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A thread to discuss lyme disease*  This thread currently has 174,073 views. Print Print Thread
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NoMorePartyInMyMouth
Tuesday, August 23, 2011, 1:43am Report to Moderator Report to Moderator

A-Nonnie.Warrior. Non Taster
Early Spring: Awareness, desire.
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Interesting thread.   I have requested a CD57 test from my ND for lyme's.  I also have an auto immune disease called Lichen Sclerosis, through my support group for LS there is a lady who has recently learned that a bug bite she received while in Tanzania gave her a mycoplasma infection.  This type of infection comes from ticks and certain bugs.  She tested positive for Lyme's but has no symptoms.

She is treating the mycoplasma infection with biotanical supplements.  Cleaning at a cellular level.

She believes the mycoplasma infection is the root of her Lichen Sclerosis.  

Don't mean to worry any ladies in this group, but several women who have Lyme's develop Lichen Sclerosis.

I was bit by a tick in 2006 while fishing, my LS symptoms started in 2008.

Deenise


  “Through a simple adjustment to your perception, you can elevate your journey to a mystical, magical adventure.”  

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JJR
Tuesday, August 23, 2011, 3:55pm Report to Moderator Report to Moderator

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Kyosha Nim
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Could be just another symptom or problem with this type of infection.  I would imagine dealing with it may clear up the LS????  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Tuesday, August 23, 2011, 6:34pm Report to Moderator Report to Moderator

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Hi JJR,

I'm happy to help in any way I can. What I know for sure is everyone has a different path to health from Lyme disease. I'm continuing to get better, but recently had such huge Babesia symptoms again that I was very depressed for a few weeks. I was told my body might fight all three bugs again (after the first cycle through) but I didn't think the second time would be so painful. But after about six weeks the pain is really starting to lessen so I feel hopeful again.

I did an informal survey on a Lyme forum I belong to. My impression from the results were this.

If you start treatment within 1-2 years of being infected, you could recover within a year or so

If you start treatment after two years of being infected it's usually 2-4 years to recovery (with some people taking even longer or never fully recovering)

So I've got at least another year to go.

I've been sick for years. The bites that gave me the big infection was about 7-9 years ago, but my doctor believes that I got a smaller infection around 15 years ago (I had many tick bites around that time). I didn't have a lot of symptoms until I started the Geno Type diet which stopped me eating wheat (I previously had been eating for a B secretor, I didn't know I was a nonnie). Over the last 10 - 12 years I lost my stamina, strength, and had a lot of strange little symptoms. I just thought I was getting old.   Once I started the GTD I had a very strange experience I started getting better in some ways and worse in others until after about a year I ended up in the hosptial. I now believe that starting the GTD healed my immune system enough that my body started an all out war with these bugs and I started having enourmous herxes! Most people have to take medicine to create a herx. GTD is very powerful!  

Anyone have a similar experience?


"Anxiety is the gap between now and then"

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JJR
Wednesday, August 24, 2011, 3:45am Report to Moderator Report to Moderator

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Kyosha Nim
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Mine was overnight.  Except I developed the heart arrhythmia about 4 years before I crashed.  And I had a few episodes before the "big" crash, where I just didn't feel right for about a week.  I think I probably had it in my system since a little after the year 2000.  If I had to guess.  Because that's when I suspected it the most.  I felt lousy one week.  Had this weird looking bruise on my knee that was clear in the middle, possibly a bullseye rash, and I had just gone camping in the North woods, way up there. I think it was more like, ugh, I forget what year that was.  I'll have to talk to my wife and see.  But it was around then.  But, I don't really know if that's when it all started.  I was relatively strong and what not until almost 5 years ago, my digestion stopped working, real bad.  Like someone flipped a switch.  It was bizarre.

