I had to post a message on giving up gluten again.  It's been really hard for me to give it up..denial.
I had a stomach ache for months (years?) and nothing was working.  I gave up gluten and now my stomach feels normal again!   Anyone else have this problem?  I can drink coffee again! I bet I can have a glass of wine..I have to buy it though.  Everything I was eating, even fruit was burning my stomach and causing, burping, acid reflux, pain, indigestion, acid indigestion..all the time it was gluten. duh.

Glad you are feeling better.

Oh yeah . . .!!

Even though I test negative for Celiac, gluten ruins my health.  Like you, it makes it hard for me to digest other foods too.  Much, Much, Much better without it!!

Glad that you've find the solution Mayflower.

I can eat a breadcrumb and it messes me up for about 5 days-mood, energy, digestive discomfort and pain, (feels like something is sticking to my insides), BMs and weight gain. I sort of wonder if that's just extreme gluten intolerance or even normal for an O? Or if I could have celiacs? How do you know if you have it? Other than eating wheat for a while and then getting tested-which there is no way I would put myself through. In the past I ruled out celiacs because wheat made me gain weight-rather than lose it. Is that a reliable marker though?

Quoted from tessieUK

I sort of wonder if that's just extreme gluten intolerance or even normal for an O? Or if I could have celiacs? How do you know if you have it? ?

I was tested negative for gluten intolerance in blood work. Enterolab tested me positive. I'm still not sure about that lab. I had a cheek swab to test for the celiac gene and I have the celiac gene plus a gluten intolerance gene.  I was however tested positive for grass allergy.  Wheat and other grains are grasses. My reaction might be an allergic one and not the celiac gene turning on. More likely following the A diet is working.. but I didn't go on it until 2008 and I'm 55 years old now.

the same for me.... but coz of nearly no time to be 100% compliant.. I'm forced to cheat sometimes and then get the beautiful stomach aches....   but no wine nor café for me....coz both make me hyper and can even lead to panic attacks....which is really very bäää

Quoted from tessieUK

Glad that you've find the solution Mayflower.

I can eat a breadcrumb and it messes me up for about 5 days-mood, energy, digestive discomfort and pain, (feels like something is sticking to my insides), BMs and weight gain. I sort of wonder if that's just extreme gluten intolerance or even normal for an O? Or if I could have celiacs? How do you know if you have it? Other than eating wheat for a while and then getting tested-which there is no way I would put myself through. In the past I ruled out celiacs because wheat made me gain weight-rather than lose it. Is that a reliable marker though?

I am positive that I have read you can also suffer from weight gain from being allergic to gluten It can also be what causes skin break outs...

Hello.......
this is what brought me to ER4YT!
I had huge, serious sinus/mucous/asthma issues and could not breathe through my nose...at all!!
After seeing an ND and being tested for food allergies, found out I have a gluten, wheat, and cow dairy sensitivity. I went 3 months without these foods and weight just fell off! (I was a 2 pieces of organic wheat toast every morning person)
My sinus issues got better but I still needed surgery to remove polyps so I could actually use my nose! Sadly, though, my senses of taste and smell are sporadic.
Its ok...I can breathe!!!
Now, my ENT is testing me for environmental allergies....and we know grasses, mold, dust are going to be among them!
So, Mayflowers, I do enjoy coffee and red wine sometimes...no problem!

Gluten= the devil.

Thats interesting you can have a gluten intolerance gene, I didn't know that. I guess Os must have that gene by default...? I will go google celiac tests now.

Quoted from tessieUK

Thats interesting you can have a gluten intolerance gene, I didn't know that. I guess Os must have that gene by default...? I will go google celiac tests now.

FYI

http://www.celiac.com/articles.....cot-Lewey/Page1.html

Quoted from tessieUK

Thats interesting you can have a gluten intolerance gene, I didn't know that. I guess Os must have that gene by default...? I will go google celiac tests now.

Most likely because I'm an Ao.  I have the O recessive gene.  

My 20-year-old daughter is gluten/lactose intolerant.  She's had to go through a lot of diet changes over the years.  It was really difficult for her at first, and it makes going out to eat as a family frustrating, because we can only eat in restaurants that have a GF menu.

