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A thread to discuss lyme disease*  This thread currently has 172,003 views. Print Print Thread
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JJR
Sunday, December 4, 2011, 12:32am Report to Moderator Report to Moderator

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Kyosha Nim
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HSLDA Baby.  Oh that remeinds me, I have to pay them!!!

yeah, I get the fevers in summer pretty regularly.  Low grade, but they're there.  And I usually feel better the next day than I had previous to the fever.  Problem is I get stretches of them.  I'll have a week or two and from about 2:30 PM to 5:30 - 6:00 PM I'll be so wiped out with fatigue, all I can do is sit and walk through mud when I do stuff.  But, I know it's probably doing good also.  So.....  It is what it is.

Ribbit, I'll be praying for your financial situation.  

How are you today TJ?  Seems like a fever is a bit stiff for a cold.  I don't always get a fever just from a cold.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, December 4, 2011, 10:44am Report to Moderator Report to Moderator

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Quoted from Ribbit
I think Lyme brings the body's temperature down.  Don't we all have underactive thyroid?  I feel *horrible* when I'm cold.  I hate winter.  I used to be afraid of it.  Now I wear wool sweaters and wool socks and I build fires in the fireplace.  My body shuts down when I'm cold.  In the rare times when I can actually run a fever (not counting the times last year when I was running a low-grade fever just about every afternoon), I feel fantastic afterwords.  I think getting a fever is one of the best things for me.  For 10 years now my husband has been telling me the reason I feel so good after a fever is because it's killing something off.  We believed it was Candida, but now I think it's Lyme bacteria/viruses.
I am so there.  I didn't realize the cold thing was related.

Quoted from JJR
How are you today TJ?  Seems like a fever is a bit stiff for a cold.  I don't always get a fever just from a cold.
Much better today.  I was miserable yesterday, but the fever broke last night and today has been productive; and I'm not just talking about quantity of mucus I produced.   I haven't had the nausea I'd suspect from the flu, so I'll consider it a bad cold.

Does anyone know of a good way to induce a fever?
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JJR
Sunday, December 4, 2011, 7:19pm Report to Moderator Report to Moderator

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Let your body decide when to.  That would be my thinking.  Hot weather does it for me.  Actually, now that I remember, it seems like when I take elderberry it sometimes will kick the fevers into gear.  I haven't had it in a while.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, December 4, 2011, 7:37pm Report to Moderator Report to Moderator

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I just did some reading on it.  I had a big "DUH" moment when use of a sauna was mentioned.  That's probably safer than taking something internally to induce a fever (or more accurately, hyperthermia).

I guess I need to get back in the habit of going to the gym even if just to use the sauna.

BTW, I'm not feeling as good today... maybe since I didn't have the fever yesterday?
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ruthiegirl
Monday, December 5, 2011, 4:29pm Report to Moderator Report to Moderator

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Kyosha Nim
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I don't get fevers often either. I went well over a decade without ever having one. The last time I had a fever, I was so excited that my immune system was finally working properly, even though I truly felt awful at the time, it was a "good" kind of feeling awful KWIM? I think I've had a fever twice in the past year.

Whoever offered me a bottle of teasel- thanks, but no thanks. My body has been acting crazy enough lately, I really don't think  this is a good time for me to possibly induce another healing crises. Frankly, I've been having enough fibro-flares that I'm not sure I'd even be able to recognize a reaction to a new supplement.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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JJR
Monday, December 5, 2011, 5:31pm Report to Moderator Report to Moderator

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I know how you feel ruthie.  I've been there all too often.  As far as introducing something new.  What is "KWIM"?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ruthiegirl
Monday, December 5, 2011, 6:18pm Report to Moderator Report to Moderator

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KWIM= Know What I Mean


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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TJ
Monday, December 5, 2011, 8:41pm Report to Moderator Report to Moderator

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My temp was 97.0 today.   I just don't understand this!  Come on, hypothalamus, wake up and get to work!

I've been doing some reading about what affects our body temperature setpoint, and anything that increases basal metabolic rate seems to do it: regular intense exercise, eating more, stimulants, etc.  If I have a sub-optimal body temperature, if means that my metabolic rate is sub-optimal, right?  So why is that?  Is my body trying to conserve calories?  That would make sense for anyone with malabsorption or gut integrity issues.  What do you think?  My white lines cover the whole inside of my fingers and my palms, not just my fingerprint area.

Also, does anyone have any ideas how the Lyme bacteria can induce lower body temperature?

