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A thread to discuss lyme disease*  This thread currently has 155,403 views. Print Print Thread
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JJR
Tuesday, June 12, 2012, 5:22pm Report to Moderator Report to Moderator

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Kyosha Nim
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I must be in the right place, because it was one of the things that crossed my mind when I started feeling strange.  I thought to myself, you know, maybe I'm feeling weird because I'm doing some cleaning or something like that.  Meaning the weird feeling might be a good thing.  Of course my negative self just thinks something is wrong.  But I'm trying to have a better outlook.  So, yeah, it could be good things going on.


Ribbit, no, that's not what is going on with me and it's not the arrhythmia I get.  Well let me clarify something.  I get PVC's sometimes too, which sounds like to me is what is happening with you.  Many times pvc's will show up before the arrhythmia, if I'm over doing it.  It's almost a sign that they will start if I continue to get pvc's a lot.  But I'll get a pvc every now and then regardless.  Almost daily once or twice.  Sometimes I don't get any.  But I would say you're having some kind of arrhythmia if it's happening that much.  They'll probably want you to wear a monitor to record it if it happens.  Then they can read what kind you're getting.  And then they'll advise from there.  It's not a bad idea.  As soon as they can see the reading, it will help you to know what kind it is.  There are so many.  And some are non life threatening.  Mine is, according to my doctor.  But my Neighbor's son gets one that has a 90% fatality rate.  He got it once, and had to be defibrulated and all that.  I'm sure that's not what you're getting.  Well, I'm not a doctor, but obviously it's not that bad.  Most arrhythmia's are just that.  An arrhythmia (meaning they're not life threatening, especially if they go away not real long after starting).  But if your BP is swinging, it's probably wise to look into it.  You may just be overdoing it.  

Ribbit, caffeine is a huge contributor to arrhythmia's.  At least from everything I've read.  I would seek other ways to get energy.  I know that may be a huge blow, but it's true.  Mine happened so much less when I quit drinking latte's.  They still happened, but caffeine is a stimulant.  And it seems to be linked to these electrical problems.  In many people at least.  Caffeine will also constrict your blood vessels, which will raise your BP.  You just have to decide or figure out if it's behind the cause.  But from what I can tell, you're saying it's not linked, but you haven't stopped it to see if it really is or not.  I used to drink tons of caffeine without problems.  But eventually it caught up to me.  

Maybe you're pregnant?  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Tuesday, June 12, 2012, 6:00pm Report to Moderator Report to Moderator

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Kyosha Nim
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I forgot to tell you:  the arrhythmia I get is called an "accelerated junctional" rhythm.  I think it goes under the PSVT heading.  A-fib seems to be the most popular, out of the other people I know.  My step Dad gets A-fib and 2 other people from church.  But there are many forms of arrhythmias.

Also, my doctor has told me green tea is so good for you.  The caffeine in it is different than coffee, and Dr. D says it helps methylate and improves digestion.  I don't even drink the caffeinated version of that, but I have decaf of it.  I haven't been drinking tea lately though.  I just drink water.  That's it.  I should start drinking green tea again though.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Wednesday, June 13, 2012, 4:13am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from ABJoe
This sounds like a healing situation going on...  
That's what it sounds like: a healing crisis.
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Ribbit
Wednesday, June 13, 2012, 7:05pm Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
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Okay, y'all.  Here's the thing.  I quit coffee cold-turkey (drank a couple of cups of tea, but that's okay) and started putting magnesium gel on my chest over my heart.  I started taking Trehelose Complex and.....my heart hasn't skipped a beat since!  No need to see the cardiologist after all.  I have literally been FINE! The Trehelose Complex gives me the same calm alertness that Yerba Mate used to.  I haven't had any caffeine withdrawal and I'm not tired.  I love this stuff.

Now if it comes back even while I'm on it and off the coffee, then I'll go see somebody.  I don't know how we'll pay for it, but I guess it'll be added to the $2,000 we already owe and haven't been able to pay.    And we just spent $900 on the van and our roof is leaking water into the bedroom, so we need to replace the roof.  But....oh, well, life happens.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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ruthiegirl
Wednesday, June 13, 2012, 7:43pm Report to Moderator Report to Moderator

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Kyosha Nim
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Wow Ribbit!


