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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  Waiting, waiting, waiting: Lyme disease? ASD/PFO?
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Waiting, waiting, waiting: Lyme disease? ASD/PFO?  This thread currently has 3,514 views. Print Print Thread
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TJ
Thursday, December 20, 2012, 1:34am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
IGenex faxed my results to my physician's office today, and I picked them up after work:

Lyme IgM Western Blot: NEGATIVE. All bands negative except **41 and **83-93, which were marked indeterminate.
Lyme IgG Western Blot: NEGATIVE. All bands negative except **41 and 58, which were positive.
Serum and whole blood PCR's: both NEGATIVE, for both genomic and plasmid DNA.

** From the report: "Presence of only one double starred band or indeterminate double starred bands in a negative report may indicate clinical significance. Therefore, we recommend testing with another method and/or retest in 4-6 weeks."

I'm not sure what to think at this point. This is iGenex, after all. If they couldn't find it, I don't know of anyone who can. If I do have it, why wouldn't it show up? I contacted the cardiologist's clinic and requested them to prepare a copy of my records for me to pick up. In the meantime, I'm trying hard to avoid anything that will put my heart under a load, which is when it seemed to be leaking. It really makes me crazy.

What now?

Quoted from Goldie
It doesn't go anywhere for me. It gives me an error.

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Lin
Thursday, December 20, 2012, 2:23pm Report to Moderator Report to Moderator

A+ Secretor, INFP
Ee Dan
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TJ, I've been going to a Holistic/Traditionally trained doctor who ran a CD57 test.  Apparently this number which should be 200+ is depressed in people that have been infected with Borrelia. And patient usually has EBV.  I've taken a few homeopathic treatments with her and still working on it.
She believes that the lyme tests may  not show positive in chronic cases (which she thinks I am) and that you have to build up the immune and work on the treatments and test periodically.
Having said that my lyme tests still come out negative.  
Lin


Gluten/Casein and Yeast sensitivity.
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TJ
Thursday, December 20, 2012, 11:22pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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I picked up a CD with the scan results and images. It was eye-opening, and good to see it instead of just remembering it. I didn't remember it exactly right, of course. What was happening was that when I was resting (laying there doing nothing), all the bubbles stayed on the right side of my heart. But when I was straining/exerting myself, the bubbles slowly started appearing on the left side, and grew in density the longer I strained. Now I understand why I have such difficulty tolerating exertion/exercise.
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JJR
Friday, December 21, 2012, 6:39pm Report to Moderator Report to Moderator

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Kyosha Nim
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So did they say you have a hole or not?  I know my cousin had one and then got surgery for it and then started running marathons.  He always was active though as a kid.  I guess he took medicine for it when he was younger, before the surgery.  Not sure what.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Friday, December 21, 2012, 9:02pm Report to Moderator Report to Moderator

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Kyosha Nim
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Age: 39
He said I'd have to have an esophageal echocardiogram to be sure. I don't know how air bubbles could pass intact through the capillaries in the lungs, so I'm sure there's a hole.

Here's the problem: I wasn't mentally "all there" after the tests, so when the doctor came in to see me I couldn't convey to him what I'd been dealing with. I think he left thinking I just had migraines. After getting the images and looking at them myself, I feel confident that this is a much more serious problem than he thought, so last night I composed a letter describing what troubles I've been dealing with since my teens, and requesting him to reconsider. I dropped off the letter at his office this morning. It's so much easier to explain myself if I'm not being rushed. If he reads that letter, I don't see how he could justify not reviewing and reconsidering his diagnosis.

