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A thread to discuss lyme disease*  This thread currently has 174,287 views. Print Print Thread
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ABJoe
Monday, March 11, 2013, 7:09pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from TJ
I don't recall if this was discussed already...

On SWAMI, there is the "low-level infections" check box. Unchecked, I'm reactive, Checked, I'm receptive. I'm not sure which to go with. On one hand, chronic Lyme is in that category, and suggests that the immune system needs to be stimulated. But on the other, Lyme also causes very auto-immune behavior, which needs to be toned down to control symptoms.

What are your thoughts about which way to go?

I would call DPN and ask their advice - especially if the food lists, etc. are much different.


RH-, ISTJ
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JJR
Wednesday, March 13, 2013, 12:49am Report to Moderator Report to Moderator

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I checked mine, because I got fevers for nearly a whole summer in the afternoon one year.  And I used to get fevers a lot.  Low grade.  But after a while I was like, COME ON.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Wednesday, March 13, 2013, 2:15am Report to Moderator Report to Moderator

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I wish I'd get fevers. It might help things along. If it wasn't for the Lyme, I'd be inclined to say that I'm a receptive type, epigenetically speaking. However, with the Lyme wreaking immune system havoc, I don't want to make things worse for myself! I've got to make it through today (Lyme symptoms), before worrying about tomorrow (other complications from receptive immunity, such as cancer) becomes important.
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JJR
Thursday, March 14, 2013, 5:43pm Report to Moderator Report to Moderator

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Do the lists change that much?  I would just check it, if you think you've had that particular ailment.  Regardless of the outcome.  

I think eating red meat has helped my immune system.  I would imagine you eat it enough already though.  Seeins that you're a B.  Unless for some reason you haven't been that much.  I know lamb is expensive and good beef is.  I don't know what other foods stimulate the immune system.  Mushrooms?  I think they help clean up.  Maybe blueberries?  I forget.  

Are you avoiding grains?  I wonder if some oats or rice might not help either.  The book says it give you energy.  Which the body needs.  But I know that B's don't do as well on grains as some.  

Then there are supplements of course.  Echinacea.  And what not.  

Are you feeling worse lately?  

Oh yeah, one more thing, if you're thyroid is sluggish, it might not allow your temp to get high.  Might need some iodine in some form.  

Just some thoughts.  You've probably thought about all that already though.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Saturday, March 16, 2013, 8:38pm Report to Moderator Report to Moderator

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Kyosha Nim
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Many foods get a higher rating if I'm a receptor instead of a reactor, especially vegetable proteins. Beef even becomes beneficial when I check digestive problems and low-level infections! I already eat beef almost daily. Mushrooms definitely go up. Grains are out of the question, but I have been eating bananas and beans for starch, and that seems to be going well. I had my thyroid levels checked just a few weeks ago under suspicion that I might be hyper-thyroid. She said they were right where they should be (and this clinic is all about integrative medicine).

I sent off an email to DPN customer service today to ask their advice.
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JJR
Sunday, March 17, 2013, 7:41pm Report to Moderator Report to Moderator

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Kyosha Nim
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I would guess you are a receptor.  As am I.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Chloe
Sunday, March 24, 2013, 8:20pm Report to Moderator Report to Moderator

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"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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TJ
Monday, March 25, 2013, 12:45am Report to Moderator Report to Moderator

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Very exciting!
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JJR
Tuesday, March 26, 2013, 5:30pm Report to Moderator Report to Moderator

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My sisters oldest son is Autistic and one of the diets they had him on claimed that too much manganese was not good and a huge culprit of the problems experienced.  

Very interesting indeed.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Amazone I.
Wednesday, March 27, 2013, 10:18am Report to Moderator Report to Moderator

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another Dr Dietrich Klinghard Academy and yup often lime and other similarities can only seen in tissue... not in bloodtests!
Btw. our feelings might have been distored by education therefore false outputs... .........dito the interpretations about I am and I have should be adapted as well ................ and perhaps might I ask you all to read about my latest input in *psyche pattern*


MIfHI K-174

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C_Sharp  -  Monday, May 13, 2013, 4:14pm
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TJ
Sunday, March 31, 2013, 9:16pm Report to Moderator Report to Moderator

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What other forums have any of you found helpful for discussing Lyme disease/tick-borne illnesses? I'd like to branch out a little.
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Amazone I.
Saturday, April 20, 2013, 9:14am Report to Moderator Report to Moderator

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Kyosha Nim
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http://www.youtube.com/watch?v=lrkd9quM7TA


perhaps would it be fine for all involved to search for a therapist working with
Enderlein's methods .... and also to recognize that so called pleomorphisme isn't a joke nor a hype at all !!!

