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A thread to discuss lyme disease*  This thread currently has 174,320 views. Print Print Thread
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Ribbit
Sunday, April 22, 2012, 3:50am Report to Moderator Report to Moderator

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Kyosha Nim
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(Sorry, JJ, I forgot you'd been bit years ago as well.  Or at least maybe bit.)  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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ABJoe
Sunday, April 22, 2012, 3:59am Report to Moderator Report to Moderator

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Quoted from Ribbit
--and I'm planning on being here a while longer.    I got STUFF to do!

That's really great that your attitude is looking up...

I've had to be careful to not ramp up too quickly, but I know we are dealing with different issues.  I just hope you don't overdo...


RH-, ISTJ
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Victoria
Sunday, April 22, 2012, 4:54am Report to Moderator Report to Moderator

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Quoted from Ribbit

  Anyway, I'm actually able to make plans for the future now, and it's doing something I love--growing plants--and I'm planning on being here a while longer.    I got STUFF to do!





Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Spring
Tuesday, April 24, 2012, 4:53am Report to Moderator Report to Moderator

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Ribbit, your post from Saturday is just wonderful. And inspiring. I am so glad you are able to do more things and finding life worth living again. It is incredible that you were up to to working that long in your garden!

I have two new tick bites from last week. How anyone actually sees these things before they get big enough to start itching is beyond me. I wonder if smearing garlic all over my shoes would keep them off my legs. I hate to think what that would smell like after a while in the hot sun!!! I was reading tonight that they don't like it. And I imagine that I would like it a whole lot less!


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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Goldie
Tuesday, April 24, 2012, 1:49pm Report to Moderator Report to Moderator

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Sam Dan
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Ribbit .. if it is in your budget.. maybe Threhalose Complex might be a good thing ..  it seems to fix nerve things.. few other things do.. and that includes nerve connections in the brain.. at least I hope so..

I am so glad that after you looked at 'dying'  a long time ago.. you got better.. glad for all around you!// glad yo are here to share..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Goldie
Tuesday, April 24, 2012, 1:51pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
I have two new tick bites from last week. How anyone actually sees these things before they get big enough to start itching is beyond me. I wonder if smearing garlic all over my shoes would keep them off my legs. I hate to think what that would smell like after a while in the hot sun!!! I was reading tonight that they don't like it. And I imagine that I would like it a whole lot less!


YOU ARE (rightfully) SCARING heck out of me.. PLEASE ALL BE careful!!!


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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ABJoe
Tuesday, April 24, 2012, 3:31pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from Spring
I wonder if smearing garlic all over my shoes would keep them off my legs. I hate to think what that would smell like after a while in the hot sun!!! I was reading tonight that they don't like it. And I imagine that I would like it a whole lot less!

One possibility to help...
http://www.ehow.com/how_5375514_make-tick-repellent.html


RH-, ISTJ
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Spring
Tuesday, April 24, 2012, 4:13pm Report to Moderator Report to Moderator

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Goldie, I am trying to be careful, but with a yard full of trees, bushes and grass, it is almost impossible to avoid them. And I DO check for them all the time.....

Joe, thanks for the link. I already have the almond oil and a bottle, so now I need the neem oil. I just wish these deer would go back to the woods and stay there.


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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Goldie
Tuesday, April 24, 2012, 6:35pm Report to Moderator Report to Moderator

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well sorry but the lifecicle of the tick is not ONLY on Deer.. its on all animals but DEER have no way to brush them off.. 1 Apossum can brush and kill of 500 day ..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Tuesday, April 24, 2012, 7:30pm Report to Moderator Report to Moderator

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Ribbit, GREAT POST.  YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  I'm so glad you're feeling better.  I'm going to get with my doctor sometime soon here.  I think I need to take the list of things you are taking, to see if I should be doing them too. I'll have to FB message or call you sometime.  If you have time.

I hit 129.5 last night.  PRAISE THE LORD!!!!!!  You still got me beat TJ.  I think you're a bit taller though.  I don't know.  I'm like 5'8".  

Ribbit, you're not fat.  Just ask Rob.  I bet he thinks you look just great.  Just believe him and trust him if you ask.  Tell him to answer sincerely to "How do I look to you?"  And take his answer and burn it in your brain.  Unless it's negative.  Then he's just being dumb.  But I bet he won't say it.  But beyond all that.  Who cares what you look like?  Does that help spread the good news?  Does it help further God's kingdom?  Yeah, it might help you feel better, but that's a temporary thing.  It's an emotion.  Emotions lie to us.  And sometimes tell us things we shouldn't hear.  Sometimes they are good.  But sometimes they are not.  You look good, but far more important to me is your heart.  You are so beautiful on the inside.  You have helped me out so much and I am so thankful to know you.  You have been a blessing to me and to many others on here.  I could care less if you weighed less or more than me.  It's that sweet spirit that matters to me.  And to the others around you.  And to God.  I know you know that, but I'm just reminding you and trying to encourage you.  Eat.  It's good for you.  Don't worry about getting fat.  God will lead you.  