My spleen is really struggling today.  I had a chiro adjustment and I think it helped get the blood flowing.  So, my spleen seems overloaded, it hurts and then I get this real heavy feeling like I can't breathe very well.  My heart rate and BP will be normal, but it's like the filter is clogged.  My chiro suggested drinking 1/2 cup of olive oil 3 days in a row.  I'm not doing that.  It just doesn't seem right.  It might work, but I think I'd be in trouble.  I'm taking standard process spleen supps.  Spleen PMG and Whole, Dessicated spleen, but is there any other tips on supporting and cleansing it?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Wednesday, August 24, 2011, 11:01am Report to Moderator Report to Moderator

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Ee Dan
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I got sick almost 5 years ago.  I too just got sick overnight.  One minute I was healthy and the next I wasn't.  I was extremely active raising horses, had an internet business and was weight lifting 4 days a week.  A typical day involved tossing 70 lb bales of hay out to the horses.  Pushing 1,000 lb animals around each day was good exercise too.

When this happened, the adrenals & thyroid went to a slow crawl.  Digestion got so bad I had to have an endoscopy to see if there were ulcers, tumors, etc.  They did remove a small tumor in my stomach and duodenum that was benign.  No reason found for the stomach problems but a gastroenterologist does not know about food allergies/diet or how lyme can affect all body functions. Migraines increased, blood pressure got even lower, and I had all the classic lyme symptoms.  Definitely have Babesia symptoms big time.

We expect it is going to take a few years to recover from this.  I have many neuro symptoms so that is one big reason I am combining IV antibiotics with homeopathics.  I am trying to save my brain cells from permanent damage.  I am positive for band 39kd and 41kd on the western blot and tested positive for Ehrlichia/anaplasmosis.  If I have any other coinfections they will have to be clinically diagnosed by the LLMD.  Testing is so unreliable.

DH has lyme too.  He had a rash last year and did 4 months of doxy.  He got another big welt from another bite this year.  I had a tick bite on my scalp in July.  We have both had numerous bites over the past 10 years.  That doesn't count all the bites DH had while in the Marine Corp.  

Needless to say, we keep our grass short, treat our dogs with frontline Plus, strip and check ourselves every time we come in from the outdoors.  We are getting those daminex tubes to put outside around the house.

If there was a place to live without ticks, I would move there, but there isn't one.  The science talks about biting flies and mosquitos transmitting lyme.  Lyme, a distant cousin to syphllis, has some doctors believing the spirochetes are sexually transmitted.  That is scarey!

Under Our Skin documentary about lyme disease is free to view on Hulu.com for a short period of time if anyone wants to see it.
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JJR
Wednesday, August 24, 2011, 5:39pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yeah, I don't think you can get away from it.  It could be in anything.  People that get it aren't always "outdoors" people.  I was constantly outside, cut up many deer, and when I moved into my current house was cutting trees down a lot.  Etc.  Outside was my domain.  Not any more.  No energy to.

Another issue I have is weight loss.  I'm struggling with it now.  I wish I could overcome this.  I just keep getting lighter and lighter.  Which brings me to another issue of sleep.  All the experts say to go to bed before 11.  But I am the most hungry at night and I eat a lot then.  I'd say I get 2/3 of my calories after 7 pm at night.  My body just wants it.  So when I eat at night, I end up going to be around 1.  Thankfully, I don't have to get up early, so I'll sleep 8-9 hours.  And I've been sleeping better this last year than I ever have.  But I wonder if I really need to change this late deal, or if some of us are just different.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Wednesday, August 24, 2011, 9:16pm Report to Moderator Report to Moderator

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Quoted from JJR
My spleen is really struggling today.  I had a chiro adjustment and I think it helped get the blood flowing.  So, my spleen seems overloaded, it hurts and then I get this real heavy feeling like I can't breathe very well.  My heart rate and BP will be normal, but it's like the filter is clogged.  My chiro suggested drinking 1/2 cup of olive oil 3 days in a row.  I'm not doing that.  It just doesn't seem right.  It might work, but I think I'd be in trouble.  I'm taking standard process spleen supps.  Spleen PMG and Whole, Dessicated spleen, but is there any other tips on supporting and cleansing it?


