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Questions on early stage celiac recovery  This thread currently has 3,705 views. Print Print Thread
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Lola
Saturday, July 15, 2006, 7:04pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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Posts: 51,197
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nice analogy!!!!  lol


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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italybound
Sunday, July 16, 2006, 4:45am Report to Moderator Report to Moderator

~Concealed~Carry~Hunter~
Kyosha Nim
Posts: 9,163
Location: Near St. Louis
Age: 58
Quoted from queueball
As for the DH (designated hitter?), we men are all pigs.  I know, for I have tried so hard not to be one, but it seems to be hard-wired.  I don't know what you women see in us, or why you keep us around.  The real reason for male chauvinism and male dominance is that in our hearts, we know women are superior, and that if you ever get the upper hand, we're history.  


oh, Q, not ALL men are pigs.    I know you all get aggravated w/ us women too. Goes both ways....we all know this, sometimes we just choose to ignore it.  
No, no, we will never, ever, never get rid of you, after all who would................... for us.  You fill in the blank.     Lots of options.  



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queueball
Sunday, July 16, 2006, 3:54pm Report to Moderator Report to Moderator
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Quoted from KN:

"Someone will come along shortly that can help you more on what to do with the blood issue. I know my GF has celiac. It took the drs 2 yrs to diagnose her and she wound up having to have an iron transfusion in the mean time."

Who is that someone and where are they?  Or are you just being psychic?

My major blood issue is that I am bleeding from somewhere in my gut, and I don't seem to be able to control it anymore with cayenne.  Patience is fine, but I may literally bleed to death in the meantime.  The doc does not think it is gastric ulcers, because that is quick and copius bleeding, and mine is a slow leak.  I have also done a water retention enema, after cleaning myself out, and tested the expletive for occult blood, and there was none, even though I find blood in "normal" samples before and after the enema.  This tells me I am not bleeding from anywhere in my colon (also there has never been visible blood).  This leaves the small inestine, and is another piece of evidence for celiac disease.

So, can anyone tell me how celiac disease causes bleeding?  Maybe then I could come up with a way to stop it.

My count was last at 7.7, and I have had a lot of positives since then for occult blood in my stool, so I expect I am significantly lower now, and I feel it.  This means I have about half the blood in me that I should have.  If it gets much lower I will not be able to function at all.  Having kicked out my son, I now am alone in the middle of the woods and only have the energy to do eat and poop, when so much is needed around here just for upkeep.

Question: Again, how do I stop the bleeding?

Question: What do you mean by "iron transfusion"?

In the meantime, I am going to cut back on my water intake.  I know, I am supposed to drink so much water a day, yada, yada, and I have been drinking a half gallon every morning before I get out of bed.  I am now going to stop doing that and hopefully allow my body to get dehydrated, which is the only way I know of thickening the blood.  Thicken the blood, slow down or stop the bleeding.  I will also be drinking my green/ginger tea chronically.  The diuretic property of the green tea should help me dehydrate, and the ginger . . . you know.

And, by the way, it is exactly that attitude that enables us to be pigs, collectively that is.  Sweet as it is, that is the way it is, until we change it.

Again, I need to hear from or about Male celiacers.

Later, q.


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resting
Sunday, July 16, 2006, 5:15pm Report to Moderator Report to Moderator

probable non-sec
Sam Dan
Posts: 1,797
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h
Hi q. (again),

I think you have made some critical flaws in your analysis .... you perceive that the celiac disease may have 'caused' the bleeding.  And a proven ... stop-ingesting-gluten will cease the chronic (now acute) bleeding.  From what I understand is that vitamin C stops bleeding by inducing collagen synthesis - sealing lesions (cuts); one can also bleed without an overt cut... as in my case ... right through a heart valve that was so porous it was close to being a sieve.  There are herbs (cumin may be one, but I'm not sure) that stops this type of bleeding.

It may be more important for you to find out what blood-clotting factors you may be missing.

If one of them is vitamin K related and you are eating lots of greens, then the bile salt taurocholate may be important (Jarrow -Bile Factors).

