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A thread to discuss lyme disease*  This thread currently has 169,646 views. Print Print Thread
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Lola
Tuesday, February 25, 2014, 3:48pm Report to Moderator Report to Moderator

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a link Dr D just put up on FB

Lyme Disease May Be Sexually Transmitted, Study Suggests
http://www.prweb.com/releases/2014/01/prweb11506441.htm


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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The harder you are on yourself, the easier life will be on you!
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JJR
Tuesday, February 25, 2014, 4:21pm Report to Moderator Report to Moderator

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Yep, so I've heard.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Wednesday, August 20, 2014, 11:09am Report to Moderator Report to Moderator

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Sam Dan
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I was looking for the list of symptoms and found it on page 9 here in post 200... thanks all and especially Ribbit...

300 Symptoms:

http://www.nationallymereport.com/symptoms/300_medical_conditions.htm




This thread has over  156 thousand viewers... WOW!



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Goldie
Wednesday, August 20, 2014, 1:49pm Report to Moderator Report to Moderator

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Sam Dan
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Ohhhhhhhhhhhhhhhhh I am so sorryyyyyyy they took the listing of the 300 symptoms off and hid it some place what a shame.....

Ribbit... if you come here any more..    you would not have a copy some place?????????


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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susanC
Wednesday, August 20, 2014, 4:28pm Report to Moderator Report to Moderator

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Three hundred symptoms is a lot of symptoms.  Better to just test for it.  Great lab in Palo Alto, CA which is the best now for diagnosing lyme--and Medicare pays for it so no reason not to run the test if one has Medicare coverage.  

http://www.igenex.com/
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Amazone I.
Wednesday, August 20, 2014, 5:53pm Report to Moderator Report to Moderator

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we call this here in Europe *psychosomatics*
and sorry it's proven that almost bt O is involved with... no wonder because + - all is totally *in-bodied* whithin seconds... this isn't meant disrespectively at all..... but viewed by my own material of clients...  since years... no wonder... it is as P.D. once mentioned: O's do have a problem that nearly all is directly re-layed upon their bodies...

we need to come along with muchmore *self-acceptancies* ..and also appreciation and self-love... ...


MIfHI K-174
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Chloe
Wednesday, August 20, 2014, 6:31pm Report to Moderator Report to Moderator

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Quoted from Amazone I.
we call this here in Europe *psychosomatics*
and sorry it's proven that almost bt O is involved with... no wonder because + - all is totally *in-bodied* whithin seconds... this isn't meant disrespectively at all..... but viewed by my own material of clients...  since years... no wonder... it is as P.D. once mentioned: O's do have a problem that nearly all is directly re-layed upon their bodies...

we need to come along with muchmore *self-acceptancies* ..and also appreciation and self-love... ...


Just wanted to say something regarding Lyme....I've had a late stage Lyme issue since I'm in
my 20s....When the bacteria goes stealth and morphs into something not detectable by labs,
they can still have Lyme disease without a proper diagnosis.  This happened to me.  Twenty
years went by without a diagnosis.  I walked around limping after a tick bite, after a summer
of high fever nobody was able to diagnose in the 1970s.  And I had serious toxic long term
issues because of the lack of a diagnosis.  No, I didn't not have a psychosomatic problem...
and most people with Lyme disease don't either.  To post a bunch of laughing faces is offensive
to me and I'm saying  this in defense of everyone who has Lyme disease now, had it in the
past and still struggles with the long term health issues related to it. To take Lyme disease so
lightly truly horrifies me.

If you go back to the beginning of this thread and read it in its entirety, you will see that I
personally helped Ribbit see that she likely had Lyme disease and NOT psychosomatic problems.
With a clear list of symptoms, she was able to find a good Lyme literate doctor and turned her
health around so she could finally be the mother and wife she always wanted to be without passing out and having bizarre symptoms caused by a bunch of tick toxins.

Please accept that some people have infectious diseases...and stop insinuating that everything
can be fixed by an enneagram or mushrooms.

