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A thread to discuss lyme disease*  This thread currently has 174,232 views. Print Print Thread
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TJ
Sunday, October 9, 2011, 11:06pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from ABJoe
You don't have to be confrontational!  Some one is in charge of Human Resources.  They are very interested in: 1) productive employees, and 2) providing a safe workplace - mostly because it is a legal requirement.  If you go in and describe that the radio is bothering your productivity and earplugs are your only answer, but it interferes with your ability to hear pages, etc...  They will be interested.  

Be prepared with some concrete suggestions to solve the problem - whether the radio can be playing the same station at a lower volume, it needs to be more private - whatever...
That wouldn't fly here.  There is no HR department.  There are only ~20 employees.  Everyone knows everyone.  If I went and "tattled" it could get rid of the music, but it would create huge hostility against me.  I don't want that.  I like these guys (just not their music), and I want to cultivate a good relationship.  They are more likely to respect me if I go straight to them first.  They won't like it, but everything will blow over soon.  If I go talk to the owner, he could see that as me not being a team player, not fitting in with the culture, etc.  He is known to have a, ahem, mercurial temperament.  As much as I dislike it, going straight to the source seems like the best option.

As far as concrete suggestions go, I intend to make it known that I have no qualms with them listening to music/radio as long as they don't make me listen to it, too, which means headphones.  If it seems necessary, I might haggle a bit about eliminating a certain station and keeping the volume low.  That's still not ideal, but I don't want to be a Nazi about it.
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TJ
Sunday, October 9, 2011, 11:09pm Report to Moderator Report to Moderator

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Kyosha Nim
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More on topic, I joined the LymeNet forums, asked for references to local LLMDs, and received two private messages containing 12 references.  That should be a good beginning once my health insurance papers have come.
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Dr. D
Monday, October 10, 2011, 10:28am Report to Moderator Report to Moderator

Peter D'Adamo
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Lyme Disease requires direct one-on-one advice and treatment.

Generalized protocols could be ineffective and possibly problematic.


A whole system is a living system is a learning system.’ -Stewart Brand
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Amazone I.
Monday, October 10, 2011, 11:31am Report to Moderator Report to Moderator

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Kyosha Nim
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I use bioresonance and PT  and cardes,sometimes olive leaf or rizoles and essential oils  to treat lyme,with great success...


MIfHI K-174
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Goldie
Monday, October 10, 2011, 2:06pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
Lyme Disease requires direct one-on-one advice and treatment.

Generalized protocols could be ineffective and possibly problematic.


Thank you Dr D.. for that answer.. It is what I suspected,  


I am really getting scared for all the people that are exposed to Lyme, husbands, wives, and offspring.. scary.  It is one thing to get on illness but not be able to get a test for it is terrifying..   and to wait for years is the making of a night mare.. not to mention old age illness that will follow..

Kim.. yes I saw the movie Under Our .com and it is shocking in many ways, not least of which is HOW ignorant we the public rare about it.   Mistreatment of those who suffer so real, is just one aspect, the cost of finding any help is beyond comprehension.

I do think that ALL types of treatments are needed to make any differences. That includes fortified diets, BLoodtype Geno type for 100%  is a priority.  Good elimination of the 'trash' of dead cells and or spirochetes or micro-organisms and the like, is needed as well.    

There is much learning needed.  I will read the other long thread on Lyme to be sure, and be able to comprehend so much better..  

I am a better person for knowing more about it.  I learned from a person who suffered greatly, I AM so grateful that she let me in on her 'nightmare' so that I might learn and understand and avoid MIS- JUDGMENT.  

THANK YOU ALL who answered here.. I am very appreciative..  



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Monday, October 10, 2011, 5:24pm Report to Moderator Report to Moderator

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Kyosha Nim
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I think the more everyone knows about it and is interested in it, the better off we are.  So it's very nice to see your interest!!!  Especially if you don't have it.  But once I knew I had it, it's bizarre how many stories I'm hearing about people with it, and how much it has affected them.  It has been a blessing to know that my struggles are not alone, and there is a reason, but it's still a bummer.  For all of us that have it.  

2011 The year of the lyme.  At least for me.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Monday, October 10, 2011, 6:40pm Report to Moderator Report to Moderator

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Sam Dan
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2011 will be a pumper crop for ticks.. I have no kids and if I had some I would build a porch to keep them in.  but now with mosquitoes it becomes even more on issue..