I really recommend trying the Red Root tincture. I know a number of people that have been helped by it. I've tried other spleen remedies that didn't help me at all until I found Red Root, which is recommended by Stephen Buhner (big name in the Lyme community). He has a great book out by the way that helped me quite a bit. Within 30 minutes after the first time I tried Red Root I felt a bubbling feeling in the area of my spleen and the pressure eased up for the first time since I got really sick. I got the bubbling feeling off and on after that. I still use it because if I stop I really notice my spleen again. I started on 10 drops, 3 times a day and increased over a few months to 20 drops 3 times a day which is where I've stayed. It's really cheap so not much of an investment if it doesn't work for you.

I've had four relative good days in a row.   And had the best night's sleep, last night, in the last six weeks (since I had my "relapse"). It's so hard to explain to people the kind of pain I live, work, and sleep with. On a scale of 1-10, I live with pain in the 5-6 range most of the time with the pain spiking up to the 8-9 for hours at a time. The last few days I've been in the 3-4 range, which I can pretty much ignore. Not at all normal, but I can fake it better at work.   The fatigue is hard too, but the pain is off the charts for me.

Do you guys have a lot of pain?


"Anxiety is the gap between now and then"

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JJR
Thursday, August 25, 2011, 3:30am Report to Moderator Report to Moderator

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Kyosha Nim
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The pain is less intense than the fatigue, for me.  The fatigue is terrible at times.  Like I have one foot in the  grave and am walking thru thick mud.  It's not always like that, but it can get pretty bad.  I do get pain sometimes though. Like my spleen right now.  I pray it doesn't get worse and maybe mine is different.  I get inflammed real bad when I herx though.  That's when the pain shows up for me.  Like my skin is on fire.  Fire.

What brand of Red Root tincture do you get and where, if you don't mind me asking?  I'll be saying a prayer for your pain.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ieatmeatnlikeit
Thursday, August 25, 2011, 5:24pm Report to Moderator Report to Moderator

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I read a book called Top Ten Cures for Lyme. Stephen Rosner wrote with seeming precaution  possibly just because of all the AMA  and Insurance/Pharm industry conflicts involved in this scourge. He, in possibly more words than were helpful to me covered much ground but also somehow left much out. He offered so many protocols that the sense I got was that nobody can afford to even consider that one size fits all. He did pay passing lip service to Rife machine technology which is outlawed in the U.S. but perfectly legal in some other lands. Someone I know has had really good success with Rife treatments where antiB's and even traditional herbal regimes left things less than complete.
I  was intrigued so I sought out a way to try it myself. I suggest it because I do believe I felt better for several weeks after doing  only one session. It is not an easy thing to follow up on in my area. Most people get their own devices and treat themselves and keep it all under wraps for obvious reasons. Evidently it is subtle and takes many sessions to get definitive results. Licensed doctors are not allowed to tell patients about this kind of therapy but if a patient asks about it and said doctor is  in the know, they might at their discretion send you to a Physical Therapist with a prescription for a session using similar technology. Rosner also mentions a strange deviation present in Lyme affected folks having to do with the "dis-function of Vitamin D uptake". Some Yale researcher has a paper on it and it seems to destroy or subvert the benefit of sunlight. So Rosner himself stays out of the sun.
I also think the name Japanese Knotweed Extract should be mentioned. I first heard about Teasel on this forum and presently keep both in my daily regime about three time a day. A new book called Invasive Plant Medicine by Timothy Lee Scott talks about invasive weeds showing up ahead of  now looming problems like Lyme and how many of them are turning out to have plenty of helpful components traditionally found in otherwise hard to obtain exotic and expensive sources.
Finally talk about expensive, for treatments I'll mention Pycnogenol(?) I heard about it back in my first Lyme fight. I took it with Aloe Vera juice as recommended. And for lifestyle: Exercise. Don't let yourself just sit around ! Push yourself to keep your blood moving and oxygenated. This is probably the most important element in keeping Lyme suppressed once you have it under control.
Of course reading too much about Lyme can make you very angry if you wish to go there. Try looking into the book about Plum Island called "Lab 257" by Micheal Christopher Carroll for a chilling dose of learning where Lyme probably got started in this country. Fast forward to the present: The suggestion that some Lyme ticks now carry a U.S. patented bioweapon called Mycoplasma should make everyone involved question their morals. Personally I don't know where I stand on the matter of affliction vs gift. Some days are better than others but I think more about nature and the planet now than I did before I had Lyme to deal with.
iemnli


