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A thread to discuss lyme disease*  This thread currently has 172,088 views. Print Print Thread
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JJR
Thursday, August 18, 2011, 4:26pm Report to Moderator Report to Moderator

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Kyosha Nim
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I know there are people on here that have been diagnosed and are fighting it etc.  I was hoping there could be a place where we can discuss it.  It's good to know how people are fighting it, what's working for them.  What symptoms they deal with, etc etc etc.  Support each other.  Pray, send good thought, whatever.

My wife and I started watching the movie "Under Our skin" and it's kind of freaky to watch.   We watched like 40 minutes and had to shift gears.  

Anyways, my first comment I'd like to make is that for some reason I feel like 2011 is the year of the Lyme for me.  I'm being treated for it.  And it had come up on the radar a couple of years ago, but my body was dealing with other issues first I think.  Or, that's how it played out with the ND I was seeing.  I think that the Lyme probably was at the core of my health problems, and it went undiagnosed.  I had been tested several times and got negative results from the average Joe Doctors.  Which we are finding out that those tests don't work.  But what hit me is that even though I think I've had it for a while, this year seemed to bring it all to the forefront.  And I see that in other people too.  I don't know what it is, but again, it just seems like 2011 is the year of the Lyme.  Among other things.  It's been a topsy turvy year, weather wise, and all kinds of things and I wonder if that has had an impact on the lyme in our systems.  Because for a while I was getting better.  And bam, it was like it reared it's ugly head big time this spring.

Anyways, the one fighting experience I have so far is I'm taking a burrelia/burgdorderi homeopath from my doctor and it brought me out of the doldrums.  I don't know if it was JUST the homeopath.  But I stopped it for a few days and after the second day of stopping it, pain starting to really take on my joints and what not and then I started the homeopath last night again and I feel better this morning than yesterday morning.  I suppose it could be coincidental, but I doubt it.  The reason I stopped the homeopath was because I felt like my spleen and lymph was getting overloaded and my doctor's assistant thought it was probably because I was killing the lyme with the homeopath, the spleen gets gummed up.  So, I have spleen supplements I'm taking, along with some mushroom type immune booster supplement called agricus bio, and a few other things.  They said I wasn't ready for Teasel yet, as it is a more powerful homeopath, but soon I will start that.  

So, am I the only one that thinks that 2011 is the year of the lyme?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Thursday, August 18, 2011, 4:51pm Report to Moderator Report to Moderator

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Chloe
Thursday, August 18, 2011, 5:03pm Report to Moderator Report to Moderator

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Kyosha Nim
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If you find Ribbit's old thread when she landed in the ER, I wrote a long post on my experience
with Lyme disease. Quite honestly, I don't mind discussing this subject if there are questions
but I have written the same story so many times, that it's too exhausting to begin again from
scratch. My experience with chronic Lyme (first tick bite with toxic reaction in 1970 but no name
for Lyme Disease known) made me realize that Ribbit had it as well....and she got tested
and sure enough....Lyme.  I had a confirmed Lyme (because I saw and removed deer tick from
my shoulder in 1990) but testing never proved Burrelia...It proved nothing conclusive due
to my past infection with Lyme....I was treated for 4 months with abx...got better and then got
much worse...Saw a master herbalist....and worked with products from Healers Who Share..

http://www.healerswhoshare.com/

I had many co-infections which showed up on bio meridian testing.  And there were combined viruses which really outweighed the bacterial issues.

Healers who share create antidote-like homeopathy that cancels out the energetic properties of
the toxin.

Supposedly it works like this
http://www.healerswhoshare.com/index.html

Did I get better?

In a word, NO!

What has helped...
Products not designed specifically for Lyme but indirectly they have been supportive.

Products like Lauricidin.  Make sure to read about Lyme   http://lauricidin.com/lyme_disease_testimonials/
http://lauricidin.com/

The reason I think this supplement is helping me is for two reasons...One is that most of my
original Lyme morphed into stealth viruses....many of which are lipid coated.  Monolaurin helps
break down the coating on these types of viruses....And monolaurin is found in coconut oil...
a diamond food for me.  Not wanting to keep going over my fat limit for the day, I switched to
using Lauricidin and except for the herxing (itching), I think it's helpful.

What else has been helpful?  Generally not a lot....except for a diet without sugar...making sure
that my organs are working and cleansing toxins.....I've gone for acupuncture (which I can't
say helped with aches and pains)..

A lot of my lyme issues became overlapped with chronic fatigue/fibromyalgia.

I have less of those symptoms while eating my SWAMI diet...I eliminated dairy because it was
setting me back....Less aches and pains since I gave it up....feel gut is improving with Genoma
Security and Gastro D.  And lately I'm eating cultured vegetables as often as I can....

I no longer see any one particular doctor/healer/alternative healer regarding my chronic Lyme
symptoms...I've had too many people who have wanted me to do chelation....(for their profit,
I'm quite sure)

I was told I had heavy metal toxicity...

SO I'm taking this product.....Pectasol.... http://www.econugenics.com/p-7.....Kn2aoCFYmK4AodRinu6g

My focus for one month is cleansing....for the next month, rebuilding...I never stay with cleansing
too long....but each time I go back to a new cleansing protocol, I seem to make greater progress.

Some months I focus on green drinks...chlorella, cilantro.....

I know I'm slightly off the track talking about Lyme, per say....because in reality, I don't think there
IS one cure for all the garbage one tick brought with it when it transferred toxins into your one
body...

I think it's a matter of building your immune system....and carefully balancing cleansing your organs
at the same time.  I haven't found one healer, one protocol that is "THE" one...I have made a lot
of progress using coconut oil....I found it very cleansing....but it's not a food we all have as
diamonds.

Right now, I'm feeling pretty well.....I have good energy, I sleep well....I'm not too achy and if I
am, I take Zyflamend....which helps with inflammation and has a lot of good herbs that are
complimentary for my blood type.

http://www.newchapter.com/zyflamend/zyflamend-easycaps

I also do oil pulling twice a day.  Does it help?  Can't say but it can't hurt.

Try everything you can think of....eventually something will be helping your body purge
toxins and make your immune system stronger.

I wish you luck




"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Thursday, August 18, 2011, 7:09pm Report to Moderator Report to Moderator

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Kyosha Nim
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Thank you Chloe and Lola.  Yeah Chloe, I didn't want to share my whole story either because I've said it a lot and am tired of it.  I will share some of my experiences if asked though.  I'm not really asking for "give me your whole story" type thing but just where we can discuss things that come up.  

But your input is great.  A gal I know is taking something called A-L complex and I guess that's supposed to help your immune system.  And then my Doctors assistant has been dealing with this for a long time and she's taking something called a "Transfer Factor" now and I guess it's been cleaning out her liver.

I am also super sensitive to sugar.  I can't eat anything that has too much sugar.  I do eat fruits, and they're fine.  But cake and ice cream, junk food.  Ugh.  It is like eating little bits of FAIL!!!!!!  I do eat a tiny piece of chocolate twice a week.  Good quality stuff.  And the darker the better.  But very small pieces at one time.  I barely eat any honey as it is.  Stevia seemed to work in the past, but I basically gave it up, because I'm just not sure about it.  I was eating it too much probably.  I got used to the flavor.  It may be that it's not too bad though.  I'm still undecided on that one.  And despite Agave being so controversial, when I did use it in a cake for a treat that I home made, it seemed to work well.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Thursday, August 18, 2011, 8:04pm Report to Moderator Report to Moderator

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Quoted from JJR
A gal I know is taking something called A-L complex and I guess that's supposed to help your immune system.  And then my Doctors assistant has been dealing with this for a long time and she's taking something called a "Transfer Factor" now and I guess it's been cleaning out her liver.

I am also super sensitive to sugar.  I can't eat anything that has too much sugar.  I do eat fruits, and they're fine.  


I've taken A-L (and A-Bab and A-Bart as well). It is specifically for Lyme disease. A-Bab is for Babesia, which I tested negative for in the lab, but my doctor says that I have the greatest "load" of Babesia infection. He says I also have Bartonella and "Lyme" (Borrelia burgdorferi ). All three of these infections came with one tick bite. So he started me with A-Bab and after some months my "symptom picture" changed and he switched me to A-Bart. Then a few months later my "symptom picture" changed again and he switched me to A-L. A month ago I started having the Babesia symptoms again and so I'm back on A-Bab.

I really like these remedies and find that they are helping me a lot. I didn't start out with them so I have something to compare them to. They are not the only thing that helps me for sure, but I do recommend them. But, you have to use the right one for you, at the right time, and that may be a little tricky. Here's where you can read about them a little.

http://www.faim.org/newfrontiers/byronwhiteformulas.html
By the way my doctor wrote this article, Dr. Wayne Anderson

http://bioresourceinc.com/bwherbal/


I am also very sensitive to sugar, just a little agave or blackstrap molasses from time to time. And I do eat some dark chocolate on occasion, but I have to be craving it.  


"Anxiety is the gap between now and then"

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Goldie
Thursday, August 18, 2011, 9:30pm Report to Moderator Report to Moderator

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nothing to add but it's a good idea.. lets discuss..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Thursday, August 18, 2011, 10:56pm Report to Moderator Report to Moderator

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Kyosha Nim
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Nowishow, that was a great post and I got a lot out of it.  I was wanting to study up on the A-L complex and you gave me the link!!!  Ask and ye shall receive. I'm going to run those past my doctor also.

One thing I'm having a challenge doing lately is keeping my spleen cleansed.  It seems like when I kill the stuff, my spleen hurts and lymph gets sluggish.  Lemons are bothering my stomach.  I did juice some carrots and am trying to keep hydrated.  And I made some broth the other day, but it seemed like it wasn't sitting right with me.  So I haven't had too much.  Any other ideas?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Andrea AWsec
Friday, August 19, 2011, 12:05am Report to Moderator Report to Moderator

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MIFHI

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Ribbit
Friday, August 19, 2011, 3:40am Report to Moderator Report to Moderator

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I woke up this morning with my legs aching like they haven't ached in a long time.  The bottoms of my feet (right across that padded part between the toes and the arch area) were puffy and I had to hobble around for a few minutes.  That's nothing new, but it reminded me that I'm better than I was.  

I don't like being like this.

I can't think.

I can't remember anything.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Friday, August 19, 2011, 3:56pm Report to Moderator Report to Moderator

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Kyosha Nim
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Ugh.  I've seen you say this a lot lately and I'm concerned.  The thing about not remembering.  I have this thing where I can't figure out the words I want to say right away sometimes.  And I'm like Aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaah.  I don't know if that's this deal, or just life in general.  I'll be saying a prayer for you.  But yeah, yesterday the pain in my knees was worse than I've ever had it before and my feet too have even felt kind of hot at times.  Which is kind of weird for me.  I swear it's something in the air this year.

I'm praying for you Leanne.  How is your spleen?  Do you ever feel like it gets gummed up and hurt?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, August 19, 2011, 4:17pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from Ribbit
...but it reminded me that I'm better than I was.  

I don't like being like this.

I can't think.

I can't remember anything.

None of us like these feelings.  I never realized until I started eating per BTD that it wasn't totally normal to lose concentration often and have to refresh short term memory frequently to remember anything...  
Unfortunately, detox keeps bringing these feeling back to me, so until I get the junk out of my body, I'll continue to experience this...

JJR,
I have hot, painful spots (zones) wherever the detox and healing is taking place...  Just part of the fun.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
Friday, August 19, 2011, 10:10pm Report to Moderator Report to Moderator

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Yukee.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Sunday, August 21, 2011, 3:40am Report to Moderator Report to Moderator

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Kyosha Nim
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Somebody had started a thread that I thought was interesting and I'm curious as if any of you have this symptom.  Do you ever get muscle twitches and stuff?  I've been getting one on my left arm for quite a while on a somewhat regular basis.  Not like all the time but it happens at least once a day.  And sometimes my stomach will twitch.  Almost like the vegas nerve is unsettled.  I have gotten that after doing something more strenuous than I should have maybe.  Which doesn't take much lately.  last time it happened was about 3 months ago and I was taking the oil filter off of the riding lawn mower.  It took all my strength to loosen it and it threw me for a loop for that afternoon and my stomach gets all twitchy.  And I get cold.  Does that happen with anyone else?

Seems to me like that's a neurological symptom.  I don't know.  I used to lay down at night and just feel my stomach twitching all over the place.  But back then it wasn't necessarily because I over did it.  It just happened a lot.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Sunday, August 21, 2011, 11:22am Report to Moderator Report to Moderator

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Sam Dan
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Neuropathy is a strange thing and in a way we hardly talk about it.. I think your symptoms are early signs, in need of a chiro adjustment? or acupuncture.. or ignore it unless it hurts.. and even then there is not much other then diet to make it better.. going sugar free seems to help.. do you have numb spots anywhere -sore to the touch?  Like nerves standing on edge??


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kim
Sunday, August 21, 2011, 2:49pm Report to Moderator Report to Moderator

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Quoted from JJR
Somebody had started a thread that I thought was interesting and I'm curious as if any of you have this symptom.  Do you ever get muscle twitches and stuff?  I've been getting one on my left arm for quite a while on a somewhat regular basis.  Not like all the time but it happens at least once a day.  And sometimes my stomach will twitch.  Almost like the vegas nerve is unsettled.  I have gotten that after doing something more strenuous than I should have maybe.  Which doesn't take much lately.  last time it happened was about 3 months ago and I was taking the oil filter off of the riding lawn mower.  It took all my strength to loosen it and it threw me for a loop for that afternoon and my stomach gets all twitchy.  And I get cold.  Does that happen with anyone else?

Seems to me like that's a neurological symptom.  I don't know.  I used to lay down at night and just feel my stomach twitching all over the place.  But back then it wasn't necessarily because I over did it.  It just happened a lot.


Muscle twitching can be from magnesium deficiency.  Increase your magnesium and see if it helps.  

I get a vibrational muscle thing going on in my chest, arms and sometimes legs.  It literally feels like I am shaking on the inside but there is no shaking on the outside.  It is definitely neurological.  

I would mention the twitching to your ND.  Is it possible you could also be reacting to one of the homeopathics you are taking?
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ABJoe
Sunday, August 21, 2011, 6:19pm Report to Moderator Report to Moderator

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I used to have muscle twitches quite regularly, although I don't remember if it was before or after BTD...  I had twitches in the arms and in the corner of my eyes.

I get temperatures differences all over...  There are times when I will have hot spots, cold spots or both at the same time...  The body is definitely controlling the temperature in different zones differently.  Sometimes I need to move to eliminate a fixation, but quite often, I just need to allow whatever is happening to happen and everything evens out.  I just ride along...      


RH-, ISTJ
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JJR
Sunday, August 21, 2011, 7:14pm Report to Moderator Report to Moderator

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Kyosha Nim
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I haven't supplemented magnesium for a while.  My body is not wanting it.  I don't think.  I think it's something else.  Possibly.  And it's more than a chiro adjustment, imho.  But, I'm not really sure.  Ever since I've had problems, I feel like my vegas nerve has always been messed up.  A chiro I used to go to would put me on this machine and my vegas nerve was always something that came up.  It seems like it's been better.  But, like I said when I push myself, is when I get the stomach twitchies.  The arm thing is just something that seems to be consistent lately.  It's no big deal, but just curious if others deal with it too.  

And Joe, I think you might've been right about how I felt Wednesday.  It seems like ever since that day, which I felt awful and had awful pain, I've been getting a little better.  And with less supplementes.  I didn't take the homeopathic for lyme last night and I feel pretty good.  I'll see what I need tonight.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Monday, August 22, 2011, 3:47pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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NowIshow, thank you so much for linking these formulas and the information.  I'm really thankful you took the time to do that.  I'm asking my Doctor about them and we may order them.  They didn't know about them.  They look like they could be potent.  Does your doctor use antibiotics with these?  A gal I know is doing both.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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deblynn3
Monday, August 22, 2011, 4:27pm Report to Moderator Report to Moderator

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My eyes would twitch, part over use. but read someplace to take B's and B12 in particular. Haven't had the twitches since I went on the B's


Swami, 100% me..
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nowishow
Monday, August 22, 2011, 7:25pm Report to Moderator Report to Moderator

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Quoted from JJR
Nowishow, that was a great post and I got a lot out of it.  I was wanting to study up on the A-L complex and you gave me the link!!!  Ask and ye shall receive. I'm going to run those past my doctor also.

One thing I'm having a challenge doing lately is keeping my spleen cleansed.  It seems like when I kill the stuff, my spleen hurts and lymph gets sluggish.  Lemons are bothering my stomach.  I did juice some carrots and am trying to keep hydrated.  And I made some broth the other day, but it seemed like it wasn't sitting right with me.  So I haven't had too much.  Any other ideas?


I really like Red Root tincture. It really helped me a lot. I had tremendous spleen pain for a while. I'm still taking the Red Root even thought I haven't had the spleen pain for a while. It's just good maintenance for us "Lymies".

I also highly recommend clay baths or "soda baths". I get so much help from them if I take them once or twice a week.

Soda Bath

1/2 box Borax (about 6 cups)
3 cups baking soda
2 cups cornstarch

Dissolve in lukewarm water (NOT HOT) and soak for 35 minutes. Put as much of your body in as possible. Rinse after but do not wash.


"Anxiety is the gap between now and then"

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nowishow
Monday, August 22, 2011, 7:28pm Report to Moderator Report to Moderator

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Quoted from JJR
  I have this thing where I can't figure out the words I want to say right away sometimes.  And I'm like Aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaah.  I don't know if that's this deal, or just life in general.  I'll be saying a prayer for you.  But yeah, yesterday the pain in my knees was worse than I've ever had it before and my feet too have even felt kind of hot at times.  Which is kind of weird for me.  I swear it's something in the air this year.


I have trouble finding words when I'm feeling really bad as well. I'm pretty sure it's trouble with the vargus nerve. So many of my symptoms stem from there.

Hot feet can be a sign of Bartonella


"Anxiety is the gap between now and then"

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nowishow
Monday, August 22, 2011, 7:32pm Report to Moderator Report to Moderator

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Quoted from JJR
Somebody had started a thread that I thought was interesting and I'm curious as if any of you have this symptom.  Do you ever get muscle twitches and stuff?  I've been getting one on my left arm for quite a while on a somewhat regular basis.  Not like all the time but it happens at least once a day.  And sometimes my stomach will twitch.  Almost like the vegas nerve is unsettled.  I have gotten that after doing something more strenuous than I should have maybe.  Which doesn't take much lately.  last time it happened was about 3 months ago and I was taking the oil filter off of the riding lawn mower.  It took all my strength to loosen it and it threw me for a loop for that afternoon and my stomach gets all twitchy.  And I get cold.  Does that happen with anyone else?

Seems to me like that's a neurological symptom.  I don't know.  I used to lay down at night and just feel my stomach twitching all over the place.  But back then it wasn't necessarily because I over did it.  It just happened a lot.


I don't get a lot of muscle twitching but it's a typical Lyme symptom. I get a vibrating feeling most of the time in my chest which is also very typical. I get very cold and then usually burst into a sweating fever. But sometimes I'm just cold for a long time. Temperature control problems I believe are caused by hormonal imbalances and the short fevers are the body trying to kill the infection.



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nowishow
Monday, August 22, 2011, 7:38pm Report to Moderator Report to Moderator

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Quoted from JJR
I haven't supplemented magnesium for a while.  My body is not wanting it.  I don't think.  I think it's something else.  Possibly.  


Try Magesium Glycinate (most recommended for Lyme patients) and/or topical magnesium.

http://www.iherb.com/Bluebonnet-Nutrition-Chelated-Magnesium-90-Vcaps/14198?at=0

http://www.magneticclay.com/store/magnesium-oil-ancient-minerals-8.aspx


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nowishow
Monday, August 22, 2011, 7:42pm Report to Moderator Report to Moderator

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Quoted from JJR
NowIshow, thank you so much for linking these formulas and the information.  I'm really thankful you took the time to do that.  I'm asking my Doctor about them and we may order them.  They didn't know about them.  They look like they could be potent.  Does your doctor use antibiotics with these?  A gal I know is doing both.


I only used antibiotics for 1 month at the beginning. But, that's a personal choice. I belive you can use both at the same time, but I'm not sure. The Bryan White formulas are very potent. I had to start out one of them one drop every other day. I've never gotten higher than 6 drops twice a day or I would herx too much. Are you familiar with the term "herx"? I'm very sensitive though so you may need more.


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JJR
Tuesday, August 23, 2011, 12:48am Report to Moderator Report to Moderator

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No, I'm like you.  Super sensitive.  Any supplement people tell me to take, I take a small fraction, very small fraction in the beginning to see what happens.  Sometimes, even my fractions send me for a herx loop.  I'm guessing this is a symptom of lyme too, because before all my problems, I would not use the word "sensitive" for my digestion or any part of my system, except maybe some emotions.  I used to be "iron gut".  So, I'm sure the lyme does that.  Or any other bad bacteria that gums up your digestion.

I'll check out that magnesium and seven million thank you's to your help.  This lyme thing is new to me.  How are you doing?  Do you feel like you're winning the battle?  I had felt like that at one time before figuring out the lymes, but this year has been a big setback.  But it got me to start digging more.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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NoMorePartyInMyMouth
Tuesday, August 23, 2011, 1:43am Report to Moderator Report to Moderator

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Interesting thread.   I have requested a CD57 test from my ND for lyme's.  I also have an auto immune disease called Lichen Sclerosis, through my support group for LS there is a lady who has recently learned that a bug bite she received while in Tanzania gave her a mycoplasma infection.  This type of infection comes from ticks and certain bugs.  She tested positive for Lyme's but has no symptoms.

She is treating the mycoplasma infection with biotanical supplements.  Cleaning at a cellular level.

She believes the mycoplasma infection is the root of her Lichen Sclerosis.  

Don't mean to worry any ladies in this group, but several women who have Lyme's develop Lichen Sclerosis.

I was bit by a tick in 2006 while fishing, my LS symptoms started in 2008.

Deenise


  “Through a simple adjustment to your perception, you can elevate your journey to a mystical, magical adventure.”  

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JJR
Tuesday, August 23, 2011, 3:55pm Report to Moderator Report to Moderator

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Could be just another symptom or problem with this type of infection.  I would imagine dealing with it may clear up the LS????  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Tuesday, August 23, 2011, 6:34pm Report to Moderator Report to Moderator

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Hi JJR,

I'm happy to help in any way I can. What I know for sure is everyone has a different path to health from Lyme disease. I'm continuing to get better, but recently had such huge Babesia symptoms again that I was very depressed for a few weeks. I was told my body might fight all three bugs again (after the first cycle through) but I didn't think the second time would be so painful. But after about six weeks the pain is really starting to lessen so I feel hopeful again.

I did an informal survey on a Lyme forum I belong to. My impression from the results were this.

If you start treatment within 1-2 years of being infected, you could recover within a year or so

If you start treatment after two years of being infected it's usually 2-4 years to recovery (with some people taking even longer or never fully recovering)

So I've got at least another year to go.

I've been sick for years. The bites that gave me the big infection was about 7-9 years ago, but my doctor believes that I got a smaller infection around 15 years ago (I had many tick bites around that time). I didn't have a lot of symptoms until I started the Geno Type diet which stopped me eating wheat (I previously had been eating for a B secretor, I didn't know I was a nonnie). Over the last 10 - 12 years I lost my stamina, strength, and had a lot of strange little symptoms. I just thought I was getting old.   Once I started the GTD I had a very strange experience I started getting better in some ways and worse in others until after about a year I ended up in the hosptial. I now believe that starting the GTD healed my immune system enough that my body started an all out war with these bugs and I started having enourmous herxes! Most people have to take medicine to create a herx. GTD is very powerful!  

Anyone have a similar experience?


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JJR
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Mine was overnight.  Except I developed the heart arrhythmia about 4 years before I crashed.  And I had a few episodes before the "big" crash, where I just didn't feel right for about a week.  I think I probably had it in my system since a little after the year 2000.  If I had to guess.  Because that's when I suspected it the most.  I felt lousy one week.  Had this weird looking bruise on my knee that was clear in the middle, possibly a bullseye rash, and I had just gone camping in the North woods, way up there. I think it was more like, ugh, I forget what year that was.  I'll have to talk to my wife and see.  But it was around then.  But, I don't really know if that's when it all started.  I was relatively strong and what not until almost 5 years ago, my digestion stopped working, real bad.  Like someone flipped a switch.  It was bizarre.