I wish to support every person who ever suffered with Lyme disease on this forum.  I know this
is a really honest post that might sound offensive to you. I don't wish to insult you but I feel
you're often insulting seriously sick people by making light of the fact that they need proper medical care that isn't mushrooms or understanding their psyches.

I am generally kind,fair and considerate of everyone on this forum...but you cannot keep
insulting people who are really sick.......they aren't mentally unbalanced or deficient in mushrooms.

You say you're not meaning to be disrespectful but I believe you are sounding totally disrespectful
of those who have Lyme.  Unless you live with Lyme disease in YOUR body, you do not know
these people's truths.

Thanks for letting me say what has been bothering me for a really  long time. I know you
mean well, but your truth is not mine..  I honestly felt I wanted to say this for a long while every time someone has a serious issue and you reply with mushrooms or the enneagram implying that YOU have the answer to all serious illnesses. That's a rather arrogant position to take, to make
light of things more serious than you likely fully comprehend...........and if you choose to
delete  your post, I will gladly feel there was no need to ever comment on it.... And then I too
will delete this post.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Chloe
Wednesday, August 20, 2014, 6:49pm Report to Moderator Report to Moderator

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From the Center of disease control on Lyme

Lingering symptoms after treatment (post-treatment Lyme disease syndrome)
Approximately 10-20% of patients with Lyme disease have symptoms that last months to years after treatment with antibiotics5. These symptoms can include muscle and joint pains, cognitive defects, sleep disturbance, or fatigue. The cause of these symptoms is not known, but there is no evidence that these symptoms are due to ongoing infection with B. burgdorferi. This condition is referred to as Post-treatment Lyme disease syndrome (PTLDS). There is some evidence that PTLDS is caused by an autoimmune response, in which a person's immune system continues to respond, doing damage to the body’s tissues, even after the infection has been cleared. Studies have shown that continuing antibiotic therapy is not helpful and can be harmful for persons with PTLDS.


"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Goldie
Wednesday, August 20, 2014, 8:54pm Report to Moderator Report to Moderator

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Cloe: the third posting on page 1 was from you... I am grateful for it... worth repeating..: and Thanks
(I remember the awful bad time Ribbit had!.. I love to hear that she is doing better.. !!!
(what was her thread title? .. any clue? )  

If you find Ribbit's old thread when she landed in the ER, I wrote a long post on my experience
with Lyme disease. Quite honestly, I don't mind discussing this subject if there are questions
but I have written the same story so many times, that it's too exhausting to begin again from
scratch. My experience with chronic Lyme (first tick bite with toxic reaction in 1970 but no name
for Lyme Disease known) made me realize that Ribbit had it as well....and she got tested
and sure enough....Lyme.  I had a confirmed Lyme (because I saw and removed deer tick from
my shoulder in 1990) but testing never proved Burrelia...It proved nothing conclusive due
to my past infection with Lyme....I was treated for 4 months with abx...got better and then got
much worse...Saw a master herbalist....and worked with products from Healers Who Share..

http://www.healerswhoshare.com/

I had many co-infections which showed up on bio meridian testing.  And there were combined viruses which really outweighed the bacterial issues.

Healers who share create antidote-like homeopathy that cancels out the energetic properties of
the toxin.

Supposedly it works like this
http://www.healerswhoshare.com/index.html

Did I get better?

In a word, NO!

What has helped...
Products not designed specifically for Lyme but indirectly they have been supportive.

Products like Lauricidin.  Make sure to read about Lyme   http://lauricidin.com/lyme_disease_testimonials/
http://lauricidin.com/

The reason I think this supplement is helping me is for two reasons...One is that most of my
original Lyme morphed into stealth viruses....many of which are lipid coated.  Monolaurin helps
break down the coating on these types of viruses....And monolaurin is found in coconut oil...
a diamond food for me.  Not wanting to keep going over my fat limit for the day, I switched to
using Lauricidin and except for the herxing (itching), I think it's helpful.