love or perish, sing or croak,recycle or regret, write or read, think or thwim.
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nowishow
Thursday, August 25, 2011, 7:21pm Report to Moderator Report to Moderator

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Quoted from JJR
The pain is less intense than the fatigue, for me.  The fatigue is terrible at times.  Like I have one foot in the  grave and am walking thru thick mud.  It's not always like that, but it can get pretty bad.  I do get pain sometimes though. Like my spleen right now.  I pray it doesn't get worse and maybe mine is different.  I get inflammed real bad when I herx though.  That's when the pain shows up for me.  Like my skin is on fire.  Fire.

What brand of Red Root tincture do you get and where, if you don't mind me asking?  I'll be saying a prayer for your pain.


I only get that extreme fatigue when my body is fighting the actual "Lyme bug". So I know what you're talking about but have only experienced it for a few months. I really feel for you! By the way burning pains are usually associated with Bartonella.

I get most of my supplements from iherb.com because I get free shipping for order $40 or over. They're fast and have very good prices. Here's a link to the red root page.

http://www.iherb.com/Red-Root-2-fl-oz-60-ml/5333?at=0


"Anxiety is the gap between now and then"

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nowishow
Thursday, August 25, 2011, 7:34pm Report to Moderator Report to Moderator

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Quoted from ieatmeatnlikeit

I read a book called Top Ten Cures for Lyme. Stephen Rosner wrote with seeming precaution  possibly just because of all the AMA  and Insurance/Pharm industry conflicts involved in this scourge. He, in possibly more words than were helpful to me covered much ground but also somehow left much out. He offered so many protocols that the sense I got was that nobody can afford to even consider that one size fits all. He did pay passing lip service to Rife machine technology which is outlawed in the U.S. but perfectly legal in some other lands. Someone I know has had really good success with Rife treatments where antiB's and even traditional herbal regimes left things less than complete.


I've never tried Rife machines but have heard wonderful reports from other Lymies about them. I have Reiki treatments when I can afford them and they seem to help as well, actually they give me a strong herx reaction which to me is a good thing. I really like energy type healing. I've always like homeopathy as well.

I've never found anyone who benifited from the no sun, no vitamin D program. But it seems everyone responds so differently it wouldn't surprise me if it helped someone. I do better if I get sun. It actually works like a detox for me.


"Anxiety is the gap between now and then"

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nowishow
Thursday, August 25, 2011, 7:34pm Report to Moderator Report to Moderator

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Quoted from ieatmeatnlikeit

Fast forward to the present: The suggestion that some Lyme ticks now carry a U.S. patented bioweapon called Mycoplasma should make everyone involved question their morals. Personally I don't know where I stand on the matter of affliction vs gift. Some days are better than others but I think more about nature and the planet now than I did before I had Lyme to deal with.
iemnli


I tested positive for Mycoplasma  


"Anxiety is the gap between now and then"

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JJR
Thursday, August 25, 2011, 8:31pm Report to Moderator Report to Moderator

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Kyosha Nim
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Good stuff here.  Thank you Meat eater.  When I went down to mayo, that was one lab I also failed.  VIT D levels were low.  And whenever I take D3, I feel really lousy.  I don't feel lousy with the D in Cod liver oil though.  

