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queueball
Monday, May 15, 2006, 5:44pm Report to Moderator Report to Moderator
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Dear Folks,

Thanks to the recommendations of several celiackers, I have eliminated all grains for about a week now, and have some questions about what to expect and observe from here on.

I have read somewhere that gluten is a sort of addiction.  If so, what are the withdrawal symptoms?

After the first full day off all glutens, I experienced four nights of terrible sleep, along with even worse nocturia (nighttime urinary frequency) than usual.  Prior to eliminating glutens, I had been eating a few rye crackers a day, and drinking a beer or two in the evenings (barley). I felt like I had been drinking coffee all day, and could not get comfortable or lie still for hours and hours.  It was not a pleasant energy, since I was exhausted at the same time.  Is this a withdrawal symptom?

It has been recommended that I eliminate all grains from my diet for a time, glutens or not.  Two questions about this.  One, why?   Two, what about brown rice?

Lastly, about how long before I should notice improvement in pain, fatigue, etc. which is significant enough to conclude that I have CD?  And what should I look for, in general?

Love to all (even Judi), q.
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Melissa_J
Monday, May 15, 2006, 6:33pm Report to Moderator Report to Moderator

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Is your daytime urinary frequency up too?  Could be detoxification.  I needed to lose weight, but I lost a lot of weight my first week, presumably water weight.

Have you eliminated alcohol entirely as well, along with the beer?

I didn't eliminate all grains initially, I took the gradual approach so that I could tell what changed with each step.  After more than a week, the "fun" began though...once my gut started to heal the new immature cells started reacting to a lot of foods.  Most of them were non-secretor avoids, but gluten free, like tapioca.  I think pain (joint and digestive pain) were the first things to improve for me.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Lola
Monday, May 15, 2006, 6:34pm Report to Moderator Report to Moderator

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Victoria
Monday, May 15, 2006, 6:35pm Report to Moderator Report to Moderator

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Quoted from queueball
Dear Folks,

Thanks to the recommendations of several celiackers, I have eliminated all grains for about a week now, and have some questions about what to expect and observe from here on.

After the first full day off all glutens, I experienced four nights of terrible sleep, along with even worse nocturia (nighttime urinary frequency) than usual.  Prior to eliminating glutens, I had been eating a few rye crackers a day, and drinking a beer or two in the evenings (barley). I felt like I had been drinking coffee all day, and could not get comfortable or lie still for hours and hours.  It was not a pleasant energy, since I was exhausted at the same time.  Is this a withdrawal symptom?

I would say so, yup!

It has been recommended that I eliminate all grains from my diet for a time, glutens or not.  Two questions about this.  One, why?   Two, what about brown rice?

Some people don't do well with grains at all, but I don't see this as a celiac issue.  It is something different.  Rice should not trigger celiac.  I'd be interested in seeing what Melissa says, but I personally don't hesitate to eat toasted rice cakes.  That's the only grain I eat.






Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Melissa_J
Tuesday, May 16, 2006, 5:36am Report to Moderator Report to Moderator

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I have nothing against brown rice  I've never really cut out rice to compare, but cut down on it drastically to lose weight.  Presoaking is a nice step to improve nutrients and digestion.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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queueball
Tuesday, May 16, 2006, 5:12pm Report to Moderator Report to Moderator
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As we used to say in high school, where white rice seemed to be served nearly every day, "rice is nice".  We were being sarcastic about the pasty, over-cooked, mounds of stuff they served, but considering what kids get today for lunch, we should not have complained

I plan on sprouting rice before cooking, and experimenting with making granola bars of some kind with sprouted rice.  Eventually I will work on rice beer and wine.

Right now I am drinking small amounts (3 - 4oz) of homemade plum wine before bed.  I do not do alcohol when I am bleeding, since it is a blood thinner.  I am not bleeding now.  It helps me get to sleep, and the nocturia has diminished considerably the past couple of nights.

More later, my damn laptop is acting up.
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Melissa_J
Tuesday, May 16, 2006, 8:08pm Report to Moderator Report to Moderator

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Sa Bon Nim
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Keep us posted on how you feel, and let us know how your rice experiments go!


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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queueball
Friday, May 26, 2006, 7:53pm Report to Moderator Report to Moderator
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I can't figure out how to say all this without rambling, so anyway . . .

