Postural Orthostatic Tachychardia Syndrome

My EP doctor says this is what I have and wants me to take Mestinon or Pyrodistigmine. He did admit they don't fully understand it and it's possible some of the other things I'm dealing with are causing it.  But not knowing which thing to fix as a cardiologist, he said the drug will hopefully help.  Or, it could cause diahrrea and muscle weakness.  Great, just what I need.

It does sound like what I have, due to how I feel and the tests they ran showed that.  The tilt table, and I noticed in one of the doctors office down at mayo she took my blood pressure sitting and then standing and I noticed it had gone down about 15 points while standing.  

This website shows more about it:

http://www.dinet.org/pots_an_overview.htm

Including the fact that being low in nitric oxide can cause it.  Ding Ding.  I may have to get some from Dr. D and see if it helps.  I don't know if that will solve all my problems, but it may help.  Because to me, this POTS seems like an affect of all the different causes I may have.  What the cause is of all the other causes, I don't know.  But I'm going to keep plugging away with the doctors and see what I can find.  And of course eating good foods that are right for me.  

Maybe I should do like Lola said and give Dr.D a call and do a phone consult.  I wonder how much that costs and how beneficial that would be.  

Anyways, it at least explains some of the way I'm feeling.  Maybe not all of it, but I think it just gives it a name.  Which will be good for my in laws.  They're always skeptical of me being sick.  Like I have no reason to be.  They're becoming much more open to it now though.

I have a niece with POTS.

I ran SWAMI for her a few months ago. She seems to be doing better on it, but not a full cure.

I am not sure that I through all the right switches for POTS.

That website shows that it could be numerous things that cause it, including viruses.  It may take a while to track down the trigger.  Although it may be that correcting some things may help overall.  I don't know.  I think I'm going to start following my swami, as it has me eating more meats and this may help in the blood pressure department.  I don't know.  I had my wife pick up some of the meats that my swami says are neutral.  Plus, I have a lamb roast for tomorrow.  And it's been a LONG time since I've had any red meat at all.  I have to try rabbit sometime too.  I just never see it anywhere.

But, like you say, it may not cover it completely.  At this point I'm open to taking the drug he wants me to take, just to see how it does.  

Plus, I was vitamin D deficient and the Endo guy prescribed 50,000 IU gel caps once a week.  I'm kind of worried about taking that much at once though.


Does your niece have hypotension with it?  Because I guess you can have it with and without.  Or something like that.  Have they prescribed any other medications that seemed to help?  The drug they want me to take actually regulates acetycholine by blocking it's breakdown.  Which, I'm not sure I want that, but it's better than some of the other drugs I think.

I believe she has hypotension at times, I do not know the readings.

I get rabbit from a friend that raises rabbit.

I used to get it at Mexican markets.

call the clinic and ask all your questions about a phone consult....

I know you pray, and that for you is a diamond!!
so you re in good hands!

I would call and find out what all the questions might be that you need to ask, then see what will be suggested.. sometimes having a label helps, just a word can make it easier, but still SWAMI might be the most least expensive way to actually deal with any illness or condition.. fixing it will take time, but so what, it is the only way you can make any difference, so call the office.. as it will speed some things up..

glad you found out why you felt so bad.. (past tense) because you have gotten better some.... ?!

a little bit of more psychosomatics ....

following Dr D s advice when it comes to physiological individuality and a particular sup, has so far worked like a charm!!!
I don t plan to change the strategy, until I read or hear otherwise, during one of his conferences or in the posts he at times graciously participates in.

Quoted from Amazone I.

a little bit of more psychosomatics ....

Could be, everything has an emotional component.  But if you look at the symptoms, I have them all.  One thing it (the website I linked) tells you not to do is fly on commercial airplanes.  And it explains exactly how I felt, even though I didn't know why it was happening when I did it (to and from mayo in jacksonville, fla).  As soon as they started to pressurize that cabin, I started breathing deeper and needed to drink water like it was going out of style in order to keep my heart rate not going above 120.  Plus I used some calcium channel blockers.  If I wouldn't have had those, I would've been in big trouble.  So, I thought I was just having anxiety, but the fact of the matter is, if your vessels aren't constricting or dialiting like they should, it can give you big problems.  

Is it all in my head?  I don't think so.  Will working on my head help?  Definitely.  

Quoted from Goldie

I would call and find out what all the questions might be that you need to ask, then see what will be suggested.. sometimes having a label helps, just a word can make it easier, but still SWAMI might be the most least expensive way to actually deal with any illness or condition.. fixing it will take time, but so what, it is the only way you can make any difference, so call the office.. as it will speed some things up..

glad you found out why you felt so bad.. (past tense) because you have gotten better some.... ?!

