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A thread to discuss lyme disease*  This thread currently has 174,299 views. Print Print Thread
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Ribbit
Wednesday, October 19, 2011, 2:42am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 37
I have an appointment to see Dr. Kalb in a couple of weeks.

http://www.csfmed.net/

I'm liking what my ND has me on, but if I can get a huge long list of co-infections, I'm more likely to get disability, or so I'm being told.

As for the question about treating dogs for ticks, what my mom meant was using tick-deterring collars year-round now.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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TJ
Wednesday, October 19, 2011, 3:00am Report to Moderator Report to Moderator

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Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
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The radio issue was addressed today in a brief meeting before lunch.  Some compromises were made.  The company will likely provide me with a pair of noise-canceling headphones to wear during the day.  Once the two main instigators leave I get to turn off the radio (which is what I was doing already -- not really a compromise IMO).  I'd like to allow the radio up until noon, or until they go to lunch, whichever is earlier, then have it off the rest of the day.

My cousin in Virginia has been suffering with dizzy spells for the past month.  I just asked her mom on FB if she'd been bitten by a tick this summer.

I have health insurance now, but the plan I picked doesn't cover my regular doctor or any of the LLMDs I was told about.  I talked to our agent today about changing to a different plan, and he thinks it will still be possible because this is the first month of coverage still.  I sure hope so!
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JJR
Wednesday, October 19, 2011, 4:17pm Report to Moderator Report to Moderator

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Kyosha Nim
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The first thing I would check in Dizzy spells and summer is how much water is she drinking.  It's easy to get dehydrated, because so many people don't drink as much water as they should.  I know I didn't when I was a teenager.  I never had a habit of it.  I remember not liking it.  I also remember drinking lots of other stuff.  We'd drink water on the football field, or in wrestling we'd get a water break.  But otherwise, it was juices.  Which was probably "good enough".  And every once in a while I'd be thirsty and stick my head underneath the faucet and drink a ton of water all at once.  Probably because my body was craving it.  

Anyways, yesterday, I was starting to feel human again, doing the dishes more, had more energy, and then last night we got this huge storm.  It's rainy, super windy, and I feel like I got hit by a mack truck.  It's amazing to me how one can feel hope and physically better and then get knocked down.  I know it's the cycle of things.  And I know I'm not the only one it happens to, but it's frustrating.  And another thing that is amazing is how much I'm affected by the weather.  Weird.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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deblynn3
Wednesday, October 19, 2011, 5:00pm Report to Moderator Report to Moderator

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Ee Dan
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[quote=1211]
My cousin in Virginia has been suffering with dizzy spells for the past month.  I just asked her mom on FB if she'd been bitten by a tick this summer.

After dehydration I'd ask about allergies, and her ears. Only time I'm been dizzy it was allergies which filled my ears with liquid.



Swami, 100% me..
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JJR
Wednesday, October 19, 2011, 8:42pm Report to Moderator Report to Moderator

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Kyosha Nim
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Good point.  Allergies will mess with your sinuses.  Etc etc.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Thursday, October 20, 2011, 1:43am Report to Moderator Report to Moderator

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Kyosha Nim
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Age: 39
She was supposed to go see a doctor today.  I haven't heard the results.

When I asked my aunt (her mom) if she had been bitten, she replied, "no she has positional vertigo".   So I asked her, "Do you know what's causing it?"  It's that same old problem of confusing the diagnosis with the cause.  I guess I shouldn't expect anything different: even MDs do it.
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JJR
Thursday, October 20, 2011, 2:34am Report to Moderator Report to Moderator

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Kyosha Nim
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Yeah, they give it a name, but can't say what's causing it.  But it seems like the name makes it a condition that isn't related to something else.  I don't know anything about positional vertigo though.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Friday, October 21, 2011, 3:21am Report to Moderator Report to Moderator

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Kyosha Nim
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She's supposed to go to a specialist now.
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JJR
Friday, October 21, 2011, 4:18pm Report to Moderator Report to Moderator

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Kyosha Nim
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Amazing.  Clear skies today and I can tell there's just less ickiness in my bones.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Saturday, October 22, 2011, 1:52am Report to Moderator Report to Moderator

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Kyosha Nim
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Location: Midvale, UT, USA
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My last-minute health insurance plan change went through!    None of the LLMDs who were referred to me through the Lyme forum are covered on my plan.  Fortunately, my doctor (nurse practitioner) is quite open-minded about alternative approaches, and I think I can help him get Lyme-literate enough to treat me.
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JJR
Sunday, October 23, 2011, 12:30am Report to Moderator Report to Moderator

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Kyosha Nim
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Does taking showers or baths ever wear you guys out?  It does me.  It was getting better, until this year.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, October 23, 2011, 3:59am Report to Moderator Report to Moderator

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Kyosha Nim
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Yeah, sometimes I'd rather not except that I'd feel gross, so I just shampoo and wash the "high spots".
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ABJoe
Sunday, October 23, 2011, 4:10am Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
Does taking showers or baths ever wear you guys out?