Having said all that, I struggle too with looking too weak for a man.  So I'm not judging you.  I'm preaching and it's a lesson that I'm trying to learn too.  So I hope that didn't sound judgemental.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Spring
Tuesday, April 24, 2012, 10:32pm Report to Moderator Report to Moderator

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Quoted from Goldie
well sorry but the lifecicle of the tick is not ONLY on Deer.. its on all animals but DEER have no way to brush them off.. 1 Apossum can brush and kill of 500 day ..


Maybe that is why the deer are tearing up so many types of trees around here. They will beat a Leyland Cyprus to death nearly. The ticks get on the trees and jump off on us when we walk near them.


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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ruthiegirl
Wednesday, April 25, 2012, 9:19pm Report to Moderator Report to Moderator

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I'm so glad you're feeling better Ribbit!

Could you guys help me decipher the lab results I finally got in the mail today? The dr's conclusion is that I don't have Lyme, but I'm not sure if the tests she ordered are conclusive or not.

41 KD (IGM) Band: nonreactive
18 KD (IGG) band (also 23,28,30,39,41,45,58,66 and 93) all non-reactive
23 KD (IGM) band reactive
39 KD (IGM) band nonreactive
Lyme disease iterp (IGG) and (IGM) both negative

Do those tests definitely rule out Lyme? Is there any significance to the one reactive  test?


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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Kim
Thursday, April 26, 2012, 12:16am Report to Moderator Report to Moderator

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Quoted from Ribbit
And Kim, it is SO good to see you back!  I'm glad those abx are working for you.  


Thanks! I don't get over here that often anymore.  Still have some rough days and now I am having arrhythmias.  My pulse hit 40 while I was hooked up to a blood pressure machine at the doctor's office.  All kinds of bells and whistles rang when that happened.  Now I have a bunch of heart tests I have to do to see if Lyme has caused an electrical problem in my heart.  It never ends.
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Kim
Thursday, April 26, 2012, 12:19am Report to Moderator Report to Moderator

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Quoted from ruthiegirl
I'm so glad you're feeling better Ribbit!

Could you guys help me decipher the lab results I finally got in the mail today? The dr's conclusion is that I don't have Lyme, but I'm not sure if the tests she ordered are conclusive or not.

41 KD (IGM) Band: nonreactive
18 KD (IGG) band (also 23,28,30,39,41,45,58,66 and 93) all non-reactive
23 KD (IGM) band reactive
39 KD (IGM) band nonreactive
Lyme disease iterp (IGG) and (IGM) both negative

Do those tests definitely rule out Lyme? Is there any significance to the one reactive  test?


According to my Lyme doctor, anything not totally negative is a low positive.  So Indeterminate or non reactive is positive.  Still, Lyme is a clinical diagnosis as even Igenex tests are not accurate.  Band 39 is the most specific for borrelia.
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JJR
Thursday, April 26, 2012, 2:29am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Kim


Thanks! I don't get over here that often anymore.  Still have some rough days and now I am having arrhythmias.  My pulse hit 40 while I was hooked up to a blood pressure machine at the doctor's office.  All kinds of bells and whistles rang when that happened.  Now I have a bunch of heart tests I have to do to see if Lyme has caused an electrical problem in my heart.  It never ends.


An arrhythmia is the first symptom I've gotten and I've had one for a long time.  That's weird how yours goes real low though.  Mine goes into a weird double time rhythm.  It's usually like 140-160 bpm.  They are no fun though.  I will say a prayer for you.  It's always scary when your heart doesn't beat the way it should.  I would start looking to the cellular level, and of course the nerves.  I think taking COq10 helps mine.  Plus cod liver oil.  

Someone was telling me that if you took a cell from the heart, the cell itself beats.  It's the only cell that does that.  Or something like that.  So, there may be some cellular junk needing to be cleaned out in you and me.  I know detoxing will help that.  

I have also found certain foods trigger it for me.  Onions do, without a shadow of a doubt.  Especially raw.  But I stay away from them, and it helps it not happen as much.  One time I start eating onion rings again, after having avoided onions, and sure enough, they started to happen again frequently.  It was no doubt that the onions were a trigger for me.  And I think caffeine too.  I don't drink any caffeinated drinks.  Even green tea I get the decaf kind.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Friday, April 27, 2012, 11:07pm Report to Moderator Report to Moderator

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Quoted from Goldie
SOMEPLACE in this thread there was a link to all 300 symptoms.. I think Ribbit posted it.. any chance that you could post it again??