My spleen is really struggling today.  I had a chiro adjustment and I think it helped get the blood flowing.  So, my spleen seems overloaded, it hurts and then I get this real heavy feeling like I can't breathe very well.  My heart rate and BP will be normal, but it's like the filter is clogged.  My chiro suggested drinking 1/2 cup of olive oil 3 days in a row.  I'm not doing that.  It just doesn't seem right.  It might work, but I think I'd be in trouble.  I'm taking standard process spleen supps.  Spleen PMG and Whole, Dessicated spleen, but is there any other tips on supporting and cleansing it?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Wednesday, August 24, 2011, 11:01am Report to Moderator Report to Moderator

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I got sick almost 5 years ago.  I too just got sick overnight.  One minute I was healthy and the next I wasn't.  I was extremely active raising horses, had an internet business and was weight lifting 4 days a week.  A typical day involved tossing 70 lb bales of hay out to the horses.  Pushing 1,000 lb animals around each day was good exercise too.

When this happened, the adrenals & thyroid went to a slow crawl.  Digestion got so bad I had to have an endoscopy to see if there were ulcers, tumors, etc.  They did remove a small tumor in my stomach and duodenum that was benign.  No reason found for the stomach problems but a gastroenterologist does not know about food allergies/diet or how lyme can affect all body functions. Migraines increased, blood pressure got even lower, and I had all the classic lyme symptoms.  Definitely have Babesia symptoms big time.

We expect it is going to take a few years to recover from this.  I have many neuro symptoms so that is one big reason I am combining IV antibiotics with homeopathics.  I am trying to save my brain cells from permanent damage.  I am positive for band 39kd and 41kd on the western blot and tested positive for Ehrlichia/anaplasmosis.  If I have any other coinfections they will have to be clinically diagnosed by the LLMD.  Testing is so unreliable.

DH has lyme too.  He had a rash last year and did 4 months of doxy.  He got another big welt from another bite this year.  I had a tick bite on my scalp in July.  We have both had numerous bites over the past 10 years.  That doesn't count all the bites DH had while in the Marine Corp.  

Needless to say, we keep our grass short, treat our dogs with frontline Plus, strip and check ourselves every time we come in from the outdoors.  We are getting those daminex tubes to put outside around the house.

If there was a place to live without ticks, I would move there, but there isn't one.  The science talks about biting flies and mosquitos transmitting lyme.  Lyme, a distant cousin to syphllis, has some doctors believing the spirochetes are sexually transmitted.  That is scarey!

Under Our Skin documentary about lyme disease is free to view on Hulu.com for a short period of time if anyone wants to see it.
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JJR
Wednesday, August 24, 2011, 5:39pm Report to Moderator Report to Moderator

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Yeah, I don't think you can get away from it.  It could be in anything.  People that get it aren't always "outdoors" people.  I was constantly outside, cut up many deer, and when I moved into my current house was cutting trees down a lot.  Etc.  Outside was my domain.  Not any more.  No energy to.

Another issue I have is weight loss.  I'm struggling with it now.  I wish I could overcome this.  I just keep getting lighter and lighter.  Which brings me to another issue of sleep.  All the experts say to go to bed before 11.  But I am the most hungry at night and I eat a lot then.  I'd say I get 2/3 of my calories after 7 pm at night.  My body just wants it.  So when I eat at night, I end up going to be around 1.  Thankfully, I don't have to get up early, so I'll sleep 8-9 hours.  And I've been sleeping better this last year than I ever have.  But I wonder if I really need to change this late deal, or if some of us are just different.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Wednesday, August 24, 2011, 9:16pm Report to Moderator Report to Moderator

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Quoted from JJR
My spleen is really struggling today.  I had a chiro adjustment and I think it helped get the blood flowing.  So, my spleen seems overloaded, it hurts and then I get this real heavy feeling like I can't breathe very well.  My heart rate and BP will be normal, but it's like the filter is clogged.  My chiro suggested drinking 1/2 cup of olive oil 3 days in a row.  I'm not doing that.  It just doesn't seem right.  It might work, but I think I'd be in trouble.  I'm taking standard process spleen supps.  Spleen PMG and Whole, Dessicated spleen, but is there any other tips on supporting and cleansing it?


I really recommend trying the Red Root tincture. I know a number of people that have been helped by it. I've tried other spleen remedies that didn't help me at all until I found Red Root, which is recommended by Stephen Buhner (big name in the Lyme community). He has a great book out by the way that helped me quite a bit. Within 30 minutes after the first time I tried Red Root I felt a bubbling feeling in the area of my spleen and the pressure eased up for the first time since I got really sick. I got the bubbling feeling off and on after that. I still use it because if I stop I really notice my spleen again. I started on 10 drops, 3 times a day and increased over a few months to 20 drops 3 times a day which is where I've stayed. It's really cheap so not much of an investment if it doesn't work for you.

I've had four relative good days in a row.   And had the best night's sleep, last night, in the last six weeks (since I had my "relapse"). It's so hard to explain to people the kind of pain I live, work, and sleep with. On a scale of 1-10, I live with pain in the 5-6 range most of the time with the pain spiking up to the 8-9 for hours at a time. The last few days I've been in the 3-4 range, which I can pretty much ignore. Not at all normal, but I can fake it better at work.   The fatigue is hard too, but the pain is off the charts for me.

Do you guys have a lot of pain?


"Anxiety is the gap between now and then"

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JJR
Thursday, August 25, 2011, 3:30am Report to Moderator Report to Moderator

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The pain is less intense than the fatigue, for me.  The fatigue is terrible at times.  Like I have one foot in the  grave and am walking thru thick mud.  It's not always like that, but it can get pretty bad.  I do get pain sometimes though. Like my spleen right now.  I pray it doesn't get worse and maybe mine is different.  I get inflammed real bad when I herx though.  That's when the pain shows up for me.  Like my skin is on fire.  Fire.

What brand of Red Root tincture do you get and where, if you don't mind me asking?  I'll be saying a prayer for your pain.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ieatmeatnlikeit
Thursday, August 25, 2011, 5:24pm Report to Moderator Report to Moderator

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I read a book called Top Ten Cures for Lyme. Stephen Rosner wrote with seeming precaution  possibly just because of all the AMA  and Insurance/Pharm industry conflicts involved in this scourge. He, in possibly more words than were helpful to me covered much ground but also somehow left much out. He offered so many protocols that the sense I got was that nobody can afford to even consider that one size fits all. He did pay passing lip service to Rife machine technology which is outlawed in the U.S. but perfectly legal in some other lands. Someone I know has had really good success with Rife treatments where antiB's and even traditional herbal regimes left things less than complete.
I  was intrigued so I sought out a way to try it myself. I suggest it because I do believe I felt better for several weeks after doing  only one session. It is not an easy thing to follow up on in my area. Most people get their own devices and treat themselves and keep it all under wraps for obvious reasons. Evidently it is subtle and takes many sessions to get definitive results. Licensed doctors are not allowed to tell patients about this kind of therapy but if a patient asks about it and said doctor is  in the know, they might at their discretion send you to a Physical Therapist with a prescription for a session using similar technology. Rosner also mentions a strange deviation present in Lyme affected folks having to do with the "dis-function of Vitamin D uptake". Some Yale researcher has a paper on it and it seems to destroy or subvert the benefit of sunlight. So Rosner himself stays out of the sun.
I also think the name Japanese Knotweed Extract should be mentioned. I first heard about Teasel on this forum and presently keep both in my daily regime about three time a day. A new book called Invasive Plant Medicine by Timothy Lee Scott talks about invasive weeds showing up ahead of  now looming problems like Lyme and how many of them are turning out to have plenty of helpful components traditionally found in otherwise hard to obtain exotic and expensive sources.
Finally talk about expensive, for treatments I'll mention Pycnogenol(?) I heard about it back in my first Lyme fight. I took it with Aloe Vera juice as recommended. And for lifestyle: Exercise. Don't let yourself just sit around ! Push yourself to keep your blood moving and oxygenated. This is probably the most important element in keeping Lyme suppressed once you have it under control.
Of course reading too much about Lyme can make you very angry if you wish to go there. Try looking into the book about Plum Island called "Lab 257" by Micheal Christopher Carroll for a chilling dose of learning where Lyme probably got started in this country. Fast forward to the present: The suggestion that some Lyme ticks now carry a U.S. patented bioweapon called Mycoplasma should make everyone involved question their morals. Personally I don't know where I stand on the matter of affliction vs gift. Some days are better than others but I think more about nature and the planet now than I did before I had Lyme to deal with.
iemnli


love or perish, sing or croak,recycle or regret, write or read, think or thwim.
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nowishow
Thursday, August 25, 2011, 7:21pm Report to Moderator Report to Moderator

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Quoted from JJR
The pain is less intense than the fatigue, for me.  The fatigue is terrible at times.  Like I have one foot in the  grave and am walking thru thick mud.  It's not always like that, but it can get pretty bad.  I do get pain sometimes though. Like my spleen right now.  I pray it doesn't get worse and maybe mine is different.  I get inflammed real bad when I herx though.  That's when the pain shows up for me.  Like my skin is on fire.  Fire.

What brand of Red Root tincture do you get and where, if you don't mind me asking?  I'll be saying a prayer for your pain.


I only get that extreme fatigue when my body is fighting the actual "Lyme bug". So I know what you're talking about but have only experienced it for a few months. I really feel for you! By the way burning pains are usually associated with Bartonella.

I get most of my supplements from iherb.com because I get free shipping for order $40 or over. They're fast and have very good prices. Here's a link to the red root page.

http://www.iherb.com/Red-Root-2-fl-oz-60-ml/5333?at=0


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nowishow
Thursday, August 25, 2011, 7:34pm Report to Moderator Report to Moderator

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Quoted from ieatmeatnlikeit

I read a book called Top Ten Cures for Lyme. Stephen Rosner wrote with seeming precaution  possibly just because of all the AMA  and Insurance/Pharm industry conflicts involved in this scourge. He, in possibly more words than were helpful to me covered much ground but also somehow left much out. He offered so many protocols that the sense I got was that nobody can afford to even consider that one size fits all. He did pay passing lip service to Rife machine technology which is outlawed in the U.S. but perfectly legal in some other lands. Someone I know has had really good success with Rife treatments where antiB's and even traditional herbal regimes left things less than complete.


I've never tried Rife machines but have heard wonderful reports from other Lymies about them. I have Reiki treatments when I can afford them and they seem to help as well, actually they give me a strong herx reaction which to me is a good thing. I really like energy type healing. I've always like homeopathy as well.

I've never found anyone who benifited from the no sun, no vitamin D program. But it seems everyone responds so differently it wouldn't surprise me if it helped someone. I do better if I get sun. It actually works like a detox for me.


"Anxiety is the gap between now and then"

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nowishow
Thursday, August 25, 2011, 7:34pm Report to Moderator Report to Moderator

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Quoted from ieatmeatnlikeit

Fast forward to the present: The suggestion that some Lyme ticks now carry a U.S. patented bioweapon called Mycoplasma should make everyone involved question their morals. Personally I don't know where I stand on the matter of affliction vs gift. Some days are better than others but I think more about nature and the planet now than I did before I had Lyme to deal with.
iemnli


I tested positive for Mycoplasma  


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JJR
Thursday, August 25, 2011, 8:31pm Report to Moderator Report to Moderator

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Kyosha Nim
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Good stuff here.  Thank you Meat eater.  When I went down to mayo, that was one lab I also failed.  VIT D levels were low.  And whenever I take D3, I feel really lousy.  I don't feel lousy with the D in Cod liver oil though.  

Thanks for the Iherb, nowishow!  My doctors assistant suggested I try Oregon Grape root, before Red root, she said it's less strong.  But she did say the Red root tincture is good too.  I know I need to get moving more.  It's hard when your fatigued and get heart arrhythmia's when pushing myself physically.  Among other things.  She suggested I try some bouncing, which joe did too, and deep breathing.  That'll get the lymph moving. I do deep breathing, but not like long periods.  Maybe 10 minutes.  


Lyme.  Grrrrr.....


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Thursday, August 25, 2011, 8:49pm Report to Moderator Report to Moderator

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Quoted from JJR
Another issue I have is weight loss.  I'm struggling with it now.  I wish I could overcome this.  I just keep getting lighter and lighter.  Which brings me to another issue of sleep.  All the experts say to go to bed before 11.  But I am the most hungry at night and I eat a lot then.  I'd say I get 2/3 of my calories after 7 pm at night.  My body just wants it.  So when I eat at night, I end up going to be around 1.  Thankfully, I don't have to get up early, so I'll sleep 8-9 hours.  And I've been sleeping better this last year than I ever have.  But I wonder if I really need to change this late deal, or if some of us are just different.  


I think some of us are just different. My father  could never go to bed before 11:00 either, many times not until 2:00 AM or later. Nor could he get up before 9:00 or 10:00 AM. Fortunately, he was powerful enough in his company that he could set his own hours; as long as he got electronic devices designed, they didn't care too much what hours he kept.

Getting to bed before 11:00 may be "ideal" for "most people" but we're all individuals. For some people, 11:00 may be way too late, and bedtime needs to be 8:30 or 9:00 and then they wake up bright-eyed and bushy-tailed at the crack of dawn. You clearly do well going to bed much later and sleeping much later.

I also wonder if those "specific bedtime" reccomendations were based on any real science regarding light cycles, or if it was based on the notion that "we all have to be up by 7:00 AM so we need to be in bed by 11 to get 8 hours".


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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Chloe
Thursday, August 25, 2011, 8:55pm Report to Moderator Report to Moderator

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Quoted from nowishow


I've never tried Rife machines but have heard wonderful reports from other Lymies about them. I have Reiki treatments when I can afford them and they seem to help as well, actually they give me a strong herx reaction which to me is a good thing. I really like energy type healing. I've always like homeopathy as well.

I've never found anyone who benifited from the no sun, no vitamin D program. But it seems everyone responds so differently it wouldn't surprise me if it helped someone. I do better if I get sun. It actually works like a detox for me.


I did Rife a few times....don't know if it helped....It was over 15 years ago....Reiki was awesome....better than just about anything for pain...and I agree...I really like energy healing and homeopathy.  I took a lot of homeopathic formulas....a lot of different herbs....had massages,
soaked in magnesium oil baths every night for a year...My pain has lessened by 90%.

I wasn't able to tolerate vitamin D either until I got somewhat better.  I now take 5,000 iu of D
with no problems.

I have very few aches and pains these days....when I lived with pain for 4 decades....I owe this
to trying just about every type of supplement, herb and modality that I heard about...I lived
on Olive Leaf Extract for about 10 years...Now I take Lauricidin, which I think is what is helping
me with all the stealth viral issues I had.  First time in ages that I feel really well....I had to
tweak my SWAMI a bit....eliminate foods that made me too acidic.....I had to put the dairy
on hold because my body seems to want to cleanse right now and so I'm eating more raw foods.

I take Genoma Security 2x a day and I think it's helping with leftover biofilms.  There just
wasn't as much available to me then as there is now.

Also, after 4 decades, I'm actively exercising 3-4 times a week...I used to do a little, but now
I exercise a lot....which is saying a lot considering I'm older.  But the pain kept me from exercising.  I had neurological pain that was excruciating....All gone now.

There is hope for all of you..



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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nowishow
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Quoted from Chloe


I have very few aches and pains these days....when I lived with pain for 4 decades....

Also, after 4 decades, I'm actively exercising 3-4 times a week...I used to do a little, but now
I exercise a lot....which is saying a lot considering I'm older.  But the pain kept me from exercising.  I had neurological pain that was excruciating....All gone now.



Chloe! I can't imagine living with the kind of pain I've been having for 40 years. It feels impossible to me. I don't know how you did it.

I haven't been able to excercise at all except for yoga. My heart just starts pounding or I start having very strong pain and/or weakness. I've always been so active. I used to cycle (60 mile rides) kayak, walk, hike, you name it. I was a construction worker for years. Always so active and now I'm a couch potato. It's very strange and not a little depressing.

But you've given me hope. Thanks!


"Anxiety is the gap between now and then"

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Quoted from nowishow


Chloe! I can't imagine living with the kind of pain I've been having for 40 years. It feels impossible to me. I don't know how you did it.

I haven't been able to exercise at all except for yoga. My heart just starts pounding or I start having very strong pain and/or weakness. I've always been so active. I used to cycle (60 mile rides) kayak, walk, hike, you name it. I was a construction worker for years. Always so active and now I'm a couch potato. It's very strange and not a little depressing.

But you've given me hope. Thanks!


I'm so glad I'm not alone in this aspect.  I used to be an outdoorsman, hunter, put the kids on my back when they were little and take hikes.  Now, it's the same deal as what you've just said.  I was getting arrhythmia's when pushing myself, and even if I don't get an arrhythmia, if I over do it, my heart rate just flies out of control, I get the chills, and I feel like something is really really wrong.  One time a year ago I was feeling well, I helped my Dad move a really heavy desk and my body unraveled.  I got pain all over the place, etc etc.  Same deal with the heart stuff, and it took me a week to finally calm down.  I mean, I would calm down at night to a point, but I had to take meds, and what not and my body didn't get over it for a while.  It's very frustrating, because I was always an athlete and active.  Until this all hit 5 years ago.  I do think I need to do something, but I'm not sure what my body can handle yet.  I haven't tried yoga.  When I feel good I do stretching and few push ups, some leg lifts.  But it's usually about 10 minutes or so.  And even that has fallen by the wayside these last couple of months.  I have one of those balls and I think I'm going to sit on it and bounce a little at first.  Get the lymph moving.  And go from there.  But I've been so up and down lately.  I felt terrible yesterday.  Today was better.  Praise the LORD!!

I also do the dishes and cook.  But it hasn't been anything real in depth or time consuming lately.  Meaning I don't stay on my feet for overly long before sitting down.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Yeah, I wasn't down in weight when I went to bed last night!!!  


The poster formerly known as "ABNOWAY"

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Quoted from JJR
Yeah, I wasn't down in weight when I went to bed last night!!!  


I've heard that weight loss can be attributed to Babesia. The heart symptoms are usually Babesia as well. If you herx by taking Artemisinin you can pretty much assume you have Babesia. In my opinion. This is how I first tested myself to see if I had Babesia because my lab test was negative. Later my current doctor confirmed this through clinical diagnosis. Once I started treating just for Babesia my progress started to move forward.

This stuff made me herx so bad. I had to try a much gentler form of the herb.
http://www.iherb.com/Nutricology-Super-Artemisinin-60-Veggie-Caps/3484?at=0

This was much easier on me
http://www.iherb.com/Gaia-Herbs-Sweet-Wormwood-Herb-1-fl-oz-30-ml/14926?at=0

But I found A-Bab to work the best for me.


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Quoted from JJR


I'm so glad I'm not alone in this aspect.  I used to be an outdoorsman, hunter, put the kids on my back when they were little and take hikes.  Now, it's the same deal as what you've just said.  I was getting arrhythmia's when pushing myself, and even if I don't get an arrhythmia, if I over do it, my heart rate just flies out of control, I get the chills, and I feel like something is really really wrong.  One time a year ago I was feeling well, I helped my Dad move a really heavy desk and my body unraveled.  I got pain all over the place, etc etc.  Same deal with the heart stuff, and it took me a week to finally calm down.  I mean, I would calm down at night to a point, but I had to take meds, and what not and my body didn't get over it for a while.  It's very frustrating, because I was always an athlete and active.  Until this all hit 5 years ago.  I do think I need to do something, but I'm not sure what my body can handle yet.  I haven't tried yoga.  When I feel good I do stretching and few push ups, some leg lifts.  But it's usually about 10 minutes or so.  And even that has fallen by the wayside these last couple of months.  I have one of those balls and I think I'm going to sit on it and bounce a little at first.  Get the lymph moving.  And go from there.  But I've been so up and down lately.  I felt terrible yesterday.  Today was better.  Praise the LORD!!

I also do the dishes and cook.  But it hasn't been anything real in depth or time consuming lately.  Meaning I don't stay on my feet for overly long before sitting down.  


I've heard this kind of story so often. You are so far from being alone in this, going from an athlete to unable to do much of anything. My theory is we had a much bigger chance to get tick bites because we're so active, out in nature all the time. What a price to pay!


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Kim
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With Babesia, you may experience weight loss or weight gain.  I have the latter to deal with.

From what I read about Lyme disease, the nymph ticks pick up the spirochetes and coinfections from mice.  The Lyme groups suggest using Damminex tubes around the house.  If you do a google search, you will find places to purchase them.  Cotton balls are in the tubes which the mice take to their nests and the permethrin in the cotton balls kills the ticks.  They are pricey but worth it for less ticks.
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Mice and chipmunks are on my "kill at will" list.  Although I haven't gone after the chipmunks this year as much.  I haven't seen a lot of squirrels lately, thank God.  And we did have a mice problem at one time, but I think it's better now.  We'll see when the winter comes.  Time for the traps and some cheese.

Yeah, I'm sure gain or loss of weight is just a sign of something not working right in the system.  Like someone posted, it strikes us at our weak points.  I've never been one to put on too much weight, except for a short time in my early 30's.  But even then it wasn't terrible.  As a kid, I was always skinny.  I did sprout some muscles with lots of effort in high school.  It's a shame to see them dwindle.  Oh well, God says don't be as worried about those things as the spiritual.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Quoted from Kim




  It literally feels like I am shaking on the inside but there is no shaking on the outside.  It is definitely neurological.  



Yes. That's me.  When I was at my worst last summer, I felt like that constantly.  Now it's just when I wake up during the night sometimes.  Thankfully it's only off and on.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from JJR


I'm praying for you Leanne.  How is your spleen?  Do you ever feel like it gets gummed up and hurt?


Thanks, JJ.     What does a gummed up spleen feel like?  I don't even know what the symptoms are.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from ieatmeatnlikeit
Rosner also mentions a strange deviation present in Lyme affected folks having to do with the "dis-function of Vitamin D uptake". Some Yale researcher has a paper on it and it seems to destroy or subvert the benefit of sunlight. ........

Try looking into the book about Plum Island called "Lab 257".....


That's odd about vitamin D uptake.  I'm evidently very deficient.  I feel fabulous when I've been in the sun.  If I go to the garden first thing in the morning and get two or three hours of sun I will feel fantastic the rest of the day.

Re: Plum Island, I don't even want to think about it.  DH is from New York and it turns out he did a big paper in school about it.  He told me all the nitty gritty details about what's gone on over the years with the former Nazis being brought here and I can't even allow myself to believe that their experiments are now destroying my body today.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from Kim


  The science talks about biting flies and mosquitos transmitting lyme.  Lyme, a distant cousin to syphllis, has some doctors believing the spirochetes are sexually transmitted.  


That's not the first time I've heard that.  DH told me it was like syphilis.  He e-mailed me a controversial article about it.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from Kim
With Babesia, you may experience weight loss or weight gain.  


I have only read that weight loss is a symptom.  But I have had to deal with weight gain as well, and it makes sense because the bacteria attacks your thyroid just like it attacks everything else, bringing down its function....and causing you to gain weight.

When I read through the insanely long list of Lyme symptoms, there are only four that I don't have: weight loss, hair loss, Lyme "rage" and sensitivity to alcohol.  I have every neurological symptoms possible, although with herbal/homeopathic supplements and a mostly raw diet, they have greatly diminished.

I still wish I could think, though.

JJ, when I get to where I can't think of a word (which only happens when I'm talking, not when I'm typing, oddly enough), I picture it in my mind--the object, then the word written.  After I picture the written word, I can read it and then say it.  I know that sounds silly, but if you try it maybe it'll work for you too.  And it's only with nouns.  I don't have trouble thinking of adjectives or adverbs or anything else although I have been known in the last year to mix up pronouns.

I believe my Vagus nerve is a problem too.  I learned about it from Paul Clucas when we were talking about ADD and super-sensitive ears.  Now I know that the nerve runs the entire length of your body and is responsible for a good many things.  Fish oils and B vitamins have helped.  I also wear an ear plug in my left ear now (the sensitive one) and it helps me relax.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Quoted from Ribbit



JJ, when I get to where I can't think of a word (which only happens when I'm talking, not when I'm typing, oddly enough), I picture it in my mind--the object, then the word written.  After I picture the written word, I can read it and then say it.  I know that sounds silly, but if you try it maybe it'll work for you too.  And it's only with nouns.  I don't have trouble thinking of adjectives or adverbs or anything else although I have been known in the last year to mix up pronouns.




That's what I do too!  


"Anxiety is the gap between now and then"

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My symptoms of a gummed up spleen is pain on the left side of my rib cage.  It feels the same as kidney pain, I think.  And my blood has been thicker lately.  I know this because I need Vitamin E regularly now.  I was off of that for a long time.  

