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Why hasn't my gut healed yet?  This thread currently has 3,689 views. Print Print Thread
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Spring
Saturday, January 28, 2012, 4:16am Report to Moderator Report to Moderator

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Quoted from TJ
I have a question for y'all: how can you tell?  I'm not questioning if gluten is really a problem for you.  I just want to know what tips you off that you've accidentally ingested gluten, and how you know when you've recovered from the damage.  I need to know what to look for!

Very good questions! I don't have a clue about anything I'm eating that has gluten in it. I have the gluten food list that is about two miles long around here somewhere. I need to find it and give it a going over. I have lines again on my fingers so I'm wondering what else may cause them.


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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ABJoe
Saturday, January 28, 2012, 4:29am Report to Moderator Report to Moderator

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TJ,

Even if you get gluten completely out of your diet, you may have some stored in the body that gets removed as you heal...  It can have the same effects as when you ate it.  I'm going through this with grains, chemicals, and some other "stuff".

The only difference I can see between where you are and where I am is that I have a practitioner that can verify that I am healing, in spite of how I feel most of the time.  


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Dianne
Saturday, January 28, 2012, 4:44am Report to Moderator Report to Moderator

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TJ - you would have to eat a lot of ghee to get the benefits from it. The butyric acid in the Intrinsia is more potent and concentrated.

I get stuff on SWAMI that I would never eat because of my gluten sensitivity even though it is suggested.

Spelt is probably not something you should eat.

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TJ
Saturday, January 28, 2012, 6:54am Report to Moderator Report to Moderator

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Quoted from Spring
There may be, TJ, but don't underestimate the damage stress can do to you. I know very well myself that it can kill you!! It can undo everything under the sun that we try to do to maintain our health! Be your body's best friend - with all its strengths and weaknesses!!
I know, I've been there.  Too much stress is what finally broke my back, so to speak.  I know it's harmful, but I'm doing what I can about it right now.

Quoted from Spring
A few light bulbs may go off among the lot of us, you included, that will shed more light as we think more about all this. And be aware that we all care about you and are hoping for a very good outcome!  
Thank you, and I sure hope so.  Maybe some other people will get something out of it, too.

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Amazone I.
Saturday, January 28, 2012, 6:57am Report to Moderator Report to Moderator

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B-vits, Mg and aminoacids like L'Glutamin might help as well


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TJ
Saturday, January 28, 2012, 7:08am Report to Moderator Report to Moderator

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Joe, that's an interesting thought.  I hope that's not what's going on.  I'll never know which way is up if that's happening.  It's like the acid-heads that get flashbacks...

Dianne, I get both ghee and butter as diamond foods.  And let me tell you, I eat a LOT of butter.  Ghee is just concentrated butter: fat minus water and milk solids.  I'm sure Intrinsia would help, but I can't justify the cost.  If I eat wheat, I feel totally wrecked the next day.  There's no mistaking that.  I'm thinking you're probably right about the spelt, but how can I tell?  I felt all-over yucky before, during, and after I was using it.  I felt no GI distress.

Pretty much since I got back from NC at the end of November, I have felt all-over yucky with some good days scattered throughout.  I don't even know why.  I can't make any consistent connections between things I've eaten or done and how I've felt.  I can't afford a practitioner to walk me through this process of healing.  I won't be able to until I'm working steady again.  Question is, how long will it be before I'm able to go back to work, and when I do, how long will I be able to keep it up?  It's a vicious catch-22.

Alright, I'll quit whining now.
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yaeli
Saturday, January 28, 2012, 8:12am Report to Moderator Report to Moderator

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Quoted from ABJoe
TJ,

Even if you get gluten completely out of your diet, you may have some stored in the body that gets removed as you heal...  It can have the same effects as when you ate it.  I'm going through this with grains, chemicals, and some other "stuff".

The only difference I can see between where you are and where I am is that I have a practitioner that can verify that I am healing, in spite of how I feel most of the time.  
It really requires a looooooooooooooooooot of patience. One must go philosophically about it and have faith. You have no way to know from beforehand if it's only your gluten sensitivity or if there's something else as well. The one thing that will for sure tell you in good time is your body. You don't have to go on challenging your body with any gluten anymore, cause this one you already KNOW. My name is Yaeli and I am gluten sensitive. So my "grains" are rice, quinoa, and buckwheat. That's all, and Praise the Lord. This is the only way I can go about it.  




