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Gluten Intolerance  This thread currently has 3,936 views. Print Print Thread
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Mayflowers
Wednesday, September 7, 2011, 1:49pm Report to Moderator Report to Moderator
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I had to post a message on giving up gluten again.  It's been really hard for me to give it up..denial.
I had a stomach ache for months (years?) and nothing was working.  I gave up gluten and now my stomach feels normal again!   Anyone else have this problem?  I can drink coffee again! I bet I can have a glass of wine..I have to buy it though.  Everything I was eating, even fruit was burning my stomach and causing, burping, acid reflux, pain, indigestion, acid indigestion..all the time it was gluten. duh.
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AKArtlover
Wednesday, September 7, 2011, 1:50pm Report to Moderator Report to Moderator

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Kyosha Nim
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Glad you are feeling better.


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
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Victoria
Wednesday, September 7, 2011, 4:09pm Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
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Oh yeah . . .!!

Even though I test negative for Celiac, gluten ruins my health.  Like you, it makes it hard for me to digest other foods too.  Much, Much, Much better without it!!



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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tessieUK
Wednesday, September 7, 2011, 6:26pm Report to Moderator Report to Moderator

Hunter
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Glad that you've find the solution Mayflower.

I can eat a breadcrumb and it messes me up for about 5 days-mood, energy, digestive discomfort and pain, (feels like something is sticking to my insides), BMs and weight gain. I sort of wonder if that's just extreme gluten intolerance or even normal for an O? Or if I could have celiacs? How do you know if you have it? Other than eating wheat for a while and then getting tested-which there is no way I would put myself through. In the past I ruled out celiacs because wheat made me gain weight-rather than lose it. Is that a reliable marker though?
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Mayflowers
Wednesday, September 7, 2011, 7:51pm Report to Moderator Report to Moderator
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Quoted from tessieUK

I sort of wonder if that's just extreme gluten intolerance or even normal for an O? Or if I could have celiacs? How do you know if you have it? ?


I was tested negative for gluten intolerance in blood work. Enterolab tested me positive. I'm still not sure about that lab. I had a cheek swab to test for the celiac gene and I have the celiac gene plus a gluten intolerance gene.  I was however tested positive for grass allergy.  Wheat and other grains are grasses. My reaction might be an allergic one and not the celiac gene turning on. More likely following the A diet is working.. but I didn't go on it until 2008 and I'm 55 years old now.
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Amazone I.
Wednesday, September 7, 2011, 7:58pm Report to Moderator Report to Moderator

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Kyosha Nim
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the same for me.... but coz of nearly no time to be 100% compliant.. I'm forced to cheat sometimes and then get the beautiful stomach aches....   but no wine nor café for me....coz both make me hyper and can even lead to panic attacks....which is really very bäää


MIfHI K-174
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Possum
Wednesday, September 7, 2011, 9:12pm Report to Moderator Report to Moderator

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Quoted from tessieUK
Glad that you've find the solution Mayflower.

I can eat a breadcrumb and it messes me up for about 5 days-mood, energy, digestive discomfort and pain, (feels like something is sticking to my insides), BMs and weight gain. I sort of wonder if that's just extreme gluten intolerance or even normal for an O? Or if I could have celiacs? How do you know if you have it? Other than eating wheat for a while and then getting tested-which there is no way I would put myself through. In the past I ruled out celiacs because wheat made me gain weight-rather than lose it. Is that a reliable marker though?
I am positive that I have read you can also suffer from weight gain from being allergic to gluten It can also be what causes skin break outs...
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cajun
Wednesday, September 7, 2011, 9:28pm Report to Moderator Report to Moderator

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Ee Dan
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Hello.......
this is what brought me to ER4YT!
I had huge, serious sinus/mucous/asthma issues and could not breathe through my nose...at all!!
After seeing an ND and being tested for food allergies, found out I have a gluten, wheat, and cow dairy sensitivity. I went 3 months without these foods and weight just fell off! (I was a 2 pieces of organic wheat toast every morning person)
My sinus issues got better but I still needed surgery to remove polyps so I could actually use my nose! Sadly, though, my senses of taste and smell are sporadic.
Its ok...I can breathe!!!
Now, my ENT is testing me for environmental allergies....and we know grasses, mold, dust are going to be among them!
So, Mayflowers, I do enjoy coffee and red wine sometimes...no problem!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Sahara
Wednesday, September 7, 2011, 11:22pm Report to Moderator Report to Moderator
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Gluten= the devil.
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tessieUK
Thursday, September 8, 2011, 1:22am Report to Moderator Report to Moderator

Hunter
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Thats interesting you can have a gluten intolerance gene, I didn't know that. I guess Os must have that gene by default...? I will go google celiac tests now.
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Chloe
Thursday, September 8, 2011, 1:35am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from tessieUK
Thats interesting you can have a gluten intolerance gene, I didn't know that. I guess Os must have that gene by default...? I will go google celiac tests now.


FYI

http://www.celiac.com/articles.....cot-Lewey/Page1.html



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Mayflowers
Thursday, September 8, 2011, 1:41pm Report to Moderator Report to Moderator
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Quoted from tessieUK
Thats interesting you can have a gluten intolerance gene, I didn't know that. I guess Os must have that gene by default...? I will go google celiac tests now.


Most likely because I'm an Ao.  I have the O recessive gene.  
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sandooch
Thursday, September 8, 2011, 3:03pm Report to Moderator Report to Moderator

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My 20-year-old daughter is gluten/lactose intolerant.  She's had to go through a lot of diet changes over the years.  It was really difficult for her at first, and it makes going out to eat as a family frustrating, because we can only eat in restaurants that have a GF menu.