This is it! This is the big issue I've been looking for all these years! It's exhilarating to finally have an answer, but it's also despairing to think that I might not be able to have anything done about it. There's nothing I can do to fix this problem myself.
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Lin
Friday, December 21, 2012, 10:02pm Report to Moderator Report to Moderator

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Ee Dan
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TJ,
The nice thing is now the problem is identified, you will at some point find a way to get it sorted out.
good luck.
Lin


Gluten/Casein and Yeast sensitivity.
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PCUK-Positive
Saturday, December 22, 2012, 12:44am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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you never know for sure that it's not fixable or if it's there for a positive reason.

some say for example coeliac's have an advantage from being sensitive to wheat so that they stop using it before perhaps a less sensitive person is made ill in an even worse way the attacking the villi.

teeth can re mineralise. hopefully after all this trouble you can figure out how to improve you lot.

maybe that's the thing that makes B's have an issue with nitros oxide or whatever it is that Dr D say they have an issue with, late here and still catching up on sleep. good luck.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Sunday, December 23, 2012, 11:30pm Report to Moderator Report to Moderator

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Kyosha Nim
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Turns out there is a way for the bubbles to pass through my lungs and back into my heart. It's called a pulmonary arteriovenous malformation (PAVM). It's a blood vessel malformation in which the arterial blood can flow straight into the veins without first passing through capillaries. Guess I spoke too soon. Perhaps I need to see a pulmonologist instead of a cardiologist to get me fixed.
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PCUK-Positive
Monday, December 24, 2012, 11:19am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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You are a bit of a ninja turtle


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Monday, December 24, 2012, 6:35pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from PCUK-Positive
You are a bit of a ninja turtle


Pulmonologist, not herpetologist!  
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ruthiegirl
Wednesday, December 26, 2012, 2:44am Report to Moderator Report to Moderator

SWAMI O+ Gatherer, Healing from Fibromyalgia
Kyosha Nim
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Middle aged mutant ninja turtle?


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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C_Sharp
Wednesday, December 26, 2012, 3:24am Report to Moderator Report to Moderator

Teacher Rh+ Lewis: a+b-, NN,Taster
Sa Bon Nim
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Quoted from TJ

What now?

Quoted from Goldie

It doesn't go anywhere for me. It gives me an error.



Link is to modify a post made by Goldie. Unless you have privilege to edit Goldie's (that is you are Goldie) the link is going to give you an error.

Here is a link to the post without a request to edit it.

http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1354024050/s-new/#num56

Ribbit's post is actually the post before this:

http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1354024050/s-new/#num55


MIfHI                            I follow a SWAMI diet.
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TJ
Wednesday, December 26, 2012, 6:24am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from ruthiegirl
Middle aged mutant ninja turtle?
I'm not sure what he was talking about, but I had to have a witty comeback... Will somebody explain the ninja turtle thing to me? I used to watch the cartoon when I was a kid but I just don't get it.

Thanks for the link, Kent.
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ruthiegirl
Wednesday, December 26, 2012, 5:16pm Report to Moderator Report to Moderator

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Kyosha Nim
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I think he was joking that you're a "mutant" because of the heart/lung/whatever defect. I think the ninja turtles were normal turtles that fell into radioactive or toxic waste as babies and turned into superheroes, and were then raised  by a ninja master. I don't think anybody is suggesting that you were dropped into a vat of toxic waste as a baby, though.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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TJ
Wednesday, December 26, 2012, 5:44pm Report to Moderator Report to Moderator

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Kyosha Nim
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Well that's a relief! For the record, it was "retromutagen ooze".
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TJ
Friday, December 28, 2012, 1:03am Report to Moderator Report to Moderator

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Kyosha Nim
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The doctor isn't going to do anything about it.
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ruthiegirl
Friday, December 28, 2012, 3:09am Report to Moderator Report to Moderator

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Kyosha Nim
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What CAN be done about it? Can he refer you to another doctor for treatment? Or is this one of those things that can't  be treated at all?


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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TJ
Friday, December 28, 2012, 6:45am Report to Moderator Report to Moderator

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Kyosha Nim
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More tests to determine if it's in my heart, lung, or elsewhere. His MA was stone-walling me. I'm going to have to find my own second opinion.