Thanks for the Iherb, nowishow!  My doctors assistant suggested I try Oregon Grape root, before Red root, she said it's less strong.  But she did say the Red root tincture is good too.  I know I need to get moving more.  It's hard when your fatigued and get heart arrhythmia's when pushing myself physically.  Among other things.  She suggested I try some bouncing, which joe did too, and deep breathing.  That'll get the lymph moving. I do deep breathing, but not like long periods.  Maybe 10 minutes.  


Lyme.  Grrrrr.....


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ruthiegirl
Thursday, August 25, 2011, 8:49pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from JJR
Another issue I have is weight loss.  I'm struggling with it now.  I wish I could overcome this.  I just keep getting lighter and lighter.  Which brings me to another issue of sleep.  All the experts say to go to bed before 11.  But I am the most hungry at night and I eat a lot then.  I'd say I get 2/3 of my calories after 7 pm at night.  My body just wants it.  So when I eat at night, I end up going to be around 1.  Thankfully, I don't have to get up early, so I'll sleep 8-9 hours.  And I've been sleeping better this last year than I ever have.  But I wonder if I really need to change this late deal, or if some of us are just different.  


I think some of us are just different. My father  could never go to bed before 11:00 either, many times not until 2:00 AM or later. Nor could he get up before 9:00 or 10:00 AM. Fortunately, he was powerful enough in his company that he could set his own hours; as long as he got electronic devices designed, they didn't care too much what hours he kept.

Getting to bed before 11:00 may be "ideal" for "most people" but we're all individuals. For some people, 11:00 may be way too late, and bedtime needs to be 8:30 or 9:00 and then they wake up bright-eyed and bushy-tailed at the crack of dawn. You clearly do well going to bed much later and sleeping much later.

I also wonder if those "specific bedtime" reccomendations were based on any real science regarding light cycles, or if it was based on the notion that "we all have to be up by 7:00 AM so we need to be in bed by 11 to get 8 hours".


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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Chloe
Thursday, August 25, 2011, 8:55pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from nowishow


I've never tried Rife machines but have heard wonderful reports from other Lymies about them. I have Reiki treatments when I can afford them and they seem to help as well, actually they give me a strong herx reaction which to me is a good thing. I really like energy type healing. I've always like homeopathy as well.

I've never found anyone who benifited from the no sun, no vitamin D program. But it seems everyone responds so differently it wouldn't surprise me if it helped someone. I do better if I get sun. It actually works like a detox for me.


I did Rife a few times....don't know if it helped....It was over 15 years ago....Reiki was awesome....better than just about anything for pain...and I agree...I really like energy healing and homeopathy.  I took a lot of homeopathic formulas....a lot of different herbs....had massages,
soaked in magnesium oil baths every night for a year...My pain has lessened by 90%.

I wasn't able to tolerate vitamin D either until I got somewhat better.  I now take 5,000 iu of D
with no problems.

I have very few aches and pains these days....when I lived with pain for 4 decades....I owe this
to trying just about every type of supplement, herb and modality that I heard about...I lived
on Olive Leaf Extract for about 10 years...Now I take Lauricidin, which I think is what is helping
me with all the stealth viral issues I had.  First time in ages that I feel really well....I had to
tweak my SWAMI a bit....eliminate foods that made me too acidic.....I had to put the dairy
on hold because my body seems to want to cleanse right now and so I'm eating more raw foods.

I take Genoma Security 2x a day and I think it's helping with leftover biofilms.  There just
wasn't as much available to me then as there is now.

Also, after 4 decades, I'm actively exercising 3-4 times a week...I used to do a little, but now
I exercise a lot....which is saying a lot considering I'm older.  But the pain kept me from exercising.  I had neurological pain that was excruciating....All gone now.

There is hope for all of you..



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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nowishow
Thursday, August 25, 2011, 10:38pm Report to Moderator Report to Moderator

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Quoted from Chloe


I have very few aches and pains these days....when I lived with pain for 4 decades....

