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A thread to discuss lyme disease*  This thread currently has 170,609 views. Print Print Thread
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Lola
Thursday, October 6, 2011, 9:47pm Report to Moderator Report to Moderator

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Sa Bon Nim
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so many compelling stories and testimonials you can look up
http://www.bing.com/search?cp=1252&FORM=FREESS&q=Lyme&q1=site%3Adadamo.com


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Ribbit
Friday, October 7, 2011, 1:20am Report to Moderator Report to Moderator

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ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Friday, October 7, 2011, 3:25am Report to Moderator Report to Moderator

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Goldie, I think "bugs" is a slang term for bacteria, when we people use that term.  Which technically Lyme isn't.  I guess it's in it's own category.  Called a spirochete.  Now, it IS transferred to humans through bug bites.  And I suppose you could have one latched onto you for some time.  But I have no clue how long, but that's not really the point.  When you test for it, it's in your blood.  And that type of thing.  It's not a parasite.  Per se.  From what I understand.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Friday, October 7, 2011, 11:56am Report to Moderator Report to Moderator

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Ribbit... WOW.. YES that is one way to look at it.. 300 items..

and some people never get diagnosed for years or decades.. at least with this list it explains the complexities!!!  Thanks for the link.. and thanks to the doctors who came up with this list..


JJR... yes bug was my term for not KNOWING even what to call the buggers.. bugs is much to kind.. there are so many 'invaders' taking over health in stealth, going unseen for years until way to late..

Can you imagine doing something about it if we don't even understand what it is.. ??? !!!
There are some microrganism and paracitic effects that can be altered with certain treatments, but is there possibly a way to also influence them with foods or spices?      


AND NOW once more the original question:   Is looking at LYME and BTD a separate thing?  is Lyme so different?  are there protocols or sups or whatever?

Is not more written by any of the doctors here?  on what a person might try to follow through to make any difference??  

maybe at least talking about what test would show LYME .. earlier?? or is the diagnosis so bad that one will not want to hear it?    

Is it always to late for early aggressive treatment unless one still sees the tick bulls eye?    

I mean with it being so all over the country? why do we know so little about simple questions on Lyme?




Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
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For me, the diet alone is not enough to fight it.  At least, that's my experience.  I think it helps tremendously though.  I would be a lot worse off, if I was just eating whatever.  And I know eating the right foods will help strengthen my system.  BUT, I think it can be very aggressive in some of us, or we need to target the lyme at some point to get rid of it.  Some people may just fight it off better than others, with thier immune system.  But I have gotten systematically worse on some levels of my health, over the last 5 years.  I am weaker now than I ever have been.  Despite following this diet very well.  And I believe it's because of the havoc lyme has placed in my system.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Friday, October 7, 2011, 7:53pm Report to Moderator Report to Moderator

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Quoted from ABJoe


2) Fat digestion is aided by the bile, so it is possible that the gall bladder could be the problem, although I would think, the liver is more at fault if you aren't having pain at the point where the bottom of the right ribcage turns sideways after going down from the sternum.  



I believe you can also have pain between the shoulder blades. I have this pain (sometimes very strong) and think it may be my gall bladder.


"Anxiety is the gap between now and then"

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nowishow
Friday, October 7, 2011, 7:54pm Report to Moderator Report to Moderator

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Quoted from ABJoe

I have also been detoxing small hard chunks through the skin.  I don't know what it is, but I'm glad it is leaving.



I've had this for a couple of years, very strange. But I'm also happy to get it out, whatever it is.


"Anxiety is the gap between now and then"

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nowishow
Friday, October 7, 2011, 8:13pm Report to Moderator Report to Moderator

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Quoted from JJR
It's funny, because I feel the opposite lately.  I have not eaten very much red meat over the last 5 years, that now I'm craving it big time.  And it seems to be helping.  Which I would think it would make my liver sluggish too.  I'm not entirely CERTAIN that it's helping.  But I always seem to feel better after eating it.  Especially lamb.  But venison too.  Beef seems like I could take it or leave it.  But it doesn't seem bad.  