Thanks for the tip on the word thing.  I'll have to try that.  Yeah, I usually have less problems while typing.  Every once in a while I'll be at a loss for a word, but it's a lot more rare.  Some days it feels like I walk around searching for words to communicate.  It's not horrible, but it's there.  But my wife says she gets that sometimes too.  

This thread has been sooooooo good.  Because it has really made me feel at home with my symptoms.  I don't feel alone and it explains why I feel like I do.  Instead of the big question hanging over me.  Before it was always a big mystery as to why I was going through this.  I don't know if it really makes it any easier, but I feel, safer knowing what the cause of my problems are.  Or I'm sure at least a large part of it.  I mean we've had our house tested for Mold, which this last test the guy said it was really really good.  The only stuff that showed up was the same stuff as outside in such a small amount that he said you can't get away from what's outside.  We try and eat the most pure foods, water filters, etc etc.  This diet.  And despite my strictest efforts, that wasn't necessarily fixing me.  It helped, and I'm sure if I didn't do all that stuff, I'd be worse off.  But grasping at straws, trying to figure out why I feel like I do, has been no fun. Now, I see that other people have the same exact symptoms.  Or may be a little different but some are exactly the same, and I just feel more relaxed about it in my mind.  

I'll bring up another symptom, I have noticed at the New Moon, it seems to affect me more.  I've brought this up in other threads.  But I didn't sleep real well last night, and the New Moon is Monday.  And usually my digestion takes a hit around the time of the new moon.  Meaning I'm not as hungry and I seem to struggle in the gut more.  It seems opposite, as others say the Full Moon may mess with them.  But for me it's the opposite.  


The poster formerly known as "ABNOWAY"

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I haven't finished watching it yet.  It's kind of a lot to take in at once when you know you have it in your system.


The poster formerly known as "ABNOWAY"

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Yeah it is, JJ. We watched it several months ago and Rob and I just sat there and thanked God that I'm not as bad as I was a year ago.  I'm also thankful we've been on this diet as long as we have been.  I knew 6 1/2 years ago, before I had a name for it, that the diet threw "it" into remission.  I remember telling Rob that.  That "it" was better than it had been in a long time.  I'm glad I have a name for it (thanks to Chloe's patience explaining it to me more than once!) so I can figure out what to do from here.

I often wake up during the night and first thing in the morning with pain in a particular rib on my left side.  It's been that way for years.  It's in the back, not the front.  I just assumed it's from having a mattress that's not comfortable.  I have learned to sleep with multiple pillows tucked in every-which-way to relieve the strain on my joints and ligaments during the night.

I keep injuring my joints, and now I know why.  I complained to my chiropractor recently that my wrist hurt (the one that hasn't stopped tingling since my paralysis episode last summer), and he felt around...and then felt around my elbow and shoulder and knee and ankle (because I'd complained about them too) and he said, "The tendons around your joints are thin and not developed--they're child-sized.  It's almost like they didn't form completely."  I was so glad he said this to me because I always KNEW something was wrong, but no doctor/chiropractor had ever confirmed it!  I knew I always wore out too fast, had no endurance, and got hurt more than anybody else.  My mom made me wear high-top sneakers for years because my ankles were so weak I kept spraining them.  We should have known something wasn't right.  Anyway, my assumption now is that the Lyme bacteria in my joints at such a young age kept  my ligaments from forming like they should.  I'm not little--I'm 5 ft 6 1/2 inches tall and I currently weigh just over 125. Yes, seriously--I amazingly lost all the weight I was holding onto after the last baby was born, that I never thought I would lose because of my inability to exercise.  But my wrists are very small--5 1/2 inches around--and every joint in my body snaps and crunches.  They always have.  The joint/ligament issue paired with the muscle jumps, left arm jerks and left ear flutters ... and my severe pelvic organ prolapse....and you've got one body over here coming apart at the seams.  It all makes sense.  All my health issues over all these years finally make sense.

Thanks for letting me talk, y'all.

Now I have a question for you ladies.  If you had Lyme during pregnancy, did you have a particularly rough time of it?  Did you have rashes on your belly?  I'm not prone to rashes, but when I'm pregnant, I get a blotchy rash all over my belly.  The president of the GA Lyme Disease Association said pregnancy seems to cause bacteria flare-ups in some people, and that one of the symptoms was a tummy rash.  I gasped when she said that, because my doctors and midwives never had an answer.  They said it was heat rash, but I didn't believe it.  Were you unusually nauseated?  Did you have unusually severe postpartum depression?  Did it take forever for you to get to feeling normal again after a baby was born?


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Oh I had all of those symptoms.  (referring to the pregnancy stuff, which of course I'm joking!!)

Man Leanne, just man.  God has to be powerful in you.  Keeping you held together.  I just pray he keeps keeping you together and healing you.  He hears our prayers.  I know it.  

And yeah, that pain is probably your spleen.  Or kidney.  But I'm guessing it's your spleen.  The gal at my doctors office says that's what Lyme does. It could either be attacking it, or it just gets gummed up so bad because your body is trying to clear the dead stuff your body is killing, which is in large amounts.  Or something like that.  I remember one time I went into the ER with so much pain in my whole upper torso.  This was probably over 2 years ago.  Elizabeth can attest to this, the pain sort of went from my whole upper body and zero'd in on that left side.  AND, that left side of my back was hotter and redder than everywhere else while I was in the ER.  I bet my spleen was messed up bad that time.  They said it was fine, but my pain said differently.

Are kidney stones a sign of lyme?  Because I had a few of those and of course no one ever knows why with them.  Although that might have been something else my body brought to the party.  When I was a young man, I barely ever drank water and had an outside job, sweating all the time.  I drank lots of soda though, and I'm sure that could've done it.  And having Genetics that they lack glutathione doesn't help I'm sure.


The poster formerly known as "ABNOWAY"

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In the Under Our Skin documentary, I am like Dana....with pain, pain, relentless pain!!!  I have fatigue too, but I am in so much pain all the time.  One day, my ribs feel like someone is trying to break them in two, then the next day, I can hardly walk my knees and hips hurt so much.  There are days, I can't lay my head against my pillow because the nerves in my neck and back of my scull are so sensitive to pain.  I get leg pain that feels like someone is breaking my legs.  I don't know how I do this day in and day out.  I use pain meds sparingly when I just can't take it anymore.

I see my LLMD this Thursday.  He is one of the doctors featured in the documentary.  I am thinking about using the website Caring Bridge to document my treatment.
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I'm so sorry about your pain.  Is that the girl that toured with U2?  

Does anybody have the floating stool symptom?  I've been having it this year.  It might be linked to the fact that I stopped eating cultured vegetables and my gut flora just isn't working that well.  Or, some people say it's a sign of parasites.  But, it's been worse this year than I remember.  It will go away sometimes but it's been pretty consistent and I know it's a sign of something not completely right in the gut.  Which I already know is an issue, but this didn't used to happen.  So I'm not sure why it's doing it.  Thank God my bowels still seemed to moving at least.  I would hate them to be stopped up.  But yeah, I became really sensitive to anything cultured or fermented.  I can't decide if it's because they're killing stuff and it just makes me feel bad, which I know they can.  Or, if I have some kind of problem with fermented foods.  Somebody on here said people can have problem with high histamines, and fermented foods have lots of histamines.  Or something like that.  So I just quit them all together.  But I know at one time they had helped me a great deal.  But I just get this feeling I need to cleanse and support, instead of kill.  Except for the lyme stuff.  I'm killing that.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
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It seems that sometimes I am affected by the moon (new or full) but not always so I don't know if it's a coincidence. I am having a pretty bad day today. Last week was excellent (relatively). Babesia seems to run on a three week cycle with me.

I've never had a baby so I can't answer to the pregnancy questions.

JJR - Do you know what kind of kidney stones you have? Uric Acid type or other? I think Uric Acid type can be caused by soda.

I've never had the floating stool, but for a while it seemed like I had extremely heavy stool! Lead poop!   Maybe I was getting rid of metals?

Kim - I really related to Dana as well. So much pain! I was grateful for her story.

I'm also grateful for this thread. I belong to another group (Buhner Lyme group), but none of them eat this diet so it's easier for me here. It makes me feel so supported and not alone.

Thanks everyone!


"Anxiety is the gap between now and then"

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Kim
Monday, August 29, 2011, 9:19pm Report to Moderator Report to Moderator

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I belong to three other Lyme groups and the conversation always revolves around what the best diet is for someone fighting Lyme/coinfections.  I always provide the link to Dr. D.  
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JJR
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Another gal I know is fighting it and she was talking about the diet they told her to eat.  I should ask her what it is.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Monday, August 29, 2011, 10:35pm Report to Moderator Report to Moderator

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Quoted from JJR
Another gal I know is fighting it and she was talking about the diet they told her to eat.  I should ask her what it is.


Most talk about avoiding grains, dairy and sugars.  
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Ribbit
Tuesday, August 30, 2011, 2:29am Report to Moderator Report to Moderator

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Huh. The Lyme forums I've been on revolved solely around what antibiotics everybody was taking.  When I started talking alternative stuff, nobody was interested.     I quit posting on them.

I know you can't smear your entire body with BioFreeze, but I have found that 1. total avoidance of nightshade plants and 2. topical use of BioFreeze--has helped with my pain.  I don't have the stabbing pain I had last summer.  Every so often I'll have a "low" day, but it's nothing like it was.  I'm still disoriented and maybe I'm not doing as well as I think I am, but I'm not as bad as I was a year ago--that's all I can say.

Yes, JJ, God's not done with me yet.  I've got kids to raise.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Kim
Tuesday, August 30, 2011, 12:58pm Report to Moderator Report to Moderator

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There are a lot of people using just homeopathics for Lyme and then there are some like me that plan to use both fòr treatment.  I won't wait for just homeopathics to work when neurological issues are getting severe.  I plan to use both.  I will be starting with IV antibiotics and finishing up with homeopathics.  I have been sick a very long time and my husband is sick with Lyme too.

There is a good mix of both types of treatments on the groups I belong to.  We all respect what each person does for their treatment.  There is not a universal Lyme treatment.  Coinfections complicate everything.

I have used biofreeze before, but I would have to soak in it.  I have horrible muscle burning all the time.  
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nowishow
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Quoted from Kim
I belong to three other Lyme groups and the conversation always revolves around what the best diet is for someone fighting Lyme/coinfections.  I always provide the link to Dr. D.  


What groups do you belong to?


"Anxiety is the gap between now and then"

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JJR
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Quoted from Kim


Most talk about avoiding grains, dairy and sugars.  


Yeah, those are the hardest for people to give up I think.  This gal was a religious coke a day drinker and she actually gave it up.  I gotta check in with her.  

Ouch, my spleen is twinging as we speak.  Maybe it's getting cleaned out. I can only hope!!! Hehhehehe


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Tuesday, August 30, 2011, 10:37pm Report to Moderator Report to Moderator

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Quoted from nowishow


What groups do you belong to?


The one I help out on is lymenet.org.  I also belong to lymefriends.org which is not a very active site but still good for information.  The last one I read but really don't participate in is mdjunction.com. The information is okay but there can be some drama on that site.  

I stay mostly on lymenet.org which I think is the best one.  
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Ribbit
Wednesday, August 31, 2011, 2:29am Report to Moderator Report to Moderator

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JJ, I explained to Rob where my pain is in the mornings and he said that was my kidney area.  But it's not really inside me--it's a rib.  So I think that rib hurts because I have a couple of bulging discs and they're annoyed by me sleeping.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Yeah well, I mistook my kidney pain for the spleen for a long time.  Or, it may be both.  I have no clue what's hurting on you.  ABJoe says that's one of the main reasons he goes to the ND, to see what organ their machine says is struggling.  It's hard to tell.  Spleen, Kidney, Back, whatever it's all messed up.  I get the same thing too because I sit more than I should and I slouch.  I'm a sloucher and my lower back will sometimes get sore.  Monday was the first day in a while that I actually did some stretching in the morning!!  

So, I can't help you on what organ or part is hurting.  But I'm just saying it's possible it's your spleen.  It has to keep up with filtering the blood out.  For me as a Nomad, Dr.D talks about it being an issue also.  Along with the Kidneys as an Explorer.  Hehehehe  

Have you eaten any Watermelon or Asparagus lately?  Or dandelion greens or collard greens or something like that?  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Wednesday, August 31, 2011, 6:09pm Report to Moderator Report to Moderator

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Quoted from Kim


The one I help out on is lymenet.org.  I also belong to lymefriends.org which is not a very active site but still good for information.  The last one I read but really don't participate in is mdjunction.com. The information is okay but there can be some drama on that site.  

I stay mostly on lymenet.org which I think is the best one.  


Thanks Kim!  


"Anxiety is the gap between now and then"

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nowishow
Wednesday, August 31, 2011, 6:11pm Report to Moderator Report to Moderator

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Quoted from Ribbit
JJ, I explained to Rob where my pain is in the mornings and he said that was my kidney area.  But it's not really inside me--it's a rib.  So I think that rib hurts because I have a couple of bulging discs and they're annoyed by me sleeping.


It could be the cartlidge around the ribs. I have some rib pain as well and that's what my doctor said it was. But who knows...


"Anxiety is the gap between now and then"

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Kim
Wednesday, August 31, 2011, 11:04pm Report to Moderator Report to Moderator

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Tomorrow is my 3 hour appointment with my LLMD. I have waited two months for this.  I have to leave my house at 6 am to make it to DC for an 8:30 am appt.  Lots of traffic in the am in the DC area.  

If you have watched the documentary "Under Our Skin", you would have seen my LLMD speak in the documentary, he is Dr. Jemsek.  

Will post an update tomorrow afternoon.
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TJ
Thursday, September 1, 2011, 12:21am Report to Moderator Report to Moderator

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Quoted from Ribbit
I keep injuring my joints, and now I know why.  I complained to my chiropractor recently that my wrist hurt (the one that hasn't stopped tingling since my paralysis episode last summer), and he felt around...and then felt around my elbow and shoulder and knee and ankle (because I'd complained about them too) and he said, "The tendons around your joints are thin and not developed--they're child-sized.  It's almost like they didn't form completely."  I was so glad he said this to me because I always KNEW something was wrong, but no doctor/chiropractor had ever confirmed it!  I knew I always wore out too fast, had no endurance, and got hurt more than anybody else.  My mom made me wear high-top sneakers for years because my ankles were so weak I kept spraining them.  ...But my wrists are very small--5 1/2 inches around--and every joint in my body snaps and crunches.
Wow, I sure can identify with that.  Although I didn't sprain my ankle until I was 29 -- even though I rolled them often, they were so flexible, and my reactions to shift my weight away from that side, that they never sprained until I stepped on a rock while carrying a heavy toolbox.   I also feel like my muscles and joints aren't put together very sturdily.
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Ribbit
Thursday, September 1, 2011, 2:27am Report to Moderator Report to Moderator

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JJ, I juice dark green leafies nearly every day.  So I'm constantly doing stuff to help my liver.  I also do things that harm my liver, and I know that, but the things I do calm my nervous system in the evenings when I'm overworked, over-stressed and the children are cranky.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
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Quoted from Kim
Tomorrow is my 3 hour appointment with my LLMD. I have waited two months for this.  I have to leave my house at 6 am to make it to DC for an 8:30 am appt.  Lots of traffic in the am in the DC area.  

If you have watched the documentary "Under Our Skin", you would have seen my LLMD speak in the documentary, he is Dr. Jemsek.  

Will post an update tomorrow afternoon.


That is exciting for you.  I'll pray for a safe, quick and fulfilling journey.  Peace be with you.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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I need to start doing more of these "greens".  I have avoided them for a long time for some reason.  When I eat beets I feel awful, so I've always been shy of eating stuff that goes after your liver.   And when I had liver I felt awful too.  So, I'm shy of the foods that cleanse your liver.  I think I felt awful because it probably really needs to be cleaned out.  When I take betafood from standard process, ugh.  But I do take silymarin from time to time and it's good.  

How do you "hurt" your liver?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Friday, September 2, 2011, 12:11am Report to Moderator Report to Moderator

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Three hours for a doctor's appt is a long, long time.  I have multiple coinfections and severe neurologic problems.  Even though  I have to go up stairs several times a day for my dogs, I have so much muscle weakness in my legs.  It has been getting worse and the weakness showed up on the exam.  My reflexes were extremely slow.

Antibiotics will not start until late October.  My central nervous system is going nuts and I have lots of nerve pain.  We are adding a few supplements to my regimen and some medications to try and quiet the CNS before the antibiotics start.  Right now, my body can't handle the antibiotics yet.

They also said I need to finally get the bad gallbladder out.  It hasn't been working well and it is a source of inflammation.  I am supposed to see if my insurance will pay for a brain spect scan.  Cognitive function is at an  all time low and I panic when I am so forgetful.  

The  doctor also explained that there is no absolute way to know you got rid of the spirochetes totally.  These little critters can morph their dna and hide so well in the body.  Getting your immune system to recognize them and fend them off is the goal.  If I can get to remission, that is a good place.  It is just going to take some time.

As far as diet, I am on the best possible food  plan with swami.  The digestion problems are  going to get better with time as the lyme load goes down.  For now, I follow swami and make sure that I keep tract of any foods that bother me even  if they are a beneficial.
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Drea
Friday, September 2, 2011, 12:39am Report to Moderator Report to Moderator

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Well, even though the diagnosis isn't the best, at least you know where you stand (or sit ) and can move forward. You also have validation, which I find to be helpful.

I'm sending you some positive energy and a {{{{hug}}}}.


It is not my responsibility to convince anyone of anything.
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Ribbit
Friday, September 2, 2011, 1:16am Report to Moderator Report to Moderator

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Kim, I understand the neurological stuff.  I asked the chiropractor Wednesday if I could see my 8 y.o.'s latest x-rays to check the improvement on her scoliosis.  I didn't remember that I'd already seen them.  It makes me cry to realize that my memory is so horrible.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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JJ, I indulge in a glass or two of wine to calm my nervous system.  I know it destroys my liver.  But I struggle to function without it in the evenings cooking dinner with the insanely loud chaos that happens around here, particularly when Rob is traveling.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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ABJoe
Friday, September 2, 2011, 3:42am Report to Moderator Report to Moderator

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Quoted from JJR
I need to start doing more of these "greens".  I have avoided them for a long time for some reason.  When I eat beets I feel awful, so I've always been shy of eating stuff that goes after your liver.   And when I had liver I felt awful too.  So, I'm shy of the foods that cleanse your liver.  I think I felt awful because it probably really needs to be cleaned out.  When I take betafood from standard process, ugh.  But I do take silymarin from time to time and it's good.  

How do you "hurt" your liver?

You're just going to have to bite the bullet and get started.  You can start slow, but do it.  If the liver can't filter more junk out because it is too sluggish to get rid of it, you'll never feel better.

From all of the reading I've done, the liver gets sluggish from simply too much toxin.  It gets overloaded and starts storing the toxins, the more it stores, the less it can process...  Ugh...  Part of the task is to get / keep the gut operating properly and the rest is to clean out the liver / spleen / pancreas.

I think it all happens together slowly - with the body choosing where the focus should be at the time.


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Thank you for the kick in the butt Joe.  I will take it to heart.  I do take Silymarin, as I said, and I'm sure other foods may help.  But yeah, there are quite a few that are supposed to be good for your liver that really mess with me.  Or have.  I haven't really tried any of the greens, yet.  Well, not a lot of them.  I also drink Dandelion root tea regularly.  Once or twice a week.  



Kim, thank you for the update.  I'm so glad you're going to someone that knows how to treat it.  I will say this though, some Arthichoke Leaf Extract may be a good thing to try before removing your gall bladder.  My doctor thinks it is very effective at cleaning it out.  My leg muscles feel pretty weak at times also.  Every once in a while, my legs will feel like buckling.  But I don't feel like I have a problem getting up and down stairs too much.  Although I avoid my basement. More so because it just doesn't seem that clean down there and can mess with me.  We are working on that though.

Leanne, I'm sorry to hear about your memory stuff.  Maybe it will get better.  I wonder if there isn't some kind of food or supp that will help.  Like Cod Liver Oil or Lutein.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Friday, September 2, 2011, 4:14pm Report to Moderator Report to Moderator

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JJ, what brand of artichoke leaf extract do you use?  

I don't want to get my gallbladder out.  I think that the dieting I have done in the last 18 months has to do with some of the problem.  DH wants me to get it out, but I would try the artichoke leaf extract first.  
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Ribbit
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What?  Did somebody say something?


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from Ribbit
What?  Did somebody say something?


If you are referring to my post about my gallbladder...the doctor I saw yesterday said to get my gallbladder taken out because I was sensitive when she examined the upper right area under my ribs.  I had a hida scan 3 years ago and the ejection fraction was 26 when optimal is 32.  The GI doctor did not tell me to get it out, but with all the dieting I have done to get over 120 lbs off in the past 18 months, it does  act up sometimes when I eat too much fat.  It has been much, much better since starting GTD/Swami.  

I was told that about 70% of lyme patients have diseased gallbladders.  Seems that the spirochetes love to live there.  They said that it is more than likely causing a lot of inflammation and it will make treatment very difficult if my gallbladder is inflammed.  

I ordered some artichoke leaf extract and am going to try that for a while.    I don't want to get another hida scan.  Laying on the table for a 45 minute test was brutal on my back and neck.

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ABJoe
Friday, September 2, 2011, 7:40pm Report to Moderator Report to Moderator

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Quoted from Kim
If you are referring to my post about my gallbladder...the doctor I saw yesterday said to get my gallbladder taken out because I was sensitive when she examined the upper right area under my ribs.

Are red beets a beneficial food for you?  When I had gall bladder problems, they were recommended for me in large quantities (or take some concentrated beet in supplement form).  I still use them when I have pain...


RH-, ISTJ
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Kim
Friday, September 2, 2011, 8:47pm Report to Moderator Report to Moderator

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Quoted from ABJoe

Are red beets a beneficial food for you?  When I had gall bladder problems, they were recommended for me in large quantities (or take some concentrated beet in supplement form).  I still use them when I have pain...


Yes, beets are a diamond for me.  I eat them everydaý.  Never get tired of them.  Also, if I have pain, dandelion tea gets rid of it most of the time.  
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I didn't know beets would do your gallbladder too!  Cool.

My doctor has his own blend made up, but before that he used I think it was called Integrative theuraputics.  

http://shop.elementalshealthfood.com/SPD/artichoke-extract-120-caps---8542986641344659199.jsp

His prices are reasonable for his blends.  And they seem to do the same thing.


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Quoted from Lola
Dr Nash just posted this on FB
https://www.facebook.com/UNDEROURSKIN
I just finished watching it on Hulu.  More and more I am convinced that I have been dealing with chronic Lyme myself.  Me feeling better back when I was on the antibiotics, then feeling worse again off of them, makes good sense now in that context.
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It does make sense.   Maybe when you get the biofeedback done again you could ask them to check it out, eh?


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Tomorrow is my 3 hour appointment with my LLMD. I have waited two months for this.  I have to leave my house at 6 am to make it to DC for an 8:30 am appt.  Lots of traffic in the am in the DC area.  

If you have watched the documentary "Under Our Skin", you would have seen my LLMD speak in the documentary, he is Dr. Jemsek.  

Will post an update tomorrow afternoon.
So he is back in business?  Awesome!
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Quoted from JJR
It does make sense.   Maybe when you get the biofeedback done again you could ask them to check it out, eh?
I don't think she could check for specific diseases with her equipment.  It was just to look at body systems suffering from inflammation or degeneration.  Thankfully I had none of the latter going on!  I am going to start looking around for a practitioner that is Lyme-literate or at least open-minded to the idea of chronic Lyme disease.  I'd be surprised in my NP doesn't fall into one of those categories.

I sure am glad I've been taking Genoma Security.  It will be on my program for a long time to come.  I think I should go up to 3x per day instead of only twice as directed.
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You might be surprised what they can figure out with those things.  Plus, if there programs have a protocol for that "spirochete" or "babesia/maleria" or any other co infection, I bet it can see it.  But yes, typically they see what is on the top of your priority list.  But that doesn't mean that can't have a look see at other things.  Sometimes just thinking about it, brings it to the front.


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Tuesday, September 6, 2011, 2:39am Report to Moderator Report to Moderator

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Quoted from Ribbit
What?  Did somebody say something?


Just sort of making a joke about being so scatter-brained.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

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I caught it!  

How are you today?

It's been cooler up here and it seems like my body likes it.  


