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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  Narcolepsy
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Narcolepsy  This thread currently has 1,050 views. Print Print Thread
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Nadira
Tuesday, March 27, 2012, 5:05pm Report to Moderator Report to Moderator

Sugar sensitive, hypothyroid, postmenopausal, ADD
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I've been on the BTD for almost 2 months, and have noticed many improvements.  However, here is my question:

My son was diagnosed with Narcolepsy about 6 years ago (he is now 21).  I am 90% sure he is a type B.  Could there be any connection between Narcolepsy and blood type, and/or would the BTD help?

He has a few of the main symptoms, that being falling asleep during the day, trouble getting good rest at night, and being able to wake in the morning.

His biggest problem, which has been an issue for almost 15 years, is maintaining a regular sleep schedule.  He has about 4 alarm clocks, including his phone, and has been working on this himself for at least 4 years.

I'm an O, and I've had good progress with the diet.  I've read about type B, and have told him he shouldn't eat chicken, among other things.  But he's not interested in the diet, and doesn't think he needs to adhere to avoids.

Can anyone give me any information about how the diet would help him?  He currently takes Ritalin, Strattera (which is also for his ADD - a shared condition), and 3 mg. Melatonin at night (when he remembers).

Any ideas would be appreciated.  
Nadira
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Goldie
Tuesday, March 27, 2012, 6:11pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
He has a few of the main symptoms, that being falling asleep during the day, trouble getting good rest at night, and being able to wake in the morning.


that is narcolepsy.. that is ADD or ADHD..

Ritalin is a inverted stimulant - narcotic ..it keeps you sort of stable during the day.as might coffee.. but one crashes or gets excited after the pill or coffee wears off..

if he needs it so be it.. but as he gets older he might need to change to other drugs..

If he is not yet interested in health, let it go.. he is dealing with loads of issues that can crush his self esteem.. letting him mature ALWAYS KNOWING THGAT HE IS 3 YEARS behind in maturating makes a big difference.. this is NOT HIS FAULT.. just the way his body works..

If you could just feed him what you think might be hios diet without making a big deal of DEPRAVATION out of it , you might create better health, but at his age giving up certain things is HARD TO DO..

maybe having better foods open on the table or hand to reach foods ready to eat in the fridge is one way to encourrage better choices.. As he get's older he might come around.. but don't hold your breath..

YOU can cook many foods good for him .. without ever telling him so.. worth the effort..  

The deeeep sleep is typical for the condition.. NOT HIS FAULT.. I think he is young for Melatonin..

Turning off all light in his room might be good for him .. it makes melatonin work naturally in his body when there is no beam of any light..

Computers and cellphones should not be in his room... BUT the fight is not worth it unless you can convince him to just leave it all outside his door.. make sure no one tripps over it..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Nadira
Tuesday, March 27, 2012, 8:01pm Report to Moderator Report to Moderator

Sugar sensitive, hypothyroid, postmenopausal, ADD
Summer: Realization, expansion.
Posts: 74
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Location: Kent, Ohio
Age: 64
Goldie, thanks for your reply.

ADD is not the same.  It is a problem with executive function:  focusing, distraction, organization.  I have it worse than he does.  DS was diagnosed with ADD in middle school, and has been taking Ritalin since then.  Thus, the diagnosis of narcolepsy was harder to make.

Ritalin is the medication that narcoleptics take.  He will need to take it the rest of his life, as others do.

I'm not sure why you think that he is 3 years behind in maturation.  In all other aspects he matured along the standard.

Actually, narcoleptics don't get enough deep sleep, they go into REM sleep too soon.  Having a light on in the room is important for him to wake up.  Melatonin was recommended by his Sleep Specialist when he was still a teenager.

Since I've switched over to the BTD, I've been cooking a lot more more, and he likes what I cook, such as kale.

He's also been cutting certain things out of his diet for Lent (such as beef) for several years, so he's used to not eating certain things.



So I guess what I really wanted to know is if there are known to be any connections between this condition and blood type.  Also, are there lectins that affect the brain that might contribute to it.