Also, after 4 decades, I'm actively exercising 3-4 times a week...I used to do a little, but now
I exercise a lot....which is saying a lot considering I'm older.  But the pain kept me from exercising.  I had neurological pain that was excruciating....All gone now.



Chloe! I can't imagine living with the kind of pain I've been having for 40 years. It feels impossible to me. I don't know how you did it.

I haven't been able to excercise at all except for yoga. My heart just starts pounding or I start having very strong pain and/or weakness. I've always been so active. I used to cycle (60 mile rides) kayak, walk, hike, you name it. I was a construction worker for years. Always so active and now I'm a couch potato. It's very strange and not a little depressing.

But you've given me hope. Thanks!


"Anxiety is the gap between now and then"

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JJR
Friday, August 26, 2011, 1:53am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from nowishow


Chloe! I can't imagine living with the kind of pain I've been having for 40 years. It feels impossible to me. I don't know how you did it.

I haven't been able to exercise at all except for yoga. My heart just starts pounding or I start having very strong pain and/or weakness. I've always been so active. I used to cycle (60 mile rides) kayak, walk, hike, you name it. I was a construction worker for years. Always so active and now I'm a couch potato. It's very strange and not a little depressing.

But you've given me hope. Thanks!


I'm so glad I'm not alone in this aspect.  I used to be an outdoorsman, hunter, put the kids on my back when they were little and take hikes.  Now, it's the same deal as what you've just said.  I was getting arrhythmia's when pushing myself, and even if I don't get an arrhythmia, if I over do it, my heart rate just flies out of control, I get the chills, and I feel like something is really really wrong.  One time a year ago I was feeling well, I helped my Dad move a really heavy desk and my body unraveled.  I got pain all over the place, etc etc.  Same deal with the heart stuff, and it took me a week to finally calm down.  I mean, I would calm down at night to a point, but I had to take meds, and what not and my body didn't get over it for a while.  It's very frustrating, because I was always an athlete and active.  Until this all hit 5 years ago.  I do think I need to do something, but I'm not sure what my body can handle yet.  I haven't tried yoga.  When I feel good I do stretching and few push ups, some leg lifts.  But it's usually about 10 minutes or so.  And even that has fallen by the wayside these last couple of months.  I have one of those balls and I think I'm going to sit on it and bounce a little at first.  Get the lymph moving.  And go from there.  But I've been so up and down lately.  I felt terrible yesterday.  Today was better.  Praise the LORD!!

I also do the dishes and cook.  But it hasn't been anything real in depth or time consuming lately.  Meaning I don't stay on my feet for overly long before sitting down.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Friday, August 26, 2011, 3:32pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yeah, I wasn't down in weight when I went to bed last night!!!  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
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Quoted from JJR
Yeah, I wasn't down in weight when I went to bed last night!!!  


I've heard that weight loss can be attributed to Babesia. The heart symptoms are usually Babesia as well. If you herx by taking Artemisinin you can pretty much assume you have Babesia. In my opinion. This is how I first tested myself to see if I had Babesia because my lab test was negative. Later my current doctor confirmed this through clinical diagnosis. Once I started treating just for Babesia my progress started to move forward.

This stuff made me herx so bad. I had to try a much gentler form of the herb.
http://www.iherb.com/Nutricology-Super-Artemisinin-60-Veggie-Caps/3484?at=0

This was much easier on me
http://www.iherb.com/Gaia-Herbs-Sweet-Wormwood-Herb-1-fl-oz-30-ml/14926?at=0

But I found A-Bab to work the best for me.