I have heard, although I have not researched the science, that the genes for physical endurance and pain tolerance are on the X chromosome, and that since women have two of them, they handle illness better, in general, than men.  I'm not so sure things really work this way, but it does make sense from my personal experience.

I think this female superiority may relate to why I have heard almost entirely from women since I have been posting this forum.  Women tend to have the extra energy and compassion left over after fighting their own disease to help others out.

However, this also creates a couple of problems.  One, perhaps this extra strength prevents women from fully empathizing with the extra torment men may have from the same disease (and perhaps we don't deserve this empathy anyway).  And two, it means we don't get to hear much from men because they are too exhausted and self-concerned.

Some of you guys have been a bit short with me from time to time, as has my sister, for example.  Why don't you do so-and-so and such-and-such.  Well, I can't.  I can barely walk from here to the kitchen sometimes, and then I have to cook.

I can't, for example, look through all the food values and memorize them all on line.  It would take many hours to do this, and I do not have the mental or physical ability to do it.  Things have changed since the book was published, and there should be a down-loadable, printable, current and condensed list of beneficials, etc..

I have had a few good days, which is encouraging.  The bleeding has stopped, apparently for good, and I have judged that healing of the stomach ulcers has begun because a small amount of alcohol no longer knocks me on my expletive deleted.  Previously, it was absorbed directly into my bloodstream through the ulcers, I think.  Acid reflux is almost completely gone.  The only time I get a touch of it is when I drink my homemade wine, so I am off that for now.  It doesn't help me sleep so much anyway, since I am not absorbing it like I was.  Catnip tea at night from now on.  There's a fresh batching drying right now.

I don't know if my blood count has come back up, but I am planning on getting back on supplements as soon as I research that, especially the iron.

I started eating brown rice again a couple of weeks ago, and it has helped with my regularity, however, I have been extremely fatigued most of the same period.  When this last batch of rice and black-eyed-peas is gone, I'll go off rice for a while and see what happens.

I also find that when I eat black-eyed-peas, I have much less GI distress than when I eat red meat alone.  However, there is a mention in the BTD book that beans can interfere with the absorbtion of iron, I think.  

Does this mean I should not eat beans with meat?

I have always had low body temperature, by about a degree.  This is supposed to indicate hypo-thyroidism, I have read.  The past two weeks, I have had a fever, about 99.5 on average, after I eat, and the past couple of days my body temp seems to be occasionally holding at the normal temp of 98.6, and the fevers have lessened.  98.6, however, feels like a fever.

Maybe the fevers were due to celiac inflamation?

Maybe my body is trying to recover from five decades of suppressed thyroid?

If so, these discomforts would actually be a good sign.  It would also mean that my whole metabolism would have some painful adjusting to do, I would think.

Three questions you guys have not answered yet, or showed me where to find the answers:

I.  What is the protocol for challenge/elimination testing of foods, herbs, etc.?

II.  What should I look for in terms of improvement overall if I do have celiac disease?

III.  What sort of time-table should I use to judge my progress?

I know I could, theoretically, dig up this information myself, but really guys, I can't.  Please bear with me.
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Lola
Friday, May 26, 2006, 8:16pm Report to Moderator Report to Moderator

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http://www.dadamo.com/bloggers/staff/archives/00000335.htm

I am sure celiacs on the forums will come to your rescue, answering your questions.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!

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lola  -  Friday, May 26, 2006, 8:18pm
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KimonoKat
Friday, May 26, 2006, 8:27pm Report to Moderator Report to Moderator

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Queueball, I've emailed you a copy of the Type O secretor food list from one of the Health Series books.  It's a home made copy I made to carry with me, and put on my fridge.  The food is broken down into five categories:

Super Beneficial
Beneficial
Neutral (allowed frequently)
Neutral (allowed infrequently)
Avoid

The goal would be to eat 100% of your diet from the super bennies & bennie's lists.

Hope this helps you.


Knowledge is power.  SWAMI gives you the diet that will unlock the key to better health, and it's all based on your unique individuality.
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KimonoKat
Saturday, May 27, 2006, 7:51pm Report to Moderator Report to Moderator

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Queueball,

I think it would be helpful if you shared on the board some of the questions and frustrations you expressed in your recent email to me, after I sent you the Health Series food list.

