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A thread to discuss lyme disease*  This thread currently has 175,758 views. Print Print Thread
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nowishow
Wednesday, September 7, 2011, 7:44pm Report to Moderator Report to Moderator

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Quoted from JJR
And my body has been real calm the last couple of days.  Almost, too calm.


That's usually when I have a big episode. It's like my body rests and doesn't fight the bugs for a while so I get a break. I start to feel normal again and then WHAMO   back to the wars!


"Anxiety is the gap between now and then"

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Ribbit
Wednesday, September 7, 2011, 9:42pm Report to Moderator Report to Moderator

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Well, I saw my ND yesterday and told her I was getting a little frustrated because I feel like I've plateaued in my healing.  I've never herxed from anything she gave me.  She grinned and said, "Oh, maybe you're ready for this--" and she held up a homeopathic remedy specifically for Lyme, not just to help my body get stronger.  Thus far, her philosophy (I gather) has sort of been to get the body strong and then it can fight the bacteria/viruses itself.  She said I wasn't strong enough for it before.  I guess I reached a point where I was getting antsy to ramp up the healing process.  Probably a good sign.  So now I'm beginning some new things and maybe I'll start healing again.

So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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nowishow
Wednesday, September 7, 2011, 10:44pm Report to Moderator Report to Moderator

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Quoted from Ribbit
So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.


That sucks! Do you know what made you sick?


"Anxiety is the gap between now and then"

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TJ
Wednesday, September 7, 2011, 11:00pm Report to Moderator Report to Moderator

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Quoted from Ribbit
I've never herxed from anything she gave me.  She grinned and said, "Oh, maybe you're ready for this--" and she held up a homeopathic remedy specifically for Lyme, not just to help my body get stronger.....

So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.
Wait, you hadn't even started the remedy yet???

After reading what other people describe as "herxing", I'm not sure I've done any of it lately.  Not that I'm complaining, mind you, but that seems like an important sign that the healing process is moving forward.  I haven't felt detox symptoms from taking Deflect, Genoma Security, or Rekon Pro.  Lately I haven't reacted to probiotics, either.

Keep us posted Ribbit!  I'm eager to hear how the homeopathy works.
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ABJoe
Thursday, September 8, 2011, 2:49am Report to Moderator Report to Moderator

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Quoted from Ribbit
So we came home, ate dinner, went to bed.....and I started throwing up.  I threw up all last night and half of today and I have a low-grade fever.  So when this tummy thing goes away, I'll get started on all my new stuff.

I've had a similar reaction from just the practitioner's testing of the supplements.  I hope the real thing doesn't have this much effect, or you'll be taking a really low dose!


RH-, ISTJ
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JJR
Thursday, September 8, 2011, 4:04pm Report to Moderator Report to Moderator

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OH MY LEANNE!  I was thinking the same thing Joe said.  I wonder if the testing of the supps didn't have something to do with you being sick.  That would seem almost too odd to me though.  Has anyone around you been sick?  It's possible I guess.  

Either way, my problem is I get paralysis of analysis.  There are supps I probably SHOULD take, but I don't want to because I don't want to herx. It just makes doing anything so much more difficult.  And there's always something going on that makes me say, it's not a good time.  I have yet to start taking teasel.  (red root tincture).  I think that's probably my next step.

I'll be saying a prayer for you Leanne.  And I think it sounds like you're in good hands with that ND.  What did she give you to kill the lyme?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Friday, September 9, 2011, 8:25pm Report to Moderator Report to Moderator

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I'm pretty sure I had a stomach virus.  In fact, when I e-mailed the ND, she wrote back and said she had picked up on that, but evidently forgot to mention it to me.  So she knew before I did that I was getting sick.  lol  I don't know where I caught it, but we just spent the weekend around a bunch of people we don't usually  hang out with, and any of them could have just gotten over something.  Nobody else in the family has gotten it [yet].

I've been doing cat's claw for several months along with many homeopathic remedies to strengthen various organs and systems.  The new one she gave me is made by Mediral (which I'd never heard of) and here's what it's got in it:

Shujin chin
Angelica
Du Hua
Magnesia Phosphorica
Kali Muriaticum
Manganese
Yucca filamentosa
Cartilage
Hydrastis canadensis
Rhus-tox
Liver sarcode
ordius
Oxalicum
Acidum
Arnica montana
Lactodens mactans
Syphillinum


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Friday, September 9, 2011, 11:18pm Report to Moderator Report to Moderator

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Wow, that's quite the list!!!! I took cat's claw a long time ago from my chiro.  I hear it's potent.  

Yeah, picking up bugs is so easy when you got lyme.  At least for me it's been.  How are you today?  The kids and Elizabeth and I prayed for you at lunch time yesterday.



I think a big thing for me to do before I do too much killing is cleanse my liver some.  My son's school gave me an AHA moment and it showed me that my liver has been clogged up.  Along with ABJoe's recommendations to start eating foods that will help.  