"Anxiety is the gap between now and then"

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nowishow
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Quoted from JJR


I'm so glad I'm not alone in this aspect.  I used to be an outdoorsman, hunter, put the kids on my back when they were little and take hikes.  Now, it's the same deal as what you've just said.  I was getting arrhythmia's when pushing myself, and even if I don't get an arrhythmia, if I over do it, my heart rate just flies out of control, I get the chills, and I feel like something is really really wrong.  One time a year ago I was feeling well, I helped my Dad move a really heavy desk and my body unraveled.  I got pain all over the place, etc etc.  Same deal with the heart stuff, and it took me a week to finally calm down.  I mean, I would calm down at night to a point, but I had to take meds, and what not and my body didn't get over it for a while.  It's very frustrating, because I was always an athlete and active.  Until this all hit 5 years ago.  I do think I need to do something, but I'm not sure what my body can handle yet.  I haven't tried yoga.  When I feel good I do stretching and few push ups, some leg lifts.  But it's usually about 10 minutes or so.  And even that has fallen by the wayside these last couple of months.  I have one of those balls and I think I'm going to sit on it and bounce a little at first.  Get the lymph moving.  And go from there.  But I've been so up and down lately.  I felt terrible yesterday.  Today was better.  Praise the LORD!!

I also do the dishes and cook.  But it hasn't been anything real in depth or time consuming lately.  Meaning I don't stay on my feet for overly long before sitting down.  


I've heard this kind of story so often. You are so far from being alone in this, going from an athlete to unable to do much of anything. My theory is we had a much bigger chance to get tick bites because we're so active, out in nature all the time. What a price to pay!


"Anxiety is the gap between now and then"

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Kim
Friday, August 26, 2011, 8:16pm Report to Moderator Report to Moderator

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With Babesia, you may experience weight loss or weight gain.  I have the latter to deal with.

From what I read about Lyme disease, the nymph ticks pick up the spirochetes and coinfections from mice.  The Lyme groups suggest using Damminex tubes around the house.  If you do a google search, you will find places to purchase them.  Cotton balls are in the tubes which the mice take to their nests and the permethrin in the cotton balls kills the ticks.  They are pricey but worth it for less ticks.
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JJR
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Mice and chipmunks are on my "kill at will" list.  Although I haven't gone after the chipmunks this year as much.  I haven't seen a lot of squirrels lately, thank God.  And we did have a mice problem at one time, but I think it's better now.  We'll see when the winter comes.  Time for the traps and some cheese.

Yeah, I'm sure gain or loss of weight is just a sign of something not working right in the system.  Like someone posted, it strikes us at our weak points.  I've never been one to put on too much weight, except for a short time in my early 30's.  But even then it wasn't terrible.  As a kid, I was always skinny.  I did sprout some muscles with lots of effort in high school.  It's a shame to see them dwindle.  Oh well, God says don't be as worried about those things as the spiritual.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
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Kyosha Nim
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Quoted from Kim




  It literally feels like I am shaking on the inside but there is no shaking on the outside.  It is definitely neurological.  



Yes. That's me.  When I was at my worst last summer, I felt like that constantly.  Now it's just when I wake up during the night sometimes.  Thankfully it's only off and on.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from JJR


I'm praying for you Leanne.  How is your spleen?  Do you ever feel like it gets gummed up and hurt?


Thanks, JJ.     What does a gummed up spleen feel like?  I don't even know what the symptoms are.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
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Quoted from ieatmeatnlikeit
Rosner also mentions a strange deviation present in Lyme affected folks having to do with the "dis-function of Vitamin D uptake". Some Yale researcher has a paper on it and it seems to destroy or subvert the benefit of sunlight. ........

Try looking into the book about Plum Island called "Lab 257".....


That's odd about vitamin D uptake.  I'm evidently very deficient.  I feel fabulous when I've been in the sun.  If I go to the garden first thing in the morning and get two or three hours of sun I will feel fantastic the rest of the day.

Re: Plum Island, I don't even want to think about it.  DH is from New York and it turns out he did a big paper in school about it.  He told me all the nitty gritty details about what's gone on over the years with the former Nazis being brought here and I can't even allow myself to believe that their experiments are now destroying my body today.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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