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Behcets disease and B- blood  This thread currently has 1,240 views. Print Print Thread
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cajun
Saturday, April 20, 2013, 4:40am Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Please help with any information about this rare disease.
I recently spoke with a friend that is now following the BTD. She knows about it from when I started years ago. Her friend has been diagnosed with this disease and is trying to follow the BTD/see an holistic ND/get answers.
The friend is B-. I don't know if that is relevant to this but I am trying to help. She found an ND that suggested the BTD but does not have any other Behcets patients.
I am ordering from NAP on Monday and gathering as much info as possible for her.
Thanks for any news/info/help.
  


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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ABJoe
Saturday, April 20, 2013, 5:33am Report to Moderator Report to Moderator

35% Nomad or Teacher - health history dependent
Sun Beh Nim
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Posts: 8,357
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Location: Orange County, CA, USA
Age: 51
Behcet's (beh-CHETS) disease, also called Behcet's syndrome, is a rare disorder that causes inflammation in blood vessels throughout your body. The inflammation of Behcet's disease leads to numerous symptoms that may initially seem unrelated. The signs and symptoms of Behcet's disease — which may include mouth sores, eye inflammation, skin rashes and lesions, and genital sores — vary from person to person and may come and go on their own.


As indicated above, this is an inflammatory disease within the blood vessels.  As we know, BTD is very anti-inflammatory, so it should help.  If she were to eat mostly beneficial foods, she will most likely reduce the symptoms - and may eliminate the disease and heal completely, although as with most of these rare diseases that may also be auto-immune diseases, I don't expect the turn around to be real quick.  The first step is to convince the patient to actually limit the diet to the beneficial foods to heal as quickly as possible...


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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Lola
Saturday, April 20, 2013, 5:40am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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Location: ''eternal spring'' Cuernavaca - Mex.
Age: 58
the perfect cure= follow your BT /GT guidelines!!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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cajun
Sunday, April 21, 2013, 4:59am Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Thanks Joe and Lola!

I am pretty sure she is a nomad. I just read my paperwork on genotypes and see that autoimmune diseases/rare slow growing viruses actually fall into the weakness area of nomads...I assume much like cancer does in A's.
This young woman also fits right into the age group when the symptoms usually appear.
She is focused on whatever she needs to do...her ND suggested the BTD, even though she is not an IFHI member, and immediately took her off sugar and dairy. I understand the sugar but dairy? a B- nomad without dairy?
I told her I would try to find an IFHI ND that has some knowledge or at least another patient with this rare disease. Not an easy task!!!!
I just feel for this bright young high school teacher, wife and mother of 2!
Well, my friend told me that due to both of them trying BTD now, and everyone talking, it is all the buzz at their school!

I found my ND from the IFHI registry.... but Bechets is so rare.


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Lola
Sunday, April 21, 2013, 6:30am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
Posts: 51,445
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 58


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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RedLilac
Sunday, April 21, 2013, 1:30pm Report to Moderator Report to Moderator

SWAMI tweaked Explorer Super Taster from Illinois
Kyosha Nim
Posts: 3,054
Gender: Female
Location: Lombard, Illinois (Chicago suburb)
Age: 63
Generally if a B is not lactose intolerant, then Swami gives back some dairy.  Mine did and I’m an Explorer.  My son is a Nomad and even though he has not done Swami, he gave himself milk back because it makes him feel good.

She needs to really listen to her body.  Even a computerized Swami will not have all the variations caused by all the diseases in the world.  If her ND is BTD savvy, then that’s a good start.  Keeping a food diary is always a good idea when having health issues.


I am B- NON-Sec Explorer; my son is B+ SEC Nomad; my Mother was O+; and my Father was AB-
SWAMI Thanksgiving present 2008
Revised from Arlene B- NonSec to RedLilac on 3/31/06
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Victoria
Sunday, April 21, 2013, 6:36pm Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
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Location: Oregon
Quoted from cajun

I am pretty sure she is a nomad. I just read my paperwork on genotypes and see that autoimmune diseases/rare slow growing viruses actually fall into the weakness area of nomads...I assume much like cancer does in A's.
This young woman also fits right into the age group when the symptoms usually appear.
She is focused on whatever she needs to do...her ND suggested the BTD, even though she is not an IFHI member, and immediately took her off sugar and dairy. I understand the sugar but dairy? a B- nomad without dairy?


Yes!  I am a B Nomad who doesn't eat dairy, except for Ghee.  I am 'allowed' a small amount of dairy on my SWAMI, however I have found that even with that modest addition, I'm always dealing with a flare up of sinusitis or pain in certain joints or surgical sites (inflammation).  It's not worth it and I've moved on by developing alternatives.  For me - no gluten at all (I don't eat even non-gluten flour products), no dairy - only ghee, no sugar (I don't use any added sweeteners).

This approach works best for me because I came into the BTD/GTD with several chronic conditions and just came out of one serious illness.  I am totally motivated to use diet and lifestyle as the foundation for healing and wellness.  It is a life-time process and not a quick dash to a goal.  

I also follow Dr. D's advice for compliancy and eat 80% of my food from the Diamond/Superfood category.  Actually for me, it's probably more like 90%, but that was what he said.  I eat no avoids at all.



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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cajun
Monday, April 22, 2013, 7:08pm Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Thank you Lola, Red Lilac and Victoria, for your help.
This young woman has experienced pain and swelling in her mouth, elbows and knees in the past. It has now been months since any symptoms. She continues to see her ND.
I am ordering from NAP today and will get her additional info.


