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A thread to discuss lyme disease*  This thread currently has 172,538 views. Print Print Thread
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JJR
Thursday, December 15, 2011, 5:05am Report to Moderator Report to Moderator

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Kyosha Nim
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Sweeeeeeeeeeeeeeeeeet!  I mean, savory!!!!!!!!!!!  Hehehehe.   That sounds really good.  I think I need some carrots soon myself.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Saturday, December 17, 2011, 12:47am Report to Moderator Report to Moderator

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Kyosha Nim
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JJ, that made me laugh.  I like your drawing, TJ, but I can't think well enough to come up with anything to do differently.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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JJR
Saturday, December 17, 2011, 3:30am Report to Moderator Report to Moderator

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Kyosha Nim
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I had carrots at lunch today.  YUM.  About 2 cups of carrots with 4 oz of canned salmon and a little bit of evoo.  It was good.  I followed it up with about a cup of brussel sprouts and pecans bout an hour later.  Is it me or do pecans go with almost anything.  I'm learning to really enjoy my food and thanking God for a good amount of hunger.  Thank you LORD!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Saturday, December 17, 2011, 10:21pm Report to Moderator Report to Moderator

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Kyosha Nim
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That's wonderful, JJ!


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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nowishow
Monday, December 19, 2011, 8:16pm Report to Moderator Report to Moderator

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JJR- I'm so happy to hear you're enjoying your food!  


"Anxiety is the gap between now and then"

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JJR
Tuesday, December 20, 2011, 2:04am Report to Moderator Report to Moderator

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Kyosha Nim
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It has been a huge blessing.  HUGE!  Now I need to get over some of these phobias.  My brain is getting tired trying to keep it all straight.  Hehehehe.  Plus, it's just kind of hectic around here, as it probably is for everyone else too.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Sunday, December 25, 2011, 1:25am Report to Moderator Report to Moderator

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Kyosha Nim
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I need a sounding board to whine.  My wife and kids went down to her parents house in Alabama.  I'm staying at my parents so I don't have to be alone.  

My anxiety level is really not so good.  Every time I eat I'm starting to freak.  Tonight I made venison burgers and I was just freaking about if they were completely done.  I baked them and I usually flip them.  Well, this time I didn't.  The internal temp was fine, and I'm coming down from my anxiety with a little help from essential oils.  But I'm just mentally all out of sorts.  I'm not at home, my parents are nice but not as understanding about my situation as my wife and you all here.  They like to watch TV constantly with the volume so loud, it's just not relaxing.  Plus it's all movies I've seen a million times, or ones that are just dumb.  Like the Return of Zoro or some c**p.   And you just have to know my Dad.  He's watching the Movie Sahara and he acts like we should all have our eyes glued and when I told him I've seen it a few times already, he's completely surprised.  Because he's the kind of guy that thinks if he hasn't done it seen it, nobody else could know about it besides him.  

I have to go up a flight of stairs to a bedroom, which last night seemed to get my lymph's moving and I was fighting that no breath thing, even though my heart rate was real low.  

Then, my Grandma and other Dad went over to my sisters today.  They were expecting me to come, even though we're planning on having them up for Christmas at our house when my wife gets back.  And all this stress is making me not feel so good.  So I didn't go.  And I could tell my Grandma was not happy with me.  

I'm more inflamed than normal and I don't really know what's causing it, other than I'm not at home, and I'm stressed.  My Mom likes to think she has a super healthy household, but she uses all kinds of chemical soaps and what nots and I can't tell what dishes are clean and what aren't.  Etc etc.  

I want to go into the night and run away screaming, IF I could actually manage it.  

I'm trying to hold onto God and his provision and care for me, but I have to admit, I'm not doing a very good job of it.  I'm not doing a very good job at rejoicing in my troubles.  I guess I need to start.  

Anyways, thanks for listening.  Any prayers and good vibes are welcomed.  I'll be fine, I just wanted to whine to someone.  I know you guys really know what's up and how these things can affect us.  It's like everything is heightened by not feeling well.  And the part that's frustrating is I was feeling better before all this.  I had a feeling it would all come to this, but I'd rather just be at home with my wife and kids.  Soon enough.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Sunday, December 25, 2011, 5:42am Report to Moderator Report to Moderator

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I'm so sorry you're having such a hard time JJR. I'm home by myself (well me and my cat). My spouse has gone to her family's house for Christmas. I haven't been able to handle a party situation for a long time so I know how you feel. It's all too much and I just get sicker and sicker. And there's no good way to explain how you feel too your family. So I end up feeling bad for not going or I end of feeling terrible (physically and emotionally) if I go.

