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Raynaud's Disease  This thread currently has 3,261 views. Print Print Thread
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VictoriousLiving
Monday, January 18, 2010, 5:00pm Report to Moderator Report to Moderator

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As my username suggest, I frequently wear gloves- yes in Florida, yes in the summertime, and yes, indoors. I have Raynaud's diseaseor phenomenon which causes the blood vessels in my hands to constrict. The research on my condition suggests a high risk factor for stroke and other forms of arterial disease in my future.
Since no one in my family has heart disease, I did not check the box for that in SWAMI.
I know I am usually deficient in vitamin B-12, and also have borderline hypothyroidism. Is it possible that I have been misdiagnosed? What kind of supplements should I take so that my condition doesn't worsen?


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Tom Martens
Monday, January 18, 2010, 5:18pm Report to Moderator Report to Moderator

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When you say your Blood vessels constrict in your hands do you mean that the blood leaves your fingers and they get white, numb and painful as if it were very cold outside and you left your hands exposed?


Be who you are.  Those who mind don't matter, those who matter won't mind.

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SoulfulLori
Monday, January 18, 2010, 5:26pm Report to Moderator Report to Moderator

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Hey WellGloved!  Yes, I do believe that you could be misdiagnosed in terms of the hypothyroidism.  I too have Raynauds and enjoy lovely blue and painful finger tips and tooties.  I find stressful situations also makes it happen as well.  

I remember at your age not knowing it was an issue and thinking I was just "cold".  I suffered with so many other issues until some doctor place a "lupus" label on me.  I had some things that fit that and a history of it in my family but for the most part I did not fit the bill.  One thing that I remember clearly was that my thyroid tests came back with my TSH at 4 and sometimes 4.25.  Nobody blinked an eye at this.

My thyroid is being treated now and my Raynauds seems a little better but certainly is very much there.  Being an A, we tend to have these type issues anyway so I would think following the diet would improve things greatly interms of any worry of heart disease or stroke.  I look at the Raynauds as a warning signal that stressors are taking place.  In some ways it is helpful to keep me doing things that are more even (no extreme temperatures or outside stressors).  Though as I type this my fingers are blue and hurt.  

As far as the hypothyroidism, I'm sure others will come along with suggestions for supps for this.

Your photo is lovely btw.  Just had to mention.
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VictoriousLiving
Monday, January 18, 2010, 9:27pm Report to Moderator Report to Moderator

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I don't know if Raynaud's is  a misdiagnosis b/c- I don't experience pain. I do have numbness ( also in my legs)- which I have had all my life ( I can remember being in kindergarden and everytime we had to sit down I would get 'pins and needles').
What I think is going on is a lack of B-12 ( despite supplementation) due to a lack of intrinsic factor.
My bloodwork is always wacky - indicating amenia and even suggesting that I may be on the road to leukemia.
I have never had normal bloodwork in my life - even when feeling great.
Guess it must be an 'explorer' thing.


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Tom Martens
Tuesday, January 19, 2010, 12:04am Report to Moderator Report to Moderator

O Neg - ENTJ -SWAMI says GT-1 Hunter
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If I let my core temperature or my thighs get too cold, my first two fingers on both hands will lose blood, become numb and painful.  As longs as I wear extra layers when it's cold, I usually don't have a problem.

If you haven't tried the B12 shots yet, it might fix a lot of your symptoms.


Be who you are.  Those who mind don't matter, those who matter won't mind.

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Possum
Tuesday, January 19, 2010, 12:16am Report to Moderator Report to Moderator

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Quoted from VictoriousLiving
As my username suggest, I frequently wear gloves- yes in Florida, yes in the summertime, and yes, indoors. I have Raynaud's diseaseor phenomenon which causes the blood vessels in my hands to constrict. The research on my condition suggests a high risk factor for stroke and other forms of arterial disease in my future.
Since no one in my family has heart disease, I did not check the box for that in SWAMI.
I know I am usually deficient in vitamin B-12, and also have borderline hypothyroidism. Is it possible that I have been misdiagnosed? What kind of supplements should I take so that my condition doesn't worsen?
I have no idea sorry, but I remember researching PERNICIOUS ANAEMIA due to being low in iron... Could that be a concern?

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VictoriousLiving
Tuesday, January 19, 2010, 4:09am Report to Moderator Report to Moderator

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Yes, Possum - my blood work confirms that I am low in iron. More than 1/2 a dozen times I have been unable to give blood on account of my low iron and low protein levels.


