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A thread to discuss lyme disease*  This thread currently has 171,857 views. Print Print Thread
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ABJoe
Thursday, September 29, 2011, 5:11pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from JJR
Here's the thing that is really frustrating.  These things always happen when I'm at the top of my game.  I had just started to feel like, wow, things are going pretty good.  And I swear, every time that thought enters my head, I get knocked down.  It's probably all part of the healing process though.

This is the way it always was for me when I was too weak to do continuous cleaning...  For about the last 3 or 4 months, I have just felt like doo most of the time, but the cleaning, etc. has been going at a faster rate and much more responsive to supplementation and diet.  I have finally gotten to a point of reasonable feedback times, meaning that I have an issue, add a food or supplement to aid and have it work and move on...  For a long time, it took a long time for the issue to resolve and for me to feel better - clear enough of the junk out from the last detox session, that I was ready for a new dose of garbage to be removed from storage into the bloodstream.  Exercise stimulates the detox sessions very well...

All I can say is continue fighting the fight, as long as you are detoxing and healing, you are moving forward, in spite of how it feels.


RH-, ISTJ
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Ribbit
Thursday, September 29, 2011, 5:18pm Report to Moderator Report to Moderator

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Joe, you are always so encouraging.  I'm glad you're a part of this group.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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JJR
Thursday, September 29, 2011, 6:18pm Report to Moderator Report to Moderator

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Yes, times 700 zillion.  I got tears in my eyes.  What a blessing.  Thank you Joe.  I'm trying to have joy in the midst of pain, and give my suffering to God.  In fact, I am memorizing a verse that says rejoice in our suffering.  Romans 5:3  "More than that, we rejoice in our suffering, knowing that suffering produces endurance, endurance produces character, and character produces hope.  And hope does not put us to shame, because God's love has been poured into our hearts......"   That's as far as I know.

Anways, Joe, your Character is so welcomed and your words bring me HOPE.  Along with God's love.  But I think God sends us people that help us.  I just hope I can turn around and help others too.  Thank you guys.  

I am doing a little better this morning than yesterday afternoon.  Hopefully it will taper off, as I was planning on going to a Wedding this Saturday.  When I enter into these detox sessions, it's always tentative because I don't know how long they'll last.  

Hey Joe, have you been eating lemons or drinking lemon water lately?  I have to try it again.  It was upsetting my stomach for a while.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Thursday, September 29, 2011, 8:17pm Report to Moderator Report to Moderator

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Quoted from JJR
Hopefully it will taper off, as I was planning on going to a Wedding this Saturday.  When I enter into these detox sessions, it's always tentative because I don't know how long they'll last.  

Hey Joe, have you been eating lemons or drinking lemon water lately?  I have to try it again.  It was upsetting my stomach for a while.

One problem I have is that I can work through any level of pain, if something is pressing enough.  It is just that my mood and temperament suffer some, but the adrenal glands really take a hit.  I have had to make a conscious effort to shut down when the body hurts, so it can catch up.

No, I haven't been taking any citrus during the summer.  Several reasons: 1) I have been focusing on the liver, where the malic acid in apple juice is helpful; 2) figs, watermelon and canteloupe have been in season and I was eating quite a few of them; 3) I ran out of frozen lime juice.


RH-, ISTJ
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JJR
Thursday, September 29, 2011, 9:31pm Report to Moderator Report to Moderator

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I should get some apple juice myself.  I ate an apple yesterday and wondering if it helped me kick into detox.  I've only been eating the green apples.  But I thought lemons help the liver detox also.  No?  Does watermelon help the liver?  I know it helps the kidneys.  Or I thought it did.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Mark
Thursday, September 29, 2011, 9:41pm Report to Moderator Report to Moderator

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There's a lot of marketing, but I hope some of you find benefit from listening to this interview.

http://www.thebestdayever.com/news/podcast/podcast-89-david-wolfe-and-truth-calkins/
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nowishow
Thursday, September 29, 2011, 11:07pm Report to Moderator Report to Moderator

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Quoted from JJR


Does this happen to you guys?  When you feel like things are going really well, then it's like the hammer drops as soon as you think that?


Absolutely! I'm pretty used to it by now. So when I feel good I try to get everything done that I haven't been able to do because I know pretty soon I'll be down again.  