I am interested in two ways.. for knowledge and for helping to understand those who have it..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Ribbit
Tuesday, October 11, 2011, 3:32am Report to Moderator Report to Moderator

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Kyosha Nim
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TJ, I got the name of a local LLMD through a private message on that forum too.  Unfortunately I've forgotten my made-up name, password, etc.  I'd have to sign up again and ask again.   I'm talking with a lawyer friend about getting on disability and it doesn't even seem possible, but at least if I have an LLMD give me an official diagnosis, I might be able to make some headway.

I've taken an indirect route with my children upon occasion that usually goes over really well because it makes them laugh.  If you can make somebody laugh, they can hardly be annoyed at you.  You could just say, "Hey, could we turn it down just a tad?"  After all, nobody but you minds it.   (I know, I know, I've got the sensitive hearing too.....Not to mention certain music makes certain people of certain marital statuses lonely.  RUB IT IN WHYDONTCHA--Yes, I remember.) So if you said that when everybody was amused by something else you said, they  might not mind turning it down.  Or, what I do with my kids is wait till they ask me a question, and then I holler, "Sorry, I can't hear you over all the noise!!!"  They laugh and turn down the volume.  I don't know...Introverts always have the tougher problem working around people.

JJ, I have a suggestion for you, but it's going to sound really weird.  It might make more sense over the phone sometime.  Meanwhile, I will pray for peace for you.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Kim
Tuesday, October 11, 2011, 2:49pm Report to Moderator Report to Moderator

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Quoted from TJ
More on topic, I joined the LymeNet forums, asked for references to local LLMDs, and received two private messages containing 12 references.  That should be a good beginning once my health insurance papers have come.


That is my favorite group... I help out with sending out names of LLMD's in my area.
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JJR
Tuesday, October 11, 2011, 3:37pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Age: 42


JJ, I have a suggestion for you, but it's going to sound really weird.  It might make more sense over the phone sometime.  Meanwhile, I will pray for peace for you. [/quote]


Well I need something!!!  I used to get anxiety all the time, and it went away for a while.  But these last few days it seems like it's really getting to me.  I know there is an emotional / mental / spiritual component, but I also think there is something physical going on that is making more susceptible to desperate thinking right now.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Tuesday, October 11, 2011, 4:19pm Report to Moderator Report to Moderator

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Kyosha Nim
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It's a full moon right now.....It's sort of making me feel wired, and a bit over the top.
Perhaps this explains the current level of anxiety.

But I do suffer from panic attacks related to Lyme.

Some interesting reads.
http://www.thehumansideoflyme.net/articlelist.php?mid=4


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Kim
Tuesday, October 11, 2011, 5:42pm Report to Moderator Report to Moderator

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Hope that full moon doesn't make me any worse!!!  Panic attacks are my middle name.  Of course the forgetfulness causes panic attacks all day.  It is no wonder they are planning to scan my brain.  Not sure I want to know the outcome.  

I panic everyday that I forgot to take something out for dinner.  .  With the way we eat, that could mean nothing to eat.  At some point, I hope I can get food in the freezer ready to eat for those days I can't move.

Sometimes all I feel like eating is fruit or yogurt.  
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nowishow
Tuesday, October 11, 2011, 11:15pm Report to Moderator Report to Moderator

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Quoted from Kim
  At some point, I hope I can get food in the freezer ready to eat for those days I can't move.
  


I make big pots of stew or soup and freeze half of it. That way I'm covered when I have a really bad couple of days. It really helps.


"Anxiety is the gap between now and then"

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TJ
Wednesday, October 12, 2011, 12:12am Report to Moderator Report to Moderator

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Kyosha Nim
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I'm still waiting for my insurance paperwork.  Our agent visited today, and I told him.  He got on the computer and verified that I had coverage effective the 1st, so it's just the USPS that's the hold-up now.

Quoted from Ribbit
"Sorry, I can't hear you over all the noise!!!"  They laugh and turn down the volume.  I don't know...Introverts always have the tougher problem working around people.
That would have been a good idea if the circumstances had been more amenable.  I've tried everything subtle I could.  Any mention of it immediately created tension, and you can't foster humor in that environment.  Heck, it seems like since my first mention, that the party in question has been even more insistent on leaving the radio on all the time.  He seems like the passive-aggressive type.