Anyone else feel their liver is sluggish?  Among other things.  Hehehe.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
Saturday, September 10, 2011, 1:19am Report to Moderator Report to Moderator

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Thanks, JJ.  My stomach is still uneasy, but I've been eating.  The bruise from my broken toe has spread halfway up my foot and three toes over.  It's pretty crazy.  All I did is stump it on a bedpost.

That's just the list of stuff on the side of the bottle.  I'm taking about a dozen other supplements as well just to strengthen my body.

I don't know how to tell which organs are doing what.  I've learned to tell about my pancreas because I know what it feels like to have blood sugar swings.  Thanks to the GTD, I no longer have hypoglycemia though.  What does a sluggish liver feel like?  Every alternative practitioner I've ever seen told me I have pretty bad liver problems.  I have taken a variety of things over the years from dandelion tincture to red clover.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Chloe
Saturday, September 10, 2011, 1:35am Report to Moderator Report to Moderator

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JJR
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Quoted from Ribbit
Thanks, JJ.  My stomach is still uneasy, but I've been eating.  The bruise from my broken toe has spread halfway up my foot and three toes over.  It's pretty crazy.  All I did is stump it on a bedpost.

That's just the list of stuff on the side of the bottle.  I'm taking about a dozen other supplements as well just to strengthen my body.

I don't know how to tell which organs are doing what.  I've learned to tell about my pancreas because I know what it feels like to have blood sugar swings.  Thanks to the GTD, I no longer have hypoglycemia though.  What does a sluggish liver feel like?  Every alternative practitioner I've ever seen told me I have pretty bad liver problems.  I have taken a variety of things over the years from dandelion tincture to red clover.


Well, from what I've read, you can't really tell by feeling.  Meaning I guess it doesn't usually hurt.  I'm just looking at other symptoms.  But according to Donna Gates, you should be able to stick your fingers under your right rib up to your first knuckle.  When I read that, I was like WHA?.  But if it's puffy or large, you won't be able to do it.  I can't really tell if I can or not.  It seems not.  But it's kind of freaky to try.  Anyone else hear of that.  For me, it's been this whole thing about floating stools.  It's been bothering the heck out of me.  This is the first good bit that it's happened so much.  And then my Son's school work, as I was checking it yesterday, said the liver secretes bile.  Which of course I knew, but it said the bile helps break down fats in the digestive system.  That, I didn't know.  It was like a light bulb went off.  I was thinking, I bet it's not doing that very well.  So then I took some silymarin last night, and the next morning, it was beautiful, no floating stool.  Looked like it should, etc.  But that has been a rare thing.  I've been going regularly, which is good.  It's just not what it should be.  

So, I've concluded my liver needs a good cleansing.  Which, since I've been on this healing journey, it has always been a thing.  I think it's extra sluggish this year for some reason.  I think it's because I haven't been taking silymarin every day.  I do drink Dandelion root tea about once a week, but I don't think it's enough.  I gotta start eating more beets, liver, etc.  Try your "greens" as you say.  I've been eating  green apples pretty regularly, but I'm not sure they're a silver bullet.  I think lemons USED to help quite a bit, but that's another food that has not sit well with me lately.  Too many foods are doing that.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
Saturday, September 10, 2011, 2:57pm Report to Moderator Report to Moderator

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Quoted from JJR
But according to Donna Gates, you should be able to stick your fingers under your right rib up to your first knuckle.
Check.

Quoted from JJR
For me, it's been this whole thing about floating stools.  It's been bothering the heck out of me.  This is the first good bit that it's happened so much.  And then my Son's school work, as I was checking it yesterday, said the liver secretes bile.  Which of course I knew, but it said the bile helps break down fats in the digestive system.  That, I didn't know.  It was like a light bulb went off.  I was thinking, I bet it's not doing that very well.  So then I took some silymarin last night, and the next morning, it was beautiful, no floating stool.  Looked like it should, etc.  But that has been a rare thing.  I've been going regularly, which is good.  It's just not what it should be.
Awesome!  I just noticed this week that mine haven't been floating, either.
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ABJoe
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Quoted from Ribbit
What does a sluggish liver feel like?  Every alternative practitioner I've ever seen told me I have pretty bad liver problems.

I know that gall bladder problems are manifested by pain at the point where the right rib cage stops dropping from the sternum and mostly levels.  Bile duct blockage causes pain right at the bottom of the rib cage on the right side of the body (not front) - where a stitch would be if running.  Pain or discomfort along the bottom of the rib cage between those two points is supposedly attributable to the liver organ.

Many digestive problems can be attributed to improper regulation of bile into the digestive tract.


RH-, ISTJ
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JJR
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I don't know why it's taken me so long to understand that.  Duh.  When I first starting visiting the doctor I go to now, I was always taking silymarin and artichoke.  But, I've laid off of it.  I am muscle testing very strongly for Betafood (standard process beet stuff).  And I need to start incorporating that.  I just know when I tried it a couple of years ago, I felt so awful, I stopped.  But, I've since learned how to take a little at at time, instead of a whole pill, and work up from there.  I think that's what I have to do.  Plus, start eating more of these foods that detox the liver.