I remember reading somewhere that it was thought that over 40% of the population has a sensitivity to gluten, but most people don't even know it.  They suffer from intestinal distress and are clueless that it could be the gluten that is the problem.

I seriously just wish that whole wheat and gluten would just be eliminated from all products.  Seriously, has either benefited anyone?


← What I'm working to get back to!  

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O in Virginia
Thursday, September 8, 2011, 3:12pm Report to Moderator Report to Moderator

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I never knew I had problems with gluten and other things until I gave them up on blood type diet, and all my seemingly unrelated issues cleared up.  I just never knew that my symptoms were diet related - no doctor ever suggested it to me, and I'd been to see doctors for seasonal allergies, respiratory infections, migraine headache, and some kind of "bug" that would recur.  I could never be diagnosed with anything but seasonal allergies and maybe they all thought I was a hypochondriac because they could never find anything really wrong with me.  I never had a fever, but they always threw antibiotics at me for "infections".  I'm so glad to have found blood type diet because I think it would have become progressively worse.  I found BTD in the nick of time (I hope).
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Jane
Thursday, September 8, 2011, 3:58pm Report to Moderator Report to Moderator

Kyosha Nim
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O in V.  I had a very similar experience.  I started BTD because of ulcerative colitis but I had spent my whole life with stomachaches and I used to joke that if someone was driving down the interstate with a bug, I'd catch it.  I was always sick...I grew up with an A mom who made me drink 3 BIG glasses of milk everyday.  I was a mess!  
Cutting out cow's milk dairy and wheat was a huge help.  The past year or so I've stopped eating gluten and I've noticed the difference.  I've never been tested for celiac but at this point I'm not willing to eat it for weeks just to have the test.
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O in Virginia
Thursday, September 8, 2011, 8:25pm Report to Moderator Report to Moderator

Swami
Kyosha Nim
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Quoted from Jane
I've never been tested for celiac but at this point I'm not willing to eat it for weeks just to have the test.


Me neither!  I've already experienced what happens when I 'cheat' in this regard.  Wheat is not worth it.  I've learned that lesson but well.  
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Mayflowers
Thursday, September 8, 2011, 8:58pm Report to Moderator Report to Moderator
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I can't understand why the blood test for gluten intolerance came back negative, yet, wheat gives me a stomach ache and other symptoms?  
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Lin
Thursday, September 8, 2011, 9:10pm Report to Moderator Report to Moderator

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I was told by a doctor the blood tests for gluten doesn't always work.  There has to be enough of a reaction which is happening in the intestines that it reaches the blood. Enterolab tests stools for gluten so it's more sensitive than the blood tests.


Gluten/Casein and Yeast sensitivity.
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Andrea AWsec
Friday, September 9, 2011, 1:12am Report to Moderator Report to Moderator

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http://www.dadamo.com/knowbase/PATHbase/depict.cgi?30


Why not read a bit about this issue.


MIFHI

"Do not try to satisfy your vanity by teaching a great many things. Awaken people's curiosity. It is enough to open minds; do not overload them." Anatole France

"Healthy people have the least overt symptoms from eating avoid foods." Dr. D'Adamo
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Ribbit
Friday, September 9, 2011, 1:26am Report to Moderator Report to Moderator

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False negatives happen all the time.  I'm glad you figured out what the problem is!  Even you fail the test, you know you have an issue with gluten.  What a relief to have answers!  Enjoy the coffee.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Mayflowers
Friday, September 9, 2011, 1:59pm Report to Moderator Report to Moderator
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That's right Ribbit, at least I can have my coffee    I read that article Andrea posted and I'm not a non secretor but one of my symptoms is iron deficiency anemia, so I'm going to keep an eye out on my levels to see if they come up not eating gluten.  My oldest son has iron absorption trouble. I'm thinking he has the gluten intolerance gene from me.

I was told the same info Lin when I had Enterolab do my tests. I'm also intolerant to soy, eggs and dairy according to them.  Doesn't leave much left to eat for an A  
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ruthiegirl
Friday, September 9, 2011, 9:14pm Report to Moderator Report to Moderator

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Mayflowers- you may have an allergy to wheat in particular, not to gluten in general. For example, as an O nonnie I can't have wheat, spelt, oats, or barley, but I can have rye (though it's a black dot on my SWAMI.) If I had celiac disease, I wouldn't be able to eat rye at all.

If you can't have soy, eggs, or dairy, that still leaves you with poultry, nuts, beans (other than soy), veggies, fruits, and grains!


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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cajun
Friday, September 9, 2011, 11:58pm Report to Moderator Report to Moderator

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Like O in Virginia, I learned very quickly without the science of a lab that wheat nor gluten (intolerant to millet and barley also) has any place in my body!

When my ND had me take the blood test we already knew and it was confirmed.

I am Ao also, Mayflowers.

I get a stomach ache shortly after eating wheat/gluten. Then my sinus cavities get stuffy, I get mucousy and start coughing. Yeah, not worth it!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Sahara
Saturday, September 10, 2011, 8:47pm Report to Moderator Report to Moderator
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That wheat lectin really....... truly evil!!  
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Mayflowers
Wednesday, September 14, 2011, 1:25pm Report to Moderator Report to Moderator
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I tested positive for an allergy to 'grass' .  All grains are grasses. I get a little indigestion even if I eat rice, and other non gluten grains. My mother told me the doctor told her I was born like 95% allergic to everything.    I'm also having dairy problems. Not that I have a lot of dairy but, I get congestion and my ears clog up.. Maybe it's the weather?    

I've been a lot better off gluten. My memory is coming back.  
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