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I'm finally in treatment!  This thread currently has 7,141 views. Print Print Thread
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ABJoe
Friday, March 23, 2012, 5:16am Report to Moderator Report to Moderator

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Sun Beh Nim
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There are several possible reasons:
1) there was some sulfur that was stored unprocessed, that is now being removed and dealt.
2) the fight going on is causing that type reaction...

Sometimes it is hard to pinpoint a specific reason for some of our symptoms, but we're glad when they end...   


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Possum
Friday, March 23, 2012, 5:36am Report to Moderator Report to Moderator

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Ee Dan
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Is there something sulphurous in your supplements, or is something working on your healing system by pulling the stored sulphur out?
When I first tried eating split peas to supplement the molydenum my body is missing, I was sure glad I was living alone that week
Or could it be that yeast??!! I can't tolerate it...
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yaeli
Friday, March 23, 2012, 6:11am Report to Moderator Report to Moderator

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Quoted from TJ
I don't put much credence in anything quackwatch has to say.
Of course not!  

I found it looking for a "reader's digest version". It says that in spite of not having FDA approval, many doctors still prescribe these remedies.


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paul clucas
Friday, March 23, 2012, 3:57pm Report to Moderator Report to Moderator

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Quoted from TJ
I had an ah-ha today about why I can't stay awake during the daytime. It's those probiotics! It should have been obvious but not with this inflamed brain.  Within an hour or two of taking the probiotics, I feel tired all the way down to my bones, so I sleep for a few hours, wake up, take probiotics again when I eat... wash, rinse, repeat (even if not desired) .  I knew they were affecting me badly (in the short-term), but I didn't put it together that if was such an acute reaction, until just today.

I'm going to start taking them at night before bed, and if (or more likely when) I wake up hungry in the middle of the night, I will take the second round.  Maybe I'll be able to stay awake during the day if I don't take the probiotics during the day.
I am on only one Delfect per day - it is most powerful taken just before I go to sleep.  You should consider taking any probiotic at bedtime as a possibility.


My weight loss goal: 220 lbs.  A 6'4" dyslexic oddball: the size of a line-backer, the silhouette of Winnie-the-Pooh.

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paul clucas  -  Friday, March 23, 2012, 4:25pm
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Jane
Friday, March 23, 2012, 4:03pm Report to Moderator Report to Moderator

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Your D3 level may be within the limits but looks low to me.  Increasing it might make you feel better.
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TJ
Friday, March 23, 2012, 7:52pm Report to Moderator Report to Moderator

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Quoted from Possum
Is there something sulphurous in your supplements, or is something working on your healing system by pulling the stored sulphur out?
The Constant Health contains selenomethionine.  I couldn't tell you about pulling out stored sulfur.  I know I am sensitive to sulfites, so there may be a connection.

Quoted from yaeli
I found it looking for a "reader's digest version". It says that in spite of not having FDA approval, many doctors still prescribe these remedies.
Thank you for the clarification.  It's kind of funny how quackwatch insults the theory as "bizarre and senseless", then goes on to say that, "The Medline database reveals no evidence that Sanum products have been scientifically tested" as if the Medline database is an infallible, exhaustive compilation of medical facts.  (It would be nice if we had such a thing, but we haven't finished science yet.)

Quoted from Jane
Your D3 level may be within the limits but looks low to me.  Increasing it might make you feel better.
I will raise this question with the doctor next week.  Perhaps he will give the go-ahead for vitamin D shots.  I've been supplementing with 2000+ IU daily for 2-3 months.

Quoted from paul clucas
I am on only one Delfect per day - it is most powerful taken just before I go to sleep.  You should consider taking any probiotic at bedtime as a possibility.
I'm trying to take them before every meal so they can help digest my food.  I hadn't considered taking probiotics or Deflect just before bed.  I have decided that that is the best time for me to take Intrinsa.  I will give that a shot, too.

Quoted from ABJoe
There are several possible reasons:
1) there was some sulfur that was stored unprocessed, that is now being removed and dealt.
2) the fight going on is causing that type reaction...

Sometimes it is hard to pinpoint a specific reason for some of our symptoms, but we're glad when they end...   
I did some reading on H2S, and found that it's a toxic gas that can contribute to CFS/fibromyalgia symptoms, and that a lot of it in your flatus indicates some toxic processes going on in the GI tract.  I thought it odd that I would start experiencing this AFTER starting this healing regimen.  Perhaps it was being produced all along but was being reabsorbed rather than expelled.   It's another question I have for the doctor.
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Chloe
Friday, March 23, 2012, 8:39pm Report to Moderator Report to Moderator

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Quoted from Jane
Your D3 level may be within the limits but looks low to me.  Increasing it might make you feel better.