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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Spring
Wednesday, June 13, 2012, 8:58pm Report to Moderator Report to Moderator

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Talk about good news - bad news.... I do feel for you, Ribbit... I'm just so glad, though, that for now, you are not looking to have to see a cardiologist. I hope that things will start looking up for you. Can the roof be patched for now?  


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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JJR
Thursday, June 14, 2012, 4:40pm Report to Moderator Report to Moderator

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Kyosha Nim
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YAY!!!!  

I might have to try this trehelose.  It makes sense that it helped that, possibly.  Because it seems like it's supposed to help the neurotransmitters, right?  And I would thank that would help the messages to your heart muscle.  Although I hear that beating is done at the cellular level.  But I'm sure there are very complex processes that involve neurotransmition too.  I would think.  But I'm not a doctor.

What's up with this magnesium gel?  Where did you hear about that?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Victoria
Thursday, June 14, 2012, 5:28pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR

What's up with this magnesium gel?  Where did you hear about that?


http://www.dadamo.com/cgi-bin/Blah/Blah.pl?b-pres/m-1296361320/



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
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Ribbit
Friday, June 15, 2012, 2:32pm Report to Moderator Report to Moderator

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Kyosha Nim
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My ND had recommended the magnesium gel because I've had to take unreasonable amounts of it to get to the bowel tolerance level.  She said likely I wasn't absorbing what I was taking orally, so she suggested I rub it on my belly.  It didn't help so I quit using it.  Then when somebody on the GA Lyme Facebook group said to use it over my heart (because a lot of Lymies seem to have this), I tried it and the effect was close to immediate.  Along with no coffee, of course.  

JJ, I read this on Facebook this morning and thought of you.

http://www.mdjunction.com/foru.....-stop-an-svt-episode


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Goldie
Friday, June 15, 2012, 3:27pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
At any rate, I'm going to see a cardiologist because I don't like it one little bit.


I am focusing on just TWO things.. PLEASE buy a pulse- oxy-meter in any drug store the finger stick on kind.. OR ASK YOUR DOCTOR to prescribe one or give you one from his office.. or they are about 25. - now.. maybe look for one on line? IT will make all the difference if you can MEASURE your pulse and oxygen to directly reassure your own mind that you are A-OK.    I know money is tight but its on investent in PEACE of mind.

The other thing... YOU will not be as bad as last year... YOU KNOW MORE TODAY!! so at least the fear is gone.. or at least most should be gone.. what you now experience is REAL.. a lot less frightening.  

The heat is very bad for people with autoimmune problems like Lupus also, so stay indoors, aircondition, and a wide brim hat at all time when outside.  

I am celebrating each post you make, you have come a long way!!!!! all the best.   I pm'd you..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Friday, June 15, 2012, 4:45pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Ribbit
My ND had recommended the magnesium gel because I've had to take unreasonable amounts of it to get to the bowel tolerance level.  She said likely I wasn't absorbing what I was taking orally, so she suggested I rub it on my belly.  It didn't help so I quit using it.  Then when somebody on the GA Lyme Facebook group said to use it over my heart (because a lot of Lymies seem to have this), I tried it and the effect was close to immediate.  Along with no coffee, of course.  

JJ, I read this on Facebook this morning and thought of you.

http://www.mdjunction.com/foru.....-stop-an-svt-episode



Thank you!!!  I've heard the face thing, but I don't think I saw the wrist part of it in the past.  I think I tried the face thing to no avail once.  But I've never tried the wrists.  Usually, it's just sitting still and drinking some water that makes it go away.  Plus, my doctor says mine is not life threatening.  Although she said she would have them for an hour.  Mine are rarely ever that long.  It's usually more like a minute.  Just a few times it went longer than that.  And one I ended up in the ER and then admitted.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Saturday, June 16, 2012, 9:18pm Report to Moderator Report to Moderator

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Kyosha Nim
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From the White Lines Just Aren't Healing  * thread:
Quoted from Karma
I've been on the diet for so many years and my white lines just aren't healing. I've taken many of the recommended supplements, including the ones recommended by the protocols.

Help?
Quoted Text
(Several other people, including me, complaining that their white lines haven't gone away, either.)
Quoted from Dr. D
You still have some sort of unresolved autoimmune issue.
Is Lyme disease an autoimmune disease?  After all these years, I should be able to eat egg and dairy protein (among other things) without acutely suffering for it.
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JJR
Sunday, June 17, 2012, 6:37pm Report to Moderator Report to Moderator

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Kyosha Nim
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Actually, that's a good question if that falls underneath that.  But either way, I think Lymes can mess up the guts.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Friday, June 22, 2012, 9:40am Report to Moderator Report to Moderator

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Ee Dan
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After numerous heart tests, it is confirmed that I have one!!  .  