Yes, thank you for asking.  I do feel better.  Not tons and back to normal, but things have calmed down some.  I have been sleeping better and much less pain and inflammation then when it all started.  In fact, that's pretty much a non issue, although I can still feel it.  Wiki says that IBS can be linked to this POTS and I have a feeling that's all it is.  

I just got back from my Holistic MD and they might have figured out a better thing to take than the drug the EP doctor wanted me to take.  They do muscle testing and are saying the Mestinon probably wont make me feel better.  I think I'll still try it but it seems like my body needs Acetyl Carnitine, instead of something that stops the breakdown of acetylcholine.  I'll give the drug a try possibly, just to see if they're right or wrong, but at least I have some options.  

And the 50,000 IU's of Vitamin D prescribed by the endo doctor, I'm not touching.  I always felt terrible when taking just a little bit of D3.  Problem is you don't know what kind of D they're giving you.  They're these greenish gel caps.  If I feel terrible with 400 IU's, I'm not sure 50,000 is wise.  You know?

It's not unusal to get the prescription D.  I took it once a week for 4 weeks to try and get my levels up and last time I was checked, I was still low.  I'm currently taking 5000 IUs of D3 a day.
Glad you have at least identified what your problem is.  Hopefully the meds will help.
Jane

I read the link. If I understood it correctly, the cause of POTS seems to be centered around the function (or malfunction) of ones Autonomic Nervous System (ANS).

During early life experiences, the mother functions as a surrogate for the ANS. The mother fulfills the childs basic bodily needs by intuiting when to feed, stop feeding, how to hold, regulate temperature with clothing and blankets, etc. If this "holding environment" (D W Winnicott) is disturbed or inconsistent, the child may develop with an unconscious and ubiquitous absence of faith in the basic functions of the body such as those regulated by the ANS.

Interesting, Narc, but babies do communicate needs.  It's not just motherly instinct.  I do believe, however, that listening to your baby and answering those calls could play a big part in ANS development.

ABNW, I'm glad you've at least got a name for it.  ((hug))

Quoted from Ribbit

Interesting, Narc, but babies do communicate needs.  It's not just motherly instinct.  I do believe, however, that listening to your baby and answering those calls could play a big part in ANS development.

I have no experience in being a mother. My statement is purely theoretical. The point I was making was not whether or not the child communicates its needs (I am sure it does), but how effectively the mother seamlessly meets those needs. A disturbance is inevitable, it is a matter of degree, and such disturbances may relate to the regulatory functions of ones ANS in later life.

complete of mine.. I know what you're talking about but be assured, it is nothing dangerous... may I ask you to look and lay back into the booklet of Louise Hay ....

I couldn't remember the name you are always talking about.  But maybe it's time to look into it.  I'm open minded.  And at this point, anything that can help is welcomed.  What book should I get or CD's or whatever and where is it.  My mind needs a good flushing.  And I appreciate your loving persistance to help me in this area.  You are beautiful.

As far as the mothers inputs and all that, I do know this, when I was concieved, born and reared, it was a stressful time in my Mom's life and mine.  My parents were divorced when I was 7.  And I remember being scared a lot of my younger life.  I'm sure it's affected my health.  I have a missing major pectoral muscle on my left side and according to one of the Dr.D books, that spells stress in utero.  So there you have it, I'm all messed up.  Hehehehe

TG you are not a nonnie!!

ABNoWay... we've to observe how we are creating our thoughts... fist a thought...next a feeling and then it may come along with fear or other nagative outbursts... go for positive affirmations, it really works for us, equal if nonnie or sechi... it works for all of us!!! And perhaps would you like to renifle a little bit in the Ruiz programs, its easy to listen even easy to do and it works then on your own... justamente beautiful 5 little sentences to incorporate... but we've to do it...and really all is about *agreements* feel hugged from Isa

Quoted Text

Yes, thank you for asking.  I do feel better.  Not tons and back to normal, but things have calmed down some.  I have been sleeping better and much less pain and inflammation then when it all started.  In fact, that's pretty much a non issue, although I can still feel it.  Wiki says that IBS can be linked to this POTS and I have a feeling that's all it is.

THIS IS what I was looking for!! Good job..

So now you have a label.. so now you have a compass.. and now start the work you already started..

SEE if you can get DrD's Encyclopedia.(from the library) . read up on all his protocols.. then read in-between the lines what he recommends.. some sups can be found in real food.. some are worth buying when food is not enough..

as for the mental stuff.. that is also connected to the foods we eat or don't eat.. I for one have started to drink hot cocoa for about a month and my cravings have diminished to the point of non existence.. I have no Idea how this particular item can do that.. ONE spoon in the morning in hot water is enough.. why how come?? I am not saying this for you to try it.. I don't know if it is on your food plan, but I am telling you that what I should have tried 15 years ago, might have saved me many miserable hours or days..