I recently cut back my Prozac dose to 5 mg in an effort to help my metabolism pick up.  Since then, I'm generally not feeling quite as sensitive to the cold, and my thinking is a bit faster/clearer.  It's been obvious for a few years that as my Prozac dosage increases, my metabolism decreases.
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JJR
Monday, December 5, 2011, 9:29pm Report to Moderator Report to Moderator

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I've been pretty low at times.  And I'm consistntly under 98.6.  I haven't checked lately.  I'm tired of checking it.  I think because I had a stint for a while, when I wasn't feeling well, that is it was consistently in the low 98's.  So I just stopped fretting.  But I've had times when I woke up in them morning and checked it and it would be high 95's or low 96's and I was concerned.  I think it's an adrenal thing.  Or yeah, metabolism.  Not sure if they are exactly the same or not though.  My blood pressure would usually be really low at those times too.  And I would always feel like I need "something".  My doctors assistant told me if that ever happens I could try some salt water.  The times it's happened in the last year, I've made myself some lamb and it seemed to help boost my system up.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Monday, December 5, 2011, 11:11pm Report to Moderator Report to Moderator

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I'm currently up to 97.5 now at the time of day when body temp is supposed to be at its peak.  What you said about BP is interesting, too.  I don't have a monitor, but when I do check it, the top number is very rarely above 110 and is often below 100.  Perhaps these are hand-in-hand with BMR.

I'm going to lay off the Prozac for a few days and see what happens...  besides anxiety/hypomania, that is.
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JJR
Tuesday, December 6, 2011, 4:34am Report to Moderator Report to Moderator

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Are you still underweight?  But yeah, my BP has been low for a long time now.  I think that is also tied to adrenals, but I'm sure being underweight is a factor too.  I would imagine.  But they also diagnosed me with POTS, from failing my neurological tip table test.  And to me, that goes hand in hand with the Lymes because it eventually attacks your neurological system.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Tuesday, December 6, 2011, 5:51am Report to Moderator Report to Moderator

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Kyosha Nim
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I'm up to 135 now, but yes, still underweight.  The extra five is all in my gut.

I went to the gym today.  I spent 20 minutes in the sauna, and got my temperature up into the mild fever range.  I tried to do some exercise after, but I ran out of steam after two sets (one of seated rows, one of dumbbell bench press).  After the two sets, I got back in the sauna for another 30 minutes.  After showering, my temperature was about 99.7.

As I write this in my 75 degree bedroom, my feet are cold and I'm back down to 98.2 (slightly higher than my usual).  I'm interested to see how tomorrow goes.
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Ribbit
Tuesday, December 6, 2011, 9:18pm Report to Moderator Report to Moderator

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Rob says he's going to build me a dry sauna.  I've read they're healthier.  TJ, I think the reason Lyme brings your body temp down is because one of the organs the bacteria attacks is your thyroid.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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nowishow
Wednesday, December 7, 2011, 12:24am Report to Moderator Report to Moderator

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Quoted from Ribbit
Rob says he's going to build me a dry sauna.  I've read they're healthier.  TJ, I think the reason Lyme brings your body temp down is because one of the organs the bacteria attacks is your thyroid.  


I'm so jealous I love dry saunas!  

There aren't any gyms anywhere near me and it's too expensive and stressful to drive the 40 minutes to get to one. So I do without, but I'm sure it would help. I've thought about just putting a portable heater in the bathroom on high and sitting in there, but I'm sure that's not the same.  


"Anxiety is the gap between now and then"

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TJ
Wednesday, December 7, 2011, 12:47am Report to Moderator Report to Moderator

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Quoted from Ribbit
Rob says he's going to build me a dry sauna.  I've read they're healthier.  TJ, I think the reason Lyme brings your body temp down is because one of the organs the bacteria attacks is your thyroid.
I feel worse today than yesterday, but that may be because of the attempt at exercise.  Heck, maybe I actually have the flu (and not a cold) without the nausea and other gastrointestinal symptoms.  The sauna at the gym wasn't really dry, but it wasn't a steam room either.

Thyroid inflammation sure fits as a good reason for low temperature.  I thought also that if a body isn't getting enough fuel (because of malabsorption or some other digestive problem, for example), that it may go into a sort of "power saving" mode, slowing down all metabolic processes to conserve energy.  Inflammation, insufficient fuel/nourishment, and toxins from pathogens could explain all the Lyme symptoms.
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Goldie
Wednesday, December 7, 2011, 11:00am Report to Moderator Report to Moderator

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Quoted Text
I thought also that if a body isn't getting enough fuel (because of malabsorption or some other digestive problem, for example), that it may go into a sort of "power saving" mode, slowing down all metabolic processes to conserve energy.  Inflammation, insufficient fuel/nourishment, and toxins from pathogens could explain all the Lyme symptoms.

Yes...  good deduction..

LOW temp is more associated with low Iron/Iodine.. for Iodine the patch test would net results quickly,

Quoted Text
There aren't any gyms anywhere near me and it's too expensive and stressful to drive the 40 minutes to get to one. So I do without, but I'm sure it would help. I've thought about just putting a portable heater in the bathroom on high and sitting in there, but I'm sure that's not the same.  


You can try it in different ways.. dry heat in a hot room.. or moist heat over a boiling pot of water, under a towel..