"Anxiety is the gap between now and then"

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ABJoe
Thursday, September 29, 2011, 11:27pm Report to Moderator Report to Moderator

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Quoted from JJR
But I thought lemons help the liver detox also.  No?  Does watermelon help the liver?  I know it helps the kidneys.  Or I thought it did.  

It all helps...  Lemon / lime juice is good, but so is a variety.  My tangerines are just starting to ripen, so I'll be eating them for a while, as well...  

One of the issues I fight is keeping hydrated, even with all of the water, etc. I drink - it helps me to get a lot of vegetables / fruit / juice.  If I don't get enough melon juice, I run short of spinal fluid - and it feels / sounds really weird when there isn't enough.  It is like a swishing heartbeat but isn't the same beat or synchronized with the heartbeat...  


RH-, ISTJ
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Chloe
Friday, September 30, 2011, 12:44am Report to Moderator Report to Moderator

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Quoted from Mark
There's a lot of marketing, but I hope some of you find benefit from listening to this interview.

http://www.thebestdayever.com/news/podcast/podcast-89-david-wolfe-and-truth-calkins/


Thanks so much for sharing this Mark....I learned a lot!



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Friday, September 30, 2011, 1:20am Report to Moderator Report to Moderator

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About the weather and temperature changes, I thought it was just a B thing for me.  Taking l-arginine certainly helps.  I hadn't considered the possibility that it was Lyme-related.

Quoted from JJR
Does this happen to you guys?  When you feel like things are going really well, then it's like the hammer drops as soon as you think that?
Quoted from Ribbit
It used to be that way for me, but I've leveled off.  Managing energy, rather than time, has helped with the extremes of up and down.
Totally, this is helping me, too.  My default is to have a "self-discipline" mindset: this is what I want to do, this is the schedule I'm going to follow, and I'm going to stick to it.  And I do, for a couple of weeks, until I burn out.

I caught myself this time.  I started going back to the gym.  I wanted to work myself up to Mon, Tues, Thurs, and Fri mornings.  I started at Mon, Wed, Fri.  The last two Wednesdays I got up feeling run-down.  I knew if I went to the gym it would be hard to get through work that day, so I just went out for a walk instead.  I'm getting the hang of energy management, and the fact that I've been working full-time for three months is evidence not only of my healing progress but of my growing ability to pace myself.  Still, it is nice when I don't have to pace myself so strictly.

Can I just say, Genoma Security FTW!  I can't put my finger on what it's doing, but it just feels right.  I'm learning more and more to just listen to and trust what my body is telling me, regardless of what seems logical.
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JJR
Friday, September 30, 2011, 3:47pm Report to Moderator Report to Moderator

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Well for me, there hasn't been a whole lot of energy to manage.  Spring was terrible.  I could barely do anything.  During the summer I got better though and what I do is keep the kitchen going, keeping up with the dishes and cooking.  And there wasn't a whole lot more after that.  I'd do some stretching when things were good.  Every other day I'd do some exercises.  I started to get to the point that I could go to the store, although I never did a long shopping session.  But about a week and a half ago I went to the supermarket with my daughter, went to my bank, and was looking for the magazine rack.  I was fine with that.  So I was starting to work back into some semblance of strength.  

Now, ugh.  I'm achey.  Right before I went to bed last night, I think something I ate didn't sit quite right and I felt like everything was all wrong.  But I think it's just a combination of this time of the year.  The leave are turning around us.  And my son's asthma is real bad.  That's usually when I feel pretty lousy too.

Leanne, I thought of something.  I wonder if you didn't get handed the lyme thing from your mother.  Didn't you say she feels awful every spring and fall?????  And we had a dry summer, well later in the summer, and that's when I felt the best also.  When things were real dry.  I think the rain is supposed to be done for us for now, but it rained for days, the leaves are turning, and fall is here.  It seems early too.  A good frost usually helps, but it could be a long time off.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, September 30, 2011, 4:07pm Report to Moderator Report to Moderator

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Quoted from JJR
Now, ugh.  I'm achey.  Right before I went to bed last night, I think something I ate didn't sit quite right and I felt like everything was all wrong.  But I think it's just a combination of this time of the year.  The leave are turning around us.  And my son's asthma is real bad.  That's usually when I feel pretty lousy too.