Revision History (2 edits)
yaeli  -  Sunday, January 29, 2012, 4:22am
yaeli  -  Sunday, January 29, 2012, 4:21am
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yaeli
Saturday, January 28, 2012, 8:33am Report to Moderator Report to Moderator

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Quoted from yaeli
So my "grains" are rice, quinoa, and buckwheat.
Oops! and millet. Heating some right now.



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bel
Saturday, January 28, 2012, 1:01pm Report to Moderator Report to Moderator

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hey TJ! i have the same problem as you too!! been on this diet about as long as you and my whitelines are still very evident even though i have stopped eating all gluten containing food  
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Christopher1
Saturday, January 28, 2012, 5:24pm Report to Moderator Report to Moderator

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Everybody is focusing on gluten, but not mycotoxin. All of you have environmental sensitivities, which includes mold (I had the very same problem). Your white lines won't get better until you address that issue...
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Spring
Saturday, January 28, 2012, 5:59pm Report to Moderator Report to Moderator

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Quoted from Christopher1
Everybody is focusing on gluten, but not mycotoxin. All of you have environmental sensitivities, which includes mold (I had the very same problem). Your white lines won't get better until you address that issue...

Addressing the sensitivity itself is more important than trying to avoid everything under the sun that may or may not be bothering us! Of course, most anyone would know that wading around in mold in your house isn't healthy for anyone whether they are known to be "sensitive" to it or not. Eating foods loaded with mycotoxins is something that is done day in and day out. But there are things we can do to help our bodies fight the damage they can do to us. Of course, we can get into the polyamine problem again. That canned stuff? The flash frozen veggies? The meat that has been lying around in the fridge for days? Etc., etc......


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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Christopher1
Saturday, January 28, 2012, 6:12pm Report to Moderator Report to Moderator

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Quoted from Spring

Addressing the sensitivity itself is more important than trying to avoid everything under the sun that may or may not be bothering us! Of course, most anyone would know that wading around in mold in your house isn't healthy for anyone whether they are known to be "sensitive" to it or not. Eating foods loaded with mycotoxins is something that is done day in and day out. But there are things we can do to help our bodies fight the damage they can do to us. Of course, we can get into the polyamine problem again. That canned stuff? The flash frozen veggies? The meat that has been lying around in the fridge for days? Etc., etc......


Meat increases in polyamine content as it is in the fridge longer and longer? I thought it was just the flash freezing?
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Sahara
Saturday, January 28, 2012, 6:13pm Report to Moderator Report to Moderator
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Because you eat avoids or have some element of stress that isn't being addressed.
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Spring
Saturday, January 28, 2012, 6:56pm Report to Moderator Report to Moderator

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Quoted from Christopher1
Meat increases in polyamine content as it is in the fridge longer and longer? I thought it was just the flash freezing?

Not only are they produced in food sources: "And often, ........ they are produced by the body in response to the lectins contained in many plants, grains and legumes." In addition to that, meats and just about any food substance out there, including seafood. And especially if it is an avoid for you. The quote is from LRforYT, page 102. You can read further about this nasty stuff in the book. We need some polyamines but it is the overdose that can kill us. It needs to be pointed out that Dr. D. says the green flash-frozen veggies are an exception. It is so easy to throw fresh or cooked meats and veggies in the freezer if they are not going to be eaten right away. Except your salad stuff, of course! Just do it! My mother was very gentle with foods - no "shocking" them in her kitchen! Whether it was high heat or any of the over-processing methods that can promote an over-abundance of polyamines. But the important thing is to stick with the diet that is yours and take very good care of your foods!


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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Christopher1
Saturday, January 28, 2012, 7:17pm Report to Moderator Report to Moderator

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Quoted from Spring

Not only are they produced in food sources: "And often, ........ they are produced by the body in response to the lectins contained in many plants, grains and legumes." In addition to that, meats and just about any food substance out there, including seafood. And especially if it is an avoid for you. The quote is from LRforYT, page 102. You can read further about this nasty stuff in the book. We need some polyamines but it is the overdose that can kill us. It needs to be pointed out that Dr. D. says the green flash-frozen veggies are an exception. It is so easy to throw fresh or cooked meats and veggies in the freezer if they are not going to be eaten right away. Except your salad stuff, of course! Just do it! My mother was very gentle with foods - no "shocking" them in her kitchen! Whether it was high heat or any of the over-processing methods that can promote an over-abundance of polyamines. But the important thing is to stick with the diet that is yours and take very good care of your foods!