I completely agree.  Optimum levels are closer to 80.  And it took me 6,000 iu per day for almost 7 months to go from mid 50s to high 70s.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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ABJoe
Saturday, March 24, 2012, 12:43am Report to Moderator Report to Moderator

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Quoted from TJ
The Constant Health contains selenomethionine.  I couldn't tell you about pulling out stored sulfur.

selenomethionine - contains selenium, not sulphur.  The selenium shouldn't be the cause of the sulfur odor.


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Dianne
Saturday, March 24, 2012, 1:05am Report to Moderator Report to Moderator

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TJ- I did a deep tissue cleanse one year ago this month. It pulls out stuff stored deeply within the tissues. One guy who did this cleanse tried an experiment because of something he had read.
He had not taken drugs for 25 years but when he did the cleanse,...for some reason he had mailed off a stool sample from his cleanse and the police showed up as his door as drugs had been detected in the parcel. He was an old hippie and wanted to see if this cleanse was the real deal! It must have been interesting explaining this to the police!!!!!!  

So, the moral of the story is : who knows what you are detoxifying...but it certainly is better out than in.  
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TJ
Saturday, March 24, 2012, 1:53am Report to Moderator Report to Moderator

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Quoted from ABJoe
selenomethionine - contains selenium, not sulphur.  The selenium shouldn't be the cause of the sulfur odor.
But the methionine is a sulfur-containing amino acid.

Quoted from Dianne
So, the moral of the story is : who knows what you are detoxifying...but it certainly is better out than in.  
I agree, even if it smells a lot worse out than in.
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Possum
Saturday, March 24, 2012, 2:31am Report to Moderator Report to Moderator

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Quoted from TJ
But the methionine is a sulfur-containing amino acid.

I agree, even if it smells a lot worse out than in.
Imagine...if it smells that bad, it must be doing some bad, trapped inside...

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yaeli
Saturday, March 24, 2012, 4:11am Report to Moderator Report to Moderator

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Quoted from TJ
(It would be nice if we had such a thing, but we haven't finished science yet.)
  

Anyway it apparently helps a lot of people and I assume no harm done. My doctor is very strict and very cautious. Evidently he regularly attends complementary medicine conferences in the US, Germany, and Hungary.


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ABJoe
Saturday, March 24, 2012, 4:32am Report to Moderator Report to Moderator

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Quoted from TJ
But the methionine is a sulfur-containing amino acid.

Sorry, but I don't see sulfur in the Chemical equation:

Name      
L-Selenomethionine

Formula      
C5H11NO2Se

http://www.genome.jp/dbget-bin/www_bget?cpd:C05335

Are you saying that the methionine traps sulfur in some way since it isn't in the compound formula?


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JJR
Saturday, March 24, 2012, 9:37pm Report to Moderator Report to Moderator

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There was a while I took my probiotics at night, like Paul mentioned.  I seemed to have slept through any undesirable reaction, I think.  That was at least my thoughts on the matter.  Plus it had something to do with my stomach was nearing being empty, which the ones I was taking were supposed to be on an empty stomach.  This was after I was sleeping better though.  Not great, but better.  When I first had problems, I felt like I never slept at all.  Tossed and turned all night.  Thank God that's not the case any longer.  But it is a good suggestion.  I eventually started taking them in the morning because it does seem to help with stomach acid production and helped me be hungrier throughout the day and digest my foods better.  

Strangely enough, as I'm typing this, my stomach juices are growling and going feed me, feed me.  I'm so thankful for that feeling.  Because at one point, it wasn't there.  If you're there TJ, there is hope.  My digestion was BAD, and it is so much better now.  Praise the LORD for his healing and this diet and all the supps and probiotics I've taken over the last 4 years.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Saturday, March 24, 2012, 10:21pm Report to Moderator Report to Moderator

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JJ, thank you for your encouragement.  I'd like to say that I'm already seeing signs that things are starting to settle down, but that would be premature, considering how much of a boost I got from the shots this week.

Quoted from ABJoe
Sorry, but I don't see sulfur in the Chemical equation:

Name      
L-Selenomethionine

Formula      
C5H11NO2Se

http://www.genome.jp/dbget-bin/www_bget?cpd:C05335

Are you saying that the methionine traps sulfur in some way since it isn't in the compound formula?
This is interesting.  Methionine is a sulfur-containing amino acid, but apparently the selenium displaces the sulfur complex at the end of the chain.  I wasn't aware of that.  I guess that rules out sulfur sensitivity and adds credence to the detoxification theory -- I had an unpleasant reaction before when supplementing with selenomethionine, and assumed it was because of sulfur in the methionine.
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ABJoe
Saturday, March 24, 2012, 10:48pm Report to Moderator Report to Moderator

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Quoted from TJ
Methionine is a sulfur-containing amino acid, but apparently the selenium displaces the sulfur complex at the end of the chain.