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Does anyone else get depressed? I get so depressed when I have my Babesia symptoms. I just cry and cry.  


"Anxiety is the gap between now and then"

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I'm sure it has affected my emotions.  But to be honest, I've always been sensitive.  I'm one of those types that'll cry at a hallmark commercial.  I think it's just all I've been through.  I also have struggled with temper forever.  I'm getting better though, praise God.  I actually get more irritated and short fused when I'm feeling better.  But maybe I've been dealing with this longer than I think and that's what makes me emotional.  I don't know.  

I'm sorry you're depressed.  A better day is coming!!!!!!!!!!!!!!!!!!!!!!!!!!!  What a difference a day makes!

I'm not skilled enough to know what type of bacteria is messing with me at present.  I just know I go up and down with fatigue.  Then during the herxing sessions, I feel awful.  Which, I think it will be time to start doing soon again.  For a while I've felt like just support and flush and no killing.  Except for the Homeopath.  But I think my body and mind is gearing up into killing mode.  I'm craving fatty meats, like lamb and whole turkeys or whatever.  And my body has been real calm the last couple of days.  Almost, too calm.


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Quoted from JJR
And my body has been real calm the last couple of days.  Almost, too calm.


That's usually when I have a big episode. It's like my body rests and doesn't fight the bugs for a while so I get a break. I start to feel normal again and then WHAMO   back to the wars!


"Anxiety is the gap between now and then"

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Well, I saw my ND yesterday and told her I was getting a little frustrated because I feel like I've plateaued in my healing.  I've never herxed from anything she gave me.  She grinned and said, "Oh, maybe you're ready for this--" and she held up a homeopathic remedy specifically for Lyme, not just to help my body get stronger.  Thus far, her philosophy (I gather) has sort of been to get the body strong and then it can fight the bacteria/viruses itself.  She said I wasn't strong enough for it before.  I guess I reached a point where I was getting antsy to ramp up the healing process.  Probably a good sign.  So now I'm beginning some new things and maybe I'll start healing again.

So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Quoted from Ribbit
So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.


That sucks! Do you know what made you sick?


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Quoted from Ribbit
I've never herxed from anything she gave me.  She grinned and said, "Oh, maybe you're ready for this--" and she held up a homeopathic remedy specifically for Lyme, not just to help my body get stronger.....

So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.
Wait, you hadn't even started the remedy yet???

After reading what other people describe as "herxing", I'm not sure I've done any of it lately.  Not that I'm complaining, mind you, but that seems like an important sign that the healing process is moving forward.  I haven't felt detox symptoms from taking Deflect, Genoma Security, or Rekon Pro.  Lately I haven't reacted to probiotics, either.

Keep us posted Ribbit!  I'm eager to hear how the homeopathy works.
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Quoted from Ribbit
So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.

I've had a similar reaction from just the practitioner's testing of the supplements.  I hope the real thing doesn't have this much effect, or you'll be taking a really low dose!


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OH MY LEANNE!  I was thinking the same thing Joe said.  I wonder if the testing of the supps didn't have something to do with you being sick.  That would seem almost too odd to me though.  Has anyone around you been sick?  It's possible I guess.  

Either way, my problem is I get paralysis of analysis.  There are supps I probably SHOULD take, but I don't want to because I don't want to herx. It just makes doing anything so much more difficult.  And there's always something going on that makes me say, it's not a good time.  I have yet to start taking teasel.  (red root tincture).  I think that's probably my next step.

I'll be saying a prayer for you Leanne.  And I think it sounds like you're in good hands with that ND.  What did she give you to kill the lyme?


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I'm pretty sure I had a stomach virus.  In fact, when I e-mailed the ND, she wrote back and said she had picked up on that, but evidently forgot to mention it to me.  So she knew before I did that I was getting sick.  lol  I don't know where I caught it, but we just spent the weekend around a bunch of people we don't usually  hang out with, and any of them could have just gotten over something.  Nobody else in the family has gotten it [yet].

I've been doing cat's claw for several months along with many homeopathic remedies to strengthen various organs and systems.  The new one she gave me is made by Mediral (which I'd never heard of) and here's what it's got in it:

Shujin chin
Angelica
Du Hua
Magnesia Phosphorica
Kali Muriaticum
Manganese
Yucca filamentosa
Cartilage
Hydrastis canadensis
Rhus-tox
Liver sarcode
ordius
Oxalicum
Acidum
Arnica montana
Lactodens mactans
Syphillinum


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

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Wow, that's quite the list!!!! I took cat's claw a long time ago from my chiro.  I hear it's potent.  

Yeah, picking up bugs is so easy when you got lyme.  At least for me it's been.  How are you today?  The kids and Elizabeth and I prayed for you at lunch time yesterday.



I think a big thing for me to do before I do too much killing is cleanse my liver some.  My son's school gave me an AHA moment and it showed me that my liver has been clogged up.  Along with ABJoe's recommendations to start eating foods that will help.  

Anyone else feel their liver is sluggish?  Among other things.  Hehehe.


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Thanks, JJ.  My stomach is still uneasy, but I've been eating.  The bruise from my broken toe has spread halfway up my foot and three toes over.  It's pretty crazy.  All I did is stump it on a bedpost.

That's just the list of stuff on the side of the bottle.  I'm taking about a dozen other supplements as well just to strengthen my body.

I don't know how to tell which organs are doing what.  I've learned to tell about my pancreas because I know what it feels like to have blood sugar swings.  Thanks to the GTD, I no longer have hypoglycemia though.  What does a sluggish liver feel like?  Every alternative practitioner I've ever seen told me I have pretty bad liver problems.  I have taken a variety of things over the years from dandelion tincture to red clover.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

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Quoted from Ribbit
Thanks, JJ.  My stomach is still uneasy, but I've been eating.  The bruise from my broken toe has spread halfway up my foot and three toes over.  It's pretty crazy.  All I did is stump it on a bedpost.

That's just the list of stuff on the side of the bottle.  I'm taking about a dozen other supplements as well just to strengthen my body.

I don't know how to tell which organs are doing what.  I've learned to tell about my pancreas because I know what it feels like to have blood sugar swings.  Thanks to the GTD, I no longer have hypoglycemia though.  What does a sluggish liver feel like?  Every alternative practitioner I've ever seen told me I have pretty bad liver problems.  I have taken a variety of things over the years from dandelion tincture to red clover.


Well, from what I've read, you can't really tell by feeling.  Meaning I guess it doesn't usually hurt.  I'm just looking at other symptoms.  But according to Donna Gates, you should be able to stick your fingers under your right rib up to your first knuckle.  When I read that, I was like WHA?.  But if it's puffy or large, you won't be able to do it.  I can't really tell if I can or not.  It seems not.  But it's kind of freaky to try.  Anyone else hear of that.  For me, it's been this whole thing about floating stools.  It's been bothering the heck out of me.  This is the first good bit that it's happened so much.  And then my Son's school work, as I was checking it yesterday, said the liver secretes bile.  Which of course I knew, but it said the bile helps break down fats in the digestive system.  That, I didn't know.  It was like a light bulb went off.  I was thinking, I bet it's not doing that very well.  So then I took some silymarin last night, and the next morning, it was beautiful, no floating stool.  Looked like it should, etc.  But that has been a rare thing.  I've been going regularly, which is good.  It's just not what it should be.  

So, I've concluded my liver needs a good cleansing.  Which, since I've been on this healing journey, it has always been a thing.  I think it's extra sluggish this year for some reason.  I think it's because I haven't been taking silymarin every day.  I do drink Dandelion root tea about once a week, but I don't think it's enough.  I gotta start eating more beets, liver, etc.  Try your "greens" as you say.  I've been eating  green apples pretty regularly, but I'm not sure they're a silver bullet.  I think lemons USED to help quite a bit, but that's another food that has not sit well with me lately.  Too many foods are doing that.


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Quoted from JJR
But according to Donna Gates, you should be able to stick your fingers under your right rib up to your first knuckle.
Check.

Quoted from JJR
For me, it's been this whole thing about floating stools.  It's been bothering the heck out of me.  This is the first good bit that it's happened so much.  And then my Son's school work, as I was checking it yesterday, said the liver secretes bile.  Which of course I knew, but it said the bile helps break down fats in the digestive system.  That, I didn't know.  It was like a light bulb went off.  I was thinking, I bet it's not doing that very well.  So then I took some silymarin last night, and the next morning, it was beautiful, no floating stool.  Looked like it should, etc.  But that has been a rare thing.  I've been going regularly, which is good.  It's just not what it should be.
Awesome!  I just noticed this week that mine haven't been floating, either.
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Quoted from Ribbit
What does a sluggish liver feel like?  Every alternative practitioner I've ever seen told me I have pretty bad liver problems.

I know that gall bladder problems are manifested by pain at the point where the right rib cage stops dropping from the sternum and mostly levels.  Bile duct blockage causes pain right at the bottom of the rib cage on the right side of the body (not front) - where a stitch would be if running.  Pain or discomfort along the bottom of the rib cage between those two points is supposedly attributable to the liver organ.

Many digestive problems can be attributed to improper regulation of bile into the digestive tract.


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I don't know why it's taken me so long to understand that.  Duh.  When I first starting visiting the doctor I go to now, I was always taking silymarin and artichoke.  But, I've laid off of it.  I am muscle testing very strongly for Betafood (standard process beet stuff).  And I need to start incorporating that.  I just know when I tried it a couple of years ago, I felt so awful, I stopped.  But, I've since learned how to take a little at at time, instead of a whole pill, and work up from there.  I think that's what I have to do.  Plus, start eating more of these foods that detox the liver.

TJ, does it happen frequently with you?


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My fingers go up under my ribcage on the side.  

I e-mailed my ND and told her I still felt sick and asked her if she thought maybe I was herxing and she called me within minutes and said, "Yes, sorry about that, I guess you need to take less of the new stuff."  So I'm backing off now.  She said it's not necessary to herx and that you can do things gently and you don't have to feel bad.  I can't believe I was that sick just from herxing!  I've herxed before (now that I think back), but it's been a long time, and both times were under the care of Dr. Garvy---http://www.sonridgehealthcenter.com/ ---first when he ran his magic machine on me (yeah, that's all he did), and the second time when he put me on what he called Viral Shock.  It was large doses of vitamin C, echinacea and L-Lysine.  I was supposed to do it several times a day every other day.  Well, the days I'd do it, I'd feel okay.  They in-between days I'd lay in bed trying not to throw up.  I'd be that sick!  After about two weeks I stopped it because I didn't think it was good for me to feel that way.  Now I know it was the BEST thing I could have done!  I'd never heard the word "herx" back then.  This was several years pre-BTD.

Anyway, my current ND agreed that it wasn't a stomach  virus and that what she was picking up on was just the regular old viral overload I always have.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

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Chloe, thanks for that link.  I will make sure I'm getting at least a clove of garlic a day, and I will add nettle tea to my diet as well.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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My herx reactions aren't usually vomiting.  I just get so inflammed, that it's hard to do anything.  Tired too.  Skin on fire feeling, heart rate goes up much higher than normal, just laying around.  Inflammation.  Etc.  Etc.  But I typically don't get puking episodes.  It was rare, even with a stomach bug, that I'd throw up.  I think it might've happened a few times.  

There's been times in the last two years that I've eaten something, that made me feel awful, and I'd try and stick my fingers halfway down my esophagus (exxageration, but I really got it in there) and I could not make myself puke.  It's like the flap is too tight or something.  


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Ribbit
Monday, September 12, 2011, 2:58am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 36
Well, nausea has been such a part of my life for so long, I don't know what it is to be without it.  I blame it on the Lyme.  It's just a matter of degrees.

When I'm sitting there with my head hanging over the potty and I just can't get it to come, I imagine raw red meat.  That always does the trick.  I discovered that when I was pregnant with #3.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
Monday, September 12, 2011, 3:11am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 36
BTW, TJ, you had asked me if I'd herxed just being treated, before I even took supplements.  She used the Indigo (a frequency reader and generator) to not only read what I was dealing with, but to treat me as well.  I took one dose of the recommended stuff that night, and within hours I had a nasty headache and was vomiting.  I'm still nauseated and it's 5 days later.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Monday, September 12, 2011, 4:01pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
Wow.  I'll be praying for you still.  But hopefully it's all a good thing.  Killing it.  Are you weak also?  I'm so sorry Leanne.  

Last night I woke up with the sweats while sleeping.  Hopefully that was a good thing.  I think it usually means my body is fighting something off.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Wednesday, September 14, 2011, 1:48am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
Quoted from Ribbit
BTW, TJ, you had asked me if I'd herxed just being treated, before I even took supplements.  She used the Indigo (a frequency reader and generator) to not only read what I was dealing with, but to treat me as well.  I took one dose of the recommended stuff that night, and within hours I had a nasty headache and was vomiting.  I'm still nauseated and it's 5 days later.
Ouch!

We had somebody speak in church about getting answers to prayers, and she shared her experience with fatigue, dizziness, and brain fog (among others) and how she finally got the Lyme diagnosis after getting the usual "it's all in your head" treatment.  Lyme in Utah?  Who knew???
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JJR
Wednesday, September 14, 2011, 2:59pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
I'm telling you, my motto is "2011, Year of the Lyme".


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Wednesday, September 14, 2011, 8:11pm Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
Posts: 702
Gender: Female
Location: CO
Age: 60
I just hope the word gets out about Lyme disease.  I think there are a lot of people with health issues that don't consider that a nymph tick can bite you and you may become infected with Lyme or coinfections.  After all a nymph tick is as small as the period at the end of this sentence.

I have been under the radar for a week.  Trying some different medications to get pain under control.  So far, two of the drugs caused reactions and I had to stop them.  On to the third try today with a different drug.  Burning muscle pain has been the worst along with joints hurting. Pain makes sleeping very difficult.  I am treating myself to an infrared sauna to help with detox and pain.  Can't wait to get it.

Saw my rheumatologist today and he said to keep my gallbladder in.  He thinks it is just fine.  I am going to have another HIDA scan to satisfy the Lyme doctor.  Once I got past dieting, no more gallbladder pain at all.  I can eat fat all day and I do not have any issues with it.  That is as long as it is good fats, like ghee, nuts, olive oil, etc.  Still maintaining my weight.
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JJR
Wednesday, September 14, 2011, 10:45pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
YEAH FOR NOT LOSING ANY BODY PARTS!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Thursday, September 15, 2011, 4:32pm Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
Posts: 702
Gender: Female
Location: CO
Age: 60
You may look upon me with sheer pity
Because my illness is something you don't get...
But as long as I am here- it is still quite clear
GOD is not finished with me yet....

You may look down on me
And think I have come to the end of my rope
But I will do what I can- and as long as I can stand
I will always have hope....

You look at me - but you can't see
What purpose for my illness there could be
Even if when you can't comprehend- On this I still depend
That God still has plans for me

I don't count me out - that is not what faith is about
Even when things you don't understand
Sometimes you just have to believe, though it's hard to conceive
That my GOD has a better plan

author unknown
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JJR
Thursday, September 15, 2011, 8:57pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
AMEN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Thank you for the poem!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Friday, September 16, 2011, 9:17pm Report to Moderator Report to Moderator

B+ 51% Swami Explorer - D'Adamo diet since 1999
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I've been using a cream for about a week, recommended by my doctor to help with lymph blockage. He thought I had a blockage up around my neck. So I tried the cream (it's homeopathic) and within minutes my sinuses started draining and within 30 minutes the pain in my shoulders decreased. I thought the intense pain I've been having in my shoulders (mostly the left side) for the past six weeks was due to Lyme, but after using this cream for a week now I see that it was due to a Lymph blockage. I guess it's still due to Lyme indirectly. I had tried the same formula only as the drops about six months ago and got no help, that I could tell. It seemed Red Root did a much better job for me. But I have to say the cream form is fantastic! At least for me   Here's a link to a site that has free shipping.

http://shop.lwtinternational.com/product_p/itires%20ointment.htm


"Anxiety is the gap between now and then"

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Kim
Saturday, September 17, 2011, 12:14pm Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
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Quoted from nowishow
I've been using a cream for about a week, recommended by my doctor to help with lymph blockage. He thought I had a blockage up around my neck. So I tried the cream (it's homeopathic) and within minutes my sinuses started draining and within 30 minutes the pain in my shoulders decreased. I thought the intense pain I've been having in my shoulders (mostly the left side) for the past six weeks was due to Lyme, but after using this cream for a week now I see that it was due to a Lymph blockage. I guess it's still due to Lyme indirectly. I had tried the same formula only as the drops about six months ago and got no help, that I could tell. It seemed Red Root did a much better job for me. But I have to say the cream form is fantastic! At least for me   Here's a link to a site that has free shipping.

http://shop.lwtinternational.com/product_p/itires%20ointment.htm


What are the directions for using this?  I read the write up on the product but didn't see specific directions for using it.
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JJR
Saturday, September 17, 2011, 4:33pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
Interesting!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Monday, September 19, 2011, 7:16pm Report to Moderator Report to Moderator

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Quoted from Kim


What are the directions for using this?  I read the write up on the product but didn't see specific directions for using it.


You rub it on the area of suspected blockage, twice a day. My doctor said I could rub it on 7-8 times a day if I liked. I had to cut back though it was draining things a little too fast and taxing the rest of my system. Areas on me that usually get blocked are: under my jaw (back by my ear), upper neck (next to the spine), around the collar bone on the left side, upper back (somewhat close to the spine), under my arms (close to my breast). These places get hard and swollen on me, so that would be something you could look for. The spleen area might be a great place too, if you have pain there. Lymph glands are all over the body and people have different places that gets blocked. I talked to a woman that has a spot near her knee that gives her trouble.

I hope this helps!


"Anxiety is the gap between now and then"

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nowishow
Tuesday, September 20, 2011, 10:49pm Report to Moderator Report to Moderator

B+ 51% Swami Explorer - D'Adamo diet since 1999
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Something you may want to print for family and friends...

"But You Don't LOOK Sick..."

10 Commandments for interacting with the chronically ill

In the realm of chronic illness, one of our more challenging tasks can be
gaining support from others. As if finding a knowledgeable and caring doctor
wasn't difficult enough, finding caring and supportive friends to surround
ourselves with can be even more difficult.

Most people are simply not capable of understanding, unless they have the
misfortune of a chronic illness of their own.

How many of us have heard something along the lines of "But you don't LOOK
sick...?" It makes one wonder how a sick person is "supposed" to look.

If one were to hobble around on crutches, would their illness suddenly
become more believable?

Our society understands the visible, physical manifestations of illness,
such as a broken bone in a cast or hair loss from chemotherapy.

What many fail to grasp is the subtle, invisible manifestations of chronic
illness.

Symptoms such as pain, severe fatigue, and cognitive impairments are not
easily visible to the average observer, which means that sufferers of
chronic illness often look "just fine".

Our society is all about instant results - the mindset that we can just pop
a magic pill and all our troubles will go away.

When sufferers of a chronic illness do not quickly "get better", we are
often treated as if it were somehow our own fault.

We may even be told that we are "hypochondriacs" or that "it's all in our
head".

Remember when you had the flu? You were exhausted, achy all over, and could
hardly get out of bed. But, fortunately, the illness passed and you were
back to your old self and usual activities.

Now, imagine if you had never recovered from that flu. Every day, you wake
up achingly sore and as tired as if you had not slept at all. Imagine trying
to go through your usual activities while feeling this way.

Not only do work, school, and regular tasks of daily living become
near-impossible, but so do the smaller day-to-day things that so many take
for granted, such as simply washing your hair or paying the bills.

It is stressful, it is exhausting, it is depressing... and yet the
chronically-ill person continues on in the face of it all.

For those of you who may have, at some point, been the perpetrator of an
otherwise well-intentioned comment, please understand that our illness is
just as real as that of an amputee or other "visible" illness.

To help aid those of you who wonder how to interact with a chronically ill
person, allow me to present the Ten Commandments.

1. Thou Shalt Not Imply That We Are Not Truly Ill.

You will not convince us otherwise with remarks such as, "You LOOK good," or
"But you don't LOOK sick." Even if you meant them as compliments, we
perceive those kind of statements as insults because they imply that you do
not believe us.

2. Thou Shalt Not Imply That The Illness Can Be Easily Fixed.

People with chronic illnesses are persistent, if nothing else. We hang on,
day after day.

We see countless doctors, take numerous medications, do endless research,
and continue hoping that the answer is just around the next corner.

So please do not insult us by delivering diagnoses, remedies, or comments
such as, "Why don't you just..." or "Have you tried..." or "You should...."

If it truly were that simple, I assure you that we would have done it
already. We are sick, not stupid.

3. Thou Shalt Not Imply That We Brought This On Ourselves.

We did not choose to become ill, just as we do not choose to stay ill.
Simply having a positive attitude is not going to solve our problem.

One would never imply that a quadriplegic chose such a trial for themselves,
or could get better "if they really wanted to". Please afford chronically
ill patients the same respect.

4. Thou Shalt Not Insult or Argue With Our Limitations or Behaviors.

If people with chronic illnesses push ourselves too hard, we can suffer
serious consequences. Most of us have developed coping mechanisms to help us
survive, and it is cruel to expect us to do more than we are able.

One chronically-ill woman I know was actually told, "I wish I could have the
luxury of sleeping all day."

Believe me, we would much rather be out working, playing, spending time with
loved ones, participating in normal activities.

"Sleeping all day" is not a luxury for us - it is a critical necessity, one
that we must take in order to protect whatever remaining health we have.

Perhaps it may help to think of it in terms of being one of the medications
we need to take.

If you wouldn't think of denying a diabetic their insulin, then don't think
of denying the sufferer of a chronic illness their critical need, whether it
is a mid-day nap, avoidance of certain foods or environmental factors, or
something else.

5. Thou Shalt Not Imply That You Can Relate To What We Are Going Through.

Unless you have a chronic illness of your own, you cannot possibly
understand just how much suffering is happening.

Of course you want to be compassionate and want to relate to people. But
when you try to do this by telling a chronically-ill person that you are
always tired too, it tends to make the person feel that you are minimizing
their suffering.

Try saying something more along the lines of, "This must be so hard for
you," or "I can't imagine what you're going through." It really does make a
difference to us.



"Anxiety is the gap between now and then"

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nowishow
Tuesday, September 20, 2011, 10:50pm Report to Moderator Report to Moderator

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continued...

6. Thou Shalt Be Mindful Of Other Family Members.

Chronic illness doesn't just affect the person who has it, but the whole
family as well. The trauma of the illness can evoke feelings of fear,
depression, anger, and helplessness in all family members.

The balance of family dynamics will most likely change, especially if it is
a parent who is ill.

The healthy spouse may end up taking on an overwhelming amount of
responsibility, and even children will likely be involved in helping care
for the ailing family member.

Please keep these others in your thoughts as well, and make an effort to
direct some special attention to them, without any mention of illness or
disability.

Individual family members adjust in different ways and at different paces.

All members might benefit from counseling to help handle the stress
involved, and each family member also needs to have time to pursue their own
individual interests.

External support from friends, neighbors, extended family, religious
institutions, and support groups may help ease some of the burden.

7. Thou Shalt Acknowledge Our Efforts and Celebrate Even Our Small Successes
With Us.

For the chronically ill, any day that we can accomplish a task, no matter
how small, is a "good" day!

Our lives are often measured in terms of doctor's visits and lab work, and
our "success" measured by a rise in Natural Killer cell counts in our blood,
or actually completing an entire load of laundry in just one day.

Please do not look at us as if we are joking when we share these celebratory
moments with you. Celebrate with us, be happy with us, and do not kill the
moment by announcing that you just completed the Ironman Triathlon in record
time.

8. Thou Shalt Offer Thy Specific Help.

There are so many ways to help -- the most difficult part is usually getting
a chronically-ill person to accept that help. They do not want to feel like
a "burden".

If you offer a vague, "Call me if I can help," the call will probably never
come.

But if you are sincere, consider extending offers of specific help, such as
a ride to a doctor's appointment, or picking up a few groceries or the dry
cleaning.

These activities can be done in a way that does not add any extra burden to
your own schedule. If you have to go to the grocery store for your own
family, it really isn't much extra work to grab an additional loaf of bread
and jug of milk.

If you have to swing by the post office, getting an extra roll of stamps or
mailing an additional package isn't much extra effort for you - but it can
save a chronically-ill individual a lot of time, energy, and exacerbation of
symptoms.

9. Thou Shalt Remember Important Events.

I'm not just talking about birthdays and Christmas.

A major doctor's appointment, lab test, or new medication are all important
events to the chronically-ill person.

