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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  Kidney Abscess: Any suggestions? was:stroke victim
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Kidney Abscess: Any suggestions? was:stroke victim  This thread currently has 4,205 views. Print Print Thread
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Lola
Thursday, April 14, 2011, 4:03pm Report to Moderator Report to Moderator

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wish we could all help you out!
you are a magnificent son!
more power to you!


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Goldie
Friday, April 15, 2011, 2:13pm Report to Moderator Report to Moderator

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see what they say but liten to rules and requirements they may have to fullfil..

maybe taking her home for just a few days is enough to get her re-admitted starting the days in hospital a new..

you have some leverage about the MRSA ..like better home care.. just do not be afraid to think, argue, and listening asking questions twice or trice..    


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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greenman
Monday, April 18, 2011, 3:41pm Report to Moderator Report to Moderator

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Just another update:
I am still awaiting to see the medical team to discuss my mother.
The physiotherapists in the hospital have decided not to work with her anymore.
They say she is not showing any improvement and is not trying hard enough.
This to me is a cop-out.
My mother has been almost bed-ridden or chair ridden since 20th december 2010.
She has a history of falls, and therefore suffers fear. They tell me that she did not have a stroke.
She is tired all the time and weak. Taking these into consideration then if I were her tired, bedridden for 3.5 months adn a history of falls then I as a 40 something may not be great at physio either.
She has always had trust issues and hates being ordered to do something as the physio's do.
I actually noticed her in a different bed in the hospital which had a hoist over the bed and she was grabbing the bar and pulling herself up when no one was looking.
The physio kept using the phrase 'cognitive' to me, and saying if she's not trying then it's a waste of resourses.
My mother is a fighter, and has proven this by surviving through these health problems, hopefully she will walk again. I hate this 'give-up' mentality that I am meeting in the health service.
They still have not given me a reason as to why she cannot walk, and are now more or less blaming her for not trying hard enough.
I cannot feed her (BT) as she is in hospital.
I will have to use a nursing home as due to her lack of mobility then I cannot look after her 24-7 which she needs at present. She hates the idea of a nursing home. My feeling is at present and I hope that I am wrong is that she will lose all hope if she is a Nursing Home.
Any advice as always appreciated.
Thanks again for all your concern and good wishes. I feel on this notice board that I have an army of support behind me.
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Goldie
Monday, April 18, 2011, 6:48pm Report to Moderator Report to Moderator

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OK.. so lets say she is not liking a nursing home.. so threaten her with it as a means to get her out of bed.. she must be willing to walk.. not far. but walk.. get hold of a wheel chair.. stand her up and have her walk with a wheelchair .. the stand up position is more natural.. walkers are self destructive in my mind.. they bend you over to much.. get her to use a cane to lift a can of beans.. anything she can lift.. and balance over head.. yes maybe tak a different track.. and make them discuss things with her and you in the same room.. make waves, with her and them, be patient but never give up.. and just maybe she knows that you can not care for her so maybe she does not want to burden you.. all kinds of c**p going on in her mind and yours and theirs.. get it on the table. get her to fight.. let her annoy you  but don't take it personal.. get her dander up, and love her for responding.. all the best ..

and if you can not do anything else, then give her vegetable juices as many as she can tolerate.. should have done this all along .. much of what she likes, all with love..    


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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greenman
Friday, May 6, 2011, 1:01am Report to Moderator Report to Moderator

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[/color]Hi all, just to update you again,
Thanks for all your support,
My mother has been ill, she has a kidney stone and a chronic kidney (left)
I met with the geriatric consultant today and was very dissapointed
I listed her symptoms,
cannot walk, could walk previously, to be expected his answer she is very sick.
cannot see from time to time to be expected given how sick she was
went through all the symptoms, remidned him all the time that she was fine before she came in decemeber and in my opinion was discharged too early and caused all the problems [color=green]
no reply just she needs long nursing home care
I am getting no help for her from the medcial system at all.
UNfortunealtely theynare all quacks here in ireland, an absolute disgrace
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Lola
Friday, May 6, 2011, 2:56am Report to Moderator Report to Moderator