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Lola
Tuesday, January 19, 2010, 6:38am Report to Moderator Report to Moderator

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misspudding
Thursday, September 9, 2010, 6:51pm Report to Moderator Report to Moderator

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Hey, Skeptic, did you ever get some relief?  I'm trying to figure out some similar problems.

Seems like a lot of Rh- explorers on this thread.




misspudding

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Ribbit
Thursday, September 9, 2010, 9:32pm Report to Moderator Report to Moderator

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I think Symbi (here on the forums) has it as well.


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GillianR
Friday, September 10, 2010, 6:51am Report to Moderator Report to Moderator

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Hi HecticSkeptic,
  I was diagnosed with Raynaud's Syndrome (aka arteritis where the arteries close off) many years ago. I very rarely have symptoms now that I have cut out wheat (and followed the BTD, then the GTD, then SWAMI).

The Doctor who diagnosed me  ((1978 said that vibrations will cause the problem. Sure enough I had been using a power drill just before that. I, also, noticed it when I drove my old Datsun 510. It was a stick shift and the vibrations caused my right hand to go numb and white.

I can remember having my whole arm go icy cold after I had used a mouse for a while about 2006 (on this very forum for too long! ). I got a thumb-controlled mouse , which helped but didn't eliminate the problem. I never get the problem anymore.

Raynauds is classified as an arthritis and Peter mentions it in the Arthritis book he has written. When I run my SWAMI I check arthritis and autoimmune ( I ,also, have psoriatic arthritis) and the Raynaud's is a thing of the past for me.

Good luck on solving this. I am sure diet will make a huge difference for you  as it did for me.


"Try everything, keep what works" Peter D'Adamo

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GillianR
Friday, September 10, 2010, 6:53am Report to Moderator Report to Moderator

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PS. I don't take supplements.


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Goldie
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Quoted Text
What I think is going on is a lack of B-12 ( despite supplementation) due to a lack of intrinsic factor.
My bloodwork is always wacky - indicating anemia and even suggesting that I may be on the road to leukemia.
I have never had normal bloodwork in my life - even when feeling great.
Guess it must be an 'explorer' thing.


The B I2 issues originate in the gut on the left side near the down bend not being able to absorb that vitamin.  if you are deficient one way to get the B12 into the body is to use nose drops of B12 as then it enters the system directly.

The answer is eating right to fix the intestines.. time will do this.  The ER4YT Encyclopedia might have  a number of different protocols to follow.   (and even since then DrD has added some new sups so ask about that also.. but more is not always better)  

indicating anemia and even suggesting that I may be on the road to leukemia.  I would not believe that is a connection?  

Anemia ( Iron deficiency) might be a different thing and again I would look to the encyclopedia for answers.. The right sups for a while might make a big difference, where jumping all over the field of sups will just add to the body confusion.


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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de_nogent
Sunday, September 12, 2010, 7:57pm Report to Moderator Report to Moderator

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I've suffered from cold hands and feet accompanied by excessive (dripping) sweat since junior high, but they don't turn blue or cause pain. I think it's mostly caused by stress or anxiety in my condition. I've never been able to find a cure. It can be quite debilitating, inhibiting me from social events. I've had blood work done over the past few years and the results are always good - very low cholesterol. That wasn't why I was getting blood work, but rather for the medication (Vyvanse) I was on for ADD which I no longer take.


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PCUK-Positive
Thursday, November 29, 2012, 6:32pm Report to Moderator Report to Moderator

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The sweating would make me thin of liver and gallbladder issues, has anyone suggested that before?

also what is raynaud listed under in the Eat right encyclopedia?


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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ABJoe
Thursday, November 29, 2012, 6:47pm Report to Moderator Report to Moderator

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Quoted from GillianR
Raynauds is classified as an arthritis and Peter mentions it in the Arthritis book he has written. When I run my SWAMI I check arthritis and autoimmune ( I ,also, have psoriatic arthritis) and the Raynaud's is a thing of the past for me.

PC, here is a quote from a post above...


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PCUK-Positive
Thursday, November 29, 2012, 9:14pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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cool I have that book as well so I'll re-read it thanks


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Friday, November 30, 2012, 12:56am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Raynauds not listed in index of the arthritis book. Can anyone be more specific where it is mentioned.

I have read elsewhere and it seems to be a circulation issue.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer

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PCUK-Positive  -  Friday, November 30, 2012, 1:13am
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PCUK-Positive
Friday, November 30, 2012, 1:41am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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connectivar seems ideal for this?


