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A thread to discuss lyme disease*  This thread currently has 174,426 views. Print Print Thread
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Averno
Tuesday, May 21, 2013, 11:07pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from JJR
I guess it can act like an antenna and attract electrical wavelengths.  Something like that.  We still use one (meaning the frame is metal).  But I sleep on the tempurpedic and it's awesome.  


Ditto on the Tempurpedic. If I had to choose only one superlative possession, this would be it.

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JJR
Thursday, May 23, 2013, 8:02pm Report to Moderator Report to Moderator

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Kyosha Nim
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I have a friend from high school I've been keeping up lately.  A fellow lymie.  He says he's having this weird symptom where when he touches his Ipad or Iphone, his hands burn and feel all weirded out, tingly.  Same thing at his office they are near a bunch of power lines and he says it tweaks him out and he gets better when he leaves.  Must be awful.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
Thursday, June 27, 2013, 11:47pm Report to Moderator Report to Moderator

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Ee Dan
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I haven't been here for a long time and I couldn't find the Lyme thread so I hope it is okay that I post here.

I am finally in remission from Lyme and coinfections.  I can't believe I am saying I feel good.  Almost scared to say it out loud, but I know my swami got me here.

Over the past 2 years I have tried my best to stay away from the inflammatory foods and eat all the good ones on my list and it really paid off.

Thank you Dr. D.  I was a skeptic when I first read about the diet but am a life long follower now.
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Goldie
Friday, June 28, 2013, 5:29pm Report to Moderator Report to Moderator

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Sam Dan
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I am taking this from the new thread by Dr D on the subject of microbes and cancer and obesity.. and share it here as well..  

I have long worked to balance microbial activities..  

I am convinced ever since reading the, by now old book .... The Cure for all Diseases, by Hulda Clark, PHD,ND..

and also in the book by Richard Gerber, MD .. Vibrational Medicine.  

The importance with this is that we recognize that killing off microbes is not likely to happen, but to feed them the correct diet is important, so that if some of them over grow they will starve, and diminish, or the good ones get food to survive and multiply.  

Interesting topic, especially if you also saw the movie, on line available free, Under our Skin.. there are many discussions on this subject in the Lime thread here..  

another movie to see is The Living Matrix. a film on the science of healing..  type it in to google and u-tube and see how many choices there are.. this movie comes in several languages..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Ribbit
Sunday, June 30, 2013, 7:37pm Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
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Kim, I'm thrilled for you!!!

JJ, your friend might benefit from Earthing.  Google it.     I've been making it a point to deliberately spend some time every day with my feet on the bare ground.  Can't tell if it's helping or not, but a friend let me borrow her grounding materials (to "plug into" the ground one night a couple of weeks ago) and I woke up with no back pain, which is a first for me in years.  Of course it came back, but at least it was gone for a little while that morning.  My back never stops hurting.

I'm feeling really good on the Cowden protocol now.  A lot of my nerve damage has healed and I'm very, very thankful for Dr. Cowden's knowledge and understanding of herbs.  I hardly ever have what I used to call "bad days" anymore.  I'm just...normal.  Of course my endurance is low compared to most people's, but it's okay.  I love feeling relatively normal.

I did recently get two new tick bites, and one of them had a bulls-eye rash around it.  I haven't had anything bad come of it [yet] though.  I wrote Dr. Cowden and he said to triple the anti-microbials. I did that, and I haven't even herxed at all.  I've been on the protocol now 1 year and 5 months.  My husband has been on it 10 months.  The children have been on it just over 3 months.  The amazing thing that we've seen with the children (who were undiagnosed, by the way) is that their food allergies are healing.  When we go to events now where there's weird food, they can eat it without any trouble as long as they stay away from bread, and one of them still has to religiously avoid eggs, soy and corn.  The most awesome thing is that I've been making spelt bread occasionally (like once or twice a month) and they have NO REACTION!  I never imagined that I'd be able to make spelt bread and have them all be able to eat it.  I tell you, it's exhausting fixing meals for four different blood types.  Particularly when you have a chronic illness that affects your energy.    