I did email you back and answered your frustrations as best I could, but there are those on the board who could help answer your questions, better.



Knowledge is power.  SWAMI gives you the diet that will unlock the key to better health, and it's all based on your unique individuality.
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Victoria
Saturday, May 27, 2006, 9:19pm Report to Moderator Report to Moderator

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I just discovered this note I wrote you last night and thought I posted!

Queueball,
It sounds to me like you have turned in the direction of healing and you are having some signs of your body's steps toward recovery.
I don't have answers to some of your questions, but here's a few words, just my ideas, not scientific proofs:
II.  As far as improvements, I suggest you write down all the major complaints (for your own records), and then watch to see which of them changes over time.  The reason I suggest writing them down is that as you improve, you may forget the details of how you felt before.
III.  I don't know the answer for you.  If it were me, I would not be as concerned about timelines if I was at least seeing SOME progress.

I don't remember from any other posts of yours if you are using supplement protocols.  If not, here are a few for digestive health, ulcers and stomach healing from LY4YT:
Bladderwrack
golderseal
Coptis (available at natural food stores under the Plum Flower Brand)
Probiotica
Marshmallow root
slippery elm
thyme
ghee 1 tsp. 2 x daily, or butyrate
gentian or digestive bitters, a few drops before eating
avoid all coffee chocolate, mints and black tea

additional from the Encyclopedia:
Deflect O
Larch arabinogalactan (ARA6)
L-Glutamine 200 mg. caps (1 to 2 caps twice daily.)



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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JK
Sunday, May 28, 2006, 1:53am Report to Moderator Report to Moderator
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Hi Q!

I'll have a go at tackling some of your questions. I have been soo busy this past month that I have hardly been checking in here or my email.

You asked, "Some questions you guys have not answered yet, or showed me where to find the answers:

I. What is the protocol for challenge/elimination testing of foods, herbs, etc.?

II. What should I look for in terms of improvement overall if I do have celiac disease?

III. What sort of time-table should I use to judge my progress?"

challenge/elimination testing : best way is to stop eating suspected foods - if there are too many of them, the very best way is to stop eating everything you normally eat and go on a rare foods diet (I had to do this); only eat foods you have hardly ever eaten. Do this for at least 1 month to 6 weeks then eat ONE of the foods from your elinated list, and eat a lot of it throughout the day if the first few bites don't tell you! Be careful though and be expecting some sort of allergic reaction or nausea or headache, hives, etc. If you have asthma, have your inhaler nearby. Keep a food journal since some food intolerances may show symptoms only after several days - so don't test more than 1 food per week. Yes, this takes time.

terms of improvement re celiac: well, I stopped getting wicked nauseous after every gluten containing meal! But that was just the start for me. I had to give up dairy too, then goat dairy too, then I had to ferret out all of my food sensitivities via above protocol...Each step helped me improve, but I am not there yet. I have a leaky gut, which is healing nicely I am sure, but I have other issues which may or may not be affecting you too, like gut dysbioses. Bacterial, fungal and probably viral pathogens that have taken advantage of my compromised state for years. This is a difficult battle, when your enemy is firmly entrenched! So these things have improved for me: less indigestion, less painful gas distending my abdomen, fewer pimple breakouts, less congestion and mucus, pain decreased, less frequent need to urinate, better sleep, some energy!! but still need more, etc.

time table: I agree with Victoria; don't be impatient. As long as you are improving, know that it will take time. I was at my worst last August, probably a year after giving up the last gluten, so I didn't institute all of these recommendations at the same time. Hope you can benefit from my learning curve here. Last August is when I started figuring out my food intolerances since I had just then figured out that I have leaky gut. I was barely able to get myself about the house and cook for myself - was not working, now I am but under 40hrs/wk.. Definitely much better, but I know I have a long ways to go yet.

I also take a lot of supplements: HCL, Klaire labs digestive enzymes, probiotics, and multis, eat only organic, try to keep fruit consumption to 2 servings a day, 100% compliance to BTD and SCD principles, no alcohol, etc. It is not easy, not at all. And it is expensive. But it IS worth it. Good luck!