What else has been helpful?  Generally not a lot....except for a diet without sugar...making sure
that my organs are working and cleansing toxins.....I've gone for acupuncture (which I can't
say helped with aches and pains)..

A lot of my lyme issues became overlapped with chronic fatigue/fibromyalgia.

I have less of those symptoms while eating my SWAMI diet...I eliminated dairy because it was
setting me back....Less aches and pains since I gave it up....feel gut is improving with Genoma
Security and Gastro D.  And lately I'm eating cultured vegetables as often as I can....

I no longer see any one particular doctor/healer/alternative healer regarding my chronic Lyme
symptoms...I've had too many people who have wanted me to do chelation....(for their profit,
I'm quite sure)

I was told I had heavy metal toxicity...

SO I'm taking this product.....Pectasol.... http://www.econugenics.com/p-7.....Kn2aoCFYmK4AodRinu6g

My focus for one month is cleansing....for the next month, rebuilding...I never stay with cleansing
too long....but each time I go back to a new cleansing protocol, I seem to make greater progress.

Some months I focus on green drinks...chlorella, cilantro.....

I know I'm slightly off the track talking about Lyme, per say....because in reality, I don't think there
IS one cure for all the garbage one tick brought with it when it transferred toxins into your one
body...

I think it's a matter of building your immune system....and carefully balancing cleansing your organs
at the same time.  I haven't found one healer, one protocol that is "THE" one...I have made a lot
of progress using coconut oil....I found it very cleansing....but it's not a food we all have as
diamonds.

Right now, I'm feeling pretty well.....I have good energy, I sleep well....I'm not too achy and if I
am, I take Zyflamend....which helps with inflammation and has a lot of good herbs that are
complimentary for my blood type.

http://www.newchapter.com/zyflamend/zyflamend-easycaps

I also do oil pulling twice a day.  Does it help?  Can't say but it can't hurt.

Try everything you can think of....eventually something will be helping your body purge
toxins and make your immune system stronger.

I wish you luck



  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Chloe
Wednesday, August 20, 2014, 9:15pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Goldie
Cloe: the third posting on page 1 was from you... I am grateful for it... worth repeating..: and Thanks
(I remember the awful bad time Ribbit had!.. I love to hear that she is doing better.. !!!
(what was her thread title? .. any clue? )  



  


As I remember, Ribbit was a strong participant in this Lyme thread. The thread is so darned long
it would take me too long to re-read it all to search for anything...Now that I'm thinking about it, Ribbit wrote what I remembered was some kind of personal blog that preceded this Lyme thread.
As for the title, I'm not sure I can remember what that was.

What I might do is go back and search all ribbit's threads and see if I can find what you're looking
for.  I thought that I posted a list of Lyme symptoms on this forum but cannot remember when or where it is.....I had a copy saved on my computer but not too long ago, a change of my operating system somehow deleted a group of old saved files....

Not done searching...Hope to be able to find it for you.  

PS Goldie......just did a "ribbit" thread search and can't seem to find her older posts beyond this thread. If I remember it was probably over 5 years ago....and searching won't take me back that far.

Are you certain there isn't a list of Lyme symptoms posted on this thread?


"The happiest people don't have the best of everything.....they know how to make the best of everything!"

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Chloe  -  Wednesday, August 20, 2014, 9:27pm
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susanC
Wednesday, August 20, 2014, 10:17pm Report to Moderator Report to Moderator

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Goldie and Chloe--I didn't mean to sound flip when I responded to the idea of a list of 300 symptoms.  It just seems that there would be such an overlap of symptoms from all sorts of other conditions.

I was diagnosed in January with chronic lyme, Epstein Barr and herpes simplex.  So, I have no way of knowing what symptom goes to which condition, but I guess I have decided it doesn't matter.  I've been in denial since I got the diagnoses.  After all, I've had these conditions for years--and probably decades for the EBV.  But my doctor told me last week that I need to start doing something--find an expert (whatever that means) that's not an MD, as I am more than reluctant to take antibiotics and it seems that is their automatic approach.  I've spent too many years building my gut flora...