I go back and forth on how much meat I eat. Sometimes I want very little meat and mostly poultry and other times like now I want a lot of red meat. My body is always craving different things and as long as it's on my swami I follow along.  


"Anxiety is the gap between now and then"

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nowishow
Friday, October 7, 2011, 8:15pm Report to Moderator Report to Moderator

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Quoted from Ribbit
Here's something else to make you wrinkle your brow:  I've written before about how when I go through a detox session (aka herx), a mole or two on my right arm will bubble up, itch, turn into a scab, flake off and leave a scar.  One ND I saw, when this happened, said, "Yes, many  moles are viral, just like warts.  If you kill the viruses, they can go away."  So every couple of years without warning, a mole on my right arm will do it again. I have little scars up and down my right arm that have gone through that process.  Cool, huh?  I'd never heard of anybody losing a mole because they detoxed.  So anyway, with this skin break-out this past week, a big mole on the back of my left arm, that's been there for as long as I can remember, bubbled up and today a patch scratched off.  Underneath is new, clean, pink skin.  Yes, folks, I'm not going to think of skin break-outs as bad and "sick" anymore.  I'm going to start thinking of them as my body cleaning itself out of viruses and bacteria that it can't get rid of any other way.  This is the first time I've lost one on my left arm.  


This explains a lot! I've had similar experiences since I started to recover from this desease. Thanks so much for this information!


"Anxiety is the gap between now and then"

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JJR
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The pain between shoulder blades could be detoxing also.  I'm told sometimes toxins like to seep out of your spine.  

I saw a video today my sister linked about Lyme from Envita Medical Centers.  It was very good.  http://www.envita.com/disease.html

It's only 7 minutes and it does a good job of simplifying and explaining lymes.  Makes me cringe, but it was good.  PLUS, it showed what effective treatment should include.  It said it should include 3 things at the same time.  Boost the immune system, kill the bacteria (with antibiotics and/ or herbal remedies) and deal with the coinfections.  If you do all three at once, they're saying, you'll get a better degree of recovery.  My thing is I have not dealt with the coinfections, beyond eating well.  Which probably helps.  But I think I need someething else to cover those.  I think the homeopaths I'm taking is actually dealing with the lyme itself though.  Yet it seems crazy, because I guess it burrows into our tissues.  UGh.  But that may be why I've been having more joint pain, since starting the homeopathic remedy.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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I always, always, always have back pain, particularly between my shoulder blades.  My back has hurt ever since I can remember.  I have mild scoliosis and the disc degeneration of a 50-something-y.o. (according to my last chiropractor), but I don't believe that's the root of the problem.  The MRIs I had done last summer didn't get my upper back--just my lower and middle.  Every time Rob gives me a back rub to loosen up the muscles, my whole spine will crunch.  It freaks him out.  "That's not supposed to happen!"  But it does constantly.  I'm always trying to crunch the area between my shoulder blades.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Quoted from nowishow
I believe you can also have pain between the shoulder blades. I have this pain (sometimes very strong) and think it may be my gall bladder.

My understanding is that pain between the shoulders is typically related to the stomach...


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Ribbit
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It's too late for me to take antibiotics, which is why I'm going the natural route.  Why bother with something even the experts say won't help?  Of course if I went to them, they'd put me on very strong intravenous abx which would make me much sicker.  I'm happy doing what I'm doing, which is actually making me better.

I have read stories of people with negative blood tests starting up the abx drips and after months and months of treatment, they finally get a positive test result.  Evidently it can take months of "stirring it up" with the drugs to get it to show up in the blood.  

The BTD threw my Lyme into remission.  I was using the term "remission" for years before I had a name for it.