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Laura P
Sunday, May 28, 2006, 3:11am Report to Moderator Report to Moderator

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As far as healing goes and a timeline I also want to add that you will take two steps forward and three steps back and then four steps foward, this is your body rebalancing, detoxing, healing, it is normal and frustrating, but a good sign



If there is no God, who pops up the next Kleenex?
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queueball
Sunday, May 28, 2006, 4:39pm Report to Moderator Report to Moderator
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J, what are SCD principles?  I assume the C is for celiac, and the D is for diet.  What is it and what are they?

I suppose I should feel lucky I do not have some of the symptoms you do.

I do not get nauseous.  I have not had hives in years, although I did get them frequently at one time.

I have been taking cayenne, to stop bleeding, along with a calcium supplement for my back injury, and most of the type O protocol for GI healing and protection.  I am letting the supplements run out one at a time, to see how I respond.  I plan to go off them altogether for a while to see where I am at, and because I can't afford to buy everything I should be taking anyway.

JK, thanks for the info on challenge/elimination.  I am going to use that and any other advice I am given on c/e testing to put together my own protocol, under ya'll's guidance.

I plan to include some fasting, which I think might speed things up and give my gut some relief.  I have fasted before, and find that when done right, it gives me a pleasant sense of freedom.

I also plan to include Kombucha tea while fasting.  It is an appetite suppressant, and has a number of components which should help in GI healing and in combatting alien organisms.  I have asked elsewhere in the forums about K tea and type O, and gotten no reply, so I guess I'll find out for myself.  

The idea is to go off the fast starting with a particular indicator food, something which might help rule in or out a whole category of foods, rather than one at a time.  I am thinking of Oats being the first such food, since it is considered a good fast-breaker, and the celiac site says oats have recently been found ok for celiacs.  I would also like to be able to make granola.

My main immediate reactions to foods are GI pain, back pain, fatigue, gas, fever, mind fog and irritability.  Sometimes I get diarhea.  Longer term, there is constant fatigue and muscle and joint pain when active, shortness of breath, tinitis, dizzyness and light-headedness when standing up too fast.  I am probably leaving things out, but these are the indicators I will be trying to use when testing foods.

I am having a bit of a problem with mind fog right now.  I have had to resort to melatonin to get to sleep some nights lately, and last night I did not sleep well anyway.  If I take it and don't sleep, I am tired and foggy in the morning.

As for patience.  It does help to have something of a time-line to use.  However, I am 53 and don't have the natural reserves to go through a prolonged period of testing and recovery.  I don't know how much longer I will be around anyway.  If it takes ten years, by then it is unlikely I will be able to return to anything like my previous level of activity.

Also, if I'm not mistaken, personality-wise, are not type A's and type B's naturally more patient than type O's?

JK, I would be interested to know, what kind of diet had you been in the habit of eating over the years prior to the downturn in your health and your discovery of BTD?  Would you say it was generally what is considered a healthy diet?
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Lola
Sunday, May 28, 2006, 4:57pm Report to Moderator Report to Moderator

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Specific Carbohydrate Diet (SCD)

Quoted Text
Heidi s take:
I am also a type O and I drink Kombucha w/ green tea (combo) and it REALLY
alleviates digestive problems for me- and BOY am I one for digestive problems.
Who knows...I'm gonna stick with it. If the lists keep *changing* than maybe
it'll eventually show up as okay.

**sigh***

I don't know...but our bodies must know something!
I feel funny about it, still, so I know what you mean.

--Heidi


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!

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lola  -  Sunday, May 28, 2006, 5:03pm
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JK
Sunday, May 28, 2006, 5:51pm Report to Moderator Report to Moderator
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I eat according to SCD principles so that I don't continue to feed the bad bacteria and fungi polysaccharides and starches -- essentially it is a list of foods that contain little in the way of complex sugars. People with digestive inflammation, leaky gut or celiacs often have difficulty digesting complex sugars since the enzymes that do this work are no longer present. These enzymes are made in the cells at the tips of villi (finger-like projections on the lining of your intestines which increase surface area and absorption). Collectively, villi are referred to as your brush border. Your brush border is very delicate and if your immune system is attacking your digestive tract, as is the case for people with an active celiac or leaky gut inflammation, etc, then you have a reduced or obliterated brush hborder depending on the severity of the problem. So you can't digest the complex sugars and starches...but the bad bacteria and fungi CAN. They proliferate, causing more inflammation, excrete their wastes into your system, burdening your liver, on and on. This is dysbiosis and the SCD way of eating tries to starve the bad bugs out -- at least not feed them - feeding them is like pouring gasoline on a flame!