It's interesting for me to know that it was one food next to meat for me (O) that I never gave up no matter how ill I was..

I am not familiar with what you need to eat, but you need to be looking at the encyclopedia as for you most important.. then since that was written a long time ago, there is a lookup here to make sure you will do the up to date protocols..

feed your body and the mind will follow..  for all there is a time when we do certain things.. some years we need to be enticing a spouse.. some years we need to feel the nurturing of a child, and then come the years when we learn about our SELF and you are in that time frame when we have to take some time to learn where we came from and what we need to do about it to HEAL all the baggage.  

Close your eyes and let your body tell you -- a memory pain , review it and then set it aside, by doing what it is that you NEEDED when YOU first experienced that 'pain'.. if a massage is needed give it, if a hug is needed give it, if a food is connected - respond lovingly (within our borders), if a bath would be good, then clear the space to make it your own, if lighting a candle in memoriam is what feels right, light one, if a candle for romance is needed then light many,  buy flowers for your self.. even if you only give them to a partner or a friend.(keep the reason for the flowers to your self) . we can heal and it is doable,, but we have to do the work..   so off you go to a life worth changing and you changing with it..  you are in that age when this is the beginning of YOUR OWN LIFE.. this will go on for a few years..          

At least now you have some more information about what's happening with your body, and you can use that information for healing.

I don't know enough about POTS to know if conventional medicine is a good idea or not- of course in conjunction with natural healing methods, not in place of it.

If old emotional baggage is a part of the issue, Bach Flower Remedies may be helpful.

Louise Hay, thanks Amazone I., http://www.louisehay.com/enews/thankyou2.php#.

http://www.bodytalksystem.com/learn/access/cortices.cfm

Awesome, awesome, awesome stuff.   With BTD/GTD...EVEN MORE SO.  

Debra

Quoted from Debra+

http://www.bodytalksystem.com/learn/access/cortices.cfm

Awesome, awesome, awesome stuff.   With BTD/GTD...EVEN MORE SO.  

Debra

I take it you're the one that emailed me. Cool!  I'll have a look at that.

I have to say something, my BP has been up consistently today.  I ate lamb last night for the first time in a long time.  When I say "up" I don't mean dangerously up.  I took it twice and the last one was 105 / 78.  That's not high, but it's higher than it's been in days.  I bet you 10 bucks it was the lamb.  Well, I have a feeling it had an impact.  

Now I'm having the brain fog symptoms.  Which in the past has meant adrenals.  Or possibly yeast.  But my tongue isn't too bad looking.  I'm pretty sure I still have it though.

Quoted from Lola

TG you are not a nonnie!!

I got enough problems.     You think it would make them worse?  

Bound to;) As Lola said...Thankfully you aren't

Not sure what to say - but good you have a name for it & the knowledge/advice not to fly

even as being a nonnie, my bp is ok now... but pre-btd..it was low as well yup I often eat lamb, use salts 50:50% potas...and nacl... better for not retaining any water .... (@my old age ... )


and hey roosersis... thanx for your info about the bodytalkins... sounds great and looks great as well... I'm sure it's all about *new agreements* and a form of "auto-suggestions"  but yesss we've to overcome certain habits and letting go with such techniques... why not, ther's nothing wrong....

and grey rabbit, thank you for the link of L.Hay ...

Yes ABNoWay...I emailed you.  And YES...nonnieness can make things worse.  As Lola says...TG you are not one.  

Isa...I have seen some amazing things with this system.  I will show you when you come here.   (((((big hugs)))))

Debra

Quoted from Amazone I.

even as being a nonnie, my bp is ok now... but pre-btd..it was low as well yup I often eat lamb, use salts 50:50% potas...and nacl... better for not retaining any water .... (@my old age ... )


and hey roosersis... thanx for your info about the bodytalkins... sounds great and looks great as well... I'm sure it's all about *new agreements* and a form of "auto-suggestions"  but yesss we've to overcome certain habits and letting go with such techniques... why not, ther's nothing wrong....

and grey rabbit, thank you for the link of L.Hay ...

How often do you eat lamb?  Like I said before my body is having a love / hate relationship with fat.  I need it, but I don't want to assimilate it.  My doctor told me to be taking 2 lypo gold (digestive enzyme for fats) at each meal, well, if eating meats and fats, and for some reason the acetylcarnitine will help get it into my cells.  I don't add too  much oil to anything but I notice my poop floating if I do add a little too much.  And a little too much for me might be a tablespoon of EVOO on my salad.  I'm usually doing just a hair.  Like maybe a teaspoon.  Maybe it's just bad bacteria in my colon not allowing it to happen.