A spirochete is a type of bacteria.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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ABJoe
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Quoted from Ribbit
I have a question about healing crises.  Joe--this one's for you.  I've been eating at least one large clove of raw garlic a day.  My stomach hurts for a couple of hours after I eat it.  My tendency would be to avoid raw garlic.  But maybe, just maybe, it's actually doing me some good and I should keep it up.  I guess I've learned over the years to avoid anything that causes pain (emotional or physical), but if it kills something bad in my body, I'm willing to keep it up.  Would you call a stomach ache from garlic a healing crisis?

Ribbit, I would cut down on the amount you are eating...  While it may be a healing crisis, I think it is just too much.  If you have pin-pointed that the garlic is at fault, then I would reduce to half or 1/4 a clove...

Quoted from Ribbit
I also have another thought.  I had thought that every time my skin gets really bad it must be because I ate something wrong or I'm having a flare-up of some sort.  It's taken several years to notice patterns, but what I'm seeing is there are several things that go hand in hand for me: depression, migraine, paranoia, bloating, brain fog and skin boils.  I'm still having these problems occasionally despite my extreme avoidance of nightshade plants which I know for a fact cause it.  I noticed after this last episode that when things started clearing up, I started feeling really good!  I'm able to think clearly and calmly and I'm even cleaning out my closet/bedroom because it's needed it for a long time.  I tend to wonder around in circles, not being able to put a finger on the reasons for my frustrations, and now I can see it all clearly.  I haven't organized efficiently because I haven't had time or energy, and I couldn't even think well enough to see it before.  I don't know how long it'll last. I unloaded on JJ the other night on the phone and really it was just a last straw---I felt like the whole world was crumbling around me.  Now I feel much better and my skin is clearing back up and my face isn't puffy like it's been for a couple of weeks.  It's always associated with a migraine.....Like I almost *needed* to get sick so I could feel better.  Does that make any sense?  Kind of like when I run a fever.  It's rare I run one, because my body temp is low.  But when I can manage to get a little one, I feel so good afterwords!  It burns off all sorts of junk I've accumulated.  I guess I'm beginning to see times of bottoming out as healing rather than getting worse.  My neighbor, who is unofficially counseling me, asked me last week if my skin breaks out when I'm emotionally upset.  It had never occurred to me because I squash emotions partly because I don't know how to deal with them and partly because I don't have the time or the patience to sort through stuff.  But he'd asked me some questions that provoked me to look through a box of stuff I'd stashed away ten years ago, and just being reminded about things (or accidentally reading stuff that I'd never read in the first place--stressful e-mails I'd printed but not read)...it made me feel for the rest of the day like I was going to throw up and I was having trouble even talking to him (the neighbor).  Couldn't complete sentences and all that.  But his question about my skin breaking out when I'm emotionally stressed made me start wondering if it's all tied up together.

Your description of the getting worse, running a fever, and feeling better sounds very familiar...  

I think the cycle will shorten to where it all happens multiple times each day...  I hurt constantly where the toxins are being removed, have brief periods of nausea and/or dizziness.  Brian fog comes and goes quickly...  I haven't gotten to where the muscle spasms are so quick that they don't fixate the spine, but I'm able to relax it again relatively soon and have it move back...  


RH-, ISTJ
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TJ
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Quoted from Ribbit
I'm always trying to crunch the area between my shoulder blades.
Same here.  I have low back and neck pain, too, but I can do a little something about that on my own (even if it's nowhere near as helpful as a good adjustment).

Something else I think is related is stimulus sensitivity.  My coworkers keep the radio on in our lab most of the day (hard rock, no less, complete with off-color morning and afternoon talk shows), and it's louder than strictly necessary.  When I first arrive in the morning I can tolerate it fairly well, but it quickly becomes grating on my nerves.  I have to put in earplugs or find work in the other area (where it's quiet), or I just can't concentrate, and I start feeling overwhelmed and mentally violated.  I've made my frustrations clear, but I'm the new guy so I don't want to press my luck with the lead (who is the least tolerant of working without the radio on).
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Quoted from Ribbit
I always, always, always have back pain, particularly between my shoulder blades.  My back has hurt ever since I can remember.