I appreciate your dialogue here today.  I will be following this thread closely and probably need to go back and read past entries.  But, the more I read about lyme, the more discouraged I get and the less likely I am to address it.
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Chloe
Thursday, August 21, 2014, 1:55am Report to Moderator Report to Moderator

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"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Amazone I.
Thursday, August 21, 2014, 7:51am Report to Moderator Report to Moderator

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Chloé, sorry I apologize I confonded lyme disease with *Fibromyalgia*... as said... yep this is my fault...


MIfHI K-174
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Goldie
Thursday, August 21, 2014, 11:19am Report to Moderator Report to Moderator

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The 300 symptoms list is much more important than anything else.  NO one needs to have all or even half the symptoms... But if I rattled off 100 symptoms to any doctor he would poopoo the whole experience as being nuts ... yet, if a client can take a legitimate list of symptoms to a doctor, many more issues might be addressed way earlier.

In my (just most recent) life: had I had any detailed list, I might have had the 'courage' to speak up way earlier about details that might alert a doctor, that there is way more than my looks or 'attitude' would reveal.  It takes courage, courage to mention more than just a few items being 'something wrong' with...

Just to name  a few...  Over about a year - I 'suddenly' had lost all my finger nails down to the quick.. turned out I was over a year developing a cancer... Then was operated on and the finger nails grew back... strong!

I have little extra oxygen when I talk or sleep even.. who would ever report that to a doctor.. Yet upon testing for my new heart condition (inherited bad cholesterol) it turns out that I only convert 50% of the oxygen from the lungs into the blood stream... no wonder I am out of breath all the time.  I yawn a lot, I grab for air a lot, I sigh a lot, and I hate exercise... is it any wonder??? no...
A good symptoms list would have been much easier to 'check off' on--- thus show the way... without sounding nuts.

The experience of something 'slowly' coming on, or having forgotten 'when' it started, like all the time, or long ago, is where these things become less reported, as other more pressing current experiences are more acute and focused on.. WHILE the old sort of 'chronic' items get overlooked..    

A good Symptoms list might -through computer analysis- show the why of possibilities.. while,  a person sitting in on office can not even remember or be so heartless as to tell a doctor all of what is going on.  

The list is not manageable in any doctor office, but checked off with time at home in preparation to a doctors visit - and then computerized - would make everyones life much easier.

Lyme clients take ages before they are confirmed to have the illness.  Fear is on issue, for many doctors do not yet recognize all the issues, many have little experience, and are hesitating to treat aggressively, and are not comfortable with what clients report VERBALLY... the self reporting is just not good or accurate or detailed or BELIEVABLE enough. AND then we get mad at the doctors because they 'do not care'... or seem incompetent.  

And here I am talking about people who KNOW more about health subjects... What of the persons who have no clue.  They are at the mercy of poor interpretations.  I also think a lot of law suits come from this 'kind' of lack of hesitation of 'verbal' self reporting on three lines on a intake sheet... even a doctor asking questions does not guarantee good results- never time enough or worse the client gets embarrassed!  

........ I personally have a 900 line item 'Symptoms list' I can use to decide what 'electro magnetic' healing waves might be good for a client.  The list clearly 'shows up' way more than just looking at a client.  (The tragedy is that I never used it for my own body... this shoemaker has no shoes.. haha...)    

I might just look at my Symptoms list and add a few more lines.. so if anyone has a symptoms list any where, please send it my way.  I would love to make my list even more meaningful.

..... and remember, at all time posting here,,, I am living, and look like a healthy, energetic person...


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

Revision History (1 edits)
Goldie  -  Thursday, August 21, 2014, 11:29am
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Chloe
Thursday, August 21, 2014, 2:49pm Report to Moderator Report to Moderator

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"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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susanC
Thursday, August 21, 2014, 5:43pm Report to Moderator Report to Moderator

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Goldie--Thank you for explaining the importance of the symptoms list.  