TJ, does it happen frequently with you?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
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My fingers go up under my ribcage on the side.  

I e-mailed my ND and told her I still felt sick and asked her if she thought maybe I was herxing and she called me within minutes and said, "Yes, sorry about that, I guess you need to take less of the new stuff."  So I'm backing off now.  She said it's not necessary to herx and that you can do things gently and you don't have to feel bad.  I can't believe I was that sick just from herxing!  I've herxed before (now that I think back), but it's been a long time, and both times were under the care of Dr. Garvy---http://www.sonridgehealthcenter.com/ ---first when he ran his magic machine on me (yeah, that's all he did), and the second time when he put me on what he called Viral Shock.  It was large doses of vitamin C, echinacea and L-Lysine.  I was supposed to do it several times a day every other day.  Well, the days I'd do it, I'd feel okay.  They in-between days I'd lay in bed trying not to throw up.  I'd be that sick!  After about two weeks I stopped it because I didn't think it was good for me to feel that way.  Now I know it was the BEST thing I could have done!  I'd never heard the word "herx" back then.  This was several years pre-BTD.

Anyway, my current ND agreed that it wasn't a stomach  virus and that what she was picking up on was just the regular old viral overload I always have.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
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Chloe, thanks for that link.  I will make sure I'm getting at least a clove of garlic a day, and I will add nettle tea to my diet as well.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
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My herx reactions aren't usually vomiting.  I just get so inflammed, that it's hard to do anything.  Tired too.  Skin on fire feeling, heart rate goes up much higher than normal, just laying around.  Inflammation.  Etc.  Etc.  But I typically don't get puking episodes.  It was rare, even with a stomach bug, that I'd throw up.  I think it might've happened a few times.  

There's been times in the last two years that I've eaten something, that made me feel awful, and I'd try and stick my fingers halfway down my esophagus (exxageration, but I really got it in there) and I could not make myself puke.  It's like the flap is too tight or something.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Ribbit
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Well, nausea has been such a part of my life for so long, I don't know what it is to be without it.  I blame it on the Lyme.  It's just a matter of degrees.

When I'm sitting there with my head hanging over the potty and I just can't get it to come, I imagine raw red meat.  That always does the trick.  I discovered that when I was pregnant with #3.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Ribbit
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BTW, TJ, you had asked me if I'd herxed just being treated, before I even took supplements.  She used the Indigo (a frequency reader and generator) to not only read what I was dealing with, but to treat me as well.  I took one dose of the recommended stuff that night, and within hours I had a nasty headache and was vomiting.  I'm still nauseated and it's 5 days later.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
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Wow.  I'll be praying for you still.  But hopefully it's all a good thing.  Killing it.  Are you weak also?  I'm so sorry Leanne.  

Last night I woke up with the sweats while sleeping.  Hopefully that was a good thing.  I think it usually means my body is fighting something off.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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TJ
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Quoted from Ribbit
BTW, TJ, you had asked me if I'd herxed just being treated, before I even took supplements.  She used the Indigo (a frequency reader and generator) to not only read what I was dealing with, but to treat me as well.  I took one dose of the recommended stuff that night, and within hours I had a nasty headache and was vomiting.  I'm still nauseated and it's 5 days later.
Ouch!

We had somebody speak in church about getting answers to prayers, and she shared her experience with fatigue, dizziness, and brain fog (among others) and how she finally got the Lyme diagnosis after getting the usual "it's all in your head" treatment.  Lyme in Utah?  Who knew???
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I'm telling you, my motto is "2011, Year of the Lyme".


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kim
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I just hope the word gets out about Lyme disease.  I think there are a lot of people with health issues that don't consider that a nymph tick can bite you and you may become infected with Lyme or coinfections.  After all a nymph tick is as small as the period at the end of this sentence.

I have been under the radar for a week.  Trying some different medications to get pain under control.  So far, two of the drugs caused reactions and I had to stop them.  On to the third try today with a different drug.  Burning muscle pain has been the worst along with joints hurting. Pain makes sleeping very difficult.  I am treating myself to an infrared sauna to help with detox and pain.  Can't wait to get it.

Saw my rheumatologist today and he said to keep my gallbladder in.  He thinks it is just fine.  I am going to have another HIDA scan to satisfy the Lyme doctor.  Once I got past dieting, no more gallbladder pain at all.  I can eat fat all day and I do not have any issues with it.  That is as long as it is good fats, like ghee, nuts, olive oil, etc.  Still maintaining my weight.
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YEAH FOR NOT LOSING ANY BODY PARTS!!!!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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You may look upon me with sheer pity
Because my illness is something you don't get...
But as long as I am here- it is still quite clear
GOD is not finished with me yet....

You may look down on me
And think I have come to the end of my rope
But I will do what I can- and as long as I can stand
I will always have hope....

You look at me - but you can't see
What purpose for my illness there could be
Even if when you can't comprehend- On this I still depend
That God still has plans for me

I don't count me out - that is not what faith is about
Even when things you don't understand
Sometimes you just have to believe, though it's hard to conceive
That my GOD has a better plan

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