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A thread to discuss lyme disease*  This thread currently has 175,790 views. Print Print Thread
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Chloe
Wednesday, October 12, 2011, 8:40pm Report to Moderator Report to Moderator

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Kyosha Nim
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Holy cow...have any of you ever read this?  This person had been on the Discovery Channel's
Mystery Diagnosis.  Blew my mind to read it!

http://www.wildcondor.com/lyme.html


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Wednesday, October 12, 2011, 11:16pm Report to Moderator Report to Moderator

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Speaking of anxiety.  My lab lead was all sullen and passive-aggressive with me again today.  The technical leader, who got the email about the radio, who also just today got promoted to company president by the owner, spoke to me briefly today.  He said he agreed that the radio is a distraction, and that he'd had trouble with it himself whenever he had to work in the lab.   He's trying to work out a way to make a change in a way that will minimize the finger-pointing (at me).  That will take some political savvy, no doubt.  There's also no doubt that I'm going to be in for a bumpy ride for a few weeks if the radio disappears.

On top of that, our biggest customer (about 25% of our business) just notified us that they have decided to take their calibration work to another lab.  In the short term, that is definitely bad news, but in the long run, I don't think it's wise for us to be so heavily invested in a single customer.  They had some insane requirements, as well, since they knew they have so much of our business I guess.

I'm not terribly worried over the loss of the customer -- we have built a good rep and shouldn't have trouble rounding up new business -- but this interpersonal tension is getting old.  Today I kept catching myself with my teeth clenched and my gut sucked in.  At times like these, I'm very pleased with my medications.  I'd be an anxiety- and paranoia-riddled basket-case otherwise!  Nevertheless, I am determined to hold my ground.  I'm well within my rights to insist on proper working conditions, and I know it!
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TJ
Wednesday, October 12, 2011, 11:55pm Report to Moderator Report to Moderator

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Ok, so just in case you hadn't noticed, my last post had nothing to do with Lyme disease... but I started the rant here, so I figured I should write anything more about it in the same place...  
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TJ
Thursday, October 13, 2011, 1:03am Report to Moderator Report to Moderator

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Quoted from Chloe
Holy cow...have any of you ever read this?  This person had been on the Discovery Channel's
Mystery Diagnosis.  Blew my mind to read it!

http://www.wildcondor.com/lyme.html
So I'm reading through this now.  Ribbit, I don't know if you've read it yet, but this sounds familiar:
One day I was driving my car while running an errand for my boss at work. I was driving along looking at the mountains when I felt a shooting pain across my chest, right below my bra line. I thought, it must be the bra, is it pinching me? It was the beginning of paralysis, and in the following weeks, I began slurring my speech, stumbling, getting lost, going out in my car and having no idea where I intended to go. I started to wonder if I had some kind of mental illness, since I was so confused in the head. I started to become increasingly forgetful. I could not remember what errands I was supposed to run.  I wandered, lost track of time, got lost in my own town, and spent 4 hours in the supermarket for no reason. My eyes hurt, they ached from the inside out, my vision went blurry, I could no longer sleep with the blinds down, or the window open. The slightest spot of light in my bedroom sent a violent shock wave through my entire body. It was very painful, the only way I can explain it to a healthy person would be to compare it to not having slept in 48 hours, being punched in both eyes, while having the flu, then drinking a 1 pack of beer, getting smashed, finally going to sleep, after puking, sleeping for 4 hours (while having nightmares of dying) and then someone opens the window, the sun hits your face, and you scream, no! I went to the Emergency room unable to feel my own skin, and with tingling and numbness all over my body. They sent me home telling me I had an anxiety attack.