I have as well, although mine is at the head / neck junction, between the shoulders, and low back.

For me, I always had a high avoid diet up to starting BTD and a major fall at about age 8 really hurt.  I haven't fully recovered from the fall yet, but I'm making huge progress now...

Quoted from Ribbit
Every time Rob gives me a back rub to loosen up the muscles, my whole spine will crunch.  It freaks him out.  "That's not supposed to happen!"  But it does constantly.  I'm always trying to crunch the area between my shoulder blades.
I think those muscle spasms are due to high toxin levels.  Keep working on the gut, pancreas and liver / kidney health...  The more healthy I get in these areas, the more detox happens and the less spasms I have.  It is a long process, but very worthwhile...



RH-, ISTJ
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Chloe
Saturday, October 8, 2011, 5:51pm Report to Moderator Report to Moderator

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Quoted from JJR
Chloe, have you used those?

I don't know if I ever heard your story Chloe.  Leanne told me you were the one that encouraged her to look into this lyme thing more.  And she encouraged me more.  So, I'm grateful to you.  

Is there anything that you did that made significant impacts in killing this, off the top of your head?  Or are they too numerous too mention?  Maybe some of both.  I apologize if I'd be making you repeat yourself.  This thread is long enough that I don't remember what you all said.  Or if you did say a lot, what page was it?  Have you blogged about your experience?


Sorry, I have no experience with using this protocol...  I think Dr. Nash used them in her practice...From reading all of the information written on this site about Lyme, I came across
the term Unda Numbers...so I researched it.  You'd have to be working with someone who has
experience using these.  

Leanne...do you remember where that thread is?  The one where I asked you if you could get
yourself Lyme tested...because like my experience with chronic Lyme which had no treatment,
you walk around thinking you've got something really wrong with you and each doctor winds
up treating your symptoms.  One actually sent me to a psychiatrist...because I sounded nuts.

My story is that I had just had my second child and was 26 years old....Baby was a year
when we bought our first house. I was planting a garden....noticed I was scratching my neck...
and saw this red bullseye rash that went from the back of my right ear all the way down to my
shoulder...I sort of thought I got a mosquito bite....It was July....when one morning I woke up
with a stiff neck...felt like I had the flu...probably a week after the rash which hadn't gone away.
I was new to the area....My neighbor saw me walking around limping for a few days. Mothers
have a habit of forgetting what's wrong with themselves and just take care of children, the
home and everything else.  So neighbor suggested I go see his chiropractor...and by now I
couldn't lift my right arm in the air.  He called it a pinched nerve....and kept adjusting me, 3x
a week...and eventually my arm moved...but then it was my knees...I could barely walk..and it
went on for 20 years like that....I'd never really get better....and nobody ever thought to test
me for Lyme until I saw a very smart holistic MD in 1990.  Remember Lyme didn't have a name
when I got my bite...so everyone was looking for arthritis and inflammation and allergies.
I had fever off and on and chronic headaches.  Sometimes my temperature was as low as 96.

For the bullseye rash (without knowing I had an infectious issue) I saw a dermatologist who (stupidly -- from my perspective now) gave me cortisone...topically and orally.

For the next two decades, I lived with aches, pains, headaches, severe debilitating depression.
I saw Dr. D in 1988 (before he was famous) for these same issues...and he too didn't find what
nobody was looking for....Tick toxins and co-infections.  But Lyme had no awareness....Lots
of people had to be walking around not knowing what they had...I started following the BTD
for type A and stayed with it until SWAMI came out and found out I'm a Teacher.

And then in 1993, I got an actual tick bite on my shoulder...pulled the little tick out and wound
up with 104 temperature within a few days.  I was then put on abx for 4 months...doxy...but
I walked around with chills and sweating for 20 years so just having an abx in my system at least
made me feel somewhat able to function.  But each time I'd try to go off an abx, my sx came
back...