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don t forget yourself while in this process....
you need to be strong and build up your immunity to cope with all adversity


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Lola  -  Tuesday, November 15, 2011, 10:40pm
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Vicki
Friday, May 6, 2011, 4:15am Report to Moderator Report to Moderator

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Ask your mother what she would like to do?
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greenman
Friday, May 6, 2011, 9:23am Report to Moderator Report to Moderator

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Hi Vicki
My mother wants to walk again and go home and get her life back.
She is unwell and weak and needs to be hoisted in and out of bed.
At the moment she needs 24 hour care. I cannot do this at home and there is very little support to do this.
This pains me to say this.
I am very dissapointed that the doctors in the hospital have given up on her.
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Goldie
Friday, May 6, 2011, 11:34am Report to Moderator Report to Moderator

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please look at your private messages above..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

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Goldie  -  Friday, May 6, 2011, 8:21pm
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greenman
Monday, November 14, 2011, 9:58pm Report to Moderator Report to Moderator

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I suppose it has been too long since I posted in this Subject.

My mother has had many hospital visits since my last posts.

The doctors don't seem to know what is going on.
There is severe confusion as many consultants say the opposite to others.

my mother is in a nursing home now.
She still suffers from uti's. One of her main problems is dehydration. She is at the stage where she cannot feed/hydrate herself. She refuses water and food and finds it hard to open her mouth fully.
I stand by her for hours trying to give her water. The water has to be thickened in order that it does not go into her lungs. Half of the water (even small sips) spills out of her mouth.

Other than an iv drip, I am basically looking for suggestions as to what I can add to the water to help her to be more hydrated if there is such a substance. any ideas will be much appreciated.

I will post again as to the arguments and opinions that I have had with various hospital consultants. You probably will not believe them as they contradict what I have posted previously. I.e one consultant said there was a large kidney stone and that it needed to be stented, anoher consultant said there was no kidney stone at all. Anyway I am worn out with that and have come to the conclusion that they cannot diagnose her at all. It became stupid as I was seen as a villan for questioning them, rather than they doing their jobs and finding out what was wrong with her.

Any suggestions on hydration would be appreciated. Thanks
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Goldie
Monday, November 14, 2011, 11:48pm Report to Moderator Report to Moderator

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I wish you all the best in the care of your mom.  Is she still far away? what does she wish for??  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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ABJoe
Tuesday, November 15, 2011, 12:52am Report to Moderator Report to Moderator

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Quoted from greenman
The doctors don't seem to know what is going on.
There is severe confusion as many consultants say the opposite to others.

my mother is in a nursing home now.
She still suffers from uti's. One of her main problems is dehydration. She is at the stage where she cannot feed/hydrate herself. She refuses water and food and finds it hard to open her mouth fully.
I stand by her for hours trying to give her water. The water has to be thickened in order that it does not go into her lungs. Half of the water (even small sips) spills out of her mouth.

A stroke is difficult to assess since it can cause such varying levels of injury.  Some strokes can be almost completely recovered from, while others there is negligible recovery.  This may be why you are getting such varied responses from practitioners.

I know from talking with my mother, who was caring for my father after his stroke, that he complained about the taste of the commercial thickener in fluids.  I don't know that she ever found anything else to use, but the taste was a motivator for Dad to make the throat muscles work again, so he didn't have to continue with the thickener.

There may be no alternative to an IV at this time for your mother.  When the mouth gets dry and cracks, it is painful to open or close, so she will be reluctant to open wide or close to seal it to keep from dripping the fluids back out.  If she isn't getting adequate fluid levels in, she can't have adequate discharge, which will lead to continual UTIs.

I hope for the best for both of you.  