I can personally relate to these bits:
When you have Lyme, everything gets amplified, and its like you can feel every little sound vibrate through your whole body. Damage to your nervous system makes you ultra-sensitive, and puts your startle reflexes on overdrive.
...
[T]wo-thirds of the doctors I saw told me I thought I was perfectly healthy on paper, and that I should see a shrink. I can't even begin to describe the lunacy and degrading verbal bs I had to put up with from dealing with so many ignorant doctors!
...
I was completely denied a normal life, having fun, hanging out with friends, furthering my education, working, and searching for my soul mate. I didn't have any choice, no real options. I had to fight to survive, and make difficult sacrifices because I was 100% dependent on others in order to just exist.
...
If you go to the doctor, and complain of being tired all the time, for 6 months or more, you are probably going to be diagnosed with chronic fatigue. You have to use common sense here. You have a symptom, and you are being diagnosed with a symptom. It makes no sense! You need to find out the cause!  That's what I'm talking about, hello!
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JJR
Thursday, October 13, 2011, 4:10pm Report to Moderator Report to Moderator

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Kyosha Nim
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yes yes yes!!!  All fear based but irrational.  That is exactly what I'm dealing with.  I get that way about supps too!!!  I usually don't quit them completely, although there have been a few times that I have.  But I crack mine all open and only take small amounts.  Like 1/8 to 1/4.  It just seems like full doses makes me feel more strange.  But regardless of that, my think is germs and what goes into my body.  I'm washing my hands a lot and almost every meal, when I'm making my food, there is something that bothers me about it.  It's like the Devil is trying to steal my food joy.  I'm fixating on issues that really just aren't issues.  Like, well, a spec in my food that might be darker than I thought it should be.  Etc etc.  Worrying about how clean the plate or bowl is that I've put my food into.  Those types of things.  I've been rinsing out all my utensils, and things, like that's going to help.  I worry about traces of soap still being on there.  And then I worry about germs.  It's all stupid.  I know that our saliva helps with this, certain herbs, salt, etc etc.  And there's no way you can make all the germs go away.  It's totally irrational, but it's been bad the last couple of days.  

I've also had the times where I'm just like high strung and don't even know why.  Like you need to hurry but for no reason.  I'm pretty good about spotting those and just slowing myself down though.  I did it last night a little bit though, and it took me a while to come down from it.  It's probably the weather change.  We went from Sunny and dry to wet and rainy this morning.  I don't know. I'm just glad I'm not alone and this is indicative of what we are struggling with.  We all sound so similar.

Oh, and for what it's worth, before health problems, I never used to think about any of this junk.  I practically never washed my hands, until I had kids and starting changing diapers.  But otherwise, none of these things ever entered into my mind.  It has to be something with the body that it's going through.  And it may be a spiritual battle also.  But we're all fighting it, obviously.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Thursday, October 13, 2011, 5:40pm Report to Moderator Report to Moderator

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Kyosha Nim
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I think the limbic brain goes into overdrive and can't re-set itself.  I found this guy's video on
youtube and have been practicing this technique and it seems to have made me feel calmer.  Also
full moon is slowly waning...

http://www.calendar-365.com/moon/moon-phases.html

Anyway, this youtube video....Dr. Henry Grayson....he just seems to resonate with my need for calm right now.

http://www.youtube.com/watch?v=1ZUi3XShdqA


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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nowishow
Thursday, October 13, 2011, 11:01pm Report to Moderator Report to Moderator

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Quoted from Chloe
Holy cow...have any of you ever read this?  This person had been on the Discovery Channel's
Mystery Diagnosis.  Blew my mind to read it!

http://www.wildcondor.com/lyme.html


What I want to know is where did she get all the money to do all those treatments. I know that wasn't covered by insurance. I know I'd do more treatments if I had more money.  

But she did make me feel like I'm not that sick. Her symptoms are much more extreme than mine are. So I'm feeling a little grateful right now.  


"Anxiety is the gap between now and then"

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JJR
Thursday, October 13, 2011, 11:05pm Report to Moderator Report to Moderator

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Kyosha Nim
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Well, on one hand, I'm like, what the heck, worry about the animals before people???  On the other hand.  They have more hair and no way to check themselves.  Well, they might check themselves, but it probably wouldn't be as thorough as a person.  Or maybe not.  I don't know, but whatever.  It's a problem for all of us living creatures, obviously.  That does sort of confirm it though.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Thursday, October 13, 2011, 11:39pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from nowishow


What I want to know is where did she get all the money to do all those treatments. I know that wasn't covered by insurance. I know I'd do more treatments if I had more money.  

