symbi...   hope you didn't felt forced or similar    again...justamente for our upcomeing sustaining meditations' groupe... but ok thanx for your kind trust to have informed all of us .... btw... we are all one ....
biig family and weew great for your beautiful news....


MIfHI K-174

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Amazone I.  -  Wednesday, August 21, 2013, 9:40am
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Jane
Wednesday, August 21, 2013, 6:58pm Report to Moderator Report to Moderator

Kyosha Nim
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Symbi,
I admire your immense strength....all of what you've had to go through especially the abuse and of course the DCIS and chemo.  Keep on fighting.
Wishing only the best for you.
((((HUGS))))
Jane
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Symbi
Monday, October 21, 2013, 1:51am Report to Moderator Report to Moderator

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Ee Dan
Posts: 1,252
Gender: Female
Location: Brisbane, Australia
Age: 40
Thanks Jane, Yaeli, Isa, Possum and all!  Sorry I have been so busy it's incredible and have had autoimmune attacks with swollen forearms inhibiting typing (after I went back on arimadex at the oncologist incistance - terrible drug causing pain and inflammation and would worsen my already weak bones.  A few weeks off of it and I'm on the mend again   (Dr said it would only increase my chances by 5% but I have secret weapons like you guys and PD to help me so I'd rather have quality of life than be on the (also expensive) anti-hormone medication ).  

Unfortunately it was IDC not just DCIS, but it's all good now.  I finished a year of treatment including chemo, radiation and 1 year of Herceptin (antibody treatment against HER2 antibody)!!!  Phew! It's such a relief to be free from needles being pushed into my chest and so many appointments; though they told me that I would still need to go to hospital to flush the portacath every 6 weeks and that it would take 6 months to get the portacath removed. But that changed and they are getting me in next month for removal!

So happy - no more hollow point needles!!! ( I was afraid of them, sometimes they missed and had to have a second stab, either way I ended up bruised for over a week - I think that's one reason I put weight on to hide from them  ).

Weight loss is happening slowly, lots of exercise these days walking 30 minutes a day up and down hills to pick up my daughter (and hot flush sweating sorry tmi    ).

Why I've been so busy is: I've been planning a trip to the other side of Australia to catch up with more than 10 relatives over a span of a week, travelling over 1000km by road after I fly 5 hours to get there, staying in 5 different places.  Also had school holidays and doing husbands business tax/rearranging, cleaning house, repairs and more.  

When I return from holidays, after portacath removal will be able to fine tune my health and diet more and you'll see more of me on here.  Will appreciate support have >10kg to lose.  

Still loving mushrooms and red grape juice.   Taking some siberian ginseng to help me with the trip and some daily prophylactic (ha ha I wish though oestrogen cream is helping in that department  ) elderberry.  Armed with my usual vitamins for the week, medications if I need them and all different clothes I should be packing now for extrememes of temperature (going to southern climates and desert!)  I must get back to packing now.  Love yous

(Why I'm going to WA is to put my Dad at rest properly (I couldn't come to his funeral) and finally there's a gravestone dedication thanks to his friends.  It will be good for me mentally, spiritually (and surely physically) to put him to rest properly.  )


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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