Try to sincerely ask, "How was your appointment? How did the lab test go?
How's your new medication?" The chronically-ill person will appreciate that
you remembered, and that you cared enough to ask about it.

10. Thou Shalt Get To Know The Person Behind The Illness.

The illness may be a part of us, but it's not a part of who we ARE. We want
to be known as more than "that sick person".

You may discover that we have a wickedly funny sense of humor, a creative
imagination, musical talents, or any number of things that better describe
who we are, and what we would rather be remembered for.

(It makes for better gift ideas too -- rather than presenting us with yet
another self-help book on the power of positive thinking, now you can give
us a CD from our favorite singer or movie of our favorite actor instead.)

Most of all, please remember that the chronically-ill person is more than
worthy of love, friendship, and support.

Most chronically-ill people I know are the toughest nuts I have ever met.
Indeed, I have come to believe that a chronic illness is not for wimps -
rather, only the toughest of the tough can continually face the struggles of
life while battling a debilitating disease.

That kind of grit deserves nothing less than pure respect and admiration,
even from our toughest critic -- ourselves.

From: http://www.anapsid.org/cnd/coping/looksick.html


"Anxiety is the gap between now and then"

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JJR
Thursday, September 22, 2011, 12:13am Report to Moderator Report to Moderator

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Kyosha Nim
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Gender: Male
Location: Caledonia, WI
Age: 42
That was really good!!  Problem is, we need an abbreviated version for the people around us.  Because most people won't read all that.  I didn't even read every single word.  But it was a blessing.  


My spleen is acting up again and I feel that gummed up feeling at times.  I don't like that feeling at all.  My breathing gets a little heavy.  Yuck.  It's like a I need a good cleansing.  The Gal at my doctors office is saying I should get Oregon Grape root.  I probably said that already.  I didn't buy any yet.  

Anyone use that for lymph cleansing?



The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Friday, September 23, 2011, 12:26pm Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
Posts: 702
Gender: Female
Location: CO
Age: 60
If anyone is interested.....

Lyme Interview "LIVE" with Dr. Klinghardt - Holistic Lyme Doctor

Inviting all Patients and Practitioners:
Call in and listen!

Tuesday, Oct. 4th

5:00 pm PT
6:00 pm MT
7:00 pm Central
8:00 pm EST

Live questions and answers
with guest, Lyme Hope Advocate
Cheryl Young
Moderator: Dr. R
Spread the word, dont miss this one!

The Dr Klinghardt Academy is offering this event as support to all lyme patients and advocates with this special 1 1/2 hour time to listen and learn the latest treatments and practical guidelines for patients.

Practitioners, please offer this special "free event" to your patients who would like to be educated and cannot attend one of our conferences.

Dial-in Number: (712) 432-0900
Access Code: 964406
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JJR
Friday, September 23, 2011, 4:35pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
Thank you!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Saturday, September 24, 2011, 3:52pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
Do any of you have the changes in weather affect you?  It rained all last night and is supposed to be rainy for the next 4 days.  I woke up this morning feeling like I got hit by a mack truck.  I know the weather has a lot to do with it.  It seems like my body is at it's worst when the weather changes drastically.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Saturday, September 24, 2011, 7:34pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
It's probably a Nomad.

BTW, a Kenworth or International would probably hurt just as much.
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ABJoe
Saturday, September 24, 2011, 8:24pm Report to Moderator Report to Moderator

35% Nomad or Teacher - health history dependent
Sun Beh Nim
Moderator
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Location: Orange County, CA, USA
Age: 51
Quoted from JJR
Do any of you have the changes in weather affect you?

The only weather related issue that bothers me is heat.  It causes heavy detox, which causes the Mack Truck syndrome...  This summer seemed to be worse, probably because I was healing heavily in the cranial and spinal stem sections...  It seems like every nerve has been on red alert all summer.

Hope you feel better soon.  


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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TJ
Sunday, September 25, 2011, 12:52am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
Quoted from TJ
It's probably a Nomad.
Thing.  It's probably a Nomad thing.
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JJR
Sunday, September 25, 2011, 8:19pm Report to Moderator Report to Moderator

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Kyosha Nim
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Age: 42
Yes, the book does state that.  It's supposed to rain here for like 5 days.  I did feel better later in the day yesterday, but it also got sunny.  I think my thyroid slows down or whatever, in this dark, rainy weather.  My feet are FREEZING!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Tuesday, September 27, 2011, 7:08pm Report to Moderator Report to Moderator

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Ee Dan
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Just got back from a visit to our Lyme doctor.  They believe that my DH heart arrhythmia and other heart issues are lyme related.  he has to do B12 shots every week too.  

I am having a HIDA scan tomorrow to see how the gallbladder is doing.  No pain, so I expect the test result to be good.

Dr. Jemsek is amazing.  I am very lucky to have a doctor with so much lyme experience be in driving distance for me.
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nowishow
Tuesday, September 27, 2011, 10:02pm Report to Moderator Report to Moderator

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Quoted from Kim
They believe that my DH heart arrhythmia and other heart issues are lyme related.  he has to do B12 shots every week too.  



I have a lot of heart issues too. Does he have trouble laying flat? I have to sleep propped up or my heart starts beating hard and/or fast. It also feels like it vibrates.

I'm so happy you've got a great doctor. So many don't. I'm happy with mine, I feel very lucky.


"Anxiety is the gap between now and then"

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Ribbit
Wednesday, September 28, 2011, 3:01am Report to Moderator Report to Moderator

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Kyosha Nim
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I'm glad you get to see Dr. Jemsek, Kim.  I like what he has to say.

JJ, I chuckled when I read your post about weather changing.  I didn't put two and two together, but Rob did.  There was one day a few weeks ago that it was 80 degrees instead of 98, and I had on long jeans, a jacket and socks.  I was cold!  And then every time it rains, my entire body hurts.  I have to wrap up in extra clothes because I feel so cold even if it's not cold.  Rob pointed it out to me, that when it rains I hurt.  80 degrees is comfortable to me, but not when it's suddenly 80 after it's been close to 100.  It takes me a while to adjust to the changes in temperature.  I assume it's a thyroid thing, but maybe it's a Lyme thing.  Come to think of it, I've begun to blame my underactive thyroid (and underactive everything else) on the Lyme.  I see it all as symptoms now.

The opposite is true too.  In the spring, when the weather is suddenly 65 after it's been 30, I'm extremely hot.  It takes me a few weeks to adjust to the difference before I can feel comfortable.

The thermostat in the living room will stay the same, but suddenly I feel very different.  I don't know if it's pressure changes or humidity changes, but either way it bothers me a lot.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Wednesday, September 28, 2011, 4:41pm Report to Moderator Report to Moderator

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Kyosha Nim
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That's what happened to me this year Ribbit!!!!!!!!!!!!!!  As soon as we had the warm weather, I got hot and then it was like my body went into killing mode, and I felt awful.  But it wasn't doing a good job killing.  Etc.  I get the fevers in the afternoon in the summer more.  Two years now it's been like that.  And then yeah, when it rains I feel worse.  Or moreso just the change.  It's been raining for 5 days now.  And thank the LORD, I don't feel awful through the whole thing.  But that first morning, I thought somebody slapped me upside the head when I got up.  You know?

Now I show and Kim, I have heart issues.  An arrhythmia and then I was diagnosed with POTS.  POTS is a neurological problem that when changing positions, and what not, my vessels don't constrict properly.  Causing low BP.  And my BP is low all the time.  But that might be from adrenals.  And I get what's called an accelerated junctional rhythm.  I think it's a type of SVT.  Not A fib.  I haven't gotten it in a while, but I don't push myself.  Because it happens when my heart rate is high.  But yeah, I'm thinking it's from the lyme.  And lyme can go somewhere else.  Stupid junk.  Oh well.  All we can do is soldier on.  

Any of you get night sweats?  That's another neurological test I failed at mayo (I've probably said this, so sorry) but I don't sweat well.  But then at night, there are times I'll wake up and be soaking wet.  I think it's when I'm fighting something.  Because the other night I went to bed and my throat was starting to tickle.  Like I was getting a soar throat.  And I woke up that night all sweaty.  And I never really did get a soar throat.  Thank God again.  I think the homeopath I'm on is really helping.  Well, I know it's helping to some degree.  But my spleen still goes up and down with pain.  Some days are worse than others.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Wednesday, September 28, 2011, 5:23pm Report to Moderator Report to Moderator

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Ee Dan
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JJ   Sweats and chills are a symptom of coinfections.  I and my DH get them all the time.  

I am supposed to get a brain spect scan. Still trying to figure out codes to get the insurance to cover it. I had the HIDA scan this morning.  It is hard to lay still for 90 minutes.  Glad that is over.  
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JJR
Wednesday, September 28, 2011, 8:50pm Report to Moderator Report to Moderator

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Kyosha Nim
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Wow.  Let us know how it goes if you feel led to.  

Well, I would imagine it's my bodies defense.  But yeah, it might be fighting some kind of coinfection.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Wednesday, September 28, 2011, 8:51pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from TJ
It's probably a Nomad.

BTW, a Kenworth or International would probably hurt just as much.


And btw TJ, this made me laugh.  How about a Mitsubishi Fuso?  I drove one for a while at my cabinet installation job.  Not quite as heavy though.  hehehehe


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Thursday, September 29, 2011, 12:54am Report to Moderator Report to Moderator

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Kyosha Nim
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Last summer (when I was at my sickest) I was running low grade fevers nearly every afternoon.  I woke up every single night sweating.  I thought it was this silly early menopause thing until I read that it was a symptom of Lyme (or co-infections or whatever--I don't differentiate).  What I get now is waking up at night feeling like my whole body is trembling.  It's not, but it feels like it is.  I thought it might be a reaction to my liver processing my evening wine, but I went about two weeks without any wine just to experiment, and I still woke up feeling like that.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Thursday, September 29, 2011, 4:27pm Report to Moderator Report to Moderator

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Kyosha Nim
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Ugh.   That doesn't sound like fun.

I have entered into a detox session.  It's been a while, so I'm not surprised.  I don't like them at all though.  I feel like I just want to lay around.  

Here's the thing that is really frustrating.  These things always happen when I'm at the top of my game.  I had just started to feel like, wow, things are going pretty good.  And I swear, every time that thought enters my head, I get knocked down.  It's probably all part of the healing process though.  

My Doctor's assistant is telling me I really need to clean my lymph system out.  That's what she believes is my problem at this point.  I'm supposed to put some lemongrass oil on my lymphs today.  Inflammation isn't horrible right now, but it's there.  That's how I detox.  I get inflammed and then my heart rate goes up and I feel like all I should do is lay around.  Oh well.  I know I'm not the only one struggling.  What seemed to kick it off is I went down into my basement yesterday and got something.  And then came back up and I just didn't feel well.  I haven't gone up and down stairs too much lately.  And I avoid going down in my basement.  I just seems like the air quality isn't as good down there.  We've had it checked for mold and we got a clean bill of health for it, but it still always smells a little off.  I don't think this weather is helping any either.  It's been rainy and stormy for a week now.  Almost.  And that probably isn't good for mold in the air.  My son's asthma is kicking up too.  The leaves are falling.  I think it all coincides.  More toxins in the air, body feeling good, ready to do some cleansing.  Change in weather.  Etc etc.  But I was enjoying more energy and getting things done around here.  It's frustrating.

Does this happen to you guys?  When you feel like things are going really well, then it's like the hammer drops as soon as you think that?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Thursday, September 29, 2011, 5:01pm Report to Moderator Report to Moderator

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Kyosha Nim
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It used to be that way for me, but I've leveled off.  Managing energy, rather than time, has helped with the extremes of up and down.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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ABJoe
Thursday, September 29, 2011, 5:11pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
Here's the thing that is really frustrating.  These things always happen when I'm at the top of my game.  I had just started to feel like, wow, things are going pretty good.  And I swear, every time that thought enters my head, I get knocked down.  It's probably all part of the healing process though.

This is the way it always was for me when I was too weak to do continuous cleaning...  For about the last 3 or 4 months, I have just felt like doo most of the time, but the cleaning, etc. has been going at a faster rate and much more responsive to supplementation and diet.  I have finally gotten to a point of reasonable feedback times, meaning that I have an issue, add a food or supplement to aid and have it work and move on...  For a long time, it took a long time for the issue to resolve and for me to feel better - clear enough of the junk out from the last detox session, that I was ready for a new dose of garbage to be removed from storage into the bloodstream.  Exercise stimulates the detox sessions very well...

All I can say is continue fighting the fight, as long as you are detoxing and healing, you are moving forward, in spite of how it feels.


RH-, ISTJ
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Ribbit
Thursday, September 29, 2011, 5:18pm Report to Moderator Report to Moderator

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Kyosha Nim
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Joe, you are always so encouraging.  I'm glad you're a part of this group.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Thursday, September 29, 2011, 6:18pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yes, times 700 zillion.  I got tears in my eyes.  What a blessing.  Thank you Joe.  I'm trying to have joy in the midst of pain, and give my suffering to God.  In fact, I am memorizing a verse that says rejoice in our suffering.  Romans 5:3  "More than that, we rejoice in our suffering, knowing that suffering produces endurance, endurance produces character, and character produces hope.  And hope does not put us to shame, because God's love has been poured into our hearts......"   That's as far as I know.

Anways, Joe, your Character is so welcomed and your words bring me HOPE.  Along with God's love.  But I think God sends us people that help us.  I just hope I can turn around and help others too.  Thank you guys.  

I am doing a little better this morning than yesterday afternoon.  Hopefully it will taper off, as I was planning on going to a Wedding this Saturday.  When I enter into these detox sessions, it's always tentative because I don't know how long they'll last.  

Hey Joe, have you been eating lemons or drinking lemon water lately?  I have to try it again.  It was upsetting my stomach for a while.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Thursday, September 29, 2011, 8:17pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
Hopefully it will taper off, as I was planning on going to a Wedding this Saturday.  When I enter into these detox sessions, it's always tentative because I don't know how long they'll last.  

Hey Joe, have you been eating lemons or drinking lemon water lately?  I have to try it again.  It was upsetting my stomach for a while.

One problem I have is that I can work through any level of pain, if something is pressing enough.  It is just that my mood and temperament suffer some, but the adrenal glands really take a hit.  I have had to make a conscious effort to shut down when the body hurts, so it can catch up.

No, I haven't been taking any citrus during the summer.  Several reasons: 1) I have been focusing on the liver, where the malic acid in apple juice is helpful; 2) figs, watermelon and canteloupe have been in season and I was eating quite a few of them; 3) I ran out of frozen lime juice.


RH-, ISTJ
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JJR
Thursday, September 29, 2011, 9:31pm Report to Moderator Report to Moderator

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I should get some apple juice myself.  I ate an apple yesterday and wondering if it helped me kick into detox.  I've only been eating the green apples.  But I thought lemons help the liver detox also.  No?  Does watermelon help the liver?  I know it helps the kidneys.  Or I thought it did.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Mark
Thursday, September 29, 2011, 9:41pm Report to Moderator Report to Moderator

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There's a lot of marketing, but I hope some of you find benefit from listening to this interview.

http://www.thebestdayever.com/news/podcast/podcast-89-david-wolfe-and-truth-calkins/
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nowishow
Thursday, September 29, 2011, 11:07pm Report to Moderator Report to Moderator

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Quoted from JJR


Does this happen to you guys?  When you feel like things are going really well, then it's like the hammer drops as soon as you think that?


Absolutely! I'm pretty used to it by now. So when I feel good I try to get everything done that I haven't been able to do because I know pretty soon I'll be down again.  


"Anxiety is the gap between now and then"

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ABJoe
Thursday, September 29, 2011, 11:27pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
But I thought lemons help the liver detox also.  No?  Does watermelon help the liver?  I know it helps the kidneys.  Or I thought it did.  

It all helps...  Lemon / lime juice is good, but so is a variety.  My tangerines are just starting to ripen, so I'll be eating them for a while, as well...  

One of the issues I fight is keeping hydrated, even with all of the water, etc. I drink - it helps me to get a lot of vegetables / fruit / juice.  If I don't get enough melon juice, I run short of spinal fluid - and it feels / sounds really weird when there isn't enough.  It is like a swishing heartbeat but isn't the same beat or synchronized with the heartbeat...  


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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Chloe
Friday, September 30, 2011, 12:44am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Mark
There's a lot of marketing, but I hope some of you find benefit from listening to this interview.

http://www.thebestdayever.com/news/podcast/podcast-89-david-wolfe-and-truth-calkins/


Thanks so much for sharing this Mark....I learned a lot!



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Friday, September 30, 2011, 1:20am Report to Moderator Report to Moderator

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About the weather and temperature changes, I thought it was just a B thing for me.  Taking l-arginine certainly helps.  I hadn't considered the possibility that it was Lyme-related.

Quoted from JJR
Does this happen to you guys?  When you feel like things are going really well, then it's like the hammer drops as soon as you think that?
Quoted from Ribbit
It used to be that way for me, but I've leveled off.  Managing energy, rather than time, has helped with the extremes of up and down.
Totally, this is helping me, too.  My default is to have a "self-discipline" mindset: this is what I want to do, this is the schedule I'm going to follow, and I'm going to stick to it.  And I do, for a couple of weeks, until I burn out.

I caught myself this time.  I started going back to the gym.  I wanted to work myself up to Mon, Tues, Thurs, and Fri mornings.  I started at Mon, Wed, Fri.  The last two Wednesdays I got up feeling run-down.  I knew if I went to the gym it would be hard to get through work that day, so I just went out for a walk instead.  I'm getting the hang of energy management, and the fact that I've been working full-time for three months is evidence not only of my healing progress but of my growing ability to pace myself.  Still, it is nice when I don't have to pace myself so strictly.

Can I just say, Genoma Security FTW!  I can't put my finger on what it's doing, but it just feels right.  I'm learning more and more to just listen to and trust what my body is telling me, regardless of what seems logical.
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JJR
Friday, September 30, 2011, 3:47pm Report to Moderator Report to Moderator

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Well for me, there hasn't been a whole lot of energy to manage.  Spring was terrible.  I could barely do anything.  During the summer I got better though and what I do is keep the kitchen going, keeping up with the dishes and cooking.  And there wasn't a whole lot more after that.  I'd do some stretching when things were good.  Every other day I'd do some exercises.  I started to get to the point that I could go to the store, although I never did a long shopping session.  But about a week and a half ago I went to the supermarket with my daughter, went to my bank, and was looking for the magazine rack.  I was fine with that.  So I was starting to work back into some semblance of strength.  

Now, ugh.  I'm achey.  Right before I went to bed last night, I think something I ate didn't sit quite right and I felt like everything was all wrong.  But I think it's just a combination of this time of the year.  The leave are turning around us.  And my son's asthma is real bad.  That's usually when I feel pretty lousy too.

Leanne, I thought of something.  I wonder if you didn't get handed the lyme thing from your mother.  Didn't you say she feels awful every spring and fall?????  And we had a dry summer, well later in the summer, and that's when I felt the best also.  When things were real dry.  I think the rain is supposed to be done for us for now, but it rained for days, the leaves are turning, and fall is here.  It seems early too.  A good frost usually helps, but it could be a long time off.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, September 30, 2011, 4:07pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
Now, ugh.  I'm achey.  Right before I went to bed last night, I think something I ate didn't sit quite right and I felt like everything was all wrong.  But I think it's just a combination of this time of the year.  The leave are turning around us.  And my son's asthma is real bad.  That's usually when I feel pretty lousy too.

You may have a problem with more humidity, or there may be more fungi in the air to help dispose of all of the leaves, etc...  This along with the internal happenings is a heavier load...  Just keep working through it.  All of the elimination channels (lymph, liver, gut, kidneys) all have to be working together in balance to clean out all of the junk.  As long as you keep boosting the worst, pretty soon they will all be working, and you may not have much energy for a while.  Its OK.  Be patient and give the body time to heal.  With all of our pushing and frustration, we aren't going to speed it up any more...


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
Friday, September 30, 2011, 6:08pm Report to Moderator Report to Moderator

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Thank you Joe.  Yeah, that's how I understand it too.  It does seem like the more humidity, the worse things are.  Which is probably mold and what not.  My legs have been aching ever since that day I went up and down the stairs.  Which is strange because it hasn't been like that the other times I went up and down the stairs.  Plus my back is achey and my head.  So, I think it's like you said, overloaded with other junk.  It's what happened last year too.  I used to love this time of year.  Although I do remember getting "colds" quite a bit in fall.  Ones that would last a long time.  I remember one year, this is a long time ago before all of my problems, I pretty much lost my voice.  

My Dad thinks he's been fighting a cold, but him too, every year it's the same at the change of seasons.  He's hacking and has excess junk.  I'm sure there is much about this in the DNA.  He doesn't seem to struggle as much as I do, but I don't think he has lyme's disease either.  And mine isn't congestion, as much.  There is some, but it seems more internal.  

Have your seasons started to change out there yet?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, September 30, 2011, 6:31pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
Have your seasons started to change out there yet?

What?  In sunny So. CA? Our season is sunny and warm, with a little marine layer...  What time the marine layer burns off is the biggest question we have, except when the wind turns around and blows from the East, blowing all of the hot desert air over us beach dwellers...   

Ok, enough of the humor...
The change is much more subtle here, but we did notice a bit of chill in the air for two nights.  I took that as a cue to cover the attic vent for the winter, but then this week is rather warm again...  It rarely freezes at our house, so I usually have citrus fruit fresh on the tree until late January (or later, depending on how much theft and how large the crop was initially).


RH-, ISTJ
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Chloe
Friday, September 30, 2011, 6:53pm Report to Moderator Report to Moderator

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I don't do well in humid weather either and it can be fungal... but my traditionally trained Chinese Acupuncturist called it a "damp" condition.  Sometimes you need to eat differently if dampness is problematic.  THis might
resonate (or not).  Just thought I'd share it.

http://www.amazinghealing.com/aiyana.php?nav=5&article_id=13

Sometimes when my body is achy, I'm not drinking enough water to get rid of toxicity.

You might want to try drinking more fluids today.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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nowishow
Friday, September 30, 2011, 6:56pm Report to Moderator Report to Moderator

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Quoted from ABJoe

If I don't get enough melon juice, I run short of spinal fluid - and it feels / sounds really weird when there isn't enough.  It is like a swishing heartbeat but isn't the same beat or synchronized with the heartbeat...  


This fascinates me, can you tell me more about this? I've never heard/felt anything like that and I'm quite sensitive.


"Anxiety is the gap between now and then"

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nowishow
Friday, September 30, 2011, 8:42pm Report to Moderator Report to Moderator

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Quoted from Chloe
I don't do well in humid weather either and it can be fungal... but my traditionally trained Chinese Acupuncturist called it a "damp" condition.  Sometimes you need to eat differently if dampness is problematic.  THis might
resonate (or not).  Just thought I'd share it.

http://www.amazinghealing.com/aiyana.php?nav=5&article_id=13



Thanks I enjoyed this  


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JJR
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Yeah, me too.  I too have been feeling like I need to eat more warmed foods lately.  I typically eat a salad every day, but I think I'm going to stop that.  Or at least put hot stuff over the leaves.  Most of the time, when I eat a salad, everything is cold on it.  Canned meat, some frozen peas maybe.  I need to start cooking the stuff that goes on it, that might help.  I do think the lettuce is good for me, to keep things moving.  

But this is a very good thing that you gave us Chloe.  I eat some of those foods on the warming list.  But you know, last night, I ate a few roasted peanuts before bed, and I swear they made me feel lousy.  And this explains maybe why.  I'm pretty sure I have this condition, as I'm not active.  I used to be more active, but since last fall, it's been tough.  I go up and down with it.  Last winter I was getting more active, feeling well, and then the weather change in spring knocked me down.  And then vice versa obviously.  I've said that a million times.  

But this may help me while I'm getting back up again!


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"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Quoted from nowishow
This fascinates me, can you tell me more about this? I've never heard/felt anything like that and I'm quite sensitive.

I can't tell you much more...  My practitioner told me one day that I was somewhat dehydrated of spinal fluid.  The sensation I described above is the best I can put it...  I described it to the practitioner and she agreed that it was about how it is.  She said she has been in the same condition several times...  She told me that I needed to re-hydrate and the best way was to eat fruit or drink the juice.



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Chloe
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Quoted from ABJoe

I can't tell you much more...  My practitioner told me one day that I was somewhat dehydrated of spinal fluid.  The sensation I described above is the best I can put it...  I described it to the practitioner and she agreed that it was about how it is.  She said she has been in the same condition several times...  She told me that I needed to re-hydrate and the best way was to eat fruit or drink the juice.