It depends...  Most of the time, a shower is refreshing, sometimes it is relaxing so I feel really tired when finished.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
Sunday, October 23, 2011, 5:32pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from TJ
Yeah, sometimes I'd rather not except that I'd feel gross, so I just shampoo and wash the "high spots".


Yeah!!!  I'm not alone.  It just seems to fatigue me.  That's what I did last night.  Just quick and I make sure the water is not too hot.  If it's hot, it really drains me.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Sunday, October 23, 2011, 6:15pm Report to Moderator Report to Moderator

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Kyosha Nim
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Hmm, I'm not a fan of hot showers, either.  Spooky coincidences here, no?

Anyway, I seriously overdid it yesterday.  I bought a bed frame for my mattress this week, and the platform that supports the mattress was too soft for comfort (trampoline material stretched out by springs).  I added six wooden braces under the material to prevent sagging.  It took a lot longer than I expected, and I was exhausted by the time I finished.

One of these days, it will be nice for these projects not the "cost" me so much.   At least I'll sleep better now.
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JJR
Sunday, October 23, 2011, 8:44pm Report to Moderator Report to Moderator

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Kyosha Nim
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Well, the upside is you have a nicer bed now.  We'll get better.  There's a better day coming.  I had to keep saying it to myself, because I don't want to believe that this as good as it gets.  It would be too depressing a thought.  Plus, it just doesn't help to focus on the negative.  This is just me coaching myself, sharing with you.  I've had a hard week.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Sunday, October 23, 2011, 9:42pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from JJR
We'll get better.  


You absolutely WILL!



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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ABJoe
Monday, October 24, 2011, 12:25am Report to Moderator Report to Moderator

35% Nomad or Teacher - health history dependent
Sun Beh Nim
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Quoted from JJR
We'll get better.

We're getting better...  We're detoxing and healing at a fast pace and the pace is getting faster as we heal.  All of this discomfort is the healing process working in us.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
Monday, October 24, 2011, 1:54am Report to Moderator Report to Moderator

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Kyosha Nim
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I hope you are right Joe.  You are a very wise man, so I need to trust you!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Monday, October 24, 2011, 2:31am Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
I hope you are right Joe.  You are a very wise man, so I need to trust you!!!!

I only go by personal experience.  You need to trust in God, as he is providing the wisdom (and all else).


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
Monday, October 24, 2011, 3:31pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yes, Amen.  Romans 8:28 And we know that for those who love God all things work together for good for those who are called according to his purpose.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Tuesday, October 25, 2011, 12:05am Report to Moderator Report to Moderator

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Kyosha Nim
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I have my doctor's appointment tomorrow.  My experiences with him so far suggest that he will be open to treating me for chronic Lyme.  I hope the trends holds.
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Chloe
Tuesday, October 25, 2011, 12:42am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from TJ
I have my doctor's appointment tomorrow.  My experiences with him so far suggest that he will be open to treating me for chronic Lyme.  I hope the trends holds.


Wishing you the best tomorrow, TJ.....hope it all goes well!  


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Tuesday, October 25, 2011, 3:44pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Let us know how it goes!!!!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Wednesday, October 26, 2011, 3:33am Report to Moderator Report to Moderator

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Kyosha Nim
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I told him why I thought I had Lyme.  I showed him the ILADS website, and I sat there like 10 minutes while he looked through the "Chronic Lyme Disease" page.  He seemed impressed with the information presented there.  He was very open to the idea of me having Lyme.  He wasn't ready to diagnose me with Lyme disease, but agreed to put me on doxycycline for a month to see what happens.  I'm seeing him again in 4 weeks.

It turns out that he has another patient with chronic Lyme (I think confirmed by a lab test of some sort).  I'd imagine that he's going to study the ILADS website, and when I come back to see him he will be ready to go forward with a diagnosis.  In the meantime, I got what I was hoping for.  I just hope I don't have a bad reaction to the ABX!  The information insert said it may contain sulfites, and the Dr. said it could cause Stevens-Johnson syndrome if I spent too much time in the sun.
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