LR4YT recommends 5 to 8 Tb/week of added fats and oils for an AB secretor.  So that can include olive oil, ghee, etc.  You can trim off all visible fats and select lean cuts of lamb.  Ground lamb is going to be fatty,  If you use that, cook the meat and absorb all the melted fat with paper towels before adding to any other food.  I also keep my fat intake to a careful middle ground, not getting excessive but not skimping too much on beneficial fats.  
Some lamb a few times a week does wonders for the energy, body temperature, normalizing blood pressure and giving a sense of safety.  

Yeah, I guess I should be trimming my fat.  I sometimes eat it.  And yeah, I guess the book does say to go easy on the fats.  Hmmmmm.......

So, I guess I need a new salad dressing without too much fat.  

On the other hand, I think there is a certain amount people need for their brain.  What it is for me, I'm not sure, my doctor thinks I need more to gain weight, but that I'm not assimilating it well.  I know when I was younger, I ate a whole lot more, that's for sure!

Quoted from JJR

Yeah, I guess I should be trimming my fat.  I sometimes eat it.  And yeah, I guess the book does say to go easy on the fats.  Hmmmmm.......

So, I guess I need a new salad dressing without too much fat.  

On the other hand, I think there is a certain amount people need for their brain.  What it is for me, I'm not sure, my doctor thinks I need more to gain weight, but that I'm not assimilating it well.  I know when I was younger, I ate a whole lot more, that's for sure!

I wasn't necessarily suggesting that you trim your lamb, just that you can do that if you feel that you're getting too much fat in your diet.  You're still going to get fat when you eat lamb, even if you trim it.  

I agree that there is a certain amount that we need.  So not to go from one extreme to the other.    How much total added fat do you think you are eating?

p.s.  I just noticed that you are following a Swami diet.  How much added fat does it recommend for you?

I haven't really been following my SWAMI.  It was so close to my BTD, that I went from the book teacher diet back to the BTD for AB's.  I usually try to add a little bit of oil at each meal.  Like EVOO or walnut or ghee.  I could use the butyric acid for good colon health and kill yeast.  

But, I've been debating about hitting my swami again.  I put a question up in the swami section about lactose intolerance, becaue I'm just not sure.  One thing my swami has always told me to do though, which I think I may need to be doing more, is eat more red meat.  And I know every time I eat lamb, as long as it's good stuff, I seem to feel better.  I just don't do it that often.  It was a month since I ate it last.  Then the other meats it's saying are good for me I don't barely ever eat.  Like Rabbit.  Actually, I've never had rabbit.  

So.  I think I'm always worried about cholesterol, because mine is "high".  Well the last time it was much lower, but some doctors still don't like it.  My HDL's are always high and my ratios have always been in the OK range.  Now my ratio is even better.  But I know Dr.D is one that thinks your cholesterol should be low, like the rest of the doctors.  My cardiologist liked my ratio, and said the total number is not the complete picture.  And my holistic doctor says the same.  

So, I think that's my biggest stumbling block to eating more red meat.  But I've avoided it for so long, I think I might need to try eating it more regularly.

When I was growing up, I was pretty much a meat eater.  But I also had a seefood diet until I had problems.  But meat always seemed fine with me.

Quoted from JJR

One thing my swami has always told me to do though, which I think I may need to be doing more, is eat more red meat.  And I know every time I eat lamb, as long as it's good stuff, I seem to feel better.  I just don't do it that often.  It was a month since I ate it last.  Then the other meats it's saying are good for me I don't barely ever eat.  Like Rabbit.  Actually, I've never had rabbit.  

So.  I think I'm always worried about cholesterol, because mine is "high".  My cardiologist liked my ratio, and said the total number is not the complete picture.  And my holistic doctor says the same.

Meat (or fat in general) is not the largest contributor to high cholesterol...  It is usually the carbs that cause high cholesterol...

Thank you for that Joe.  I didn't really know that.  

You want to know something else, a long time ago before I started BTD and I was fighting yeast really bad, I read some books and one of them said meat is BAD.  And I think I still have that in my psyche.  In fact, I know it's still in there.  Probably another wrong I need to right in my head.  I think it was called the yeast connection.  Or no no, it was called "Sick and Tired".  This guy was saying you basically should go vegetarian.  But from what I understand now, the yeast and bad bacteria actually like grains and sugars the most.  I think if there is too much undigested meat in your system, that could do it too, but I don't think that's my problem.  I think this book was actually saying you shouldn't do any dairy either.  I think he was saying you should eat Veggies, beans, nuts, and fruits without sugar.  Lemons, Limes, cranberries and like 2 other fruit.  I can't remember.  

Obviously another one size fits all approach that might have worked for him, but probably isn't right for everyone.  Maybe he was an A.  I don't know.  

Quoted from JJR

When I was growing up, I was pretty much a meat eater.  But I also had a seefood diet until I had problems.  But meat always seemed fine with me.

