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A thread to discuss lyme disease*  This thread currently has 161,308 views. Print Print Thread
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TJ
Wednesday, November 2, 2011, 4:42am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
I have two more symptoms to note today.  This morning, my right shoulder joint had a strange soreness in it.  It's gone now.  I can't think of any good mundane reason for it.  The other is that I noticed this evening that my left foot is breaking out with something like athlete's foot again.  Especially, there is a red sore bump in the middle of it.  It looks like a zit, only on the bottom of my foot.  Weird.  Otherwise, I've had fair energy and mental clarity today.
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Goldie
Wednesday, November 2, 2011, 12:29pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,870
Gender: Female
Location: East Coast
I have been told that the right shoulder is often more painful.  

I just checked here in the whole thread. There are seemingly no more then 17 posters including Lola and my self and a few who contributed only once....   so that makes me think there are about 8 people with Lyme here. I wonder if a conference call together might be interesting?

I would be willing to set it up.    


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Wednesday, November 2, 2011, 3:51pm Report to Moderator Report to Moderator

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Kyosha Nim
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What would be the focus of the discussion that we're not doing here?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Thursday, November 3, 2011, 10:48pm Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
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I have pre-op tests tomorrow and surgery to take out my gallbladder is Monday, November 7th.  Prayers would be appreciated.  
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Chloe
Thursday, November 3, 2011, 11:07pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,095
Gender: Female
Location: Northeast USA
Age: 71
Quoted from Kim
I have pre-op tests tomorrow and surgery to take out my gallbladder is Monday, November 7th.  Prayers would be appreciated.  


I will be keeping you in my prayers, Kim...Wishing you the best possible outcome and a speedy recovery.  {{{{hugs}}}}



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Chloe
Thursday, November 3, 2011, 11:12pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,095
Gender: Female
Location: Northeast USA
Age: 71
Quoted from Goldie
I have been told that the right shoulder is often more painful.  

I just checked here in the whole thread. There are seemingly no more then 17 posters including Lola and my self and a few who contributed only once....   so that makes me think there are about 8 people with Lyme here. I wonder if a conference call together might be interesting?

I would be willing to set it up.    


Goldie, do you have Lyme?  I am wondering about the necessity for a conference call.  It seems to
me that we're doing a pretty good job of communicating with one another right here. Speaking
for myself only....I prefer not to be included in a conference call.



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Friday, November 4, 2011, 1:45am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
No conference calls for me, either.
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deblynn3
Friday, November 4, 2011, 2:14am Report to Moderator Report to Moderator

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Ee Dan
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Quoted from Kim
I have pre-op tests tomorrow and surgery to take out my gallbladder is Monday, November 7th.  Prayers would be appreciated.  


I'll be thinking and praying for your quick recovery.  Don't forget the surgery protocols for your type.

Best wishes


Swami, 100% me..
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Lola
Friday, November 4, 2011, 5:57am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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ditto


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Kim
Friday, November 4, 2011, 10:53am Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
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I am already taking bromelain and vitamin e and can get the other two supplements today.  It won't be two weeks ahead of surgery for the gotu kola and the horsetail, but I can take it for two weeks afterward.

Thanks for reminding me!
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Goldie
Friday, November 4, 2011, 11:13am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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All the best wishes for your surgery, I am glad you will be feeling at ease soon.. worry is not a good thing, being proactive is the only way to live.      


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Friday, November 4, 2011, 3:12pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Age: 42
That's my Dad's birthday.  I'll be saying prayers for you!!!!!!!!!!!!!!!!!!!  God will guide their hands.  It will be just fine.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Friday, November 4, 2011, 7:00pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
It's funny, yesterday, it was all rainy and stormy and when I woke up, my whole body ached and I felt lousy.  I felt better once I got going.  But today, it's nice and clear and sunny, and I woke up calm and barely any aches.  I know I keep saying this, but it's bizarre how much the weather messes with me.  It just seems CRAZY!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Saturday, November 5, 2011, 2:05am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
So, I got downsized today.   The company president met with me at the end of the day to tell me.  We lost our biggest customer about a month ago, and they took about 25% of our business with them.  Now the company doesn't have enough work to keep everyone working profitably.

I'm not sure what to think about this, and I certainly don't know what to do, but perhaps there is a roundabout link to Lyme disease.  If my doctor decides to go forward with the Lyme diagnosis and treatment, I may find myself unable to work for a while, and not needing to work will make me less hesitant to press forward with an aggressive treatment approach.

There is a good side.  I'll be on the payroll until the end of the month, which mean two more paychecks.  The president assured me that I had done my job well and that he'd be glad to give a good reference, or perhaps to rehire me if business picked up again.  Since I didn't get "fired" or voluntarily quit, I'll qualify for unemployment benefits.

I guess tomorrow I'll have a bit clearer idea of what needs to happen next.  My head is still spinning right now.
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Chloe
Saturday, November 5, 2011, 3:33pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,095
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Location: Northeast USA
Age: 71
Quoted from TJ
So, I got downsized today.   The company president met with me today at the end of the day to tell me.  We lost our biggest customer about a month ago, and they took about 25% of our business with them.  Now the company doesn't have enough work to keep everyone working profitably.


I'm so sorry, TJ   I hope something wonderful will come your way.  It's been said "when one door
closes, another opens".  Perhaps the universe has bigger and better plans for you right now...Wishing you the best of luck however this all turns out.  Wanted you to know I'll be thinking
about you and sending good thoughts and prayers your way!  