I thought this was interesting....regarding hydration

http://www.dailymail.co.uk/health/article-1200531/The-vegetables-hydrate-glass-water.html



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Quoted from Chloe

Thanks for posting that link, although I've read that article before...  It is basically why I vary the fruits, vegetables / juices that I get...  I get a variety of nutrients plus the hydrating effects.


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Kim
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I got the results of my HIDA scan for my gallbladder.  Ejection fraction went from 26% to 5% in the past three years.  So, it is obvious my gallbladder is diseased.  

Most of the females on my mother's side have had theirs out, but my doctor said that about 70% of lyme patients lose their gallbladder to the sprirochetes.  

I am calling a general surgeon on Monday and scheduling it to be taken out laparoscopically.  

My DH will take care of me after the surgery, but I am going to starve, because he can't cook.  Hopefully this will not require a night in the hospital.  There isn't anything there I can eat for sure!
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deblynn3
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Quoted from Kim
I got the results of my HIDA scan for my gallbladder.  Ejection fraction went from 26% to 5% in the past three years.  So, it is obvious my gallbladder is diseased.  

Most of the females on my mother's side have had theirs out, but my doctor said that about 70% of lyme patients lose their gallbladder to the sprirochetes.  

I am calling a general surgeon on Monday and scheduling it to be taken out laparoscopically.  

My DH will take care of me after the surgery, but I am going to starve, because he can't cook.  Hopefully this will not require a night in the hospital.  There isn't anything there I can eat for sure!


Best wishes, Hope all go well.
just a thought but maybe you might what to look into the protocol for surgery, etc. You might already have. I just wanted to remind you while you have a little time to build up your body.


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Chloe
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KIm, I'm sorry to hear you require gall bladder surgery.   Perhaps cook and freeze some dinners for
when your DH will be caring for you...All he'd have to do is reheat.

Wishing you best of luck...and better health


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Ugh.  I'm sorry to hear this.  Did you try the artichoke?

If it makes you feel any better, I'm feeling lousy today.  My BP was super low this morning and I was all tingly and weird feeling.  I thought I was on the verge of passing out.  And my wife was going to a wedding and I told her to come back.  Poor thing.  So we ran to the store and got some good new zealand lamb to see if that would help.  I'm pretty sure it did, but now I feel the opposite.  I'm achey and almost feel like I'm getting feverish.  It did raise my BP quite a bit though.  

When I get like this, I get like, ugh, what else to I need to do, I get antsy.  Like I'm not doing enough, not trying hard enough.  Not going to the right doctors.  I hate this body, well, I hate what this bacteria, or whatever you want to call it, has done to my body.  

But, to every downside there is an upside.  I like where I am spiritually.  I keep getting closer to God.  Something like this will do that to you.  And in the end, it's all up to him as to what he wants to do with me.  It's finding that balance of my input and his provision that I struggle with.  And being peaceful during the storm.  And then there's the whole thing about if I get bad enough, going to the hospital is futile.  They don't know Jack.  So, it's good to go if you feel like something is on the verge of failure or something, but the only thing they're good for is to tell you you're not dieing.  I suppose.  Well, they're good for more than that, but you get what I mean.  Anyways.  

I'll pray for all of our strength.


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Kim
Sunday, October 2, 2011, 6:36pm Report to Moderator Report to Moderator

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I am doing the artichoke but I am not in pain.  A low ejection fraction like that suggests that the gallbladder isn't squeezing and emptying properly.  The Gastro doctor said that HIDA scans are controversial.  She can see someone like me with a 5% ejection fraction with no symptoms, and have someone else with a higher ejection fraction near normal with all kinds of pain.

My DH wants me to wait and speak to my Lyme doctor before scheduling surgery. I am going to call my ND tomorrow for his opinion on it.
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Yeah, I'd definitely get another opinion before removing anything.  It is my opinion that the body is an amazing resilient piece of work.  What percentage may be now, might not necessarily constitute what it could be in the future.  Damage is not always final or reversible.  In my humble opinion.  But, having said that, I don't have anything to back that up scientifically.  And it's a hope that I myself probably question at times.  But really have no clue.  Yet, it's ultimately how I feel.  


The poster formerly known as "ABNOWAY"

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Quoted from JJR
It is my opinion that the body is an amazing resilient piece of work.


My opinion too.



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ABJoe
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Quoted from JJR
Yeah, I'd definitely get another opinion before removing anything.  It is my opinion that the body is an amazing resilient piece of work.  What percentage may be now, might not necessarily constitute what it could be in the future.  Damage is not always final or reversible.

I'm definitely not for removing the gall bladder.  I've seen how it messes up the digestion process to be without it.  I think it would have to be ruptured for me to authorize removal because as long as it is in, the body has the opportunity to heal it.  

Surgery is going to be one more thing to have to heal from, along with any toxins - anesthetics, IV avoids, etc. introduced during prep or the surgery / recovery...


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I should've said, "irreversible".  I was thinking exactly what Joe said.  It would have to be exploded or something and detrimental to my life if I left it in.  But I would think any function is better than none.


The poster formerly known as "ABNOWAY"

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Kim
Monday, October 3, 2011, 7:24pm Report to Moderator Report to Moderator

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It isn't that cut and dry when you have Lyme disease.  If the gallbladder has lots of inflammation, it adds to the immune system problems and makes Lyme treatment extremely difficult.  

Testing, can show stones, blockages, sometimes thickening, but it doesn't always show sludge or disease.  Some people with really diseased gallbladders don't even have symptoms.  Leaving a diseased organ in your body can't be good either.  

The spirochetes get in there, and I am told that it is difficult for antibiotics to penetrate the gallbladder.  

I have had a fair amount of gallbladder pain in the past 4 years.  Since using swami, it has only happened once.  I don't have pain now, but that doesn't mean that my gallbladder isn't diseased.  If it isn't squeezing to realease bile as I eat, then it isn't doing a lot for digestion either.  The question is, will I be worse off without it.  Not everyone feels better after they have their gallbladder out.
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Quoted from Kim
The question is, will I be worse off without it.

This is something that you never will know.  My tendency is to keep it if it is functioning at all, understanding that it may or may not delay healing of the rest of the body...
  
If you take it out, you won't know if it might have healed.  Only you will know if you feel better with it out, but won't be able to tell until you have healed from the surgery.

If you leave it in and go through some time and it still doesn't get any better, you can still make the decision to get it removed, but you won't know if it slowed healing progress during that time.

If you leave it in and it heals along with the rest of the body, then you will be thankful that it is there - although again, you won't know if it shortened or extended the healing time or by how much...

The best you can do is make a decision based on the input you have and move forward.  I wish you the best no matter what you decide to do because it is your decision, not mine.


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Kim, from what I understand, and you can correct me if I'm wrong, the spirochetes can get into any organ.  Your Brain, liver, spleen, heart, etc etc.  Yet, I don't think I'd want to remove my liver, just because I knew it wasn't functioning as well as it could be without the spirochetes wreaking havoc.  That's just my simple mind working.  I realize that people live without their gallbladder, but I would be concerned as to how, and how well.  A gal in our church has hers removed, and I don't think it has hurt her severely.  But I think she is much more sensitive to foods now.  Which, doesn't seem like all that terrible to me, because I already am.  But, she doesn't have any other huge problems that I know of.  She is overweight, but I'm not sure if that's a symptom of having your gallbladder out or not.  That's the only person I know with theirs gone.

I just think it has a chance to turn itself around.  That's my point.  But I'm not a doctor, and I could be wrong.


The poster formerly known as "ABNOWAY"

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Chloe, have you used those?

I don't know if I ever heard your story Chloe.  Leanne told me you were the one that encouraged her to look into this lyme thing more.  And she encouraged me more.  So, I'm grateful to you.  

Is there anything that you did that made significant impacts in killing this, off the top of your head?  Or are they too numerous too mention?  Maybe some of both.  I apologize if I'd be making you repeat yourself.  This thread is long enough that I don't remember what you all said.  Or if you did say a lot, what page was it?  Have you blogged about your experience?


The poster formerly known as "ABNOWAY"

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Ribbit
Wednesday, October 5, 2011, 6:03pm Report to Moderator Report to Moderator

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She wrote about it some on my old thread about my ER trip, which is where I became convinced that's what I had.  And evidently we'd talked about it before, but I couldn't remember it because, well, that's the nature of the beast.

I have a question about healing crises.  Joe--this one's for you.  I've been eating at least one large clove of raw garlic a day.  My stomach hurts for a couple of hours after I eat it.  My tendency would be to avoid raw garlic.  But maybe, just maybe, it's actually doing me some good and I should keep it up.  I guess I've learned over the years to avoid anything that causes pain (emotional or physical), but if it kills something bad in my body, I'm willing to keep it up.  Would you call a stomach ache from garlic a healing crisis?

I also have another thought.  I had thought that every time my skin gets really bad it must be because I ate something wrong or I'm having a flare-up of some sort.  It's taken several years to notice patterns, but what I'm seeing is there are several things that go hand in hand for me: depression, migraine, paranoia, bloating, brain fog and skin boils.  I'm still having these problems occasionally despite my extreme avoidance of nightshade plants which I know for a fact cause it.  I noticed after this last episode that when things started clearing up, I started feeling really good!  I'm able to think clearly and calmly and I'm even cleaning out my closet/bedroom because it's needed it for a long time.  I tend to wonder around in circles, not being able to put a finger on the reasons for my frustrations, and now I can see it all clearly.  I haven't organized efficiently because I haven't had time or energy, and I couldn't even think well enough to see it before.  I don't know how long it'll last. I unloaded on JJ the other night on the phone and really it was just a last straw---I felt like the whole world was crumbling around me.  Now I feel much better and my skin is clearing back up and my face isn't puffy like it's been for a couple of weeks.  It's always associated with a migraine.....Like I almost *needed* to get sick so I could feel better.  Does that make any sense?  Kind of like when I run a fever.  It's rare I run one, because my body temp is low.  But when I can manage to get a little one, I feel so good afterwords!  It burns off all sorts of junk I've accumulated.  I guess I'm beginning to see times of bottoming out as healing rather than getting worse.  My neighbor, who is unofficially counseling me, asked me last week if my skin breaks out when I'm emotionally upset.  It had never occurred to me because I squash emotions partly because I don't know how to deal with them and partly because I don't have the time or the patience to sort through stuff.  But he'd asked me some questions that provoked me to look through a box of stuff I'd stashed away ten years ago, and just being reminded about things (or accidentally reading stuff that I'd never read in the first place--stressful e-mails I'd printed but not read)...it made me feel for the rest of the day like I was going to throw up and I was having trouble even talking to him (the neighbor).  Couldn't complete sentences and all that.  But his question about my skin breaking out when I'm emotionally stressed made me start wondering if it's all tied up together.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Kim
Wednesday, October 5, 2011, 6:58pm Report to Moderator Report to Moderator

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Quoted from JJR
Kim, from what I understand, and you can correct me if I'm wrong, the spirochetes can get into any organ.  Your Brain, liver, spleen, heart, etc etc.  Yet, I don't think I'd want to remove my liver, just because I knew it wasn't functioning as well as it could be without the spirochetes wreaking havoc.  

I just think it has a chance to turn itself around.  That's my point.  But I'm not a doctor, and I could be wrong.


The spirochetes can get into any organ but they are extremely difficult to treat in the gallbladder.  For some reason, the drugs don't penetrate that organ well and that is why many, many lyme patients lose their gallbladder.  Some people do fine when having it out, but others have a problem with diarrhea when they eat any fats and the urgency can be immediate.

I am hanging onto my gallbladder until my next appt on the 25th and then will see if I can duke it out with the lyme doctor.  

I would probably be in pain if not for swami.  I can eat fat all day with no pain.  

I am going to check out some of the links Chloe posted.
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Ribbit
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I have a question about fats.  I don't have diarrhea from eating fats, but I'm becoming convinced that animal fat (with the exception of ghee) causes my skin to be excessively oily.  I've quit eating meat except the occasional fish and very occasional bite of turkey.  Oven roasted I can handle (I eat it maybe once a month).  Ground turkey I cannot, perhaps because when it's roasted the fat drips out for the most part.  Is the inability to process fat (so it comes out my skin) caused by a gallbladder problem?  Again, fat doesn't affect my digestive system.  (I also avoid meat because it causes my digestive system to grind to a screeching halt, but that's because I have pretty severe pelvic organ prolapse....possibly because of Lyme, since my connective tissues are weak.)


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Ribbit
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I have one more thing to add to the post about my skin break-outs.

My husband reminded me that I'd thought garlic and  onions used to be a problem for me.  He said I used to complain that, eaten raw, they made my skin smell like sulfur.  In fact, I'd quit eating both of them for a period of several months (a few years ago) because I started wondering if they were causing my skin to break out too.

So he said, "When did you get this last break-out?" (He's been out of town.)  "About four days ago," I answered.  "How long have you been doing this raw-clove-of-garlic-a-day thing?" he asked.  "Less than a week?  Maybe about a week?" I answered.

That leads me to another thought then.  Maybe raw garlic does cause skin issues--but maybe that's a good thing!  Maybe it's cleaning out something inside that shouldn't be there, causing it to die off and come through my skin.

Here's something else to make you wrinkle your brow:  I've written before about how when I go through a detox session (aka herx), a mole or two on my right arm will bubble up, itch, turn into a scab, flake off and leave a scar.  One ND I saw, when this happened, said, "Yes, many  moles are viral, just like warts.  If you kill the viruses, they can go away."  So every couple of years without warning, a mole on my right arm will do it again. I have little scars up and down my right arm that have gone through that process.  Cool, huh?  I'd never heard of anybody losing a mole because they detoxed.  So anyway, with this skin break-out this past week, a big mole on the back of my left arm, that's been there for as long as I can remember, bubbled up and today a patch scratched off.  Underneath is new, clean, pink skin.  Yes, folks, I'm not going to think of skin break-outs as bad and "sick" anymore.  I'm going to start thinking of them as my body cleaning itself out of viruses and bacteria that it can't get rid of any other way.  This is the first time I've lost one on my left arm.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Kim, I think it's good to ask the lyme doctor what he thinks about it.  

Ribbit, I'm thankful that I could be there for you.  God is good and I was blessed by the conversation.  There is a lot in your question, and I'll leave Joe to answer his wisdom.  All I wanted to add was I always feel better the next day after having a fever, and secondly, I am tromping through the emotional also.  I do it a little here and there, reading things, etc, trying to uncover past hurts, or whatever.  I know there is a component, as I struggle with fear.  But then again, being really sick can make you fearful, no matter who you are.  Of course I notice that some people are more prone to it than others.  But I know I had a hard childhood, with my Dad being an alcoholic and what not.  But I'm thinking nobodies childhood was a walk in the park.  But maybe some people were more blessed and cared for than others?  I don't know.


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Wow, on the mole thing.  I had no clue!!!  I have a few that I'd like to see fall off.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
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Quoted from Ribbit
I have a question about fats.  I don't have diarrhea from eating fats, but I'm becoming convinced that animal fat (with the exception of ghee) causes my skin to be excessively oily.  I've quit eating meat except the occasional fish and very occasional bite of turkey.  Oven roasted I can handle (I eat it maybe once a month).  Ground turkey I cannot, perhaps because when it's roasted the fat drips out for the most part.  Is the inability to process fat (so it comes out my skin) caused by a gallbladder problem?  Again, fat doesn't affect my digestive system.

Several things:
1) Ground turkey meat will cause more issues because the fat is all mixed with the muscle tissues.  Whole parts have the fat around the edges, etc., so it separates out easier during cooking...

2) Fat digestion is aided by the bile, so it is possible that the gall bladder could be the problem, although I would think, the liver is more at fault if you aren't having pain at the point where the bottom of the right ribcage turns sideways after going down from the sternum.  

I am detoxing some beef and pork fat and getting the oily skin syndrome.  My liver is working better due to healing I have been doing, but I think there is just so much healing happening that the body is using all of its resources...  I have also been detoxing small hard chunks through the skin.  I don't know what it is, but I'm glad it is leaving.

I have also not been eating much red meat or poultry.  The body just hasn't wanted it...  Fish, eggs, beans and nuts have been the majority of my protein for several months, although I still eat about 2 meals of liver each week...  



RH-, ISTJ
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JJR
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It's funny, because I feel the opposite lately.  I have not eaten very much red meat over the last 5 years, that now I'm craving it big time.  And it seems to be helping.  Which I would think it would make my liver sluggish too.  I'm not entirely CERTAIN that it's helping.  But I always seem to feel better after eating it.  Especially lamb.  But venison too.  Beef seems like I could take it or leave it.  But it doesn't seem bad.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Thursday, October 6, 2011, 4:49pm Report to Moderator Report to Moderator

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I would like to know if Dr D ever dealt with this as a whole or in part..

This is a more devastating illness then all else.. and just antibiotics will only do little..

http://www.underourskin.com/

addresses only half the equation.. we need to see this in order to  even come close to understanding any of its effects on the person living with Lyme.. whether inherited in utero or from a sting..

I would be pleased if someone knows where I can find his views.. THANKS..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Tom Martens
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Kim
Thursday, October 6, 2011, 5:44pm Report to Moderator Report to Moderator

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One thing for sure is that there is no one size fits all protocol for Lyme disease treatment.

Each individual has coinfections that can change treatment, along with the length of time the individual has been infected.  

Any LLMD I have spoken to will tell you they change treatment protocols all the time based on individual needs and all say that the best you can hope for is remission.  


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Goldie
Thursday, October 6, 2011, 6:44pm Report to Moderator Report to Moderator

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Yes .. the post above is so correct.. The movie shows only smidgens of hardship.. like hospitalizations ending up in a mental ward, and getting treatment accordingly..

the silence of the voice so similar in autistics.. to where the adult can hear but not respond..

what of kids? that don't even have a clue?

I feel I, feel so for all and wish more would learn.. to recognize the multiple symptoms... We all might depend on it for sanity...  and comprehension what this is all about.. Ignoring any aspects nor the available info is not enough..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Lola
Thursday, October 6, 2011, 6:59pm Report to Moderator Report to Moderator

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Quoted Text
She incorporates the best of naturopathic medicine with traditional medicine when treating Lyme disease and the potentially devastating effects of this endemic problem in Connecticut.

http://www.dadamo.com/clinic/gn.htm


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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JJR
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Thank you for the link Lola.  

Interesting enough, I was going through my Louis Hays books and she didn't have anything on Lyme's either.  It's a cover up reaching even Louis???  Just kidding.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Thursday, October 6, 2011, 9:25pm Report to Moderator Report to Moderator

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Ok lets say there are many topics to be covered.. so can I ask about written stuff on one topic at a time..

Once Lyme infected:  what makes them become a person that eventually develops accumulations of all kinds of bugs, worms and the like.  How would one get rid of lets say:  Ringworms, tapeworm, hookworms and their larvae? can that ever be done?

or: how would a person effectively test for such? can they be eliminated from all over the body or only the intestines, ever? or do they hide to well?  how would one even know about any progress? would it show up in certain test's?  

What would be the best test to find out anything?  how long is a test done today good for? how soon do bugs re-infest?  how would anyone know?

Is, what is seen in stool really bugs?      dead or alive.. which should one see?  can they ever be expected to be reduced from the brain area?    

Any answer or link is appreciated.

  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Lola
Thursday, October 6, 2011, 9:47pm Report to Moderator Report to Moderator

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Sa Bon Nim
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so many compelling stories and testimonials you can look up
http://www.bing.com/search?cp=1252&FORM=FREESS&q=Lyme&q1=site%3Adadamo.com


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Ribbit
Friday, October 7, 2011, 1:20am Report to Moderator Report to Moderator

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ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Goldie, I think "bugs" is a slang term for bacteria, when we people use that term.  Which technically Lyme isn't.  I guess it's in it's own category.  Called a spirochete.  Now, it IS transferred to humans through bug bites.  And I suppose you could have one latched onto you for some time.  But I have no clue how long, but that's not really the point.  When you test for it, it's in your blood.  And that type of thing.  It's not a parasite.  Per se.  From what I understand.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
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Ribbit... WOW.. YES that is one way to look at it.. 300 items..

and some people never get diagnosed for years or decades.. at least with this list it explains the complexities!!!  Thanks for the link.. and thanks to the doctors who came up with this list..


JJR... yes bug was my term for not KNOWING even what to call the buggers.. bugs is much to kind.. there are so many 'invaders' taking over health in stealth, going unseen for years until way to late..

Can you imagine doing something about it if we don't even understand what it is.. ??? !!!
There are some microrganism and paracitic effects that can be altered with certain treatments, but is there possibly a way to also influence them with foods or spices?      


AND NOW once more the original question:   Is looking at LYME and BTD a separate thing?  is Lyme so different?  are there protocols or sups or whatever?

Is not more written by any of the doctors here?  on what a person might try to follow through to make any difference??  

maybe at least talking about what test would show LYME .. earlier?? or is the diagnosis so bad that one will not want to hear it?    

Is it always to late for early aggressive treatment unless one still sees the tick bulls eye?    

I mean with it being so all over the country? why do we know so little about simple questions on Lyme?




Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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For me, the diet alone is not enough to fight it.  At least, that's my experience.  I think it helps tremendously though.  I would be a lot worse off, if I was just eating whatever.  And I know eating the right foods will help strengthen my system.  BUT, I think it can be very aggressive in some of us, or we need to target the lyme at some point to get rid of it.  Some people may just fight it off better than others, with thier immune system.  But I have gotten systematically worse on some levels of my health, over the last 5 years.  I am weaker now than I ever have been.  Despite following this diet very well.  And I believe it's because of the havoc lyme has placed in my system.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Friday, October 7, 2011, 7:53pm Report to Moderator Report to Moderator

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Quoted from ABJoe


2) Fat digestion is aided by the bile, so it is possible that the gall bladder could be the problem, although I would think, the liver is more at fault if you aren't having pain at the point where the bottom of the right ribcage turns sideways after going down from the sternum.  



I believe you can also have pain between the shoulder blades. I have this pain (sometimes very strong) and think it may be my gall bladder.


"Anxiety is the gap between now and then"

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nowishow
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Quoted from ABJoe

I have also been detoxing small hard chunks through the skin.  I don't know what it is, but I'm glad it is leaving.



I've had this for a couple of years, very strange. But I'm also happy to get it out, whatever it is.


"Anxiety is the gap between now and then"

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nowishow
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Quoted from JJR
It's funny, because I feel the opposite lately.  I have not eaten very much red meat over the last 5 years, that now I'm craving it big time.  And it seems to be helping.  Which I would think it would make my liver sluggish too.  I'm not entirely CERTAIN that it's helping.  But I always seem to feel better after eating it.  Especially lamb.  But venison too.  Beef seems like I could take it or leave it.  But it doesn't seem bad.  


I go back and forth on how much meat I eat. Sometimes I want very little meat and mostly poultry and other times like now I want a lot of red meat. My body is always craving different things and as long as it's on my swami I follow along.  


"Anxiety is the gap between now and then"

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nowishow
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Quoted from Ribbit
Here's something else to make you wrinkle your brow:  I've written before about how when I go through a detox session (aka herx), a mole or two on my right arm will bubble up, itch, turn into a scab, flake off and leave a scar.  One ND I saw, when this happened, said, "Yes, many  moles are viral, just like warts.  If you kill the viruses, they can go away."  So every couple of years without warning, a mole on my right arm will do it again. I have little scars up and down my right arm that have gone through that process.  Cool, huh?  I'd never heard of anybody losing a mole because they detoxed.  So anyway, with this skin break-out this past week, a big mole on the back of my left arm, that's been there for as long as I can remember, bubbled up and today a patch scratched off.  Underneath is new, clean, pink skin.  Yes, folks, I'm not going to think of skin break-outs as bad and "sick" anymore.  I'm going to start thinking of them as my body cleaning itself out of viruses and bacteria that it can't get rid of any other way.  This is the first time I've lost one on my left arm.  


This explains a lot! I've had similar experiences since I started to recover from this desease. Thanks so much for this information!


"Anxiety is the gap between now and then"

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JJR
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The pain between shoulder blades could be detoxing also.  I'm told sometimes toxins like to seep out of your spine.  