I would go to a spa first and try out the different types.. I had several types and in the end never use any.. like exercise equipment..

But the discussion ought to more specific as to what HEAT might do to infestations, or infections...there is a different mechanism at work when the body creates fever temp.. I don't think that environment can be MANUFACTURED for 'health' unless you are healthy to begin with.. .. BUT I am ignorant on the subject..

On the other hand 'I' am more inclined to say that creating a CHANGED environment within the body - is a good thing no matter how you achieve it - To make the body do it's work of eliminating bad invaders I do it with electromagnetic waves, stimulating the body to do its work ....      


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Wednesday, December 7, 2011, 5:18pm Report to Moderator Report to Moderator

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Goldie, can I ask which machine you use?  A chiro I used to go to used this machine that you hooked up these straps to your wrists, ankles and head and I always felt better after a session on that thing.  It was some kind of "biofeedback" machine, but I forget which one it was called.  It was run through a computer.  I could tell it brought healing, but it also seemed temporary.  I'm sure every little bit helped in the larger scheme of things though.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Thursday, December 8, 2011, 5:17pm Report to Moderator Report to Moderator

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JJ, the one my ND uses is called the Indigo.  She used to use the SCIO.  Sounds exactly like what you're describing.

TJ, I'm not sure if "inflamed" is the right word to describe our thyroids. I don't know if they're actually inflamed or not.  They're just under-active.  Maybe under-active does mean inflamed.  I don't know.

I had a pretty rotten day yesterday.  I dug through an old vitamin box and found some dandelion tincture and burdock tincture and decided to use them up.  I don't think my feeling yucky really had anything to do with feeling bad....but maybe doing BodyTalk (per Debra O+'s suggestion) did it.  Ask Debra about it.  It's pretty cool.  Anyway, I had to go to bed, so I put H (2 y.o.) down for a nap, put a Leap Frog video on for the others, and I went to bed. I felt so horribly out-of-it that I honestly didn't know if I was going to wake up if I went to sleep.  I prayed a while, did some soul-searching, basked in the knowledge that I was at peace with God if He took me, rested in the knowledge that millions of children over the past 6-10,000 years have lost mothers and survived the experience.....and if I didn't wake up, they would be okay.  I gave in and was at peace with the idea.  With tears streaming down my face, I fell asleep, physically numb unless I moved.  I could feel the sheets if I moved, but I felt like I was floating on clouds.  I slept for 3 1/2 hours and woke up feeling much better!


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
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Wow.  I'm glad you woke up!!!!!!!!!!!!!!!!!!!!!!!!!!!

God is with our families.  For sure.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ruthiegirl
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That's kind of scary to read Ribbit! I'm also very glad you woke up, especially if you were home alone with the kids at the time!

I'm also glad that you felt so much better after your nap. You must have really needed the sleep AND you probably also needed something mentally/spiritually out of the experience; having a good cry and putting ALL your faith in the Allmighty.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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TJ
Thursday, December 8, 2011, 7:19pm Report to Moderator Report to Moderator

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Ribbit, that's really scary to feel like that!  I'm glad the nap helped.  It's amazing how much a nap can help.  Do you have any ideas about what brought on all that misery?

I spent 30 minutes in the sauna last night.  I didn't even try working out.  By the time I got home, I was very relaxed and had that pleasantly tired feeling I should get after a workout, provided that I didn't overdo it.  When I woke up today I felt pretty beat up (like if I had worked out).  Maybe I didn't drink enough after the sauna, or maybe I just liberated a lot of toxins.  Who knows?  I'm going back to bed after I finish on the forums.  I'm still fighting the cold.
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Goldie
Thursday, December 8, 2011, 7:39pm Report to Moderator Report to Moderator

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Ribbit, your 'nap' was a healing time for you .. good that the children could manage, both the 3 hours and on their own.. you needed that experience..

It's like for me.. years ago I decided that this life time "'I will never get what I want'"  It sounds  like giving up but more then that it was like giving in to the struggle and being at peace.  I stopped being disappointed.. just acceptance (when it works) I still fight but much less.

Glad you are here to post on..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Ribbit
Friday, December 9, 2011, 12:22am Report to Moderator Report to Moderator

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Quoted from Ribbit
I don't think my feeling yucky really had anything to do with feeling bad....


Uh...that was supposed to read, "I don't think my feeling yucky really had anything to do with taking those tinctures."


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
Friday, December 9, 2011, 3:30am Report to Moderator Report to Moderator

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Quoted from TJ
Ribbit, that's really scary to feel like that!  


That's the thing.  It wasn't scary.  It was okay.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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ABJoe
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Quoted from Ribbit
That's the thing.  It wasn't scary.  It was okay.

I'm in a mental state of total acceptance, as well.  Whatever happens is fine because we "finally" realize that we aren't in control of anything.  Take advantage of whatever time we have, because it can end at any moment.


RH-, ISTJ
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