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JJR
Thursday, August 18, 2011, 4:26pm Report to Moderator Report to Moderator

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Kyosha Nim
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I know there are people on here that have been diagnosed and are fighting it etc.  I was hoping there could be a place where we can discuss it.  It's good to know how people are fighting it, what's working for them.  What symptoms they deal with, etc etc etc.  Support each other.  Pray, send good thought, whatever.

My wife and I started watching the movie "Under Our skin" and it's kind of freaky to watch.   We watched like 40 minutes and had to shift gears.  

Anyways, my first comment I'd like to make is that for some reason I feel like 2011 is the year of the Lyme for me.  I'm being treated for it.  And it had come up on the radar a couple of years ago, but my body was dealing with other issues first I think.  Or, that's how it played out with the ND I was seeing.  I think that the Lyme probably was at the core of my health problems, and it went undiagnosed.  I had been tested several times and got negative results from the average Joe Doctors.  Which we are finding out that those tests don't work.  But what hit me is that even though I think I've had it for a while, this year seemed to bring it all to the forefront.  And I see that in other people too.  I don't know what it is, but again, it just seems like 2011 is the year of the Lyme.  Among other things.  It's been a topsy turvy year, weather wise, and all kinds of things and I wonder if that has had an impact on the lyme in our systems.  Because for a while I was getting better.  And bam, it was like it reared it's ugly head big time this spring.

Anyways, the one fighting experience I have so far is I'm taking a burrelia/burgdorderi homeopath from my doctor and it brought me out of the doldrums.  I don't know if it was JUST the homeopath.  But I stopped it for a few days and after the second day of stopping it, pain starting to really take on my joints and what not and then I started the homeopath last night again and I feel better this morning than yesterday morning.  I suppose it could be coincidental, but I doubt it.  The reason I stopped the homeopath was because I felt like my spleen and lymph was getting overloaded and my doctor's assistant thought it was probably because I was killing the lyme with the homeopath, the spleen gets gummed up.  So, I have spleen supplements I'm taking, along with some mushroom type immune booster supplement called agricus bio, and a few other things.  They said I wasn't ready for Teasel yet, as it is a more powerful homeopath, but soon I will start that.  

So, am I the only one that thinks that 2011 is the year of the lyme?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Thursday, August 18, 2011, 4:51pm Report to Moderator Report to Moderator

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Chloe
Thursday, August 18, 2011, 5:03pm Report to Moderator Report to Moderator

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Kyosha Nim
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If you find Ribbit's old thread when she landed in the ER, I wrote a long post on my experience
with Lyme disease. Quite honestly, I don't mind discussing this subject if there are questions
but I have written the same story so many times, that it's too exhausting to begin again from
scratch. My experience with chronic Lyme (first tick bite with toxic reaction in 1970 but no name
for Lyme Disease known) made me realize that Ribbit had it as well....and she got tested
and sure enough....Lyme.  I had a confirmed Lyme (because I saw and removed deer tick from
my shoulder in 1990) but testing never proved Burrelia...It proved nothing conclusive due
to my past infection with Lyme....I was treated for 4 months with abx...got better and then got
much worse...Saw a master herbalist....and worked with products from Healers Who Share..

http://www.healerswhoshare.com/

I had many co-infections which showed up on bio meridian testing.  And there were combined viruses which really outweighed the bacterial issues.

Healers who share create antidote-like homeopathy that cancels out the energetic properties of
the toxin.

Supposedly it works like this
http://www.healerswhoshare.com/index.html

Did I get better?

In a word, NO!

What has helped...
Products not designed specifically for Lyme but indirectly they have been supportive.

Products like Lauricidin.  Make sure to read about Lyme   http://lauricidin.com/lyme_disease_testimonials/
http://lauricidin.com/

The reason I think this supplement is helping me is for two reasons...One is that most of my
original Lyme morphed into stealth viruses....many of which are lipid coated.  Monolaurin helps
break down the coating on these types of viruses....And monolaurin is found in coconut oil...
a diamond food for me.  Not wanting to keep going over my fat limit for the day, I switched to
using Lauricidin and except for the herxing (itching), I think it's helpful.

What else has been helpful?  Generally not a lot....except for a diet without sugar...making sure
that my organs are working and cleansing toxins.....I've gone for acupuncture (which I can't
say helped with aches and pains)..

A lot of my lyme issues became overlapped with chronic fatigue/fibromyalgia.