RH-, ISTJ
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greenman
Tuesday, November 15, 2011, 1:54am Report to Moderator Report to Moderator

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thanks for your answers and well wishes.
She has had 2 small tia's in the past.
The story is the nephologist says that the kidneys have been badly damaged.
The urologist says that the kidneys are fine and he thinks the problem is with the pancreas.
My opinion is that there is obviously an underlying medical condition ( I don't know what it is) causing a serious problem and that they have been unable to find it.
Example Nephrologist says 'your mothers left kidney is so small it is severely damaged'
Urologist says 'your mother has a small kidney, nothing unusual, I had a camera all the way to the top of it and found no blockages'

As I said in previous message there is a major problem with hydration. Abjoe makes a good point if you are dehyrated then you don't want to open mouth fully. Makes alot of sense (more than the doctors).

Goldie, I am still in the same town as her, fought against a nursing home far away. She really wants to get better but is exhausted all the time. (I know dehyration can cause this) She tells me she misses her freedom and independence and more importantly she wants them back. I don't know if this will happen but her fighting spirit keeps me going.Goldie I thank you as always for your continued support as I thank everyone on this forum.

It's strange but I feel that I get more strength from her than I give to her, and I really want to give her strength. She keeps me going through these hard times with support and pure attitude to want to get better against the odds.

They give me figures about kidney output etc gettin better but I can see that she is still dehydrated even though the 'figures' are improving. I can see from a human being point of view as against medical that she is dehydrated. As someone said it's a vicious circle dehydration= uti's (especially in elderly)

just want to find a way to keep her hydrated.
She tells me that she feels thirsty all the time.

As my friend said in 2011 so one in the free world should die of dehydration, my mother will battle on, hopefully with your help which has always been great.
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Goldie
Tuesday, November 15, 2011, 1:43pm Report to Moderator Report to Moderator

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maybe ice cubes chopped made out of cranberry juice might work better as it would melt slowly.. ?  can mom sit up to drink?   is she getting up out of bed?  That seems to be the biggest goal always.. it provides for some independence and some dignity...  

My mom used he cane to balance in the air in this hand in that hand, on her foot, both hands over head sideways any way she could to get strength back.. I am certain that it helps with throat muscles as well.  

Have the doctors given you time tables? DO you trust one person, a nurse or someone that will be honest and give you a place from which to start.  

Having seen the decline in weight is hard to look at, but then it seems from what you said, she seems to be over the worst HEALTH wise.. then it becomes a question of will.  Mom seems to want to get better/independent - work with that.  Important for that is having Pull ups underpants, to make her feel secure enough to get up.  Nothing is so unsettling as not knowing what might happen otherwise and the humiliation is enough to keep one in bed.  Getting dressed into pretty clothes is important.  Comfortable nightgowns/washable dresses are important even if you have to ask for the tubes to be adjusted.  Doing her hair, washing as frequent as she used to is a good stimulator.  Never be afraid to move her from this to that position, foot rubs are cruel, as the bones will deteriorate if she does not get to stand on the feet.  even pressing one foot against the bed frame is a must.. a few times a day makes all the difference.  Some of these things You are the one to do it as they will not have time to do it all.  Ask for physical therapy to help, or get the answer that will tell you that it is to late.(sorry)  have friends visit her as often as you can get them there.  Better she pass on exhausted and bothered, then just waiting, having nothing else to think about..  

Does she have a feeding tube, or just fluids in her arm?    she ought not be thirsty if they feed her.. be specific is she thirsty or her mouth is dry...  use soft cream on the inside and up the nose to.. can she do it for her self? creaming up her own arms will be exercise also.  if she can  a nice foot bath is pleasure to keep a moment more interesting.  bring photos from home in a way so she can see them and talk about old times...  

I have a million questions I would like to have asked.. like where did you meet dad, what as the moment I was conceived? Who, what where, when.. keep her busy thinking..  cook for her even if you have to mash the food.. she might at least enjoy the taste, even if she has to spit it out.

sorry to be so graphic..    
  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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nowishow
Tuesday, November 15, 2011, 9:38pm Report to Moderator Report to Moderator

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It's so very hard to watch our loved ones suffer. I was I could offer some help, but I have no experience with these problems. You and your mom are in my thoughts and in my heart. I am wishing the best for both of you.