But she did make me feel like I'm not that sick. Her symptoms are much more extreme than mine are. So I'm feeling a little grateful right now.  


This is why I shared it....To put everything in perspective.  She wasn't doing a blood type diet...
so she was probably toxic on other levels...lectin damage.  I agree....that was quite an expensive
healing journey.  I know I paid a lot out of pocket for many protocols that weren't considered
medically necessary....but in the long run, I think it made me take full charge of my health...
put me in the driver's seat and forced me to try just about anything natural.

It also made me follow a more spiritual path.....and presently, always thinking about the internal dialogue I have with myself....reminding myself that I can't afford the luxury of negative thinking....Lyme was more than a debilitating painful physical experience....it was an emotionally, devastating reality.  I now focus on more positive thoughts and feelings.....The body only hears what you tell it....even if you lie and say "I feel wonderful....or I am healed"....Anything that comes from the heart is powerful....

I've been on a major quest for spiritual knowledge in the past week...That full moon, causing
so much anxiety propelled me to look for calming solutions.....and I have started to tell myself
"the glass is half full".  It could just as well be half empty...but a positive spin seems to be what
changes my thoughts and feelings.

I too feel grateful for my progress and I always remind myself how bad I once felt....I'm sure you will all get healthier too.  The body does know how to heal itself with the right tools. And
sometimes the greatest teacher comes with the harshest obstacles...The trick is to find the right tools to overcome these obstacles....  Different for all of us.  Never give up



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Chloe
Friday, October 14, 2011, 12:43am Report to Moderator Report to Moderator

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Kyosha Nim
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I am so paranoid about getting another tick bite that I spray myself with an herbal bug repellent before going outside. I spray my dog.

  My holistic vet won't give the lyme vaccine to dogs...He says side effects are not worth it, and it doesn't work very well anyway.... and how do you vaccinate any person or animal for all the potential co-infections?  In addition where I live, equine erlichiosis is rampant..A tick bites a horse that bites a dog. ...My dog has had this 3x.  So what's the point of a Lyme vaccine if her tick carried erlichiosis?

This isn't my vet but the opinion of a local holistic vet in my area.

http://drschoen.com/articles_L1_11.html

And another opinion

http://www.caberfeidh.com/Lyme.htm

And one more

http://www.i-love-dogs.com/forums/dog-chat/20885-lyme-vaccinate-not.html

And I didn't google the dangers of the Lyme vaccine for dogs.  I merely googled "Lyme vaccine for
dogs".  Many dangers came up.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Friday, October 14, 2011, 12:58am Report to Moderator Report to Moderator

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Ugh, between the radio and the negative energy I was getting, I was at near-meltdown by the time I left work.  When someone is this profoundly affecting by such things, something is wrong.
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JJR
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I didn't see ribbit say anything about Vaccination.  I don't think there is even such a thing.  Is there?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Friday, October 14, 2011, 1:12am Report to Moderator Report to Moderator

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Kyosha Nim
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Chloe, GREAT POST.

TJ, stress can do that to anyone.  But yeah, it's worse when you're not completely well.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Drea
Friday, October 14, 2011, 2:10am Report to Moderator Report to Moderator

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I merged the two Lyme Disease threads...


It is not my responsibility to convince anyone of anything.
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Chloe
Friday, October 14, 2011, 3:30pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from JJR
I didn't see ribbit say anything about Vaccination.  I don't think there is even such a thing.  Is there?


Yes there are vaccinations for dogs for Lyme prevention but questionable by a lot of vets.

Ribbit said that her mom's vet to wanted to treat dogs for Lyme all year long.  She wasn't specific....
Maybe she'll see this and explain further.  I just happened to mention Lyme vaccination because
it does exist for dogs.