I understand that historically lyme has been very difficult to diagnose. I understand that the diagnostic blood tests failed to pick up lyme in many infected individuals.  However, everything I have heard in the last year or so has been very positive about the IgeneX lab in Palo Alto, CA.  They have an entirely different system of testing for lyme and they are coming up with far more 'positive' test results for lyme.  (So much so that the FDA is upset with them.)  After all--we wouldn't want to upset the huge lyme coverup in this country.

If you call the company, you can request that they send their test kit to you.  You can then take it to the doctor or lab and have the simple blood draw.  The only insurance that covers the IGenex test is Medicare.  And Medicare paid for 100% of my test--if I remember correctly.  There may have been a co-pay, but if so, it was nominal.  

If I am still missing something--please set me straight.
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Chloe
Thursday, August 21, 2014, 6:06pm Report to Moderator Report to Moderator

42% Teacher Rh+ N1, N1b
Kyosha Nim
Posts: 9,158
Gender: Female
Location: Northeast USA
Age: 71
Quoted from susanC
Goldie--Thank you for explaining the importance of the symptoms list.  

I understand that historically lyme has been very difficult to diagnose. I understand that the diagnostic blood tests failed to pick up lyme in many infected individuals.  However, everything I have heard in the last year or so has been very positive about the IgeneX lab in Palo Alto, CA.  They have an entirely different system of testing for lyme and they are coming up with far more 'positive' test results for lyme.  (So much so that the FDA is upset with them.)  After all--we wouldn't want to upset the huge lyme coverup in this country.

If you call the company, you can request that they send their test kit to you.  You can then take it to the doctor or lab and have the simple blood draw.  The only insurance that covers the IGenex test is Medicare.  And Medicare paid for 100% of my test--if I remember correctly.  There may have been a co-pay, but if so, it was nominal.  

If I am still missing something--please set me straight.


As I see it, even with better diagnostics, you wind up knowing what tick toxins exist, and finding that Medicare will pay for your testing. So now for treatment...Will Medicare pay for treatment other than antibiotics?  And what can medical doctors offer that isn't abx? That was my issue. I had to pay out of pocket to see alternative people.....and for the most part, it was hit and miss with their protocols...  It got to where I knew what toxins  existed but the only approved medically covered treatment was abx. I just didn't want to do that again.  It didn't work the first time.

This is the real catch 22. You've got your test results....but what treatment do you choose? And
who is going to pay for it if not you?

Only time I would do antibiotics for Lyme is for a new active case....where I knew I was bitten and
actually had a rash, fever and body aches. At the beginning, abx is generally effective.  My husband
had Lyme many times and always got better after taking abx for a few weeks.  But I had a 20 year
gap between a bite and any diagnosis.  I was given abx that made me think I was improving a bit
until I stopped....then all symptoms returned plus new ones due to the gut damage from the abx.

For some IV abx is a better solution....but many still suffer years after treatment.

Are there Lyme literate MDs in your area?  My niece's husband who lives in San Rafael had Lyme
about 10 years ago.  He walked around sick for about 8 months until I suggested he get tested for
Lyme.  Took him a long while but he's much better.  Some was abx IV from an MD and other was holistic protocols he paid for. I think he did hyperbaric oxygen treatments. Infared saunas....homeopathic, bioenergetic protocols  I've done most of those except for HBOT....Can't say
anything worked better than a placebo at the time.

Interesting article...but
no solutions

http://well.blogs.nytimes.com/....._type=blogs&_r=0


"The happiest people don't have the best of everything.....they know how to make the best of everything!"

Revision History (1 edits)
Chloe  -  Thursday, August 21, 2014, 6:20pm
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susanC
Thursday, August 21, 2014, 8:11pm Report to Moderator Report to Moderator

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Chloe--

I thought that Goldie was working on the diagnosis phase with her list of symptoms.  That is why I suggested the IgeneX test.

I am in complete agreement that the treatment is the tricky (and from what I've read--even impossible) part.

I generally stay away from MD's.  Have been seeing ND's for the last 35 years--and yes--paying out-of-pocket.  My ND does not feel confident about treating me for lyme.  She has a couple of protocols that have worked well for some of her other patients--but then there's me--the AB.  Not statistically important in the world of what works for most other people.