Echo and stress test okay.  Abdominal Aorta dopler okay, just shallow.  We think because I was an exercise nut before I got sick that bradycardia might have been the norm for me.  Lyme is just making it flip out now and then.  No more palpitations.

Changing up the antibiotics.  My gut needs a break so I am off orals for about a month but still doing IV Rocephin, now twice a day until it is gone.  Then I am going to Clindamycin once a day for 5 days.  Slowly getting better, with the usual flare ups of Lyme and coinfections.  Babesia is a bear to beat down.  Adding arteminisin to the mix.

Thyroid has tanked again.  T3 is so low it is way below lowest lab value but am adding more cytomel during the day hoping to bring that back up.  Starting Rife next week too.  Hoping that may get me off antibiotics sooner.

Right now I am fixating on my first vacation in 25 years at the end of the summer.  Going to Colorado.  We are taking a camper with our dogs.  We can move around the different areas and leave a high elevation if one of us has issues with it.  We are looking at real estate out there.  
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Goldie
Friday, June 22, 2012, 10:10am Report to Moderator Report to Moderator

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Sam Dan
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Look into Ondamed.net for micro-organisms & parasites also..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Friday, June 22, 2012, 4:52pm Report to Moderator Report to Moderator

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Kyosha Nim
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Well that's great that the tests all showed up good for your heart!!!!  Man, you are taking a bunch of stuff.  I pray it's helping!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Friday, June 22, 2012, 11:19pm Report to Moderator Report to Moderator

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Quoted from JJR
Well that's great that the tests all showed up good for your heart!!!!  Man, you are taking a bunch of stuff.  I pray it's helping!!!!


It is slowly improving things.  My rife machine arrives on Monday and I am going to start using it right away.  DH is not doing as well.  Need prayers for him.  
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JJR
Saturday, June 23, 2012, 4:48pm Report to Moderator Report to Moderator

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Kyosha Nim
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Ugh.  I will pray for him, both of you.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Thursday, June 28, 2012, 3:16pm Report to Moderator Report to Moderator

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Kyosha Nim
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Man, did I have a anxious day yesterday.  I had been getting better with germaphobic/ocd, but yesterday it got the better of me at lunch and breakfast.  I wonder if it's the heat.  Or fighting lyme or coinfection.  Or just a learning experience mentally.  Maybe a combo of all of them.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Thursday, June 28, 2012, 8:50pm Report to Moderator Report to Moderator

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Kyosha Nim
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It's good that you are able to step back and see what happened, but it would be even better if you knew why, right?
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JJR
Friday, June 29, 2012, 3:40pm Report to Moderator Report to Moderator

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Kyosha Nim
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The 17 hundred, million, gazillion dollar question.  why

I think so many things happen just to remind me that life will never be perfect down on this planet.  There is a better place.  At least that's what I believe.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, July 22, 2012, 4:32pm Report to Moderator Report to Moderator

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Kyosha Nim
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Green Dragon Botanicals has a small line of products that roll up the core Buhner protocol herbs into one. There are capsules and tinctures for treatment, and preventative capsules. I just placed an order for the treatment caps, "LB Core Protocol". I also sent in a question to Mr. Buhner's Lyme website to see what he thinks of the product.

http://greendragonbotanicals.com/
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JJR
Monday, July 23, 2012, 4:04pm Report to Moderator Report to Moderator

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Kyosha Nim
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All in one?  To me, that seems scary.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Monday, July 23, 2012, 4:24pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
Kim.. It is slowly improving things.  My rife machine arrives on Monday and I am going to start using it right away.  DH is not doing as well.  Need prayers for him.


that was a week ago.. any thing better yet?  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
Monday, July 30, 2012, 1:55am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from JJR
All in one?  To me, that seems scary.
It just seems convenient to me. It doesn't contain Siberian ginseng (so therefore not really complete coverage of the updated core protocol), but it's easy enough to add that, and it's recommended in a tincture form anyway.  Mine arrived on Friday, so I've just barely started on it. So far I haven't noticed any adverse reactions.
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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  A thread to discuss lyme disease*

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