Umm do you mean "a see food & eat it" diet? Or a seafood diet I had a see food & eat it diet too, until I had problems Weight gain

Yeah, I ate whatever I saw.  I was never real heavy.  Just very active and had a system that worked.  Until about 4 years ago.  Then it all came crashing down.  I went from being a garbage gut to super sensitive.  Wild.

ABNoWay  I feel merely that you are still in fight with yeast (viwed your descriptions) ....remembering your photo's you aren't a type who gains quickly a lot of weight and you are of small posture called leptosome... so far I don't think you will develop problems here...and take care not to jump into the cholersterol lie... we do need this product.... and some of us do have high cholesteroles by heredity.... rememeber it well ....
actually I do eat lamb  mostly 3-4 times a week, very little of rabbit, then I added muchmore fresh fish to my diet....soooo yummy   and I use a lot of fresh and dried herbs to maintain a good gutflora and going against any bacterial and yeast overgrowth.... .....

You know what, it could be the yeast totally to blame for all I know.  Because my colon seems to be the thing that is in pain.  It's not horrible now.  Before all this starting I was eating manuke honey, which kills yeast.  And from what I could tell it was working.  But it's almost like they're rebelling with a vengeance.  That's how I feel about it sometimes.  Because the manuke honey seems to flare up my colon now, where in the beginning, it didn't do that.  I think I have to switch gears as to how to kill it.  

I have been upping my spices herbs some, maybe instinctively.  Turmeric, cumin, curry, whatever.  And garlic too.  I always eat a good amount of ginger.  

As far as the diagnosis goes, it's just a clinical way to explain what things might not be working correctly and then the doctors can prescribe drugs to overcome symptoms.  I haven't taken the drug yet, but I have been taking supplements that may help, per my holistic doctor.  But they feel (holistic doctor) I need to kill bacteria, including yeast still also.  The question is, HOW to do it properly, without feeling terrible, causing lots of inflammation in the colon and kill it to be GONE!!!  The were waiting for me to get some strength back up before they gave something called a biofilm to kill bacteria.

Quoted from JJR

You know what, it could be the yeast totally to blame for all I know.  Because my colon seems to be the thing that is in pain.  It's not horrible now.

I think I have to switch gears as to how to kill it.  
The question is, HOW to do it properly, without feeling terrible, causing lots of inflammation in the colon and kill it to be GONE!!!  The were waiting for me to get some strength back up before they gave something called a biofilm to kill bacteria.

http://www.enzymedica.com/products/Candidase  I find this product to be very effective whenever things are getting imbalanced.  For me, ARA6, Polyflora B, lamb a few times a week, lots of fresh seafood, ghee, low grain, small amount of diamond fruits, green tea . . this has balanced my gut in a way that I haven't enjoyed since I was a child.  If needed, Candidase works quickly.  It's been needed less and less over the years and now the bottle just sits on my shelf .. just in case.

Hey, JJ, I'm on a homeopathic thingy for liver and gallbladder support. I wonder if that would help you too.  It's "Dr. Recommends" brand and my ND suggested it for me.

Quoted from Victoria

http://www.enzymedica.com/products/Candidase  I find this product to be very effective whenever things are getting imbalanced.  For me, ARA6, Polyflora B, lamb a few times a week, lots of fresh seafood, ghee, low grain, small amount of diamond fruits, green tea . . this has balanced my gut in a way that I haven't enjoyed since I was a child.  If needed, Candidase works quickly.  It's been needed less and less over the years and now the bottle just sits on my shelf .. just in case.

I think I have some of this.  I know where I can get some if I don't.  I take their digestive enzymes.  Good stuff.


Ribbit, I don't know, could be.  I was going to ask you what they've been giving you to deal with your lymes.

Quoted from JJR

  Plus I used some calcium channel blockers.  If I wouldn't have had those, I would've been in big trouble.  So, I thought I was just having anxiety, but the fact of the matter is, if your vessels aren't constricting or dialiting like they should, it can give you big problems.    

ABNW: I'm quoting you here, and later in the thread you complain of "floating" stools. I would be remiss if I did not inform you that the calcium channel blocker that is NATURAL is called Magnesium. Anytime you're prescribed a drug called a Calcium Channel Blocker, reach first for the Magnesium.

And - Coincidence? Fat malabsorption, manifesting in greasy, floating stools, is also caused by a deficiency of - what? Magnesium!

Your BM's are confirming that you need to be taking alot more magnesium. You're deficient in it, as so many are. It's cheap. It's safe.