Yesterday I was finally blunt.  It got me some peace for the rest of the day.  Today, it was like what I said yesterday never happened.  I made my needs clear and directly addressed the people (person, mostly) responsible, with no relief, so I no longer felt any qualms about taking my concern to a higher authority.  I sent an email to the technical leader (effectively the second in command after the owner) describing the problem, what I've done so far to address it, the fact that my efforts have been in vain, and a suggestion for how to remedy the problem.  That was mid-day while the other guys were out at lunch.  I got no response today, and I didn't expect to until tomorrow at the earliest.

Fortunately, I can turn off the radio when they're gone, and also fortunately, I found enough to keep me busy out in the mechanical area today so I didn't have to hear that racket.
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Ribbit
Wednesday, October 12, 2011, 2:40am Report to Moderator Report to Moderator

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Kyosha Nim
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Age: 37
I keep soup in the freezer too.  I freeze leftovers in mason jars with the lids barely on, and then I go back later and tighten them up.  It's not unusual for me to forget I have to cook.  My poor brain....

Today I talked with a "Lyme advocate" that I met on Facebook.  I called her on the phone and she explained what all I need to do to get on disability.  I have to see an LLMD and get tons of test run.  She also said it would help my chances if I got the kids diagnosed.  I just don't even want to think about that yet.  But her suggestion was to get as much junk down on paper as we could, and it would greatly increase my chances of them accepting my case.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
Wednesday, October 12, 2011, 2:47am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
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Gender: Female
Location: Atlanta, Georgia
Age: 37
My mom says their vet now recommends everybody treat dogs for ticks year-round.  Because Lyme in pets is becoming such a problem.   We talked for a long time on the phone tonight and I was updating her about my current state.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Goldie
Wednesday, October 12, 2011, 6:18am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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Location: East Coast
Quoted Text
My mom says their vet now recommends everybody treat dogs for ticks year-round.  Because Lyme in pets is becoming such a problem.   We talked for a long time on the phone tonight and I was updating her about my current state.


So good to remind us on the pets.. how come they have protection for animals but not humans??

As for talking to mom, when that is possible then there is nothing better.. I miss my mom and the 'not enough time' I had to talk to her more often - in a meaningful way.. I was always to occupied with what was, not what could have been.. somehow the opportunity seldom presented it self.. enjoy those moments when it feels good.



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Wednesday, October 12, 2011, 3:32pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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YES, the MOON!!!!!!!!!!!!!!!!!!!  I had a phone consult with my Doctor's assistant yesterday and she said mentioned the moon.  And I said, hey, isn't it real big now too?  October is the Harvest moon and it's really big and bright.  So yeah, that could really get things wired.  Ours was covered with clouds last night and it was still real bright out last night.  

OK, so I'm not the only one that struggles with anxiety and mind problems.  Actually, my doctors assistant has Lyme's too and she said the same thing.  I think I feel a little better after taking some of my Amino Acid blend I had started in the spring.  I didn't need it after a while, but I guess I'm probably low again in these things.  

She also suggested:

L-Theanine, which is in Green Tea or a supplement, and
Bach Flower Rescue Remedy, which I think many people have talked about on here.


Frozen stew is a good idea.  I need to learn how to make a good stew.  I really think the addition of more red meat in my diet has boosted my immune system.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Wednesday, October 12, 2011, 3:50pm Report to Moderator Report to Moderator

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Ee Dan
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I just need to feel well enough to spend a day putting food in the freezer.  I have been trying to have leftovers, but lately, my dh is lucky to get dinner at all.

Need to find out how to make compliant chili without beans.  Can't eat them yet!!

That full moon thing....I had two meltdown days this past week.  Watching for that next month.

I use L-Theanine at night to help with sleep.
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nowishow
Wednesday, October 12, 2011, 5:45pm Report to Moderator Report to Moderator

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Here's some common gall bladder symtpoms:


Quoted Text
Even though, gall bladder symptoms in women are similar to those of men, women usually tend to experience more abdominal discomfort, bloating and gas.

What are the symptoms?

Symptoms include abdominal pain that may begin under the rib cage and migrate to between the shoulder blades or under the right shoulder blade.  Women occasionally feel a dull ache that does not go away.

This pain is caused by gallstone congestion. In some instances gallstones block the cystic duct, which is the channel through which bile travels from the gallbladder, where bile is temporarily stored, to the small intestine. Bile fluid is prevented from flowing to the common bile duct. As the bile becomes more concentrated, it begins to irritate the inner lining, which causes the gallbladder’s wall to eventually become inflamed. This triggers sharp abdominal pain and nausea, vomiting, as well as restlessness.