This year I'm going to meet with family later in the week. I'm hoping some of the craziness will have calmed down by then. But I know it will still be hard on me. The drive is three hours and that will have me in tremors by the time I get there. But I do want to see my family and show them I care.

I wish you the very best. I'm thinking of you and sending you a big hug.  


"Anxiety is the gap between now and then"

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JJR
Sunday, December 25, 2011, 6:54am Report to Moderator Report to Moderator

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Kyosha Nim
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Thank you.  Yeah, it's a darned if you do and darned if you don't situation.  I so understand what you're going through.  And no one can understand what our minds and bodies deal with, because they're not where we're at.  I know sometimes I should just give in and go.  But like you say, you pay for it.  I'm paying for it just being somewhere else than home, and anything more is just really over the top for me, right now.  

I made some of my Mom's Brown rice last night, it was Goya long grain, and my Mom's cooktop is a little hotter than mine.   Well, it was really dry and I ate a good amount anyways.  And I think I paid for it.  It's just things like that can really make an impact on how I feel.  When I'm at home, I have so much more control over what goes into my body.  And I think it makes a difference.  Oh well.  Sooner or later, it will be over with and things will be back to normal.  I guess I need to just relax, think happy thoughts about future days.  Endure what I can, the best I can, with the best attitude I can muster.  But man I want it to be over with.  I'll say a prayer for your upcoming trip.  IT'LL BE GREAT!!!  You're so strong.  But I will say a prayer for you.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, December 25, 2011, 8:16am Report to Moderator Report to Moderator

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The most stressful situations I ever deal with are ones in which I don't have enough control of what is happening to me.  I understand what that's like.  I hope you can hang in there and have enough downtime to recover when you get home.
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deblynn3
Sunday, December 25, 2011, 2:51pm Report to Moderator Report to Moderator

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{{{hugs}}} to all who find this time for whatever reason stressful.


Swami, 100% me..
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ruthiegirl
Sunday, December 25, 2011, 4:07pm Report to Moderator Report to Moderator

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I'm sorry JJR.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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Chloe
Sunday, December 25, 2011, 4:11pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from deblynn3
{{{hugs}}} to all who find this time for whatever reason stressful.


I ditto what deblynn3 said!

Just want to add that when things have gone out of control for me, I remind myself not to feel
victimized by the behavior of others...not to get caught up in their issues....issues that clearly aren't mine to get sucked into or really care about.....I try to find a quiet spot somewhere to get away from the chaos and just sit and meditate for awhile...pull the plug on the world around me and detach myself from egos that I find difficult to cope with.

Sometimes just listening to calming music or a guided meditation CD helps me.  Although I totally understand the frustration you feel when having to deal with behavior of others that you find so annoying. You need some survival skills so you can take control back of your life. Finding something positive to replace the negative energy that engulfs you might make you feel more self empowered...

I hope things get better for you JJR..


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Kim
Sunday, December 25, 2011, 4:28pm Report to Moderator Report to Moderator

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JJR-  I know that telling you that going through lyme treatment produces all the feelings that you are going through isn't going to make it better.  The roller coaster of emotions starts and feels like a boiling pot of water that you can not stop.

For me, I try to find one alternative activity that will get me off the current panic episode.  I get into the shower or to take a bath.  Call a good friend and rant on the phone if it helps.  Sometimes just listing to some praise and worship music will help.  Find that one thing that can distract you.  

The lyme die off is messing with your central nervous system.  That is a sign that your treatment is killing those little critters.  I have to keep telling myself that this is a long marathon.

Merry Christmas!!!!
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JJR
Sunday, December 25, 2011, 5:47pm Report to Moderator Report to Moderator

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Chloe, I had a good morning and got to do just what you said.  I had some Bible reading time of psalms, I listened to some music that I love on my laptop that I brought with, and I meditated on some verses.  I asked God to help me and my and show me the way.  I'm wanting to go home, but I'm not sure which day, as I don't necessarily want to be alone for days on end.  I may go back at the end of tomorrow, so I can sleep in my own bed, and I'll have a day and a half before my wife gets back.  But regardless, I had a good quiet time, and it helped.  I think I'll get more today, because my Mom and Dad are planning on going to a movie and I think I'll stay home and listen to some more music.  Plus, I have to skype my wife and kids.  And I have to keep getting good food in me.

Oh yeah, I fried a perfect egg at breakfast this morning.  I think it was God's gift to me.  I had other stuff too, but for some reason when an egg is done just right, it makes me all fuzzy inside.  