I am nothing less than thrilled that they are both herxing and healing.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Monday, July 1, 2013, 8:20pm Report to Moderator Report to Moderator

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WAAAHOOOOOOOOOOOOOOOOOOOOOOOO Ribbit!

WAAAAHOOOOOOOOOOOOOOOOOOOOOOO Kim!


I started the Lyme HP by my Doctor a couple of weeks ago and I think it's making some headway.  My energy seems a little better.  I'm taking a super small amount because I'm trying to avoid bad herxing.  I might have to start upping it soon.  Actually I took a 4 day break and need to get back on tonight.  

The drops I take are Lyme HP by Energique.  I'm not sure what's all in it.  Weird stuff.  I did see echinacea in it but several other things.  Anyways...  once I get through this though I'm going to talk to him about the cowden protocol.  Since it is doing such good things for you.  I still have a long way to go.  Because I wouldn't say I feel good.  Just maybe a little better than before.  Praise the LORD.  

I'm so happy for you two and anyone who seems to have found stuff that works for them to get through this awful thing.

I've heard of earthing Leanne and looked it up a while back.  I haven't done it much myself and should.  But maybe it would help him.  I can suggest it to him.  Thanks for the tip!!!!!!!!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Tuesday, July 2, 2013, 3:31pm Report to Moderator Report to Moderator

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Ribbit
Monday, July 8, 2013, 1:49pm Report to Moderator Report to Moderator

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Kyosha Nim
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I got to meet Kerry Clark a couple of years ago at the GA Lyme Disease Awareness Day.  Evidently the year before I'd seen him too, but I wasn't doing well then and didn't really remember him.  Evidently also I'd recommended blackstrap molasses for his leg cramps.  Poor thing, he was still trying to run every morning while struggling with Lyme himself and couldn't do it.  So last year he told me I looked a whole lot better and had been having success with molasses.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Monday, July 15, 2013, 8:20pm Report to Moderator Report to Moderator

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Interesting.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Friday, August 16, 2013, 7:03pm Report to Moderator Report to Moderator

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So much has been going on for me the last couple of months. My spouse of 25 years asked for a divorce, we sold the house, I moved to an apartment. All while still being so sick with Lyme disease. I've had to take a lot of pain pills to get through all of this. But now I'm pretty much settled in my new apartment and I'm hoping I can rest more. But everything is harder at an apartment. I've owned a house for 30 years so it's very different for me.

Emotionally I'm a wreck. I didn't want the divorce nor did I want to sell our house in the redwoods. I had to move to the city where the air sucks, it's noisy, and hot. I can't believe my spouse (a woman by the way) could do this to me while I'm still so sick and still need so much help. I would never have done it to her. I asked if we could just stay in the house as roomates but she wouldn't do it.

I'm sure I'm better off moving on rather than staying with someone who for whatever reason can't stay and help me anymore. But it will take some time. 25 year is a long time to live with someone. Please send me good thoughts, prayers, and energy.

Connie


"Anxiety is the gap between now and then"

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JJR
Friday, August 16, 2013, 9:55pm Report to Moderator Report to Moderator

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OH MAN.  That sounds terrible.  I'll say some prayers for you.  Change is really hard on me, and the changes I've had to endure aren't anywhere's near as earth shattering.  I'm so sorry to hear this.  

Just try and chill and survive, things will get better.  Please take care of yourself!!!  I'm sorry I didn't look at this earlier.  

Hang in there!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Friday, August 16, 2013, 11:25pm Report to Moderator Report to Moderator

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Thanks JJR! I don't mind change, but grief kicks my butt and I'm full of GRIEF!


"Anxiety is the gap between now and then"

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JJR
Saturday, August 17, 2013, 12:09am Report to Moderator Report to Moderator

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Kyosha Nim
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Definitely feel for you.  Thank you for sharing your hurts.  Hopefully you will feel better soon.  Even though I know it will take time.  