Ps: I just ordered a pulse oximeter to do some testing of my own. My blood oxygen is always normal (>90%) when I'm at the Dr. office sitting in a chair, but what happen to it when I exercise?
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TJ
Friday, December 28, 2012, 11:33pm Report to Moderator Report to Moderator

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Kyosha Nim
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I just got a call from the cardiologist himself today. Very surprising. He was understanding, but reasserted that these findings didn't represent a problem. Maybe I just want an answer too badly to see things clearly. I just want to know why the heck I'm like this.
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ABJoe
Saturday, December 29, 2012, 3:34am Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from TJ
I just got a call from the cardiologist himself today. Very surprising. He was understanding, but reasserted that these findings didn't represent a problem. Maybe I just want an answer too badly to see things clearly. I just want to know why the heck I'm like this.

I can understand this desire.  I wanted so badly to be able to find out what the problem was.  It was really tough going to Dr. after Dr. and hearing that "this" wasn't a problem, but still not getting an answer.  I have to assume that God had other plans for me.  It was good to get "non-problems ruled out, though.  I kept looking and was introduced to this diet - still got the Secretor test to rule out another possibility.  It can be a series of frustrations, but keep with it.  
The real problem wasn't revealed to me until I had done a tremendous amount of healing.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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TJ
Saturday, December 29, 2012, 6:30am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from ABJoe
The real problem wasn't revealed to me until I had done a tremendous amount of healing.
I guess I'm back to peeling off a layer at a time.

I wonder what I'll learn when my oximeter shows up? If I really do find my oxygen levels plummeting during exercise, that will definitely need to be investigated.
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ABJoe
Saturday, December 29, 2012, 5:17pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from TJ
I wonder what I'll learn when my oximeter shows up? If I really do find my oxygen levels plummeting during exercise, that will definitely need to be investigated.

I'm sure it will provide more learning opportunities.  Every investigation for me has lead to more learning and discovery.  I keep learning little parts of the vast information that I don't know.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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Andrea AWsec
Wednesday, January 2, 2013, 12:41am Report to Moderator Report to Moderator

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Kyosha Nim
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Everyone's O2 sat drops with exercise.  A pulse oximeter is just a rough gauge of O2 saturation in the blood, blood gas is much more accurate.  Not sure what you are looking for here?
But doing some exercise like yoga would build tolerance and over all health of your cells.




http://jap.physiology.org/content/19/2/284.abstract


MIFHI

"Do not try to satisfy your vanity by teaching a great many things. Awaken people's curiosity. It is enough to open minds; do not overload them." Anatole France

"Healthy people have the least overt symptoms from eating avoid foods." Dr. D'Adamo
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TJ
Wednesday, January 2, 2013, 5:53am Report to Moderator Report to Moderator

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Kyosha Nim
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I'm looking for a pattern. I want to see if there is a consistent, dramatic decrease in blood oxygen during exercise. What I've read suggests that the decrease during exercise should be very mild. So far I'm seeing 90s to high 80s during exercise, which seems unremarkable to me. If I get down into the 70s consistently I will start looking for a second opinion.

I'm just now trying to get back into exercising again, so I am very out of shape. In the past, once I've recovered to a point that I feel like exercising again, I can go for as little as a couple weeks up to a few months before I feel like exercise has become a detriment rather than a benefit, even with mild exertion. If it was more consistent it wouldn't be so frustrating! Sometimes the low amount of exertion I can do without making myself feel worse for it makes exercise pointless, but I don't know how long I need to rest before I can try again. I also don't know how it affects me having a week off work to rest. I also don't know how much the paper dust in my office area was contributing to the problem. I brought in an air purifier just before the Christmas break and I noticed some modest improvements: I was thinking clearer, I didn't feel as much need for a nap during my shift, and I actually had a little energy left after getting home from work.

There are just too many variables.
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TJ
Wednesday, January 2, 2013, 5:58am Report to Moderator Report to Moderator

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Kyosha Nim
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To further complicate matters, my Prozac dosage effects my energy levels greatly. When I'm feeling run-down or having difficultly sleeping well, I take a little more. It forces me to slow down, which is good, but it continues to make me feel sluggish even after I've rested up, so it's hard to tell how much to take at a certain time. I was taking more than usual in the weeks leading up to my break and during the break. I've cut back again now. I wish I had gauges to tell me about the state of my body!
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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  Waiting, waiting, waiting: Lyme disease? ASD/PFO?

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