I have less of those symptoms while eating my SWAMI diet...I eliminated dairy because it was
setting me back....Less aches and pains since I gave it up....feel gut is improving with Genoma
Security and Gastro D.  And lately I'm eating cultured vegetables as often as I can....

I no longer see any one particular doctor/healer/alternative healer regarding my chronic Lyme
symptoms...I've had too many people who have wanted me to do chelation....(for their profit,
I'm quite sure)

I was told I had heavy metal toxicity...

SO I'm taking this product.....Pectasol.... http://www.econugenics.com/p-7.....Kn2aoCFYmK4AodRinu6g

My focus for one month is cleansing....for the next month, rebuilding...I never stay with cleansing
too long....but each time I go back to a new cleansing protocol, I seem to make greater progress.

Some months I focus on green drinks...chlorella, cilantro.....

I know I'm slightly off the track talking about Lyme, per say....because in reality, I don't think there
IS one cure for all the garbage one tick brought with it when it transferred toxins into your one
body...

I think it's a matter of building your immune system....and carefully balancing cleansing your organs
at the same time.  I haven't found one healer, one protocol that is "THE" one...I have made a lot
of progress using coconut oil....I found it very cleansing....but it's not a food we all have as
diamonds.

Right now, I'm feeling pretty well.....I have good energy, I sleep well....I'm not too achy and if I
am, I take Zyflamend....which helps with inflammation and has a lot of good herbs that are
complimentary for my blood type.

http://www.newchapter.com/zyflamend/zyflamend-easycaps

I also do oil pulling twice a day.  Does it help?  Can't say but it can't hurt.

Try everything you can think of....eventually something will be helping your body purge
toxins and make your immune system stronger.

I wish you luck




"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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JJR
Thursday, August 18, 2011, 7:09pm Report to Moderator Report to Moderator

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Kyosha Nim
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Thank you Chloe and Lola.  Yeah Chloe, I didn't want to share my whole story either because I've said it a lot and am tired of it.  I will share some of my experiences if asked though.  I'm not really asking for "give me your whole story" type thing but just where we can discuss things that come up.  

But your input is great.  A gal I know is taking something called A-L complex and I guess that's supposed to help your immune system.  And then my Doctors assistant has been dealing with this for a long time and she's taking something called a "Transfer Factor" now and I guess it's been cleaning out her liver.

I am also super sensitive to sugar.  I can't eat anything that has too much sugar.  I do eat fruits, and they're fine.  But cake and ice cream, junk food.  Ugh.  It is like eating little bits of FAIL!!!!!!  I do eat a tiny piece of chocolate twice a week.  Good quality stuff.  And the darker the better.  But very small pieces at one time.  I barely eat any honey as it is.  Stevia seemed to work in the past, but I basically gave it up, because I'm just not sure about it.  I was eating it too much probably.  I got used to the flavor.  It may be that it's not too bad though.  I'm still undecided on that one.  And despite Agave being so controversial, when I did use it in a cake for a treat that I home made, it seemed to work well.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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nowishow
Thursday, August 18, 2011, 8:04pm Report to Moderator Report to Moderator

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Quoted from JJR
A gal I know is taking something called A-L complex and I guess that's supposed to help your immune system.  And then my Doctors assistant has been dealing with this for a long time and she's taking something called a "Transfer Factor" now and I guess it's been cleaning out her liver.

I am also super sensitive to sugar.  I can't eat anything that has too much sugar.  I do eat fruits, and they're fine.  


I've taken A-L (and A-Bab and A-Bart as well). It is specifically for Lyme disease. A-Bab is for Babesia, which I tested negative for in the lab, but my doctor says that I have the greatest "load" of Babesia infection. He says I also have Bartonella and "Lyme" (Borrelia burgdorferi ). All three of these infections came with one tick bite. So he started me with A-Bab and after some months my "symptom picture" changed and he switched me to A-Bart. Then a few months later my "symptom picture" changed again and he switched me to A-L. A month ago I started having the Babesia symptoms again and so I'm back on A-Bab.

I really like these remedies and find that they are helping me a lot. I didn't start out with them so I have something to compare them to. They are not the only thing that helps me for sure, but I do recommend them. But, you have to use the right one for you, at the right time, and that may be a little tricky. Here's where you can read about them a little.

http://www.faim.org/newfrontiers/byronwhiteformulas.html
By the way my doctor wrote this article, Dr. Wayne Anderson

http://bioresourceinc.com/bwherbal/


I am also very sensitive to sugar, just a little agave or blackstrap molasses from time to time. And I do eat some dark chocolate on occasion, but I have to be craving it.  