See my post above regarding the Lyme vaccination for dogs.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Friday, October 14, 2011, 3:59pm Report to Moderator Report to Moderator

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I had some wild dreams last night.  Well, it was earlier this morning.  I have a feeling that's part of all this.  The mind is taking a hit.  Along with the gut.  It's been pretty good, but it's a little more sensitive lately.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Friday, October 14, 2011, 6:02pm Report to Moderator Report to Moderator

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Quoted from Chloe


This is why I shared it....To put everything in perspective.  She wasn't doing a blood type diet...
so she was probably toxic on other levels...lectin damage.  I agree....that was quite an expensive
healing journey.  I know I paid a lot out of pocket for many protocols that weren't considered
medically necessary....but in the long run, I think it made me take full charge of my health...
put me in the driver's seat and forced me to try just about anything natural.



It's so expensive! So far I've spent over $8,000   in the last year and a half. Most of that was for the initial testing to find out I had Lyme. But everytime I see my doctor it's $350 and I spend over $250 a month in remedies and supplements. I'm so glad that I went outside the mainstream system so quickly or I'd still be incredibly sick and not know why.


"Anxiety is the gap between now and then"

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nowishow
Friday, October 14, 2011, 6:25pm Report to Moderator Report to Moderator

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Quoted from Chloe


It also made me follow a more spiritual path.....and presently, always thinking about the internal dialogue I have with myself....reminding myself that I can't afford the luxury of negative thinking....Lyme was more than a debilitating painful physical experience....it was an emotionally, devastating reality.  I now focus on more positive thoughts and feelings.....The body only hears what you tell it....even if you lie and say "I feel wonderful....or I am healed"....Anything that comes from the heart is powerful....



Spiritual path - It's funny how things have worked out. I started getting more spiritual and peaceful about four or five years ago. I started reading and listening to Eckhart Tolle a lot and "practicing presence". I would just sit and not think for a half hour or more. I was taking things easier and feeling easier in the world. And then something would come along. First, it was trouble at work with my boss. It only got better once I got present and really opened up. Next came banruptcy, much harder than the trouble at work and I fought it for much longer. But once I surrendered to it everything seemed to fall into place. Then the biggest one of all, my health. I've only just started to be less resistant to the reality of this disease. I've been just waiting for it to be over so I could "get back to my life". But I see that it's going to take a long time and I really need to stop fighting against this and just accept it. Not give up, but stop acting like my life is on hold. There's nothing wrong with now. I have a lot of pain and fatigue, but that's just the way it is right now. I'm sure it will be much easier once I can really let go of my agenda.


"Anxiety is the gap between now and then"

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JJR
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I've spent way more money than I care to even think about, trying to overcome this illness.  Thousands.  Of course there has been some hefty bills for my son too.  He had big problems as a toddler.  Insurance only covers what they want.  Which is sometimes not a lot.  There have been times we've been blessed by it.  But we also pay a lot into it.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, October 14, 2011, 6:57pm Report to Moderator Report to Moderator

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Quoted from nowishow
...But I see that it's going to take a long time and I really need to stop fighting against this and just accept it. Not give up, but stop acting like my life is on hold. There's nothing wrong with now. I have a lot of pain and fatigue, but that's just the way it is right now.

I found the hardest part of being sick was accepting that I could no longer be sole provider for the family.  I struggled and pushed (to the point of exhaustive collapse) to continue to stay employed, but is was killing me.  I finally had to be open with DW and ask her to pull the weight while I healed.  I still hate it, but the best I can do is heal as fast as possible so I can get back to some sort of reliable income provider...  

For the mean-time, I started a business that I can do part-time.  I'm not earning much, but doing something to keep depression away is probably more valuable to me than the income right now...


RH-, ISTJ
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JJR
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I'm right there with you Joe.  For sure. But God knows are struggles and I don't think he's holding it against us that we can't be the provider that we want to be.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Quoted from JJR
But God knows are struggles and I don't think he's holding it against us that we can't be the provider that we want to be.  

That is my only consolation!


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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Something weird happened to me last night.  I warmed up some frozen blueberries in the oven on real low and ate them with a tablespoon almond butter, cinnamon and a little sea salt.  Well, this is something I normally eat, except it was a new brand.  I don't always get organic and this was.  But anyways, I ate it and felt like it ramped me up a little, almost like it was kicking off a detox?  