I decided to try and treat this holistically....Saw a lot of different people....Where I live some of
these alternative Phds are quacks....Some are actually ripping off the public after taking many
classes on "creating a lucrative practice" and were charging thousands of dollars for chelation...
I have a list of those quacks....one my lawyer had to write a letter to and get my money back.
Another I reported to the attorney general's office in my county....He was investigated, his
chiropractic license revoked.  Be careful for this one thing...chiropractors who have re-invented
themselves and telling you they're lyme specialists.  Most aren't..

Found a Lyme literate MD in my area...Had other issues with him...A great doctor if I showed
Lyme titers which my insurance would cover for abx treatment...but by now, everything showed
past infection...nothing active..In other words, I still have something, but it couldn't be identified.

Next was a master herbalist....who used a biomeridian machine to identify which was now close
to 30 something co-infections I was walking around with...viruses....I have a long list which some
day I'll share....but it's not the obvious...It's not bartonella or borellia....Renember, everything your tick carried was transferred to you...and I was told that might include mosquito bites,
chigger bites I got at sleep away camp and just about anything that ever bit me could be
keeping my immune system from attacking it.

I took homeopathic drops for almost a year...thought I felt a lot better after the treatment. It's
goal was to cancel out the vibration of the toxin...Does it work?  Could it have a placebo effect?
It was very expensive but I can't say for sure it cured me.

this is it

http://www.healerswhoshare.com/

My issue with my SWAMI is that I'm overreactive to foods I haven't eaten for years...I gave up
dairy, eggs and meat when I was 30 years old.  And my Teacher status put back dairy and
eggs...so I've spent the past 3 years following my diet with those additional foods and finally
came to the conclusion that they were causing problems for me..I went back to the BTD for A
which doesn't accentuate dairy or eggs....It's simpler....

And then I found out I carry this APOe 3/4 genetic thingy which means I have problems detoxing.
And that seems to be profoundly true...and probably why my diet is better controlled if I eat
simply whole foods that are mostly plant based and not from animals...

I've discovered on my own which foods feel inflammatory....and I measure my progress by
how I feel on a simple diet (fruits, veggies, nuts, seeds, good oils and fats, fish, a little poultry,
no sugar, no caffeine, no alcohol, no eggs, no gluten)

Until I gave up gluten, I had chronic neurological problems....which appeared as sciatica....and
then morphed into nerve pain that travelled...On some level this mimics a B12 deficiency but
I don't have that.  5 years off gluten and no nerve pain at all.

What I decided personally was that I wasn't going to be a victim of this condition...and I do
believe the body knows how to heal itself if you give it the right tools...and so I will do natural
protocols....I currently take a few natural anti microbials which I rotate.  One is olive leaf extract.
I drink olive leaf tea....and take pills only when I feel I need a boost.  I also take a product
called Lauricidin....has a broad range to kill a variety of toxins....many fungal and Lyme

http://lauricidin.com/tech_data/

I am taking Genoma Security which gets rid of bacterial biofilms..

THe thing I've learned is that your body has to be in the best of health to fight a battle like Lyme..and so I would recommend that you consider things like drinking lots and lots of water...
staying away from sugar....eat whole foods....(I hardly eat processed foods)...organic if possible...
plenty of vegetables...meditation....relaxation....a good night's sleep....

I'm not what I'd refer to as cured....I'm managing this condition by eating as perfect
a diet as I possibly can and living in a way that gives me an edge so I feel well. It's a lot of
work....but this is what it takes.  I feel so much better than I once did...and I'm not on drugs...
but I know for the rest of my life I will continue to eat healthfully.  The fact that I can say
that I feel SO much better that I once did is saying an awful lot!~


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
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Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
As far as foods go, I came to the same exact conclusion as you.  Whole foods, pure as we can get, especially meats.  No sugar, caffeine, wheat, sweets, etc.  I do eat a tiny bit of high quality chocolate 2x a week.  And I feel no worse for the wear.  In fact, it sometimes seems like it helps my digestion of dinner.  I eat it after dinner on Saturdays and Wednesdays.  But I can't do ice cream and cake for sure.  And cookies.  Forget it.  I might eat a lara bar once in a while, but usually only half, because it's too much sugar for me.  I haven't had in a long time.  I love fish and it seems good for me.  I have given up dairy, except ghee.  I have also given up eggs, although my body is telling me I could eat some yolk at this point.  But I've yet to try it.  I do need red meat more than you.  But I also have some B in me.  It seems to help my immune system, and my adrenals.  Because it always picks my super low BP up.  