Thanks for any other thoughts.
Nadira
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SquarePeg
Tuesday, March 27, 2012, 8:45pm Report to Moderator Report to Moderator

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Ee Dan
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Can't answer about blood type.  I'm curious if he has had a sleep study?  If he's a loud snorer, he might have sleep apnea and not even be aware of it.


My SWAMI diet is a blend of BTD and GTD Explorer, but I'm not totally compliant.  Also I try to choose foods that have a Low Glycemic index.  DW and DD are A+, probably also Explorer.
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ABJoe
Tuesday, March 27, 2012, 9:59pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Nadira,

I know that if he follows the diet, it won't do him harm, unless you don't make sure of his type before embarking.  

I know the proper diet has helped my mental condition, but can make no guarantees about anyone else.


RH-, ISTJ
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Goldie
Tuesday, March 27, 2012, 10:31pm Report to Moderator Report to Moderator

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Sam Dan
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I had 2 kids with ADHD  I am familiar .. but I also accept that not all children are the same..

whatever works is ok by me.. even tough I would  not change my own writing..

there are many ways to deal with brain issues, one of the most important is to keep the self esteem up at all cost.. socialization is important.. food i think is the best way to make lasting differences.  all the best..    


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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lann1958
Wednesday, March 28, 2012, 1:23am Report to Moderator Report to Moderator

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Nadra, i thnk that the btd helps withc narcelepsy, i have a 20 yr old daugher with this condtion, she is a O bt, she is aware of the btd and tries not to eat a lot of avoids but it isdfficult for her because she is away at college in a foreign country most of thetime. she takes aderal  an she tried melatonn but it makesher very drowsy the next day, sh had 3 sleep studies to diagnos her condition. its very scary as a mother to think she must del with this the rest of her life. i think she will do the btd more s time goes on. she will be home for the summer in a few eeks and thenshe can adhere better.hopefully yourn sn will get interested in finding a solutuin to his issues and if he does and sees results it could really help. anyway, good luck with this i understand how concered you must be for him,but a previous commnts say, he willhave to decideo try this when he is ready.
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Nadira
Wednesday, March 28, 2012, 2:10am Report to Moderator Report to Moderator

Sugar sensitive, hypothyroid, postmenopausal, ADD
Summer: Realization, expansion.
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Age: 64
Thanks ABJoe.  This diet has already helped my mental condition as well.

Iann1958, we were lucky that DS only had to have one sleep (and daytime nap) test done, but I really pushed for the right diagnosis.  Some people have to go to many doctors for many years before they get the right answer.  
I'm glad your DD the right answer even though it took 3 tests.  Does she have trouble getting up to get to classes?  What do you think has helped the most?

Nadira
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Lola
Wednesday, March 28, 2012, 4:27am Report to Moderator Report to Moderator

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''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Nadira
Thursday, March 29, 2012, 3:13am Report to Moderator Report to Moderator

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Lola, I have never consumed diet soda.
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Lola
Thursday, March 29, 2012, 5:05am Report to Moderator Report to Moderator

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Sa Bon Nim
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glad to hear that!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Lola
Thursday, March 29, 2012, 7:28am Report to Moderator Report to Moderator

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Sa Bon Nim
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Quoted Text
the book Meditation as Medicine by Dr. Dharma Singh and Cameron Stauth, for its brief, simple and powerful meditation techniques (and loads of case histories).


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Goldie
Friday, March 30, 2012, 1:37pm Report to Moderator Report to Moderator

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Sam Dan
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I see that there are two type..

http://en.wikipedia.org/wiki/Narcolepsy

I might have to look at the first paragraph one as I can dream within seconds after falling a sleep..

I thought the term applies to the second paragraph one..  

In either case I think diet has all to do with it.. and drinking.. I wonder if I could STOP drinking by 2 pm but load up in the morning.. in that way I might get much better sleep as I would not need to wake up to go to the bathroom as often at night..

It might be worth a try... even though I drink little in the afternoon, I wonder if I could stop.. I will give it a try and report back..  

  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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