Will blueberries do that?  Maybe all the enzymes?  There was quite a bit of juice in it.  I got out my Berries, nuts and seeds book by Heinerman and it says blueberries are really good for treating dysentery and diahrea and it also is good for "Malaria".  And I was like, wow, Malaria.  Co infections.  I wonder if it is fighting it.  After about 45 minutes, the pain went straight to my knees.  This has been a symptom I'm having this year.  My knees ache a lot.  I've never had that before, that I remember.  Last week I bent over to mess with some wires on the back of the TV, very briefly, and they hurt all afternoon.  Ugh.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Tuesday, October 18, 2011, 9:02pm Report to Moderator Report to Moderator

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JJR, you might want to read this:

Hering's Law of Cure:

Hering's Law of Cure is the basis of all healing. This is the way the body heals or cures itself. "All cure starts from within out, from the head down and in reverse order as the symptoms have appeared or been suppressed".

"We don't catch diseases, we create them by breaking down the natural defenses according to the way we eat, drink, think and live". Hering's Law is a very important law to understand and remember. It is imperative to follow this law in order to allow the body to eliminate toxins created daily.

The definition of Hering's Law of Cure is as follows:

"We heal from the head down". This means that before we can even begin to heal we must believe we can heal. We must be mentally prepared and strong in order to allow the body to heal. We must not doubt the body's ability to heal itself.

"We heal from within out". This means we must allow the body to cleanse. In order for the body to eliminate toxins it must be allowed to do so by not suppressing any kind of discharge.

Most over-the-counter medications and prescriptions do suppress discharges. This is not good as these toxins can go deeper into the body and create other weaknesses. The body must be allowed to cleanse itself in whatever manner it needs to without interruption by synthetic suppressive substances.

"We heal in reverse order as the symptoms have appeared or been suppressed". This means that most of the time the last problem someone has is the first problem to be dealt with by the body in the reversal process.

For instance, let's say the last illness you had was a sinus infection and a suppressive medication was used to stop any sneezing, coughing, dripping nose or sinus drainage.

In order for the body to heal itself it must eliminate these toxins and mucous that were suppressed at this time. Since this was the last illness it is the easiest for the body to heal.

The body may stimulate the Immune System to create a fever to burn out the toxins, the toxins may be eliminated through the Lungs or Bronchioles causing a large amount of phlegm to exit these areas, it might eliminate them through the skin causing breakouts or it could eliminate them through the Colon in which case mucous, old feces and food that hasn't been eaten for quite a while may be eliminated. These are just a few ways the body heals itself.

Unfortunately, Hering's Law of Cure is not used today in Orthodox medicine. Orthodox medicine generally believes that because the symptoms are suppressed the problem is cured, or by removing the organ, which is not functioning correctly, it can cure the problem.

Perhaps this is why no one knows what a "Cold" is today. A "Cold" is the body's way of eliminating toxins, which it does by increasing the mucous from the mucous membranes in order to free the toxins. Toxin elimination is imperative in order for the body to stay healthy. Disease reversal is also imperative in order for the body to "cure" a disease.

I found this information interesting....wanted to share it here
http://www.thenaturalrecoveryplan.com/articles/how-the-body-heals.html


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Tuesday, October 18, 2011, 11:06pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Well I know this, my stomach was the last thing to be terrible, right when my crash started.  And it seems to be for the most part very good for a while now.  I'm more hungry, and I don't need digestive enzymes.  And I'm even eating more meats and everything is still moving.  I'm not eating dairy, but I may start soon again because I feel like I need to fill a black hole in my stomach sometimes.  This is good.  Because for years, eating was something I didn't even want to do.  So, yeah, if it's going backwards, I think the lyme was the thing that started it all, and it feels like it's going after that now.  Possibly.  But it's funny how foods sometimes make me react.  Actually, I feel like I'm needing more grains and less fruit right now.  It might be the colder thing.  Because I'm eating fruit and it's like, "Give me some real food".  The sweet potatoes are hitting the spot and real warming, make you full foods.  But when you're not eating dairy and gluten, it becomes a challenge sometimes.  I do need to make some kind of muffins or something with compliant flours.  It's been too long.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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