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Vkoslin
Friday, November 30, 2012, 2:37pm Report to Moderator Report to Moderator

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I have it. I believe it's Reynoud's Syndrome. That's what I have. Fingertips and toes always blue, regardless of temperature outside or layers. I don't take anything for it but it has since because a huge problem when snow skiing. Intense pain.


SWAMI Warrior , Real-Life teacher, newly vegetarian.
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SquarePeg
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I've always had cold hands and feet.  I find that vitamin E and iodine (from seaweed) both help to improve circulation and warm my extremities.


My SWAMI diet is a blend of BTD and GTD Explorer, but I'm not totally compliant.  Also I try to choose foods that have a Low Glycemic index.  DW and DD are A+, probably also Explorer.
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Lin
Saturday, December 1, 2012, 12:01am Report to Moderator Report to Moderator

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VictoriousLiving,
Your describing several things I've dealt with over the years.  
Low iron and B12 is common in people with celiac/gluten intolerance.  You might want to check out Celiac.com site.
Lin


Gluten/Casein and Yeast sensitivity.
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RedLilac
Saturday, December 1, 2012, 5:35pm Report to Moderator Report to Moderator

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Quoted from SquarePeg
I've always had cold hands and feet.  I find that vitamin E and iodine (from seaweed) both help to improve circulation and warm my extremities.


I ran out of my Lavor Nori seaweed and my WF didn’t have it in stock for 2 months.  During exercise I noticed the problem with my hands and feet.  I didn’t correlate the two until now.  It is rich in B6, B12 & iodine.


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Patty H
Monday, December 3, 2012, 2:20pm Report to Moderator Report to Moderator

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I have it as well.  Vkoslin, it is called either Reynaud's Syndrome or Reynaud's Phenomenon, depending on whether there are other issues along with it.  See the link below:

http://www.nhlbi.nih.gov/health/health-topics/topics/raynaud/

One thing it is definitely an indicator of is potential hypothyroidism.  In fact, I am beginning to wonder if my thyroid is off.  I am currently experiencing constant tingling in my hands and feet.  Yesterday I had and episode of Reynaud's in both hands, all four fingers, that lasted a while.  Hypothyroidism runs in my family.  My mother had a goiter as a child and has been on synthroid for years.  My sister was diagnosed with hypothyroidism within the last six months.  My 23andme testing indicates that I have the genetic predisposition for hypothyroidism.  

Regarding diet, neither the BTD nor the GTD helped my Reynaud's, unfortunately.  I am interested in the B12 idea and I may look into the injections.  

The link below shows the possible risk factors, one of which is hypothyroidism - another of which is rheumatoid arthritis.

http://www.medicalnewstoday.com/articles/176713.php


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PCUK-Positive
Monday, December 3, 2012, 2:22pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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I would try the methyl 12 before injections i think.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Symbi
Saturday, December 8, 2012, 8:28am Report to Moderator Report to Moderator

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Great memory Ribbit   - yep I've got Raynaud's too.  They check me out for lupus too but like Lori (G'day!) I don't fully fit the bill.  Phew!  Have some other autoimmune issues and definitely Fibromyalgia which is associated with it.  From what I've read, Raynauds can be an early sign of autoimmune disease, or then again may not!    Hopefully with this WOL you would prevent further autoimmune disease.

Have been slightly hypothyroid before and have antibodies towards my thyroid.  Wonder if I have subclinical hypothyroidism (have been putting on weight lately  ) will get thyroid results soon.  Also take B12 and I've felt less guilty (saw House mention that if you think you are guilty all the time could be b12 deficiency!).  

Things that helped me are Gingko Biloba for a while it was brilliant to increase the peripheral circulation.  Magnesium also helps and lessens migraines.  Hope you are on that Vic(torious) - love the name !  You sound like a typical Explorer, not sure if the anemia is linked to Raynauds but Explorerhood yes.  I have low iron and low white cells too.  Have to watch if I take too much iron it binds me up tho.

Antioxidants are very important too.  Read that an episode from going cold, white to blue and then warming and going red, creates lots of free radicals which over time can damage the tissues.  The demand for antioxidants increases.  Vitamin E (mixed tocopherols), C, Essential fatty acids may all help.

Sometimes I think of moving back to the tropics just because of it.  

Patty H - thanks for the second article.  Didn't know cancer was linked with it.  Also Ehlers-Danlos Syndrome which I suspect I have a mild form of.
I'm not a medical professional btw!


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

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