This is a great symptom chart, including co-infections.

http://www.lyme-symptoms.com/LymeCoinfectionChart.html


"Anxiety is the gap between now and then"

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Ribbit
Saturday, April 28, 2012, 12:50pm Report to Moderator Report to Moderator

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I just copied this off a forum that I found when googling what the bands mean.  I don't know where this info came from though.




Western Blot Bands description:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
Saturday, April 28, 2012, 1:01pm Report to Moderator Report to Moderator

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JJ, Rob says I'm too skinny.  I have friends who are healthy who are much thinner than I am.  This is just the thinnest I've ever been.  I can't say I'm complaining.  As someone who was always a little heftier (probably due to the underactive thyroid), I'm certainly not complaining.  I just still have Fat Brain.

Joe, I have indeed overdone it.  We have some invasive grass on a hillside (something tall and bushy and hard to mow), so I'm systematically shoveling it out and doing some landscaping in its place.  But erosion happens fast, so I've been moving rocks from down by the creek up to the hill.  Not only it my back complaining, my ... um ... pelvic organs are telling me they're too heavy.  So I'm regretting moving all those rocks.  Seems like I can move three or four, but I can't move 20.  They're just too big.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Goldie
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Quoted Text
I struggle too with looking too weak for a man.


Move to a country where men are slimm (before Mc Donalds).  Sweden, Switzerland, England, Denmark, Holland,  Thyland..  just saying.. don't have a herd complex.  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Victoria
Saturday, April 28, 2012, 6:14pm Report to Moderator Report to Moderator

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Quoted from Ribbit

Not only it my back complaining, my ... um ... pelvic organs are telling me they're too heavy.  So I'm regretting moving all those rocks.  Seems like I can move three or four, but I can't move 20.  They're just too big.  


Our human bodies are inconsistent.  Sometimes our muscle strength exceeds the strength of our joints and connective tissue.  It's easy to overexert. And then there is the adrenal fatigue ..  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Spring
Saturday, April 28, 2012, 6:23pm Report to Moderator Report to Moderator

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Quoted from Kim


Thanks! I don't get over here that often anymore.  Still have some rough days and now I am having arrhythmias.  My pulse hit 40 while I was hooked up to a blood pressure machine at the doctor's office.  All kinds of bells and whistles rang when that happened.  Now I have a bunch of heart tests I have to do to see if Lyme has caused an electrical problem in my heart.  It never ends.


I wonder if Hawthorn would help you...... I take it ever day.

A quote: "A few months later, the girl's father called again, elated, to share his good news. Just in time for Christmas, his daughter was off the calcium channel blocker completely, thanks to the hawthorn, coenzyme Q10 and magnesium. At her last checkup, her doctor detected no arrhythmia at all. I suggested that he plant a hawthorn tree in his yard to show to people when he recounts his story."


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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JJR
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Quoted from Goldie


Move to a country where men are slimm (before Mc Donalds).  Sweden, Switzerland, England, Denmark, Holland,  Thyland..  just saying.. don't have a herd complex.  


I have noticed that.  And I'm aware of it.  I hit 130 on Thursday night PRAISE THE LORD!!!!!!!  I'm thinking 140 would just about be ideal.  But I think 140 with some more muscle mass is what I want.  So, I need to start building some muscles by exercising.  I have been able to do more.  Go shopping more, get out more, etc.  But I've yet to move rocks and shovel like Ribbit.  It's been a long time since I've gotten real physical.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Tom Martens
Sunday, April 29, 2012, 1:18am Report to Moderator Report to Moderator

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Quoted from 18521
So glad I found this thread.  I have had LD for probably 20+ years.  I was misdiagnosed and tried everything to feel better.  I started with the BTD for O, thinking I was Type O.  I got really sick and dropped the diet.  I took the blood test 3 times and it came up A+.  What??? Both my biological parents are O on their medical records.  Go figure - must be a mistake on one of them.


Your parents are most likely Oa, Oa.  Blood type A has a 1 in 4 chance of happening.


Be who you are.  Those who mind don't matter, those who matter won't mind.

FIfHI

M,M LeA+ LeB-

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ABJoe
Sunday, April 29, 2012, 1:23am Report to Moderator Report to Moderator

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Quoted from Tom Martens
Your parents are most likely Oa, Oa.  Blood type A has a 1 in 4 chance of happening.

Tom, how is this possible?  If A is dominant to O, then if the parents had an O and an A allele, both would be Type A, correct?


RH-, ISTJ
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Tom Martens
Sunday, April 29, 2012, 4:03am Report to Moderator Report to Moderator

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A is dominant to O.  

However, two Recessive O's make an O.

Both of my parents are A and there are 3 of us children that are O.

It' not that uncommon.

If you google blood type tutorial, a chart will show you the possibilities.








Be who you are.  Those who mind don't matter, those who matter won't mind.

FIfHI

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