Good information. I try to do many things to inhibit ODC anyway. Mycotoxins are a larger problem I think.
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Victoria
Saturday, January 28, 2012, 7:22pm Report to Moderator Report to Moderator

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Quoted from TJ
If I eat wheat, I feel totally wrecked the next day.  There's no mistaking that.  I'm thinking you're probably right about the spelt, but how can I tell?  I felt all-over yucky before, during, and after I was using it.  I felt no GI distress.

Pretty much since I got back from NC at the end of November, I have felt all-over yucky with some good days scattered throughout.  I don't even know why.  I can't make any consistent connections between things I've eaten or done and how I've felt.  


TJ, why not commit to eating completely gluten-free and give that a chance?  You know you're gluten intolerant, but if you continue to eat some wheat and some spelt and keep feeling lousy, you're making yourself anxious and feeling yucky.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
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TJ
Saturday, January 28, 2012, 7:28pm Report to Moderator Report to Moderator

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Quoted from Christopher1
Everybody is focusing on gluten, but not mycotoxin. All of you have environmental sensitivities, which includes mold (I had the very same problem). Your white lines won't get better until you address that issue...
I am sensitive to mold; getting away from it was a benefit of moving to the desert.  Perhaps you are referring to something else?  I don't eat moldy food if that's what you're wondering about!
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TJ
Saturday, January 28, 2012, 7:50pm Report to Moderator Report to Moderator

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Quoted from Spring
Addressing the sensitivity itself is more important than trying to avoid everything under the sun that may or may not be bothering us!
Amen to that.  The fact that I remain so frail and oversensitive indicates that there is something deeper going on.  Healthy bodies, and even not-so-healthy bodies, can eat "avoid" foods day after day and still be able to go about their day-to-day activities.  I am physically, mentally, and emotionally handicapped when it comes to doing what I need to do or coping with routine stresses.

Guys, I'm pretty sure I have Lyme disease, but nothing I've read so far tells me that it wrecks the gut.  Maybe I just missed that in my reading.  I don't know, my mind and memory aren't reliable.

I eat well over 2000 calories per day and I take a digestive enzyme supplement at least once daily; my metabolism is running pretty low, judging by my lethargy and sensitivity to cold; yet here I am starving or so it looks like.  I'm 5'10" and only 135 lbs.  My muscle tone is virtually non-existent.  The little bit of muscle I have is very weak.  My ribs are easily visible through my skin.  There are hordes of men out there who have biceps and calves that are bigger around than my thighs.  If I force myself to go to the gym and work out regularly, the only things I'll accomplish are a slight, initial increase in muscle tone and strength, followed by a collapse into exhaustion from burning up my reserve of energy faster than it can be replenished.

Our bodies are like engines.  A certain amount of fuel is needed just to keep them idling.  The bigger the engine, the more is required.  I'm not getting enough fuel, so my body cannibalizes itself to reduce what's needed to keep me idling (i.e. alive), sort of like downgrading to a smaller engine.

Healing requires raw materials: the nutrients we get from the food we eat.  Clearly I'm not getting enough, and that's why I haven't healed yet.  I want to know what is standing in the way, and what can I do about it?
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Chloe
Saturday, January 28, 2012, 8:16pm Report to Moderator Report to Moderator

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With celiac disease, or gluten allergy, the body exhibits an immune response in the small intestine whenever gluten protein is present. Such a reaction aggravates the intestinal lining and damages the little "hairs" (villi) covering the wall of the digestive tract. In properly functioning organs, these villi will help push food along the intestinal tube while aiding in the absorption of nutrients into the bloodstream. In patients with celiac disease, this absorption process is impeded and can lead to cases of rapid weight loss and eventual malnutrition if left untreated.

Read more: http://www.oprah.com/health/Gluten-Free-Is-It-for-Me-Daphne-Oz/3#ixzz1kmnJ6LaH


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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ABJoe
Saturday, January 28, 2012, 8:27pm Report to Moderator Report to Moderator

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Quoted from TJ
Guys, I'm pretty sure I have Lyme disease, but nothing I've read so far tells me that it wrecks the gut.  Maybe I just missed that in my reading.  I don't know, my mind and memory aren't reliable.

Lyme spirochetes travel from the site of the bite to anywhere in the body via the skin, lymph system, and blood. They can ultimately cause problems in all body systems.