"Anxiety is the gap between now and then"

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Goldie
Thursday, August 18, 2011, 9:30pm Report to Moderator Report to Moderator

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nothing to add but it's a good idea.. lets discuss..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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JJR
Thursday, August 18, 2011, 10:56pm Report to Moderator Report to Moderator

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Kyosha Nim
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Nowishow, that was a great post and I got a lot out of it.  I was wanting to study up on the A-L complex and you gave me the link!!!  Ask and ye shall receive. I'm going to run those past my doctor also.

One thing I'm having a challenge doing lately is keeping my spleen cleansed.  It seems like when I kill the stuff, my spleen hurts and lymph gets sluggish.  Lemons are bothering my stomach.  I did juice some carrots and am trying to keep hydrated.  And I made some broth the other day, but it seemed like it wasn't sitting right with me.  So I haven't had too much.  Any other ideas?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Andrea AWsec
Friday, August 19, 2011, 12:05am Report to Moderator Report to Moderator

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MIFHI

"Do not try to satisfy your vanity by teaching a great many things. Awaken people's curiosity. It is enough to open minds; do not overload them." Anatole France

"Healthy people have the least overt symptoms from eating avoid foods." Dr. D'Adamo
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Ribbit
Friday, August 19, 2011, 3:40am Report to Moderator Report to Moderator

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I woke up this morning with my legs aching like they haven't ached in a long time.  The bottoms of my feet (right across that padded part between the toes and the arch area) were puffy and I had to hobble around for a few minutes.  That's nothing new, but it reminded me that I'm better than I was.  

I don't like being like this.

I can't think.

I can't remember anything.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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JJR
Friday, August 19, 2011, 3:56pm Report to Moderator Report to Moderator

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Ugh.  I've seen you say this a lot lately and I'm concerned.  The thing about not remembering.  I have this thing where I can't figure out the words I want to say right away sometimes.  And I'm like Aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaah.  I don't know if that's this deal, or just life in general.  I'll be saying a prayer for you.  But yeah, yesterday the pain in my knees was worse than I've ever had it before and my feet too have even felt kind of hot at times.  Which is kind of weird for me.  I swear it's something in the air this year.

I'm praying for you Leanne.  How is your spleen?  Do you ever feel like it gets gummed up and hurt?


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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ABJoe
Friday, August 19, 2011, 4:17pm Report to Moderator Report to Moderator

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Quoted from Ribbit
...but it reminded me that I'm better than I was.  

I don't like being like this.

I can't think.

I can't remember anything.

None of us like these feelings.  I never realized until I started eating per BTD that it wasn't totally normal to lose concentration often and have to refresh short term memory frequently to remember anything...  
Unfortunately, detox keeps bringing these feeling back to me, so until I get the junk out of my body, I'll continue to experience this...

JJR,
I have hot, painful spots (zones) wherever the detox and healing is taking place...  Just part of the fun.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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JJR
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Yukee.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Sunday, August 21, 2011, 3:40am Report to Moderator Report to Moderator

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Kyosha Nim
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Somebody had started a thread that I thought was interesting and I'm curious as if any of you have this symptom.  Do you ever get muscle twitches and stuff?  I've been getting one on my left arm for quite a while on a somewhat regular basis.  Not like all the time but it happens at least once a day.  And sometimes my stomach will twitch.  Almost like the vegas nerve is unsettled.  I have gotten that after doing something more strenuous than I should have maybe.  Which doesn't take much lately.  last time it happened was about 3 months ago and I was taking the oil filter off of the riding lawn mower.  It took all my strength to loosen it and it threw me for a loop for that afternoon and my stomach gets all twitchy.  And I get cold.  Does that happen with anyone else?

Seems to me like that's a neurological symptom.  I don't know.  I used to lay down at night and just feel my stomach twitching all over the place.  But back then it wasn't necessarily because I over did it.  It just happened a lot.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Goldie
Sunday, August 21, 2011, 11:22am Report to Moderator Report to Moderator

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Sam Dan
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Neuropathy is a strange thing and in a way we hardly talk about it.. I think your symptoms are early signs, in need of a chiro adjustment? or acupuncture.. or ignore it unless it hurts.. and even then there is not much other then diet to make it better.. going sugar free seems to help.. do you have numb spots anywhere -sore to the touch?  Like nerves standing on edge??