Anyways, thank you for sharing.  I might look into that lauricidin. I'm always interested in things that will kill this.  Your story sounds awfully trying.  Mine is very similar, but hasn't gone on as long.  So far.  But I can totally relate to so much of it.  WE ARE NOT ALONE!!!!!!!!!!!!!!!!!  And WE ARE NOT CRAZY!!!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Sunday, October 9, 2011, 2:59am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 36
Chloe, I think my thread was called "My Trip to the ER" or something similar.  It became insanely long after a while because I was outlining everything that was going on.  I'm so much better than I was last summer!  This was in May of '10 that my worst paralysis episode occurred.

Joe, I have multiple dizzy spells a day.  Right now I think I've got *another* ear infection (they seem to be more frequent lately) and I'm sure that contributes.  The brain fog is mostly "On", but about one day every other month or so, it clears completely up and I can think, see, hear, feel normally.  It lasts a few days and then I'm back to where I started.  It's usually after a migraine/fever/skin breakout.  It also coincides with my legs not being so tight.  I have to say, I remember when I was at my worst (that is, before last summer), between the ages of about 12 and 16, I absolutely hated gym class.  We had to do those awful physical fitness tests, and I couldn't do anything!  My legs were so tight I could barely reach past my knees with my legs straight.  I wish I'd had a name for it back then.  People would have left me alone.  I would have done better taking a nap that whole hour.   I didn't need exercise--I needed sleep.

I'm on several Lyme FB groups and they're all encouraging.  Several of us were talking about which side of our body was the worst and we realized that the side opposite the tick bite was affected the most.  Interesting, huh? The bite was on my right shoulder, and my left side is by far the worst (although it's interesting to note that up till now, it was the moles on my right side that blistered up and peeled off).

TJ, I like the term "mentally violated".  

I'm taking Genoma Security now too.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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TJ
Sunday, October 9, 2011, 7:24am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
Quoted from Ribbit
TJ, I like the term "mentally violated".  

I'm taking Genoma Security now too.
It seems like the best way to describe it.  It's somehow mentally and emotionally painful.

The reason I'm still up at this crazy hour is because I've been laying in bed worrying about this situation.  I've got to do something about it.  I can't keeping on "sucking it up".  I hate to be confrontational but that might be what it takes.  Some people just won't take a hint.  And I'm right to be angry about this, anyway.  This is a place of business.  It's not a party where I can just leave if I don't like the entertainment.  I have an obligation to be here and work, and I have the right to conditions that are conducive to doing that work.  I shouldn't have to wear earplugs at a job that isn't inherently noisy! The earplugs don't even block it all out, they just make it quieter.  And if they did block out all sound, they wouldn't be appropriate for work because I need to hear when people are talking to me or paging my to take a call from a customer.
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Goldie
Sunday, October 9, 2011, 11:53am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,903
Gender: Female
Location: East Coast
IS there a TEST or are there MANY tests that show if someone has Lyme?  

Does it always take YEARS to find out that one has it?

and finally what DOCTORS is best to go to, once one has it?  ND's MD's or Both or ???
  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kim
Sunday, October 9, 2011, 3:18pm Report to Moderator Report to Moderator

SWAMI GT3 Teacher, Slight Taster
Ee Dan
Posts: 702
Gender: Female
Location: CO
Age: 60
Quoted from Goldie
IS there a TEST or are there MANY tests that show if someone has Lyme?  