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Goldie
Saturday, November 5, 2011, 5:17pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,870
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Location: East Coast
Ditto.. all the best..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Saturday, November 5, 2011, 11:14pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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I'm so sorry to hear this TJ.  I'll be praying for you.

I was in the ER last night.  Hehehhe.  I went out to go get some Panera, and I all of sudden had tons of anxiety.  I thought it was just that, but I got all inflammed and had flank and upper torso pain.  I wasn't real bad off, but I felt like something was wrong.  So, they did an EKG which was completely fine and they said there was blood in my urine, but no infection.  So, I went home.  There's no need to push it with more tests.  This happened to me last year, around the same date.  And the year before.  I think it's part of this stupid lyme thing.  It's like a virus rears it's ugly head at the same time every year.  When we look at the dates, they are only  few days apart as to when I have this happen.  

Anyone else get this?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Sunday, November 6, 2011, 2:27am Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,095
Gender: Female
Location: Northeast USA
Age: 71
JJR, I've had some of your symptoms in the past.  Blood in urine with no infection.  Panic. Wound up
in the ER more than once....stayed for hours with an IV drip of electrolytes....For some odd reason, all of this would coincide with panic but also severe weakness and super low electrolytes....I couldn't stand on my feet or hold my head up if I sat down... Do you need to be treated for blood in your urine?  Do you have kidney stones?  Hope you feel better!  


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Goldie
Sunday, November 6, 2011, 5:06am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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I am not LYME but I do get ill seasonally.. I have for years not known that I am allergic to Oaks, until I realized that I go to the doctor every OCT for some darn cold over and over, year after year.. Yes some things are SEASONAL.

My friend with Lupus/Sickel cell anemia and gets sick starting in OCT and by Dec she goes to hospital for a transfusion.. NOW I remind her of that and at least she does not have to FEAR that she is SICK again, she is accepting the CYCLING of it.  Recognizing some such things makes for much peace of mind.  Keeping track helps for next year.


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Chloe
Sunday, November 6, 2011, 3:07pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,095
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Location: Northeast USA
Age: 71
I just wanted to add this very comprehensive website link to this Lyme thread.

http://www.curelymedisease.com/


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Sunday, November 6, 2011, 5:44pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Age: 42
Quoted from Chloe
JJR, I've had some of your symptoms in the past.  Blood in urine with no infection.  Panic. Wound up
in the ER more than once....stayed for hours with an IV drip of electrolytes....For some odd reason, all of this would coincide with panic but also severe weakness and super low electrolytes....I couldn't stand on my feet or hold my head up if I sat down... Do you need to be treated for blood in your urine?  Do you have kidney stones?  Hope you feel better!  


Yeah, the other times I got an IV drip too.  This time I didn't because my vitals were just not as bad as the other times.  So, I guess that's a good thing.  But my insides have been aching.  Especially in the kidney area.  And I get shortness in breath come and go.  That, my doctor says is lymph fluid overwhelmed and sluggish.  They had me on a spleen supplement for a while, but took, me off 2 weeks ago.  I have a feeling I need it again.  

But yeah, this has been going on for years in November or right around my son's birthday (october 31st), I start to feel really bad.  It will probably last for a couple of weeks.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Sunday, November 6, 2011, 9:43pm Report to Moderator Report to Moderator

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Ee Dan
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This is it guys!!  I have to be at the hospital at 7:25 am tomorrow morning and surgery is 9:25 am.  

Wish I could stop shaking.
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Chloe
Sunday, November 6, 2011, 9:50pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
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Location: Northeast USA
Age: 71
Quoted from Kim
This is it guys!!  I have to be at the hospital at 7:25 am tomorrow morning and surgery is 9:25 am.  

Wish I could stop shaking.


Kim, my thoughts and prayers are with you right now......and throughout your surgery.  Can you
try meditating?  Alternate nostril breathing?  I'm someone who easily goes into panic mode and
shaking is a hallmark for me.

Magnesium oil, if you have it is soothing.  So is SIp Right Tea for type A...chamomile, Holy Basil,
tryptophan.  I sometimes take them all.  

Wishing you well and sending you many, many  {{{{{hugs}}}}}} Hope surgery goes well and that you have an easy recovery!!!

Breathe!!!!!   (holding breath leads to hyperventilating)

PS. I'm quite sure you have little time to be reading this right now...but for all who easily become
stressed and panicked, there is a correlation to acidity.  I find if I'm starting to feel ultra stressed, I put some green powder in water and drink it.  If I can get myself alkalized, I usually start to feel calmer.  For blood
type A, it is especially important to think about trying to staying alkalized.

http://neuroskeptic.blogspot.com/2009/12/in-brain-acidity-means-anxiety.html







"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Sunday, November 6, 2011, 10:15pm Report to Moderator Report to Moderator

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Kyosha Nim
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My prayers are with you!!!  I wish I could say something that calms your fears.  There's all kinds of scripture, like Psalm 23, and reading it can help.  But I know that it can be very difficult to overcome that.  When something like this happens for me, I tell myself I can back out if I want, and that helps my mind.  Definitely not focusing on it would be good.  Like play some games or go on the computer or something.  I know, easier said than done.

  God is with you.

Oh yeah, Phillipians 4:4 is awesome and directly talks about something like this.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Monday, November 7, 2011, 1:21am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,870
Gender: Female
Location: East Coast
My BEST wishes go with you that all should be over and done with as soon as possible.  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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