Your psychological stuff? It could also be a manifestation of magnesium deficiency. This is just too easy to deal with, ABNW. Don't neglect it. Heart problems, sleep problems, blood pressure problems, absorption problems...Look it up, Mister. Go on line and look up Magnesium, up one side and down the other. OK? You and I both pray. I'm sending up one right now for you.  
There'll be some degree of relief for you. Some degree.  

fatintolerance... need of enzymatic treatments (gallbladder)..liver cleanse and have an eye onto your pancreas as well ....ther's a fine product in ayurvedic med. called liv 52..and then do I love to work with the enyclopedia of Dr. D as well  

btw... have you ever tried the product calld Padma 28 or other products of Tibet

"People generally develop POTS after becoming sick with a virus, giving birth, or being exposed to great bodily stressors (i.e. surgery, trauma or chemotherapy)"

I would try the anti viral protocol and anti stress protocol as maybe your adrenal glands may be exhausted

yes Nitricycle will help as well as Quercitan and elderberry

Meditation is recommended

Quoted from san j

ABNW: I'm quoting you here, and later in the thread you complain of "floating" stools. I would be remiss if I did not inform you that the calcium channel blocker that is NATURAL is called Magnesium. Anytime you're prescribed a drug called a Calcium Channel Blocker, reach first for the Magnesium.

And - Coincidence? Fat malabsorption, manifesting in greasy, floating stools, is also caused by a deficiency of - what? Magnesium!

Your BM's are confirming that you need to be taking alot more magnesium. You're deficient in it, as so many are. It's cheap. It's safe.

Your psychological stuff? It could also be a manifestation of magnesium deficiency. This is just too easy to deal with, ABNW. Don't neglect it. Heart problems, sleep problems, blood pressure problems, absorption problems...Look it up, Mister. Go on line and look up Magnesium, up one side and down the other. OK? You and I both pray. I'm sending up one right now for you.  
There'll be some degree of relief for you. Some degree.  

Thank you for the tip!  My holistic doctor had me on cal mag k before all this started.  I stopped taking a bunch of supps to go to mayo.  I'm suppose to start taking a multi that has magnesium in it, but I'm worried about it, because it has D3 in it and D3 always makes me feel super tired when taking it.  So...  I do have some magnesium on it's own though I believe.  The only thing about magnesium is that I'm getting dilation of blood vessels when I need constriction.  And magnesium could possibly do the opposite of what I want.  It relaxes the muscles and such.  I don't know, that might lower my blood pressure.  As hypotension is the thing I'm battling. Not high blood pressure.


No Isa, no tibeten supps taken as of yet.  I took cats claw at one time a long time ago.  But I think that was a south american rain forest thing.  Or african.  I forget.  

cats claw is something against inflammation and yep it comes  from Africa , if I remember it well; similar to devils claw...

http://www.google.com/custom?q.....itesearch=dadamo.com
cat s claw

I was taking cat's claw tincture too.

Yeah, this was years ago.  I don't know if it helped or not.  

Nice to hear that you have a diagnosis! I don't always read this section as I already am on line too much! I go more to the off-topic section to keep up with the regulars.
Anyway, you live in an area with little sunshine. I'm sure you need Vit. D, but don't handle a supplement well. Can you move to a sunnier climate? Getting the sun naturally is needed, IMHO!
Take care & ((HUGS))!!!!

At this point, moving would not be a good idea.  The sun felt good today.  My only concern is it probably doesn't help if it's through glass or not, eh?  I don't know the answer to that, but it's hard to get any when it's like a frozen tundra up here.  

You get any snow?

Need UV-B to synthesize Vitamin-D. Only about 5 per cent of the UV-B goes through glass.

That's what I was thinking.  Well, not so technically, but I figured it's better outside.  That's not easy.  Maybe I'll try today, it's sunny out!

There's a neat house down the road with some acreage for sale.  We'd love to have y'all as neighbors.  

I think someday I would like to get out of these winters.  However, real hot is really no good for me too.  It totally drags me down.  And there's a reason they call it "Hotlanta".  I think further east towards the ocean in the south would be better.  Get those cool breezes from the ocean.  Or, if we ever have enough money to do this, we could be snowbirds.  I would probably love that for sure.  I love the winters down where you are.  They're perfect.  They can get a little cold, but it's super mild compared to here and not much snow.  If ever.  

You didn't see my Facebook status.   It was 12 degrees yesterday morning.  Our creek was partly frozen, which I've never seen before.

Drink more water

http://www.ncbi.nlm.nih.gov/pubmed/21044941

Maybe make a tea of licorice with it

http://www.ncbi.nlm.nih.gov/pubmed/7821181

Thank you for your input sir.  I do appreciate it.  

I have been drinking over 2 liters of water a day for the last 2 years.  However, this last bout I changed the way I do it.  I used to fit it inbetween meals.  Now, I get up and drink a liter right after getting out of bed, and actually starting while I'm in.  Then, I make a lemon water drink with a little honey and salt and a whole lemon juiced.  I drink that throughout the day.  I think this is helping too.  Also, I've been eating smaller meals more times a day.  Which, I think goes against some of your teachings, but it seems to be helping me.  

