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Fibromyalgia questions   This thread currently has 2,311 views. Print Print Thread
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deblynn3
Saturday, October 22, 2011, 5:37pm Report to Moderator Report to Moderator

GT2 Gatherer rh+;Prop-Taster
Ee Dan
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I'm reading and hearing more how one health issue is connected to another.  This same friend (O type) was asking about restless leg syndrome. I found some information, which said being anemic could cause it.   Later she called and said she was in fact anemic and they were looking into it.   I remember that O's have a problem with ulcers.  Well sure enough she ended up in the ER with ulcers. Total time frame was about 2 1/2 yrs. wish we could have connected the dots sooner.


Swami, 100% me..
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Symbi
Sunday, October 23, 2011, 3:14am Report to Moderator Report to Moderator

AO + MN Super-taster SWAMI-X Explorer
Ee Dan
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Yep Deb some day doctors will catch up to top down grouping of types of peple and their health issues and linked health issues (sorry sure there's probably better wording for that?)  A better word is BTD/GTD!

Magnesium deficiency is linked with fibromyalgia (studies showed low levels in blood of FM patients) and restless legs syndrome too.  Magnesium has helped my vascular / migraine headaches and helped me sleep better reduced pain overall.  It's difficult to absorb though from supplements.

Malic acid found in lemon juice / apple juice also helps clear lactic acid.  One theory is that anaerobic exercise (not getting enough oxygen to muscles) causes lactic acid buidup and FM pain.  Malic acid helps clear that.  Helping me lately also trying to avoid that type of exercise like sprinting up hills = bad  .


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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TJ
Sunday, October 23, 2011, 6:10pm Report to Moderator Report to Moderator

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Kyosha Nim
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Location: Midvale, UT, USA
Age: 39
Quoted from 16634
Well this guy told me I was lazy, and that was the answer to my problems. He told me to kick my expletive deleted and get a job. Okayyyy ...

I felt so insulted....

The doctors here in France seem so retarded, they don't know what they're talking about. And I feel so alone.

I want a diagnosis, to be able to tell people "that's what I'm suffering of". Because I can't stand anymore to be seen as a lazy girl who doesn't want to work.
My suffering is real.
LittleMarmotte,

It's not just doctors in France!

It is not possible to prove to other people that there is anything wrong with you.  They can either choose to believe, or choose not to.  And you can tell them that, too!   Whether or not they believe you says more about them than it does about you.  Trials like this show you who your true friends are.  Hold on to the people who trust and support you, and avoid (as much as possible) the people who don't.
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ruthiegirl
Sunday, October 23, 2011, 6:22pm Report to Moderator Report to Moderator

SWAMI O+ Gatherer, Healing from Fibromyalgia
Kyosha Nim
Columnists and Bloggers
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Location: New York
Age: 42
My health is a huge puzzle. I keep finding more pieces, but there's never been a huge "aha!" moment where everything just fit together and suddenly I was healthy, strong, and energetic again. There were a few big discoveries (such as giving up wheat) that gave dramatic effects, but nothing is 100%. It's a process, and I'm still learning and growing and healing and trying to fit more puzzle pieces together.

I'm trying to figure out all my fibro triggers so I can avoid them. With SWAMI, I think I've identified all my food triggers,  but that's not everything. I can get into a fibro-flare from too much stress, or from over-exercising. Yes, exercise is important, but I need to be very careful. Doing too much, too soon can cause me real damage. I'm definitely  benefiting greatly from dietary changes, as I'm no longer taking any pain meds on a regular basis. I still have "bad days" but overall I'm doing much better than I was.

I also take some supplements to help (vitamin D, vitamin B complex,magnesium, and 5-HTP) but those may not be the exact supplements that you need.

I completely understand about "nobody understanding." I was very, very lucky that I found a rheumatologist who diagnosed me right away. I figured out from online conversations that I might have FMS; I was talking to an online buddy with FMS (fibromyalgia syndrome) and asked her about her symptoms. When I realized I had the same symptoms, I told my dr I suspected I had FMS, she refered me to a rheumatologist, and he diagnosed me on my very first visit. I've had people "not beleive I was sick" but I've never been treated rudely by a doctor.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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Chloe
Sunday, October 23, 2011, 7:02pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Symbi
Yep Deb some day doctors will catch up to top down grouping of types of peple and their health issues and linked health issues (sorry sure there's probably better wording for that?)  A better word is BTD/GTD!