You may have a problem with more humidity, or there may be more fungi in the air to help dispose of all of the leaves, etc...  This along with the internal happenings is a heavier load...  Just keep working through it.  All of the elimination channels (lymph, liver, gut, kidneys) all have to be working together in balance to clean out all of the junk.  As long as you keep boosting the worst, pretty soon they will all be working, and you may not have much energy for a while.  Its OK.  Be patient and give the body time to heal.  With all of our pushing and frustration, we aren't going to speed it up any more...


RH-, ISTJ
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JJR
Friday, September 30, 2011, 6:08pm Report to Moderator Report to Moderator

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Thank you Joe.  Yeah, that's how I understand it too.  It does seem like the more humidity, the worse things are.  Which is probably mold and what not.  My legs have been aching ever since that day I went up and down the stairs.  Which is strange because it hasn't been like that the other times I went up and down the stairs.  Plus my back is achey and my head.  So, I think it's like you said, overloaded with other junk.  It's what happened last year too.  I used to love this time of year.  Although I do remember getting "colds" quite a bit in fall.  Ones that would last a long time.  I remember one year, this is a long time ago before all of my problems, I pretty much lost my voice.  

My Dad thinks he's been fighting a cold, but him too, every year it's the same at the change of seasons.  He's hacking and has excess junk.  I'm sure there is much about this in the DNA.  He doesn't seem to struggle as much as I do, but I don't think he has lyme's disease either.  And mine isn't congestion, as much.  There is some, but it seems more internal.  

Have your seasons started to change out there yet?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, September 30, 2011, 6:31pm Report to Moderator Report to Moderator

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Quoted from JJR
Have your seasons started to change out there yet?

What?  In sunny So. CA? Our season is sunny and warm, with a little marine layer...  What time the marine layer burns off is the biggest question we have, except when the wind turns around and blows from the East, blowing all of the hot desert air over us beach dwellers...   

Ok, enough of the humor...
The change is much more subtle here, but we did notice a bit of chill in the air for two nights.  I took that as a cue to cover the attic vent for the winter, but then this week is rather warm again...  It rarely freezes at our house, so I usually have citrus fruit fresh on the tree until late January (or later, depending on how much theft and how large the crop was initially).


RH-, ISTJ
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Chloe
Friday, September 30, 2011, 6:53pm Report to Moderator Report to Moderator

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I don't do well in humid weather either and it can be fungal... but my traditionally trained Chinese Acupuncturist called it a "damp" condition.  Sometimes you need to eat differently if dampness is problematic.  THis might
resonate (or not).  Just thought I'd share it.

http://www.amazinghealing.com/aiyana.php?nav=5&article_id=13

Sometimes when my body is achy, I'm not drinking enough water to get rid of toxicity.

You might want to try drinking more fluids today.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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nowishow
Friday, September 30, 2011, 6:56pm Report to Moderator Report to Moderator

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Quoted from ABJoe

If I don't get enough melon juice, I run short of spinal fluid - and it feels / sounds really weird when there isn't enough.  It is like a swishing heartbeat but isn't the same beat or synchronized with the heartbeat...  


This fascinates me, can you tell me more about this? I've never heard/felt anything like that and I'm quite sensitive.


"Anxiety is the gap between now and then"

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nowishow
Friday, September 30, 2011, 8:42pm Report to Moderator Report to Moderator

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Quoted from Chloe
I don't do well in humid weather either and it can be fungal... but my traditionally trained Chinese Acupuncturist called it a "damp" condition.  Sometimes you need to eat differently if dampness is problematic.  THis might
resonate (or not).  Just thought I'd share it.

http://www.amazinghealing.com/aiyana.php?nav=5&article_id=13



Thanks I enjoyed this  


"Anxiety is the gap between now and then"

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JJR
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Yeah, me too.  I too have been feeling like I need to eat more warmed foods lately.  I typically eat a salad every day, but I think I'm going to stop that.  Or at least put hot stuff over the leaves.  Most of the time, when I eat a salad, everything is cold on it.  Canned meat, some frozen peas maybe.  I need to start cooking the stuff that goes on it, that might help.  I do think the lettuce is good for me, to keep things moving.  

But this is a very good thing that you gave us Chloe.  I eat some of those foods on the warming list.  But you know, last night, I ate a few roasted peanuts before bed, and I swear they made me feel lousy.  And this explains maybe why.  I'm pretty sure I have this condition, as I'm not active.  I used to be more active, but since last fall, it's been tough.  I go up and down with it.  Last winter I was getting more active, feeling well, and then the weather change in spring knocked me down.  And then vice versa obviously.  I've said that a million times.  