The last time my wife went to the store I asked her to look for the traditional medicinals licorice root tea, but they were out.  I wonder if there is another way to make it?  Or, I just need to find another source.  I used to drink it a long time ago.  Maybe I just need some black licorice.  Hehehhee.  With all the junk in it too.  Yeah right.  

I thank you again for taking the time to respond to my ailments.  I'm getting better with some of the things and this thing has always gone in cycles.  I was thinking NO was part of my problem and need to order some.  But raisins are a black dot on my swami and I haven't been really eating them.  Actually, I never ate them much at all.  In fact, now that I think about it, I was eating them a little around the time I got real sick.  But that was probably a coincidence.  

Anyways, enough rambling.  

Licorice seems almost custom made for this syndrome.

sip right ab tea has licorice as well
and
http://www.4yourtype.com/prodinfo.asp?number=NP042

Sending you some ABNoWay & hope things turn around for you soon.

I got a UVB light from this site awhile back http://lightyears2.com/skin_light.html(don't recall the model) and am happy with it a few times a week for about 20 seconds-- equiv of about 15 minutes in the sun. Don't remember the model. Don't know much about UVC.
Still taking my script supp, but something about this even affects my mood super positively. And I'm making sure to get antioxidents in all this fruit/veg/tea/etc.
UVA is about the only thing that makes it through glass unfortunately.  

AB No Way-- Best to you. ((hugs)) on your journey. Congrats on getting some answers. I like what Lola said about prayer being a diamond. And it's one we can give you, too.

Stash Tea's Licorice Spice is very tasty. I don't know your spice-profile however. But it's also WARMING, which it sounds like you could use!

Stash makes one?  I see that brand sometimes.  I don't do well with some of these teas that have all kinds of other stuff in them like hibiscus and rosehips seems to be two popular additions.  I never feel right after drinking those teas.

Thank you Dr.D.  I'll be looking for that.  

Lola, your link is gastro D.  I take that.  Do they make a tea?  I'll go look.

Thank you kimono kat.  I have been feeling quite a bit better.  It was just a set back and because it was I decided to go further into why.  The diagnosis does explain a lot of how I feel and it's relieving to have a "name".  But the "name" is just that.  I have to heal the whole body in order to "fix" it.  And taking a drug by a doctor isn't going to do that.  The supps I've been taking seem to be helping, as is the right foods.  After all the testing I've done I've rerun my swami and am following it now.  Hopefully that will help.  It didn't change a whole lot, but I think I have to focus on trying to eat more red meats.  Per my swami.  

AKArtlover.  That's a good idea.  My StepDad has talked about that in the past (he's an electrical engineer and has worked a lot with lighting fixtures).  But I know he doesn't have one of those.  I probably should get one.  So it seems to help you feel better?

Quoted from JJR

Stash makes one?  I see that brand sometimes.  I don't do well with some of these teas that have all kinds of other stuff in them like hibiscus and rosehips seems to be two popular additions.  I never feel right after drinking those teas.

Stash "Licorice Spice" tea has no hibiscus or rose hips. Just some spices. Lovely. It was the first licorice tea I ever tried, back in NY in the 1980s.

I'll look that one up for sure!!!

Hi ABNoWay - hope you read this.

I've self diagnosed myself with POTS now.   Dr not helping! My Blood pressure goes down about 20 when I stand up and heart rate goes up about 15.  Sometimes I crave salt and get dizzy and breathe funny like I'm acidic.  Frequent urination and heat intolerance, then salt craving etc.

Having lots of salt helps and licorice root tea.  After the tea I feel like my legs are compressing the veins more when I stand up.  Reckon it's also to do with a lack of aldosterone - my pupils dilate easily when light is shone on them which is a sign.  Get sensitive to light.

Worse time of day is when I cook and wash up standing for many hours I get swollen ankles and dizzy.  Sea salt in water does help though and on meals.  And snacking small meals through the day especially before cooking time.

On the BTD I really took what Dr D said about having breaks to heart for As.  It's helped alot, get up do something physical then back to brain work, or I get more dizzy the longer I sit down before getting up again.

Also suffer IBS, and get heart palpitations (tachycardia) after laying down sometimes.  Cold hands.  Average blood pressure around 100/70.  Memory loss, can't find right word, amnesia     Reactive hypoglycemia, numbness, need I go on but I fit every criteria!

Have been taking supplements for adrenal fatigue and trying not to stress them too much for over a year now and have found it's helped.  According to the ranges on wikipedia I qualified for Addison's disease last year, but my recent test I passed with flying colours and had near the top for initial cortisol reading. Thinking the GTD and supplements (vit c, e, b5, b6, b) have helped!.  They checked aldosterone and though I fasted for salt, it was still in the bottom third of the range.  My GP doesn't know that I should have been in the top of range.  Oh well, don't need artificial steroids (florinef would help) licorice root tea and sea salt and does it naturally.