Thank you all for giving me a sounding board and  understanding hearts and minds.  And the support is such a blessing.  I don't know if I've said it enough, but this place has been such a huge blessing and comfort in times of trial for me.  I have gleaned information, help, and so much more.  I've gotten love from so many and it means a ton.  I hope I can return a portion of what has been given to me.  I thank God for you all, and even if we don't have the same spiritual beliefs, I still feel the same way about all of us that support each other.  What a great place to be.  And I'm especially thankful right now.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, December 25, 2011, 7:48pm Report to Moderator Report to Moderator

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Quoted from JJR
I had other stuff too, but for some reason when an egg is done just right, it makes me all fuzzy inside.
Fuzzy like a loaf of bread that's been out too long?
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JJR
Sunday, December 25, 2011, 8:37pm Report to Moderator Report to Moderator

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No no, a good kind of fuzzy.  C'mon, don't be messing with me like that with all my germaphobia.  hehehhe.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Sunday, December 25, 2011, 8:40pm Report to Moderator Report to Moderator

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Quoted from JJR
I made some of my Mom's Brown rice last night, it was Goya long grain, and my Mom's cooktop is a little hotter than mine.   Well, it was really dry and I ate a good amount anyways.  And I think I paid for it.  It's just things like that can really make an impact on how I feel.

I'm not sure it makes that big of a difference...  I can have varying responses from the same food item cooked the exact same way...  I think it has more to do with what the body is doing internally, or other inputs combined, rather than a minute difference in the preparation of 1 food item.

I understand the logic you went through to arrive at your decision, but I'm not sure it is a valid conclusion based on the immense number of variables that aren't taken into account.


RH-, ISTJ
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Goldie
Sunday, December 25, 2011, 8:56pm Report to Moderator Report to Moderator

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I am glad for all times we can say things and be understood.. I used to get all crazy with family, but as I got older and AM EXPECTING less of my self, I am able to cope better with holidays.. I used to feel inadequate or as if I should be more.. what I had no idea, since I was giving it my all, but still I was nudgy/uncomfortable to me.. ME... Later I started to VOTE with my feet and leave even if only into another room when things got to tense.. IT took years but now it is understood that I will not stay to be abused no matter what kindness is expressed.. when I feel myself starting to get emotional I walk out, away, or at least to a bathroom.  It just is not possible to recover otherwise.. and recover I have to, or I would have no life at all.

Be good to all of you and tell your 'self' that you deserve whatever you need and there is nothing wrong with any request, even if it can not be fulfilled always.

all the best and soon the hard times will be over.. a good thing, just as is the anticipation..  

    


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
Monday, December 26, 2011, 5:37am Report to Moderator Report to Moderator

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Quoted from JJR
No no, a good kind of fuzzy.  C'mon, don't be messing with me like that with all my germaphobia.  hehehhe.
Perhaps I could interest you in some superstition instead? (as I notice that your post is number 666)
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Lin
Monday, December 26, 2011, 12:34pm Report to Moderator Report to Moderator

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Chloe, I do agree with your comment :

I think the problem with learning to eat a lot of  vegetables as a primary ingredient is the way we've learned to prepare them.

And I love some of the ideas you jotted down and plan to try some, especially the roasting squash whole.  I'm often put off making something if it feels like a lot of work but that is such a simple idea.  Perhaps we should have a thread for cooking veggie's!

thanks, Lin


Gluten/Casein and Yeast sensitivity.
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Chloe
Monday, December 26, 2011, 2:41pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Lin
Chloe, I do agree with your comment :

I think the problem with learning to eat a lot of  vegetables as a primary ingredient is the way we've learned to prepare them.

And I love some of the ideas you jotted down and plan to try some, especially the roasting squash whole.  I'm often put off making something if it feels like a lot of work but that is such a simple idea.  Perhaps we should have a thread for cooking veggie's!

thanks, Lin


You're welcome Lin.

I know there have been many threads over the years on sea vegetables and cultured vegetables and I think I remember reading and writing about cooking vegetables but unless threads attract interest they seems to disappear from the search engine. I'll start one on cooking vegetables.  Let's see if it sparks any interest.  The forum is forever changing.  You never know when a vegetable expert will appear.  


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Monday, December 26, 2011, 5:14pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Quoted from TJ
Perhaps I could interest you in some superstition instead? (as I notice that your post is number 666)


If man is 5, then the devil is 6, THEN GOD IS SEVEN!!  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ruthiegirl
Monday, December 26, 2011, 6:03pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from TJ
Fuzzy like a loaf of bread that's been out too long?


I think he means fuzzy like a hypo-allergenic cotton fleece blanket, freshly washed and sanitized in hot water with pure, gentle soap, still warm from the dryer.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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JJR
Tuesday, December 27, 2011, 2:04am Report to Moderator Report to Moderator

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That's awesome ruthie.  Made me laugh!  And yes, feels good too.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  A thread to discuss lyme disease*

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