"Anxiety is the gap between now and then"

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nowishow
Wednesday, October 12, 2011, 5:57pm Report to Moderator Report to Moderator

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About anxiety - I often experience the anxiety in a physical form without any emotional components. My heart will start racing, my hands will get clammy, and I'll have shortness of breath. But I can also be overly worried about getting something done or whether there are germs on something. Both these obsessions seem justified in a way considering the disease. I often find myself hurrying to get something done just before I'm laid up for a couple of days with pain (maybe I can feel it coming?). And of course I don't want any more "germs" to enter this body. I'm full up!

But even though it's justified, I'm sure it's out of proportion to what is appropriate behavior. I just consider it one of my many symptoms and try not to give myself any grief over it.  


"Anxiety is the gap between now and then"

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Chloe
Wednesday, October 12, 2011, 6:25pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
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Quoted from nowishow
About anxiety - I often experience the anxiety in a physical form without any emotional components. My heart will start racing, my hands will get clammy, and I'll have shortness of breath. But I can also be overly worried about getting something done or whether there are germs on something. Both these obsessions seem justified in a way considering the disease. I often find myself hurrying to get something done just before I'm laid up for a couple of days with pain (maybe I can feel it coming?). And of course I don't want any more "germs" to enter this body. I'm full up!

But even though it's justified, I'm sure it's out of proportion to what is appropriate behavior. I just consider it one of my many symptoms and try not to give myself any grief over it.  


Welcome to my world...I never had anxiety or OCD or anything that came close to what I'm
experiencing recently.  I sometimes wake up feeling panicked.  I sometimes take no supplements
thinking it's something I'm taking...but interestingly enough, my issues with lyme have totally
changed.  I used to have body aches and pains...so bad I could hardly move...but since I started
going to exercise classes 3x a week, my tight tendons/muscles/connective tissues seem to have
stretched and can handle  movement. In addition, my stamina is light years better.  The fact
that everything shifted into my head, my mind, my thoughts, my nervous system is possibly
in cleansing mode?  Dunno...just throwing it out there for your thoughts (eveyone;s thoughts)....because I seemed to have cleared old issues and developed this strange high level of anxiety which seems to be all fear based.. Irrational, of course.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Kim
Wednesday, October 12, 2011, 6:27pm Report to Moderator Report to Moderator

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Ee Dan
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Gallbladder disease isn't always easy to diagnose.  I had a HIDA scan.  There are no blockages of any ducts, no stones, just slow ejection fraction.  That could be from the Lyme or the fact that I lost 120 lbs in the past 19 months.

During all the dieting, the gallbladder was just sitting there holding bile and not releasing because it didn't have to.  I am hoping that it is going to wake up and start squeezing better.

I am in no pain.  No gas or bloating most of the time.  I do find that because my digestion is so messed up by Lyme that I can't tolerate beneficial foods on my swami a lot of the time.  One day I can eat something and have no issues and the next day or two later if I eat that same food, gas and bloating result.

I am told that as treatment progresses, foods that I have sensitivities to will go away.  I used to be able to eat everything.

Today I got a stomach ache after eating raspberries.  Go figure.
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Amazone I.
Wednesday, October 12, 2011, 6:36pm Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
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Location: CH-Benglen Kanton Z�rich
Age: 57
backpains... related to Dr. Sarno's books... ... eventually, and as long as we try to find the enemy in the exterieure... no chance....


MIfHI K-174
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nowishow
Wednesday, October 12, 2011, 7:25pm Report to Moderator Report to Moderator

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Quoted from Chloe


Welcome to my world...I never had anxiety or OCD or anything that came close to what I'm
experiencing recently.  I sometimes wake up feeling panicked.  I sometimes take no supplements
thinking it's something I'm taking...but interestingly enough, my issues with lyme have totally
changed.  I used to have body aches and pains...so bad I could hardly move...but since I started
going to exercise classes 3x a week, my tight tendons/muscles/connective tissues seem to have
stretched and can handle  movement. In addition, my stamina is light years better.  The fact
that everything shifted into my head, my mind, my thoughts, my nervous system is possibly
in cleansing mode?  Dunno...just throwing it out there for your thoughts (eveyone;s thoughts)....because I seemed to have cleared old issues and developed this strange high level of anxiety which seems to be all fear based.. Irrational, of course.


Maybe you're healing is taking place in the brain now that your joints are doing so much better and you're having a reaction to the toxin release.



"Anxiety is the gap between now and then"

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