Does it always take YEARS to find out that one has it?

and finally what DOCTORS is best to go to, once one has it?  ND's MD's or Both or ???
  


Lyme hides very well in the body.  It penetrates the tissue, muscle and bone.  That is why there are no blood tests that can definitively test for it's existence.  If it isn't in the blood the day of the test, the test will show negative even thought the person being tested is positive.  There are studies that show that the spirochete morphs it DNA.

It takes years to find out you have Lyme because doctors are told that Lyme is "hard to catch and easy to treat".  It mimics other diseases.  

This is all they are told about it in medical school and the IDSA, as corrupt as they are, write the guidelines for Lyme.  ILADs, another group of doctors, totally disagree with the IDSA views on treatment.

Lyme doctors make a clinical diagnosis based on what they see on other blood tests, exam and patient history.  Lyme patients have certain deficiencies that show up on other blood tests.  The spirochete robs the body of minerals, magnesium being a big one.

In general, the spirochete disrupts hormone, endocrine, digestion, central nervous system, brain, etc.  

This link can give you a great overview of how complicated and difficult Lyme is to treat.  Anyone can be bitten by a nymph tick and never know it until symptoms show up at some point.  Then you have to find a doctor that can recognize what is going on.  You need to see a LLMD.  Some use both antibiotics and homeopathics.  There is not a one size fits all treatment for Lyme.  Everyone responds differently to treatment.  Antibiotics do not work for everyone and the same can be said for homeopathics.  I chose to do both antibiotics and homeopathics.  

http://www.jemsekspecialty.com/lyme_detail.php?sid=8

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ABJoe
Sunday, October 9, 2011, 7:45pm Report to Moderator Report to Moderator

34% Nomad
Sun Beh Nim
Moderator
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Location: Orange County, CA, USA
Age: 51
Quoted from TJ
I've got to do something about it.  I can't keeping on "sucking it up".  I hate to be confrontational but that might be what it takes.

You don't have to be confrontational!  Some one is in charge of Human Resources.  They are very interested in: 1) productive employees, and 2) providing a safe workplace - mostly because it is a legal requirement.  If you go in and describe that the radio is bothering your productivity and earplugs are your only answer, but it interferes with your ability to hear pages, etc...  They will be interested.  

Be prepared with some concrete suggestions to solve the problem - whether the radio can be playing the same station at a lower volume, it needs to be more private - whatever...


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
Sunday, October 9, 2011, 8:04pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
Gender: Male
Location: Caledonia, WI
Age: 42
Or if people want to listen to music, they should bring their own Ipods or what not, instead of blasting everyone else.  I wouldn't like that as well.  

I'm having a bad day.  I left Church Service about 2 minutes early (thank God I made it through most of it), but I felt like I was going to faint.  I was having an anxiety attack.  I think my BP might be real low today.  I'm afraid to check it.  Or, I'm having some kind of gut deal.  Or, there really was mold on that macadamia nut I ate, which is what caused my anxiety.  I was in church, and I saw tiny little dark specks on a macadamia nut I was eating.  In a normal situation, I would've spit it out, just not knowing, but I had no where to do that.  And I kept thinking, I might've just ate mold.  When I got home, I checked the other nuts and they all have small little dark brown specs, that look like part of the shell or something.  I've never had a problem with them before.  I think it was mostly mental.  But I think there is something causing me to be more prone to anxiety at this moment.  

It is something I struggle with though.  I know I've said this before.  I get really anal about the purity, freshness, anything that looks a little off about my food.  And it's near fanatical levels. To the point where I'm worried over nothing, most likely.  I don't want to turn into Howard Hughes, but I feel like it sometimes.  Anybody else have this problem?  I am trying so hard to not fear, but some days it is very tough.  I know there is a probably a spiritual, emotional, and physical reason for this.  But it has not been easy to overcome.  I used to have more anxiety about what was going on INSIDE of me.  But now the focus has seemed to target what goes on outside of me, that might be going in my mouth.  How clean my hands are.  All that stuff.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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