Btw.. Dr. Klinghardt (www.klinghardtacademy.org ) seems to be one of the newest and best options ....


MIfHI K-174
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TJ
Monday, May 13, 2013, 3:16am Report to Moderator Report to Moderator

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I worked with an herbalist friend on Thursday to sort through all the supplements I'm taking. I brought a list of everything. Energy testing revealed that, out of the 39, only 11 of them were good for me, and of those, only two were a priority for me right now; none of the Lyme herbs made the cut. She added cod liver oil to the list as a third priority. I'm stoked about not having to spend all that money on supplements anymore, but a little irritated that I have a lot of the other things already on hand (i.e. wasted money).

Also, in her school of thought, there are six categories of causes for unwellness: structural problems, toxins, emotional issues, allergies, EMF overload, and nutritional problems. My only two were emotional issues and EMF overload (hooray for Dr. D that I'm well-nourished!). She tested for Lyme and got a negative. EMFs aren't surprising since I work on computers, work and live in buildings with wi-fi, and carry a cell phone. I knew there were emotional issues, but I haven't been willing to deal with them just yet, and now that time has arrived. I didn't realize how seriously emotional issues can affect my health, but the light has come on. I've been reading Feelings Buried Alive Never Die and learned a great deal already, only into the fifth chapter.

I don't know if this means that I don't have Lyme anymore, or if it means that I never had it, but it's nice to know that there are other things I can work on now. I feel like I haven't made much progress lately with what I've been doing.
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Amazone I.
Monday, May 13, 2013, 8:20am Report to Moderator Report to Moderator

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Kyosha Nim
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as once mentioned, I think and observed also that rizoles are one of the quickest and best options here  and as all of those factors are to be seen and approached very carefully, no allopathic treatments seems to really do the trick coz of pleomorphisme!!! see articles beautifully written from Prof.Dr. Enderlein.....
and even if we don't agree, facts are the truth here ....


MIfHI K-174
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Tom Martens
Tuesday, May 14, 2013, 2:33pm Report to Moderator Report to Moderator

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Be who you are.  Those who mind don't matter, those who matter won't mind.

FIfHI

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Lin
Wednesday, May 15, 2013, 1:16am Report to Moderator Report to Moderator

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TJ,
That is so interesting. I would guess if you have any lyme it is very low level and not the real issue.
I've been told that our emotions can be a big factor to do with our immune and health.
Sounds like you are on to a good thing.  I'll check the book out you mention.
Good luck.
Lin


Gluten/Casein and Yeast sensitivity.
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JJR
Friday, May 17, 2013, 5:29pm Report to Moderator Report to Moderator

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Kyosha Nim
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Yay TJ!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, May 17, 2013, 8:23pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from TJ
I worked with an herbalist friend on Thursday to sort through all the supplements I'm taking. I brought a list of everything. Energy testing revealed that, out of the 39, only 11 of them were good for me, and of those, only two were a priority for me right now; none of the Lyme herbs made the cut. She added cod liver oil to the list as a third priority.

Also, in her school of thought, there are six categories of causes for unwellness: structural problems, toxins, emotional issues, allergies, EMF overload, and nutritional problems.

...it's nice to know that there are other things I can work on now. I feel like I haven't made much progress lately with what I've been doing.

I understand the unhappiness with having purchased things that now are not needed, but it is less bad than needing it and not being able to get it for 2 or 3 weeks, which is why I keep a stock of what I'm currently taking...  When needs change, I just box the remaining until I need it again or I go through all of the old "stuff" and throw out what is way out of date...

It is amazing that when I look at her list of 6 causes, most of them will be helped to some extent by "eating right" - no matter which plan you choose...

It is amazing how when we get 1 symptom (or set of symptoms) dealt with, the body puts the next one up for us to figure out and fix...  We need to keep knocking them down - to use a bowling term, until we get through all of them.  I am surprised how "sick" someone can be and still be "functional".