Stay strong!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ruthiegirl
Sunday, August 18, 2013, 4:23pm Report to Moderator Report to Moderator

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Kyosha Nim
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((HUGS)) I've never been married more than 3 years, so my divorces were more a matter of "the relationship never really working out in the first place"- I'm sure it's quite different after being with somebody for 25 years. I was also the one that did the leaving (well, kicking out, as I stayed in the house with the kids) both times. I know that makes a difference too.

Let yourself feel the grief and work through it- there's no other way. If you ignore the pain, it won't go away- it will just manifest in other ways.  

I hope you have a good support system in place, or that you can find one.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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nowishow
Monday, August 19, 2013, 10:53pm Report to Moderator Report to Moderator

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Thanks ruthiegirl. I'm definately not ignoring the pain.    


"Anxiety is the gap between now and then"

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Victoria
Tuesday, August 20, 2013, 4:41am Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from nowishow
Thanks JJR! I don't mind change, but grief kicks my butt and I'm full of GRIEF!


Oh, much love to you!     Breathe deeply when you feel that grief-pain.

And speaking from experience, the Bach Flower Remedy, Star of Bethlehem is very helpful.  Put a few drops in a clean 2 ounce dropper bottle, fill with filtered or spring water and drop into your mouth all day, any time you think about it.  Or drop into your water bottle, or glass of anything you're drinking.  

{{{HUGS}}}  to you, dear.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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nowishow
Tuesday, August 20, 2013, 3:46pm Report to Moderator Report to Moderator

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Thanks Victoria - Is Star of Bethlehem specifically for grief? I currently take Rescue Remedy and it helps calm me. I also take the homeopath remedy nat mur for the grief.


"Anxiety is the gap between now and then"

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Goldie
Thursday, August 22, 2013, 12:27pm Report to Moderator Report to Moderator

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Kim you wrote ..... I am doing fine off medication.  I have gotten off everything.  I don't use anything for sleep, allergies or pain. My oils are taking care of everything.

Would you mind sharing / calling me.  I am very intrigued...

nowishow When my husband died over night at his job, my world as I knew it changed greatly.  The biggest deceit came from my mother in-law.  His body was not cold yet, when she wanted his jewelry as belonging to her when 3 pieces where bought by me and him for our special events.  She was greedy all her life, but I never realized it until that day!   Life has a way of kicking everyone’s life in some way, - we recently lost a 20 year old to frowning - neither money nor possessions make that go away. Some think a house or money is all that life is worth, but rather then that it is time that teaches us that we have several lives’s and need to live them to the fullest, tears included.    

I am talking here also to Kim, because some time ago she was at her lowest ebb and yet she is overcoming against all odds.   She once came to my defense in a attack from others, and I never forgot her kindness.  I am certain that the trait of kindness is what is bringing her through her life.  Connie, it is strength we find inside, that gets us up in the morning, but kindness to you  Your Self is what is most needed in hard times.  Get a big piece of paper and write on it:

            
Quoted Text
This will pass...
  then read it all day... It's a promise no one can take away.

Take pleasure in the sun rise or the pink clouds at night- to Know that the universe- loves you.
All the furure best to you.      


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kim
Thursday, August 22, 2013, 1:34pm Report to Moderator Report to Moderator

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Ee Dan
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Quoted from Goldie
Kim you wrote ..... I am doing fine off medication.  I have gotten off everything.  I don't use anything for sleep, allergies or pain. My oils are taking care of everything.

Would you mind sharing / calling me.  I am very intrigued...


Email me at brownstoneranch@gmail.com.  I have lost your email address.  