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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ruthiegirl
Thursday, April 25, 2013, 5:24pm Report to Moderator Report to Moderator

SWAMI O+ Gatherer, Healing from Fibromyalgia
Kyosha Nim
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If she's been symptom-free for months, she may not be interested in learning further. Clearly, whatever the ND is doing has been working for her.


Ruth, Single Mother to 20 yo  O- Leah , 18 yo O- Hannah, and  13 yo B+ Jack


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Henriette Bsec
Friday, April 26, 2013, 11:34am Report to Moderator Report to Moderator

swamied nomad chameleon receptor worldview
Kyosha Nim
Posts: 8,753
Gender: Female
Location: Denmark
Age: 42
And I am a tottally different B rh- nomad than Victoria
I have lots of dairy both as diamond and superfoods  including whole fat milk is  superfoods while no/ low fat milk i neutral.


ENFP -naturalist, visual/spatial and musical/verbal/chatty Dane- Mother to DD Emma age 19,
0 rh- secr ( Hunter or Explorer )
Diamonds, superfoods, Neutral,*black dots, avoids
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Amazone I.
Friday, April 26, 2013, 12:25pm Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
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Location: CH-Benglen Kanton Z�rich
Age: 57
a mix of 225 mg's of Vit C & 105mgAcerola extract,&150mg Hesperidin MethylChalcone,&150mg Naringin &300mg Grapfruitextract 4-6 capsules a day should reduce inflammation (you might even add some boswellia serrata) and sustains b.vessles...


MIfHI K-174
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cajun
Sunday, April 28, 2013, 3:44am Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Thank you Amazone!!!!! Milles merci!!!!!! I will pass this on to my friend.

HB.....I noticed your signature...my friend is very musical, a high school teacher and B-...just like you!!!!! She is so eager to learn more about BTD/GTD/SWAMI! She even suggested that her, my friend that knows us both, and I go to see Dr. D at his clinic! Like we have all the time and money to do it!! Well, in all fairness, I understand her wanting to get a hold on this rare disease.  


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Henriette Bsec
Sunday, April 28, 2013, 7:35pm Report to Moderator Report to Moderator

swamied nomad chameleon receptor worldview
Kyosha Nim
Posts: 8,753
Gender: Female
Location: Denmark
Age: 42
all the best for her.


ENFP -naturalist, visual/spatial and musical/verbal/chatty Dane- Mother to DD Emma age 19,
0 rh- secr ( Hunter or Explorer )
Diamonds, superfoods, Neutral,*black dots, avoids
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cajun
Monday, April 29, 2013, 11:48pm Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Thanks!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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cajun
Saturday, May 4, 2013, 3:18am Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Our mutual friend just texted me with wanting to meet and discuss BTD some more. The woman with Bechets is in a flare and in pain.... We are meeting Sunday afternoon but I don't know how else to help her at this point. I have given both of them all the info from NAP and the supp suggestions from Isa. They want to pick my brain.   Well, I will bring my ER4YT encyclopedia and Genotype book. I am going to suggest SWAMI again. She is the one who wanted to fly to Conn. and get an appointment with Dr.D!!!! Hey, if she can do that then it is the best thing I could think of!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Amazone I.
Saturday, May 4, 2013, 11:13am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
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Age: 57
De rien ma bien chère amie   and if possible I've changed my point of view.. change the boswellia serrata into boswellia cartherii... even tougher and quicker as an antiinflammatory response... but perhaps a bit harder to get it.... but worth to give a try  

btw congrats to have persuated her for the very next step .... and  DL-Phenylalanine can be used as a painkiller... 500mg's or justamente the half should do the trick as well ... wish you both all the best and quickest recovery  


MIfHI K-174
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cajun
Saturday, May 4, 2013, 10:25pm Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Thank you, Isa!!!!! I will see her tomorrow and pass on the added info!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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cajun
Saturday, May 4, 2013, 10:26pm Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Thank you, Isa!!!!! I will see her tomorrow and pass on the added info!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Henriette Bsec
Sunday, May 5, 2013, 8:40am Report to Moderator Report to Moderator

swamied nomad chameleon receptor worldview
Kyosha Nim
Posts: 8,753
Gender: Female
Location: Denmark
Age: 42
I am thinking is she getting too many omega6 rich products ?
It can flare me up big time...  
I have to make sure my balance is good
so sometimes I ned to cut down on othervise good products like turkey, almonds etc .That are very high in omega 6.
and make sure I get enough fish oil, fish and pastured beef/lamb and eggs.



ENFP -naturalist, visual/spatial and musical/verbal/chatty Dane- Mother to DD Emma age 19,
0 rh- secr ( Hunter or Explorer )
Diamonds, superfoods, Neutral,*black dots, avoids
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Amazone I.
Sunday, May 5, 2013, 10:01am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,420
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 57
once is enough dearle cajun ...


MIfHI K-174
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cajun
Tuesday, May 7, 2013, 4:22pm Report to Moderator Report to Moderator

Teacher/Explorer
Ee Dan
Posts: 2,548
Gender: Female
Location: Southern California
Age: 63
Isa...

HB, I now think she is an explorer. She will be getting a SWAMI! Thanks!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Henriette Bsec
Tuesday, May 7, 2013, 7:16pm Report to Moderator Report to Moderator

swamied nomad chameleon receptor worldview
Kyosha Nim
Posts: 8,753
Gender: Female
Location: Denmark
Age: 42
B explorer needs the swami BIG time imo  so that is a good choice - good luck


ENFP -naturalist, visual/spatial and musical/verbal/chatty Dane- Mother to DD Emma age 19,
0 rh- secr ( Hunter or Explorer )
Diamonds, superfoods, Neutral,*black dots, avoids
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