I have seen an MD doc at the Amen Clinic here in the SF area.  He is certainly an alternative type of MD.  And he recommends HBOT--but along with abx and proteolytic enzymes.  The enzymes I am doing--the abx--no way.  If you ask me I have never been bitten by a tick.  And I am certainly not alone--as so many people diagnosed with lyme never remember being bitten by a tick.  This is, in and of itself, weird.  I suspect that people are getting lyme from other biting insects--maybe fleas. But that's a moot point.  I have had lyme for many years, so as you say--abx is not going to be a good treatment for me.

HBOT will be extremely expensive, but I may have to give it a try.  I am also considering working with Ryan Partovi.  All out-of-pocket...yes.  There goes the kids' inheritances.  They'd rather have a healthy mother.
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Chloe
Thursday, August 21, 2014, 9:13pm Report to Moderator Report to Moderator

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Quoted from susanC
Chloe--

I thought that Goldie was working on the diagnosis phase with her list of symptoms.  That is why I suggested the IgeneX test.

I am in complete agreement that the treatment is the tricky (and from what I've read--even impossible) part.

I generally stay away from MD's.  Have been seeing ND's for the last 35 years--and yes--paying out-of-pocket.  My ND does not feel confident about treating me for lyme.  She has a couple of protocols that have worked well for some of her other patients--but then there's me--the AB.  Not statistically important in the world of what works for most other people.

I have seen an MD doc at the Amen Clinic here in the SF area.  He is certainly an alternative type of MD.  And he recommends HBOT--but along with abx and proteolytic enzymes.  The enzymes I am doing--the abx--no way.  If you ask me I have never been bitten by a tick.  And I am certainly not alone--as so many people diagnosed with lyme never remember being bitten by a tick.  This is, in and of itself, weird.  I suspect that people are getting lyme from other biting insects--maybe fleas. But that's a moot point.  I have had lyme for many years, so as you say--abx is not going to be a good treatment for me.

HBOT will be extremely expensive, but I may have to give it a try.  I am also considering working with Ryan Partovi.  All out-of-pocket...yes.  There goes the kids' inheritances.  They'd rather have a healthy mother.



I fully understand what you meant when you said Goldie was working on a diagnosis with her
list of symptoms....My reason for bringing up all the other stuff was that I didn't know your
story and was basically trying to find out if anything I experienced would be helpful for you.
It seems so frustrating to have the ability to be tested without having a clear path to treatment.

I went back and started reading this endlessly long thread and saw how well Ribbit did with the
Cowden Protocol.  Really, if you knew how this poor woman suffered for so many years, it
warmed my heart to read her words when she said she was feeling "normal".  Normal but with
less endurance but still, "normal" means a lot for someone with chronic Lyme.

So perhaps if you have an opportunity to look into the Cowden protocol, you might see if it
resnoates with you.  Or contact Ribbit and get some first hand feedback.  The fact that she
did so well is impressive.  Ryan Partovi sounds like he would be awesome....maybe he knows
about the Cowden protocol....ie if it sounds like something you feel you're interested in doing.

I have a friend with Lyme here in NY who goes for IV drips of rocephin every few weeks.  She
feels better after the few weeks of daily treatments.. stops, waits for symptoms to return....starts up again with more drips..  This is how our local Lyme literate MD treats people with lingering symptoms. And here's the potential side effects which is why I avoided this doctor.

http://www.rxlist.com/rocephin-side-effects-drug-center.htm




"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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nowishow
Thursday, August 21, 2014, 10:18pm Report to Moderator Report to Moderator

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Quoted from susanC
Chloe--

I have seen an MD doc at the Amen Clinic here in the SF area.  He is certainly an alternative type of MD.  And he recommends HBOT--but along with abx and proteolytic enzymes.  The enzymes I am doing--the abx--no way.  If you ask me I have never been bitten by a tick.  And I am certainly not alone--as so many people diagnosed with lyme never remember being bitten by a tick.  This is, in and of itself, weird.  I suspect that people are getting lyme from other biting insects--maybe fleas. But that's a moot point.  I have had lyme for many years, so as you say--abx is not going to be a good treatment for me.