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kim
Sunday, August 21, 2011, 2:49pm Report to Moderator Report to Moderator

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Quoted from JJR
Somebody had started a thread that I thought was interesting and I'm curious as if any of you have this symptom.  Do you ever get muscle twitches and stuff?  I've been getting one on my left arm for quite a while on a somewhat regular basis.  Not like all the time but it happens at least once a day.  And sometimes my stomach will twitch.  Almost like the vegas nerve is unsettled.  I have gotten that after doing something more strenuous than I should have maybe.  Which doesn't take much lately.  last time it happened was about 3 months ago and I was taking the oil filter off of the riding lawn mower.  It took all my strength to loosen it and it threw me for a loop for that afternoon and my stomach gets all twitchy.  And I get cold.  Does that happen with anyone else?

Seems to me like that's a neurological symptom.  I don't know.  I used to lay down at night and just feel my stomach twitching all over the place.  But back then it wasn't necessarily because I over did it.  It just happened a lot.


Muscle twitching can be from magnesium deficiency.  Increase your magnesium and see if it helps.  

I get a vibrational muscle thing going on in my chest, arms and sometimes legs.  It literally feels like I am shaking on the inside but there is no shaking on the outside.  It is definitely neurological.  

I would mention the twitching to your ND.  Is it possible you could also be reacting to one of the homeopathics you are taking?
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ABJoe
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I used to have muscle twitches quite regularly, although I don't remember if it was before or after BTD...  I had twitches in the arms and in the corner of my eyes.

I get temperatures differences all over...  There are times when I will have hot spots, cold spots or both at the same time...  The body is definitely controlling the temperature in different zones differently.  Sometimes I need to move to eliminate a fixation, but quite often, I just need to allow whatever is happening to happen and everything evens out.  I just ride along...      


RH-, ISTJ
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JJR
Sunday, August 21, 2011, 7:14pm Report to Moderator Report to Moderator

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I haven't supplemented magnesium for a while.  My body is not wanting it.  I don't think.  I think it's something else.  Possibly.  And it's more than a chiro adjustment, imho.  But, I'm not really sure.  Ever since I've had problems, I feel like my vegas nerve has always been messed up.  A chiro I used to go to would put me on this machine and my vegas nerve was always something that came up.  It seems like it's been better.  But, like I said when I push myself, is when I get the stomach twitchies.  The arm thing is just something that seems to be consistent lately.  It's no big deal, but just curious if others deal with it too.  

And Joe, I think you might've been right about how I felt Wednesday.  It seems like ever since that day, which I felt awful and had awful pain, I've been getting a little better.  And with less supplementes.  I didn't take the homeopathic for lyme last night and I feel pretty good.  I'll see what I need tonight.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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JJR
Monday, August 22, 2011, 3:47pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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NowIshow, thank you so much for linking these formulas and the information.  I'm really thankful you took the time to do that.  I'm asking my Doctor about them and we may order them.  They didn't know about them.  They look like they could be potent.  Does your doctor use antibiotics with these?  A gal I know is doing both.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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deblynn3
Monday, August 22, 2011, 4:27pm Report to Moderator Report to Moderator

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My eyes would twitch, part over use. but read someplace to take B's and B12 in particular. Haven't had the twitches since I went on the B's


Swami, 100% me..
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nowishow
Monday, August 22, 2011, 7:25pm Report to Moderator Report to Moderator

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Quoted from JJR
Nowishow, that was a great post and I got a lot out of it.  I was wanting to study up on the A-L complex and you gave me the link!!!  Ask and ye shall receive. I'm going to run those past my doctor also.

One thing I'm having a challenge doing lately is keeping my spleen cleansed.  It seems like when I kill the stuff, my spleen hurts and lymph gets sluggish.  Lemons are bothering my stomach.  I did juice some carrots and am trying to keep hydrated.  And I made some broth the other day, but it seemed like it wasn't sitting right with me.  So I haven't had too much.  Any other ideas?


I really like Red Root tincture. It really helped me a lot. I had tremendous spleen pain for a while. I'm still taking the Red Root even thought I haven't had the spleen pain for a while. It's just good maintenance for us "Lymies".

I also highly recommend clay baths or "soda baths". I get so much help from them if I take them once or twice a week.