Revision History (1 edits)
ABJoe  -  Thursday, August 22, 2013, 4:04pm
Added end quote to clarify...
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Ribbit
Wednesday, September 18, 2013, 3:59pm Report to Moderator Report to Moderator

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Kyosha Nim
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I'm sorry, Connie!  Emotional pain makes all physical pain worse.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Averno
Friday, September 20, 2013, 4:24pm Report to Moderator Report to Moderator

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Kyosha Nim
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My wife and I were both diagnosed with Lyme disease 2+ years ago. I got terribly ill, but antibiotic treatments helped... for now.

There has been a lot of push back from doctors lately, no doubt urged by drug manufacturers and insurers who are at a loss as to how to proceed.

http://www.bostonglobe.com/met.....5GsTocBhL/story.html


Even Quackwatch was enlisted to "debunk" our concerns and dismiss the alternative protocols

http://www.quackwatch.com/01QuackeryRelatedTopics/lyme.html


We'll have to support our advocates even more.

http://www2.lymenet.org/domino.....cd3e852567c700120023

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ruthiegirl
Monday, September 23, 2013, 9:22pm Report to Moderator Report to Moderator

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Quackwatch is completely unreliable. That website has a bias against anything "alternative" whether it's valid or not.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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nowishow
Friday, November 8, 2013, 12:18am Report to Moderator Report to Moderator

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If you have lyme disease please help by taking a photo of yourself for this campagn below. I did. I think it's a good idea. The deadline has been extended to the end of November I think.

Quoted Text
United Lyme Action (ULA) is launching a photo campaign to get more media attention for Lyme disease.

Our goal is to raise awareness about the fact that the CDC and HMOs are ignoring the Lyme disease epidemic.

Some celebrities have already agreed to participate. Actress Jane Alexander will be contributing a photo to the campaign. Actor/producer/painter JOHN LURIE will be promoting the campaign in an interview on the Huffington Post.

Our goal is to get 500 pictures up in the next 2 weeks before the Huffington Post article comes out.

And news anchor BROOKE LANDAU who was on the Dr. Phil Show about Lyme has agreed to add her photo.

We're in discussion with more celebrities as well.

Here's How You Can Be Part of the Campaign

We're asking people to take a photo of themselves holding a sign saying, “I am one of the 300,000 plus annual Lyme patients being ignored by the CDC and HMOs."

We plan to develop the photos, connect them into banners, and send them to 4 major news networks.

You can learn everything about the campaign here:
http://lyme300000.wordpress.com/

You can make your own sign or print one out here:
http://lyme300000.wordpress.com/
You can email your photos to: lyme300000@yahoo.com

Check out some photos already sent in: http://www.flickr.com/groups/lyme300000


"Anxiety is the gap between now and then"

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JJR
Sunday, December 29, 2013, 1:34am Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Ooops. I missed that.  Sorry!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Monday, December 30, 2013, 4:59pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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I just wanted to hope on here and kind of update everyone.

I had gone back to an ND who works out of Fox Valley Wellness Center.  And I didn't realize this, but their facility works a LOT with Lyme Disease patients.  I used to go to him a long time ago and then switched docs, but felt like my last doctor wasn't treating me for lyme as well as I might should be getting.

So, I saw this ND in spring and he put me on something called Lyme-HP.  It definitely helped me feel better in all aspects.  I had just gone back to him about a month ago and all my lyme numbers are down and he wants me to start Samento.  I also have a problem with too much radiation in my system that he wants me to take a few things to clear that too.  

I also am in the middle of a hiccup.  About two weeks ago I ended up in the ER because I have a 6mm stone moving.  I was in tons of pain.  It's been kind of an ordeal.  I was in the hospital for 2 days and then I go back in tomorrow to have "lithotrypsy" I think they call it.  They go in with a scope and a laser.  

The bummer is when I went in the first time, I was starting to get feverish, so they put me on antibiotics for a week.  And I really didn't want that.  I'm not sure what kind of impact it had on me yet.  My guts.  Etc.  

But hopefully this laser shooter treatment will go smooth and I'll be back working on my lyme recovery soon here.  I feel like I've been set back with this deal, but I guess that's life.  

Thank you for listening.    


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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