Aww.. Yes.  When I compare the two, the S is replaced by Se...  I understand what you were saying.  Thanks.


RH-, ISTJ
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TJ
Sunday, March 25, 2012, 5:10am Report to Moderator Report to Moderator

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No, thank you for enlightening me!
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ruthiegirl
Sunday, March 25, 2012, 8:41pm Report to Moderator Report to Moderator

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I'm not familiar with the other lab tests, but your vitamin D level is definitely low. You want it over 50, not over 30 like the lab probably thinks.

I'd suggest taking 5,000 iu per day since it's clear that the 2,000 iu per day wasn't enough. You may even want to take 10,000 iu per day, but not without your doctor's guidance. I was taking that much for a while, but also getting blood tests to re-check the levels every 3 months.

Then again, you're very sensitive to even small amounts of supplements and you may want to move more cautiously with changes- maybe try 3,000 iu per day for a while and slowly moving up from there. But IMO, taking 10,000 iu per day orally for 3 months is gentler on the system than getting a huge dose injected. IMO, the injections are for those who can't seem to absorb it orally.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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TJ
Monday, March 26, 2012, 4:56am Report to Moderator Report to Moderator

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Quoted from ruthiegirl
I'm not familiar with the other lab tests, but your vitamin D level is definitely low. You want it over 50, not over 30 like the lab probably thinks.

I'd suggest taking 5,000 iu per day since it's clear that the 2,000 iu per day wasn't enough. You may even want to take 10,000 iu per day, but not without your doctor's guidance. I was taking that much for a while, but also getting blood tests to re-check the levels every 3 months.
I've bumped up my oral dose to 4000 IU per day, and I'm going to ask the doctor about this number when I see him this week.

Quoted from ruthiegirl
Then again, you're very sensitive to even small amounts of supplements and you may want to move more cautiously with changes- maybe try 3,000 iu per day for a while and slowly moving up from there. But IMO, taking 10,000 iu per day orally for 3 months is gentler on the system than getting a huge dose injected. IMO, the injections are for those who can't seem to absorb it orally.
I'm not all that sensitive.  Maybe you are thinking about JJ.  I think the injections would be a good idea, but I need the doctor's opinion first.
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JJR
Monday, March 26, 2012, 9:48pm Report to Moderator Report to Moderator

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Yeah, I've been sensitive to supplementing D3 before.  I would never take that much D at once.  I'd have to work into it.  I remember taking like 1,000 IU's of D3 and I felt awful from it.  It might have been doing something good, but it was hard to live with and it was like clockwork.  It was obvious to me it was the D3.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Monday, March 26, 2012, 10:36pm Report to Moderator Report to Moderator

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Quoted from JJR
Yeah, I've been sensitive to supplementing D3 before.  I would never take that much D at once.  I'd have to work into it.  I remember taking like 1,000 IU's of D3 and I felt awful from it.  It might have been doing something good, but it was hard to live with and it was like clockwork.  It was obvious to me it was the D3.


Be careful of your D3 source.  I was taking a formula that made me feel sick which is generally
the form of D3 you'll find in most supplement bottles -- derived from lanolin.....but I found  a formula that is from fish liver oil....Brand is Blue Bonnet and it doesn't bother me.  I itched all over from lanolin derived D3.

http://www.iherb.com/Bluebonne.....-Softgels/11865?at=0


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TJ
Tuesday, March 27, 2012, 3:38am Report to Moderator Report to Moderator

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Mine is from lanolin.
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ruthiegirl
Tuesday, March 27, 2012, 5:48pm Report to Moderator Report to Moderator

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Chloe- are you allowed mutton? I'm wondering if the lanolin-derived D3 is only problematic for those individuals who shouldn't be eating sheep.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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JJR
Tuesday, March 27, 2012, 7:21pm Report to Moderator Report to Moderator

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I don't know what it was from.  I'll look.  It's a "pure encapsulations" brand.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Thursday, March 29, 2012, 6:43am Report to Moderator Report to Moderator

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I'm off to see Dr. Rodier tomorrow.  I'm excited because I have something to report.  Since my last set of shots on Thursday, I have noticed a definite improvement in my energy levels and mood.  The little things like showering, brushing my teeth, and cooking haven't been taxing.  I drove up to Ogden for a job interview on Monday.  Yesterday and today I worked on my car.  I was sore today from working yesterday, but not incapacitated like I expected to be.  I wouldn't have considered doing this work a week earlier.  Also, it looks like I'm going to get the job I interviewed for.  That would have been frightening news a week ago, but now I'm cautiously optimistic.  I still need to go back to bed for a few hours after drinking my shake, with tells me that I'm still detoxing, but obviously, something is working.  I'm taking probiotics before every meal, and I've started taking milk thistle too.  I'm still bloated and constipated, but at least I feel like doing something.
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