"Anxiety is the gap between now and then"

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deblynn3
Tuesday, November 15, 2011, 10:19pm Report to Moderator Report to Moderator

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I skipped the last few post, so hope I'm not out of place here.  I'd put something maybe blackstrap molasses in the liquid stuff. It is undrinkable as is. We got rid of it with grandma, she would not drink it. Our nursing home nurses where much better that those at the hospital. We gave them frozen concentrate juice and they would fix it for her by not adding the full amount of water this would made it syrupy she liked that. We were not concerned about calories and she wasn't on BT so we gave her a lot of jello and my dad brought her fruit pops.

We had some good laughs and some very sad times.  Take care of yourself, these can be trying times for you both.

After reading I wonder if you could put BT protein powder in her juice?  Would they let you?

{{{hugs}}} for you both


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Mickey
Wednesday, November 16, 2011, 4:38am Report to Moderator Report to Moderator

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Quoted Text
After reading I wonder if you could put BT protein powder in her juice?  Would they let you?

Great idea Deblynn!

I wonder if the BT green powder would also be a good idea for her, i think it's the harmonia?.  Sorry i've never had it but i know they sell one.

Keep up the great work Greenman!  


"Let food be thy medicine"

Dr. D has said many times that it's not about what you don't eat but what you do eat that makes the difference.  "Quoted by Jane"
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ruthiegirl
Wednesday, November 16, 2011, 9:21pm Report to Moderator Report to Moderator

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(((hugs)) it's hard to watch somebody you love struggle so much.

It sounds to me like she needs to get  IV fluids, at least temporarily, to get rid of the dehydration and allow further healing to take place.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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greenman
Thursday, November 17, 2011, 8:10am Report to Moderator Report to Moderator

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Thanks for all your support.
Yes It is hard watching someone you love and who brought you into the world suffer.
Her right leg moved slightly for the first time in weeks yesterday.
From what i can see hydration is key. When she goes back to the nursing home I can threaten, badger, them etc to keep her hydrated but unless I am there the whole time, I cannot guarantee that she will be hydrated.

As always you have been wonderful in your support and I get great strength from you all, as I do from my mother.
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greenman
Sunday, December 11, 2011, 11:06pm Report to Moderator Report to Moderator

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Today at lunchtime my mother went to a better place where she now knows the big secret.
She went with dignity, bravery and peacefully.
Thank you all for all your thoughts, helpfulness and support.
We appreciated it and will remember it forever.
Unfortuneately the modern medical profession never got to the root of her illness.
Again I say thank you and am so sorry and regretful that the world no longer has a real lady, a wonderful mother and a true friend.
Thank you all
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deblynn3
Sunday, December 11, 2011, 11:55pm Report to Moderator Report to Moderator

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Greenman, I'm sadden that you've lost what must have been such a lovely lady. May you find comfort in all the sweet memories of her life.  We never forget such people that have affected our own lives with their grace, and goodness.  Their words and deeds become an part to our lives and lives of our children.  {{{{hugs}}}}}


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ruthiegirl
Monday, December 12, 2011, 3:51pm Report to Moderator Report to Moderator

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I'm so sorry for your loss.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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O in Virginia
Monday, December 12, 2011, 6:37pm Report to Moderator Report to Moderator

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Greenman, my sincere condolences to you and your family.  I'm so sorry.  ((Hug))
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greenman
Tuesday, December 13, 2011, 12:43am Report to Moderator Report to Moderator

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thank you all for your kind thoughts and words
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nowishow
Friday, December 16, 2011, 8:12pm Report to Moderator Report to Moderator

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I just came across this update. I'm so sorry for your loss. My heart goes out to you.


"Anxiety is the gap between now and then"

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