RH-, ISTJ
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TJ
Saturday, May 18, 2013, 9:53pm Report to Moderator Report to Moderator

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I'm a week out now from these revelations, and I'm doing better now than I was two weeks ago. I had no idea how much energy I was using up by putting on feelings that didn't come from my heart. I try so hard to be cheerful and friendly, and I was trying harder than I could realistically support. I'm working on allowing myself to feel what I'm really feeling, while still trying to be my best self. It's such a subtle change but there is a better outcome.

I realized that I have deep feelings of being too weak, frail, and powerless to deal with what's going on around me and to take care of myself. Clearly, that isn't the case, but it's hard to convince your heart to believe something different. I also realized that I very much live in my mind and don't feel comfortable in my own body. I need something to help me get "integrated". Imagine that, a B with mind-body connection problems....

I spoke with a family member on Sunday and shared these (and other) insights, and we came up with a good course of action: I need to study the martial arts! I did some hunting around this week and found a studio/dojo I like that teaches kung fu and tai chi. I have a private (starter) lesson scheduled for next Saturday morning, then I plan to take group lessons on Monday evenings and Saturday mornings. This is very exciting!

Ps: I actually had the energy and motivation to clean out, clean up, and rearrange my bedroom today, and I've stepped my med doses down a little without noticing any ill effects.

Quoted from ABJoe
It is amazing how when we get 1 symptom (or set of symptoms) dealt with, the body puts the next one up for us to figure out and fix...  We need to keep knocking them down - to use a bowling term, until we get through all of them.
I agree. There has been a sequence of things to overcome. Luckily for me, iHerb accepts returns of unopened merchandise purchased within the last 60 days (which fits most of my unopened stuff).
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TJ
Saturday, May 18, 2013, 9:57pm Report to Moderator Report to Moderator

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There's one more thing I forgot: I've been sleeping on an inner-spring mattress on a metal-framed bed. I moved the bed and mattress out and starting tonight I'm back on my air mattress until I can find a futon mattress I like/can afford.
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Averno
Sunday, May 19, 2013, 12:35am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from TJ
I'm a week out now from these revelations, and I'm doing better now than I was two weeks ago. I had no idea how much energy I was using up by putting on feelings that didn't come from my heart. I try so hard to be cheerful and friendly, and I was trying harder than I could realistically support. I'm working on allowing myself to feel what I'm really feeling, while still trying to be my best self. It's such a subtle change but there is a better outcome.

I realized that I have deep feelings of being too weak, frail, and powerless to deal with what's going on around me and to take care of myself. Clearly, that isn't the case, but it's hard to convince your heart to believe something different. I also realized that I very much live in my mind and don't feel comfortable in my own body. I need something to help me get "integrated". Imagine that, a B with mind-body connection problems....



Bravo TJ!  Sometimes we kick out the props to put our our feet on the ground.




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ruthiegirl
Monday, May 20, 2013, 4:06pm Report to Moderator Report to Moderator

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I'm glad you're feeling better TJ. I'm sure I have emotional work to do too, but it's hard for me to find the time to focus on ME when I have 3 kids who need so much from me.

What's the deal with the metal bed stuff? I've never heard of that before.  I do know IKEA has some nice futons and an assortment of frames- some wood, some metal. We got the futon for the basement (metal frame, as it's better in a flood-prone room) there and it wasn't expensive.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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JJR
Monday, May 20, 2013, 6:01pm Report to Moderator Report to Moderator

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I guess it can act like an antenna and attract electrical wavelengths.  Something like that.  We still use one (meaning the frame is metal).  But I sleep on the tempurpedic and it's awesome.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Spring
Monday, May 20, 2013, 6:27pm Report to Moderator Report to Moderator

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Quoted from TJ
but a little irritated that I have a lot of the other things already on hand (i.e. wasted money).


I would guess that many of us have been down that road, TJ! I have thrown away boxes of supplements through the years! I certainly don't want to be taking stuff that is not benefiting me or might even cause harm!   I continue to hope for a very good outcome for you, TJ.


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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TJ
Tuesday, May 21, 2013, 7:03pm Report to Moderator Report to Moderator

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Ruthie, JJ is right. All these radio waves in the air induce a small current in conductive metals, producing an electromagnetic field. I used to think this concern about exposure to EM fields and other "dirty electricity" was bunk, but I've become more and more open and accepting of the idea. I measured the field near those bed rails and the field was twice as strong. Around the inner spring mattress, the field intensity jumped near the ends and corners.

Today I shipped back my unopened supps for a $112.66 credit with iHerb.
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