And if you brush border is damaged, you will have trouble completely digesting proteins. Same reason, enzymes necessary for the last step in the breakdown, dipeptidases are not available. There was a good thread about this, Amino Acids. I'll search to see if it is still there - probably has ben too long. If anyone has saved it, would you mind sharing??

I would be cautious of the fasting since your body needs lots of nutrients to heal. Just my humble opinion! You might want to consider supplementing with L-glutamine -- it is used in vast amounts by the digestive system for tissue repair.

I did suffer with most of the symptoms you listed too, except the diarrhea as I tend to constipate.

It won't take ten years, but I too have to accept the possibility of never feeling like I did in my twenties!! ! Realistically, it could take up to a few years but I have seen so much improvement since last August that I am really hopeful. I don't know how long I will have to continue with this way of eating/living but I would be OK with it the rest of my life if necessary and if I had regained my health completely because of it.

I started eating according to BTD over 3 years ago. I have lost track of the time, maybe even 4. But I didn't know I was a celiac until about 2 yrs ago. I had been eating less than healthy food choices before BTD, but not as bad as the Standard American Diet (SAD), all of my life. So I am trying to heal from a lifetime of cumulative damage. I was never really healthy and as I look back, I see how one thing was related to another and another as symptoms increased over the past decade to the point where I was last August. I don't know what came first, whether I was a celiac all of my life which caused leaky gut, or the other way around. Doesn't really matter now. Now I know what to do and I am much better. I hope you can say the same in less time than it took me!!  
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Victoria
Sunday, May 28, 2006, 6:51pm Report to Moderator Report to Moderator

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Queueball, regarding Kombucha, there seems to be a lot of ambivalence about it.  Those who like it, like it.  Those who are suspicious of it's unknown factors tend to shun it.  A lot of folks feel like Heidi, in the post above by Lola.  They use it, benefit from it, and still remain somewhat cautious and skeptical.
My daughter has recently begun using it, and I think she drinks way too much of it.  However, she says that her body feels very good when she drinks it.  To my own tastes, it is too sour.  So you may have to be your own best judge.

I guess B's are more patient than O's.    I don't know about A's.  They can be a bit fragile with unknowns!  

JK, that was a wonderful and informative post.  I'm going to save it!



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
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queueball
Monday, May 29, 2006, 12:01am Report to Moderator Report to Moderator
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What she said, Judi.

Where does one come across such information?  The celiac.com site is a bit of a mess, but I'm going to get back there the next rainy day I feel good.

I have used Kombucha before, and also drank way more than you are supposed to because of the clean-feeling energy it gave me.  That was years ago, and I have just aquired a new culture I'll be trying soon.

I don't know why Heidi's post did not come up when I searched the forums.

Vic, I love sour, and I miss vinegar.  I'm using fresh lemon and lime juice, and I have doubts that it is agreeing with me.

I may not fast longer than two or three days.  The last time I tried, shortly before BTD, it was clearly not a good idea, but I also was not feeling well and so miserable after every meal that not eating seemed like a good idea at the time.

J, it seems you accidentally answered a question nobody else has, about why cut out all grains for a while.  It's the complex carbs.

Growing up, my Dad always encouraged eating red meat as rare as possible, his theory being it was more digestible this way.  For a while in high school I ate raw meat sandwiches for lunch.  Lately, though, for various reasons, I have been cooking my meat longer, and at higher temp.  What do you think about the relationship between protein digestibility and cooking method.  I just got an oven I can braise in, which I think might help.

Enzymes for complex carbs can be supplied by sprouting, right?  How does one sprout a piece of meat?
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KimonoKat
Monday, May 29, 2006, 12:10am Report to Moderator Report to Moderator

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Quoted from queueball


I don't know why Heidi's post did not come up when I searched the forums.


Heidi had a column, and that's where the info probably is.  It's still listed up there with the bloggers.  You can search that.


Knowledge is power.  SWAMI gives you the diet that will unlock the key to better health, and it's all based on your unique individuality.
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italybound
Monday, May 29, 2006, 12:12am Report to Moderator Report to Moderator

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queueball, for type O's, Dr. D recommends eating our beef, bison on the rare side. Believe it or not, 7 years ago when I got married, I ate ALL of my meat well done. Well done. That's how I was raised. The DH eats his steak rare. It used to make me almost throw up. No I eat my beef rare to med rare. And I said I never would.  
So as rare as you can stand it is good.