Magnesium deficiency is linked with fibromyalgia (studies showed low levels in blood of FM patients) and restless legs syndrome too.  Magnesium has helped my vascular / migraine headaches and helped me sleep better reduced pain overall.  It's difficult to absorb though from supplements.

Malic acid found in lemon juice / apple juice also helps clear lactic acid.  One theory is that anaerobic exercise (not getting enough oxygen to muscles) causes lactic acid buidup and FM pain.  Malic acid helps clear that.  Helping me lately also trying to avoid that type of exercise like sprinting up hills = bad  .


good point, Symbi....that lactic acid issue....It might be why aerobic exercise has helped me
so much....It does get oxygen to the muscles...In addition, I eat an apple every day...high in malic acid too....
Here are other foods high in malic acid.

http://www.livestrong.com/article/203551-natural-sources-of-malic-acid/



"The happiest people don't have the best of everything.....they know how to make the best of everything!"
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Symbi
Monday, October 24, 2011, 1:29am Report to Moderator Report to Moderator

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Ee Dan
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Cheers Chloe - In the bad old days I used to get sore and crave salt and vinegar chips and swore they helped me (except the excess stomach acid anyway lots of malic in them.  Didn't know about the other fruits in your link there eat lots of em, pineapple (the least often cos it sometimes hurts my mouth great on spelt pizza tho  ), apricot (near daily) and raspberries.  No wonder I'm feeling good lately  

Yeah! To no pain meds Ruthie!  A smart one like you'll figure out the puzzle one day.

Love your post TC!  A doctor told me the same thing the other day that all I need is a job, used to get angry but now just accept it.  Everyone has opinions just like #@$# holes but doesn't mean I have to listen or care what they say.  Hate when they poo poo your pain which they probably couldn't stand themselves.  Just don't want to admit they don't know the answer and can't help.  (I believe wisdom starts sometimes with "I don't know".)  Natural medicine though can help so many times.


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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TJ
Monday, October 24, 2011, 2:17am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from ruthiegirl
My health is a huge puzzle. I keep finding more pieces, but there's never been a huge "aha!" moment where everything just fit together and suddenly I was healthy, strong, and energetic again. There were a few big discoveries (such as giving up wheat) that gave dramatic effects, but nothing is 100%. It's a process, and I'm still learning and growing and healing and trying to fit more puzzle pieces together.
I couldn't have said it better about myself.
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Bekki Shining Bearheart
Tuesday, January 17, 2012, 4:34am Report to Moderator Report to Moderator

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Several type Bs I know saw improvement when they stopped eating wheat/gluten.
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AKArtlover
Tuesday, January 17, 2012, 7:58pm Report to Moderator Report to Moderator

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Kyosha Nim
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Location: Midwest, US of A
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A few massage therapists in a class told me about 85% of their female fibro clients had sexual trauma in the past. A few mental health people brought up a similar thing in a conference yesterday. I'm just adding this in the mix because it seems there is a big emotional component.

Feeling very blessed to have learned about Splankna....

http://splankna.com/
God is amazing and the best healer!


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
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Rev144
Wednesday, January 18, 2012, 2:36am Report to Moderator Report to Moderator

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I heard a while back on a radio talk show, When they put you under while having surgery, that the anesthesia has fluoride in it. The fluoride does some evil things to your body.  One of the side effects is FM.  I do not know this for a fact, just what the doctor said .  It might be worth investigating.  

I just read a book about a lady who had FM so bad that she had to move back in with parents, was bed ridden and it took her 3 months on a organic juice diet to start feeling better.  She only drank juice from a juicer, giving her body the energy it needed to heal.
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ruthiegirl
Wednesday, January 18, 2012, 5:27pm Report to Moderator Report to Moderator

SWAMI O+ Gatherer, Healing from Fibromyalgia
Kyosha Nim
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I wonder what blood type she was. I can't imagine subsisting on only juices for 3 months, even organic, freshly squeezed vegetable juices. I need meat for energy!


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  13yo B+ Jack


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AKArtlover
Thursday, January 19, 2012, 1:59am Report to Moderator Report to Moderator

centered leaning INTP Explorer, Supertaster, SWAMI
Kyosha Nim
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take care if fasting more than a day.
protein deficiency is something to look out for/muscle wasting.


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
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