Soda Bath

1/2 box Borax (about 6 cups)
3 cups baking soda
2 cups cornstarch

Dissolve in lukewarm water (NOT HOT) and soak for 35 minutes. Put as much of your body in as possible. Rinse after but do not wash.


"Anxiety is the gap between now and then"

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nowishow
Monday, August 22, 2011, 7:28pm Report to Moderator Report to Moderator

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Quoted from JJR
  I have this thing where I can't figure out the words I want to say right away sometimes.  And I'm like Aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaah.  I don't know if that's this deal, or just life in general.  I'll be saying a prayer for you.  But yeah, yesterday the pain in my knees was worse than I've ever had it before and my feet too have even felt kind of hot at times.  Which is kind of weird for me.  I swear it's something in the air this year.


I have trouble finding words when I'm feeling really bad as well. I'm pretty sure it's trouble with the vargus nerve. So many of my symptoms stem from there.

Hot feet can be a sign of Bartonella


"Anxiety is the gap between now and then"

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nowishow
Monday, August 22, 2011, 7:32pm Report to Moderator Report to Moderator

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Quoted from JJR
Somebody had started a thread that I thought was interesting and I'm curious as if any of you have this symptom.  Do you ever get muscle twitches and stuff?  I've been getting one on my left arm for quite a while on a somewhat regular basis.  Not like all the time but it happens at least once a day.  And sometimes my stomach will twitch.  Almost like the vegas nerve is unsettled.  I have gotten that after doing something more strenuous than I should have maybe.  Which doesn't take much lately.  last time it happened was about 3 months ago and I was taking the oil filter off of the riding lawn mower.  It took all my strength to loosen it and it threw me for a loop for that afternoon and my stomach gets all twitchy.  And I get cold.  Does that happen with anyone else?

Seems to me like that's a neurological symptom.  I don't know.  I used to lay down at night and just feel my stomach twitching all over the place.  But back then it wasn't necessarily because I over did it.  It just happened a lot.


I don't get a lot of muscle twitching but it's a typical Lyme symptom. I get a vibrating feeling most of the time in my chest which is also very typical. I get very cold and then usually burst into a sweating fever. But sometimes I'm just cold for a long time. Temperature control problems I believe are caused by hormonal imbalances and the short fevers are the body trying to kill the infection.



"Anxiety is the gap between now and then"

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nowishow
Monday, August 22, 2011, 7:38pm Report to Moderator Report to Moderator

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Quoted from JJR
I haven't supplemented magnesium for a while.  My body is not wanting it.  I don't think.  I think it's something else.  Possibly.  


Try Magesium Glycinate (most recommended for Lyme patients) and/or topical magnesium.

http://www.iherb.com/Bluebonnet-Nutrition-Chelated-Magnesium-90-Vcaps/14198?at=0

http://www.magneticclay.com/store/magnesium-oil-ancient-minerals-8.aspx


"Anxiety is the gap between now and then"

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nowishow
Monday, August 22, 2011, 7:42pm Report to Moderator Report to Moderator

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Quoted from JJR
NowIshow, thank you so much for linking these formulas and the information.  I'm really thankful you took the time to do that.  I'm asking my Doctor about them and we may order them.  They didn't know about them.  They look like they could be potent.  Does your doctor use antibiotics with these?  A gal I know is doing both.


I only used antibiotics for 1 month at the beginning. But, that's a personal choice. I belive you can use both at the same time, but I'm not sure. The Bryan White formulas are very potent. I had to start out one of them one drop every other day. I've never gotten higher than 6 drops twice a day or I would herx too much. Are you familiar with the term "herx"? I'm very sensitive though so you may need more.


"Anxiety is the gap between now and then"

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JJR
Tuesday, August 23, 2011, 12:48am Report to Moderator Report to Moderator

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Kyosha Nim
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No, I'm like you.  Super sensitive.  Any supplement people tell me to take, I take a small fraction, very small fraction in the beginning to see what happens.  Sometimes, even my fractions send me for a herx loop.  I'm guessing this is a symptom of lyme too, because before all my problems, I would not use the word "sensitive" for my digestion or any part of my system, except maybe some emotions.  I used to be "iron gut".  So, I'm sure the lyme does that.  Or any other bad bacteria that gums up your digestion.

I'll check out that magnesium and seven million thank you's to your help.  This lyme thing is new to me.  How are you doing?  Do you feel like you're winning the battle?  I had felt like that at one time before figuring out the lymes, but this year has been a big setback.  But it got me to start digging more.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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