But this may help me while I'm getting back up again!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, September 30, 2011, 10:19pm Report to Moderator Report to Moderator

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Quoted from nowishow
This fascinates me, can you tell me more about this? I've never heard/felt anything like that and I'm quite sensitive.

I can't tell you much more...  My practitioner told me one day that I was somewhat dehydrated of spinal fluid.  The sensation I described above is the best I can put it...  I described it to the practitioner and she agreed that it was about how it is.  She said she has been in the same condition several times...  She told me that I needed to re-hydrate and the best way was to eat fruit or drink the juice.



RH-, ISTJ
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Chloe
Saturday, October 1, 2011, 12:10am Report to Moderator Report to Moderator

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Quoted from ABJoe

I can't tell you much more...  My practitioner told me one day that I was somewhat dehydrated of spinal fluid.  The sensation I described above is the best I can put it...  I described it to the practitioner and she agreed that it was about how it is.  She said she has been in the same condition several times...  She told me that I needed to re-hydrate and the best way was to eat fruit or drink the juice.



I thought this was interesting....regarding hydration

http://www.dailymail.co.uk/health/article-1200531/The-vegetables-hydrate-glass-water.html



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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ABJoe
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Quoted from Chloe

Thanks for posting that link, although I've read that article before...  It is basically why I vary the fruits, vegetables / juices that I get...  I get a variety of nutrients plus the hydrating effects.


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Kim
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I got the results of my HIDA scan for my gallbladder.  Ejection fraction went from 26% to 5% in the past three years.  So, it is obvious my gallbladder is diseased.  

Most of the females on my mother's side have had theirs out, but my doctor said that about 70% of lyme patients lose their gallbladder to the sprirochetes.  

I am calling a general surgeon on Monday and scheduling it to be taken out laparoscopically.  

My DH will take care of me after the surgery, but I am going to starve, because he can't cook.  Hopefully this will not require a night in the hospital.  There isn't anything there I can eat for sure!
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deblynn3
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Quoted from Kim
I got the results of my HIDA scan for my gallbladder.  Ejection fraction went from 26% to 5% in the past three years.  So, it is obvious my gallbladder is diseased.  

Most of the females on my mother's side have had theirs out, but my doctor said that about 70% of lyme patients lose their gallbladder to the sprirochetes.  

I am calling a general surgeon on Monday and scheduling it to be taken out laparoscopically.  

My DH will take care of me after the surgery, but I am going to starve, because he can't cook.  Hopefully this will not require a night in the hospital.  There isn't anything there I can eat for sure!


Best wishes, Hope all go well.
just a thought but maybe you might what to look into the protocol for surgery, etc. You might already have. I just wanted to remind you while you have a little time to build up your body.


Swami, 100% me..
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Chloe
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KIm, I'm sorry to hear you require gall bladder surgery.   Perhaps cook and freeze some dinners for
when your DH will be caring for you...All he'd have to do is reheat.

Wishing you best of luck...and better health


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
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Ugh.  I'm sorry to hear this.  Did you try the artichoke?

If it makes you feel any better, I'm feeling lousy today.  My BP was super low this morning and I was all tingly and weird feeling.  I thought I was on the verge of passing out.  And my wife was going to a wedding and I told her to come back.  Poor thing.  So we ran to the store and got some good new zealand lamb to see if that would help.  I'm pretty sure it did, but now I feel the opposite.  I'm achey and almost feel like I'm getting feverish.  It did raise my BP quite a bit though.  

When I get like this, I get like, ugh, what else to I need to do, I get antsy.  Like I'm not doing enough, not trying hard enough.  Not going to the right doctors.  I hate this body, well, I hate what this bacteria, or whatever you want to call it, has done to my body.  

But, to every downside there is an upside.  I like where I am spiritually.  I keep getting closer to God.  Something like this will do that to you.  And in the end, it's all up to him as to what he wants to do with me.  It's finding that balance of my input and his provision that I struggle with.  And being peaceful during the storm.  And then there's the whole thing about if I get bad enough, going to the hospital is futile.  They don't know Jack.  So, it's good to go if you feel like something is on the verge of failure or something, but the only thing they're good for is to tell you you're not dieing.  I suppose.  Well, they're good for more than that, but you get what I mean.  Anyways.  

I'll pray for all of our strength.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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