I remember reading somewhere that it was thought that over 40% of the population has a sensitivity to gluten, but most people don't even know it.  They suffer from intestinal distress and are clueless that it could be the gluten that is the problem.

I seriously just wish that whole wheat and gluten would just be eliminated from all products.  Seriously, has either benefited anyone?

I never knew I had problems with gluten and other things until I gave them up on blood type diet, and all my seemingly unrelated issues cleared up.  I just never knew that my symptoms were diet related - no doctor ever suggested it to me, and I'd been to see doctors for seasonal allergies, respiratory infections, migraine headache, and some kind of "bug" that would recur.  I could never be diagnosed with anything but seasonal allergies and maybe they all thought I was a hypochondriac because they could never find anything really wrong with me.  I never had a fever, but they always threw antibiotics at me for "infections".  I'm so glad to have found blood type diet because I think it would have become progressively worse.  I found BTD in the nick of time (I hope).

O in V.  I had a very similar experience.  I started BTD because of ulcerative colitis but I had spent my whole life with stomachaches and I used to joke that if someone was driving down the interstate with a bug, I'd catch it.  I was always sick...I grew up with an A mom who made me drink 3 BIG glasses of milk everyday.  I was a mess!  
Cutting out cow's milk dairy and wheat was a huge help.  The past year or so I've stopped eating gluten and I've noticed the difference.  I've never been tested for celiac but at this point I'm not willing to eat it for weeks just to have the test.

Quoted from Jane

I've never been tested for celiac but at this point I'm not willing to eat it for weeks just to have the test.

Me neither!  I've already experienced what happens when I 'cheat' in this regard.  Wheat is not worth it.  I've learned that lesson but well.  

I can't understand why the blood test for gluten intolerance came back negative, yet, wheat gives me a stomach ache and other symptoms?  

I was told by a doctor the blood tests for gluten doesn't always work.  There has to be enough of a reaction which is happening in the intestines that it reaches the blood. Enterolab tests stools for gluten so it's more sensitive than the blood tests.

http://www.dadamo.com/knowbase/PATHbase/depict.cgi?30


Why not read a bit about this issue.

False negatives happen all the time.  I'm glad you figured out what the problem is!  Even you fail the test, you know you have an issue with gluten.  What a relief to have answers!  Enjoy the coffee.  

That's right Ribbit, at least I can have my coffee    I read that article Andrea posted and I'm not a non secretor but one of my symptoms is iron deficiency anemia, so I'm going to keep an eye out on my levels to see if they come up not eating gluten.  My oldest son has iron absorption trouble. I'm thinking he has the gluten intolerance gene from me.

I was told the same info Lin when I had Enterolab do my tests. I'm also intolerant to soy, eggs and dairy according to them.  Doesn't leave much left to eat for an A  

Mayflowers- you may have an allergy to wheat in particular, not to gluten in general. For example, as an O nonnie I can't have wheat, spelt, oats, or barley, but I can have rye (though it's a black dot on my SWAMI.) If I had celiac disease, I wouldn't be able to eat rye at all.

If you can't have soy, eggs, or dairy, that still leaves you with poultry, nuts, beans (other than soy), veggies, fruits, and grains!

Like O in Virginia, I learned very quickly without the science of a lab that wheat nor gluten (intolerant to millet and barley also) has any place in my body!

When my ND had me take the blood test we already knew and it was confirmed.

I am Ao also, Mayflowers.

I get a stomach ache shortly after eating wheat/gluten. Then my sinus cavities get stuffy, I get mucousy and start coughing. Yeah, not worth it!

That wheat lectin really....... truly evil!!  

I tested positive for an allergy to 'grass' .  All grains are grasses. I get a little indigestion even if I eat rice, and other non gluten grains. My mother told me the doctor told her I was born like 95% allergic to everything.    I'm also having dairy problems. Not that I have a lot of dairy but, I get congestion and my ears clog up.. Maybe it's the weather?    

I've been a lot better off gluten. My memory is coming back.