HBOT will be extremely expensive, but I may have to give it a try.  I am also considering working with Ryan Partovi.  All out-of-pocket...yes.  There goes the kids' inheritances.  They'd rather have a healthy mother.


I was diagnosed about four years ago after ending up in the hospital with heart attack symptoms. I have a blog on this site and I've written about it a little in the blog. I'm so much better than I was, but treatment has been very expensive. Mostly I've used the Byron White Remedies A-L (for Lyme) A-Bab (for Babesia) A-Bart (for Bartonella) and Detox BT. I also take and enormous amount of supportive herbs and supplements. I don't know if I'll make a complete recovery but four years ago I couldn't even sit up for more than 15 minutes at a time. Now I'm working full time and able to do yoga and take two mile walks.

If you do start treatment you will most likely start having more symptoms and more pain. So that makes it a hard decision if you are not having pain now.


"Anxiety is the gap between now and then"

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Goldie
Thursday, August 21, 2014, 11:21pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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Quoted Text

OK.. NO I have no Lyme.. I just remembered that there was the list linked to above...

Actually, I even forgot that I have a GENERAL symptoms list of my own.. (I forget to treat my body)  

I will now keep a copy of that 300 list and study it..

I just think checking off this list will make certain things become way more 'up front and center'  

In the very least (Lyme or No Lyme) there has to be a way to tell a doctor these things bother me... --- now you (doctors or ND's or DO's) go figure out what they mean.   AND then we discuss what can be done about.  

I personally had many symptoms that today I 'recognized' for a life time for some, and others only since last week...  but handing in a list on paper will be easier than trying to remember and talk about it all EVEN if you had time with your doctor to sit over tea all afternoon.  hahaha  



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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nowishow
Thursday, August 21, 2014, 11:28pm Report to Moderator Report to Moderator

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Here is a nice comparison symptom chart that includes other infections like Babesia and Bartonella as well as Lyme.

http://www.lyme-symptoms.com/LymeCoinfectionChart.html


"Anxiety is the gap between now and then"

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Goldie
Thursday, August 21, 2014, 11:28pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,896
Gender: Female
Location: East Coast
Quoted Text
nowishow..... I was diagnosed about four years ago after ending up in the hospital with heart attack symptoms. I have a blog on this site and I've written about it a little in the blog. I'm so much better than I was, but treatment has been very expensive. Mostly I've used the Byron White Remedies A-L (for Lyme) A-Bab (for Babesia) A-Bart (for Bartonella) and Detox BT. I also take and enormous amount of supportive herbs and supplements. I don't know if I'll make a complete recovery but four years ago I couldn't even sit up for more than 15 minutes at a time. Now I'm working full time and able to do yoga and take two mile walks.


There are some success stories out there.. Here is one of my favorites on this site.. http://www.survivingwithlyme.com/

I saw this woman looking worn and weakend two years ago and today she submitted her picture for the website I host on ondamedworld.com  Her story is all natural, her work was hard work, but she has indeed succeeded remarkably!.. and she is willing to share her experience.. feel free to email her.  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

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Goldie  -  Thursday, August 21, 2014, 11:55pm
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Goldie
Friday, August 22, 2014, 1:01am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,896
Gender: Female
Location: East Coast
Quoted Text


Quoted Text
Here is a nice comparison symptom chart that includes other infections like Babesia and Bartonella as well as Lyme.

http://www.lyme-symptoms.com/LymeCoinfectionChart.html


Fantastic to have found the list again Cloe.. Thanks!!!!!!

And a great find Nowisnow for the 'grouped' list !!!!!   

The symptoms list by suggested groupings is what I am talking about.. === and this is 'only' for Lyme.. imagine other issues added to this.. Imagine a world of Knowledge and acknowledging!


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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