Here’s a plain-English list of common symptoms:

Brain and Central Nervous System:
migraines, dizziness, brain fog, poor memory, poor sleep, lack of verbal fluency, confusion or disorientation, decreased ability to concentrate, facial nerve tics or paralysis, sore jaw, sinusitis, mood swings, difficulty chewing or swallowing, sore throat, hoarseness, muscle twitches, numbness and tingling, shooting pains, and lower back or neck pain. Lyme has also been found to mimic all the psychiatric disorders.

Muscles, joints, and bones: pains that come and go (with or without swelling), cramps, stiffness.

Circulation: too fast or two slow heart rate, irregular heartbeat (palpitations), inflammation of the heart muscle or arteries, and chest pain.

Breathing: sinusitis, difficulty breathing, and pneumonias.

Skin: rashes, itching, crawling sensations, benign cysts and nodules, and skin discoloration.

Eyes: pain, inflammation, blurred or double vision, retinal damage, floaters, flashing lights, light sensitivity, dry eye, and blindness.

Ears: itching, earache, buzzing, ringing, and sound sensitivity.

Digestive tract: nausea, vomiting, diarrhea, constipation, loss of appetite, mild liver function abnormalities, and spleen tenderness and enlargement.

Genitourinary tract:
inflammation of the urethra and bladder, pelvic pain, testicular pain, and loss of sexual desire.

General: tiredness, lack of stamina, fever, vague discomfort, irritability, nervousness or anxiety, and weight loss or gain.

Borrelia is a brilliant bacterium that can avoid detection by the body’s immune system by changing shape, becoming cell-wall deficient (living inside red blood cells) or encysting over with albumin, which antibiotics can’t reach, and hiding out in a dormant state in hard to reach places like the spaces between ligaments and bones.

Source:  http://www.lymediseaseblog.com/lyme-disease-symptoms/

Maybe I've been denial...  I have had and continue to have almost all of these symptoms...


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DoS
Saturday, January 28, 2012, 8:44pm Report to Moderator Report to Moderator

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TJ is everything well digested that goes through you?

Please try soy lecithin with your fats, just eat a spoonful with fats. Try to get B vitamins in the same meal; but make it breakfast or lunch.

Your diet is not high on choline, essential for liver fat digestion. People usually get it from eggs and soy, which you don't eat.

I understand your frustration. I have come to the conclusion that when no results are being seen there are a couple possibilities, allergies are completely halting function or something isn't being digested. A lot of things are fat soluble, just to say.
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ABJoe
Saturday, January 28, 2012, 8:52pm Report to Moderator Report to Moderator

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Quoted from TJ
Healing requires raw materials: the nutrients we get from the food we eat.  Clearly I'm not getting enough, and that's why I haven't healed yet.  I want to know what is standing in the way, and what can I do about it?

From the list of common symptoms, it sounds like the Lyme (and possibly gluten as a helper) may be doing this to you.


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Spring
Saturday, January 28, 2012, 9:14pm Report to Moderator Report to Moderator

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Quoted from ABJoe
Maybe I've been denial...  I have had and continue to have almost all of these symptoms...


One thing for sure, you have been a tremendous support to a lot of people on this forum with your active interest in trying to help them. There is a lot to be said for empathetic people, but I think your understanding goes a lot farther than that because of your own situation.  In my book you are a hero!


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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ABJoe
Saturday, January 28, 2012, 9:30pm Report to Moderator Report to Moderator

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Thanks!


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Spring
Saturday, January 28, 2012, 9:34pm Report to Moderator Report to Moderator

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sensitivity to cold
Every time I read this it scares me. I know that I am deficient in iodine because I eat hardly any salt, and I had to quit taking multi-vitamins decades ago because of an "allergic" reaction to it and all dyes with it in them. I spent too many summers freezing to death in the evenings before I learned that I could paint my skin with iodine and not react to it. It is such a simple little test to see if it works, but the benefits are wonderful. No fungus has been known to survive it nor bacteria! As soon as I started using iodine on the skin, I not only stopped freezing to death, but my overall well-being was shifted into overdrive. In fact, the iodine will warm me up in 30 minutes, and the other improvements follow soon after. If I had Lyme's Disease, I would be making sure that I got plenty of iodine for my needs. Why  iodine is knocked around so and bromine\bromide is basically given the green light is beyond my comprehension. I have a feeling that a good number on this forum are sorely lacking it unless they are able, and do, eat seafood and things like kelp. Or a lot of iodized salt.


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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