Also upped the magnesium lately and it's helping me; less headaches.

Anyway enough about me, hope you are going well.  I found this really good link I wanted to share with you.  Found most interesting it doesn't recommend ginsengs for POTS sufferers as it increases mostly already high norephinedrine.  I've been taking siberian ginseng and found it's given me energy and focus, but am only just noticing (I went off it for the ACTH test and was better) it increases salt wasting.  Just thought this could all help you.

Quoted Text

Patients with POTS and/or neurally mediated hypotension should avoid garlic and nitrates in food, which lower blood pressure.  Most patients also need to give up alcohol, coffee, tea, and adrenaline stimulating herbs like ginseng.  Try to avoid eating heavy meals as overloading the stomach decreases orthostatic tolerance by drawing blood to the digestive tract and away from main arteries which feed the brain.

http://potsweb.50webs.com/

Regarding Vitamin D, do you get out in the sun much, do you wear sunscreen, moisturisers etc. I don't know my vit D levels but i feel much better outside in the sun. I stopped wearing any sunscreen and now use a hat after a while. and i don't use any cosmetics stuff like moisturiser any more.

Whenever a doctor say to me, which they do often "we don't know what to do but take this drug" I have a rule - I don't take it. I find out what the drug is supposed to do, in detail and find an food alternative whether it is eating less of something or eating more or something.

although to be honest we don't really ned to bother with doctors any more. touch wood!

I had a look at those links to Louise hay and the cortice technique.

The chap in the cortice techniques talks about the brain being upset and stressed and later in life this comes out as IBS, strokes etc.

Having changed to the BTD i don't expect to have ibs and the like later in life. so I'm not sure if this now makes so much sense.

I don't mean to put a dampener on it it is just my tiny initial observation. perhaps it helps relax you which isn't a bad idea anyway.

if your diet can change all of this stuff, and i know it can, including behaviour and focus. perhaps they are claiming too much.

I shall continue listening, i just wanted to mention this before i forgot about it.

Symbi, get yourself a dish-washing machine darling oxo

go for some *Effortil* drops....

lol PC!  Great idea, just what I need.  Imagine the even more cooking I'd do if I had one!  Side dishes everything.  Carrots juliene with honey mon cheri!
So right about doctors, if we can tune into our bodies we always know more.  And there is so much information in books and on the internet.  Though of course, they may have good instincts and more general knowledge.  Pull pushing is all I get and they tell you not to look on the internet but you need to to find any general advice.  

Amazone   - thanks for the tip, couldn't find much info.  It may be only available in Sweden and Germany.   http://www.drugs.com/international/effortil-plus.html

and Switzerland Symbi I'm going for more infos and sending it you you

Thanks for the info Isa!    Got it translated by google to English (wish I knew more languages like you! - guess I'm more the mathematic type  ).  
It looks promising except it has sulphites.  That's not good, they don't agree with me exacerbating asthma.  At least found out my favourite molasses isn't sulphured yesterday (increased my iron levels nicely).  But like chicken man, it's everywhere!  it's everywhere!

Really, if I eat enough salt (and keep high potassium foods at a minimum especially in am) then it doesn't happen.  I wonder if POTS overlaps with adrenal fatigue?

Just started taking Ginkgo Biloba again like I do during winter to help the raynauds syndrome (hands and feet turn frozen and white).  One day in and I already feel the brain working better!  Just read that one of it's mechanisms of effect on cognitive functions explained by modulating cholinergic function, antioxidant action and blood thinning.  http://www.ncbi.nlm.nih.gov/pubmed/11090296.
The cholinergic effects might interest you ABNoWay.  I also suspect cholinergic problems especially with dry mouth and muscle fatigue.

I have to watch that it doesn't thin my blood too much, cos it might increase the low blood pressure.  Plenty of salt and licorice root tea should counteract that.  Still have some garlic too.

Symbi dearle sorry for the sulphites...didn't knew it but what's about thinking over such a thema ....Louise Hay writes: Not enough of love while being a child;  thoughts going into this direction: hey what's da matter... it won't work anyway... ... new pattern...agreement;) : I'm able and willing to live in the now, my life consist in joy!!!

ahem yup to whom it may concern   

The effort was very much appreciated!   @>-------

Amazingly, I finished my siberian ginseng and am feeling much stronger, maybe it stresses the adrenals to give you energy too much.  It may have been increasing adrenalin and making the POTS worse, I think.  It's also winter here so less heat stress.  Time for lovely soups and yummy food like that (used to live in the tropics still lovin' winter food).  Looking at the positives!  Also time to freeze but