I saw a video today my sister linked about Lyme from Envita Medical Centers.  It was very good.  http://www.envita.com/disease.html

It's only 7 minutes and it does a good job of simplifying and explaining lymes.  Makes me cringe, but it was good.  PLUS, it showed what effective treatment should include.  It said it should include 3 things at the same time.  Boost the immune system, kill the bacteria (with antibiotics and/ or herbal remedies) and deal with the coinfections.  If you do all three at once, they're saying, you'll get a better degree of recovery.  My thing is I have not dealt with the coinfections, beyond eating well.  Which probably helps.  But I think I need someething else to cover those.  I think the homeopaths I'm taking is actually dealing with the lyme itself though.  Yet it seems crazy, because I guess it burrows into our tissues.  UGh.  But that may be why I've been having more joint pain, since starting the homeopathic remedy.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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(JJ, you need to take the space out of the end of your URL if you want to make a hyperlink.)
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Ribbit
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I always, always, always have back pain, particularly between my shoulder blades.  My back has hurt ever since I can remember.  I have mild scoliosis and the disc degeneration of a 50-something-y.o. (according to my last chiropractor), but I don't believe that's the root of the problem.  The MRIs I had done last summer didn't get my upper back--just my lower and middle.  Every time Rob gives me a back rub to loosen up the muscles, my whole spine will crunch.  It freaks him out.  "That's not supposed to happen!"  But it does constantly.  I'm always trying to crunch the area between my shoulder blades.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Quoted from nowishow
I believe you can also have pain between the shoulder blades. I have this pain (sometimes very strong) and think it may be my gall bladder.

My understanding is that pain between the shoulders is typically related to the stomach...


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Ribbit
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It's too late for me to take antibiotics, which is why I'm going the natural route.  Why bother with something even the experts say won't help?  Of course if I went to them, they'd put me on very strong intravenous abx which would make me much sicker.  I'm happy doing what I'm doing, which is actually making me better.

I have read stories of people with negative blood tests starting up the abx drips and after months and months of treatment, they finally get a positive test result.  Evidently it can take months of "stirring it up" with the drugs to get it to show up in the blood.  

The BTD threw my Lyme into remission.  I was using the term "remission" for years before I had a name for it.

A spirochete is a type of bacteria.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from Ribbit
I have a question about healing crises.  Joe--this one's for you.  I've been eating at least one large clove of raw garlic a day.  My stomach hurts for a couple of hours after I eat it.  My tendency would be to avoid raw garlic.  But maybe, just maybe, it's actually doing me some good and I should keep it up.  I guess I've learned over the years to avoid anything that causes pain (emotional or physical), but if it kills something bad in my body, I'm willing to keep it up.  Would you call a stomach ache from garlic a healing crisis?

Ribbit, I would cut down on the amount you are eating...  While it may be a healing crisis, I think it is just too much.  If you have pin-pointed that the garlic is at fault, then I would reduce to half or 1/4 a clove...

Quoted from Ribbit
I also have another thought.  I had thought that every time my skin gets really bad it must be because I ate something wrong or I'm having a flare-up of some sort.  It's taken several years to notice patterns, but what I'm seeing is there are several things that go hand in hand for me: depression, migraine, paranoia, bloating, brain fog and skin boils.  I'm still having these problems occasionally despite my extreme avoidance of nightshade plants which I know for a fact cause it.  I noticed after this last episode that when things started clearing up, I started feeling really good!  I'm able to think clearly and calmly and I'm even cleaning out my closet/bedroom because it's needed it for a long time.  I tend to wonder around in circles, not being able to put a finger on the reasons for my frustrations, and now I can see it all clearly.  I haven't organized efficiently because I haven't had time or energy, and I couldn't even think well enough to see it before.  I don't know how long it'll last. I unloaded on JJ the other night on the phone and really it was just a last straw---I felt like the whole world was crumbling around me.  Now I feel much better and my skin is clearing back up and my face isn't puffy like it's been for a couple of weeks.  It's always associated with a migraine.....Like I almost *needed* to get sick so I could feel better.  Does that make any sense?  Kind of like when I run a fever.  It's rare I run one, because my body temp is low.  But when I can manage to get a little one, I feel so good afterwords!  It burns off all sorts of junk I've accumulated.  I guess I'm beginning to see times of bottoming out as healing rather than getting worse.  My neighbor, who is unofficially counseling me, asked me last week if my skin breaks out when I'm emotionally upset.  It had never occurred to me because I squash emotions partly because I don't know how to deal with them and partly because I don't have the time or the patience to sort through stuff.  But he'd asked me some questions that provoked me to look through a box of stuff I'd stashed away ten years ago, and just being reminded about things (or accidentally reading stuff that I'd never read in the first place--stressful e-mails I'd printed but not read)...it made me feel for the rest of the day like I was going to throw up and I was having trouble even talking to him (the neighbor).  Couldn't complete sentences and all that.  But his question about my skin breaking out when I'm emotionally stressed made me start wondering if it's all tied up together.

Your description of the getting worse, running a fever, and feeling better sounds very familiar...  

I think the cycle will shorten to where it all happens multiple times each day...  I hurt constantly where the toxins are being removed, have brief periods of nausea and/or dizziness.  Brian fog comes and goes quickly...  I haven't gotten to where the muscle spasms are so quick that they don't fixate the spine, but I'm able to relax it again relatively soon and have it move back...  


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TJ
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Quoted from Ribbit
I'm always trying to crunch the area between my shoulder blades.
Same here.  I have low back and neck pain, too, but I can do a little something about that on my own (even if it's nowhere near as helpful as a good adjustment).

Something else I think is related is stimulus sensitivity.  My coworkers keep the radio on in our lab most of the day (hard rock, no less, complete with off-color morning and afternoon talk shows), and it's louder than strictly necessary.  When I first arrive in the morning I can tolerate it fairly well, but it quickly becomes grating on my nerves.  I have to put in earplugs or find work in the other area (where it's quiet), or I just can't concentrate, and I start feeling overwhelmed and mentally violated.  I've made my frustrations clear, but I'm the new guy so I don't want to press my luck with the lead (who is the least tolerant of working without the radio on).
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Age: 51
Quoted from Ribbit
I always, always, always have back pain, particularly between my shoulder blades.  My back has hurt ever since I can remember.

I have as well, although mine is at the head / neck junction, between the shoulders, and low back.

For me, I always had a high avoid diet up to starting BTD and a major fall at about age 8 really hurt.  I haven't fully recovered from the fall yet, but I'm making huge progress now...

Quoted from Ribbit
Every time Rob gives me a back rub to loosen up the muscles, my whole spine will crunch.  It freaks him out.  "That's not supposed to happen!"  But it does constantly.  I'm always trying to crunch the area between my shoulder blades.
I think those muscle spasms are due to high toxin levels.  Keep working on the gut, pancreas and liver / kidney health...  The more healthy I get in these areas, the more detox happens and the less spasms I have.  It is a long process, but very worthwhile...



RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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Chloe
Saturday, October 8, 2011, 5:51pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,275
Gender: Female
Location: Northeast USA
Age: 71
Quoted from JJR
Chloe, have you used those?

I don't know if I ever heard your story Chloe.  Leanne told me you were the one that encouraged her to look into this lyme thing more.  And she encouraged me more.  So, I'm grateful to you.  

Is there anything that you did that made significant impacts in killing this, off the top of your head?  Or are they too numerous too mention?  Maybe some of both.  I apologize if I'd be making you repeat yourself.  This thread is long enough that I don't remember what you all said.  Or if you did say a lot, what page was it?  Have you blogged about your experience?


Sorry, I have no experience with using this protocol...  I think Dr. Nash used them in her practice...From reading all of the information written on this site about Lyme, I came across
the term Unda Numbers...so I researched it.  You'd have to be working with someone who has
experience using these.  

Leanne...do you remember where that thread is?  The one where I asked you if you could get
yourself Lyme tested...because like my experience with chronic Lyme which had no treatment,
you walk around thinking you've got something really wrong with you and each doctor winds
up treating your symptoms.  One actually sent me to a psychiatrist...because I sounded nuts.

My story is that I had just had my second child and was 26 years old....Baby was a year
when we bought our first house. I was planting a garden....noticed I was scratching my neck...
and saw this red bullseye rash that went from the back of my right ear all the way down to my
shoulder...I sort of thought I got a mosquito bite....It was July....when one morning I woke up
with a stiff neck...felt like I had the flu...probably a week after the rash which hadn't gone away.
I was new to the area....My neighbor saw me walking around limping for a few days. Mothers
have a habit of forgetting what's wrong with themselves and just take care of children, the
home and everything else.  So neighbor suggested I go see his chiropractor...and by now I
couldn't lift my right arm in the air.  He called it a pinched nerve....and kept adjusting me, 3x
a week...and eventually my arm moved...but then it was my knees...I could barely walk..and it
went on for 20 years like that....I'd never really get better....and nobody ever thought to test
me for Lyme until I saw a very smart holistic MD in 1990.  Remember Lyme didn't have a name
when I got my bite...so everyone was looking for arthritis and inflammation and allergies.
I had fever off and on and chronic headaches.  Sometimes my temperature was as low as 96.

For the bullseye rash (without knowing I had an infectious issue) I saw a dermatologist who (stupidly -- from my perspective now) gave me cortisone...topically and orally.

For the next two decades, I lived with aches, pains, headaches, severe debilitating depression.
I saw Dr. D in 1988 (before he was famous) for these same issues...and he too didn't find what
nobody was looking for....Tick toxins and co-infections.  But Lyme had no awareness....Lots
of people had to be walking around not knowing what they had...I started following the BTD
for type A and stayed with it until SWAMI came out and found out I'm a Teacher.

And then in 1993, I got an actual tick bite on my shoulder...pulled the little tick out and wound
up with 104 temperature within a few days.  I was then put on abx for 4 months...doxy...but
I walked around with chills and sweating for 20 years so just having an abx in my system at least
made me feel somewhat able to function.  But each time I'd try to go off an abx, my sx came
back...

I decided to try and treat this holistically....Saw a lot of different people....Where I live some of
these alternative Phds are quacks....Some are actually ripping off the public after taking many
classes on "creating a lucrative practice" and were charging thousands of dollars for chelation...
I have a list of those quacks....one my lawyer had to write a letter to and get my money back.
Another I reported to the attorney general's office in my county....He was investigated, his
chiropractic license revoked.  Be careful for this one thing...chiropractors who have re-invented
themselves and telling you they're lyme specialists.  Most aren't..

Found a Lyme literate MD in my area...Had other issues with him...A great doctor if I showed
Lyme titers which my insurance would cover for abx treatment...but by now, everything showed
past infection...nothing active..In other words, I still have something, but it couldn't be identified.

Next was a master herbalist....who used a biomeridian machine to identify which was now close
to 30 something co-infections I was walking around with...viruses....I have a long list which some
day I'll share....but it's not the obvious...It's not bartonella or borellia....Renember, everything your tick carried was transferred to you...and I was told that might include mosquito bites,
chigger bites I got at sleep away camp and just about anything that ever bit me could be
keeping my immune system from attacking it.

I took homeopathic drops for almost a year...thought I felt a lot better after the treatment. It's
goal was to cancel out the vibration of the toxin...Does it work?  Could it have a placebo effect?
It was very expensive but I can't say for sure it cured me.

this is it

http://www.healerswhoshare.com/

My issue with my SWAMI is that I'm overreactive to foods I haven't eaten for years...I gave up
dairy, eggs and meat when I was 30 years old.  And my Teacher status put back dairy and
eggs...so I've spent the past 3 years following my diet with those additional foods and finally
came to the conclusion that they were causing problems for me..I went back to the BTD for A
which doesn't accentuate dairy or eggs....It's simpler....

And then I found out I carry this APOe 3/4 genetic thingy which means I have problems detoxing.
And that seems to be profoundly true...and probably why my diet is better controlled if I eat
simply whole foods that are mostly plant based and not from animals...

I've discovered on my own which foods feel inflammatory....and I measure my progress by
how I feel on a simple diet (fruits, veggies, nuts, seeds, good oils and fats, fish, a little poultry,
no sugar, no caffeine, no alcohol, no eggs, no gluten)

Until I gave up gluten, I had chronic neurological problems....which appeared as sciatica....and
then morphed into nerve pain that travelled...On some level this mimics a B12 deficiency but
I don't have that.  5 years off gluten and no nerve pain at all.

What I decided personally was that I wasn't going to be a victim of this condition...and I do
believe the body knows how to heal itself if you give it the right tools...and so I will do natural
protocols....I currently take a few natural anti microbials which I rotate.  One is olive leaf extract.
I drink olive leaf tea....and take pills only when I feel I need a boost.  I also take a product
called Lauricidin....has a broad range to kill a variety of toxins....many fungal and Lyme

http://lauricidin.com/tech_data/

I am taking Genoma Security which gets rid of bacterial biofilms..

THe thing I've learned is that your body has to be in the best of health to fight a battle like Lyme..and so I would recommend that you consider things like drinking lots and lots of water...
staying away from sugar....eat whole foods....(I hardly eat processed foods)...organic if possible...
plenty of vegetables...meditation....relaxation....a good night's sleep....

I'm not what I'd refer to as cured....I'm managing this condition by eating as perfect
a diet as I possibly can and living in a way that gives me an edge so I feel well. It's a lot of
work....but this is what it takes.  I feel so much better than I once did...and I'm not on drugs...
but I know for the rest of my life I will continue to eat healthfully.  The fact that I can say
that I feel SO much better that I once did is saying an awful lot!~


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Sunday, October 9, 2011, 2:21am Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
As far as foods go, I came to the same exact conclusion as you.  Whole foods, pure as we can get, especially meats.  No sugar, caffeine, wheat, sweets, etc.  I do eat a tiny bit of high quality chocolate 2x a week.  And I feel no worse for the wear.  In fact, it sometimes seems like it helps my digestion of dinner.  I eat it after dinner on Saturdays and Wednesdays.  But I can't do ice cream and cake for sure.  And cookies.  Forget it.  I might eat a lara bar once in a while, but usually only half, because it's too much sugar for me.  I haven't had in a long time.  I love fish and it seems good for me.  I have given up dairy, except ghee.  I have also given up eggs, although my body is telling me I could eat some yolk at this point.  But I've yet to try it.  I do need red meat more than you.  But I also have some B in me.  It seems to help my immune system, and my adrenals.  Because it always picks my super low BP up.  

Anyways, thank you for sharing.  I might look into that lauricidin. I'm always interested in things that will kill this.  Your story sounds awfully trying.  Mine is very similar, but hasn't gone on as long.  So far.  But I can totally relate to so much of it.  WE ARE NOT ALONE!!!!!!!!!!!!!!!!!  And WE ARE NOT CRAZY!!!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Sunday, October 9, 2011, 2:59am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 36
Chloe, I think my thread was called "My Trip to the ER" or something similar.  It became insanely long after a while because I was outlining everything that was going on.  I'm so much better than I was last summer!  This was in May of '10 that my worst paralysis episode occurred.

Joe, I have multiple dizzy spells a day.  Right now I think I've got *another* ear infection (they seem to be more frequent lately) and I'm sure that contributes.  The brain fog is mostly "On", but about one day every other month or so, it clears completely up and I can think, see, hear, feel normally.  It lasts a few days and then I'm back to where I started.  It's usually after a migraine/fever/skin breakout.  It also coincides with my legs not being so tight.  I have to say, I remember when I was at my worst (that is, before last summer), between the ages of about 12 and 16, I absolutely hated gym class.  We had to do those awful physical fitness tests, and I couldn't do anything!  My legs were so tight I could barely reach past my knees with my legs straight.  I wish I'd had a name for it back then.  People would have left me alone.  I would have done better taking a nap that whole hour.   I didn't need exercise--I needed sleep.

I'm on several Lyme FB groups and they're all encouraging.  Several of us were talking about which side of our body was the worst and we realized that the side opposite the tick bite was affected the most.  Interesting, huh? The bite was on my right shoulder, and my left side is by far the worst (although it's interesting to note that up till now, it was the moles on my right side that blistered up and peeled off).

TJ, I like the term "mentally violated".  

I'm taking Genoma Security now too.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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TJ
Sunday, October 9, 2011, 7:24am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
Quoted from Ribbit
TJ, I like the term "mentally violated".  

I'm taking Genoma Security now too.
It seems like the best way to describe it.  It's somehow mentally and emotionally painful.

The reason I'm still up at this crazy hour is because I've been laying in bed worrying about this situation.  I've got to do something about it.  I can't keeping on "sucking it up".  I hate to be confrontational but that might be what it takes.  Some people just won't take a hint.  And I'm right to be angry about this, anyway.  This is a place of business.  It's not a party where I can just leave if I don't like the entertainment.  I have an obligation to be here and work, and I have the right to conditions that are conducive to doing that work.  I shouldn't have to wear earplugs at a job that isn't inherently noisy! The earplugs don't even block it all out, they just make it quieter.  And if they did block out all sound, they wouldn't be appropriate for work because I need to hear when people are talking to me or paging my to take a call from a customer.
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Goldie
Sunday, October 9, 2011, 11:53am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,917
Gender: Female
Location: East Coast
IS there a TEST or are there MANY tests that show if someone has Lyme?  

Does it always take YEARS to find out that one has it?

and finally what DOCTORS is best to go to, once one has it?  ND's MD's or Both or ???
  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kim
Sunday, October 9, 2011, 3:18pm Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
Posts: 702
Gender: Female
Location: CO
Age: 60
Quoted from Goldie
IS there a TEST or are there MANY tests that show if someone has Lyme?  

Does it always take YEARS to find out that one has it?

and finally what DOCTORS is best to go to, once one has it?  ND's MD's or Both or ???
  


Lyme hides very well in the body.  It penetrates the tissue, muscle and bone.  That is why there are no blood tests that can definitively test for it's existence.  If it isn't in the blood the day of the test, the test will show negative even thought the person being tested is positive.  There are studies that show that the spirochete morphs it DNA.

It takes years to find out you have Lyme because doctors are told that Lyme is "hard to catch and easy to treat".  It mimics other diseases.  

This is all they are told about it in medical school and the IDSA, as corrupt as they are, write the guidelines for Lyme.  ILADs, another group of doctors, totally disagree with the IDSA views on treatment.

Lyme doctors make a clinical diagnosis based on what they see on other blood tests, exam and patient history.  Lyme patients have certain deficiencies that show up on other blood tests.  The spirochete robs the body of minerals, magnesium being a big one.

In general, the spirochete disrupts hormone, endocrine, digestion, central nervous system, brain, etc.  

This link can give you a great overview of how complicated and difficult Lyme is to treat.  Anyone can be bitten by a nymph tick and never know it until symptoms show up at some point.  Then you have to find a doctor that can recognize what is going on.  You need to see a LLMD.  Some use both antibiotics and homeopathics.  There is not a one size fits all treatment for Lyme.  Everyone responds differently to treatment.  Antibiotics do not work for everyone and the same can be said for homeopathics.  I chose to do both antibiotics and homeopathics.  

http://www.jemsekspecialty.com/lyme_detail.php?sid=8

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ABJoe
Sunday, October 9, 2011, 7:45pm Report to Moderator Report to Moderator

35% Nomad or Teacher - health history dependent
Sun Beh Nim
Moderator
Posts: 8,253
Gender: Male
Location: Orange County, CA, USA
Age: 51
Quoted from TJ
I've got to do something about it.  I can't keeping on "sucking it up".  I hate to be confrontational but that might be what it takes.

You don't have to be confrontational!  Some one is in charge of Human Resources.  They are very interested in: 1) productive employees, and 2) providing a safe workplace - mostly because it is a legal requirement.  If you go in and describe that the radio is bothering your productivity and earplugs are your only answer, but it interferes with your ability to hear pages, etc...  They will be interested.  

Be prepared with some concrete suggestions to solve the problem - whether the radio can be playing the same station at a lower volume, it needs to be more private - whatever...


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
Sunday, October 9, 2011, 8:04pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
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Location: Caledonia, WI
Age: 42
Or if people want to listen to music, they should bring their own Ipods or what not, instead of blasting everyone else.  I wouldn't like that as well.  

I'm having a bad day.  I left Church Service about 2 minutes early (thank God I made it through most of it), but I felt like I was going to faint.  I was having an anxiety attack.  I think my BP might be real low today.  I'm afraid to check it.  Or, I'm having some kind of gut deal.  Or, there really was mold on that macadamia nut I ate, which is what caused my anxiety.  I was in church, and I saw tiny little dark specks on a macadamia nut I was eating.  In a normal situation, I would've spit it out, just not knowing, but I had no where to do that.  And I kept thinking, I might've just ate mold.  When I got home, I checked the other nuts and they all have small little dark brown specs, that look like part of the shell or something.  I've never had a problem with them before.  I think it was mostly mental.  But I think there is something causing me to be more prone to anxiety at this moment.  

It is something I struggle with though.  I know I've said this before.  I get really anal about the purity, freshness, anything that looks a little off about my food.  And it's near fanatical levels. To the point where I'm worried over nothing, most likely.  I don't want to turn into Howard Hughes, but I feel like it sometimes.  Anybody else have this problem?  I am trying so hard to not fear, but some days it is very tough.  I know there is a probably a spiritual, emotional, and physical reason for this.  But it has not been easy to overcome.  I used to have more anxiety about what was going on INSIDE of me.  But now the focus has seemed to target what goes on outside of me, that might be going in my mouth.  How clean my hands are.  All that stuff.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, October 9, 2011, 11:06pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
Quoted from ABJoe
You don't have to be confrontational!  Some one is in charge of Human Resources.  They are very interested in: 1) productive employees, and 2) providing a safe workplace - mostly because it is a legal requirement.  If you go in and describe that the radio is bothering your productivity and earplugs are your only answer, but it interferes with your ability to hear pages, etc...  They will be interested.  

Be prepared with some concrete suggestions to solve the problem - whether the radio can be playing the same station at a lower volume, it needs to be more private - whatever...
That wouldn't fly here.  There is no HR department.  There are only ~20 employees.  Everyone knows everyone.  If I went and "tattled" it could get rid of the music, but it would create huge hostility against me.  I don't want that.  I like these guys (just not their music), and I want to cultivate a good relationship.  They are more likely to respect me if I go straight to them first.  They won't like it, but everything will blow over soon.  If I go talk to the owner, he could see that as me not being a team player, not fitting in with the culture, etc.  He is known to have a, ahem, mercurial temperament.  As much as I dislike it, going straight to the source seems like the best option.

As far as concrete suggestions go, I intend to make it known that I have no qualms with them listening to music/radio as long as they don't make me listen to it, too, which means headphones.  If it seems necessary, I might haggle a bit about eliminating a certain station and keeping the volume low.  That's still not ideal, but I don't want to be a Nazi about it.
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TJ
Sunday, October 9, 2011, 11:09pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
More on topic, I joined the LymeNet forums, asked for references to local LLMDs, and received two private messages containing 12 references.  That should be a good beginning once my health insurance papers have come.
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Dr. D
Monday, October 10, 2011, 10:28am Report to Moderator Report to Moderator

Peter D'Adamo
Kwan Jhang Nim
Posts: 4,162
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Location: Connecticut
Age: 58
Lyme Disease requires direct one-on-one advice and treatment.

Generalized protocols could be ineffective and possibly problematic.


A whole system is a living system is a learning system.’ -Stewart Brand
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Amazone I.
Monday, October 10, 2011, 11:31am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,334
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 56
I use bioresonance and PT  and cardes,sometimes olive leaf or rizoles and essential oils  to treat lyme,with great success...


MIfHI K-174
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Goldie
Monday, October 10, 2011, 2:06pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,917
Gender: Female
Location: East Coast
Quoted Text
Lyme Disease requires direct one-on-one advice and treatment.

Generalized protocols could be ineffective and possibly problematic.


Thank you Dr D.. for that answer.. It is what I suspected,  


I am really getting scared for all the people that are exposed to Lyme, husbands, wives, and offspring.. scary.  It is one thing to get on illness but not be able to get a test for it is terrifying..   and to wait for years is the making of a night mare.. not to mention old age illness that will follow..

Kim.. yes I saw the movie Under Our .com and it is shocking in many ways, not least of which is HOW ignorant we the public rare about it.   Mistreatment of those who suffer so real, is just one aspect, the cost of finding any help is beyond comprehension.

I do think that ALL types of treatments are needed to make any differences. That includes fortified diets, BLoodtype Geno type for 100%  is a priority.  Good elimination of the 'trash' of dead cells and or spirochetes or micro-organisms and the like, is needed as well.    

There is much learning needed.  I will read the other long thread on Lyme to be sure, and be able to comprehend so much better..  

I am a better person for knowing more about it.  I learned from a person who suffered greatly, I AM so grateful that she let me in on her 'nightmare' so that I might learn and understand and avoid MIS- JUDGMENT.  

