SWAMI O+ Gatherer, Healing from Fibromyalgia Kyosha Nim Columnists and Bloggers
Location: New York
Also remember that not every "abnormality found in a lab test or physical exam" is necessarily problematic. For example, I have a heart murmur. It was diagnosed about 15 years ago, but I'm not sure if I've had it longer than that and nobody noticed it, or if that's when it showed up. But I've had some follow-up tests for my heart and the conclusion is that my heart is fine. Yes, the murmur is still there. No, it's not "normal" in the sense that the doctors have a clinical name for the sound my heart makes. But it's not actually causing any health problems at this time.
I do keep in mind that I have this "abnormality" in my heart, just as I keep in mind my family history of heart disease. Before starting any new drug or supplement, if it warns that it could cause heart or blood vessel damage I won't take it. I'm equally cautious with any drugs that might hurt my liver. But I don't live in fear or worry about the heart murmur on a day-to-day basis.
Ruth, Single Mother to 21 yo O- Leah , 19 yo O- Hannah,and 14 yo B+ Jack
Thanks Ruthie. I think I needed to be reminded of that.
Today I have been revisiting the idea of going grain-free again. The last time I was grain-free was around the time I moved here to Utah in Feb. 2011. I stayed with it for a few months, and was able to get around on foot, bike, bus, and train while I was doing so. I thought that I had stayed on it long enough to heal up (which I had) enough that they would be safe now (which I'm now questioning. In hindsight, I noticed that I started getting worse again after starting back on grains, but correlation isn't causation. Maybe in a few weeks I will be better and maybe this time I'll stay grain-free for good.
TJ, a Lyme negative doesn't mean you don't have Lyme. It means on that particular day, the test didn't pick enough up to flag it. "Indeterminant" means it wasn't enough to be flagged, but it was there. From what I've read repeatedly, sometimes you have to have a test done again and again and again (and sometimes be put on antibiotics in order to MAKE the bacteria flare up) to finally get a positive. To me, it's not worth all that money and stress to try to get a positive result. I realize a lot of your symptoms do line up with Lyme, but of course it doesn't necessarily mean you've got it. To tell you the truth, I was hoping your tests would be a little more helpful than that. I'm sorry. I KNOW how frustrating it is.
Rob doesn't have a diagnosis, but he's herxing on the Cowden protocol. After a couple of months on the same dosage, he's finally got the nerve to try to increase the drops.
ISTJ, BTD since 5/05. Battling chronic Lyme disease since ~1985.
"Everything is permissible for me, but not everything is beneficial..." I Corinthians 6:12