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queueball
Wednesday, June 21, 2006, 4:13pm Report to Moderator Report to Moderator
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Update and feedback time.

I was feeling much better a couple of weeks ago, and made the mistake of climbing a steep hill with some friends to watch the sunset.  The next day I went into a relapse, and it has taken me all this time to work my way out.  Has anyone else found that overdoing physical exercise, especially for type O's, can be a serious problem?  Often with me it seems to precipitate GI pain.

I started GI bleeding again right after the hill climb, and it took about a week to stop that, by which time I was pretty bad off, anemia-wise.  I started taking Ferrous Fumarate again, which seems to be less upsetting as an iron supplement than the herbal stuff, which I suspect has alfalfa.  I also think I am absorbing it better.  It was a very discouraging and depressing time, but I seem to be coming out of it slowly.

During roughly the same period as the hill climb, there was a kitchen slip-up, and some wheat-containg soy-sauce got into some marinade that was re-used for about a week, so I have also been in pain for those couple of weeks since, as a result.  I would like to hear opinions about whether a wheat slip-up like this, at this early stage, will put me back all the way to ground zero.  Will it undo all the healing I have done to this point, do you think?  It sure felt like it.

I also cheated some with smoked rainbow trout and smoked turkey.

I also have some suspicion soy, even from Bragg's, might be a problem, so I have finally ordered a secretor test, since non-secretors are sensitve to soy.  I am finally convinced, having bought the live right book, that I need to know, especially since I love avocado.

In some of my research into Celiac Disease, there seems to be some indication that it can be worse for males, although the reasons are not clear.  

I have been off all alcohol forever now, it seems, and I don't really want it anymore anyway, most of the time.

I have been mostly steaming my meat and vegetables to improve digestibility.  Hopefully this will help with absorbing the iron and proteins from the beef.

I also have been making a lot of beef jerky, at very low temperature in the oven.  I am hoping this is equivalent to rare beef, since it stays red.  I will provide a recipe or two when I get it perfected.

Speaking of recipes, for Heidi, have you tried Kombucha tea mixed half and half with pineapple juice?  Killer.  The cheap canned stuff from the store is kind of yucky, so I tried the mix with Kombucha and was floored.  You only want to sip it slowly, even though it is so good.

I have had absolutely no grains, and perhaps that is why I have been constipated.  Having started back on the iron has made it worse.  I am about to start using a rectal syringe or enema bag to get things started on a regular basis.  I don't want to take any more herbs or chemicals to move things along, and I think a lot of my fatigue may be due to turd retention.

If my anemia does not improve soon, I am thinking of making a trip to Florida to visit my brother, who has shown no signs of Celiac or other blood-type related problems, to get a transfusion from him.  I am thinking that not only will this jump-start the healing, but he may have blood factors which either are depleted from my system or were never there, which will help me combat the disease and heal.  After the last transfusion, about a year ago, I felt relatively great for three or four months, until I bled out.

By the way, one source says 2 - 6 months to heal Celiac damage, another says if the damage is too severe and long term, it may never heal.  Part of the reason for the Kombucha tea is that it supposedly contains components which are building blocks of GI structure, which I don't recall right now, except for colagen.

Later, q.
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Lola
Thursday, June 22, 2006, 12:20am Report to Moderator Report to Moderator

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Sa Bon Nim
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sorry to hear about your relapse.......
hope you feel better soon.

be as compliant as you possibly can, BTD really works!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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The harder you are on yourself, the easier life will be on you!
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Laura P
Thursday, June 22, 2006, 2:22am Report to Moderator Report to Moderator

Kyosha Nim
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As far as how long it takes to heal,  I think it depends on how long you went undiagnosed, for me it was many years, I have a long road ahead



If there is no God, who pops up the next Kleenex?
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Sometimes you don't know how great life is until you lose what you didn't know you had
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Serena
Thursday, June 22, 2006, 5:00pm Report to Moderator Report to Moderator
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just about the no grains and constipation- are you eating a lot of fibrous veggies? Granted, I have grains, but I can go two days without grains, and no digestive probs, I think, because I eat broccoli, spinach, carrots etc...
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