THANK YOU ALL who answered here.. I am very appreciative..  



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Monday, October 10, 2011, 5:24pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
I think the more everyone knows about it and is interested in it, the better off we are.  So it's very nice to see your interest!!!  Especially if you don't have it.  But once I knew I had it, it's bizarre how many stories I'm hearing about people with it, and how much it has affected them.  It has been a blessing to know that my struggles are not alone, and there is a reason, but it's still a bummer.  For all of us that have it.  

2011 The year of the lyme.  At least for me.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Monday, October 10, 2011, 6:40pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,917
Gender: Female
Location: East Coast
2011 will be a pumper crop for ticks.. I have no kids and if I had some I would build a porch to keep them in.  but now with mosquitoes it becomes even more on issue..

I am interested in two ways.. for knowledge and for helping to understand those who have it..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Ribbit
Tuesday, October 11, 2011, 3:32am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 36
TJ, I got the name of a local LLMD through a private message on that forum too.  Unfortunately I've forgotten my made-up name, password, etc.  I'd have to sign up again and ask again.   I'm talking with a lawyer friend about getting on disability and it doesn't even seem possible, but at least if I have an LLMD give me an official diagnosis, I might be able to make some headway.

I've taken an indirect route with my children upon occasion that usually goes over really well because it makes them laugh.  If you can make somebody laugh, they can hardly be annoyed at you.  You could just say, "Hey, could we turn it down just a tad?"  After all, nobody but you minds it.   (I know, I know, I've got the sensitive hearing too.....Not to mention certain music makes certain people of certain marital statuses lonely.  RUB IT IN WHYDONTCHA--Yes, I remember.) So if you said that when everybody was amused by something else you said, they  might not mind turning it down.  Or, what I do with my kids is wait till they ask me a question, and then I holler, "Sorry, I can't hear you over all the noise!!!"  They laugh and turn down the volume.  I don't know...Introverts always have the tougher problem working around people.

JJ, I have a suggestion for you, but it's going to sound really weird.  It might make more sense over the phone sometime.  Meanwhile, I will pray for peace for you.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Kim
Tuesday, October 11, 2011, 2:49pm Report to Moderator Report to Moderator

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Ee Dan
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Quoted from TJ
More on topic, I joined the LymeNet forums, asked for references to local LLMDs, and received two private messages containing 12 references.  That should be a good beginning once my health insurance papers have come.


That is my favorite group... I help out with sending out names of LLMD's in my area.
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JJR
Tuesday, October 11, 2011, 3:37pm Report to Moderator Report to Moderator

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JJ, I have a suggestion for you, but it's going to sound really weird.  It might make more sense over the phone sometime.  Meanwhile, I will pray for peace for you. [/quote]


Well I need something!!!  I used to get anxiety all the time, and it went away for a while.  But these last few days it seems like it's really getting to me.  I know there is an emotional / mental / spiritual component, but I also think there is something physical going on that is making more susceptible to desperate thinking right now.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Tuesday, October 11, 2011, 4:19pm Report to Moderator Report to Moderator

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Kyosha Nim
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It's a full moon right now.....It's sort of making me feel wired, and a bit over the top.
Perhaps this explains the current level of anxiety.

But I do suffer from panic attacks related to Lyme.

Some interesting reads.
http://www.thehumansideoflyme.net/articlelist.php?mid=4


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Kim
Tuesday, October 11, 2011, 5:42pm Report to Moderator Report to Moderator

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Hope that full moon doesn't make me any worse!!!  Panic attacks are my middle name.  Of course the forgetfulness causes panic attacks all day.  It is no wonder they are planning to scan my brain.  Not sure I want to know the outcome.  

I panic everyday that I forgot to take something out for dinner.  .  With the way we eat, that could mean nothing to eat.  At some point, I hope I can get food in the freezer ready to eat for those days I can't move.

Sometimes all I feel like eating is fruit or yogurt.  
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nowishow
Tuesday, October 11, 2011, 11:15pm Report to Moderator Report to Moderator

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Quoted from Kim
  At some point, I hope I can get food in the freezer ready to eat for those days I can't move.
  


I make big pots of stew or soup and freeze half of it. That way I'm covered when I have a really bad couple of days. It really helps.


"Anxiety is the gap between now and then"

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TJ
Wednesday, October 12, 2011, 12:12am Report to Moderator Report to Moderator

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I'm still waiting for my insurance paperwork.  Our agent visited today, and I told him.  He got on the computer and verified that I had coverage effective the 1st, so it's just the USPS that's the hold-up now.

Quoted from Ribbit
"Sorry, I can't hear you over all the noise!!!"  They laugh and turn down the volume.  I don't know...Introverts always have the tougher problem working around people.
That would have been a good idea if the circumstances had been more amenable.  I've tried everything subtle I could.  Any mention of it immediately created tension, and you can't foster humor in that environment.  Heck, it seems like since my first mention, that the party in question has been even more insistent on leaving the radio on all the time.  He seems like the passive-aggressive type.

Yesterday I was finally blunt.  It got me some peace for the rest of the day.  Today, it was like what I said yesterday never happened.  I made my needs clear and directly addressed the people (person, mostly) responsible, with no relief, so I no longer felt any qualms about taking my concern to a higher authority.  I sent an email to the technical leader (effectively the second in command after the owner) describing the problem, what I've done so far to address it, the fact that my efforts have been in vain, and a suggestion for how to remedy the problem.  That was mid-day while the other guys were out at lunch.  I got no response today, and I didn't expect to until tomorrow at the earliest.

Fortunately, I can turn off the radio when they're gone, and also fortunately, I found enough to keep me busy out in the mechanical area today so I didn't have to hear that racket.
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Ribbit
Wednesday, October 12, 2011, 2:40am Report to Moderator Report to Moderator

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I keep soup in the freezer too.  I freeze leftovers in mason jars with the lids barely on, and then I go back later and tighten them up.  It's not unusual for me to forget I have to cook.  My poor brain....

Today I talked with a "Lyme advocate" that I met on Facebook.  I called her on the phone and she explained what all I need to do to get on disability.  I have to see an LLMD and get tons of test run.  She also said it would help my chances if I got the kids diagnosed.  I just don't even want to think about that yet.  But her suggestion was to get as much junk down on paper as we could, and it would greatly increase my chances of them accepting my case.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
Wednesday, October 12, 2011, 2:47am Report to Moderator Report to Moderator

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Kyosha Nim
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My mom says their vet now recommends everybody treat dogs for ticks year-round.  Because Lyme in pets is becoming such a problem.   We talked for a long time on the phone tonight and I was updating her about my current state.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Goldie
Wednesday, October 12, 2011, 6:18am Report to Moderator Report to Moderator

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Quoted Text
My mom says their vet now recommends everybody treat dogs for ticks year-round.  Because Lyme in pets is becoming such a problem.   We talked for a long time on the phone tonight and I was updating her about my current state.


So good to remind us on the pets.. how come they have protection for animals but not humans??

As for talking to mom, when that is possible then there is nothing better.. I miss my mom and the 'not enough time' I had to talk to her more often - in a meaningful way.. I was always to occupied with what was, not what could have been.. somehow the opportunity seldom presented it self.. enjoy those moments when it feels good.



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Wednesday, October 12, 2011, 3:32pm Report to Moderator Report to Moderator

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YES, the MOON!!!!!!!!!!!!!!!!!!!  I had a phone consult with my Doctor's assistant yesterday and she said mentioned the moon.  And I said, hey, isn't it real big now too?  October is the Harvest moon and it's really big and bright.  So yeah, that could really get things wired.  Ours was covered with clouds last night and it was still real bright out last night.  

OK, so I'm not the only one that struggles with anxiety and mind problems.  Actually, my doctors assistant has Lyme's too and she said the same thing.  I think I feel a little better after taking some of my Amino Acid blend I had started in the spring.  I didn't need it after a while, but I guess I'm probably low again in these things.  

She also suggested:

L-Theanine, which is in Green Tea or a supplement, and
Bach Flower Rescue Remedy, which I think many people have talked about on here.


Frozen stew is a good idea.  I need to learn how to make a good stew.  I really think the addition of more red meat in my diet has boosted my immune system.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Wednesday, October 12, 2011, 3:50pm Report to Moderator Report to Moderator

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I just need to feel well enough to spend a day putting food in the freezer.  I have been trying to have leftovers, but lately, my dh is lucky to get dinner at all.

Need to find out how to make compliant chili without beans.  Can't eat them yet!!

That full moon thing....I had two meltdown days this past week.  Watching for that next month.

I use L-Theanine at night to help with sleep.
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nowishow
Wednesday, October 12, 2011, 5:45pm Report to Moderator Report to Moderator

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Here's some common gall bladder symtpoms:


Quoted Text
Even though, gall bladder symptoms in women are similar to those of men, women usually tend to experience more abdominal discomfort, bloating and gas.

What are the symptoms?

Symptoms include abdominal pain that may begin under the rib cage and migrate to between the shoulder blades or under the right shoulder blade.  Women occasionally feel a dull ache that does not go away.

This pain is caused by gallstone congestion. In some instances gallstones block the cystic duct, which is the channel through which bile travels from the gallbladder, where bile is temporarily stored, to the small intestine. Bile fluid is prevented from flowing to the common bile duct. As the bile becomes more concentrated, it begins to irritate the inner lining, which causes the gallbladder’s wall to eventually become inflamed. This triggers sharp abdominal pain and nausea, vomiting, as well as restlessness.


"Anxiety is the gap between now and then"

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nowishow
Wednesday, October 12, 2011, 5:57pm Report to Moderator Report to Moderator

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About anxiety - I often experience the anxiety in a physical form without any emotional components. My heart will start racing, my hands will get clammy, and I'll have shortness of breath. But I can also be overly worried about getting something done or whether there are germs on something. Both these obsessions seem justified in a way considering the disease. I often find myself hurrying to get something done just before I'm laid up for a couple of days with pain (maybe I can feel it coming?). And of course I don't want any more "germs" to enter this body. I'm full up!

But even though it's justified, I'm sure it's out of proportion to what is appropriate behavior. I just consider it one of my many symptoms and try not to give myself any grief over it.  


"Anxiety is the gap between now and then"

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Chloe
Wednesday, October 12, 2011, 6:25pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from nowishow
About anxiety - I often experience the anxiety in a physical form without any emotional components. My heart will start racing, my hands will get clammy, and I'll have shortness of breath. But I can also be overly worried about getting something done or whether there are germs on something. Both these obsessions seem justified in a way considering the disease. I often find myself hurrying to get something done just before I'm laid up for a couple of days with pain (maybe I can feel it coming?). And of course I don't want any more "germs" to enter this body. I'm full up!

But even though it's justified, I'm sure it's out of proportion to what is appropriate behavior. I just consider it one of my many symptoms and try not to give myself any grief over it.  


Welcome to my world...I never had anxiety or OCD or anything that came close to what I'm
experiencing recently.  I sometimes wake up feeling panicked.  I sometimes take no supplements
thinking it's something I'm taking...but interestingly enough, my issues with lyme have totally
changed.  I used to have body aches and pains...so bad I could hardly move...but since I started
going to exercise classes 3x a week, my tight tendons/muscles/connective tissues seem to have
stretched and can handle  movement. In addition, my stamina is light years better.  The fact
that everything shifted into my head, my mind, my thoughts, my nervous system is possibly
in cleansing mode?  Dunno...just throwing it out there for your thoughts (eveyone;s thoughts)....because I seemed to have cleared old issues and developed this strange high level of anxiety which seems to be all fear based.. Irrational, of course.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Kim
Wednesday, October 12, 2011, 6:27pm Report to Moderator Report to Moderator

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Ee Dan
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Gallbladder disease isn't always easy to diagnose.  I had a HIDA scan.  There are no blockages of any ducts, no stones, just slow ejection fraction.  That could be from the Lyme or the fact that I lost 120 lbs in the past 19 months.

During all the dieting, the gallbladder was just sitting there holding bile and not releasing because it didn't have to.  I am hoping that it is going to wake up and start squeezing better.

I am in no pain.  No gas or bloating most of the time.  I do find that because my digestion is so messed up by Lyme that I can't tolerate beneficial foods on my swami a lot of the time.  One day I can eat something and have no issues and the next day or two later if I eat that same food, gas and bloating result.

I am told that as treatment progresses, foods that I have sensitivities to will go away.  I used to be able to eat everything.

Today I got a stomach ache after eating raspberries.  Go figure.
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Amazone I.
Wednesday, October 12, 2011, 6:36pm Report to Moderator Report to Moderator

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backpains... related to Dr. Sarno's books... ... eventually, and as long as we try to find the enemy in the exterieure... no chance....


MIfHI K-174
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nowishow
Wednesday, October 12, 2011, 7:25pm Report to Moderator Report to Moderator

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Quoted from Chloe


Welcome to my world...I never had anxiety or OCD or anything that came close to what I'm
experiencing recently.  I sometimes wake up feeling panicked.  I sometimes take no supplements
thinking it's something I'm taking...but interestingly enough, my issues with lyme have totally
changed.  I used to have body aches and pains...so bad I could hardly move...but since I started
going to exercise classes 3x a week, my tight tendons/muscles/connective tissues seem to have
stretched and can handle  movement. In addition, my stamina is light years better.  The fact
that everything shifted into my head, my mind, my thoughts, my nervous system is possibly
in cleansing mode?  Dunno...just throwing it out there for your thoughts (eveyone;s thoughts)....because I seemed to have cleared old issues and developed this strange high level of anxiety which seems to be all fear based.. Irrational, of course.


Maybe you're healing is taking place in the brain now that your joints are doing so much better and you're having a reaction to the toxin release.



"Anxiety is the gap between now and then"

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Chloe
Wednesday, October 12, 2011, 8:40pm Report to Moderator Report to Moderator

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Kyosha Nim
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Holy cow...have any of you ever read this?  This person had been on the Discovery Channel's
Mystery Diagnosis.  Blew my mind to read it!

http://www.wildcondor.com/lyme.html


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Wednesday, October 12, 2011, 11:16pm Report to Moderator Report to Moderator

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Speaking of anxiety.  My lab lead was all sullen and passive-aggressive with me again today.  The technical leader, who got the email about the radio, who also just today got promoted to company president by the owner, spoke to me briefly today.  He said he agreed that the radio is a distraction, and that he'd had trouble with it himself whenever he had to work in the lab.   He's trying to work out a way to make a change in a way that will minimize the finger-pointing (at me).  That will take some political savvy, no doubt.  There's also no doubt that I'm going to be in for a bumpy ride for a few weeks if the radio disappears.

On top of that, our biggest customer (about 25% of our business) just notified us that they have decided to take their calibration work to another lab.  In the short term, that is definitely bad news, but in the long run, I don't think it's wise for us to be so heavily invested in a single customer.  They had some insane requirements, as well, since they knew they have so much of our business I guess.

I'm not terribly worried over the loss of the customer -- we have built a good rep and shouldn't have trouble rounding up new business -- but this interpersonal tension is getting old.  Today I kept catching myself with my teeth clenched and my gut sucked in.  At times like these, I'm very pleased with my medications.  I'd be an anxiety- and paranoia-riddled basket-case otherwise!  Nevertheless, I am determined to hold my ground.  I'm well within my rights to insist on proper working conditions, and I know it!
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TJ
Wednesday, October 12, 2011, 11:55pm Report to Moderator Report to Moderator

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Ok, so just in case you hadn't noticed, my last post had nothing to do with Lyme disease... but I started the rant here, so I figured I should write anything more about it in the same place...  
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TJ
Thursday, October 13, 2011, 1:03am Report to Moderator Report to Moderator

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Quoted from Chloe
Holy cow...have any of you ever read this?  This person had been on the Discovery Channel's
Mystery Diagnosis.  Blew my mind to read it!

http://www.wildcondor.com/lyme.html
So I'm reading through this now.  Ribbit, I don't know if you've read it yet, but this sounds familiar:
One day I was driving my car while running an errand for my boss at work. I was driving along looking at the mountains when I felt a shooting pain across my chest, right below my bra line. I thought, it must be the bra, is it pinching me? It was the beginning of paralysis, and in the following weeks, I began slurring my speech, stumbling, getting lost, going out in my car and having no idea where I intended to go. I started to wonder if I had some kind of mental illness, since I was so confused in the head. I started to become increasingly forgetful. I could not remember what errands I was supposed to run.  I wandered, lost track of time, got lost in my own town, and spent 4 hours in the supermarket for no reason. My eyes hurt, they ached from the inside out, my vision went blurry, I could no longer sleep with the blinds down, or the window open. The slightest spot of light in my bedroom sent a violent shock wave through my entire body. It was very painful, the only way I can explain it to a healthy person would be to compare it to not having slept in 48 hours, being punched in both eyes, while having the flu, then drinking a 1 pack of beer, getting smashed, finally going to sleep, after puking, sleeping for 4 hours (while having nightmares of dying) and then someone opens the window, the sun hits your face, and you scream, no! I went to the Emergency room unable to feel my own skin, and with tingling and numbness all over my body. They sent me home telling me I had an anxiety attack.

I can personally relate to these bits:
When you have Lyme, everything gets amplified, and its like you can feel every little sound vibrate through your whole body. Damage to your nervous system makes you ultra-sensitive, and puts your startle reflexes on overdrive.
...
[T]wo-thirds of the doctors I saw told me I thought I was perfectly healthy on paper, and that I should see a shrink. I can't even begin to describe the lunacy and degrading verbal bs I had to put up with from dealing with so many ignorant doctors!
...
I was completely denied a normal life, having fun, hanging out with friends, furthering my education, working, and searching for my soul mate. I didn't have any choice, no real options. I had to fight to survive, and make difficult sacrifices because I was 100% dependent on others in order to just exist.
...
If you go to the doctor, and complain of being tired all the time, for 6 months or more, you are probably going to be diagnosed with chronic fatigue. You have to use common sense here. You have a symptom, and you are being diagnosed with a symptom. It makes no sense! You need to find out the cause!  That's what I'm talking about, hello!
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Thursday, October 13, 2011, 4:10pm Report to Moderator Report to Moderator

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yes yes yes!!!  All fear based but irrational.  That is exactly what I'm dealing with.  I get that way about supps too!!!  I usually don't quit them completely, although there have been a few times that I have.  But I crack mine all open and only take small amounts.  Like 1/8 to 1/4.  It just seems like full doses makes me feel more strange.  But regardless of that, my think is germs and what goes into my body.  I'm washing my hands a lot and almost every meal, when I'm making my food, there is something that bothers me about it.  It's like the Devil is trying to steal my food joy.  I'm fixating on issues that really just aren't issues.  Like, well, a spec in my food that might be darker than I thought it should be.  Etc etc.  Worrying about how clean the plate or bowl is that I've put my food into.  Those types of things.  I've been rinsing out all my utensils, and things, like that's going to help.  I worry about traces of soap still being on there.  And then I worry about germs.  It's all stupid.  I know that our saliva helps with this, certain herbs, salt, etc etc.  And there's no way you can make all the germs go away.  It's totally irrational, but it's been bad the last couple of days.  

I've also had the times where I'm just like high strung and don't even know why.  Like you need to hurry but for no reason.  I'm pretty good about spotting those and just slowing myself down though.  I did it last night a little bit though, and it took me a while to come down from it.  It's probably the weather change.  We went from Sunny and dry to wet and rainy this morning.  I don't know. I'm just glad I'm not alone and this is indicative of what we are struggling with.  We all sound so similar.

Oh, and for what it's worth, before health problems, I never used to think about any of this junk.  I practically never washed my hands, until I had kids and starting changing diapers.  But otherwise, none of these things ever entered into my mind.  It has to be something with the body that it's going through.  And it may be a spiritual battle also.  But we're all fighting it, obviously.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Thursday, October 13, 2011, 5:40pm Report to Moderator Report to Moderator

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Kyosha Nim
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I think the limbic brain goes into overdrive and can't re-set itself.  I found this guy's video on
youtube and have been practicing this technique and it seems to have made me feel calmer.  Also
full moon is slowly waning...

http://www.calendar-365.com/moon/moon-phases.html

Anyway, this youtube video....Dr. Henry Grayson....he just seems to resonate with my need for calm right now.

http://www.youtube.com/watch?v=1ZUi3XShdqA


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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nowishow
Thursday, October 13, 2011, 11:01pm Report to Moderator Report to Moderator

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Quoted from Chloe
Holy cow...have any of you ever read this?  This person had been on the Discovery Channel's
Mystery Diagnosis.  Blew my mind to read it!

http://www.wildcondor.com/lyme.html


What I want to know is where did she get all the money to do all those treatments. I know that wasn't covered by insurance. I know I'd do more treatments if I had more money.  

But she did make me feel like I'm not that sick. Her symptoms are much more extreme than mine are. So I'm feeling a little grateful right now.  


"Anxiety is the gap between now and then"

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Well, on one hand, I'm like, what the heck, worry about the animals before people???  On the other hand.  They have more hair and no way to check themselves.  Well, they might check themselves, but it probably wouldn't be as thorough as a person.  Or maybe not.  I don't know, but whatever.  It's a problem for all of us living creatures, obviously.  That does sort of confirm it though.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Thursday, October 13, 2011, 11:39pm Report to Moderator Report to Moderator

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Kyosha Nim
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Age: 71
Quoted from nowishow


What I want to know is where did she get all the money to do all those treatments. I know that wasn't covered by insurance. I know I'd do more treatments if I had more money.  

But she did make me feel like I'm not that sick. Her symptoms are much more extreme than mine are. So I'm feeling a little grateful right now.  


This is why I shared it....To put everything in perspective.  She wasn't doing a blood type diet...
so she was probably toxic on other levels...lectin damage.  I agree....that was quite an expensive
healing journey.  I know I paid a lot out of pocket for many protocols that weren't considered
medically necessary....but in the long run, I think it made me take full charge of my health...
put me in the driver's seat and forced me to try just about anything natural.

It also made me follow a more spiritual path.....and presently, always thinking about the internal dialogue I have with myself....reminding myself that I can't afford the luxury of negative thinking....Lyme was more than a debilitating painful physical experience....it was an emotionally, devastating reality.  I now focus on more positive thoughts and feelings.....The body only hears what you tell it....even if you lie and say "I feel wonderful....or I am healed"....Anything that comes from the heart is powerful....

I've been on a major quest for spiritual knowledge in the past week...That full moon, causing
so much anxiety propelled me to look for calming solutions.....and I have started to tell myself
"the glass is half full".  It could just as well be half empty...but a positive spin seems to be what
changes my thoughts and feelings.

I too feel grateful for my progress and I always remind myself how bad I once felt....I'm sure you will all get healthier too.  The body does know how to heal itself with the right tools. And
sometimes the greatest teacher comes with the harshest obstacles...The trick is to find the right tools to overcome these obstacles....  Different for all of us.  Never give up



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Chloe
Friday, October 14, 2011, 12:43am Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,275
Gender: Female
Location: Northeast USA
Age: 71
I am so paranoid about getting another tick bite that I spray myself with an herbal bug repellent before going outside. I spray my dog.

  My holistic vet won't give the lyme vaccine to dogs...He says side effects are not worth it, and it doesn't work very well anyway.... and how do you vaccinate any person or animal for all the potential co-infections?  In addition where I live, equine erlichiosis is rampant..A tick bites a horse that bites a dog. ...My dog has had this 3x.  So what's the point of a Lyme vaccine if her tick carried erlichiosis?

This isn't my vet but the opinion of a local holistic vet in my area.

http://drschoen.com/articles_L1_11.html

And another opinion

http://www.caberfeidh.com/Lyme.htm

And one more

http://www.i-love-dogs.com/forums/dog-chat/20885-lyme-vaccinate-not.html

And I didn't google the dangers of the Lyme vaccine for dogs.  I merely googled "Lyme vaccine for
dogs".  Many dangers came up.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Friday, October 14, 2011, 12:58am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Ugh, between the radio and the negative energy I was getting, I was at near-meltdown by the time I left work.  When someone is this profoundly affecting by such things, something is wrong.
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JJR
Friday, October 14, 2011, 1:10am Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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I didn't see ribbit say anything about Vaccination.  I don't think there is even such a thing.  Is there?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Friday, October 14, 2011, 1:12am Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
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Age: 42
Chloe, GREAT POST.

TJ, stress can do that to anyone.  But yeah, it's worse when you're not completely well.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Drea
Friday, October 14, 2011, 2:10am Report to Moderator Report to Moderator

SWAMI Warrior ~ Taster, NN, ENFJ
Sun Beh Nim
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I merged the two Lyme Disease threads...