John


“The object of life is not to be on the side of the majority but to escape finding oneself in the ranks of the insane.” – Marcus Aurelius

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Victoria
Sunday, July 16, 2006, 5:32pm Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
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A couple of ideas, q,
1/2 gallon of water is a LOT to drink at once, and is just going to flush right through your kidneys and out.  I believe our bodies can only absorb about 4 oz. every 20 minutes or so.  I may have my figures wrong, but the basic principle is that small amounts sipped continuously throughout the day is what works to keep the cells hydrated.  Large amounts don't absorb and just make the kidneys work harder.

Regarding the vit. C.  Ascorbic acid is very acidic and is also harsh on the kidneys...irritating.  It's better to get your vit. C from acerola and rose hips.

Another thing occurred to me, and I'm sorry if it's been discussed before.  I haven't read back through all your posts.  As a type O, your blood is already thin.  Are you ingesting anything that could be further thinning your blood?



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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JK
Sunday, July 16, 2006, 5:42pm Report to Moderator Report to Moderator
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I have read that a lot of vitamin C -- you were taking 10g a day? -- is very harsh on your digestive tract too and is not recommended for anyone with inflammation of the digestive tract. If you suspect you are celiac and bleeding the vit C could be making it worse. Smaller amounts, say up to 3grams,  taken throughout the day are better.

Revision History (1 edits)
JK  -  Monday, July 17, 2006, 3:23pm
Yes, 1 gal H2O is too much all at once! Victoria is quite right.
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italybound
Sunday, July 16, 2006, 7:10pm Report to Moderator Report to Moderator

~Concealed~Carry~Hunter~
Kyosha Nim
Posts: 9,163
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Age: 58
Q, my gf lives in St. Louis Mo.  True story. If I haven't mentioned, I met a gal at WF who has celiac, took the drs' 8 years to diagnose her.
I suppose "iron transfusion" means just what it sounds like, but couldn't be sure. If you'd like me to find out, I certainly will.
I agree w/ Victoria, that 1/2 gal of water at a time is a lot. That's 64 oz and prob close to what you should drink all day. Spreading it out as she suggested would be good. You also need to find the way to get that water into your cells, not just your body.



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Don
Monday, July 17, 2006, 5:14pm Report to Moderator Report to Moderator

Rh-, MN
Sam Dan
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By the way, I disagree with you regarding the use of ascorbate to bowel tolerance for flu symptoms. Evidence suggests that this purgative effect (in addition to the infectious process itself) renders the intestinal lining hyperpermeable to gut bacteria. There is also the phenomena (at least in certain Eastern Europeans) of 'rebound scurvy', where large amounts of ascorbate generate increased capillary fragility. Pauling, as you may know, received his Nobel Prize for determining the 'pleated sheet structure' of certain proteins (the result of his work in X-ray chrystallography) not for his later advocacy of high dose ascorbate, which in recent work seems to incite chromosomal abnormalities, at least in cell culture. As my father used to say, 'Sometimes too much good is no good.'


Also, green tea can reduce your iron absorbtion, so I would limit your consumption to 1-3 cups a day away from meals.


FIFHI; ISTP;
Started BTD 3/2002, with 2 O- secretor teenage sons
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Don
Monday, July 17, 2006, 6:58pm Report to Moderator Report to Moderator

Rh-, MN
Sam Dan
Posts: 7,189
Gender: Male
Location: North Alabama
Age: 58
You might want to read the information here: Iron


FIFHI; ISTP;
Started BTD 3/2002, with 2 O- secretor teenage sons
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Lola
Monday, July 17, 2006, 7:25pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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Posts: 51,197
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 57
very informative, thanks Don!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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queueball
Monday, September 11, 2006, 9:33pm Report to Moderator Report to Moderator
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Since I booted my son, I have had to attend to things myself, which has kept me away from this forum.

I also feel that this thread has come unravelled, so I am starting a new one more or less from scratch.

See you elsewhere.
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italybound
Saturday, December 16, 2006, 2:02pm Report to Moderator Report to Moderator

~Concealed~Carry~Hunter~
Kyosha Nim
Posts: 9,163
Location: Near St. Louis
Age: 58
Q, how are you doing these days?



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